Buddy came in strong with twerk roobs, wears socks in the middle, and finishes big with a grumble 😂 I hope you guys enjoy this video, learn a bunch about my treatment through POTS Care, and feel closer to knowing whether POTS Care Package could be the right next step in your POTS journey! Here's a summary of DISCOUNTS/my links & Codes: ○ POTSCare.com - You get $200 off your Individualized POTS treatment if you mention me when you call to book. ○ POTS Care Package - You get $50 off your Package by using my code, MOMMING My link: potscarepackage.com/partner/mommingwithmigraine/ ○ Supplements: 10% off by using my code, MOMMING My link: vagusnervesupport.com/?rfsn=6261617.9d93910
Have you ever looked into curcumin (anti-inflammatory) supplements? From what I know, it is used across various different conditions, and CAN be very helpful to the right people. I am not as well versed in IIH and POTS, so I am obviously NOT recommending it, just wondering if you have run across it in your personal treatment with how often it has in mine. Also, I take NAC too, for many reasons, but take it mainly for my mood and emotions - depression and anxiety - so personal anecdotal experience "supports" (if you can call it that) your feeling like missing a dose impacts you. Also, yes, supplements (the quality kind, and there are some poor quality supplements out there) really do add up and get expensive. I assume that the supplements included probably cost more individually than they would as part of the package.
I haven't heard of curcumin before, but a quick google brought up turmeric (which I do have a bit of each morning) and that it's part of the ginger family (which you know I have daily), so it sounds like a good one! And yes, bundles do absolutely tend to be less expensive overall! I enrolled in subscribe-n-save for mine once I nailed in what I wanted to take ongoing.
Ok so my maybe POTs story. This might be long so, read it when you can remember. I feel I have had pots for about 2 years but I first figured out what it was and I might have it about a year ago because my mom has asthma so she bought a heart rate monitor that goes on your finger so she can see how much oxygen she has (I am almost 13 by the way) that really helps her but I was playing with it and I was on her bed then stood up and my heart rate went up a lot. So I did it again it did the same thing and again then I looked it up and saw that it could be POTs so I told her and showed her. I tried it with my sisters and it did not happen to them. She said I was fine and it’s just because I was laying down then getting up so many time so I let it go. But I watched videos about it and saw your video about diagnosing pots and tried it ( I am not trying to diagnose myself) I was positive. My heart went up 40 from laying down. Skipping a little bit I was in the car with my dad I told him and I said what it might be he also brushed it off. And I started noticing symptoms I was getting dizzy when I stood I had to sit down if I was not walking and when I got up from my bed the bottom of my vision got blurry also brain fog. Also another thing my mom said when I said that I got dizzy when I stood is “you are to young to have dis function “ I was like wow ok.Now 6 months later or so I have not been diagnosed still have symptoms and I know my body well and I am 99 percent sure I have pots I have since moved to Arizona. If you have anything that you could tell me to help that would be amazing ✨ also if anyone could tell me a way to tell my mom and have her take me to a doctor to get tested that would be amazing too. Thank you for reading and the video was great.
@@dogsandme1078 Based on what you explained I don't think your parents will hear your concern unless they think it's concerning. You need someone else to back you up. Do you have anyone you can tell your concerns to? For examples: School nurse your doctor (if you have check ups) pastor teacher counselor friends parents other adult family members ect
Jen, I have to thank you from the bottom of my heart. I have had mysterious illness for over a decade including headaches, neck pain, upper back pain, dizziness, vertigo, nausea, intermittent gastroparesis etc. I always thought that the clear fluid dripping from my one nostril was due to food intolerances...after watching the video where you spoke about the CSF leak, everything clicked and just in time. After an ambulance ride last night and pushing the neuro to check my spinal tap results from 2013, I'm finally getting the testing that I need and with treatment I will hopefully regain my quality of life and avoid another stroke (first at age 24). You are a blessing to me in so many ways. 💜💚
I love that you have found a way to take care of yourself that doesn't require massive amounts of salt. One of my specialists suspects I may have POTS (or some sort of Dysautonomia, anyway), and she just says that I should eat more salt. That's pretty much it. So, I do. But as I continue on this journey I hope to find better ways to find and deal with the root causes.
Yeah, doctors telling POTS patients to load up on salt is pretty much their way of saying they don't know how to treat it. I have hyperadrenergic POTS related to Ehlers Danlos syndrome, so nightly Clonidine or Guanfacine to calm the sympathetic nervous system and "fight or flight" response worked wonders for me. I also took Dr. Diana Driscoll's advice of getting on Pyridostigmine to help the parasympathetic nervous system in order to treat my gastroparesis and to further treat my POTS, and it's been a miracle. Glad you're on the right track!
I really hope she is right for you! You do have alot more symptoms of intracranial pressure than I have. However, I got worse on her program and the people working for her have little medical training. Hard to talk to her when calling about an issue. I think she is too quick to diagnose everyone with intracranial pressure. Her diamox made my POTS worse and had no substitutions for it. My internal med/ holistic dr did a brain map on me and discovered my POTS was from not enough oxygen. I had issues with my sinuses being to narrow and after sinus procedure my POTS symptoms dramatically improved. I completely honestly do hope she is the answer for you. Just sadly alot of money for not being correct for me. I am not trying to be negative just want people to know she isnt the answer for everyone. Best of well wishes for you as it looks like you have been through so much.
I can’t wait for Fridays because I feel like I get so much medical info from you that has been so helpful for me! I have Pots, Endo, IC and was diagnosed with Auto Inflammatory Disease after genetic testing. I’m so interested in the topic of treating the underlying problem and not just saying, “ yeah go try socks!” or, “ have you tried counseling?”. I feel like you really GET IT. Thank you for your videos. They make me feel less alone and less like a freak.
I don't have Migrainw and I don't have Pots. But I still found this video very interesting and so informative. This will help so many people. Information on where to go and what you can get is key. Thank you, Jenny! You are amazing. Have a wonderful weekend! Hugs from Norway.
I love your videos so much! You have really helped me out a lot and I appreciate it so much! I left a comment on a previous video. I won’t restate it all but I’ll update: I passed out at school on Monday and was taken to the ER and evaluated in trama. My labs were sent out and some things are wrong in my blood. Very low lymphocytes, high potassium, something with my SEGS and some other things. Not sure what all this means? But regarding my vertebrobasilar insufficiency I follow up with Neurosurgery on Tuesday Dec 7th. Currently I cannot go to school and I have to monitor what I eat, drink, and anything I do, when I have my symptoms…. I’m only 14 and it kind of feels like my whole life is over already. But you have given me so much hope. I truly cannot thank you enough!
Briannah! Maintaining hope is the hardest part. I can't imagine going through everything you're going through, especially so young. Keep moving forward, one step at a time. It doesn't need to be fast, but I hope that with time you're able to get answers and trend upward. We're all here rooting for you... and never forget that you are not alone 💜
I’m definitely interested in all of this and will be looking into the pots center. I’ve had symptoms of Pots since I was a teenager and I’m now 36 and was only diagnosed a couple years ago. Unfortunately my Pots-specialist neurologist just moved out of state and my new neurologist clearly knows nothing about pots 😬 but I wasn’t being well controlled previously so I’m not sure what good it was having a pots-specialist. I also have hypermobility, intestinal issues, chronic pain, chronic headaches and chronic migraines and no one looks at it all together and no one seems to really be able to help me improve. It’s super frustrating. My heart has gone out to you watching your journey and struggles but I so relate and a, thankful for your willingness to share what you’ve learned because it’s helping others.
Thank you for sharing this I've been looking forward to watching this videos since your last video. It is really helpful to hear your journey and brings a lot of hope. I have recently been advised to lower my salt intake because of pressure headaches and other related symptoms which felt so weird doing because for the past 7 years I've been learning up the salt because of what the doctors told me to do so it's nice to know that there are other alternatives to managing pots that I may be able to try in the future. Thanks again for sharing this I am so glad that your health has improved and that you've gotten the help and the diagnoses and the care that you need. It sounds like such a holistic and caring clinic and I think so many of us need to see so much more of that sort of clinic in our health care
Couldn't agree more with the things you said & I'm so glad my story has helped you. I was scared I'd be bed bound until I found POTS Care. There's hope for a less symptomatic future. I'm rooting for you too!!! 🙏 I see you in the comments a lot, feels like I'm getting to know you 🥰 with love from a little bit migraine Jen
Sounds great. Empowering patients is something that more doctors should do. Also I am so happy your doing better, it’s really noticeable in recent videos ☺️
So so happy you are getting answers! You have been in my prayers! Buddy is adorable! I also am on my journey to finding my diagnoses and have recently been diagnosed with HEDS/HSD. I got autonomic testing for POTS and other Dysautonomia’s at Mayo Clinic! I started this channel and have a video all about it. I also have PCOS and fibromyalgia. My autonomic test came back normal but I did almost pass out so our next “pathway” to look into will be cardiac. Thank you for your videos! They are helpful to so many people.
omg looking on their website at the section about inflammatory pots and MCAS. The symptoms of MCAS tie together my IBS, chronic headaches and pots all of which i have been seeing different doctors for :O although i havent seen the pots doctor yet, I'm in Aus and we dont have a lot of people who can diagnose pots so I have been waiting since Feb to see this guy and my appointment is finally in a week! Also I was diagnosed with IIH already by an opthalmologist but my neurologist keeps putting me on various migraine treatments because the optho described the swelling in my optic nerves as mild, and said it had gone down slighlty over the last few months...
Thank you so much for responding!!! I’m so happy to hear you are still doing so well, this is so amazing!!!! Thank God for hope and treatment and Dr. Driscoll!!! I will use your code when I order.
Thank God for hope! It does get better. Diet, stress, sleep, and hydration are also SO important to stay on top of with POTS. In my opinion they play a much bigger role than they seem like they would.
Thank you so much for sharing this encouraging info!! I’m going to order these supplements for my daughter who has POTS, and SIBO. I noticed this video was posted 3 months ago, are you still improving and have you done anymore updates since then? Your channel is incredibly helpful!💗
You are so welcome! Yes, 1000x YES YES YES I am still taking them and still seeing improvements, not just with symptoms but with moods as well AND EVEN MY MILK SUPPLY! I actually missed them for 1 day this week and my breastmilk supply dropped by HALF. Caught back up on my supplements and it came right back. I seriously cannot recommend them enough. I was hesitant because the cost adds up, but it's worth it to the moon and back, they're so gentle, too. No side effects. Make sure you double check with your care team, and use my code MOMMING to get your discount!
Messaged you on your other post! Also so many questions about Buddy! With my pacemaker I know when things are wrong....this new brain shunt etc is scary! Hope we can chat soon💕
About to watch this video and I am equal parts really excited and nervous and I don't even know exactly why I'm nervous. It just seems like maybe it will offer answers but also what if it doesn't (for me) and what if I can't afford those answers (again, me issues). Just needed to get these feelings out somewhere before I watch. Alright, I'm going in.
I LOVE when he makes things better!!! In my head while I was talking, all I could think was "don't stutter don't stutter don't stutter this is gonna be so good if you don't stutter"
Honestly I do much better WITH salt. Without salt added to meals, electrolytes and dextrose added to my water, AND 2 liters of IV saline 3 times a week, I feel much better. (Although in my case we highly suspect intracranial HYPOtension, so the opposite of what you experience)
50% off of MEDICAL TREATMENT!!!! The US is wild... I couldn't imagine living there, I'm so sorry. Finding the right treatment isn't easy in Germany either, but at least I never have to worry about affording it.
So glad you have a true care plan that is meeting. Supplements are a big part of my treatment plan. My dog Gunner is a true help with my MS. Knowledge is truly power. When diagnosed I did my research on my condition. My knowledge helped docs understand I am in charge of my health and to listen to me.
I have a family member with MS if you don't mind me asking what kind of foods and beverages do you eat and what do you stay away from? Corn and gluten whole wheat products have pretty much been reduced to a minimum but is there any foods and drinks supplements that you can recommend for us to try?
@@andreamoscoso4065 berries like strawberries and blueberries help with inflammation. Reducing dairy and red meat help me also. Biotin for energy and I take 10000 to 12000 mg of fish oil otc. It is like a light bulb is turned on in the brain and reduces pain also. I avoid the cholesterol drugs too. They tend to increase pain. Lots of green veggies like cabbage and spinach help inflammation. Food allergies are awful for me. 6 spices is all I can use. Glutton free is hard for me with all other foods I have to avoid. Whole grain even rice or oats helps. Limit sweets and stay hydrated. Hope that helps. Blessings of health upon family member.
Question: I've heard you talk a lot about inflammatory POTS as the cause of POTS. I just want to make sure I understand this properly. Are there other causes that Dr Driscoll looks into that she might discover through the medical pathway or is Inflammatory POTS pretty much always the reason for POTS and so that's why the POTS Care package was aimed towards Inflammatory POTS or have I got something wrong. Sorry, brain fog might be making this way more confusing than it needs to be haha
I don't know if you will see this, but I figure it doesn't hurt to try. 🤞 I have finally accepted the fact that I just can't afford a professionally trained POTS alert/mobility dog. I think you said you trained Buddy yourself. How did you get him to alert you to a POTS episode before it happens? My little medical alert dog can tell me when I can't safely sit or stand because an episode has just barely started, but she can't give me time to lay down before the episode. That means I don't have any way to prevent, or even prepare for, my POTS episodes like you do. I am going to be buying a large dog to train myself and would LOVE for her to give me warning in advance. If you have any tips please let me know. ❤️
Internet!!! 😄 I was looking for POTS specialists, started reading into the Driscoll Theory and fell in love with the fact that they're so research-based but without losing being patient-centered. My type of place 👍 & seemed to fit my case so I contacted them!
My daughter was just diagnosed with, she’s a 25 year old Down syndrome girl.. this disease is crippling her.. she’s lost 36 lbs.. but has major body pains? Does anyone know of body pains and treatment?
Me and my Dr suspect CSF but I have insufficient volume for beta 2 transferrin. I feel pretty certain because I fit both the symptoms and the risk factors.
@@MommingwithMigraine Have you looked into treatment for the suspected leak? My understanding is that if it’s left untreated, a person with a leak becomes more susceptible to meningitis and other infections. Have you checked out Ian Carrol at Stanford’s material on POTS and CSF leaks by chance?
I have good news and bad news! The bad news is no, there's no longer an affiliate program for the package. but the GOOD news is they lowered the price drastically - much more than my code. They are also now including more supplements in the package, along with a free 30-minute phone consultation with Dr. Driscoll. So even though "no" is not what you were looking for, I hope that brings you a smile 😊
Buddy came in strong with twerk roobs, wears socks in the middle, and finishes big with a grumble 😂 I hope you guys enjoy this video, learn a bunch about my treatment through POTS Care, and feel closer to knowing whether POTS Care Package could be the right next step in your POTS journey! Here's a summary of DISCOUNTS/my links & Codes:
○ POTSCare.com - You get $200 off your Individualized POTS treatment if you mention me when you call to book.
○ POTS Care Package - You get $50 off your Package by using my code, MOMMING
My link: potscarepackage.com/partner/mommingwithmigraine/
○ Supplements: 10% off by using my code, MOMMING
My link: vagusnervesupport.com/?rfsn=6261617.9d93910
Have you ever looked into curcumin (anti-inflammatory) supplements? From what I know, it is used across various different conditions, and CAN be very helpful to the right people. I am not as well versed in IIH and POTS, so I am obviously NOT recommending it, just wondering if you have run across it in your personal treatment with how often it has in mine. Also, I take NAC too, for many reasons, but take it mainly for my mood and emotions - depression and anxiety - so personal anecdotal experience "supports" (if you can call it that) your feeling like missing a dose impacts you. Also, yes, supplements (the quality kind, and there are some poor quality supplements out there) really do add up and get expensive. I assume that the supplements included probably cost more individually than they would as part of the package.
I haven't heard of curcumin before, but a quick google brought up turmeric (which I do have a bit of each morning) and that it's part of the ginger family (which you know I have daily), so it sounds like a good one! And yes, bundles do absolutely tend to be less expensive overall! I enrolled in subscribe-n-save for mine once I nailed in what I wanted to take ongoing.
Ok so my maybe POTs story. This might be long so, read it when you can remember. I feel I have had pots for about 2 years but I first figured out what it was and I might have it about a year ago because my mom has asthma so she bought a heart rate monitor that goes on your finger so she can see how much oxygen she has (I am almost 13 by the way) that really helps her but I was playing with it and I was on her bed then stood up and my heart rate went up a lot. So I did it again it did the same thing and again then I looked it up and saw that it could be POTs so I told her and showed her. I tried it with my sisters and it did not happen to them. She said I was fine and it’s just because I was laying down then getting up so many time so I let it go. But I watched videos about it and saw your video about diagnosing pots and tried it ( I am not trying to diagnose myself) I was positive. My heart went up 40 from laying down. Skipping a little bit I was in the car with my dad I told him and I said what it might be he also brushed it off. And I started noticing symptoms I was getting dizzy when I stood I had to sit down if I was not walking and when I got up from my bed the bottom of my vision got blurry also brain fog. Also another thing my mom said when I said that I got dizzy when I stood is “you are to young to have dis function “ I was like wow ok.Now 6 months later or so I have not been diagnosed still have symptoms and I know my body well and I am 99 percent sure I have pots I have since moved to Arizona. If you have anything that you could tell me to help that would be amazing ✨ also if anyone could tell me a way to tell my mom and have her take me to a doctor to get tested that would be amazing too. Thank you for reading and the video was great.
@@dogsandme1078 Based on what you explained I don't think your parents will hear your concern unless they think it's concerning. You need someone else to back you up. Do you have anyone you can tell your concerns to? For examples:
School nurse
your doctor (if you have check ups)
pastor
teacher
counselor
friends parents
other adult family members
ect
@@MrsTikiGod I will try and talk to my Grandma about it thank you so much if I have updates I will come here to tell you! 😊 thank you!
Jen, I have to thank you from the bottom of my heart. I have had mysterious illness for over a decade including headaches, neck pain, upper back pain, dizziness, vertigo, nausea, intermittent gastroparesis etc. I always thought that the clear fluid dripping from my one nostril was due to food intolerances...after watching the video where you spoke about the CSF leak, everything clicked and just in time. After an ambulance ride last night and pushing the neuro to check my spinal tap results from 2013, I'm finally getting the testing that I need and with treatment I will hopefully regain my quality of life and avoid another stroke (first at age 24). You are a blessing to me in so many ways. 💜💚
I love that you have found a way to take care of yourself that doesn't require massive amounts of salt. One of my specialists suspects I may have POTS (or some sort of Dysautonomia, anyway), and she just says that I should eat more salt. That's pretty much it. So, I do. But as I continue on this journey I hope to find better ways to find and deal with the root causes.
Yeah, doctors telling POTS patients to load up on salt is pretty much their way of saying they don't know how to treat it.
I have hyperadrenergic POTS related to Ehlers Danlos syndrome, so nightly Clonidine or Guanfacine to calm the sympathetic nervous system and "fight or flight" response worked wonders for me. I also took Dr. Diana Driscoll's advice of getting on Pyridostigmine to help the parasympathetic nervous system in order to treat my gastroparesis and to further treat my POTS, and it's been a miracle. Glad you're on the right track!
I really hope she is right for you!
You do have alot more symptoms of intracranial pressure than I have.
However, I got worse on her program and the people working for her have little medical training. Hard to talk to her when calling about an issue. I think she is too quick to diagnose everyone with intracranial pressure. Her diamox made my POTS worse and had no substitutions for it.
My internal med/ holistic dr did a brain map on me and discovered my POTS was from not enough oxygen. I had issues with my sinuses being to narrow and after sinus procedure my POTS symptoms dramatically improved.
I completely honestly do hope she is the answer for you. Just sadly alot of money for not being correct for me. I am not trying to be negative just want people to know she isnt the answer for everyone.
Best of well wishes for you as it looks like you have been through so much.
Hi-I'm considering Dr. Driscoll. Can you tell me your internal med/holistic doctor? Thanks
I can’t wait for Fridays because I feel like I get so much medical info from you that has been so helpful for me! I have Pots, Endo, IC and was diagnosed with Auto Inflammatory Disease after genetic testing. I’m so interested in the topic of treating the underlying problem and not just saying, “ yeah go try socks!” or, “ have you tried counseling?”. I feel like you really GET IT. Thank you for your videos. They make me feel less alone and less like a freak.
I don't have Migrainw and I don't have Pots. But I still found this video very interesting and so informative. This will help so many people. Information on where to go and what you can get is key. Thank you, Jenny! You are amazing. Have a wonderful weekend! Hugs from Norway.
Thanks for supporting my channel and for all the kind words. It was Buddy that kept you interested, be honest 😋 Hugs right back to you!!!
I love your videos so much! You have really helped me out a lot and I appreciate it so much! I left a comment on a previous video. I won’t restate it all but I’ll update: I passed out at school on Monday and was taken to the ER and evaluated in trama. My labs were sent out and some things are wrong in my blood. Very low lymphocytes, high potassium, something with my SEGS and some other things. Not sure what all this means? But regarding my vertebrobasilar insufficiency I follow up with Neurosurgery on Tuesday Dec 7th. Currently I cannot go to school and I have to monitor what I eat, drink, and anything I do, when I have my symptoms…. I’m only 14 and it kind of feels like my whole life is over already. But you have given me so much hope. I truly cannot thank you enough!
Briannah! Maintaining hope is the hardest part. I can't imagine going through everything you're going through, especially so young. Keep moving forward, one step at a time. It doesn't need to be fast, but I hope that with time you're able to get answers and trend upward. We're all here rooting for you... and never forget that you are not alone 💜
@@MommingwithMigraine thank you so much, truly means a lot!
I’m definitely interested in all of this and will be looking into the pots center. I’ve had symptoms of Pots since I was a teenager and I’m now 36 and was only diagnosed a couple years ago. Unfortunately my Pots-specialist neurologist just moved out of state and my new neurologist clearly knows nothing about pots 😬 but I wasn’t being well controlled previously so I’m not sure what good it was having a pots-specialist. I also have hypermobility, intestinal issues, chronic pain, chronic headaches and chronic migraines and no one looks at it all together and no one seems to really be able to help me improve. It’s super frustrating. My heart has gone out to you watching your journey and struggles but I so relate and a, thankful for your willingness to share what you’ve learned because it’s helping others.
Thank you for sharing this I've been looking forward to watching this videos since your last video. It is really helpful to hear your journey and brings a lot of hope. I have recently been advised to lower my salt intake because of pressure headaches and other related symptoms which felt so weird doing because for the past 7 years I've been learning up the salt because of what the doctors told me to do so it's nice to know that there are other alternatives to managing pots that I may be able to try in the future. Thanks again for sharing this I am so glad that your health has improved and that you've gotten the help and the diagnoses and the care that you need. It sounds like such a holistic and caring clinic and I think so many of us need to see so much more of that sort of clinic in our health care
Couldn't agree more with the things you said & I'm so glad my story has helped you. I was scared I'd be bed bound until I found POTS Care. There's hope for a less symptomatic future. I'm rooting for you too!!! 🙏 I see you in the comments a lot, feels like I'm getting to know you 🥰 with love from a little bit migraine Jen
@@MommingwithMigraine Thank you so much, you are really sweet
Sounds great. Empowering patients is something that more doctors should do.
Also I am so happy your doing better, it’s really noticeable in recent videos ☺️
So so happy you are getting answers! You have been in my prayers! Buddy is adorable! I also am on my journey to finding my diagnoses and have recently been diagnosed with HEDS/HSD. I got autonomic testing for POTS and other Dysautonomia’s at Mayo Clinic! I started this channel and have a video all about it. I also have PCOS and fibromyalgia. My autonomic test came back normal but I did almost pass out so our next “pathway” to look into will be cardiac. Thank you for your videos! They are helpful to so many people.
omg looking on their website at the section about inflammatory pots and MCAS. The symptoms of MCAS tie together my IBS, chronic headaches and pots all of which i have been seeing different doctors for :O although i havent seen the pots doctor yet, I'm in Aus and we dont have a lot of people who can diagnose pots so I have been waiting since Feb to see this guy and my appointment is finally in a week! Also I was diagnosed with IIH already by an opthalmologist but my neurologist keeps putting me on various migraine treatments because the optho described the swelling in my optic nerves as mild, and said it had gone down slighlty over the last few months...
So excited for the video! Wishing you the best 💕
Thank you so much!! Hope you love it!
Thank you so much for responding!!! I’m so happy to hear you are still doing so well, this is so amazing!!!! Thank God for hope and treatment and Dr. Driscoll!!! I will use your code when I order.
Thank God for hope! It does get better. Diet, stress, sleep, and hydration are also SO important to stay on top of with POTS. In my opinion they play a much bigger role than they seem like they would.
Hi Jen! How have buddy’s tasks changed since your diagnosis?
Buddy was a great intro. He was too funny. Lots of good information for you and other POTS sufferers.
Thank you so much for sharing this encouraging info!! I’m going to order these supplements for my daughter who has POTS, and SIBO. I noticed this video was posted 3 months ago, are you still improving and have you done anymore updates since then? Your channel is incredibly helpful!💗
You are so welcome! Yes, 1000x YES YES YES I am still taking them and still seeing improvements, not just with symptoms but with moods as well AND EVEN MY MILK SUPPLY! I actually missed them for 1 day this week and my breastmilk supply dropped by HALF. Caught back up on my supplements and it came right back. I seriously cannot recommend them enough. I was hesitant because the cost adds up, but it's worth it to the moon and back, they're so gentle, too. No side effects. Make sure you double check with your care team, and use my code MOMMING to get your discount!
I'm listening to you, looking at Buddy. :)
Messaged you on your other post! Also so many questions about Buddy! With my pacemaker I know when things are wrong....this new brain shunt etc is scary! Hope we can chat soon💕
About to watch this video and I am equal parts really excited and nervous and I don't even know exactly why I'm nervous. It just seems like maybe it will offer answers but also what if it doesn't (for me) and what if I can't afford those answers (again, me issues). Just needed to get these feelings out somewhere before I watch. Alright, I'm going in.
All I see is Buddy's butt up in the air so far, so strong start!
I LOVE when he makes things better!!! In my head while I was talking, all I could think was "don't stutter don't stutter don't stutter this is gonna be so good if you don't stutter"
Is there finnancial assistance for POTS care?
I am wondering how are you? Of you still using this and if its working for IIH?. God bless you 🙏
I love seeing hyper Buddy!
On a scale of 1-100, his only gears are 2 and 200 😛
Honestly I do much better WITH salt. Without salt added to meals, electrolytes and dextrose added to my water, AND 2 liters of IV saline 3 times a week, I feel much better. (Although in my case we highly suspect intracranial HYPOtension, so the opposite of what you experience)
Interesting, opposites! I do still eat salt, I'm just not doing POTS-style salt loading anymore.
50% off of MEDICAL TREATMENT!!!! The US is wild... I couldn't imagine living there, I'm so sorry. Finding the right treatment isn't easy in Germany either, but at least I never have to worry about affording it.
So glad you have a true care plan that is meeting. Supplements are a big part of my treatment plan. My dog Gunner is a true help with my MS. Knowledge is truly power. When diagnosed I did my research on my condition. My knowledge helped docs understand I am in charge of my health and to listen to me.
I have a family member with MS if you don't mind me asking what kind of foods and beverages do you eat and what do you stay away from? Corn and gluten whole wheat products have pretty much been reduced to a minimum but is there any foods and drinks supplements that you can recommend for us to try?
@@andreamoscoso4065 berries like strawberries and blueberries help with inflammation. Reducing dairy and red meat help me also. Biotin for energy and I take 10000 to 12000 mg of fish oil otc. It is like a light bulb is turned on in the brain and reduces pain also. I avoid the cholesterol drugs too. They tend to increase pain. Lots of green veggies like cabbage and spinach help inflammation. Food allergies are awful for me. 6 spices is all I can use. Glutton free is hard for me with all other foods I have to avoid. Whole grain even rice or oats helps. Limit sweets and stay hydrated. Hope that helps. Blessings of health upon family member.
Also Buddy is a sweetie!
I’m going to have to watch again because I’m just admiring doggo.
@@dees3179 Hahaha yass!
Availabe just in the USA :(
I love your Buddy socks. Buddy looks good in socks Jen.
Question: I've heard you talk a lot about inflammatory POTS as the cause of POTS. I just want to make sure I understand this properly. Are there other causes that Dr Driscoll looks into that she might discover through the medical pathway or is Inflammatory POTS pretty much always the reason for POTS and so that's why the POTS Care package was aimed towards Inflammatory POTS or have I got something wrong. Sorry, brain fog might be making this way more confusing than it needs to be haha
Can you take the POTS supplements while pregnant? I am TTC and I was wondering if I could take them
I did!
I don't know if you will see this, but I figure it doesn't hurt to try. 🤞
I have finally accepted the fact that I just can't afford a professionally trained POTS alert/mobility dog. I think you said you trained Buddy yourself. How did you get him to alert you to a POTS episode before it happens? My little medical alert dog can tell me when I can't safely sit or stand because an episode has just barely started, but she can't give me time to lay down before the episode. That means I don't have any way to prevent, or even prepare for, my POTS episodes like you do. I am going to be buying a large dog to train myself and would LOVE for her to give me warning in advance. If you have any tips please let me know. ❤️
How in the world did you find Pots Care all the way in Texas??? Curious! 😊
Internet!!! 😄 I was looking for POTS specialists, started reading into the Driscoll Theory and fell in love with the fact that they're so research-based but without losing being patient-centered. My type of place 👍 & seemed to fit my case so I contacted them!
@@MommingwithMigraine That is so awesome. Very very happy for you!
16:20 Buddy is thinking, "I like the treat, but why did she put socks in my hands?
My daughter was just diagnosed with, she’s a 25 year old Down syndrome girl.. this disease is crippling her.. she’s lost 36 lbs.. but has major body pains? Does anyone know of body pains and treatment?
Hey Jen! What type of fluid are you actually leaking from your nose??
Me and my Dr suspect CSF but I have insufficient volume for beta 2 transferrin. I feel pretty certain because I fit both the symptoms and the risk factors.
@@MommingwithMigraine Have you looked into treatment for the suspected leak? My understanding is that if it’s left untreated, a person with a leak becomes more susceptible to meningitis and other infections. Have you checked out Ian Carrol at Stanford’s material on POTS and CSF leaks by chance?
It seems like you don't have symptoms anymore which is amazing
Does your code not work if purchasing supps as a recurrent order?
I'm honestly not sure, I'll have to check. Did you run into an issue with it?
Is your code still active?
I have good news and bad news! The bad news is no, there's no longer an affiliate program for the package. but the GOOD news is they lowered the price drastically - much more than my code. They are also now including more supplements in the package, along with a free 30-minute phone consultation with Dr. Driscoll. So even though "no" is not what you were looking for, I hope that brings you a smile 😊
♥️♥️♥️
Buddy
Dog has moves.
"Not Onlyfans"... Funny!