Hidden Deficiency in POTS (Postural Orthostatic Tachycardia Syndrome) - Dr.Berg

แชร์
ฝัง
  • เผยแพร่เมื่อ 18 ต.ค. 2024

ความคิดเห็น • 990

  • @PNWmorganite
    @PNWmorganite 2 ปีที่แล้ว +166

    Thank you for mentioning vaccines. We NEED the medical field to acknowledge these changes / causes instead of gaslighting the effects of vaccines. Biodiversity means everyone responds differently

    • @Julia-en5ys
      @Julia-en5ys 2 ปีที่แล้ว +10

      We especially need to acknowledge that they are both beneficial and can also have unfortunate side effects. I feel like so far the discussion around vaccines is so black and white and that simply doesn’t represent reality at all!

    • @SRose-vp6ew
      @SRose-vp6ew ปีที่แล้ว +2

      I started suffering from this condition many years ago after one.

    • @annemiller6360
      @annemiller6360 2 หลายเดือนก่อน

      I got pots after being ill for a long time and most people with long Covid develop POTS so stop blaming the vaccine for everything when it's actually Covid 19 that is the real reason behind so many symptoms! It's not just a cold and it will never be... How many times do you think your body can handle getting the Covid virus without taking a hit long-term? Grow up and be real please!!

    • @katrinahardy1786
      @katrinahardy1786 15 วันที่ผ่านมา

      Mine caused whooping cough

  • @dazydream123
    @dazydream123 5 ปีที่แล้ว +388

    I had all the symptoms of POTS but was never diagnosed. Everytime I went to the doctors I felt as if they thought I was making things up. I'm a young girl and I looked healthy. There is no way I could be as sick as I claimed. I had to do my own research and experiment on myself. The thing that helped me was zinc, b12, potassium and magnesium. I believe I had something called biounavailable copper and a severe zinc deficiency. The copper dumping symptoms were pretty brutal but I got through them. 4 years of taking zinc. My pulse is for the most part normal. My pulse starts spiking again if I stop taking my vitamins for too long but I would say i'm 80% better. I went from being in bed most days to having somewhat of a normal life. I am definitely looking into B1 to see if it fits the last of my symptoms. Thanks for the video. This could be helpful.

    • @dogfeliz
      @dogfeliz 5 ปีที่แล้ว

      Which vitamins do u take?

    • @dazydream123
      @dazydream123 5 ปีที่แล้ว +14

      ​@@robnation2475, I keep potatoes in my diet for the potassium. The only downside I have with them is that they put me to sleep. I normally eat them before bed to help combat my insomnia.
      I will look into "Mega Benfotiamine" Thank you for the advice =)

    • @robnation2475
      @robnation2475 5 ปีที่แล้ว +15

      @@dogfeliz B1 benfotiamine (ben fo sha meen) and B-Complex (life extension brand). Vitamin D. Turmeric and Ginger capsules help with blood flow and reduce inflammation/pain. (from Walmart)

    • @praxedes2
      @praxedes2 5 ปีที่แล้ว +17

      As for the supplements - I take B1, Magnesium, ALA and CoQ10. You need anti-oxidants too. I eat sea salt and drink electrolyte water (like smart water) too.

    • @praxedes2
      @praxedes2 5 ปีที่แล้ว +10

      Also, a low carb diet helps more than any other intervention. With midodrine being my second most important intervention.

  • @CherryRussellTraffanstedt
    @CherryRussellTraffanstedt 5 ปีที่แล้ว +151

    For those who’ve asked about MTHFR mutation, I have it. I carry one of each, both 677C and 1298T, which is considered double heterozygous. I also have POTS, MCAS, EDS, Fibromyalgia and Hashimoto’s. I want so badly to get well. We’ve gone broke trying to get me there. 20+ years of many doctors/specialists have led me to diagnoses, but not many answers to getting better. I’m seeing a functional doctor but she’s not covered by insurance. I can’t afford to see her very often. She’s helping, but progress is slow due to finances. By the time I get ahead on one thing, another issue flares up. Trying hard to keep my head above water, but I’m so very tired of this battle. Just being honest.

    • @georgelopez9517
      @georgelopez9517 3 ปีที่แล้ว +9

      Hey sorry that you are going through this! I really hope your functional doc can help you heal. Another great resource is Dr.Stephen Cabral. He gives out amazing free information through videos and podcast! Hope you can learn something from him that will help you

    • @strengthwithinme6795
      @strengthwithinme6795 3 ปีที่แล้ว +17

      I have it too. I need Folinic Acid, can’t tolerate methyl folate. I beat POTs with my Functional Neurologist and naturopath. I will need my vitamins life long. Don’t give up.

    • @larryestrada5418
      @larryestrada5418 3 ปีที่แล้ว

      @@strengthwithinme6795 could you list who treated you?Please.

    • @strengthwithinme6795
      @strengthwithinme6795 3 ปีที่แล้ว +7

      @@larryestrada5418 Dr. Traster is included in the link above at the Neurologic Wellness Institute. My consulting naturopath who I work closely with for the supplements is in Toronto.
      She is certified in Functional Medicine and took the genetic training. If you look up the Functional Medicine Institute online there is a doctor locator search box.

    • @larryestrada5418
      @larryestrada5418 3 ปีที่แล้ว +1

      @@strengthwithinme6795 Thank you.

  • @kd2533
    @kd2533 3 ปีที่แล้ว +287

    I developed POTS after Pfizer. Finally got a diagnosed one month later. It has been so disabling. I have taken B1 and it is helping a great deal. Anything that helps is worth its weight in gold.

    • @amgnico
      @amgnico 2 ปีที่แล้ว +19

      same!

    • @sarahbarnes7008
      @sarahbarnes7008 2 ปีที่แล้ว +24

      No way I have these symptoms after my moderna booster and spent two days in emergency dept. Waiting to speak to doctor after Xmas to get referred

    • @bennym1326
      @bennym1326 2 ปีที่แล้ว +15

      I got covid in July and have been diagnosed PASC.. a lot of the symptoms seem similar, but it feels só isolating when the Doctors don't know what to do..

    • @michaelamichalovicova3142
      @michaelamichalovicova3142 2 ปีที่แล้ว +24

      Samé after Pfizer...

    • @marke.haller4267
      @marke.haller4267 2 ปีที่แล้ว +16

      I had occasional symptoms for two years. After second Moderna jab, symptoms ramped up. Now I'm a potato.

  • @sylhomeo6351
    @sylhomeo6351 2 ปีที่แล้ว +53

    Dr. Berg, thanking you doesn’t even cut it anymore. So appreciative for all the education you give us.

  • @mohnisamaze
    @mohnisamaze 5 ปีที่แล้ว +36

    I realize the disclaimer is legally necessary but there also is an unspoken truth that many people would not be looking up ways to treat so many syndromes and health issues on TH-cam in the first place, if our physicians were helpful. Folks with everything from fibromyalgia, POTS, dysautonimia, chronic fatigue and more get very little savvy of any kind from western medical doctors. They're almost always clueless and so ready to get out that prescription pad. It's nice that behind the disclaimer and clarification of what sort of health practitioner you are, you try to give people tools to hopefully take the wheel in their own health care and actually help themselves. While checking with your doctor is the rule of thumb, discovering simple tricks that one can do at home could mean such a difference to so many people. Great channel!!

  • @a.williams9
    @a.williams9 9 หลายเดือนก่อน +37

    Because of the awful pots symptoms due to long covid I've started taking B1 alongside with B complex and it's helping me considerably. Nutritional yeast is wonderful. Thank you, Dr Berg 🙏🏻

    • @zjunegirl1862
      @zjunegirl1862 หลายเดือนก่อน

      Hey, I was curious how much nutritional yeast do you take a day as well as B1? Thanks! :)

    • @a.williams9
      @a.williams9 หลายเดือนก่อน

      @@zjunegirl1862 1 tablespoon of nutritional yeast and 200 mg of B1 (thiamine) a day.

  • @kerrysue9280
    @kerrysue9280 5 ปีที่แล้ว +30

    Something to try. Anything natural Is worth trying if it can offer relief from or total elimination of POTS and its horrible debilitating symptoms. I had critically low potassium, stopped taking my diuretic and found I also have low Iron and low Ferritin. Ever since my potassium started dropping (January 2019) and it was finally treated, I never went back to normal. This has been life changing in the worst way and I am always looking for a way to get back to normal. Thank you to people like you who study and work hard to try to improve the lives of others! I am forever grateful for you and the help you offer.

  • @UnteneableDodo
    @UnteneableDodo 6 ปีที่แล้ว +30

    Wow, nail on the head. Spontaneous CSF leak repaired by craniotomy 2 years ago. Diagnosed 11/2017 with hEDS and have suspected POTS over the last 2 years. Weight at surgery - 377 pounds. Looked for a diet that would help with recovery for neurological issues. Been doing Keto for 2 years (since surgery) and have lost 172 pounds so far. 56 left to go. You sir, are a blessing on this journey.

    • @allinlen
      @allinlen 6 ปีที่แล้ว +1

      Glad you're doing better! I had the same issue, but never correctly diagnosed.

    • @UnteneableDodo
      @UnteneableDodo 6 ปีที่แล้ว +1

      @@allinlen - all too real, most of "us" have to do the legwork in scholarly articles and internet deep dives to diagnose ourselves. Leakers and zebras alike, it becomes a frustratingly familiar story.

    • @peggyschott2879
      @peggyschott2879 6 ปีที่แล้ว +4

      Yes he is!!! I don’t think I would be here today had I not run across one of his videos back in February of this year. I started keto/IF and within a matter of several weeks things were starting to look better health wise. It’s amazing how are bodies can rebound when better fueled than with the SAD!

    • @TheMiriam333
      @TheMiriam333 2 ปีที่แล้ว

      Is there any way you’d share who your surgeon was? I need that surgery and have hEDS and a probable leak. So many doctors and surgeons don’t know about eds and I had four surgeons recently say they were not comfortable doing surgery on me because they are unsure of how to deal with EDS!!! So I’m supposed to just slowly suffer?? I just want someone to TRY!! I’d be willing ti sign anything that I won’t sue. I just need help. No one seems to know how to approach EDS!

    • @UnteneableDodo
      @UnteneableDodo 2 ปีที่แล้ว +1

      @@TheMiriam333 So my surgeon Douglas D. Backhous, MD - he's an Otoneurology surgeon. ***Beware*** I was diagnosed with hEDS after my surgery, so I don't know if that'll be an issue. Best of luck!

  • @LiyanaDIY
    @LiyanaDIY 6 ปีที่แล้ว +16

    You know so much. Wish the doctors knew about this condition

  • @llkg9
    @llkg9 8 หลายเดือนก่อน +14

    For those of you who are NEWER to POTS: Get to the floor IMMEDIATELY when lightheaded, even if it's embarrassing to do so! Concussions take WAY longer to recover from than you'd think, especially after you've had your first. Protect your brain at all costs!

    • @DhhskkHehdis
      @DhhskkHehdis 5 หลายเดือนก่อน

      Herbal products from Dr Oyalo have been a staple in my routine now. They help me feel more in control of my POTS and live a more normal life.”

  • @amykoehler
    @amykoehler 5 ปีที่แล้ว +92

    Yess i have these symptoms and i recently started taking more B vitamins. It has definitely improved 😁

    • @sapnadesai1223
      @sapnadesai1223 3 ปีที่แล้ว +7

      How are you now

    • @anikacorbett7714
      @anikacorbett7714 3 ปีที่แล้ว +3

      Hi I have all the symptoms too and seems like after I stop taking my B Complex vitamins I got diagnosed with POTS ,so it has all B vitamins, so did it really help you? How long did it take to see a difference? Because I'm ready to go back to work 😄thank you

    • @iamthatiam44444
      @iamthatiam44444 3 ปีที่แล้ว +2

      @@anikacorbett7714 diagnosed with fybromyalgia and chronic fatigue been bedridden 6 months and I'm just starting B1 and nutrional yeast as well as pai-da (slapping treatment)

    • @anikacorbett7714
      @anikacorbett7714 3 ปีที่แล้ว

      @@iamthatiam44444 is it helping?

    • @iamthatiam44444
      @iamthatiam44444 3 ปีที่แล้ว

      @@anikacorbett7714 only started Monday so I can't answer that one. I'm also releasing trapped energy with pai-da doin that hard core so it will be difficult to tell 100% what's doing what. I'll come back and answer in about 4 weeks if I'm improving. I believe it can take a while and you can get opposite effects in the first week to a month as well I'm hearing. But that's not everyone. BUT THE SLAPPING HELPS HEAPS BUT HAS SIDE EFFECTS AS WELL

  • @vastjayk6976
    @vastjayk6976 ปีที่แล้ว +35

    After watching this I tried B1. Today was only the first day, but I am seeing a reduction in all relevant symptoms. I actually played basketball in the heat today and was fine. Crazy really.

    • @vastjayk6976
      @vastjayk6976 ปีที่แล้ว +11

      update, after 4 days I can rest a lot faster, get more resting sleep, brain fog is down a bit, tremors are down a lot, I feel a lot more relaxed as a whole, not to mention dizziness and fatigue at an all time low. Thanks dr. berg

    • @AnkitKumar-dm2ch
      @AnkitKumar-dm2ch ปีที่แล้ว +1

      Hey bro how r u now?

    • @vastjayk6976
      @vastjayk6976 ปีที่แล้ว +5

      @@AnkitKumar-dm2ch im doing pretty great, I switched from B1 to B complex because the B1 made me too tired. Definitely worth a try

    • @jjackson4135
      @jjackson4135 ปีที่แล้ว

      ​@@vastjayk6976Did you experience heart palpitations? If so, did B1 help this?

    • @vastjayk6976
      @vastjayk6976 ปีที่แล้ว

      @@jjackson4135 big yes on this one. Really helped make my heart and chest feel leveled out for a while

  • @CareSpinny356
    @CareSpinny356 ปีที่แล้ว +31

    Dr. Berg! I was diagnosed with POTS earlier this month and have been on a research-binge to figure out how to help my body heal. Although my eating habits are overall pretty healthy, I do believe that long-term stress has had a very negative impact on my body, as well as bad sleep habits and not hydrating myself enough. This video definitely caught my interest. My husband signed up for a complimentary Stress Support natural supplement for me to try - and the first ingredient was Thiamine! I took it this morning, and lo and behold, it’s the first time in weeks that I am getting up and getting around without my heart rate spiking above 100! This is amazing!! Thank you so much for this helpful insight.

    • @CYndibabI
      @CYndibabI ปีที่แล้ว

      how are YOU doing now feeling?

    • @carmella88
      @carmella88 ปีที่แล้ว

      How are u doing now

    • @832Pokemom
      @832Pokemom ปีที่แล้ว

      Caroline, can you tell me what your symptoms were? I just acquired this nasty illness as of maybe a month ago but it has progressed a bit. I have the postural tachycardia but also have digestive issues and insomnia. What vitamins are you currently taking?

    • @Blessednesting
      @Blessednesting ปีที่แล้ว +1

      I have his B1 and don’t feel the energy you mention and have all the POTS symptoms for 8.5 years. I’ve been doing IF and it’s worsened this week.

    • @chzfootball3578
      @chzfootball3578 10 หลายเดือนก่อน

      ​@@Blessednestingupdate ?

  • @denisabethea4931
    @denisabethea4931 3 ปีที่แล้ว +59

    Second dose of Pheiser vaccine for COVID-19 triggered Dysautonomia symptoms, and after a long visit in ER, doctor told me I have PODS. I will definitely take some B1. Thank you Dr. Berg!!! Not only that you helped me loosing weight and get stronger with Keto & IF, but now you are helping me with this problem. I love you Berg❤️

    • @SpaceshipEarth
      @SpaceshipEarth 3 ปีที่แล้ว +3

      Hows it going? Ive had similar happen

    • @april8258
      @april8258 2 ปีที่แล้ว +2

      Same here. How are you holding up now? Hopefully better.

    • @juntjoonunya9216
      @juntjoonunya9216 2 ปีที่แล้ว

      @R. HO ya'll shouldn't have taken the jab and called your cold covid

    • @carmella88
      @carmella88 ปีที่แล้ว

      @R. HO me too are you better yet

    • @c.518
      @c.518 ปีที่แล้ว

      Updates people? Any better?

  • @monram8653
    @monram8653 5 ปีที่แล้ว +51

    After the HPV vaccine I've been having these symptoms and more for almost a year now. I'll definitely try this out. PLEASE MAKE A VIDEO ON VACCINES, ESPECIALLY THE HPV VACCINE. Thanks Dr. Berg!

    • @Danirae726
      @Danirae726 5 ปีที่แล้ว +3

      Mon Ramirez I was diagnosed with pots a few months ago and at the time never had the HPV vaccine I recently got it and I hope It doesn’t make it worse

    • @natashanoor76
      @natashanoor76 5 ปีที่แล้ว +7

      @@monram8653 there is another person here that also mentioned she has Pots after the HPV vaccine. There have been lots of cases of complications after that particular vaccine. Hope you feel better soon

    • @sonyb8017
      @sonyb8017 4 ปีที่แล้ว +4

      Dr. Berg mentions in one of his videos that some people after getting a vaccine some get a vitamin b1 deficiency. I think he mentioned having a link to a study about the problem.

    • @kflo2059
      @kflo2059 3 ปีที่แล้ว +6

      My pots developed after the HPV jab. I’m in a group on fb and the amount of women on there that also had that happen is alarming. But, it’s listed as a side effect in the manufacturers insert. No way they should ever give someone with pots this jab, or anyone else. It totally changed my life.

    • @autumnonpurpose
      @autumnonpurpose 2 ปีที่แล้ว

      @@shyofthemoon1175 did it go away?

  • @RedRedux
    @RedRedux 6 ปีที่แล้ว +39

    Yes yes yes!!!! Thank you Dr. Berg I'm hyperpots with severe weight loss and malnutrition problems. Thanks to you and keto I can eat solid foods again!!

    • @jettagliturbo
      @jettagliturbo 3 ปีที่แล้ว

      Hello, what does Hyperpots mean?

    • @RedRedux
      @RedRedux 3 ปีที่แล้ว +3

      @@jettagliturbo hyper adrenergic postural tachycardia syndrome it's a lot like having a pheochromocytoma (adrenal tumor) but without the tumor

    • @jettagliturbo
      @jettagliturbo 3 ปีที่แล้ว

      @@RedRedux Wow, I would like to connect with you, do you have an Instagram?

    • @DavidBrackett385
      @DavidBrackett385 2 ปีที่แล้ว

      @@RedRedux wow. You have summarized my life. I have had HAPOTS for years and been chasing a diagnosis and finally forced my doc to do a mibg scan to rule out pheo. Thankfully the test was negative but I’m still scared it’s there because I have the symptoms. I am having a hard time accepting it’s a idiopathic syndrome.

    • @TheMiriam333
      @TheMiriam333 2 ปีที่แล้ว

      @@RedRedux sounds like me. Can you give me pointers? I e been ad remind dunking for the last 9 months and beaker died several times. Doing all I can to keep weight on.

  • @Tbaby12173
    @Tbaby12173 2 ปีที่แล้ว +14

    Thank You, I believe I have this. I have a lot of symptoms. I even went to the emergency room and they said my blood pressure was orthostatic, but they offered no options. Now I feel hopeful. Thank you.

  • @PhilipMcAdam
    @PhilipMcAdam 6 ปีที่แล้ว +33

    Yes I had all those symptoms that you describe and had no idea what was causing it. Since being on your recommended Keto and IF all those symptoms have gone. Thank you once again Dr Berg.

  • @elisabethandersen9331
    @elisabethandersen9331 2 ปีที่แล้ว +35

    Great video Dr. Berg!! Please include lower levels of iron can also give you more POTS symptoms. My Neurologist who specializes in POTS recently told me to get my iron levels in the midrange, since they were in the low range. It has improved my symptoms so much, that it’s worth sharing with everyone who suffers from POTS. I’m now taking Beta Blockers called Metoprolol. It helps by keeping my crazy HR down under 100 most of the day. Now I don’t feel like I get out of breath when I stand up and my HR jumps to 160. Such a relief! The problem now is fatigue, I’m tired for the first 3-4 hours of my day. Gatorade helps but I hate putting all that sugar in my body. Small walks has also helped somewhat. Every day is a battle when you have POTS.

    • @vonkarlosardes273
      @vonkarlosardes273 2 ปีที่แล้ว

      Really? Iron deff makes like pots symptoms? I have low stomach acid and also malabsoption when I take some small amount of iron my stool will go black.

    • @jane_7777
      @jane_7777 2 ปีที่แล้ว +2

      This is my problem, too. I have iron defiency and diagnosed with Pots a month a go. I got sicked with covid in August 2021 and I thought covid entirely caused it. But before covid I felt horrible already, I had a lot of iron defiency symptoms but didn't know it back then. Covid tanked my iron and ferritin to the lowest range...my saturation is 13 right now.

    • @jane_7777
      @jane_7777 2 ปีที่แล้ว +2

      ​@@vonkarlosardes273 I have a low acid, too, and this probably the cause of my iron defiency. I suffered acid reflux since I was a kid. Through the years I thought I have high acid but learned recently that it can be cause by low stomach acid, too. I'm taking Dr. bergs digestive enzymes capsules and I feel relieved. I don't feel indigestion and bloating.

    • @elisabethandersen9331
      @elisabethandersen9331 2 ปีที่แล้ว +2

      @@vonkarlosardes273 If you already have Pots, the lower range iron can give you more symptoms. In my case, it made me feel better overall. Not a cure for Pots, but my energy improved and my hair stopped failing out. 😊

    • @nataliemarie1671
      @nataliemarie1671 2 ปีที่แล้ว +8

      Getting Vitamin D as high as possible and b12 helped my sister with POTS too.

  • @hianjana
    @hianjana หลายเดือนก่อน +2

    Got diagnosed with POTS today after years of suffering and here I'm.

    • @vanessah4964
      @vanessah4964 14 วันที่ผ่านมา

      I got diagnosed yesterday. Now things are making more sense…

    • @zjunegirl1862
      @zjunegirl1862 13 วันที่ผ่านมา

      I haven't been diagnosed but I definitely have this: since taking b1 and salt/water I've been a lot better

  • @AnnMargaretCP
    @AnnMargaretCP 6 ปีที่แล้ว +23

    My niece was very ill as a child until eventually she was diagnosed as Celiac. Now, as a young woman, she is battling with Pots. I keep wondering whether the two are connected? I will pass this on to her thank you.

    • @PromyseKidLANDTV
      @PromyseKidLANDTV 4 ปีที่แล้ว +2

      Ann Margaret yes they are!

    • @dana102083
      @dana102083 4 ปีที่แล้ว

      @@PromyseKidLANDTV evidence?

    • @strengthwithinme6795
      @strengthwithinme6795 3 ปีที่แล้ว +5

      Gluten made my POTs worse. I had to go gluten and dairy free along with taking my supplements and functional neurology treatment to beat POTS.

    • @katemullins8382
      @katemullins8382 3 ปีที่แล้ว +4

      @@strengthwithinme6795 you beat POTS? Can I ask exactly what you did??

    • @ceegee2918
      @ceegee2918 2 ปีที่แล้ว

      @@strengthwithinme6795 Can you share what supplements?

  • @amandarogers9232
    @amandarogers9232 6 ปีที่แล้ว +12

    I developed POTS after getting very ill with EBV. It took a long time to figure out what was wrong with me. It's been about 6 months since I came down with EBV but still have the POTS syndrome. My doctor ran my B vitamin levels and showed I wasn't deficient but almost low on most of them. I will defiantly give B1 a try. Thank you for the information.

    • @tiffany8154
      @tiffany8154 5 ปีที่แล้ว

      amanda rogers what are your symptoms I have been dealing with a bad ebv virus

    • @AWARNESSTHRUMOVEMENT
      @AWARNESSTHRUMOVEMENT 2 ปีที่แล้ว +1

      Any updates or discoveries Amanda??

    • @rebeccaanderson4445
      @rebeccaanderson4445 ปีที่แล้ว +2

      High dose C ( 2000 or more mg per day spread out over time) put my ebv into remission, it keeps it suppressed.

  • @lynsaenz916
    @lynsaenz916 ปีที่แล้ว +11

    A lot of people won't and didn't understand how hard and challenging to have Pots syndrome. I'm one of them.. I thought my 14 y/o daughter is just being dramatic and sensitive. Until i heard from the patients in the hospital I'm working how really bad it is. I feel so guilty 😭😭😭

    • @InjusticeJosh
      @InjusticeJosh 5 หลายเดือนก่อน +4

      Make it up to her by being there for her now

    • @pysvtfa4
      @pysvtfa4 3 หลายเดือนก่อน +2

      Same with chronic fatigue no one believes you or takes you seriously. Just gotta help yourself.

    • @teresaeadie1568
      @teresaeadie1568 24 วันที่ผ่านมา

      Hi, my daughter is 14 and we just got a POTS diagnosis about 6 months ago. I too felt like she was making things up or at least exaggerating things. Once we figured out what was going on and I did a little research I told her that I understand more about what she is going through. She was relieved that I supported her and we have been actively working through this. Her dad passed away when she was 6 and she has struggled through her teenage years. She had digestive issues since her vaccination at age 3. Now this. I appreciate Dr Berg and his advice. We will start vitamin B1 today! Don’t feel bad about being a good parent and wanting what’s best for our kids. Just support her now going forward. My daughter understood my hesitation and we are all good now.

  • @ammoniteashley6408
    @ammoniteashley6408 5 ปีที่แล้ว +46

    I have POTs and got my B vitamin levels tested, I actually had extremely high levels..... I am currently looking into getting the MTHFR Gene mutations test as multiple POTs patients have mutations in MTHFR.
    Having MTHFR gene mutations cause a break in the metabolism cycle of cells, not allowing the digestion of certain vitamins/chemicals including B vitamins.
    This means no matter how much supplements you take your body can't use it because your cellular metabolism cycle is broken.
    I'm not a doctor and I am on my own unique health path. But I suggest talking to your doctor about checking your levels before supplementing, because like myself you might actually have TOO much B vitamins.
    Great video btw, I hope you do more videos on POTs & MCAS. I'd be curious what information you have about how the western diet and immune system play into these syndromes 👍

    • @MH-ps9fg
      @MH-ps9fg 5 ปีที่แล้ว +2

      What supplements do you take if any?

    • @Josh-c5k8q
      @Josh-c5k8q 5 ปีที่แล้ว +2

      Wow I have extremely high b levels too and my doc thinks it caused nerve damage but I didn’t know why my levels were so high. Is there any sources that I can learn more about this?

    • @metaorange302
      @metaorange302 5 ปีที่แล้ว +5

      The RDA of vitamins & minerals is way too low anyway so I would definitely take most MD’s advice on that with a huge grain of sea salt! But I think the MTHFR gene is definitely worth looking into!

    • @joshs2444
      @joshs2444 5 ปีที่แล้ว +1

      Any update if you guys had any mutations in the MTHFR gene? I'm curious to know.

    • @rienjen
      @rienjen 5 ปีที่แล้ว +12

      One thing I will note is that, because you require B1 to absorb all the other B-vitamins, when you're B1 deficient, the other B-vitamins could end up being very high in your blood because they are not being absorbed into cells. Conventional doctors' tests for B-vitamins are very flawed--if you must do a B-vitamin test, at least try for one that looks at what is in the CELLS, not in the blood itself. That being said, I agree that having the MTHFR gene could also disrupt B-vitamins, but not all of them--B1 is not affected by methylation, but B12, B9 and B6 are. Life Extension makes a B-complex with methylated versions of these specific B-vitamins. Just an idea moving forward.

  • @dorisy8804
    @dorisy8804 ปีที่แล้ว +6

    Thank you Dr Berg. I am one of those people who really need the information you have available for us. I have insurance and doctors but none have helped me as the 4 of you on TH-cam have. I am very grateful, very grateful! 🌷🤲🏾🙏🏾

    • @amyclark9500
      @amyclark9500 ปีที่แล้ว +1

      Does anyone know the recommended dosage of B1 to take daily to see a difference?

    • @diamondchelles3426
      @diamondchelles3426 ปีที่แล้ว

      What other people on TH-cam do you watch?

    • @liztowers2058
      @liztowers2058 ปีที่แล้ว +1

      ​@@amyclark9500 I take 1 tsp B1 nutritional yeast in morning and 1 teaspoon in P.M

    • @liztowers2058
      @liztowers2058 ปีที่แล้ว

      ​@@diamondchelles3426 probably dr Alan Mandell he's also excellent

    • @pysvtfa4
      @pysvtfa4 3 หลายเดือนก่อน

      @@diamondchelles3426
      Check out Dr. William Li. He studies food as medicine in a lab where he used to research medication. I’ve always found that whole foods work better than the isolated nutrients in supplements.
      Recent studies have shown that the omegas you get from actually eating fatty fish work but taking fish oil supplements is largely ineffective.

  • @SDivine1111
    @SDivine1111 หลายเดือนก่อน +1

    I received the HPV vaccine when I was 13 years old. Shortly afterward, I developed POTS and SVT. I am now 27 and still suffer from these conditions. The uncertainty about my heart and body has led to significant trauma and psychological issues. For those who have received the vaccine and have made it clear that you didn’t have any negative effects. Good for you. You should be grateful.

  • @KailuaChick
    @KailuaChick 3 ปีที่แล้ว +17

    I’ve had POTS for 11 years and have been misdiagnosed and put through unnecessary surgeries. I’ve been to dozens of doctors including 6 or 7 different cardiologists. There is so much confusion and misinformation about POTS. I’m constantly told that I just have to learn to with it (duh, what do you think I’ve been doing?! 😆)
    It’s amazing that something as simple as B1 can have a big improvement. I will be buying myself a bottle to try ASAP!

    • @georgekennedy5550
      @georgekennedy5550 3 ปีที่แล้ว

      4 years here

    • @holysnappersASMR
      @holysnappersASMR 2 ปีที่แล้ว +2

      how is it going with the b1!!!?

    • @greek9244
      @greek9244 2 ปีที่แล้ว

      I’ve had mine for about 1 year and a few months. I first saw a lovely doctor who knew something was wrong with me and immediately put me into a heart research centre.
      Then I had about. 3 hours of tests and the paediatrician said I was fine… I was not
      After loads of blood tests, ECG’s, ambulatory ECG,s etc
      I got one final appointment and now I have poTs. I should probably buy these then. 🙂

  • @gratituderanch9406
    @gratituderanch9406 ปีที่แล้ว +6

    Elhers Danlos syndrome (EDS) and POTs as well as May cell/ histamine issues are often related. I also had cranial facial issues.

  • @magoddess6779
    @magoddess6779 4 ปีที่แล้ว +48

    OMG! I can just cry 😢 right now I believe this is the answer to my healing..!! I've done everything to feel better from diet to herbs i just pulled out labs that slowed in low in B1 since last year never knew how serious this was or that it was the cause of my symptoms 😢 ! Thank you Dr. Berg!!

    • @memye288
      @memye288 3 ปีที่แล้ว +5

      How are you now?

    • @prathamrballal1229
      @prathamrballal1229 3 ปีที่แล้ว +2

      Have u cured pots

    • @martabosman8590
      @martabosman8590 2 ปีที่แล้ว +1

      What helped me enormously is Omega 3. Hope it will help you too.

    • @spicymama4894
      @spicymama4894 2 ปีที่แล้ว +1

      Hello are you doing any better?

    • @magoddess6779
      @magoddess6779 2 ปีที่แล้ว +4

      @@spicymama4894 yess I've come so far!!

  • @Ungreeted
    @Ungreeted 2 ปีที่แล้ว +51

    I have POTS I take B1 with magnesium and Vit d3 daily and my symptoms are improving greatly! If anyone has questions feel free to ask. Btw B1 is an electrolyte balancer In the body so you’ll likely be low in potassium and magnesium if you have B1 issues. If you take B1 without magnesium you’ll have more health issues as B1 uses your magnesium stores, and when you first start taking B1 you will almost most definitely feel worse. That’s normal, keep taking it.
    Thiamine HCL- 50Mg-250mg
    600mg “ReMag” or 400-800mg “Micromag” from Nootropics Depot (2-4 tablets daily)
    Vit D- 400iu to 2500iu daily
    Probiota Histaminx- 1 tablet daily (Mast Cell/Histamine Intolerant friendly probiotic)
    My d3 levels were at 12ng/dl which is very low and majority of POTS patients have a magnesium and vitamin D deficiency. These 3 things to take actually balance out issues of pots and there’s studies backing that d3 alone can make pots symptoms go into complete remission. I would t recommend d3 alone since magnesium is in charge of metabolizing thiamine and Vit d so that makes it the most important mineral when it comes to recovery from POTS and most of the western population is already deficient.
    I’d recommend everyone for the first few weeks or month to only supplement the Magnesium and Probiotic to build up magnesium levels then incorporate the thiamine and vitamin d. They’ll both use magnesium so you’ll need to be taking in more than you’re losing since you have pots there’s a 8/10 chance you’re deficient and there’s no accurate blood test to determine magnesium levels since less than 1% of it is actually found in your blood. Also… magnesium on the bottle of Micromag for example says (625mg) that’s not it’s elemental magnesium content, on the back label it’ll tell you that there’s only 200mg elemental per pill. That’s where the 2-4 tablet part comes from.

    • @katesmith8424
      @katesmith8424 2 ปีที่แล้ว +1

      Thx for posting. I might come back with more questions!

    • @Ungreeted
      @Ungreeted 2 ปีที่แล้ว

      @@katesmith8424 okay no problem!

    • @Ungreeted
      @Ungreeted 2 ปีที่แล้ว

      Here’s the pdf!

    • @karenyoung5786
      @karenyoung5786 2 ปีที่แล้ว +4

      How are you dosing your Allithiamine throughout day, I take 900 mg and stop there because the garlic starts coming up. How was your titrating experience? I add HCL thiamine and benfo but do not have significant benefits at 1,000 mg. At 300 mg HCL B1 resolved my pots.

    • @Olfa_2006
      @Olfa_2006 2 ปีที่แล้ว

      @@Ungreeted so all 3 together at once is ok? B1, magnesium and d3?

  • @mushroombird9400
    @mushroombird9400 6 ปีที่แล้ว +3

    Just finished your book. For ovary body type you recommend 25-40 minutes of daily anaerobic exercise (such as running, sprints, aerobic dance class etc.) and 60 minutes of aerobic exercise (walking, yoga etc) daily or every other day. That was my lifestyle when I was younger. Now, my knees, back, shoulders etc are pretty shot - probably as a direct result of years of aerobics classes, weight training, running and then years of teaching classes. I’m now 50 and need a break!

  • @sandrakoob3613
    @sandrakoob3613 5 ปีที่แล้ว +26

    Lol. I used to tell people jokingly 35 years ago that I had beri beri disease. I found the most abstract disease possible. Here I am at 61. Flat out fainted standing in line at Walmart. Out for a good 5 minutes. Guess what? I have Pots. Had pots. Always had Pots. But this was first time actually passed out from it. Lost full bladder and all. Other times I felt “it” coming on, and knew to sit, lay, etc. but I was in killer Walmart line and you all know what that is like. At 19 I gave birth. It took over 12 hours for me to be able to stand. To lightheaded a nurse caught me before full pass out. Fast labor and birth. 4 hours. No big deal. Apparently body thought differently. Karma. Beri beri. I find this almost hysterical. Fore shadowing my future.

    • @prathamrballal1229
      @prathamrballal1229 3 ปีที่แล้ว

      How is ur pots now?

    • @ShopNaturallyMe
      @ShopNaturallyMe 2 ปีที่แล้ว

      Wow thank you so much for posting I’ve always wanted to know what it is like to be pregnant with pots

    • @InjusticeJosh
      @InjusticeJosh 5 หลายเดือนก่อน

      Our intuition is stronger than we think. I wonder how you are now.

  • @motherrambo9292
    @motherrambo9292 3 ปีที่แล้ว +25

    I was diagnosed with POTS as a child, my symptoms worsened during teenagerhood and I still get episodes from time to time as an adult. I had vitamin B injections prescribed to me when I was a teen - yet I was still blacking out. So, perhaps, the symptoms are similar as you say, but are two completely different things. I can see how people will get misdiagnosed though. Exercising also I had a fair share of experience with that, as POTS patient you are more prone to burnouts than a normal person, because the condition causes you to produce lactic acid a lot sooner. Also, when you do a lot of cardio - your heart will grow, but also means your blood pressure actually goes down, multiply that by a fast burnout - and now you know why doing cardio just puts you out for days.

    • @miamullins673
      @miamullins673 ปีที่แล้ว

      It can be hormone fed

    • @rebeccaanderson4445
      @rebeccaanderson4445 ปีที่แล้ว +2

      B injections will not address a b1 deficiency and likely doesn't contain b1. Def not enough to address a deficiency. This may or may not apply to you, but injections dont rule it out

    • @Blessednesting
      @Blessednesting ปีที่แล้ว

      I’ve been doing IF and only shorts walks this week and have been wiped out.

    • @scarlettrose5035
      @scarlettrose5035 ปีที่แล้ว

      Have you been checked for low sodium?

  • @ravengodfrey2361
    @ravengodfrey2361 4 ปีที่แล้ว +19

    It’s so crazy to hear how many people have pots too. I experienced it for the first time in June 2018 and have had it undiagnosed for so long. I’ve danced since I was 8 and have been extremely healthy then all of a sudden I started getting light head and fainting to the point where I’m crying and in pain due to falling and hurting my head and mainly my back. I brought it up to my doctor and nurses when it first happened and I never received I diagnosis until a month and a half ago. It was extremely hard to live everyday knowing I was going to faint when I stood up from lying down or sitting, my doctor told me the reason I got light headed is because I stood up too fast and told me to stand up slower and even then nothing worked. It’s really hard to live with when no one believes it could be something more and doing more research about it helps me feel comfortable for my future and the days where I can find techniques to not let my pots symptoms affect me as much.

    • @TheMiriam333
      @TheMiriam333 2 ปีที่แล้ว +2

      You danced? Do you deal with ehler’s Danlos?

  • @yesitsmeme8618
    @yesitsmeme8618 2 ปีที่แล้ว +3

    Yes I do. Thank you for addressing Dysautonomia.

  • @insaneshaneproductions7347
    @insaneshaneproductions7347 5 ปีที่แล้ว +20

    I recently got diagnosed with Beri Beri. Started taking B1 (45mg) in a B Complex liquid and it's helped my heart rate come down 35bpm resting (still in the high 80s) I can finally eat food again without feeling lethargic/palpitations feeling like I'm gonna have a heart attack.

    • @aminaben5828
      @aminaben5828 5 ปีที่แล้ว +2

      Hi! What vit b1 do you take please?

    • @karine8738
      @karine8738 2 ปีที่แล้ว

      What is the B1 one you are taking please ? I have a hard time with B-Complex. Maybe when my B1 is better, it will be find a complex

  • @silencio1234
    @silencio1234 5 ปีที่แล้ว +8

    Dr. Berg, thank you so much for this video! So helpful! Pots is the pits! Will you also make a video about mast cell activation and what to do with it?

  • @TheManOWrath
    @TheManOWrath ปีที่แล้ว +4

    Please do a video describing Hyperadrenergic POTS. It's causing my blood pressure to get too high when standing.

  • @Roshe73
    @Roshe73 10 หลายเดือนก่อน +1

    Thanks Dr Berg I had long covid haul about a year and definitely experiencing all of these symptoms. 👏🏼👏🏼👏🏼

  • @heatherycasterable
    @heatherycasterable 2 ปีที่แล้ว +6

    Thank you!!
    My daughter has Rett syndrome and has recently been struggling with Dysautonomia(POTS) and more violent seizures. I am going to try this!

    • @TheMiriam333
      @TheMiriam333 2 ปีที่แล้ว

      God Bless you both. I’d been having the extreme seizures, too.

  • @jenniferwaelbroeck5835
    @jenniferwaelbroeck5835 9 หลายเดือนก่อน +1

    My daughter, now 15, fits all the criteria for POTS. I will definitely be trying B1. Thank you so much for this information.

    • @leylahasanova480
      @leylahasanova480 5 หลายเดือนก่อน

      Hi, how is your daughter now. Did you use b1 for your daughter ?? What is result

  • @lauracollins413
    @lauracollins413 2 ปีที่แล้ว +5

    Dr Berg, I appreciate your videos and was wondering if you do individual consults? I have POTS and know that I need a nutritional program to help get out of this flare up. I value your insight. Thanks in advance for a response. -Laura

  • @bullymaguire2061
    @bullymaguire2061 3 ปีที่แล้ว +2

    Thank you, you are a gift, Dr. Berg

  • @samanthalasiewicz6165
    @samanthalasiewicz6165 6 ปีที่แล้ว +4

    I was diagnosed with hyperadrenergic POTS by Mayo Clinic in 2015. It is a very complex syndrome with so many symptoms. So nice to see doctors raising awareness since it takes an average of 5-6 years to get properly diagnosed. I wish something as simple as taking a vitamin helped, but I try everything I can. And my POTS neurologist fully supports keto for me and my symptoms and said "keep doing it for as long as you possibly can".

    • @karenrafiai2254
      @karenrafiai2254 5 ปีที่แล้ว +1

      HI THERE my daughter has hypermobility years ago it was called being double jointed , about 4 yrs agowas diagnosed with pots she had so many tests so will be very interested if vit b1 is going to help. doc said mindlefullness which is easier said then done , he said your body is slightly of tilt just need to get it back ,did watch another video of dr berg about the adrenal support might be worth a look , hope this helps

    • @Blessednesting
      @Blessednesting ปีที่แล้ว

      I’ve been dealing with it for at least 8.5 years that I can recall and still no diagnosis. My PCP said it’s from old age lol. I was 32 when I started noticing it.

    • @chelsey5256
      @chelsey5256 7 วันที่ผ่านมา

      I'd love to know how you're doing now? :) I have Hyperpots and have tried everything 😢

  • @losrelatosdevictoria
    @losrelatosdevictoria 2 ปีที่แล้ว +8

    I have developed pots after MMR vaccine and it has changed my life. Insomnia, pain, nausea, dizziness...
    Besides the Pfzr vaccine makes my symptoms worse.
    I didn't know vitamin b1 could help.

  • @francesnaeve4061
    @francesnaeve4061 3 ปีที่แล้ว +5

    A heavy heartbeat wakes me up several times in the night. I must try this. I am exhausted from lack of sleep.

    • @nasseralraeesi6845
      @nasseralraeesi6845 3 ปีที่แล้ว

      How you feel now

    • @KailuaChick
      @KailuaChick 3 ปีที่แล้ว +2

      Try some magnesium before bed

    • @pinkformarie
      @pinkformarie 2 ปีที่แล้ว

      Kori yes, was going to say natural calm magnesium citrate powder ,you stir in warm water...

  • @pm5574
    @pm5574 2 ปีที่แล้ว +7

    I’ve passed out a couple of times here and there. I can feel it coming (if I get up to fast, or did a hard work out). I’ve seen your other videos and thought oh after a hard workout I must need electrolytes. The B1 deficiencies makes sense. As my weakness is “sugar”. I have been doing “I-F” almost 3 years but the Lord has helped me lose the weight eating better/walking/running/hiking. Day 4 of my spring hike last year (Appalachian trail-Virginia’s roller coaster) I was hiking so slow (turtle) I got off, stayed at a Hostal (1st time ever) drank a Gatorade & started coming back to life (drank a 2nd, and I was back as I was praying to the Lord on what to do). Thank you so much for sharing your knowledge so I can make “better choices”😆😁

  • @staceybsbs
    @staceybsbs 5 ปีที่แล้ว +16

    MTHFR gene mutations....very important to be checked for since it is the gateway of how one can digest B's and the bodies ability to utilize them, which in turn b's are what feed and keep the vagus nerve healthy, which is what controls the autonomous body functions. I am surprised that MTHFR isn't mentioned by Dr. Berg. Things are very complex and everything is relative in the vast majority of us. B's are hard to detect properly because urine and blood will show fine or even excess B's and that is only because the system is dumping it back out because it is unable to digest due to the GI receptors/converters being clogged by the tons of folic acid (synthetic B). LOOK into MTHFR gene mutations, learn about it too.

    • @LC-bb6jd
      @LC-bb6jd 3 ปีที่แล้ว +4

      He did a video on MTHFR

    • @bevs9995
      @bevs9995 3 ปีที่แล้ว +4

      and if you find out you have this mutation, then what?

    • @lufcEngland7
      @lufcEngland7 ปีที่แล้ว

      @@bevs9995 second this comment

    • @lr1732
      @lr1732 17 วันที่ผ่านมา

      Having a gene mutation doesn’t necessarily mean it gets expressed. I think many things come at us as insults as children that wreck us. Then this causes these damaged genes (a bad mutation) to exhibit their poor function in the way the do in addition to all the actual cellular damage these insults cause. If we all lived in a clean pure world raised on pure food and no drugs and poisons then most of us would not be so damaged. I am doing exponentially better since going low histamine carnivore with raw milk. My body does so well with raw milk because the nutrients are so available already. Life changing.

    • @lr1732
      @lr1732 17 วันที่ผ่านมา

      @@bevs9995 nothing actually changes by knowing. Just keep moving to find ways to feel better.

  • @serenitylittle5103
    @serenitylittle5103 4 ปีที่แล้ว +2

    This is amazing!

  • @j.allison5514
    @j.allison5514 5 ปีที่แล้ว +10

    Thank you Dr. Berg. Could you tell us how much B1 and N. Yeast?

  • @cdogg82
    @cdogg82 2 หลายเดือนก่อน

    this video saved my life

  • @zakyvids6566
    @zakyvids6566 ปีที่แล้ว +4

    I strongly believe that cervical instability is in play for many(not all) pots patients I know of quite a few people who sketcher have a loss of Curve or bulging disks see Brian hutcheson cervical curve correction his channel has video suggesting some people have it due to the issue

  • @vivalospepes1402
    @vivalospepes1402 6 ปีที่แล้ว +2

    This person was told the other day vitamin B deficiency. I hope your advice is taken. Thank you for all you do Dr. Berg

  • @JAllenIsaac
    @JAllenIsaac ปีที่แล้ว +3

    I can search any term with “Dr. Berg” and find that 9 times out 10 you have a video on the term. Do you attribute your prolificness to the keto/intermittent fasting? No one is as concise and clear, great content as always.

  • @chihuahuapixieprincess2482
    @chihuahuapixieprincess2482 ปีที่แล้ว +2

    I've had ME CFS for 28 years, think I caught very mild Covid right at the beginning of lockdown, felt fully recovered then collapsed in my kitchen one morning...3.5 years later I'm still fighting for a POTS diagnosis despite me taking evidence along; the NASA Lean Test at home.

  • @moalf5088
    @moalf5088 2 ปีที่แล้ว +6

    All these comments and yet… nobody has mentioned what dosage of vitamin b1 to take.
    What is the DOSAGE of the vitamin B1?

  • @KiiKiiMc
    @KiiKiiMc 2 ปีที่แล้ว

    Thanks for sharing this important imformation

  • @laurenebauman6192
    @laurenebauman6192 2 ปีที่แล้ว +6

    Thank you Dr.! I have been diagnosed with pots, and I’m not feeling well so I’m gonna try the vitamin B1, and see if I will feel better

    • @8Ways8
      @8Ways8 2 ปีที่แล้ว

      Hello, did it help you?

  • @diazjosh817
    @diazjosh817 3 ปีที่แล้ว +1

    Your Awesome Dr. Berg!!

  • @AmazonFindsSpecial
    @AmazonFindsSpecial 6 ปีที่แล้ว +5

    Dr Berg! Could you please cover the topic of nail fungus please? It would help a lot of people.

  • @badburrrgrizz
    @badburrrgrizz 6 ปีที่แล้ว +2

    I really appreciate the infos, doc. thank you!!

  • @bonniespruin6369
    @bonniespruin6369 6 ปีที่แล้ว +4

    Getting this and nutritional yeast on my next trip to the health food store! Thanks!

  • @moonbby8192
    @moonbby8192 6 ปีที่แล้ว +7

    mines gone from 60 to 210 in a matter of seconds, safe to say PoTS is extremely debilitating

    • @jobseeker5162
      @jobseeker5162 5 ปีที่แล้ว

      Sry to hear it,but how old r you

    • @moonbby8192
      @moonbby8192 5 ปีที่แล้ว

      Job Seeker 15

    • @jobseeker5162
      @jobseeker5162 5 ปีที่แล้ว

      For how long duration??

    • @briarrose3687
      @briarrose3687 5 ปีที่แล้ว

      Prxda! Hold onto hope, a lot of young people who get it as teenagers grow out of it luckily. Hang in there.

  • @brookerobinson6814
    @brookerobinson6814 4 ปีที่แล้ว +1

    Definitely trying this, thank you for sharing! 🙏🏾

    • @Drberg
      @Drberg  3 ปีที่แล้ว

      Great!

    • @torontomunda
      @torontomunda ปีที่แล้ว

      @@Drberg dr berg how much b1 should I take for pots?

  • @StripesWaterkat
    @StripesWaterkat 6 ปีที่แล้ว +11

    How long does it take to correct a nutritional deficiency? Is it one day of 100% RDA or a gradual healing thing?

  • @stellaancimer8505
    @stellaancimer8505 2 หลายเดือนก่อน

    But what is causing it? It can be histamine issue?

  • @steve0ne11
    @steve0ne11 2 ปีที่แล้ว +39

    I developed POTS (along with a bunch of other terrible symptoms) after the first dose of the Pfizer vaccine. My life has never been the same since. I take a number of vitamins including B1 and it seems to help a bit. I mainly use the FLCCC’s vaccine injury / long haulers protocol. Hyperbaric oxygen therapy and stem cells were very helpful for me. Unfortunately those are very expensive and out of reach for most people. It would have been nice if the CDC/FDA/NIH were honest about how often this happened. I would never have gotten that experimental medication. Btw, I ended up getting Covid recently after 15 months of suffering from the vaccine. It was barely anything. Yeah, I feel pretty stupid.

    • @matteosforzini7146
      @matteosforzini7146 2 ปีที่แล้ว +6

      I got pots after getting covid (I'm not vaccined)

    • @janmariablackwell8138
      @janmariablackwell8138 2 ปีที่แล้ว

      Have you looked at your platelet count recently?

    • @steve0ne11
      @steve0ne11 2 ปีที่แล้ว

      @@janmariablackwell8138 I have not recently. I did check at 3, 6, and 9 months after the vaccine injury. It was in the normal range, but was trending down slightly. Why do you ask?

    • @janmariablackwell8138
      @janmariablackwell8138 2 ปีที่แล้ว +5

      It seems that quite a few of the vaccine injured have thrombocytosis (raised platelets) which often gives very similar symptoms to POTS and like POTS can have histamine-related symptoms.

    • @niwtru
      @niwtru 2 ปีที่แล้ว +1

      @@janmariablackwell8138 I developed POTs after Moderna booster. Been in and out of hospital all last month. Neuro says its POTs and I dis notice my platelets were flagged as high in my last two blood tests. Ive never had this issue. But what does it mean and how do I help myself ? Thx for info.

  • @MrCurtisworsham
    @MrCurtisworsham 2 วันที่ผ่านมา

    Nutritional Yeast ? Could you tell me more about this and best ways to get it ?😮

    • @Drberg
      @Drberg  วันที่ผ่านมา

      Sure. Please see my videos here on nutritional yeast: www.youtube.com/@Drberg/search?query=nutritional%20yeast

  • @Victoria-198
    @Victoria-198 2 ปีที่แล้ว +3

    A couple years ago I started having debilitating symptoms after numerous viral infections back to back. My legs got very stiff. Wouldn’t bend. It took 3.5 weeks to walk or stand. I was more fatigued than I ever had been in my life to the point I thought I might not make it. I was extremely nauseous and lost my appetite for weeks. I was very scared. They ran a bunch of tests and the only thing positive was antibodies for something called GAD encephalopathy. Fast forward 2 years later with numerous mild to severe symptoms in between such as worsening constipation that was horrendous, muscle twitching all over, ribs popping and cracking and slipping, pinched nerves and burning pain in my feet. I then came down with covid (not vaccinated) and about 6 months later had my first episode of perpetual tachycardia for 1.5 months. I was so nauseous and sick. Extreme fatigue. Gradually my heart rate went back down but I still have an increase upon standing and still can’t do things I normally would do. My doctor thinks I have POTS at this point. I think I have struggled with it for a while and tried to brush it off as I have had problems standing still and upright for years as well as a need to lay down due to pressure in my head often or just over all debilitating fatigue. Also noticed occasional bouts of heart rate increase from time to time but nothing sustained like lately. I had chest pain with the heart rate increase as well. I do think I am vitamin deficient and I think an interesting things is reading about encephalopathy one of the things that cause it is B1 deficiency. I still don’t have many answers but I will try to increase B1 and see if that helps.

    • @meglupo18
      @meglupo18 ปีที่แล้ว +1

      Did it help?

  • @Honeytreasures
    @Honeytreasures ปีที่แล้ว

    Just got a diagnosis and this is very helpful

    • @Drberg
      @Drberg  ปีที่แล้ว +1

      Hope it helps!

  • @anna-rebeccajohnson9480
    @anna-rebeccajohnson9480 6 ปีที่แล้ว +9

    I was diagnosed with POTS and Ehler Danlos by my doctor at Mayo Clinic. The fact that you even recognize it is so comforting. Like you said, it’s very complex and not much is known about it, yet. In fact, a team of doctors at Mayo are doing a study/ paper on my case. 😂 Thank you so much for this vid! I’m going to try taking a B1 supplement! 🙌🏻

    • @sarahdejager7606
      @sarahdejager7606 6 ปีที่แล้ว +1

      I also have EDS. Does anyone know if Dr. Berg talks about EDS in any of his videos?

    • @anna-rebeccajohnson9480
      @anna-rebeccajohnson9480 6 ปีที่แล้ว

      The waitlist IS crazy. It's so hard to get into, but if you do, they're very nice and VERY helpful. I hate that you have to deal with it, but it's nice to know there are people out there that understand! I hope you find some answers; I know how frustrating it can be. Thank you for your kind reply!

    • @anna-rebeccajohnson9480
      @anna-rebeccajohnson9480 6 ปีที่แล้ว

      I'm pretty new to his channel, and I just happened to see this vid. I'll definitely look around on his channel more, though, and let you know if I find anything else helpful! I just went out and bought my B1 supplements; hope it helps... I'll try anything! Lol. :)

    • @lowkyfyre5815
      @lowkyfyre5815 6 ปีที่แล้ว +1

      Anna-Rebecca Johnson I have pots and I’m 14 years old I made the 8th grade school team in 8th grade and soon after I started getting symptoms so I went to the doctor and they weren’t sure what I had so I did some research and found that pots matched almost all the symptoms I had. I’m currently a freshman rn doing online school but I’m just trying to get better but I’m glad I can talk to other people that have my condition. Cheers!

    • @dana102083
      @dana102083 4 ปีที่แล้ว

      @Caila Rebecca did you ever try? Zebra here too..keto has helped for 3 years.

  • @DaimonosUlv
    @DaimonosUlv 6 หลายเดือนก่อน

    How much B1 daily would you recommend Dr Berg?

  • @samlev5961
    @samlev5961 5 ปีที่แล้ว +3

    How many mg do u recommend?

  • @Amit67014
    @Amit67014 6 ปีที่แล้ว

    Thanks berg I share this to all my friends right now and I will buy nutritional yeast from ur shop ..thank u so much ☺💓

  • @DeadlyCyanide1
    @DeadlyCyanide1 4 ปีที่แล้ว +10

    The fibro and pain could be from eds so make sure to make sure you don't also have ehlers-danlos syndrome.
    The immune response could be a mast cell issue too which isn't talked about much and kinda newish in the medical field. Alot of doctors don't know much about it and assume a test would say if you have mast cell activation Syndrome.
    Make sure you don't have these issues too. This is a must.
    Zebras are NOT as rare as doctors used to think they are and it's becoming widely known now that we are able to connect with each other.

    • @TheMiriam333
      @TheMiriam333 2 ปีที่แล้ว +1

      Exactly.

    • @karine8738
      @karine8738 2 ปีที่แล้ว

      That must rare ? Never heard of this first 2. Doctor here in Quebec don't really do test, they are willing giving you medication oh that yes !!!! Zebras ?

  • @doziejosiah8406
    @doziejosiah8406 4 ปีที่แล้ว

    Dr Berg ! i love you.

  • @Morese56
    @Morese56 ปีที่แล้ว +6

    My wife has pots and she changed her diet and cut out taking a muscle relaxer pharmaceutical which I’m guessing was a major cause and things changed dramatically. I’ll let you figure out what she did with her diet being you are watching Dr Bergs channel😊 We are what we eat. Peace

    • @sheelawal7616
      @sheelawal7616 ปีที่แล้ว +1

      Please what did she do
      …please share

  • @deebadeeba9220
    @deebadeeba9220 6 ปีที่แล้ว +1

    Thank you 💚

  • @inscoredbz
    @inscoredbz ปีที่แล้ว +4

    Does anyone else get mild tremors when they first get up? I'll be fine until I get out of bed, then a get the trembles. I'm also staying worn out. My heartbeat would go from about 75 laying down to around 120 after getting out of bed in about 30-40 seconds. I'm on a beta blocker to reduce my pulse, but I didn't know there was other symptoms too. I got it after COVID.

  • @saren6538
    @saren6538 11 หลายเดือนก่อน +1

    i got pots on keto....went back to carbs and it went away...tried keto again...pots came back....went back on carbs.... pots never went away

  • @kirkdennis830
    @kirkdennis830 3 ปีที่แล้ว +5

    Yeah I had these conditions. But I ended up eating more. More fat, more protein and just started focusing on building muscle.
    I also started taking b vitamins.

    • @memye288
      @memye288 3 ปีที่แล้ว +2

      Did it help? I have Chronic Fatigue Syndrome, but I noticed some improvements when I raised fat, protein, iron, and ferritin...I'm not cured, but I noticed deficiencies definitely play a role

  • @tnmtnmorning1178
    @tnmtnmorning1178 2 หลายเดือนก่อน

    Thank you!

    • @Drberg
      @Drberg  2 หลายเดือนก่อน

      No problem. Happy to share this video. Stay safe!

  • @Underatedancers
    @Underatedancers 5 ปีที่แล้ว +3

    I have dysautonomia and my vitamin B1 levels are and always have been in range.

    • @JamesBrown-hs6vg
      @JamesBrown-hs6vg 3 ปีที่แล้ว

      What type of B1 test did they run

    • @strengthwithinme6795
      @strengthwithinme6795 3 ปีที่แล้ว

      I never took B1 for my POTS. Special forms of B12 and folate were important for me in beating POTS.

    • @bea29able
      @bea29able 3 ปีที่แล้ว

      @@strengthwithinme6795 what forms of b12 did you take?

    • @ceegee2918
      @ceegee2918 2 ปีที่แล้ว

      @@strengthwithinme6795 Please share what they were

  • @rachelarc8837
    @rachelarc8837 5 ปีที่แล้ว +1

    You are saving my life!!!

  • @GoFishOffice
    @GoFishOffice 2 ปีที่แล้ว +4

    I deal with POTS. When I was an infant I reacted badly to vaccines. Anyways I am going thru stress and I am going to try this B vitamin advice, thank you.

    • @carmella88
      @carmella88 ปีที่แล้ว +1

      Did the b1 help

    • @GoFishOffice
      @GoFishOffice ปีที่แล้ว

      @@carmella88 yes it sure did

    • @carmella88
      @carmella88 ปีที่แล้ว +1

      @@GoFishOffice awesome i have pots too do u have to continually take b1 forever ? Or since u have started

  • @pammy_mac
    @pammy_mac 9 หลายเดือนก่อน

    Thanks for sharing! I have POTS from Long Covid. Another vote on your take of Long Covid 🙋‍♀️ Would love a video from you!

  • @rachelarc8837
    @rachelarc8837 3 ปีที่แล้ว +4

    Yes but you need to take the right kind of B1 to work! Allthiamine is what finally stopped my POTS symptoms.

    • @natashapryor8154
      @natashapryor8154 3 ปีที่แล้ว

      What is that is it a particular type? Im under investigation for pots and eds, i hsve MTHFR c677t gene i mutation and hyperthyroidism and functional neurological disorder 😩

    • @rojo5714
      @rojo5714 2 ปีที่แล้ว

      How many mg you take?

    • @motuno7002
      @motuno7002 2 ปีที่แล้ว

      what was your dose?

  • @ThordMoller
    @ThordMoller 10 หลายเดือนก่อน +1

    My doctor suggested I might have it today. Funny thing is that I didn't have it before I tried the keto diet. Haven't been myself since I did

  • @margaritasaborio4475
    @margaritasaborio4475 ปีที่แล้ว +10

    I struggled for more than 13 years with so many weird symptoms, that doctors just thought I was making things up. Finally I was just diagnosed with Disautonomia/Pots. My life totally changed about 3 months algo when I started taking electrolytes. What I still do not understand is what magnessium replicates my symptoms.

    • @c.518
      @c.518 ปีที่แล้ว

      What does magnesium do to you? Have you tried b1?

    • @Blessednesting
      @Blessednesting ปีที่แล้ว

      What do you mean it replicates your symptoms?

  • @lrobinson3461
    @lrobinson3461 6 ปีที่แล้ว +1

    Hi Dr. Berg and Karen!!! Happy Friday. We are taking our Nutritional Yeast!!!!!! Thank you!

  • @liztowers2058
    @liztowers2058 2 ปีที่แล้ว +5

    Something VERY WRONG WITH THESE SHOTS!!!!!!! NOBODY CAN TELL ME DIFFERENT! :( IM SUFFERING.

    • @everyneed3959
      @everyneed3959 2 ปีที่แล้ว +1

      Covid shots?

    • @liztowers2058
      @liztowers2058 2 ปีที่แล้ว

      @@everyneed3959 yes. Got Jan 15th....and not even 2 days later heart pounding and daily anxiety. Out of nowhere. Lost 13 lbs in 3 weeks . Bizarre

  • @KateMcDougallMusic
    @KateMcDougallMusic 3 หลายเดือนก่อน

    What is the recommended dosage of B1 to start with?

    • @Drberg
      @Drberg  3 หลายเดือนก่อน

      Check out the suggested use for Dr. Berg's Natural Vitamin B1+ here: shop.drberg.com/natural-vitamin-b1

  • @whitneyg.1860
    @whitneyg.1860 4 ปีที่แล้ว +14

    I was diagnosed with pots a few months ago..my underlying cause was low ferritin

    • @mariahb6894
      @mariahb6894 4 ปีที่แล้ว +3

      I have very very low ferritin, and I was diagnosed with pots several months ago. I had no idea they were linked. It explains why my symptoms are exacerbated during my period

    • @beautyfromashes14
      @beautyfromashes14 4 ปีที่แล้ว +7

      @@mariahb6894 This caught my attention. When I'm on my period my POTS is so bad.

    • @atthecrosshealing
      @atthecrosshealing 4 ปีที่แล้ว +2

      Pots causes anemia. Btw

    • @marygietmanschellinger2706
      @marygietmanschellinger2706 4 ปีที่แล้ว +3

      @@atthecrosshealing I think it's the other way around. Anemia causes pots. Or maybe there's research I'm unaware of yet.

    • @atthecrosshealing
      @atthecrosshealing 4 ปีที่แล้ว +2

      @@marygietmanschellinger2706 no. It’s how I said. Pots causes deficiencies of vitamins minerals blood levels oxygen etc. and it affects many parts of the body controlled by the autonomic function.

  • @jetskipapi6193
    @jetskipapi6193 3 ปีที่แล้ว +1

    I wish you were my doctor...Since discovering your channel a few days ago I have implemented some of things you mentioned...I haven't felt this good for this many consecutive for so long...I legit am shocked.

    • @jetskipapi6193
      @jetskipapi6193 3 ปีที่แล้ว

      I like your approach too...I believe symptoms are how our bodies tell us something is wrong and I think doctors are trained to treat the systems and disregard finding the cause unless it is obvious...but by then the damage may have been and it may be impossible to reverse. A lot of symptoms are 3-5 conditions removed from the real problem.

  • @cwsing7230
    @cwsing7230 6 ปีที่แล้ว +9

    I HAD THIS POTS WITH ALL THE SYMPTOMS AS A KID JUST IMAGINE MY MOTHER DIDNT HAVE A CLUE WHAT TO DO WITH ME, MY MOTHER STRESSED ME OUT AND SCHOOL WAS VERY HARD AND MY MOTHER NEVER HELPED ME AT LEARNING, AT 24 I DECIDED I GO TO UNIVERSITY FOR MY NAN AND I DID A FEW EXAMS VERY WELL AND THEN I LEFT MY COUNTRY FOR MY HUSBAND 14 YRS AGO! I LOVE MY LIFE WICH STARTED AT 28 I AM 43 WITH 3 KIDS COULDNT BE ANY HAPPIER😄😁😄😁

  • @jennifercarter3028
    @jennifercarter3028 9 หลายเดือนก่อน

    Whats the best type of B1?

  • @katEm202
    @katEm202 4 ปีที่แล้ว +6

    From what I know about POTS your HR goes up 30-50 bpm upon standing. My question is how long does it stay up. Or does it come back down right away? Mine goes up at least 30 bpm. Then goes back down right away sometimes. Sometimes it stays up by at least 20 bpm. I have the symptoms of sob, dizziness, headaches, fatigue, brain fog etc. on a daily basis. I've never passed out but have felt like I may. I've had this for at least 10 years without treatment. Drs. have given me a fibromyalgia & chronic fatigue diagnosis. Have always known there was something more!

  • @roannarego4754
    @roannarego4754 ปีที่แล้ว

    Dr.Berg did you happen to make a video on Long Covid? I would really like to hear your thoughts- Thank you

  • @LiyanaDIY
    @LiyanaDIY 6 ปีที่แล้ว +14

    Can nutritional yeast have any side effects or cause candida?

    • @sj8801
      @sj8801 4 ปีที่แล้ว +2

      Terrarium & Crafts great question. I have pots and Candida overgrowth

    • @LiyanaDIY
      @LiyanaDIY 4 ปีที่แล้ว

      @@sj8801 I have pots too! And I wouldn't be surprised at candida, trying to get these things tested is £££

    • @sj8801
      @sj8801 4 ปีที่แล้ว +1

      Terrarium & Crafts do you think Candida overgrowth can cause POTS?

    • @LiyanaDIY
      @LiyanaDIY 3 ปีที่แล้ว

      @@sj8801 no i wouldn't think so x

    • @Drberg
      @Drberg  3 ปีที่แล้ว +1

      @Terrarium & Crafts
      No
      The Amazing Nutritional Yeast Benefits | Dr. Berg
      ---> th-cam.com/video/8nK8x8MSQe0/w-d-xo.html