I cried when your daughters & u said u are already grieving losses. I can’t relate to husband with dementia which is so hard but I grieve loss of mom. She will be 90 soon. A few years ago I asked her to pray for me because i was having surgery. Her ability to speak was minimal but God gave me the gift of hearing mom speak the most beautiful clearly articulated prayer over me. Thank you for sharing this video. ❤️🇨🇦✝️
Don’t apologize for your tears. They’re real. You’re real. He’s real. The love between all of you will always be real. He may lose that. You won’t. Treasure that. And know that, when he could, he treasured that. You all gave him that, just as he gave it to you.
My dearest Lesley. I think you are an incredibly strong amazing woman. The fact that you are letting us into your world as you go through this difficult time is amazing. You’re doing so much for others that are also going through this and think that you’re so fortunate to have the amazing family and friends around you. I can’t imagine being in your shoes and I won’t try. If I lived near you I’d be there to help you with whatever I could. You seem to be very genuine people and I wish you all the best and love as you continue this difficult journey. You’re truly special.
I’m living this nightmare with my husband. He has Parkinsons disease and dementia. I can never decide which is worse-the days I can’t remember what he was like before, or the days when I can. Both bring sadness and tears. It’s a difficult, lonely life for all of us. I love watching your videos and hate it at the same time. As a caregiver, I’m sure you know exactly what I mean. Wishing you and Jason all the best.
Thank you so much for your journey. My sister was diagnosed with FTD in her early 50’s.. She passed in March. I watched her die for 11 yrs. I had my healthy sister and memories of our lives. Then for the last 10 yrs I helped take care of my sick sister. When my sister passed, it was quite a relief, and I was praying for God to please take her. I was holding her hand when the stopped breathing. She had no pulse and I called for the nurse. I had dreaded that day for 10 yrs. However, it was such a relief for me to know she was well, healed, could walk and talk again. I thank God for all of our days together. It is the saddest disease in the world. The family suffers every day. My sister seemed happy most of the time. I could fix her hair, massage her feet and legs, paint her nails, etc. I have missed spending time with her, but I am thankful our suffering and dread is over. God bless your family and know--You are not alone and The sadness is easier for you when your loved one , doesn’t have a clue. You will not have to worry about him being upset. She spent her last year in a nursing home, close to me. We got her up, bathed and dressed EVERY day. I purchased her a gereactric chair, which was a blessing. I could stroll her all over the grounds, the patio and nursing home. ,Everyone loved her and she was comfortable all day, with pillows around her. She was only in bed l week, before the Lord took her home. She just would not eat or drink a thing. I just forced a small amount of ice cream in her, 3 days before she passed. I still cry. I’ve been crying 10 yrs. I thank God for taking her home . She is with our family now and Jesus. God bless you and keep up the encouraging work for others. 🙏🙏🙏🙏🙏🙏💕💕💕💕💕ps I wish I could write a book about our journey. She was like Jason, smart, Rn with bsn, , married to physician, very comfortable, great life. It does not make sense to me. I am 5 yrs older. One day, we will all be together in n heaven.
😢😢My condolences to your family. I could feel your love for your sister. I am dealing with something similar with my sister....memory loss, although we hv no diagnosis yet. But she is not remembering things we just talked about a few days ago and years of her life. 🙏🙏 Will find out soon what is really going on.
Holy smokes. I cried so hard watching this video. Leslie, you are an amazing human. I feel so bad for Jason, as well. It must be H*** as a wife to watch him decline and no longer be the person you’ve know, love, and raised a family with. 😢
Im so so sorry the journey you have.. It breaks my heart as I understand, my dear husband had Parkinson Disease for half of my married life. I watched him die for 20 years and its so hard loosing the love of your life but theyare still here. Its 3 years since the angels carried him home, and I grieve for the man I married. I couldn't have walked my journey without Jesus ...Thank you for bringing this caregivers awareness....Prayers from the Shenandoah Valley in Va.
I just want to come and wrap my arms around everyone of you! This video is going to help so many families and caregivers of others with dementia and I thank you.. Jason's "show timing" is sooo sharp and right on. I'm happy you all know Jesus and know Jason will be whole again one day and that's something no one can take away from you. Prayers!
I relate to so much of this. My Dad just passed away from Alzheimer’s earlier this year. Dementia is hard for all involved. Take care of yourself Leslie and take all the help you can get. Hugs!
I helped my Dad care for my Mom for several years after a stroke caused dementsia and many other things. My Dad was a hero in everything he did and no one could know how hard it was. Since we started losing Mom I have prayed everyday for caregivers. You and your team are inspirational. The long goodbye is so hard but my Dad always said it wasn't about being strong, you just do have you have to do. Thank you all for sharing.
my mom was just diagnosed with dementia also. I live in Michigan and she is in California. I understand how your daughter feels. Not being able to be there to help. I feel this guilt from the time I wake up to the time I go to bed. I am praying for you.
When your daughter said she feels she's already lost her dad, wow...that really resonated with me. I said those same exact words to people about my mom. My mom was 94 and thank our gracious God, she only lived with it about 6-9 months before she passed away. I could not have imagined going through it with someone younger, especially my husband. Thank you for sharing all that you do with us. May you and your family find comfort and strength to carry on during this time. I hope everyone keeps all of you in their prayers.
What a beautiful, articulate young woman your daughter is. You should be very proud of the woman you have raised.❤ my husband passed away in 2014 and I know my kids really miss their dad. Cherish the times you have with him.❤
It’s hard enough to lose your precious Dad and losing him by inches is unbearable. My heart felt sympathy and empathy. I lost my Mother slowly to mini strokes. My brilliant Father went quickly but that hurt too. I wish you peace.
The narrative you all are providing is invaluable for families going through this. God bless you all and give you continued strength in dealing with such an incredibly difficult condition.🙏🙏🙏
Thank you Jason and Leslie for repurposing this video. I’m sure you have newcomers that could really use it or find comfort in hearing perspectives from others in your close circle. I watched it again and am saddened that this disease is robbing Jason of his memory … my prayers for a miracle… you never know.
It is a blessing to hear your love for our Lord. I spent about 4 yrs taking care of issues for my parents (both had dementia). They had repeatedly told me that they did not want to live with their children--I am one of three. So, I got them into an assisted living facility and in less than a year they ended up in memory care at the same facility. I was a nurse and had experience with the elderly, but managing someone for a 12 hr shift and caring for a loved one 24/7 is totally different. I was exhausted from the mental drain. Once Mom was sent to the ER after a fall, so I headed to the hospital. In the ER she was agitated and scared because she did not understand what was happening. On the drive home, she asked me where she lived. The fear and confusion on her face was heartbreaking. I asked her again if she wanted to live with me and she said 'No'. The minute I pulled into the driveway of the facility the confusion left her and she said "This is where I live" and she recognized the Nurse Tech who came to get her. We were fortunate enough to get her placed there early enough that her brain accepted and recognized where her final earthly home was. I made it my goal to make them laugh at least once every time I was with them. You laugh probably brings joy to Jason, so hold on to those funny times. One blessing of dementia is that you can tell him the same story repeatedly and they will think it just as funny as the first time, hopefully. And when it comes to taking care of yourself it sounds like you are doing the best that you can.
Lesley and family, I viewed this when it came out originally, but it’s such a wonderful video I wanted to see it again. Your whole family is just beautiful inside and out! They gave such a sweet and funny picture of Jason throughout his life! Your oldest daughter looks so much like Jason and her grandmom! Jason looks so much like his mom! And Kelsey is your mini-me Lesley! Y’all have the sweetest family and we are all praying for you and also wish for a cure or a miracle for Jason! God bless! Very fun video!
You are doing a wonderful job holding everything together and it’s wonderful you have such a good support system. Both of my parents had Alzheimer’s and died from complications from dementia. Mom also had Lewy Body dementia. Having a loved one with dementia is a very difficult experience for many reasons, the worse is having to watch them slowly ‘leave’ us. Bless you and your family and, most of all, Jason.
Hi guys, so my mom was never diagnosed but she definitely has dementia. I would say she’s had it for about 3 years now. She just moved into a nursing home in April and it’s been so hard for me because I was the closest to her and I was the one who brought her to her doctors appointments and helped her out with whatever she needed. I live about 5 minutes away. Anyways I can totally relate to what your daughter said about the grieving right now. I feel like I’ve been grieving, I’m actually pretty sad and depressed. I don’t have the support you do. I mean I talk to my husband but he works a lot. But I remember about 4 years ago after I brought her for her surgery, she had lung cancer. I stopped at McDonald’s to get something to eat and I parked the car and I cried so hard. That was so hard and than a year later she got throat cancer and had to get chemo and radiation. That’s when her memory started to slowly decline. But I think your both doing a great job and you have a wonderful family. That’s very important, believe me it makes a difference.
This has me in tears. I lost my beautiful mother in law a month ago to dementia. It makes me so happy to see the wonderful network of family and friends supporting you both. God Bless ❤
My husband had a stroke 7yearsago that left him partially paralyzed and with almost no speech. It’s been hard but he handled everything with such grace and worked to make everyone else comfortable. The past year he has started exhibiting signs of dementia. It is progressing rapidly. This is the hard work. Thank you helping” normalize “ his behaviors and my reactions. You really are helping me trudge thru this hard uphill climb. You are making a big impact on so many of us! Thank you! Sending you all lots of love.💜
Thank you to everyone who participated in this video. I appreciate your input, every single person. God bless you all in Jesus Name. I'm so happy you all know Jesus, so when we all get to The Kingdom of God, I can hug your necks.
I remember I grieved the loss of my mom 8 years before she died. Dementia is a soul sucking & cruel disease. Sending you all so much love & healing light❤ Edit- you & your daughters are so brave & strong. My heart just breaks for you all. You are all most definitely grieving & the grieving process can be overwhelming & I am so very sorry you are going through so much. I watched my father die from cancer at age 61 & my mom from dementia, thankfully we had her until she was 83. I understand & can empathize with you how it feels to grieve someone who is still here. ❤ xoxo
I would love to be in your king family. Your daughters, sister, neighbors, mother-in-law are all such loving and kind individuals. This. A wonderful video for Jason to listen to, as well as others with Jason’s disease and other family members because it gives everyone watching great insight as to what they could go through and also to know just how important a true support system is supposed to work. Thankfully, Leslie, is a loving person and keeps good relations with friends and relatives. She is a trained caregiver , but she knew how to turn that around to ask for help when she needs it. It’s a lot to balance and I can see where Jason could get frustrated and maybe get mean at times, as Leslie has previously stated, but let’s hope for how his huge heart full of love will shine most of the days ahead🫶🏼
You’ve been through so much as a family. What a beautiful family…it’s just heartbreaking that Jason has this terrible disease! I can’t stop crying- I pray for you all continually. I wish I could give Jason a big hug - I can’t imagine how frustrated sweet Jason must feel. ❤❤🙏🙏
@@joyful_tanya Thanks for the conversation. I think he gets frustrated because as a man he needs to be strong but he knows...my cousin knew. Jason’s training keeps him from opening up...In my opinion.
@@havecourageandbekind9605 I don't know but he has said several times "I had no idea even when you pointed it out". Every patient is different even though they may have the same diagnosis. Just like 1 person takes Benadryl and it puts them to sleep, another person it jazzes up. No 2 people are going to experience the same thing in the same way. I don't know them personally, but I trusted what Jason said about himself. You're welcome for the conversation. Sometimes this is the only support we receive! ❤️
My husband passed away 6 years ago with Dementia. He was diagnosed with Picks. I donated his brain to the brain research center in Jacksonville, Fl. They sent me a full report. He had no Picks. It was Lewey Body Disease. I totally feel your pain. You are handling this journey so well. I would love to speak with you. PM and I will send you my number. I am praying for you.❤
My heart feels so much pain for you guys. What a gracious gift and selfless gift to share such a private time with others who are going through the same thing. *The steps of a man are established by the Lord, And He delights in his way. When he falls, he will not be hurled down, Because the Lord is the One Who holds his hand.* Psalm 37: 23-24
Loved this video. As a daughter (almost 60) who lost her daddy 2 years ago this month, I see the love your daughters have for their daddy. As a daughter-in-law whose wonderful mother-in-law is going through dementia, it is so heartbreaking to see the changes. God bless you and your family.
This is the first time I watched your channel. I saw the title and I wasn’t sure if I could watch it as my mom passed away almost two years ago and she suffered from Alzheimer’s. But I thought maybe it would be good to see what someone else was going through. I’m glad I watched and I thank you for being so real with everything. Fortunately, my mom wasn’t at the stage where her behavior changed dramatically. And she could still recognize her family. But I did learn to treasure the moments because that was all I had. She had lost her short term memory but yet she could still play cards. I can relate to the part about grieving along the way. I did feel like I was losing my mom a little more each day. It’s great that you have such a good support system. Prayers for you and your family.
Thank you for sharing your journey (or part of it) on TH-cam. I am 39. My partner was diagnosed with Parkinson’s 12 yrs ago. 2mths before our second daughter was born. He seems to be in the earlier stages of PD dementia. 😞 A LOT of what you describe in your videos is why we experience here. It’s brutal. I hear you!!!
Ooof! This was difficult to watch at times. Like others I found myself crying almost immediately. Thank you for sharing your precious family and friends with the rest of us. You’re such a strong person and you do so much for your family. God bless you all and I pray that you continue to find the strength to handle whatever comes your way. Sending you a warm hug!
What a gift to those who hear you Jason, Leslie, Jason’s Mother, daughters, &. friends. This is the 2nd time watching . Each of you are very brave to share your heart. Jason your the Bravest of all. You are the definition of Love suffers for others in a humbleness of surrender. Wow. You each have your own path as all of us do. Yet are sharing with the world your long goodbye until you all meet again. My heart salutes you all humbly I do 💞😘💞❣️❣️❣️❣️❣️❣️❣️🇺🇸Christ Jesus Bless & Keep you Each under the Shadow of our God’s wings and comforted by The Holy Spirit! Love all your dear & your tears are jewels from your heart & your smiles make my heart sparkle. A hug to each of you.. In Christ Jesus you will never walk alone~~~🎶🎶
This is so special to have for the family to have specially with his mom. Just be there for each other is the best thing to do. I use to be a CNA in a nursing home and my husband aunt I was able to help with her just be there have dinner with her or take her out to dinner I so miss doing that with her and going to goodwill that was so much fun to find good deals with her
It was so good to see all of these sweet faces that love you, Leslie and Jason, because I pray for each one of them every day for strength in the inner man and a special anointing for the task at hand❤️❤️❤️
It’s called Sundowners, the neighbor lady Sharon mentioned him going into his “daze”… it happens when it starts to get dark. My mom had it, and my husband has it. Personality will change as well. Yes we will see the loss of who we knew most of the time, but gain a new love one. It’s sad watching them decline. I think fear makes people treat them different. Fear it could happen to them too. Wow my mother in law doesn’t acknowledged her sons Dementia. I don’t end know his sister and her family know he has it? I have no support network, your blessed to have this. Awesome doing this video.
I remember watching this and it made me cry again. My heart goes out to the whole family. It is such a hard disease to watch our family members change. I had a stroke and have cerebral vascular disease and was told that I may have early dementia and was suppose to go back for more testing but it scared me and I have not been back yet but know that I will have to. not keep putting it off. I can tell that I am quitter and my moods do go up and down but nobody but my husband knows the different me. Praying for all involved.🙏🙏
This family is so compelling and authentic, I think all of them are courageous and they’re showing they’re love by embracing and processing their emotions. Further they are helping a lot of other family’s. Leslie and Jason are one of many.
Our granddaughter was a newborn when my husband got a near fatal viral brain injury. Two years ago he was diagnosed with mixed dementia.Our daughter says that the thing that makes her the saddest is her daughter will never know her granddad as the remarkable person he used to be. This is a devastating disease no matter what kind of dementia it ends up being. And it takes down whole families with its progression. It truly is the long goodbye.
Your sister is delightful and also your oldest daughter (I commented on your youngest daughter in a previous post so I won’t mention her here), but they’re all lovely. What a wonderful support system you have.❤
What a beautiful family🥰 I’m so sorry you are having to contend with this. Poor Jason is such a clever, precious human and is so lucky to have you all (and vice versa). Dementia truly is such an evil disease, but you are so blessed to have been gifted the appreciation you have for one another. Praying there is one day a cure or treatment. Much love xoxox
Excellent excellent idea. You two inspire me this ravaging disease is a truly horrific thief of your entire life. The patient caregiver family members everyone I know you know my story of my strong independent intelligent beautiful sassy Aunt who’s sadly at now late 7 bed bound limited vocabulary April it stole her limited mobility and now she’s unable to feed herself due to myoclonic jerks in and out of reality I know Jason’s you say around stage 5. Cherish every conversation trips experiences you can still have and this series will be treasured by not only us but to you as well I am so sorry that this disease has struck your family. I’m so glad to see just as my family yes you see the changes even they don’t and you surround him with love and safety ❤
I’ve been through this with family members and worked at a nursing home also. We always said the worst part about this disease is you really grieve twice. Because you lose them once to the disease and then the final time! Praying for y’all.
Losing loved ones bit by bit to any long-term disease has a process called anticipatory grief. When the final passage happens, many people feel guilty because they almost feel a sense of relief that the suffering is over. They have grieved piece by piece over time.
Oh my gosh I enjoyed the interviews so much about Jason it makes us know him a little better but I promise you I kept the Kleenex in my hand it was a tear jerker.
Hi Leslie! God bless you all. Please include the date your videos were originally published. I know you are bringing them over from your other channel, so it looks like they're newly published with Jason's current condition when they were recorded some time ago. Thank you.
This was a beautiful video. I cried along with you guys! Yes, the " long goodbye"! Leslie you have a beautiful family. Thank you for sharing your journey with Jason! Sending hugs and love!❤❤ Also Jason's mom is so nice. Leslie you are blessed to have such a nice mother in law who I can tell loves you so much!!
You have such beautiful daughters in every way. Your friends and family are blessings. I can't even imagine going through this. I appreciate the video and everyone's honesty. It's just so heartbreaking.
I lost my dad to dementia and I’m grateful for one thing…. I got to say goodbye to him and tell him how much I love him. The thing is…..you loose them twice..
Losing loved ones bit by bit to any long-term disease has a process called anticipatory grief. When the final passage happens, many people feel guilty because they almost feel a sense of relief that the suffering is over. They have grieved piece by piece over time.
I think it’s important to understand brain physiology here. Impulse control suffers after brain injury. That’s where the instant anger comes from, lack of impulse control. Whatever he thinks he says. 🤷🏼♀️
Thanks for the real deal talk. We are also going through this with my dad , the family is very much torn apart. Im so glad to see the strong bond you have.
You are all So Blessed to have such wonderful beautiful memories 😊 …. Also that you have one another to lean On ❤😇 I do understand that there is a lot of sadness because you have so much to say Good- bye too 😢But it’s Still such a blessing 😇 Because there’s So much Love 💗. God Bless you all ✝️ thank you so much for sharing. My mother had Dementia , so I understand the sadness of the original personality of the loved one evaporating!!
Thank you for being open on your journey. My mom had dementia i wish I had the support system that you are blessed with Lesley. My prayers are with your family. ❤
I loved this so much Leslie. Your children are wonderful it’s heartbreaking to see them watch their Daddy change so much. Leslie you are incredible for the caring you give you must also be heartbroken in seeing the Jason you know change so much and need so much caring to keep him safe. I send you so much love. I pray this journey gets easier for you. Love and light to you and your family. Xx❤️❤️❤️❤️🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
There is a term for the type of grief you are all experiencing. It is known as ambiguous or frozen grief. And it is certainly real,but it comes with many unknowns and uncertain resolutions. Hang in there.
This one makes me cry every time. God bless you all.❤ I lost my dad to dementia as well. It was the same for me. Like you, I lost him over time before he actually passed away. It hurt the whole time and also hurt once he was gone. It was also a relief to not have my mom so worn from being his caregiver. ❤ Even though it was mentally and physically rough, she misses him every day. Hugs to you all as you grieve now and in the future. ❤
Losing loved ones bit by bit to any long-term disease has a process called anticipatory grief. When the final passage happens, many people feel guilty because they almost feel a sense of relief that the suffering is over. They have grieved piece by piece over time.
The roles are reversed for you all. I know when my dad had dementia it was so hard because I loved him so much and it hurt to see that our relationship was changing and I wanted to just hug him and love on him.
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You're daughters are so kind and caring.
I cried when your daughters & u said u are already grieving losses. I can’t relate to husband with dementia which is so hard but I grieve loss of mom. She will be 90 soon. A few years ago I asked her to pray for me because i was having surgery. Her ability to speak was minimal but God gave me the gift of hearing mom speak the most beautiful clearly articulated prayer over me. Thank you for sharing this video. ❤️🇨🇦✝️
What a great interview. Jason's mom hit the nail. What a team.
A special thanks to all the people in this video. I know it was hard but it's very helpful. Blessings.
That's almost exactly what I wrote in my comment too. ❤
O Lesley this was so special. I’m crying with you all. Thank God for your special family and friends to support both you and Jason. ❤
Don’t apologize for your tears. They’re real. You’re real. He’s real. The love between all of you will always be real. He may lose that. You won’t. Treasure that. And know that, when he could, he treasured that. You all gave him that, just as he gave it to you.
My dearest Lesley. I think you are an incredibly strong amazing woman. The fact that you are letting us into your world as you go through this difficult time is amazing. You’re doing so much for others that are also going through this and think that you’re so fortunate to have the amazing family and friends around you. I can’t imagine being in your shoes and I won’t try. If I lived near you I’d be there to help you with whatever I could. You seem to be very genuine people and I wish you all the best and love as you continue this difficult journey. You’re truly special.
I’m living this nightmare with my husband. He has Parkinsons disease and dementia. I can never decide which is worse-the days I can’t remember what he was like before, or the days when I can. Both bring sadness and tears. It’s a difficult, lonely life for all of us. I love watching your videos and hate it at the same time. As a caregiver, I’m sure you know exactly what I mean. Wishing you and Jason all the best.
Hugs❤
Thank you so much for your journey. My sister was diagnosed with FTD in her early 50’s.. She passed in March. I watched her die for 11 yrs. I had my healthy sister and memories of our lives. Then for the last 10 yrs I helped take care of my sick sister. When my sister passed, it was quite a relief, and I was praying for God to please take her. I was holding her hand when the stopped breathing. She had no pulse and I called for the nurse. I had dreaded that day for 10 yrs. However, it was such a relief for me to know she was well, healed, could walk and talk again. I thank God for all of our days together. It is the saddest disease in the world. The family suffers every day. My sister seemed happy most of the time. I could fix her hair, massage her feet and legs, paint her nails, etc. I have missed spending time with her, but I am thankful our suffering and dread is over. God bless your family and know--You are not alone and The sadness is easier for you when your loved one , doesn’t have a clue. You will not have to worry about him being upset. She spent her last year in a nursing home, close to me. We got her up, bathed and dressed EVERY day. I purchased her a gereactric chair, which was a blessing. I could stroll her all over the grounds, the patio and nursing home. ,Everyone loved her and she was comfortable all day, with pillows around her. She was only in bed l week, before the Lord took her home. She just would not eat or drink a thing. I just forced a small amount of ice cream in her, 3 days before she passed. I still cry. I’ve been crying 10 yrs. I thank God for taking her home . She is with our family now and Jesus. God bless you and keep up the encouraging work for others. 🙏🙏🙏🙏🙏🙏💕💕💕💕💕ps I wish I could write a book about our journey. She was like Jason, smart, Rn with bsn, , married to physician, very comfortable, great life. It does not make sense to me. I am 5 yrs older. One day, we will all be together in n heaven.
😢😢My condolences to your family. I could feel your love for your sister. I am dealing with something similar with my sister....memory loss, although we hv no diagnosis yet. But she is not remembering things we just talked about a few days ago and years of her life. 🙏🙏 Will find out soon what is really going on.
What a joy to know the time on this life IS temporal and there IS Life without tears to come through Jesus Who overcame death, hell, & the grave!
Holy smokes. I cried so hard watching this video. Leslie, you are an amazing human. I feel so bad for Jason, as well. It must be H*** as a wife to watch him decline and no longer be the person you’ve know, love, and raised a family with. 😢
Wow! Sister has ur back. What a blessing
Im so so sorry the journey you have.. It breaks my heart as I understand, my dear husband had Parkinson Disease for half of my married life. I watched him die for 20 years and its so hard loosing the love of your life but theyare still here. Its 3 years since the angels carried him home, and I grieve for the man I married. I couldn't have walked my journey without Jesus ...Thank you for bringing this caregivers awareness....Prayers from the Shenandoah Valley in Va.
I just want to come and wrap my arms around everyone of you! This video is going to help so many families and caregivers of others with dementia and I thank you.. Jason's "show timing" is sooo sharp and right on. I'm happy you all know Jesus and know Jason will be whole again one day and that's something no one can take away from you. Prayers!
I relate to so much of this. My Dad just passed away from Alzheimer’s earlier this year. Dementia is hard for all involved. Take care of yourself Leslie and take all the help you can get. Hugs!
This is so hard to watch and incredibly insightful. I think you are an amazing family.
I helped my Dad care for my Mom for several years after a stroke caused dementsia and many other things. My Dad was a hero in everything he did and no one could know how hard it was. Since we started losing Mom I have prayed everyday for caregivers. You and your team are inspirational. The long goodbye is so hard but my Dad always said it wasn't about being strong, you just do have you have to do.
Thank you all for sharing.
my mom was just diagnosed with dementia also. I live in Michigan and she is in California. I understand how your daughter feels. Not being able to be there to help. I feel this guilt from the time I wake up to the time I go to bed. I am praying for you.
My support system is my daughter, son, and my friend at church. You should create a family album of all your trips. Memories are sweet.
When your daughter said she feels she's already lost her dad, wow...that really resonated with me. I said those same exact words to people about my mom. My mom was 94 and thank our gracious God, she only lived with it about 6-9 months before she passed away. I could not have imagined going through it with someone younger, especially my husband. Thank you for sharing all that you do with us. May you and your family find comfort and strength to carry on during this time. I hope everyone keeps all of you in their prayers.
What a beautiful, articulate young woman your daughter is. You should be very proud of the woman you have raised.❤ my husband passed away in 2014 and I know my kids really miss their dad. Cherish the times you have with him.❤
It’s hard enough to lose your precious Dad and losing him by inches is unbearable. My heart felt sympathy and empathy. I lost my Mother slowly to mini strokes. My brilliant Father went quickly but that hurt too. I wish you peace.
His daughter brought me to tears, talking about her children not to know him how she knew him.😥
The narrative you all are providing is invaluable for families going through this. God bless you all and give you continued strength in dealing with such an incredibly difficult condition.🙏🙏🙏
Thank you Jason and Leslie for repurposing this video. I’m sure you have newcomers that could really use it or find comfort in hearing perspectives from others in your close circle. I watched it again and am saddened that this disease is robbing Jason of his memory … my prayers for a miracle… you never know.
This hits at home with me.I lost my husband to dementia in October 2020. It is the very hardest thing to go through.God bless you all!❤️❤️❤️
Su marido luce muy bien, me alegró verlo tan bien ❤️
It is a blessing to hear your love for our Lord. I spent about 4 yrs taking care of issues for my parents (both had dementia). They had repeatedly told me that they did not want to live with their children--I am one of three. So, I got them into an assisted living facility and in less than a year they ended up in memory care at the same facility. I was a nurse and had experience with the elderly, but managing someone for a 12 hr shift and caring for a loved one 24/7 is totally different. I was exhausted from the mental drain. Once Mom was sent to the ER after a fall, so I headed to the hospital. In the ER she was agitated and scared because she did not understand what was happening. On the drive home, she asked me where she lived. The fear and confusion on her face was heartbreaking. I asked her again if she wanted to live with me and she said 'No'. The minute I pulled into the driveway of the facility the confusion left her and she said "This is where I live" and she recognized the Nurse Tech who came to get her. We were fortunate enough to get her placed there early enough that her brain accepted and recognized where her final earthly home was. I made it my goal to make them laugh at least once every time I was with them. You laugh probably brings joy to Jason, so hold on to those funny times. One blessing of dementia is that you can tell him the same story repeatedly and they will think it just as funny as the first time, hopefully. And when it comes to taking care of yourself it sounds like you are doing the best that you can.
Lesley and family, I viewed this when it came out originally, but it’s such a wonderful video I wanted to see it again.
Your whole family is just beautiful inside and out! They gave such a sweet and funny picture of Jason throughout his life!
Your oldest daughter looks so much like Jason and her grandmom! Jason looks so much like his mom! And Kelsey is your mini-me Lesley!
Y’all have the sweetest family and we are all praying for you and also wish for a cure or a miracle for Jason!
God bless!
Very fun video!
You are doing a wonderful job holding everything together and it’s wonderful you have such a good support system. Both of my parents had Alzheimer’s and died from complications from dementia. Mom also had Lewy Body dementia. Having a loved one with dementia is a very difficult experience for many reasons, the worse is having to watch them slowly ‘leave’ us. Bless you and your family and, most of all, Jason.
I went through this with my husband's dad. He started out young as well...early 60s. Last 11 yrs. Slow progression then gradually increased.
This was beautiful...thank you for doing this!
Praying for ALL of you ❤
This was such a special video Lesley. Thank you to you and the family and neighbors for doing it.
Hi guys, so my mom was never diagnosed but she definitely has dementia. I would say she’s had it for about 3 years now. She just moved into a nursing home in April and it’s been so hard for me because I was the closest to her and I was the one who brought her to her doctors appointments and helped her out with whatever she needed. I live about 5 minutes away. Anyways I can totally relate to what your daughter said about the grieving right now. I feel like I’ve been grieving, I’m actually pretty sad and depressed. I don’t have the support you do. I mean I talk to my husband but he works a lot. But I remember about 4 years ago after I brought her for her surgery, she had lung cancer. I stopped at McDonald’s to get something to eat and I parked the car and I cried so hard. That was so hard and than a year later she got throat cancer and had to get chemo and radiation. That’s when her memory started to slowly decline. But I think your both doing a great job and you have a wonderful family. That’s very important, believe me it makes a difference.
I am so grateful to all of you for sharing your story here. I hope that I all the love and compassion returns to you and fills your souls.
This has me in tears. I lost my beautiful mother in law a month ago to dementia. It makes me so happy to see the wonderful network of family and friends supporting you both. God Bless ❤
My husband had a stroke 7yearsago that left him partially paralyzed and with almost no speech. It’s been hard but he handled everything with such grace and worked to make everyone else comfortable. The past year he has started exhibiting signs of dementia. It is progressing rapidly. This is the hard work. Thank you helping” normalize “ his behaviors and my reactions. You really are helping me trudge thru this hard uphill climb. You are making a big impact on so many of us! Thank you! Sending you all lots of love.💜
Thank you to everyone who participated in this video. I appreciate your input, every single person. God bless you all in Jesus Name. I'm so happy you all know Jesus, so when we all get to The Kingdom of God, I can hug your necks.
I remember I grieved the loss of my mom 8 years before she died. Dementia is a soul sucking & cruel disease. Sending you all so much love & healing light❤ Edit- you & your daughters are so brave & strong. My heart just breaks for you all. You are all most definitely grieving & the grieving process can be overwhelming & I am so very sorry you are going through so much. I watched my father die from cancer at age 61 & my mom from dementia, thankfully we had her until she was 83. I understand & can empathize with you how it feels to grieve someone who is still here. ❤ xoxo
I would love to be in your king family. Your daughters, sister, neighbors, mother-in-law are all such loving and kind individuals. This. A wonderful video for Jason to listen to, as well as others with Jason’s disease and other family members because it gives everyone watching great insight as to what they could go through and also to know just how important a true support system is supposed to work.
Thankfully, Leslie, is a loving person and keeps good relations with friends and relatives. She is a trained caregiver , but she knew how to turn that around to ask for help when she needs it. It’s a lot to balance and I can see where Jason could get frustrated and maybe get mean at times, as Leslie has previously stated, but let’s hope for how his huge heart full of love will shine most of the days ahead🫶🏼
You’ve been through so much as a family. What a beautiful family…it’s just heartbreaking that Jason has this terrible disease! I can’t stop crying- I pray for you all continually. I wish I could give Jason a big hug - I can’t imagine how frustrated sweet Jason must feel. ❤❤🙏🙏
Jason has to be scared too? My heart goes out to both of you!
I think he's more "unaware" unless Leslie points it out. The previous video or 2 previous, he talked about it.
@@joyful_tanya Thanks for the conversation. I think he gets frustrated because as a man he needs to be strong but he knows...my cousin knew. Jason’s training keeps him from opening up...In my opinion.
@@havecourageandbekind9605 I don't know but he has said several times "I had no idea even when you pointed it out". Every patient is different even though they may have the same diagnosis. Just like 1 person takes Benadryl and it puts them to sleep, another person it jazzes up. No 2 people are going to experience the same thing in the same way.
I don't know them personally, but I trusted what Jason said about himself.
You're welcome for the conversation. Sometimes this is the only support we receive! ❤️
Absolutely heartbreaking.. crying watching this. I pray for your family 🙏🏼
My husband passed away 6 years ago with Dementia. He was diagnosed with Picks. I donated his brain to the brain research center in Jacksonville, Fl. They sent me a full report. He had no Picks. It was Lewey Body Disease. I totally feel your pain. You are handling this journey so well. I would love to speak with you. PM and I will send you my number. I am praying for you.❤
Don’t be concerned about crying. God gave us tears to help wash away the hurt you’re just showing more love for your dad and mom.
This video was priceless.
The longest goodbye…. I was crying my eyes out. 💔
My heart feels so much pain for you guys. What a gracious gift and selfless gift to share such a private time with others who are going through the same thing.
*The steps of a man are established by the Lord,
And He delights in his way.
When he falls, he will not be hurled down,
Because the Lord is the One Who holds his hand.* Psalm 37: 23-24
This is so lovely. 🙏
Loved this video. As a daughter (almost 60) who lost her daddy 2 years ago this month, I see the love your daughters have for their daddy. As a daughter-in-law whose wonderful mother-in-law is going through dementia, it is so heartbreaking to see the changes. God bless you and your family.
This is the first time I watched your channel. I saw the title and I wasn’t sure if I could watch it as my mom passed away almost two years ago and she suffered from Alzheimer’s. But I thought maybe it would be good to see what someone else was going through. I’m glad I watched and I thank you for being so real with everything. Fortunately, my mom wasn’t at the stage where her behavior changed dramatically. And she could still recognize her family. But I did learn to treasure the moments because that was all I had. She had lost her short term memory but yet she could still play cards. I can relate to the part about grieving along the way. I did feel like I was losing my mom a little more each day. It’s great that you have such a good support system. Prayers for you and your family.
This was such a sweet thing to do. Even though there will be many challenges, it was like an early Celebration of life.
What a moving video! I hope this helps others to see your family’s pain and what joy you can still have. God bless to all of you.
This is a great video. You have a great support system of family and friends. God Bless.
Thank You all for this video. You are helping so many people with this. ❤️🇳🇴
Thank you for sharing your journey (or part of it) on TH-cam. I am 39. My partner was diagnosed with Parkinson’s 12 yrs ago. 2mths before our second daughter was born. He seems to be in the earlier stages of PD dementia. 😞 A LOT of what you describe in your videos is why we experience here. It’s brutal. I hear you!!!
This was such a beautiful perspective. God bless you all🙏🏻
Ooof! This was difficult to watch at times. Like others I found myself crying almost immediately. Thank you for sharing your precious family and friends with the rest of us. You’re such a strong person and you do so much for your family. God bless you all and I pray that you continue to find the strength to handle whatever comes your way. Sending you a warm hug!
Excellent video. Thank you.
What a gift to those who hear you Jason, Leslie, Jason’s Mother, daughters, &. friends.
This is the 2nd time watching . Each of you are very brave to share your heart. Jason your the Bravest of all. You are the definition of Love suffers for others in a humbleness of surrender. Wow. You each have your own path as all of us do. Yet are sharing with the world your long goodbye until you all meet again. My heart salutes you all humbly I do 💞😘💞❣️❣️❣️❣️❣️❣️❣️🇺🇸Christ Jesus Bless & Keep you Each under the Shadow of our God’s wings and comforted by The Holy Spirit!
Love all your dear & your tears are jewels from your heart & your smiles make my heart sparkle. A hug to each of you..
In Christ Jesus you will never walk alone~~~🎶🎶
Very nice video. I hope Jason is able to see or hear all these wonderful stories!
This is so special to have for the family to have specially with his mom. Just be there for each other is the best thing to do. I use to be a CNA in a nursing home and my husband aunt I was able to help with her just be there have dinner with her or take her out to dinner I so miss doing that with her and going to goodwill that was so much fun to find good deals with her
It was so good to see all of these sweet faces that love you, Leslie and Jason, because I pray for each one of them every day for strength in the inner man and a special anointing for the task at hand❤️❤️❤️
It’s called Sundowners, the neighbor lady Sharon mentioned him going into his “daze”… it happens when it starts to get dark. My mom had it, and my husband has it. Personality will change as well.
Yes we will see the loss of who we knew most of the time, but gain a new love one. It’s sad watching them decline.
I think fear makes people treat them different. Fear it could happen to them too.
Wow my mother in law doesn’t acknowledged her sons Dementia. I don’t end know his sister and her family know he has it? I have no support network, your blessed to have this.
Awesome doing this video.
Yes, the person we knew and loved is gone but yet is still here, they are not who they were. I would worry so much.
What great girls! They had me in tears
I remember watching this and it made me cry again. My heart goes out to the whole family. It is such a hard disease to watch our family members change. I had a stroke and have cerebral vascular disease and was told that I may have early dementia and was suppose to go back for more testing but it scared me and I have not been back yet but know that I will have to. not keep putting it off. I can tell that I am quitter and my moods do go up and down but nobody but my husband knows the different me. Praying for all involved.🙏🙏
This family is so compelling and authentic, I think all of them are courageous and they’re showing they’re love by embracing and processing their emotions. Further they are helping a lot of other family’s. Leslie and Jason are one of many.
Our granddaughter was a newborn when my husband got a near fatal viral brain injury. Two years ago he was diagnosed with mixed dementia.Our daughter says that the thing that makes her the saddest is her daughter will never know her granddad as the remarkable person he used to be. This is a devastating disease no matter what kind of dementia it ends up being. And it takes down whole families with its progression. It truly is the long goodbye.
Your sister is delightful and also your oldest daughter (I commented on your youngest daughter in a previous post so I won’t mention her here), but they’re all lovely. What a wonderful support system you have.❤
What a beautiful family🥰 I’m so sorry you are having to contend with this. Poor Jason is such a clever, precious human and is so lucky to have you all (and vice versa). Dementia truly is such an evil disease, but you are so blessed to have been gifted the appreciation you have for one another. Praying there is one day a cure or treatment. Much love xoxox
I laughed and cried with you all. Love & hugs dear family of Jason.
Excellent excellent idea. You two inspire me this ravaging disease is a truly horrific thief of your entire life. The patient caregiver family members everyone I know you know my story of my strong independent intelligent beautiful sassy Aunt who’s sadly at now late 7 bed bound limited vocabulary April it stole her limited mobility and now she’s unable to feed herself due to myoclonic jerks in and out of reality I know Jason’s you say around stage 5. Cherish every conversation trips experiences you can still have and this series will be treasured by not only us but to you as well I am so sorry that this disease has struck your family. I’m so glad to see just as my family yes you see the changes even they don’t and you surround him with love and safety ❤
Much admiration for your willingness to share. Jason’s perspective is huge! Very vulnerable. ❤
Wonderful & helpful interview. Thank you so much for sharing this very intimate conversation ❤. Blessings to you all!
Thank you Jason and Leslie. Real life is hard with the loss of skills.
This is so very good. Thank your family and friends for their perspective.
Thank you for all this sharing you do, what a special family for how you all love Jason so much.❤❤❤❤❤❤❤
I’ve been through this with family members and worked at a nursing home also. We always said the worst part about this disease is you really grieve twice. Because you lose them once to the disease and then the final time! Praying for y’all.
Losing loved ones bit by bit to any long-term disease has a process called anticipatory grief. When the final passage happens, many people feel guilty because they almost feel a sense of relief that the suffering is over. They have grieved piece by piece over time.
You have the sweetest family and friends. I feel like I have seen this video before, but I cried and laughed at the sweet memories.
Oh my gosh I enjoyed the interviews so much about Jason it makes us know him a little better but I promise you I kept the Kleenex in my hand it was a tear jerker.
Just starting this post but was so glad you took the trip. It may have given Jason a little feeling of independence for short periods.
Once again you demonstrate your spirit of courage. I'm so glad that Leslie has such a wonderful support around her.
Hi Leslie! God bless you all. Please include the date your videos were originally published. I know you are bringing them over from your other channel, so it looks like they're newly published with Jason's current condition when they were recorded some time ago. Thank you.
I agree… keep thinking the newest one uploaded is current . I am looking for how they are all doing now.
Dates are always in the description box of each video! Thank you!
I am so sorry u r all going through this ❤ my prayers are with you
This was a beautiful video. I cried along with you guys! Yes, the " long goodbye"! Leslie you have a beautiful family. Thank you for sharing your journey with Jason! Sending hugs and love!❤❤ Also Jason's mom is so nice. Leslie you are blessed to have such a nice mother in law who I can tell loves you so much!!
You have such beautiful daughters in every way. Your friends and family are blessings. I can't even imagine going through this. I appreciate the video and everyone's honesty. It's just so heartbreaking.
I lost my dad to dementia and I’m grateful for one thing…. I got to say goodbye to him and tell him how much I love him. The thing is…..you loose them twice..
Losing loved ones bit by bit to any long-term disease has a process called anticipatory grief. When the final passage happens, many people feel guilty because they almost feel a sense of relief that the suffering is over. They have grieved piece by piece over time.
I think it’s important to understand brain physiology here.
Impulse control suffers after brain injury. That’s where the instant anger comes from, lack of impulse control. Whatever he thinks he says. 🤷🏼♀️
Thanks for the real deal talk. We are also going through this with my dad , the family is very much torn apart. Im so glad to see the strong bond you have.
You have an amazing tribe and it's wonderful to feel that care and love. So si many don't have anything close to this.
You are all So Blessed to have such wonderful beautiful memories 😊 …. Also that you have one another to lean On ❤😇 I do understand that there is a lot of sadness because you have so much to say Good- bye too 😢But it’s Still such a blessing 😇 Because there’s So much Love 💗. God Bless you all ✝️ thank you so much for sharing. My mother had Dementia , so I understand the sadness of the original personality of the loved one evaporating!!
Thank you for sharing your life with us. Both you and Jason are such sweet souls. Prayers, comfort, and love to you both.
Thank you for being open on your journey. My mom had dementia i wish I had the support system that you are blessed with Lesley. My prayers are with your family. ❤
late afternoon and evening daze is called sundowning. My mom is doing this now
I loved this so much Leslie. Your children are wonderful it’s heartbreaking to see them watch their Daddy change so much. Leslie you are incredible for the caring you give you must also be heartbroken in seeing the Jason you know change so much and need so much caring to keep him safe. I send you so much love. I pray this journey gets easier for you. Love and light to you and your family. Xx❤️❤️❤️❤️🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
There is a term for the type of grief you are all experiencing. It is known as ambiguous or frozen grief. And it is certainly real,but it comes with many unknowns and uncertain resolutions. Hang in there.
This one makes me cry every time. God bless you all.❤ I lost my dad to dementia as well. It was the same for me. Like you, I lost him over time before he actually passed away. It hurt the whole time and also hurt once he was gone. It was also a relief to not have my mom so worn from being his caregiver. ❤ Even though it was mentally and physically rough, she misses him every day. Hugs to you all as you grieve now and in the future. ❤
Losing loved ones bit by bit to any long-term disease has a process called anticipatory grief. When the final passage happens, many people feel guilty because they almost feel a sense of relief that the suffering is over. They have grieved piece by piece over time.
The roles are reversed for you all. I know when my dad had dementia it was so hard because I loved him so much and it hurt to see that our relationship was changing and I wanted to just hug him and love on him.
Love this! Hugs to all of you!
Love your family
Thank you