My GBM (Glioblastoma) Diagnosis

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  • เผยแพร่เมื่อ 7 พ.ย. 2024

ความคิดเห็น • 96

  • @angiepomeroy2899
    @angiepomeroy2899 5 ปีที่แล้ว +69

    You are a true inspiration to us all, William! I couldn't be prouder as your Mom. Keep the videos coming!

  • @flyingbrodie
    @flyingbrodie 2 ปีที่แล้ว +18

    I've been diagnosed with GBM as well. I am devastated because I am a pilot. Currently undergoing chemo-radiation. There are doubts on whether I will be able to fly again.
    Doctor says he got everything removed and as long as there's no recurrence, I am cleared to fly. We just have to monitor with regular MRIs.
    We can fight through this! You are an inspiration!

    • @TheShapeGameGBM
      @TheShapeGameGBM  2 ปีที่แล้ว +1

      Thank you so much!! You've got this too. I'm sure you'll be flying for years to come! 🥰

    • @angiemarcou6616
      @angiemarcou6616 ปีที่แล้ว +2

      Thankyou my husband is going through this right now 🙏

    • @alierem4266
      @alierem4266 ปีที่แล้ว +2

      Dear pilot.
      Would b great to hear from you, 1 yr on.
      This is great news, although no knowing how yr Drs are in tune with your capability in balance coordination, thinking and memory which are critical set of refined skills are most relevant for your work.
      Do let followers know how you are flying through yr treatment.

    • @flyingbrodie
      @flyingbrodie ปีที่แล้ว +5

      @@alierem4266 I'm back to flying, which I love. Everything seems intact. No deficits in memory or skills whatsoever, thank God.
      The aviation body in my country moved my medical from 1 year to 6 months, but I get to keep my Class 1. They're also being cautious. However, I'm happy now doing what I love the most.
      Keep on keeping on! Don't think about the diagnosis. Just move forward with your life. Cheers!

    • @alierem4266
      @alierem4266 ปีที่แล้ว +1

      Just to say, great to hear this.
      You are God's one of chosen few, in the service of ppl, your passengers. Keep flying sir, gd luck in full and permanent recovery.

  • @sarahsvibody
    @sarahsvibody 4 ปีที่แล้ว +17

    My mom was just diagnosed on July 20th 2020 with glioblastoma multiforme grade 4. She never had any headaches and none of us noticed any slurred speech. The only symptoms she had at the time was increasing numbness on her right side. Her case is not operable. But she is going to do chemotherapy and radiation five times a week for three weeks. We are praying for strength for her as well as all of us who love her so much and can't bear to lose her. Our family is truly devastated at this time and could really use some positivity. Sense then (3w ago) she has had many other symptoms. Incontinence, memory loss, slurred speech, fatigue, sleeplessness, balance problems, decreased ability to hear and see on her right side as well. We are hoping they can fit her for a radiation mask quickly and get treatment started as fast as possible. I don't know if any of these symptoms are reversible or not. I don't think at this point she or anyone else would care as long as she gets to stay with us longer. This is been so terrifying as she had no other symptoms before the grade 4 diagnosis. We are praying for miracles. Praying for you as well.

  • @nancybeveridgetaylor3256
    @nancybeveridgetaylor3256 5 ปีที่แล้ว +16

    oh, retired nurse here, I just want to give you a hug. No fancy words, just empathy for your pain and nausea. I hate being in hospital too! MD Anderson is a Great medical institution! ❤

    • @TheShapeGameGBM
      @TheShapeGameGBM  5 ปีที่แล้ว +2

      Even hospital visits are getting annoying haha. I wouldn't mind them if they weren't so unpredictable! Some visits are so quick and I get in on time. Then they're of course the fun ones that have me waiting in the waiting room for an hour or so.

  • @juniperhoward6078
    @juniperhoward6078 4 ปีที่แล้ว +6

    Thank you for sharing your journey with GBM. My husband had a seizure on his right leg for the first time last Sunday. He was rushed to the hospital then he was diagnosed with GBM. He just had yesterday. We are praying and hoping that we will beat this.🙏🙏🙏

  • @jimmcfaun5492
    @jimmcfaun5492 4 ปีที่แล้ว +13

    Hello William. I stumbled upon your channel after it was recommended to me by TH-cam. I have glioblastoma as well. Your upbeat attitude and sense of humor are great and I'm sure you've found that both qualities make a big difference in your battle against this disease. I wish you the best of luck.
    In April of 2020 I'll reach the three year anniversary of the discovery of my tumor. I've since had two recurrences and three brain surgeries in total. I'm still kicking and with your positive attitude I'm sure you'll be around for a long time. It is awesome that you are committed to helping others with this disease. Keep it up and my thoughts are with you. Now to watch some more of your videos.

  • @brianbiggs688
    @brianbiggs688 4 ปีที่แล้ว +8

    From a GBM patient to another - thank you for sharing!

  • @gregt7839
    @gregt7839 5 ปีที่แล้ว +8

    Thank you for sharing your story! My brother leaves for md Anderson tomorrow to get his second opinion. His glioblastoma was removed two weeks ago in Colorado. He is amazingly positive and optimistic just like you. Keep it up!

    • @TheShapeGameGBM
      @TheShapeGameGBM  5 ปีที่แล้ว +2

      I hope the visit went well, and I am glad to hear he is staying positive! It really helps and makes it all easier. Easier said than done I know. But he's got this! And so do you. :)

  • @zupermann123
    @zupermann123 5 ปีที่แล้ว +7

    Thank you for this video brother. Im fighting the same battle at 25 years old. Keep strong and never give up hope!

    • @marymurphy919
      @marymurphy919 5 ปีที่แล้ว

      Marcus see my comment above. If I can help you or send you information let me know. There is help.

    • @adamhussain426
      @adamhussain426 3 ปีที่แล้ว

      Hello I had brain surgery I m physically good but not mentally can patients recover mently from brain surgery please reply me thank you.

  • @kathygawley4647
    @kathygawley4647 5 ปีที่แล้ว +6

    Thank you for your honest and amazing video on GBM. I am going to follow your progress because your diagnosis is just a couple of months before my daughter's diagnosis of Anaplastic Astrocytoma, which is Grade III. She did not have headaches, or seizures, but has episodes where she was a loss for words. You are an amazing presenter and I'll look forward to hearing more. Hugs to your Mom!

  • @achiquitachaser
    @achiquitachaser 5 ปีที่แล้ว +7

    William thank you for sharing your journey. And very glad to hear your kicking cancers ass! Please keep your story coming

  • @scottswineford5527
    @scottswineford5527 2 ปีที่แล้ว +3

    Hi William My name is Scott. I stumbled upon your video just to share a little bit about me I lost my mother 11 years this coming Halloween morning to Glioblastoma. She fought for 5.5 years. My mom was originally diagnosed with a sinus infection in March of 2006 days later that Easter weekend of 06 she slept for hours and was severely confused and in and out of consciousness. Next day my dad literally carried her into the Dr’s office from there they sent her for an X-ray and the dr said you can get your wife to the hospital in downtown Buffalo faster than an ambulance. From there after spending 5 hours in the ER my aunt was pounding on my back at 1130 at night and said they were doing emergency brain surgery the surgery lasted from 12:00am till probably 4 or so in the morning the Dr came in and said it was a tumor the size of a grapefruit and it was being sent for testing. 2 days later she received the news it was Glioblastoma and they gave her 6 months to 2 years. We took turns taking her to Roswell cancer institute for radiation and she took a pill for chemo. Every thing was good till 2010 things slowly began change and the summer of 2011 the downward turn began my mother listened to my wedding on the phone in the hospital and when she came home everything changed severely Iv meds in and out of the hospital then she was put into the hospital for final time and she came home by ambulance and was in hospice care on oxygen,morphine. Last Friday she was sitting at the kitchen table eating pizza and the next day I had to bring my ex wife back home to pa and I got home that Sunday night and the Steeler were playing the Patriots in Pittsburgh and Brady either thru a int or fumbled I was screaming because I’m die hard steeler fan and she walked out and yelled at me for the last time. The next morning about 3am I could hear the oxygen machine running much differently so I called off work because I just knew about 6am my sister came out of the bedroom and said she’s gone. That’s just some of my story about my mother. You have my prayers and I wish you the best in your fight

    • @alierem4266
      @alierem4266 ปีที่แล้ว

      As very few can make it to 5,5yrs survival with chemo/radio the sufferer's journey through this is balanced with quality of life for them.
      The journey also include fam members whose lives are also effected through it. Wishing yr fam the best.

  • @andieluke1366
    @andieluke1366 5 ปีที่แล้ว +7

    Hey, just wanted to drop a message of support. I can relate on a level as I had breast cancer four years ago, though nothing as aggresive as yours. I made light of it and joked about it, too. Feel free to message me if you want to talk about the chemo and radiation experience. Am very happy your surgeon managed to get 99% of it.

    • @alierem4266
      @alierem4266 ปีที่แล้ว

      It is a wonder how 99% is noted from the surgeon. GBM has no definitive bad cells showing on MRIs / other scans, except excising wider margins in the affected area, which may be at best an indefined fuzzy area due to swelling. Regardless, gd luck to you in hoping bad cells have remained withing the removed margins.

  • @biasedjedi4353
    @biasedjedi4353 3 ปีที่แล้ว +3

    You are a true inspiration to me. I have systemic scleroderma, and it will kill me eventually, but your video inspired me to keep going on. I’m really glad you survived it, and you deserve all the happiness in the world.

    • @TheShapeGameGBM
      @TheShapeGameGBM  3 ปีที่แล้ว +1

      We all have our time, it's up to us to decide what we do with it. :) Stay strong ❤️

    • @biasedjedi4353
      @biasedjedi4353 3 ปีที่แล้ว

      @@TheShapeGameGBM Thanks man. It’s just difficult. I used to be healthy, but then I had some pain, and two days later: scleroderma diagnosis. Life is crazy man, stay strong as well.

  • @jeremyharris4021
    @jeremyharris4021 4 ปีที่แล้ว +19

    Hey brother, thanks for your story: I've just been diagnosed with GBM4 on the 17Feb 2020 and I'm about to start Chemo and radiation. I've had 2 brain surgeries and only had pins-and-needles in the right leg as a result. My symptoms were being off balance and falling to the right as the tumour was effecting the motor function of my body and slightly in the left hemisphere of the brain. I was thinking about posting my experiences online somewhere as well.

    • @bjarnepagers6640
      @bjarnepagers6640 4 ปีที่แล้ว +3

      Hey Jeremy, how are you?
      I got diagnosed with Glioblastoma this february. In the beginning, Doctors thought my tumour was either Grade 2 or 3 ( difusse/anaplastic asztocyroma) but it turned out to be GBM. Radiation and Chemo have giving me not trouble at all so have. I am almost through with radiation. Never loose hope Jeremy!!!!
      Greetings from Germany :)

  • @jamiewilliams685
    @jamiewilliams685 4 ปีที่แล้ว +3

    Love you bro. Peace and blessings from England.

  • @ebarbie5016
    @ebarbie5016 3 ปีที่แล้ว +7

    There are about 20 TH-camrs that document their GBM story, and I could not find a single one of them who's channel was still active 2 years after posting the first video... Sad...

    • @TheShapeGameGBM
      @TheShapeGameGBM  3 ปีที่แล้ว +4

      I hope they are all still healthy! Whenever I stop seeing videos from cancer channels, I always worry. :/

    • @joools1953
      @joools1953 ปีที่แล้ว +2

      I was diagnosed last Christmas (14 month prognosis). I have an MRI due in three days. 🤞

    • @amiratosic9701
      @amiratosic9701 5 หลายเดือนก่อน

      @@joools1953hopefully you still here ❤❤❤

  • @tameraleonhardt2281
    @tameraleonhardt2281 5 ปีที่แล้ว +2

    I just love your demeanor approaching this. Sending prayers! New sub 😊

  • @maureenruegger446
    @maureenruegger446 4 ปีที่แล้ว +3

    William, I have been thinking about uou lately. I pray uou are we.

  • @johndupont8596
    @johndupont8596 3 ปีที่แล้ว +1

    Great video! Did you try any additional treatments since then?
    I am tried to save my father. We were told that Metformin, Sativex and LDN might help?
    Thank you so much!
    J

  • @thomasdowd2183
    @thomasdowd2183 ปีที่แล้ว

    Thank you so much for making this video. My father just got diagnosed with GBM, and it is very helpful to hear firsthand accounts of other's experiences. You are a brave young man and I wish you and your family nothing but the best!

  • @janetgoetz9197
    @janetgoetz9197 4 ปีที่แล้ว +2

    Hello William, a person I know was diagnosed with glioblastoma almost two years ago. He is doing quite well and he wears an optune device on his head. Please look into that device. Best wishes to you.

  • @KasimA5016
    @KasimA5016 2 ปีที่แล้ว

    I hope your doing good bro! Keep going! You got this 💪

  • @jujumane9477
    @jujumane9477 4 ปีที่แล้ว +1

    God bless you brother may you heal soon and get very well!!

  • @nickyhung8492
    @nickyhung8492 3 ปีที่แล้ว +1

    You are a great person. Good luck to you!!!

  • @katherineszedetzki95
    @katherineszedetzki95 4 ปีที่แล้ว +1

    Thank you for sharing your story, keep fighting 💪.

  • @hollyhocks7360
    @hollyhocks7360 5 ปีที่แล้ว +1

    Thank you for sharing your experience. Keep positive!

  • @kathrynstewart800
    @kathrynstewart800 5 ปีที่แล้ว +1

    Great video. Thank you. I agree; what was WRONG with that woman who didn’t ask if you were alright; you were clearly very sick! Geez

  • @StephanieMariesOldChannel
    @StephanieMariesOldChannel 4 ปีที่แล้ว +1

    Hi William, my boyfriend was diagnosed with GBM last year and we were told it was inoperable. But I’m having a hard time believing it’s inoperable especially after watching your video! I really want to get in contact with an MD Anderson surgeon. Do you know if they have any Florida neurosurgeons?

    • @Theblackdahlia1
      @Theblackdahlia1 4 ปีที่แล้ว +2

      My aunt was just diagnosed and had surgery due to GBM. I know Duke University is a leading research and has more than few clinical trials for GBM. I would reach out Duke University for a second opinion.

  • @JustRach.S.
    @JustRach.S. 4 ปีที่แล้ว +4

    My dad was just diagnosed with gbm 4 wild type. Its been rough. 💔

    • @alierem4266
      @alierem4266 ปีที่แล้ว +1

      My thoughts are with you, gd luck.

  • @snehabaruah764
    @snehabaruah764 2 ปีที่แล้ว +1

    what type of radiation is used to treat you?? is whole brain radiation used or IMRT used??plz reply

  • @peterperez1285
    @peterperez1285 ปีที่แล้ว +1

    God bless!

  • @hirakhan9053
    @hirakhan9053 3 ปีที่แล้ว

    My father had his GBM GRADE 4 surgery 3 weeks ago. He is on his treatment radiation and chemotherapy. And i pray that his tumor never comes again. Your videos gives me hope that my father will one day get well too. Thank you. My question to you is he is not eating well. He is nauseas all the time. He feels weak all the time. Is this normal ?

    • @Bangialy
      @Bangialy ปีที่แล้ว

      ..? Now

    • @amiratosic9701
      @amiratosic9701 5 หลายเดือนก่อน

      How is your father doing ❤❤❤❤😢

    • @hirakhan9053
      @hirakhan9053 5 หลายเดือนก่อน

      @@amiratosic9701he had 2 surgeries so far since 1 was in 2021 and the second was in 2022. He had a scan in February they said its back. He is on chemotherapy now for 1 year 😢 he will be doing MRI scan again next month. Please keep him in yours prayers 😢

  • @saharapineda1358
    @saharapineda1358 5 ปีที่แล้ว +2

    Hope you’re okay

  • @joools1953
    @joools1953 ปีที่แล้ว +1

    I was very lucky because speech problem was my only symptom. I thought I might have early dementia. My speech is still bad and my writing is slow but my tumour was small when they found it. Hope you’re still well. Surbscribing. xx

  • @jackietyan4348
    @jackietyan4348 2 ปีที่แล้ว +1

    Hi,are you still here?

    • @TheShapeGameGBM
      @TheShapeGameGBM  2 ปีที่แล้ว +5

      Yes!

    • @jackietyan4348
      @jackietyan4348 2 ปีที่แล้ว +1

      @@TheShapeGameGBM that’s great

    • @MrJkillahoe415
      @MrJkillahoe415 ปีที่แล้ว

      @@TheShapeGameGBMquick question. Why did the second ER you went to think it was your head that was the issue if the first hospital you went to thought it was only blood pressure related? What made the ER start running a work up on your head?
      Congratulations on the great news recently!🎉

  • @jenniferwells9032
    @jenniferwells9032 2 ปีที่แล้ว +2

    My prayers thoughts are with you❤️ my youngest girl had very similar stage 4😢 the good news she beat it🙏 I pray you will too 💜🙏🙏🙏🙏❤️🙏❤️

  • @faithf5846
    @faithf5846 ปีที่แล้ว

    God bless you ❤🙏. Your a beautiful inspiration.

  • @nivisri5803
    @nivisri5803 5 ปีที่แล้ว +3

    Sir thank you for you wonderful experience fighting hope positive.... From your words....my dad has been diagonised with gbm grade IV before one year he is fighting for is days can you help me how to contact DR MD anderson

    • @TheShapeGameGBM
      @TheShapeGameGBM  5 ปีที่แล้ว

      Sorry for the late response! I think your dad would be a perfect fit at MD Anderson. There isn't really any special number to call, just the brain cancer ward of the hospital. But if you would like any specific information let me know!

  • @Mason-nc3tq
    @Mason-nc3tq 4 ปีที่แล้ว

    When were you diagnosed?

  • @reginaburks9204
    @reginaburks9204 3 ปีที่แล้ว +1

    Yes, I know about it. My brother had it.

  • @KalpeshVarchand
    @KalpeshVarchand 2 ปีที่แล้ว

    After surgery of GBM, in how many days radiation therapy should be started?

    • @jackyrox90
      @jackyrox90 2 ปีที่แล้ว

      It is advised by doctors to start after 2 weeks of surgery

  • @ernestgutierrez99
    @ernestgutierrez99 4 ปีที่แล้ว +3

    God bless you🙏

  • @stormshannon7494
    @stormshannon7494 5 ปีที่แล้ว +5

    I was diagnosed with grade 4 GBM in November. I went through surgery, radiation, and concurrent chemo. I was wondering do you still have headaches or any other side effects? Like you I never really had headaches but I have headaches and nausea everyday and I'm just trying to figure out if I gotta accept that dailyheadaches are my reality now lol

    • @TheShapeGameGBM
      @TheShapeGameGBM  5 ปีที่แล้ว +3

      Hey there! :) I did suffer from small headaches throughout the first part of radiation. And Nasua throughout the entire part of chemo. But since I have been off of the chemo ( and through with radiation) I have not had any headaches and no nausea. I had to wait a few weeks for the upset stomachs to end. But now I am not doing badly at all. Of course, it varies from person to person, but I have not had any noticeable side effects so far. Always mention the side effects you're suffering from to your doctor, they can always help with info and medication to ease your suffering haha. :)

    • @jessiepinkman2345
      @jessiepinkman2345 5 ปีที่แล้ว +1

      how are u now ?

  • @johnmcgrath2192
    @johnmcgrath2192 5 ปีที่แล้ว +3

    William my God Daughter has just been diagnosed w Stage 4 GBM in Australia. Could you provide me the details of who I can connect w at MD Anderson? The Australian surgeons are amazing but it sounds like they are specialists in this area so if love to get a second opinion on our treatment and what options we may have from here. She has had the operation and is in her first week of radiation as we speak. Be great to have connection to the best experts in the world.

    • @TheShapeGameGBM
      @TheShapeGameGBM  5 ปีที่แล้ว +1

      For radiation I would speak with Dr. Woodhouse's office. She was in charge of my radiaton and did an incredible job. For chemotherapy I was with Dr. Degroot's office. Another great person at MD Anderson. Honestly anyone there is excellent at their jobs, makes sense why they're world renowned!
      If you have any more questions, definitely feel free to ask! :)

    • @johnmcgrath2192
      @johnmcgrath2192 5 ปีที่แล้ว +1

      The Shape Game
      Thx William thx awesome. Much appreciated. Your videos are inspiring. Clear and easy to understand. Authentic. Practical. I will try to find Dr Woodhouse office email and fill her in. I think we are at the stage of seeking something left field like a clinical trial. The standard treatment program is not offering us tremendous hope to beat this disease. They only seem to think they may be able to extend her life shortly. I’m not accepting of that unless or until it becomes reality. I know that 90% of people passing means 10% made it so I’m keen to focus on how we can jump the queue into the 10% for this gorgeous girl. Hopefully someone at Anderson May have some new trials running that are showing promise 🙏🏻

    • @marymurphy919
      @marymurphy919 5 ปีที่แล้ว

      @@johnmcgrath2192 I don't know if you have ever heard of a company called Reliv but I know the products are available in Australia. I'd like to share some hope with you for your God daughter. Here's a link and the testimony starts at 6:15 reliveurope.libsyn.com/uk-call-with-faith-vidal-34 let me know if I can help.

  • @pam164
    @pam164 4 ปีที่แล้ว +2

    My dad had seizures non stop after work one day he never had them before and they said his heart was strong at 52 with all seizures he was having 3 months later after tests they found it was a brain tumour and they could not do anything this was 41 years ago it was in front of his brain think now they would be able to operate. Just come across you in my feed hope your ok.

  • @amiratosic9701
    @amiratosic9701 5 หลายเดือนก่อน +1

    My husband has same let me know how is your mom doing ❤❤❤❤❤

    • @TheShapeGameGBM
      @TheShapeGameGBM  หลายเดือนก่อน

      My mom is doing great! Still amazing, goofball mom I've always had. 🥰

  • @kaykallsen6066
    @kaykallsen6066 5 ปีที่แล้ว +3

    Thank you

  • @rando9668
    @rando9668 4 ปีที่แล้ว +2

    ❤️❤️

  • @Daniela-ky9lk
    @Daniela-ky9lk 5 ปีที่แล้ว

    Dio sia con te!

  • @zaviyar944
    @zaviyar944 3 ปีที่แล้ว

    I have question

  • @teealwayswinns9555
    @teealwayswinns9555 5 ปีที่แล้ว +4

    Subscribed...hope all is well. Looking forward to your uploads❤