In 2014 my husband, just like Denis, had frontal lobe baseball sized tumor. Took 2 years to recover from surgery and return to work. But had 3 weeks of raIdiation and on chemo pills for 2 1/2 years. He had optune for about 6 years. His last MRI in March 2024 looks great. Miracles do happen, keep the faith!
Glio is a beast... not many if anyone gets away from it when diagnosed... I remember the Dr telling us as my dad was diagnosed that they call it the Terminator cause it just doesn't stop... Glad he got 8 more years of life, 7 more than my dad. Glio took my father in exactly a year after surgery/diagnosis.
In 2009 I lost my 66 Yr old dad by GBM. Hel lived 7 month after diagnosis. No such think as this treatment was at hand. Glad for Denis his 8 yrs extra!
I lost my dear daughter Rebecca to Glioblastoma in 2009. She was 22. She undertook similar treatments to Denis. She survived for 2 and a half years after treatment. This was in Ottawa. I pray that one day this terrible cancer won’t be an automatic death sentence.
Update- recently stopped using the Optune due to being stable for >2 years. Now 3 years since diagnosis, I'm still going strong! Looking through the other comments makes me feel both extremely grateful to be doing as well as I'm doing, and reminds me of the necessity of fundraising for research and spreading awareness of this dreadful disease. Stay strong everyone!
Dennis, I am so happy to hear that you are doing well. What an amazing story you have and I'm hoping my father will someday be able to speak about his survival story as well. He is 65 and was just diagnosed with glioblastoma yesterday and I am just sick over this whole thing. He had surgery to remove the tumor and they were able to get most of it, but they said that it will grow back fairly quickly. I hope that when he starts treatment something like this will be available to him. I am just not able to accept that he will most likely not live much longer and hearing stories like yours definitely gives me hope. Stay strong and please keep us updated :)
Denis Raymond I am really happy for you. My brother was diagnosed with a glioblastoma in August 1990. He had surgery and radiation but succumbed in March 1991. I still miss him every day, but it is so good to know they can do so much more to help people with this brain cancer.
may god be with you denis, thank you for keeping us updated. im wishing you all the best for your future and im happy you are doing so well. may god be with you and bless you. much mich love!
I am 14 years old my father died from glioblastoma multifoma he was diagnosed with it and had surgery to remove it. After going threw radiation and chemotherapy he was cancer free for 2 months then a month after that it came back and it was worse then before we tied everything unfortunately he passed away on June 22, 2016.My life will be forever changed and I wish everyone battling this disease the very best and luck may god bless you
So sorry!! My son lost his father to the same on March 18, 2016. Inoperable, radiation, chemo, experimental, etc..... My son was just 15 when dad passed. Has really messed him up.
So sorry for your loss, stay strong! I just lost my husband to GBM, our son just turned 13. Worst suffering I have seen a human being have to go thru. He is now our angel, smiling from above 🙌🏻🙏🏻🙌🏻
Sorry for your loss... my mother also is suffering from this monster and its been 3 months since she finished radiation + chemotherapy... she doesn’t feel good though.. feel bad and powerless to see her in these conditions 😢
wow so brave, I hope you are doing well. My dad was diagnosed with gliomablastoma at 71 after a lifetime of perfect health. He lasted 56 days from start to finish, there was no treatment offered. Others will be heartened by your story.
Hi Denis! I’d love another update. The optune is now FDA approved and covered by insurance. God bless Novocure! My dad is one year post diagnosis and wears optune for 18hours/day. It’s been a journey to find the right time on-time off ratio to decrease the occurrence of skin breakdown, because as you’re well aware nothing associated with cancer can ever be easy! Your story gives me hope, my father was 58 at diagnosis and extremely active like yourself. I know we have no control over this fucked up world, but damn I would give anything to have my dad around for a few more healthy years. All of my love to you! ♥️
I hope your still fighting, Dennis. I noticed memory loss in my incredibly sharp mum 4 weeks ago. She went to the doctors and was diagnosed with a brain tumour, told we could debulk 90-95% of it by one the UKs leading neurosurgeons. 2 weeks later, she never came out her biopsy. She has an extremely vascular grade 4 Glioma and there was a bleed in the biopsy. The pressure on the brain has left her in a coma. She is battling on, after 3 days she woke slightly, opened her eyes sometimes and nodded when I asked if she loved me. Today has been horrendous, she had seizures all day and was finally confirmed in the biopsy results that’s it’s the evil Glioma. I’m hoping she passes peacefully soon. The only silver lining is she never had to head the diagnoses. She was 63 and just retired from a long career of helping others - she was now going to retire and travel the world with her friend. To anyone reading this involved in cancer research, please continue. Cancer is the most sickening and crippling disease.
Keegan O‘Donovan.... I’m incredibly sorry about what your mother endured, how hard that must of been! Please forgive me for asking, but what ever happened? Did she come out of the coma? Love to you from NC.
Kimberly Crouch Hi Kimberly, she suggested a brain bleed during the biopsy, which pretty much killed her. We were told she was in a state of dying within 24 hours of the surgery, and that the brain had suffered too much from the bleed (they tried to drain the blood, but more and more kept coming). I remember they graded level of consciousness, and she was at the lowest level. To their amazement, for a period of 2 days, 2 weeks on, she woke up very sporadically and replied to questions such as do you love me. Eventually, after 3 weeks she passed. Even in a state of almost 0 consciousness, she refused to pass with me and my brother in the room. I am not in the least religious, but her passing was very spiritual for many reasons, she woke up from surgery with a love heart on her right hand when they removed the cannula (which in theory a nurse could plant, but it would be completely unaccepted to do so). She woke up and survived for 3 weeks despite the doctors telling us she would never wake again and would be gone in 48 hours, despite being null by mouth. She was an amazing women and a fighter and protected us right to the very end. On the penultimate night, it was so evident she was going so I didn't leave to go home that night and slept in the room with her - she refused to go, and it wasn't until I did 40 hours no sleep I left and told the nurse to call me as soon as it was happening. I got a call at 2 am that morning and rushed back to hospital - she had passed 10 minute before I got there.
Një e afërmja ime ,ka tumor në tru prej dhjetë vjetësh,dhe nuk ka pranuar të bëjë rrezatim dhe kimioterapi,tani ndihet shumë e lodhur,lodhet nga këmbët,ka humbje ekuilibri,trembemi se çfarë do t'i ngjasë më pas, çfarë dhimbjesh mund të ketë, nuk e di a bëhen metastaza në të gjitha rastet,në ekot që ka bërë mirë i kanë thënë,faleminderit,nënën tuaj të Rroni dhe t'a kujtoni.
My 2 yr old grandson has this cancer. He was diagnosed at about 3 mons. Thank goodness for St. Judes. Right now he's 2 and his last MRI showed no signs so far. I don't know what his chances are for it to stay gone, but I pray it does.
I know this video was posted a few years ago but hope that you are still doing well. Im so happy that hopefully something has proved successful in treating GBM and not only extends survival times but appears to cause very little neurological deficit. My partner survived for 5 months after diagnosis, he was 40. Its not often you see anything positive about GBM, and im so glad this was in my recommendations and that progress is being made in the war against this monster 🙏🤞❤
So sad..my husband had the exact same thing in the same location in 1989 November died July 91 18 months age 34 2 kids It wad the hardest thing I ever been through. I am now 65
GBM took my brother-in-law from his children back in 2012. He was diagnosed at Stage 4, when he fell off of his mountain bike on a family vacation. It's unbelievable that someone could get to that stage and not know anything was wrong. Rest in peace, Werner Stefan Scherer.
I am so so sorry for your loss. My grandma was diagnosed last June at Stage 4 and passed away in October. It's been almost a year since she's been gone.
My step dad was diagnosed last Christmas with gbm and all of the beginning signs for you are the exact same things that happened to him and he had to wear that electro thing also but just two weeks ago a part of the cancer broke off and went into his spine... he was paralyzed for the last two weeks of his life and I sat by him the entire time and this Tuesday my mom told me that he passed while I was at school his funeral was today and I miss him so much I wish I could just throw football with him or listen to music with him one last time.
Unfortunately I lost my mother from this illness 4 months ago. I fully understand your feelings my dear friend. Hope that both of them are now happy in heaven.
Xristina Nanou just lost my husband from this last week, it is a very brutal disease and he died after just a few short weeks, he couldn’t walk or talk at the end.
I have the same type of cancer but mine is very very rare... My started in my spinal cord and what makes It rare is that I am 13. I'm paralyzed from the belly button down, I'm starting to feel more now and I'm very excited. I had 40 something radiation done and I'm doing chemo mouth and port... At first the doctors said it was a sciatica because I was overweight... But I'm glad we found it in time...
Denis....inspirational...i found out that my little 4 year old nephew was diagnosed so it really is inspiring to see a person and not a very subjective statistic
I'm from Brazil. In 2014 , at the beginning of the year , the family discovered that my father 65 years old was with the GBM 4 to the left side of the head. It was operated , but after two months came to rest . Disease , which changes the lives of all the next ... Sorry for my English , because I am with the aid of a translator.
Same with my father.. I lost him last month... He was diagnosed in july end nd he lost his battle in 3months...i feel terrible nd I can't live without him
Any recent update from dennis? My mom is currently fighting glioblastoma and I came across this video and it gave me a little hope. Blessings to you, Dennis, and all who are affected by this in any way!
GBM has made my mom's mussels weaker and her arm is basically dead. She had to lose a bone flap to remove a infection with other pieces of the turmour. Her first sergon was only in training so he removed way too much brain tissue than what it was supposed to be. She's okay now and her arm is slowly coming back alive. But every month her chemo sounds heavier and heavier it's really scary. I will always pray for my mom.
thanks for the Video it give me strength and believe there still miracle out there my daughter got a Gbm she gonna start this Optune Treatment hope it will help her like u do...god bless us
My younger brother got this bastard of a disease when he was 30. He had surgery and radio therapy and a little bit (3-4 weeks) of chemo. He was clear for 3.5 years (scans every 3 months for first 2 years) and then it came back. He had, had an CT scan in November 2013 which was "CLEAR" and by January 2014 (3 months later), it had grown to the size of a tennis ball! He had surgery again, but it had started to return within 6 weeks. He then used AVASTIN (which slows the growth) and lasted about 1.5 years. He was 35 when he passed. Things that he did 1. He went vegetarian 2. Juiced daily (google Fat Sick and Nearly Dead) 3. Exercised regularly 4. Tried canabis oil for last 18 months
Astonished you are still alive 👏👏👏. A miracle man. I’m wondering if the tumors’ original placement has something to do with survival or not. You are very exceptional. My husband died in 2012 after 15 months. He husband the best surgeons (2) on the west coast and the best neuro radio oncologist and best chemo at the time. His main tumor was in a very bad area of the brain….deep inside hugging the corpus colosseum. Not good. We still miss him to this very day. You are a testament to science and the spirits will to continue on.
I've just been diagnosed with GBM. I fell and they did a CT at the hospital and found it. I haven't started radiation or chemo yet. Will start in 2 weeks. I had no symptoms at all. I am just confused. It is so crazy to have this and not know it. I'm 4 weeks out from the surgery and some has already grown back. I'm 60 years old.
This was the wrong place to put this on Tyler's tarot. I was just comparing that he was worried about missing some teeth and I have this going on. I wasn't being mean or hateful. So please don't take it that way. Thank you. Jackie
I was diagnosed with glioblastoma a little more than one month ago. I was told that there is no cure. I was told that treatment will be mostly ineffective. I'm also 60 years old.
I’m “lucky” enough to have a kind of glioblastoma, called an ependymoma. I have a recurrence for the 3rd time. When I was diagnosed, I initially had surgery initially, then, radiation for a recurrence. Now, I have another tumor, and I have yet to talk to my team about which way to treat my cancer. My neurosurgeon let me know that my radiation therapist is suggesting this technology also for treatment. I would love the ideas of the internet in this situation.
Hope all is going well denis. The odd thing is my husband has the same name as you only spelled with 2 n's and has the same diagnosis as well !! Gbm is scary ,horrible, just in all a roller coaster ride !! We are about to start treatment with optune as well I hope 🤞🏽 that he has the same outcome as you do !! You are a success story and I am proud of you to go through it like a champ 👌🏽💪🏽. If you have any other helpful advice I will be willing to listen 👂 to all . ✌️🙏🏽
Hello.Tengo un sobrino de 44 años, le han operado en diciembre y el diagnóstico es el peor de todos. Mi sobrino ya tiene afectada la memoria reciente y algo de la vista. por lo q veo o he creído entender, tu diagnóstico solo fue por dolor de cabeza pero no tenías nada más afectado, Quizá en eso ganaste tiempo y tal vez la zona del cerebro donde tenías el tumor no es la misma. No se si en nuestro caso, podemos tener algún tipo de esperanza. De todas formas, gracias por compartir tu vivencia
My father was diagnosed with a Glioblastoma stg4 in December. He had 98% of it taken out and he is currently doing radiation and chemo pills for the next 6 weeks. This is a f'ing nightmare. It gives me hope for my father that you are doing so well. Everything I've read (which is a lot and very very depressing seeing people's stories) never seem to be hopeful and always end in a way that one doesn't want it to...
I'm 36 years, In Jan. 2014 I was diagnosed with exactely the same type of cancer. I did the same treatement (Radio, then Chemo). Unfortunately the doctors didnt help me much to stay positive in my case. I just try to. I hope that Denis is still doing well.
+Nadya Earls Hi Nadya! Yhank you very much for asking. Its already that long ago that i even forgot i commented there. Im still ok, had many encounters with hospitals and doctors since my first operation because a scar did never close and absorb a clear liquid. Now after at the fifth operation they figured out that a little peace of plastic tube from the tumor removing operation was left over under the skin. So with removing that i hope i find finally my freedom from hospitals. Although i have to do mri tests anyway every 3 months. -So the tumor stayed in its size allways. Thank you and best wishes!
I'm so glad to hear, I don't know you, but I was so worried about you...you are a fighter!!! If you ever need anything, let me know:) I can't offer much, but I do care! It counts! You can find me on instagram, same name. Ps, last week I've lost someone to this...it was a 2 year fight.
It's now 2016. Is Denis still alive & doing ok? My mother n law & my niece both died from GBM. They both went through surgery, radiation & chemo only to live for just a year. My mnl had one the size of a grapefruit & it had half her brain compressed back. And the ironic thing about my niece was she was a cancer nurse. Sure wish they could have been saved. It's a terrible disease to have for sure.
My beautiful, healthy, 65 years old mum was diagnosed with inoperable gbm. At exactly 3 months from the diagnosing and 6 days from her 66 birthday, she passed away. My beautiful, healthy, young mum passed away
One of my friends living in Ontario, Canada was diagnosed GBM in 2017. She went through all the surgeries and chemos but her health ony got deteriorated. Unfortunately, I've lost the contact of her and need to know her condition right now. Would anyone please help me?
God Bless you and keep you!! I saw this company on CNBC and invested in it, not only to make money, but I felt it was a new technology that could save lives and I pray its successful . I sincerely don't care about the money but I do hope that brain cancer and pancreatic cancer can be cured or arrested through this technology.
Please please look into DCVax for glioblastoma. Clinical trial results of DCvax was recently announced and was a huge success! I hope FDA moves to swiftly approve this drug!!! 🙏
My father also passed away for this deadly disease last July. .he was suffering a lot..India doctor are very bad and also knowing everything they give pain to patients
hi denis my son has a grade 4 glioblastoma,he has had radiopheropy and chemo together and he has just finished a high dosage of chemo at home having a 3 week break then they will up his chemo more.i would love to see if i could go about getting some sort of trial treatment for my son, i will try anything and he has agreed he would to,if it came available.all we can do right now is hope and prey and make the most of each day,i would love to know whatthis clinical trial is from the heart fondation.
hola amigo échale ganas AMI me dinosticaron el 2021disienbre I orita estoi en tratamiento yo también traigo lo mismo en mi cabesase como te sientes mucho ánimo i Munchas Bendiciones
Magnetic therapy has been used for yrs thru Bob Beck protocol. you can buy a knock off magnetic pulse unit off eBay and people note they have similar effects for around $200. worth a try....good luck
my father is suffering from Glioblastoma aggressive form. He had 3 surgeries within last 7 months! please tell me about the prognosis and any definitive cure. from where we can get this electrical device? please reply.
Thanks for your comment I am much better at the moment . Time is great healer though the first year is usually tough one spend as much time as you can with your father , take pictures and videos .. best wishes
What can I say😭 Language is lost 😭 Last November 2023, my elder brother died of glioblastoma, brain tumor at only 30 years old 😭 I pray that Allah does not give this deadly cancer to anyone
My Husband noticed itchi and annoying spots between his bumcheeks first - then came the haedache - and at the end vomitting and that was when i called the ambulance
+thihal123 Hi! I am doing phenomenally well! Enjoying life to the fullest - In the past 2 months, I did the white-water rafting trip in the Grand Canyon (that I spoke of) and climbed 4 mountains. MRIs continue to be spotless, I have all the energy I had pre-surgery and then some. A lot of my time is now spent towards supporting fundraising efforts for various charities and non-profit organizations that support brain tumour and brain cancer patients, whether through advancing research or offering programs that aim to improve physical or mental well-being and quality of life. A cure for this terrible disease must be found. Too many of us are affected. I feel for every commentator on this video. For those of you who have been asking about the availability of the device, it is now commercially available in many countries (it is now called the "Optune"). Sadly, Canadians are still waiting for approval from Health Canada. Here's hoping it comes soon. Consult your physicians for more information and to see if it is right for you, and keep in mind that my clinical trial involved the use of this device IN CONJUNCTION WITH temozolomide (the prescribed chemotherapy). It has shown to help primarily when it is in combination with another treatment. www.optune.com/
+Denis Raymond Hi Denis, your video was very inspiring. My mom was recently diagnosed with GBM and we are in Canada. I am wondering if you have any suggestions on how to get the optune instead of waiting for the several years it's still going to take to get approved here. Are they still doing clinical trials out in Ottawa? Any suggestions would be so greatly appreciated. Thanks so much for this video!!!
Hi again! Sadly, I recently reached out to Novocure who informed me that they need to go through the proper channels (aka Health Canada) to make the device commercially available in Canada. I have heard of the possibility of purchasing the device in the US and simply bringing it over the border with you, but I have no information as to how that works (you will need a steady supply of electrode stickers and medical tape as well, which I had supplied to me by a technician who visits me twice a month). I'd recommend contacting Novocure and directly asking about this possibility. Sadly, know you'll be facing huge costs (I've heard that in the states, the device costs upwards to $2100 a month). The clinical trial is no longer accepting new patients. Hope this information helped!
+Denis Raymond Hello Denis, I am glad you are well. I am really happy for you. Unfortunately shortly after watching your video I lost my mother to GBM that's 5 months now. In that journey I found out how many people are affected by this disease and I feel for everyone too. You are right cure must be found as soon as possible. Wish you the best.
Unfortunately he past away 3 months ago . Cancer progressed very fast from the end of february till 14 may. i,m glad that he-s at pace now. We are very far from even treating this kind of cancer so be very very glad oyu have a second chance. Us it wiselly. ;-) and have a beautifull life !!! ;-)
To everyone reading this please turn to Jesus He loves you and want to save you, Only Jesus can truly heal, He is the God of miracles and the bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, I seen God do amazing things in my life and in the life's of people I know, There is nothing impossible to God its as simple as asking Him to show you He is REAL, and if you really want to know He will answer you, I know this because it happened to me,
In 2014 my husband, just like Denis, had frontal lobe baseball sized tumor. Took 2 years to recover from surgery and return to work. But had 3 weeks of raIdiation and on chemo pills for 2 1/2 years. He had optune for about 6 years. His last MRI in March 2024 looks great. Miracles do happen, keep the faith!
My dad is currently being treated for GBM and the plan is to use the Optune. Your comment has given me hope.
Denis passed in 2022. The treatment gave him 8years of living.
Thank you for letting us know. RIP Denis. Condolences to all involved.
That’s so sad :( Rip Denis, fly high.
Thanks for update ....om shanti
Rip Denis❤
Glio is a beast... not many if anyone gets away from it when diagnosed... I remember the Dr telling us as my dad was diagnosed that they call it the Terminator cause it just doesn't stop... Glad he got 8 more years of life, 7 more than my dad. Glio took my father in exactly a year after surgery/diagnosis.
I am glad Denis was able to achieve many of his goals. Rest easy, young man
In 2009 I lost my 66 Yr old dad by GBM. Hel lived 7 month after diagnosis. No such think as this treatment was at hand. Glad for Denis his 8 yrs extra!
I lost my dear daughter Rebecca to Glioblastoma in 2009. She was 22. She undertook similar treatments to Denis. She survived for 2 and a half years after treatment. This was in Ottawa. I pray that one day this terrible cancer won’t be an automatic death sentence.
*_May Rebecca rest in eternal peace._* 🕯
Absolutely heartbreaking. 😢
@Bissmanqt allah is fake.
Update- recently stopped using the Optune due to being stable for >2 years. Now 3 years since diagnosis, I'm still going strong!
Looking through the other comments makes me feel both extremely grateful to be doing as well as I'm doing, and reminds me of the necessity of fundraising for research and spreading awareness of this dreadful disease.
Stay strong everyone!
Dennis, I am so happy to hear that you are doing well. What an amazing story you have and I'm hoping my father will someday be able to speak about his survival story as well. He is 65 and was just diagnosed with glioblastoma yesterday and I am just sick over this whole thing. He had surgery to remove the tumor and they were able to get most of it, but they said that it will grow back fairly quickly. I hope that when he starts treatment something like this will be available to him. I am just not able to accept that he will most likely not live much longer and hearing stories like yours definitely gives me hope. Stay strong and please keep us updated :)
Denis Raymond I am really happy for you. My brother was diagnosed with a glioblastoma in August 1990. He had surgery and radiation but succumbed in March 1991. I still miss him every day, but it is so good to know they can do so much more to help people with this brain cancer.
may god be with you denis, thank you for keeping us updated. im wishing you all the best for your future and im happy you are doing so well. may god be with you and bless you. much mich love!
Denis Raymond Yes! Keep healthy. Bless you!!
Denis Raymond please can you help me my dad has the same cancer that we descoverd recently
He’s still going strong. Read something about him in November of this year. Keep fighting Denis. You are in our thoughts and prayers. Happy Holidays 💖
He is still alive??? Praise God!!! My husband just got diagnosed with GBM 😭 So..this is very hopeful!!! Thank you for sharing!!!
He unfortunately pass away this week. RIP
@@pamelacarina1298 are u sure
I am 14 years old my father died from glioblastoma multifoma he was diagnosed with it and had surgery to remove it. After going threw radiation and chemotherapy he was cancer free for 2 months then a month after that it came back and it was worse then before we tied everything unfortunately he passed away on June 22, 2016.My life will be forever changed and I wish everyone battling this disease the very best and luck may god bless you
So sorry!! My son lost his father to the same on March 18, 2016. Inoperable, radiation, chemo, experimental, etc..... My son was just 15 when dad passed. Has really messed him up.
So sorry for your loss, stay strong! I just lost my husband to GBM, our son just turned 13. Worst suffering I have seen a human being have to go thru. He is now our angel, smiling from above 🙌🏻🙏🏻🙌🏻
Sorry for your loss... my mother also is suffering from this monster and its been 3 months since she finished radiation + chemotherapy... she doesn’t feel good though.. feel bad and powerless to see her in these conditions 😢
My mom diagnosed with GBM
I don't know how many days has left to be with her
Nowadays I feel my life is not blessing
It's a curse
I lost my dad to this worst disease.. He battled only 4months.. I just want to die now.. Everything is changed forever
wow so brave, I hope you are doing well. My dad was diagnosed with gliomablastoma at 71 after a lifetime of perfect health. He lasted 56 days from start to finish, there was no treatment offered. Others will be heartened by your story.
Hi Denis! I’d love another update. The optune is now FDA approved and covered by insurance. God bless Novocure! My dad is one year post diagnosis and wears optune for 18hours/day. It’s been a journey to find the right time on-time off ratio to decrease the occurrence of skin breakdown, because as you’re well aware nothing associated with cancer can ever be easy! Your story gives me hope, my father was 58 at diagnosis and extremely active like yourself. I know we have no control over this fucked up world, but damn I would give anything to have my dad around for a few more healthy years. All of my love to you! ♥️
I hope your still fighting, Dennis. I noticed memory loss in my incredibly sharp mum 4 weeks ago. She went to the doctors and was diagnosed with a brain tumour, told we could debulk 90-95% of it by one the UKs leading neurosurgeons.
2 weeks later, she never came out her biopsy. She has an extremely vascular grade 4 Glioma and there was a bleed in the biopsy. The pressure on the brain has left her in a coma. She is battling on, after 3 days she woke slightly, opened her eyes sometimes and nodded when I asked if she loved me. Today has been horrendous, she had seizures all day and was finally confirmed in the biopsy results that’s it’s the evil Glioma.
I’m hoping she passes peacefully soon. The only silver lining is she never had to head the diagnoses. She was 63 and just retired from a long career of helping others - she was now going to retire and travel the world with her friend.
To anyone reading this involved in cancer research, please continue. Cancer is the most sickening and crippling disease.
Keegan O‘Donovan.... I’m incredibly sorry about what your mother endured, how hard that must of been! Please forgive me for asking, but what ever happened? Did she come out of the coma? Love to you from NC.
Kimberly Crouch Hi Kimberly, she suggested a brain bleed during the biopsy, which pretty much killed her. We were told she was in a state of dying within 24 hours of the surgery, and that the brain had suffered too much from the bleed (they tried to drain the blood, but more and more kept coming). I remember they graded level of consciousness, and she was at the lowest level. To their amazement, for a period of 2 days, 2 weeks on, she woke up very sporadically and replied to questions such as do you love me. Eventually, after 3 weeks she passed. Even in a state of almost 0 consciousness, she refused to pass with me and my brother in the room. I am not in the least religious, but her passing was very spiritual for many reasons, she woke up from surgery with a love heart on her right hand when they removed the cannula (which in theory a nurse could plant, but it would be completely unaccepted to do so). She woke up and survived for 3 weeks despite the doctors telling us she would never wake again and would be gone in 48 hours, despite being null by mouth.
She was an amazing women and a fighter and protected us right to the very end. On the penultimate night, it was so evident she was going so I didn't leave to go home that night and slept in the room with her - she refused to go, and it wasn't until I did 40 hours no sleep I left and told the nurse to call me as soon as it was happening. I got a call at 2 am that morning and rushed back to hospital - she had passed 10 minute before I got there.
Një e afërmja ime ,ka tumor në tru prej dhjetë vjetësh,dhe nuk ka pranuar të bëjë rrezatim dhe kimioterapi,tani ndihet shumë e lodhur,lodhet nga këmbët,ka humbje ekuilibri,trembemi se çfarë do t'i ngjasë më pas, çfarë dhimbjesh mund të ketë, nuk e di a bëhen metastaza në të gjitha rastet,në ekot që ka bërë mirë i kanë thënë,faleminderit,nënën tuaj të Rroni dhe t'a kujtoni.
My 2 yr old grandson has this cancer. He was diagnosed at about 3 mons. Thank goodness for St. Judes. Right now he's 2 and his last MRI showed no signs so far. I don't know what his chances are for it to stay gone, but I pray it does.
Does anyone know if it can stay gone in a child who is diagnosed?
@@jsilvius65 the prognosis is far more better in children than adults. How long had been since your grandson was diagnosed?
I know this video was posted a few years ago but hope that you are still doing well. Im so happy that hopefully something has proved successful in treating GBM and not only extends survival times but appears to cause very little neurological deficit. My partner survived for 5 months after diagnosis, he was 40. Its not often you see anything positive about GBM, and im so glad this was in my recommendations and that progress is being made in the war against this monster 🙏🤞❤
So sad..my husband had the exact same thing in the same location in 1989 November died July 91 18 months age 34 2 kids
It wad the hardest thing I ever been through. I am now 65
😢
GBM took my brother-in-law from his children back in 2012. He was diagnosed at Stage 4, when he fell off of his mountain bike on a family vacation. It's unbelievable that someone could get to that stage and not know anything was wrong. Rest in peace, Werner Stefan Scherer.
I am so so sorry for your loss. My grandma was diagnosed last June at Stage 4 and passed away in October. It's been almost a year since she's been gone.
Agree, my father biked 220km six weeks before diagnosis!
Just came across this clip. I hope you’re still thriving and got to do your trip and many more!
God bless you, young man. 🙌🙌🙌👏
God hates him, if he let for this.
My step dad was diagnosed last Christmas with gbm and all of the beginning signs for you are the exact same things that happened to him and he had to wear that electro thing also but just two weeks ago a part of the cancer broke off and went into his spine... he was paralyzed for the last two weeks of his life and I sat by him the entire time and this Tuesday my mom told me that he passed while I was at school his funeral was today and I miss him so much I wish I could just throw football with him or listen to music with him one last time.
James Gray He is in Gods Grace, stay strong..
All my love, he lives in your heart.
Unfortunately I lost my mother from this illness 4 months ago. I fully understand your feelings my dear friend. Hope that both of them are now happy in heaven.
Xristina Nanou just lost my husband from this last week, it is a very brutal disease and he died after just a few short weeks, he couldn’t walk or talk at the end.
So sorry for your loss.
I have the same type of cancer but mine is very very rare... My started in my spinal cord and what makes It rare is that I am 13. I'm paralyzed from the belly button down, I'm starting to feel more now and I'm very excited. I had 40 something radiation done and I'm doing chemo mouth and port... At first the doctors said it was a sciatica because I was overweight... But I'm glad we found it in time...
th-cam.com/video/ZOX2eg1nfAs/w-d-xo.html
❤
Denis....inspirational...i found out that my little 4 year old nephew was diagnosed so it really is inspiring to see a person and not a very subjective statistic
I'm from Brazil. In 2014 , at the beginning of the year , the family discovered that my father 65 years old was with the GBM 4 to the left side of the head. It was operated , but after two months came to rest . Disease , which changes the lives of all the next ... Sorry for my English , because I am with the aid of a translator.
Same with my father.. I lost him last month... He was diagnosed in july end nd he lost his battle in 3months...i feel terrible nd I can't live without him
DENIS J RAYMOND
February 4 1987 - July 30 2022
35 years
Dennis: how are you doing with your recovery . Many people here would like to hear from you. God bless you and keep you healthy
Any recent update from dennis? My mom is currently fighting glioblastoma and I came across this video and it gave me a little hope. Blessings to you, Dennis, and all who are affected by this in any way!
God bless you Denis i hope that things are going well for you... And may all your wishes will coming true slowly but surely. God is GREAT
I hope he is ok now❤️❤️
GBM has made my mom's mussels weaker and her arm is basically dead. She had to lose a bone flap to remove a infection with other pieces of the turmour. Her first sergon was only in training so he removed way too much brain tissue than what it was supposed to be. She's okay now and her arm is slowly coming back alive. But every month her chemo sounds heavier and heavier it's really scary. I will always pray for my mom.
Snowy Cupcakes GOD BLESS HER ALWAYS
How is she doing now?
thanks for the Video it give me strength and believe there still miracle out there my daughter got a Gbm she gonna start this Optune Treatment hope it will help her like u do...god bless us
It has been 7 yrs. What is the status as on date. I have been operated on September 2023 and undergoing Chemotherapy these days.
Wish you long and healthy life!
God bless you!
Hello, Denis. I hope you are still going strong? I’m a stage IV breast cancer survivor...8 1/2 years ago I was diagnosed.
Wish you the best of health and thank you for sharing this, God bless you!
I like his positive attitude.
My younger brother got this bastard of a disease when he was 30. He had surgery and radio therapy and a little bit (3-4 weeks) of chemo. He was clear for 3.5 years (scans every 3 months for first 2 years) and then it came back. He had, had an CT scan in November 2013 which was "CLEAR" and by January 2014 (3 months later), it had grown to the size of a tennis ball! He had surgery again, but it had started to return within 6 weeks. He then used AVASTIN (which slows the growth) and lasted about 1.5 years. He was 35 when he passed.
Things that he did
1. He went vegetarian
2. Juiced daily (google Fat Sick and Nearly Dead)
3. Exercised regularly
4. Tried canabis oil for last 18 months
My rommate now is using the treatment I had... I help her to change ever 2 days! U inspired me!!! Paulo from Los angeles!
Amazing attitude 👍👍👍 My co-GBM survivor ❤️
God bless you bro
I’m thankful you made it, I had a ganglioglioma but that was almost nothing! You’re strong
Edit: Made it, as in still alive
Astonished you are still alive 👏👏👏. A miracle man. I’m wondering if the tumors’ original placement has something to do with survival or not. You are very exceptional. My husband died in 2012 after 15 months. He husband the best surgeons (2) on the west coast and the best neuro radio oncologist and best chemo at the time. His main tumor was in a very bad area of the brain….deep inside hugging the corpus colosseum. Not good. We still miss him to this very day. You are a testament to science and the spirits will to continue on.
He passed away last year.
I've just been diagnosed with GBM. I fell and they did a CT at the hospital and found it. I haven't started radiation or chemo yet. Will start in 2 weeks. I had no symptoms at all. I am just confused. It is so crazy to have this and not know it. I'm 4 weeks out from the surgery and some has already grown back. I'm 60 years old.
This was the wrong place to put this on Tyler's tarot. I was just comparing that he was worried about missing some teeth and I have this going on. I wasn't being mean or hateful. So please don't take it that way. Thank you. Jackie
I was diagnosed with glioblastoma a little more than one month ago. I was told that there is no cure. I was told that treatment will be mostly ineffective. I'm also 60 years old.
Şimdi nasılsıniz
God bless you
I’m “lucky” enough to have a kind of glioblastoma, called an ependymoma. I have a recurrence for the 3rd time. When I was diagnosed, I initially had surgery initially, then, radiation for a recurrence. Now, I have another tumor, and I have yet to talk to my team about which way to treat my cancer. My neurosurgeon let me know that my radiation therapist is suggesting this technology also for treatment. I would love the ideas of the internet in this situation.
Hope all is going well denis. The odd thing is my husband has the same name as you only spelled with 2 n's and has the same diagnosis as well !! Gbm is scary ,horrible, just in all a roller coaster ride !! We are about to start treatment with optune as well I hope 🤞🏽 that he has the same outcome as you do !! You are a success story and I am proud of you to go through it like a champ 👌🏽💪🏽. If you have any other helpful advice I will be willing to listen 👂 to all . ✌️🙏🏽
Hello.Tengo un sobrino de 44 años, le han operado en diciembre y el diagnóstico es el peor de todos.
Mi sobrino ya tiene afectada la memoria reciente y algo de la vista. por lo q veo o he creído entender, tu diagnóstico solo fue por dolor de cabeza pero no tenías nada más afectado,
Quizá en eso ganaste tiempo y tal vez la zona del cerebro donde tenías el tumor no es la misma.
No se si en nuestro caso, podemos tener algún tipo de esperanza.
De todas formas, gracias por compartir tu vivencia
Hola Charo, tu sobrino como está?
@@felroberto Hola
Gracias por responder, pero mi sobrino nos dejó en julio del año pasado.
De todas formas gracias. Un abrazo
@@charopolentinos3630 hay Dios mio lo siento mucho. Como entender estas cosas 🙏🏽
Gracias. Se fue muy acompañado de amor y cariño. espero q tu estes bien. @@felroberto
Very interesting treatment! I wonder how effective it is?
All the very best Sir
My father was diagnosed with a Glioblastoma stg4 in December. He had 98% of it taken out and he is currently doing radiation and chemo pills for the next 6 weeks. This is a f'ing nightmare. It gives me hope for my father that you are doing so well. Everything I've read (which is a lot and very very depressing seeing people's stories) never seem to be hopeful and always end in a way that one doesn't want it to...
Wie geht's ihm jetzt
Hope you’re doing well
I don't want to sound negative, but it seems like younger people, have a better chance of living longer. older people it's very hard..
So perfect on the outside!
I'm 36 years, In Jan. 2014 I was diagnosed with exactely the same type of cancer. I did the same treatement (Radio, then Chemo). Unfortunately the doctors didnt help me much to stay positive in my case. I just try to. I hope that Denis is still doing well.
Are you doing ok?..........
+xyolit hi can i cotact with u
my watsapp account 00249910076578
please i want ask u about it my mom diagnosed too
+Nadya Earls
Hi Nadya! Yhank you very much for asking. Its already that long ago that i even forgot i commented there.
Im still ok, had many encounters with hospitals and doctors since my first operation because a scar did never close and absorb a clear liquid. Now after at the fifth operation they figured out that a little peace of plastic tube from the tumor removing operation was left over under the skin. So with removing that i hope i find finally my freedom from hospitals. Although i have to do mri tests anyway every 3 months. -So the tumor stayed in its size allways.
Thank you and best wishes!
I'm so glad to hear, I don't know you, but I was so worried about you...you are a fighter!!! If you ever need anything, let me know:) I can't offer much, but I do care! It counts! You can find me on instagram, same name.
Ps, last week I've lost someone to this...it was a 2 year fight.
xyolit What were your symptoms????
I found your obituary online. RIP Denis. :(
RIP dear heart. I lost my brother 1.5 years ago from GBM. He passed away just 3 months from diagnosis.
So so sorry for your big loss ❤
So sad especially when they can cure cancer! Any Dr or Researcher that has found it disappears
not every type of cancer can be cured yet, sadly
Prayers
Eternal peace
I'm watching my best friend slowly die from this type of cancer..... Why does cancer exist......
I'm sorry :( my grandpa also died from brain cancer. prayers
It's now 2016. Is Denis still alive & doing ok? My mother n law & my niece both died from GBM. They both went through surgery, radiation & chemo only to live for just a year. My mnl had one the size of a grapefruit & it had half her brain compressed back. And the ironic thing about my niece was she was a cancer nurse. Sure wish they could have been saved. It's a terrible disease to have for sure.
My beautiful, healthy, 65 years old mum was diagnosed with inoperable gbm. At exactly 3 months from the diagnosing and 6 days from her 66 birthday, she passed away. My beautiful, healthy, young mum passed away
My father also. 67 six weeks after biking 220 km he was diagnosed with GBM. a shock for him and us.
Wishing you strength and comfort ❤❤
I'm from iraq, my father suffering from the same disease my question is that how can I get this device immediately
One of my friends living in Ontario, Canada was diagnosed GBM in 2017. She went through all the surgeries and chemos but her health ony got deteriorated. Unfortunately, I've lost the contact of her and need to know her condition right now. Would anyone please help me?
This is still bring tried as I was diagnosed sn wouldikd to try Which hospital is thid tooo
Dennis
It is now August, 2018. Are you still free from your Optune for your GBM? What is your prognosis?
We in Britain don't have opportunities like this which makes me quite angry.
Same in USA, Healthcare is expensive and they can meet you at the door and say no sorry your insurance will not even cover you walking in
I just finished radiation after surgery. Hopeful Dana Farber offers this treatment
God Bless you and keep you!! I saw this company on CNBC and invested in it, not only to make money, but I felt it was a new technology that could save lives and I pray its successful . I sincerely don't care about the money but I do hope that brain cancer and pancreatic cancer can be cured or arrested through this technology.
just respect! hang on.
Please please look into DCVax for glioblastoma. Clinical trial results of DCvax was recently announced and was a huge success! I hope FDA moves to swiftly approve this drug!!! 🙏
ALMIGHTY GOD BLESS AND HAVE MERCY ON YOU AND YOURS ALWAYS ,IN THE PRECIOUS NAME OF JESUS CHRIST, OUR LORD AND SAVIOUR, AMEN
RIP 🙏🏻
I was just diagnosed with it waiting on radiation now
Odd- my mom had this and died but never had the 1st head ache
How is Denis doing now?
th-cam.com/video/WhjirpPrmCE/w-d-xo.html
My father has the same type of cancer. Could you guide me into getting him this much needed help? I live in California but if I have to travel I will
Hi Ana,
This treatment is part of a clinical trial. You should connect with your oncologist for more information about this particular treatment.
OttawaCancer please reply.. from where can we get this device? i'll be very thankful.
My husband, Artist Ray Ferrer has this same brain cancer.
Location plays a big role in managing as well as the genetic type. My husband's was in the left temporal lobe. Inoperable.
My husband was as well.
My father also passed away for this deadly disease last July. .he was suffering a lot..India doctor are very bad and also knowing everything they give pain to patients
Bhai kya apke dada ko bhe same problem tha
hi denis my son has a grade 4 glioblastoma,he has had radiopheropy and chemo together and he has just finished a high dosage of chemo at home having a 3 week break then they will up his chemo more.i would love to see if i could go about getting some sort of trial treatment for my son, i will try anything and he has agreed he would to,if it came available.all we can do right now is hope and prey and make the most of each day,i would love to know whatthis clinical trial is from the heart fondation.
hola amigo échale ganas AMI me dinosticaron el 2021disienbre I orita estoi en tratamiento yo también traigo lo mismo en mi cabesase como te sientes mucho ánimo i Munchas Bendiciones
Magnetic therapy has been used for yrs thru Bob Beck protocol. you can buy a knock off magnetic pulse unit off eBay and people note they have similar effects for around $200. worth a try....good luck
my father is suffering from Glioblastoma aggressive form. He had 3 surgeries within last 7 months! please tell me about the prognosis and any definitive cure. from where we can get this electrical device? please reply.
My father passed away due to glioblastoma
My dad has less than a month to live due to the effects of this aggressive form of cancer. I hope you're doing better now.
Thanks for your comment
I am much better at the moment . Time is great healer though the first year is usually tough one
spend as much time as you can with your father , take pictures and videos ..
best wishes
+Oat HI sorry for your loss was he in lots of pain? i have bad headaches
my mother pass away now... why the cáncer exist.
Oumer 10
I lost my father too because of gbm on October 9,2017
What can I say😭 Language is lost 😭 Last November 2023, my elder brother died of glioblastoma, brain tumor at only 30 years old 😭 I pray that Allah does not give this deadly cancer to anyone
Hi Denis Are you alive now?
My father also has glioblastoma multiforme , please could you guide me , how can i get this treatment ??!! can i buy it ??
hey how are ure father now?
What is FECO
Radiooncologist is the one who can direct the optune treatment but its not easy
My Husband noticed itchi and annoying spots between his bumcheeks first - then came the haedache - and at the end vomitting and that was when i called the ambulance
At the time of my husband's diagnosis, these were used. However, they wanted him to do XYZ first. Of course......the rings that didn't work. He died!
{{{}}} The spirit of virtuous_virtue be with you.
707
And how is Denis doing today?
+thihal123 Hi! I am doing phenomenally well! Enjoying life to the fullest - In the past 2 months, I did the white-water rafting trip in the Grand Canyon (that I spoke of) and climbed 4 mountains. MRIs continue to be spotless, I have all the energy I had pre-surgery and then some.
A lot of my time is now spent towards supporting fundraising efforts for various charities and non-profit organizations that support brain tumour and brain cancer patients, whether through advancing research or offering programs that aim to improve physical or mental well-being and quality of life. A cure for this terrible disease must be found. Too many of us are affected. I feel for every commentator on this video.
For those of you who have been asking about the availability of the device, it is now commercially available in many countries (it is now called the "Optune"). Sadly, Canadians are still waiting for approval from Health Canada. Here's hoping it comes soon. Consult your physicians for more information and to see if it is right for you, and keep in mind that my clinical trial involved the use of this device IN CONJUNCTION WITH temozolomide (the prescribed chemotherapy). It has shown to help primarily when it is in combination with another treatment.
www.optune.com/
+Denis Raymond Hi Denis, your video was very inspiring. My mom was recently diagnosed with GBM and we are in Canada. I am wondering if you have any suggestions on how to get the optune instead of waiting for the several years it's still going to take to get approved here. Are they still doing clinical trials out in Ottawa? Any suggestions would be so greatly appreciated. Thanks so much for this video!!!
Hi again!
Sadly, I recently reached out to Novocure who informed me that they need to go through the proper channels (aka Health Canada) to make the device commercially available in Canada.
I have heard of the possibility of purchasing the device in the US and simply bringing it over the border with you, but I have no information as to how that works (you will need a steady supply of electrode stickers and medical tape as well, which I had supplied to me by a technician who visits me twice a month).
I'd recommend contacting Novocure and directly asking about this possibility. Sadly, know you'll be facing huge costs (I've heard that in the states, the device costs upwards to $2100 a month).
The clinical trial is no longer accepting new patients.
Hope this information helped!
+Denis Raymond All my prayers for you fight with everything you have! ♡
+Denis Raymond Hello Denis, I am glad you are well. I am really happy for you. Unfortunately shortly after watching your video I lost my mother to GBM that's 5 months now. In that journey I found out how many people are affected by this disease and I feel for everyone too. You are right cure must be found as soon as possible. Wish you the best.
HY MY FATHER HAS GLIOBLASTOM ON LEFT AND RIGHT ITS ONLY 3 CM NOW ON THE LEFT AND 1,4 ON THE RIGHT SIDE CAN IT BE OPERATED? ANYONE AN ANSWER PLEASE ?
I hope by now you've found help, but that question needs to be answered by a doctor. A neurooncologist or neurosurgeon.
Unfortunately he past away 3 months ago . Cancer progressed very fast from the end of february till 14 may. i,m glad that he-s at pace now. We are very far from even treating this kind of cancer so be very very glad oyu have a second chance. Us it wiselly. ;-) and have a beautifull life !!! ;-)
Io sono italiana.. c'è qualcuno che ha il glioblastoma e si sta curando in Italia?
Per favore rispondetemi in italiano!!
Watch run from the cure
Is this guy still alive?
th-cam.com/video/WhjirpPrmCE/w-d-xo.html
He passed away in July of 2022
They all die.........no one escapes.
😢😢😢
It’s a death sentence for sure. My brother passed away just 3 months from diagnosis of GBM.
@@CrystalDimensions5Meine Schwester nach 20 Monaten
To everyone reading this please turn to Jesus He loves you and want to save you, Only Jesus can truly heal, He is the God of miracles and the bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, I seen God do amazing things in my life and in the life's of people I know, There is nothing impossible to God its as simple as asking Him to show you He is REAL, and if you really want to know He will answer you, I know this because it happened to me,
Is this Some kind Head Zapper? !He need to try Cannabis Oil, FECO!