My Acoustic Neuroma Experience - Part 4 - Facial Weakness and Taste

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  • เผยแพร่เมื่อ 6 ก.ย. 2024
  • Prior to going into surgery for an acoustic neuroma, I attempted to find something on the Internet which explained the human side of recovery but found very little on the topic. What I did find was a bit disheartening, so I wanted to provide some feedback on my experiences both in the hospital and during my recovery at home.
    This video explains my experience with facial weakness and taste as a result of nerve damage and what someone might expect while recovering from an acoustic neuroma (aka Vestibular schwannoma) operation while at home.

ความคิดเห็น • 10

  • @richblackman1
    @richblackman1 11 หลายเดือนก่อน +1

    I went from eating sugar on all of my starches to not eatin sugar at all.

  • @htube9417
    @htube9417 6 หลายเดือนก่อน

    How many days you go for work, after acoustic neuroma microsurgery?

  • @upradeepkumar25
    @upradeepkumar25 9 ปีที่แล้ว

    HI Ed,
    I also got same symptoms as u. If I am seeing the video it remembers me what happened in my life. My one of eyes are not closing properly and mouth also going one side. Eye redness and closing eye with one hand and all happened in my life too.Really 5 years happened from my surgery. When I saw u in video ur looks like a normal person as without surgery. Thanks to that good surgeon. I also went under surgery and after a year tumor got increased again and after that I went radiation therapy.
    Please please please add a video of what exercises you did for these facial imbalance. And please suggest any other help.
    pradeep kumar.U

    • @EdEngelkingII
      @EdEngelkingII  9 ปีที่แล้ว +1

      pradeep kumar I did no exercises for the facial weakness. It cleared up on its own after a few months. I still have facial weakness, but it isn't as pronounced as it was after the surgery.
      I hope that yours eventually recovers, as it can take some time for it to do so. All my best!

    • @upradeepkumar25
      @upradeepkumar25 9 ปีที่แล้ว

      Ed Engelking II Thanks for your response.It's five years gone after my surgery but still i have the facial weakness.I think need to do some facial exercises that's why asked you and also i understood the surgeon didn't do the surgery (in india) well for me. Ok thank you once again for ur response.

  • @MauroRincon
    @MauroRincon 8 ปีที่แล้ว

    Hi Ed. I'm undergoing the procedure soon and hope it goes as well as yours. Can I ask how large was your neuroma?

    • @EdEngelkingII
      @EdEngelkingII  8 ปีที่แล้ว

      +mauricio rincon No problem, it was 24mm.

    • @MauroRincon
      @MauroRincon 8 ปีที่แล้ว

      +Ed Engelking II Hi Ed. I was told I'm in the suze threshold to apply something called the gamma knife. The risk there is that further swelling for a tumor the size of mine could cause serious balance issues for a long while. Did they tell you about this?

    • @MauroRincon
      @MauroRincon 8 ปีที่แล้ว

      +mauricio rincon My neuroma is 2.2cm

    • @EdEngelkingII
      @EdEngelkingII  8 ปีที่แล้ว

      +mauricio rincon Sorry, I just saw your reply. I did receive this information, however the gamma knife wasn't an option for me due to the size of the tumor and my age (too young). They did say that there was a risk of damage to the nerves and I could experience dizziness, additional loss of hearing, and facial weakness.
      Unfortunately, there is no perfect treatment.