I had Ghama knife and my neuroma is growing again. Waiting on drs to decide on surgery is stressful. I too suffer from all of ur symptoms wow. Glad to hear u are on your way to a healthier life... (or a new normal)
I understand the stress. If I could do it over again, I would choose the option where they go through the ear canal instead of going through the skull. The odds of saving your hearing is incredibly low, and the side affects from the craniotomy simply are not worth it in my opinion. Either way, choose the option that YOU are comfortable with, and don't let anyone (including doctors) pressure you into doing something you don't wish to do.
Ok thank you for your advise I would probably choose the option with less down time as I am the caretaker of my family hence my original option of ghamma knife... not too worried about my hearing in that ear s I only have 10% left anyhow due too Bell’s palsy I’m currently wearing hearing aides on both and know eventually I will be deaf. Or so doctors say.. So sorry u have gone through that and glad to hear things are better... I am optimist and know all well be well for me... thanks again...
Thankyou. I know these are a few years old now but just wondered how you are doing and how many years post op you are? I am awaiting surgery myself. Thankyou
Hello Ed, I'm curious if you got your MRI's with contrast (Gadolinium) or without contrast before your acoustic neuroma surgery? Gadolinium is a heavy metal and a neurotoxin. It is only safe if the Gadolinium stays attached to its carrier molecule and gets quickly excreted in the urine.
What were you initial symptoms?? I have the ringing in my left ear, fullness like not clogged but not under water I think I can still hear, very off balance , veritgo, dizziness, nausea, mirgraines, headaches, fatigue, I have a mri on Monday to see if I have AN
I had hearing loss in my left ear. Outside of that, there was little indication. One week prior to the surgery, my sense of balance went haywire as the tumor was destroying the nerve. So much, in fact, that they ended up having to remove the vestibular nerve entirely as the tumor destroyed it.
Hey stranger. I have dad's favorite ring. Just wondering if you wanted it, since you took care of his funeral stuff? I already have stuff of his to remember him by.
Thank you and i wish you the best from the Netherlands your video’s help me and keep je going on thank you so much.!
I had Ghama knife and my neuroma is growing again. Waiting on drs to decide on surgery is stressful. I too suffer from all of ur symptoms wow. Glad to hear u are on your way to a healthier life... (or a new normal)
When you had gama knife ???
Rajan L I had ghama knife in 2013
I understand the stress. If I could do it over again, I would choose the option where they go through the ear canal instead of going through the skull. The odds of saving your hearing is incredibly low, and the side affects from the craniotomy simply are not worth it in my opinion. Either way, choose the option that YOU are comfortable with, and don't let anyone (including doctors) pressure you into doing something you don't wish to do.
Ok thank you for your advise I would probably choose the option with less down time as I am the caretaker of my family hence my original option of ghamma knife... not too worried about my hearing in that ear s I only have 10% left anyhow due too Bell’s palsy I’m currently wearing hearing aides on both and know eventually I will be deaf. Or so doctors say.. So sorry u have gone through that and glad to hear things are better... I am optimist and know all well be well for me... thanks again...
Thankyou. I know these are a few years old now but just wondered how you are doing and how many years post op you are? I am awaiting surgery myself. Thankyou
Looking good! :)
Hello Ed, I'm curious if you got your MRI's with contrast (Gadolinium) or without contrast before your acoustic neuroma surgery? Gadolinium is a heavy metal and a neurotoxin. It is only safe if the Gadolinium stays attached to its carrier molecule and gets quickly excreted in the urine.
What were you initial symptoms?? I have the ringing in my left ear, fullness like not clogged but not under water I think I can still hear, very off balance , veritgo, dizziness, nausea, mirgraines, headaches, fatigue, I have a mri on Monday to see if I have AN
I had hearing loss in my left ear. Outside of that, there was little indication. One week prior to the surgery, my sense of balance went haywire as the tumor was destroying the nerve. So much, in fact, that they ended up having to remove the vestibular nerve entirely as the tumor destroyed it.
Did your MRI show a AN? How are you now?
Hey stranger. I have dad's favorite ring. Just wondering if you wanted it, since you took care of his funeral stuff? I already have stuff of his to remember him by.