I’ve had this surgery on both eyes very recently (in the UK) and I’ve got to say it’s not as bad as it looks, the anaesthetic eye drops help stop any pain during the surgery, and I was sent home with some to use that day to help as well. The first day is pretty difficult to deal with, I recommend taking it easy, going to sleep, using anaesthetic eye drops and pain killers (whether it’s paracetamol or prescribed codeine- I was prescribed codeine). After day 1, the pain usually has subsided, but I noticed my eyes were pretty sensitive to light for a few days afterwards. I thought I’d mention the extensive medication you have to take after the surgery… I was prescribed a mix of eye drops and tablets, most of them were only on a 3-7 day course so you’re done with most of the meds after a week. Although, I was prescribed 4 weeks of Aciclovir anti virals 4 times a day, which made me very sick after I got my first eye done, but they lowered the dosage to 2 times a day after my second eye was done, and so far I’m feeling okay. Don’t let the video put you off, I’m currently 1 week post surgery watching TV happily and able to go out and enjoy myself with no issue. Just be prepared for a painful first day, and wear sunglasses to help.
Hey everyone! Just to let you know I’ve had mine done on Tuesday. The pain is very bad you might feeling an eye lash poking in your eye but after a few hours it goes away and you’ll feel discomfort. The next day won’t be as bad, and you’ll just have to ignore the pain. The day I went to get checked out the doctor said my eye was healing pretty well. If they prescribe you any codamol codeine make sure to take it after the surgery if the pain is that bad. Only downside is you’ll have to wear a shield over your eye and a bandage so that your eye remains closed after the surgery. I’m currently taking eye drops every hour my left eye is open I can still see but it’s a bit blurry. If you get extra nervous before make sure to ask the doctor for diazepam. Hope this has helped any questions or worries let me know, and I’ll get back to you soon as possible :)
Having this procedure done tomorrow and watching the videos of them touching the eye is making me squeamish. Hopefully all goes well and my vision gets better.
@@jbcool9178 hey. It went well only really hurt for the first week I would say, the next day after the procedure you go back so the doctor can check how’s everything is going and you keep going constantly for the first month.
I m already done. first day was painful bt after 1/2 days its okay no pain my doc dont give eye bandage. Now its recovering bt need glass or contact lens after 2 month
The pain after treatment hurts feels like salt in your eyes but it goes away after a day but I remember falling asleep with my face outside because it was cold and made it feel better
I'm 33 in Utah - will be getting both eyes done this month 12/21 and am a little worried about trying to work with one eye. I'll come back and let you guys know how it goes. Had a baby this year and other procedure so this is 'free' due to hitting my max out of pocket. I'm getting it done at Hoopes Vision in Sandy, UT - think total cost was around 6k on paper
follow-up - i had no incisions in my operation just drops and light. two days were not the best - a constant irritation but the narcotic they gave me was more than enough to get me through. third day i feel back to normal with a clear contact on my eye that they'll take off next week. the only recommendation i give is at night when you put your eye guard on - be sure to use more than just two pieces of tape - my first night i took mine off in the middle of the night without knowing and was touching my eye which freaked me out. just use like four long pieces of tape and you should be good
@@Flyingwithcanelo sure - i have my second surgery for my left eye on the 28th. i was really worried about not being able to see in both eyes at once but after i went in and they took the clear contact bandage off and i'm just putting in anti inflamatory drops as a precaution. my eye doesn't hurt or bother me - can't see better than before out of it but that's to be expected. he said i could probably use my same sclera lense about 4.5 weeks after the initial surgery - i am texting my optometrist and she is the one that's gonna order me a new set of scelera when i'm done with both eyes - but he said the topography of my eye shouldn't have changed enough for me to worry too much about using my contact before the surgery. eye feels good though - doctors said i got good crosslinking from it.
@@haonrolyat Im gonna get my first surgery on 5th. But will glasses or lenses help me get my vision back later. Right now it moderate for me(No need for cornea transplant yet). But my doc said it's uncurable. Does that mean glasses and lens wont help?
@@haonrolyat my surgery is scheduled in about two weeks. I assumed I'd be asleep for the surgery, but after watching this i see that's not the case... I'm worried about moving during the procedure. Sometimes if I'm cold or stressed my entire body will uncontrollably jolt, like a chill washing over me and my body has to move suddenly to get warm. It happens to me very rarely, but do you know if the surgeons prepare for this in anyway? Or did you just have to force yourself to stay still for the entire time?
Pardon my ignorance. But if your cornea is cone shaped, and you fix it while it's in this shape, you prevent it from getting worse, but also from getting better. Is there a way to soften the cornea, give it the right shape, and then strengthen it?
I’m not too sure about this either, but I know that some people are given special contact lenses to help, as well as the surgery. However I’m not sure about how they return the cone shape back to a normal shape
Hi, Dr Monson, from Monson Vision. Often we will perform epi-on cross-linking (no need to remove epithelium). the cross-linking fixes (and flattens a little) the cornea. Simultaneously will perform INTACS corneal inlays to resolve the irregularity and astigmatism. This puts many our young patients in range for EVO ICL or TORIC EVO ICL. Hope this helps
No. It will only prevent it from getting worse, but will not improve what you currently have. If you want to have better vision you'd have to have a corneal transplant.
Hi can you please answer this question I have been diagnosed for cross linking surgery 2 months ago but after 1 month I have been seeing in double vision can you say me is this regards any problem of my eye please tell I hope you answer my question
@@jamesa6272 i just had my cxl done couple days ago and my right eyes vision is bad atm, but it’ll get better in couple weeks so nothing to worry about
Holly Molly at night is when the pain start kicking. I did mine on the left eye. After a year, the doctor told me to do it in my right eye. I'm scare because my right eye is the only eye I can see.
I finally did it in my right eye, everything went as expected. Now, I'm doing monthly checkup to check the back of the cornea. Thanks God everything went fine with no complicated.🙏.
Got this done before it was approved so I had to come outta pocket with the money it worked for a little bit but the hard contacts hurt and are very irritating
I had cross linking done last December, sure the keratoconus is under control but my vision in general is worse. The hospital ophthalmologist just said go and get a dtronger pair of glasses. Umm yeah like I have that money just sitting around.
Yes. Do everything the doctors say. Get whatever treatments they recommend. I waited too long and my vision has deteriorated very badly. Wish I would have had the surgery when they first recommended it
It's nothing to freak out about. they put numbing drops on your eye so you won't feel anything. The only thing that got uncomfortable for me after a while was the UV light that shined into the eye for what felt like forever. After the procedure, it was fine too, no pain no discomfort. What I did personally was I took 2 painkillers (even though I didn't feel any pain) and went straight to bed. Stayed relaxed till the next day and there was no pain or discomfort. I hope this helped. You'll be okay
@@hunnybSue you can get glasses with any lens for $125 at warby parkers website, but glasses arent going to work if you have keratoconus. im currently in the fitting process for custom contacts that are supposedly supposed to work for keratoconus, called scleral lenses
@@Akash-bf2vf no insurance, every British citizen gets free healthcare. Doesnt matter how much money you have, absolutely free for everyone. Cost me £0
The operation itself wasn't too unpleasant you get a bit tired with the UV lights in your eye but it's not that bad. After op they put a bondage on the operated eye tho I got a mad headache so I took medecine and just rest the afternoon and night eventually the headache progressively gets less and less bad after around 20/24 hours then you just keep up with the drops that he doctor prescribed tho they told me to keep the bondage on the op eye for almost a whole week so yeah
The incarnation of boredom So sorry to hear that! The surgery itself is fine! But he might experience afterpain but it really differs per person! I hope he will be doing well. 💕
@@qausahmad8401 During the surgery you won't feel anything. They will put some metal things around your eyes to keep them open and an assistant keeps putting drops on your eyes to avoid getting them dry. But after everything is done, you might experience a lot of pain. You will get pain killers for this. Good luck :(
Worst thing ive ever had done couldn't open my eye for days afterwards the pain was ridiculous felt like i had glass stuck in it couldn't do nothing but sleep couldn't feel nothing during the operation just when the anasteic run out really bad pain
i have keratoconus on both eyes. my eyeglasses fix the blur. but they dont fix shadows, the halos around lights and light streak. i had cxl done 3 months ago. no change.
@@gaminglife0928 I did this before 4 years. Initially there was no improvement with eyeglasses. Only little improvement like I can first two lines but after 3.5 years with eye glasses can read 4 lines. So don't worry it will take time and patience
My vision currently is so bad that I'm wondering if I'm turning blind though I was told to get some contact lenses but at the moment I don't have the cash so probably later
Before the procedure I was told, it wasn’t going to be painful, after the procedure, I was told by the consultant that the pain is comparable to child birth
The won't, but the numbing drops it will be painless. Also, my center gives you option for pill taken 45 minutes before procedure that calms your nerves. I'm drawing a blank on the name of it. But I would suggest taking it.
Hi / Mr. Mrs My father is suffering from Keratokonus, While serving in Afghanistan he injured his eyes and after than gradually he had eye problems. for now he has 40% vision left in eye, and almost 0% in his right eye, and we were offered morbid solutions by our doctors such as impacted eye removal. Our question is, does your clinic treat or perform anything to repair or fix keratokonus, and is it even treatable at this stage or not?. Any info would be greatly appreciated.
Hi can you please answer this question I have been diagnosed for cross linking surgery 2 months ago but after 1 month I have been seeing in double vision can you say me is this regards any problem of my eye please tell I hope you answer my question
Today I get to know that I have keratoconus values of about more than 47 on both of my eyes. They have said that I need to undergo C3R surgery in order to correct this. What should I do. Shall I priceed or are there any complications in future?
Hi I have a question. I recently had the crosslinking procedure done 3 days ago in Mexico. I did both eyes and I was only under the uv light for 5 minutes each eye when i have seen that most patients are under the uv light for 30 minutes per eye. I was also not given a contact to protect my eye after the surgery. Is rhia normal?
Where did you get your surgery done, bro? Im in Tijuana Mx and had a cornea transplant done here in Clinica de ojos de Tijuana. Shit man I never wouldve thought that I would have ended with keratoconus.
mario gutierrez I got it done in this week, was 5 mins. With higher intensity UV 5 mins should be sufficient, is what my doctor told me. How is your vision now?
No, this surgery will keep the vison as it is and prevent it from worsening over time, using hard contact lenses or glasses after this surgery will be the aspect which improves your vision
@@rickbrazil4944 I am yet to have the procedure done still. I have an appointment with the opthalmologist this week and they will give me a date as I have to have it done 5 hours away. But when I have, will keep you posted.
I'm really worried about going for the epi off procedure, even though it's more effective. I have an early Keratoconus in my right eye. I'm 29 by the way. Any advice?
I have my scleral lenses for a few days now but i still see a shadow above. If i force my eyes a little bit it disappears. I study med school but I dont know if i can finish it because of my vision. Can the shadow above disappear? Is it just that the lens need to be remake? I hope you see this and help me docter its so depressing. I just want to be able to read without seeing the shadow above.
I'm scheduled to have this done next month and in my pre-procedure outline they told me one hour and 45 minutes. From the time you lay down to the time you get up. What's different from this video is the riboflavin portion and the UV light portion are at least 30 minutes, not 5 minutes.
Procedure itself went fine. From the time I was brought back for pre-op to walking out the door was less than 2.5 hours. Nothing was painful during the procedure, just a little freaky when they rub the surface of your eye & everything hazes over. The center I went to doesn't provide you with the prescription for Tylenol with codeine until the day of procedure. So I only had access to normal Tylenol until I got prescription filled. The numbing drops wore off about 10 minutes after walking out the door. I live about 1 hour & 25 minutes from the center, so that wasn't exactly fun. Spent the first 12 hours post-op in the darkest corner of my basement and had a family member help me with putting the various drops in on a schedule. After getting the "good stuff" Tylenol was able to fall asleep. By next morning, I was still light sensitive but pain was tolerable. Pain levels decreased again in the next 24 hours, then again in the next 24. Felt normal 4 days after. Light sensitivity didn't existed for at least 14 days after, would wear Cocoons fitovers on my glasses while driving. Also suggest asking center that does it for you, if they provide goggles for when you sleep to avoid the chance you rub your eye while sleeping. I wore mine for the first 20 days post-op to bed, which is more than suggested time. My vision initially was worse because you have a surgical non-prescription contact in and the eye isn't healed. Contact was removed 5 days after procedure, pain level & light sensitivity increases for about 48 hours after because when you blink it's back to being on the repaired eye. Vision levels got back to pre-op 20 days after procedure. My level of correction needed decreased by 1 level (I can't remember correct term) at 30 days. At 60 days, it was still 1 level better. I haven't gone back since or purchased new glasses since the eye can continue to heal/change for months after. I'm also planning on having my other eye done this fall. If you count the procedure, the various drops, Tylenol with codeine, Cocoons and post-op visits, I'm at $3500. My insurance covered a % of the drops, Tylenol with codeine and post-op visits. It didn't cover the actual procedure. I have Blue Cross & Blue Shield. I know the center I went to is on the higher range of cost, but is the nearest to where I live and has been doing this procedure since it was in clinical trials. If you have other questions, let me know.
Just did my left eye in Ohio. Am waiting for my right. It’s strange and a bit painful for the first week and u will not be able to do anything other than just listen to podcasts or music. And rest in a dark room. But after one week you will be good
got mine done about a month ago and it’s honestly not that bad, you’ll feel pain for about 2-3 days and discomfort for about a week. also i was light sensitive for about 3-4 weeks. so wear some sunglasses lol. other than that you’ll notice some improvements in eye sight. not guaranteed but there can be improvements. for example my double vision from close has greatly improved and now i can see letters without seeing double of them.
Well, my honest opinion to this, Corneal Cross-linking is not enough, it stops the progression of Keratoconus but your vision won't improve at all in many cases its even worse then before , if you want immediate results then you should do CXL + Lasik\Lasek this is the only way to get immediate results and a super clear vision. No more double visions, halos and you don't even need to wear any hard or Skleral Contact lenses. I had CXL 8 month ago now I need to wait 4 more month to have the Lasik\Lasek Laser eye surgery, if I knew it better, I had done CXL + Lasik\Lasek from the beginning, it cost a fortune but Its Worth it.
@@alpousnoo3442 haven’t had mine done yet honestly but from what I’ve heard from my appointments so far there’s a good chance that your vision will improve.
Same here, it’s been a medical necessity for a couple years now but my insurance still won’t pay for it so I’m biting the bullet and just getting it done. Next week. I’m so nervous>
For me (in the UK), it was 30 minutes of Riboflavin being injected every 2 minutes (I.e. 15 times), then whilst the light was on my eye for another 30 minutes, they dropped the riboflavin into my eye every 2 minutes again. So total surgery for me was 1 hour, including 30 minutes of UVA light
what is the whole point of getting this does it improve vision? Can you see better when it's done or is it just strengthening the skin of the eye or cornea and no improvement for eyesight
I need to know how this kid did not move at all -- I'm extremely nervous for how my body reacts as I get anxious when they even put drops in my eyes LOL
Sir I am having myopia power last 10 years my age is 26 years old. Recently I noticed that when I see thing I sow ghost shadows and then I went to eyes chick then they told that I have got .5 astigmatism problem even my mother has astigmatism problem but she has from starting but I have got at 26 I am afraid that I have astigmatism or korticices keratoconus sir plz plz reply my question :-(
@@Akash-bf2vf worst pain I've had In my whole life after the anesthetic wore of couldn't see a thing like having glass in your eyes for three days afterwards not nice
I have keratoconus on both my eyes. My left eye vision is worst than right eye. Recently my right eye also experiencing bad vision and it's getting worst. I have been in follow-up for last 2 years. Don't know what treatment I should require. By the way I'm 24 years old.
Hi Mel, We have 5 locations in Middle Tennessee but do Corneal Crosslinking at our Nashville and Goodlettsville, TN clinics. Visit us online at www.lodenvision.com for more or give us a call at 615-859-3937. Thank you!
I’ve had this surgery on both eyes very recently (in the UK) and I’ve got to say it’s not as bad as it looks, the anaesthetic eye drops help stop any pain during the surgery, and I was sent home with some to use that day to help as well. The first day is pretty difficult to deal with, I recommend taking it easy, going to sleep, using anaesthetic eye drops and pain killers (whether it’s paracetamol or prescribed codeine- I was prescribed codeine). After day 1, the pain usually has subsided, but I noticed my eyes were pretty sensitive to light for a few days afterwards. I thought I’d mention the extensive medication you have to take after the surgery… I was prescribed a mix of eye drops and tablets, most of them were only on a 3-7 day course so you’re done with most of the meds after a week. Although, I was prescribed 4 weeks of Aciclovir anti virals 4 times a day, which made me very sick after I got my first eye done, but they lowered the dosage to 2 times a day after my second eye was done, and so far I’m feeling okay. Don’t let the video put you off, I’m currently 1 week post surgery watching TV happily and able to go out and enjoy myself with no issue. Just be prepared for a painful first day, and wear sunglasses to help.
How long did it take for you to recover enough to go back to work? I may be getting this procedure soon
Thank You for letting us know of your experience. Always good to get a patient perspective.
Hi, question did this surgery brought you back to seeing 20/20 without your medicated glasses or contact lens?
What was the down time ?
Happy to hear. I'm 3 days in post op and I feel 80% better already. The only caveat being some crusty eye feeling that can get quite irritating.
I had this done to my left eye in 2011 and now I'm getting it done in my right eye next Tuesday. Thanks for the video, it's very informative!
has your vision improved??
roggeralves94 how is ur visoon now?
His this hurt
www.righttosight.net/post/keratoconus-you-eye
Did it work? would you recommend it to me?
I had my cross-linking yesterday. Watching this video helped me know what to expect
How did it feel? I have mine on Tuesday and I am having seve anxiety over it 😭
How was it Sir, has it been successful?
@@AbbieF11 how was it.i am anxious waiting for mine.
Hey everyone! Just to let you know I’ve had mine done on Tuesday. The pain is very bad you might feeling an eye lash poking in your eye but after a few hours it goes away and you’ll feel discomfort. The next day won’t be as bad, and you’ll just have to ignore the pain. The day I went to get checked out the doctor said my eye was healing pretty well. If they prescribe you any codamol codeine make sure to take it after the surgery if the pain is that bad. Only downside is you’ll have to wear a shield over your eye and a bandage so that your eye remains closed after the surgery. I’m currently taking eye drops every hour my left eye is open I can still see but it’s a bit blurry. If you get extra nervous before make sure to ask the doctor for diazepam. Hope this has helped any questions or worries let me know, and I’ll get back to you soon as possible :)
Having this procedure done tomorrow and watching the videos of them touching the eye is making me squeamish. Hopefully all goes well and my vision gets better.
Hey I got this done twice. I hope your procedure went well and you’re feeling better!
@@franchescamecerdes7473 how did the procedure go?
@@jbcool9178 hey. It went well only really hurt for the first week I would say, the next day after the procedure you go back so the doctor can check how’s everything is going and you keep going constantly for the first month.
Today is my one
@@franchescamecerdes7473 hey after this procedure is your vision is proper now?
Going in for this tomorrow...wish me luck...
Hows the operation?
How was it?? How was recovery? I’m getting it done soon
I m already done. first day was painful bt after 1/2 days its okay no pain my doc dont give eye bandage. Now its recovering bt need glass or contact lens after 2 month
Arafat Raft could you see after the surgery? Or after a few days you could kinda see?
@@GaelPorFlo few days i could kinda see need glass or lens must needed for me now
For those squirmish in the eyes. Take a stress ball and just talk to
Your doctor during the procedure
The pain after treatment hurts feels like salt in your eyes but it goes away after a day but I remember falling asleep with my face outside because it was cold and made it feel better
I'm 33 in Utah - will be getting both eyes done this month 12/21 and am a little worried about trying to work with one eye. I'll come back and let you guys know how it goes. Had a baby this year and other procedure so this is 'free' due to hitting my max out of pocket. I'm getting it done at Hoopes Vision in Sandy, UT - think total cost was around 6k on paper
follow-up - i had no incisions in my operation just drops and light. two days were not the best - a constant irritation but the narcotic they gave me was more than enough to get me through. third day i feel back to normal with a clear contact on my eye that they'll take off next week. the only recommendation i give is at night when you put your eye guard on - be sure to use more than just two pieces of tape - my first night i took mine off in the middle of the night without knowing and was touching my eye which freaked me out. just use like four long pieces of tape and you should be good
@@haonrolyat Are you able to keep updating with the statues of your progression and if it actually worked, thatd be awesome!
@@Flyingwithcanelo sure - i have my second surgery for my left eye on the 28th. i was really worried about not being able to see in both eyes at once but after i went in and they took the clear contact bandage off and i'm just putting in anti inflamatory drops as a precaution. my eye doesn't hurt or bother me - can't see better than before out of it but that's to be expected. he said i could probably use my same sclera lense about 4.5 weeks after the initial surgery - i am texting my optometrist and she is the one that's gonna order me a new set of scelera when i'm done with both eyes - but he said the topography of my eye shouldn't have changed enough for me to worry too much about using my contact before the surgery. eye feels good though - doctors said i got good crosslinking from it.
@@haonrolyat Im gonna get my first surgery on 5th. But will glasses or lenses help me get my vision back later. Right now it moderate for me(No need for cornea transplant yet). But my doc said it's uncurable. Does that mean glasses and lens wont help?
@@haonrolyat my surgery is scheduled in about two weeks. I assumed I'd be asleep for the surgery, but after watching this i see that's not the case... I'm worried about moving during the procedure. Sometimes if I'm cold or stressed my entire body will uncontrollably jolt, like a chill washing over me and my body has to move suddenly to get warm. It happens to me very rarely, but do you know if the surgeons prepare for this in anyway? Or did you just have to force yourself to stay still for the entire time?
Topography guided cross linking is the new hot treatment which might lead better vision
Pardon my ignorance. But if your cornea is cone shaped, and you fix it while it's in this shape, you prevent it from getting worse, but also from getting better.
Is there a way to soften the cornea, give it the right shape, and then strengthen it?
I’m not too sure about this either, but I know that some people are given special contact lenses to help, as well as the surgery. However I’m not sure about how they return the cone shape back to a normal shape
Hi, Dr Monson, from Monson Vision. Often we will perform epi-on cross-linking (no need to remove epithelium). the cross-linking fixes (and flattens a little) the cornea. Simultaneously will perform INTACS corneal inlays to resolve the irregularity and astigmatism. This puts many our young patients in range for EVO ICL or TORIC EVO ICL. Hope this helps
Im legally blind* in one eye and not great vision out the other. When i get this, will my vision improve?
No. It will only prevent it from getting worse, but will not improve what you currently have. If you want to have better vision you'd have to have a corneal transplant.
Wow Forreal
Hi can you please answer this question
I have been diagnosed for cross linking surgery 2 months ago but after 1 month I have been seeing in double vision can you say me is this regards any problem of my eye please tell I hope you answer my question
I did mine last Thursday. It was a good procedure and no pain during the process.
Any update. Are you able to see better
Yaa plz update it will improve ur vision
@@aneeshasingh654 it won't improve. But there is a possibility. I did it almost 4 years back. Mine has not gone worse nor improved
I need this done but I’m so scared of any complications that come with it.
only 3% come with complications. so nothing to worry about
I need this and I’m only 15 and I’m terrified
My cornea dr said there is a chance that your vision can get worse after this procedure
@@jamesa6272 😬😬
@@jamesa6272 i just had my cxl done couple days ago and my right eyes vision is bad atm, but it’ll get better in couple weeks so nothing to worry about
Holly Molly at night is when the pain start kicking. I did mine on the left eye. After a year, the doctor told me to do it in my right eye. I'm scare because my right eye is the only eye I can see.
Its 3days man dont get up the bed.
I finally did it in my right eye, everything went as expected. Now, I'm doing monthly checkup to check the back of the cornea. Thanks God everything went fine with no complicated.🙏.
@@zaffirk7726 congrats man is there any improving
@@sul3y no improvement in vision. But, the main goal was to stop(freeze) the cornea to grow. And everything is going according to plan.
@sivan ferna my left eye is blurry but my right eye is almost 20/20.
In getting this done on Wednesday on my right eye and im so nervous😭😭
Im getting mines this Wednesday im nervous too. How did yours go since your comment is three weeks ago.
I get in both eyes 6 months agao
I have to get it done on my right eye I’m scared
Guys does this surgery hurts ?
@@iliasp8260 no not at all because your eye is numb you don’t feel anything i got it done like 4 weeks ago
Got this done before it was approved so I had to come outta pocket with the money it worked for a little bit but the hard contacts hurt and are very irritating
Same as you. Had it done in 2017 and it was $1500 per eye
I’m 15 and I need to have this done and I’m terrified
i did it last monday on both eyes but thank god im doing great now its not a big deal tho !! good luck for you and stop worrying too much
I had cross linking done last December, sure the keratoconus is under control but my vision in general is worse. The hospital ophthalmologist just said go and get a dtronger pair of glasses. Umm yeah like I have that money just sitting around.
Same I had it done last November and my vision now is so bad had me worried if I'm turning blind or something
Same happened with me ,my c3r was done in 2019 , can u tell me any solution for this
Having this operation tomorrow for my right eye. Really hope it doesn't get worse or that i'll be in great pain. Hoping I get through it. :(
How was it? Going to have it on 12th of September.
My eye doctor just told me i might/likely have keratoconus and now i'm scared, depressed, and hopeless. Does anyone have any advice for me?
Don’t be hopeless, they are working wonders with advancements in surgery and understanding of corneal ectatic disorders.
Yes. Do everything the doctors say. Get whatever treatments they recommend. I waited too long and my vision has deteriorated very badly. Wish I would have had the surgery when they first recommended it
@@andrewholmes8105 alright thanks Andrew. Do those new scaleral contacts work for you?
i'e had keratoconus for like 3-4 years now, its not painful for me, they told me to get this procedure and im scaredddd
Bro chill i ve done this to both of my eyes almost six years ago i was in class 7 at that time.
I’m getting this done next Tuesday on my left eye I’m freaking out...
It's nothing to freak out about. they put numbing drops on your eye so you won't feel anything. The only thing that got uncomfortable for me after a while was the UV light that shined into the eye for what felt like forever. After the procedure, it was fine too, no pain no discomfort. What I did personally was I took 2 painkillers (even though I didn't feel any pain) and went straight to bed. Stayed relaxed till the next day and there was no pain or discomfort. I hope this helped. You'll be okay
Me to I’m pissed I got diagnosed in my late 20s
@@TheoneandonlyRobi i got diagnosed this at19...
@@tissuebox9135 I think I get this and gonna see the doctor next week...
@@jingyaowen5660 Good luck, It's actually great you're being seen early about it... I hope :)
I'm having this tomorrow and nervous about it big time
I hope you're doing well
I dont understand what corneal crosslinking is, is it a cure for keratoconus?? does it also correct your vision back to normal?? like 2020?? thanks
its to prevent your eyes from getting worse, it does not reverse it stabilizes the cornea from my understanding
@@saberur66 Okay, thank you so much!
My vision is worse, can't afford stronger glasses.
@@hunnybSue you can get glasses with any lens for $125 at warby parkers website, but glasses arent going to work if you have keratoconus. im currently in the fitting process for custom contacts that are supposedly supposed to work for keratoconus, called scleral lenses
@@1lifeonearth im in NZ not the USA
Can't wait to afford this!!!!
Completely free here in the UK, god bless 'merica
@@100yugiohtrader free !?
@@Akash-bf2vf yes the UK has free healthcare
@@100yugiohtrader wow!! May be you've got insurance
@@Akash-bf2vf no insurance, every British citizen gets free healthcare. Doesnt matter how much money you have, absolutely free for everyone. Cost me £0
I'm from Thailand i don't have any money to see a doctor 😭😭😭😭
Is it advisable to get this procedure done on both eyes on the same day?
Hi I don't think so for bilateral. There are cases when one eye is done and then the second eye the week later
@@jodyaisling6210 thanks
Watching it and i am scheduled for it after 30 mins
Just had this done on my right eye. Left eye later this summer.
I'm having this today.. Guess I'll update how it went
How did it go
The operation itself wasn't too unpleasant you get a bit tired with the UV lights in your eye but it's not that bad. After op they put a bondage on the operated eye tho I got a mad headache so I took medecine and just rest the afternoon and night eventually the headache progressively gets less and less bad after around 20/24 hours then you just keep up with the drops that he doctor prescribed tho they told me to keep the bondage on the op eye for almost a whole week so yeah
@@adrian-_1748 did your eyesight improve? Do u still have to specs or contacts? Is it permanent? Meaning permanent improvement
@@FaveTVShows27 didn't really feel a improvement with my eyesight.
And no I don't have specs or contacts rn
@@adrian-_1748 how much did it cost
My boyfriend had to undergo this. After the procedure he was in enormous pain for about 3 days. Especially the first one... :(
My boyfriend is going in for the surgery tomorrow... I'm so scared.
The incarnation of boredom So sorry to hear that! The surgery itself is fine! But he might experience afterpain but it really differs per person! I hope he will be doing well. 💕
He is okk now..i passing through this
Does it hurt during the surgery? Please let me know.
@@qausahmad8401 During the surgery you won't feel anything. They will put some metal things around your eyes to keep them open and an assistant keeps putting drops on your eyes to avoid getting them dry. But after everything is done, you might experience a lot of pain. You will get pain killers for this. Good luck :(
Am having this procedure for my right eye in one week, am nervous already
Is it true it's not very effective for patients in their 40s or older (due to cornea being fully stiffented already when we hit our 30s)?
Worst thing ive ever had done couldn't open my eye for days afterwards the pain was ridiculous felt like i had glass stuck in it couldn't do nothing but sleep couldn't feel nothing during the operation just when the anasteic run out really bad pain
How about your vision now?
@@Akash-bf2vf it's improved mate just need my right eye done now
Hey how long did it take for u to be able to see out of ur eye after the surgery
i have keratoconus on both eyes. my eyeglasses fix the blur. but they dont fix shadows, the halos around lights and light streak. i had cxl done 3 months ago. no change.
Power of your eyeglasses
@@febinbabu11 -4.5
@@gaminglife0928 I did this before 4 years. Initially there was no improvement with eyeglasses. Only little improvement like I can first two lines but after 3.5 years with eye glasses can read 4 lines. So don't worry it will take time and patience
You are right about halos and shadows though
@@febinbabu11 my vision on both eyes is 6/6 with glasses. that's not the problem. problem is I see lots of ghosting.
Would love your thoughts on epi-on versus epi-off crosslinking!
What’s the recovery time after this procedure?
2-3 days
@@Monique1995R do you know if you can see at all during those 2 days or is one totally blind ?
Mantloane Diale You’ll be covered with bandages over your eyes, so yeah you won’t be able to see. 😕
@@ngwatomosadi1531 you'll be covered in bandages for about 3days. I had cross linking done for both of my eyes last November
My vision currently is so bad that I'm wondering if I'm turning blind though I was told to get some contact lenses but at the moment I don't have the cash so probably later
I did the operation last year. It was very painful. And my situation got worse.
Before the procedure I was told, it wasn’t going to be painful, after the procedure, I was told by the consultant that the pain is comparable to child birth
Mines worse too
@@zkhn21 its painful but nothing like childbirth.
is there anyway they can knock you out before they do this cause there is no fucking way im not screaming through this
Jonathon Wilson No.
The won't, but the numbing drops it will be painless. Also, my center gives you option for pill taken 45 minutes before procedure that calms your nerves. I'm drawing a blank on the name of it. But I would suggest taking it.
Eric Ortner so how is your sight now much better than before? Pls do tell.
@@fred8453 it doesn’t help your eye sight it just stops it from deteriorating
@@EricOrtner We offer Valium (diazepam)
Hi / Mr. Mrs
My father is suffering from Keratokonus, While serving in Afghanistan he injured his eyes and after than gradually he had eye problems. for now he has 40% vision left in eye, and almost 0% in his right eye, and we were offered morbid solutions by our doctors such as impacted eye removal. Our question is, does your clinic treat or perform anything to repair or fix keratokonus, and is it even treatable at this stage or not?. Any info would be greatly appreciated.
Hi can you please answer this question
I have been diagnosed for cross linking surgery 2 months ago but after 1 month I have been seeing in double vision can you say me is this regards any problem of my eye please tell I hope you answer my question
Same question 1 week out
After the contact bandage is removed, is it normal for your eye to feel like it has sand in it?
Yes
Yes, expect to feel pain for about 24-48 hours post surgery.
Today I get to know that I have keratoconus values of about more than 47 on both of my eyes. They have said that I need to undergo C3R surgery in order to correct this. What should I do. Shall I priceed or are there any complications in future?
I literally had this Monday and im curious about what happens from a third person view ngl ngl
How long did it take you to schedule an appointment for surgery? Is the wait time long? Like does it take you a few months to get into surgery
@@twilight4ever115 I uh had it booked by my doctors my first one was done a year ago? The second done a couple months back
Is this a replacement for corneal rings? "INTACS"
can someone pls tell me if you feel the urge to blink during this procedure?
Hi I have a question. I recently had the crosslinking procedure done 3 days ago in Mexico. I did both eyes and I was only under the uv light for 5 minutes each eye when i have seen that most patients are under the uv light for 30 minutes per eye. I was also not given a contact to protect my eye after the surgery. Is rhia normal?
Where did you get your surgery done, bro? Im in Tijuana Mx and had a cornea transplant done here in Clinica de ojos de Tijuana. Shit man I never wouldve thought that I would have ended with keratoconus.
How much did you pay?? Because probably I'm gonna need a cornea transplant pppllss!! Also, What about recovery???
mario gutierrez I got it done in this week, was 5 mins. With higher intensity UV 5 mins should be sufficient, is what my doctor told me. How is your vision now?
But he dont put the draps in eye when my treatment is happening a bocter put a every single second when uv light is on
Yes you are right
I had this surgery in my left eye
How much is this for both eyes cause I have this contition and my contacts cost $2,300
In India for one eye it costs 240 uss
I'm having this done in 2 weeks I'm terrified. I don't like nothing messing with my eyes.😬😬
What happens if I don’t want to do this?
I have done this surgery but still i see double what to do next?
t-prk + cxl. Look up PLEC in Vancouver
After treating keratoconus disease my vision will be alight like normal?
No, this surgery will keep the vison as it is and prevent it from worsening over time, using hard contact lenses or glasses after this surgery will be the aspect which improves your vision
I have this condition. I’m legally blind without my hard lens contacts. Most insurance wouldn’t cover this procedure.
Having this next Thursday on the worst eye, and I’m terrified. It’s just the thought of removing that eye skin as my doctor jokingly called it.
Going in for my cross linking in 15 minutes wish me luck
How are you now??
I'm having this done on both of my eyes, just found out today. Here for educational purposes but I'm nervous!
How much?
@@deseriejacintho Mine is free
How was the procedure? Can you share some advise thank you
@@rickbrazil4944 I am yet to have the procedure done still. I have an appointment with the opthalmologist this week and they will give me a date as I have to have it done 5 hours away. But when I have, will keep you posted.
@@Vibewiththelee okay thank you for the info. 👍
Dude I’m getting this I thought I was gonna die but doesn’t painful at all
I have to get it too 😕
how did it go, would you recommend it?? hows your vision now??
@@asmrweirdo3357 how did it go, would you recommend it?? hows your vision now??
Asmr Weirdo it’s good the process is just uncomfortable
Has your vision improved after cross linking?
I'm really worried about going for the epi off procedure, even though it's more effective. I have an early Keratoconus in my right eye. I'm 29 by the way. Any advice?
What age did you notice you had keratoconus
I have it in my left eye and I was diagnosed last year
@@Justin-ft9vj 17
I have my scleral lenses for a few days now but i still see a shadow above. If i force my eyes a little bit it disappears. I study med school but I dont know if i can finish it because of my vision. Can the shadow above disappear? Is it just that the lens need to be remake? I hope you see this and help me docter its so depressing. I just want to be able to read without seeing the shadow above.
I’m getting both eyes done at once. I’m just waiting on insurance to approve it. I’m nervous about the procedure.
Don't stress too much. Just make sure to put on your eye drops and take your pills and you'll be fine.
I'm 14 and I'm having it in January
@@270Winchester I'm 17 and I'm having mine in April.
I’m 15 and having it in December. I’m soooo nervous think thinking about it give me really bad anxiety
I have done my c3r on right eye 2 days ago ..now its all okay 🧿
My 5 years child aslo diagnosed left eye keratoconus what I do I'm also keratoconus patient 🙏 reply
how long is this procedure?
I'm scheduled to have this done next month and in my pre-procedure outline they told me one hour and 45 minutes. From the time you lay down to the time you get up. What's different from this video is the riboflavin portion and the UV light portion are at least 30 minutes, not 5 minutes.
Eric Ortner hi Eric, how did the procedure go?
Did you vision improve?
How much did it cost??
Procedure itself went fine. From the time I was brought back for pre-op to walking out the door was less than 2.5 hours. Nothing was painful during the procedure, just a little freaky when they rub the surface of your eye & everything hazes over. The center I went to doesn't provide you with the prescription for Tylenol with codeine until the day of procedure. So I only had access to normal Tylenol until I got prescription filled. The numbing drops wore off about 10 minutes after walking out the door. I live about 1 hour & 25 minutes from the center, so that wasn't exactly fun. Spent the first 12 hours post-op in the darkest corner of my basement and had a family member help me with putting the various drops in on a schedule. After getting the "good stuff" Tylenol was able to fall asleep. By next morning, I was still light sensitive but pain was tolerable. Pain levels decreased again in the next 24 hours, then again in the next 24. Felt normal 4 days after. Light sensitivity didn't existed for at least 14 days after, would wear Cocoons fitovers on my glasses while driving. Also suggest asking center that does it for you, if they provide goggles for when you sleep to avoid the chance you rub your eye while sleeping. I wore mine for the first 20 days post-op to bed, which is more than suggested time.
My vision initially was worse because you have a surgical non-prescription contact in and the eye isn't healed. Contact was removed 5 days after procedure, pain level & light sensitivity increases for about 48 hours after because when you blink it's back to being on the repaired eye. Vision levels got back to pre-op 20 days after procedure. My level of correction needed decreased by 1 level (I can't remember correct term) at 30 days. At 60 days, it was still 1 level better. I haven't gone back since or purchased new glasses since the eye can continue to heal/change for months after. I'm also planning on having my other eye done this fall.
If you count the procedure, the various drops, Tylenol with codeine, Cocoons and post-op visits, I'm at $3500. My insurance covered a % of the drops, Tylenol with codeine and post-op visits. It didn't cover the actual procedure. I have Blue Cross & Blue Shield. I know the center I went to is on the higher range of cost, but is the nearest to where I live and has been doing this procedure since it was in clinical trials. If you have other questions, let me know.
Katie Miller I go in for mine tomorrow. Could you feel any pain doing the cross linking.
Katie Miller 30 mins why
Getting this done tomorrow, how long does it take to fully recover back to normal
Just did my left eye in Ohio. Am waiting for my right. It’s strange and a bit painful for the first week and u will not be able to do anything other than just listen to podcasts or music. And rest in a dark room. But after one week you will be good
got mine done about a month ago and it’s honestly not that bad, you’ll feel pain for about 2-3 days and discomfort for about a week. also i was light sensitive for about 3-4 weeks. so wear some sunglasses lol. other than that you’ll notice some improvements in eye sight. not guaranteed but there can be improvements. for example my double vision from close has greatly improved and now i can see letters without seeing double of them.
This treatment safe or not safe
mine is tomorrow im so scared
How much time will that contact be in his eye?
6 days i have mine in right now
@@ws8190 you can read books or use mobile with lenses in the eye
Is this epi off or epi on. Where is rivoflavin?
Well, my honest opinion to this, Corneal Cross-linking is not enough, it stops the progression of Keratoconus but your vision won't improve at all in many cases its even worse then before , if you want immediate results then you should do CXL + Lasik\Lasek this is the only way to get immediate results and a super clear vision.
No more double visions, halos and you don't even need to wear any hard or Skleral Contact lenses.
I had CXL 8 month ago now I need to wait 4 more month to have the Lasik\Lasek Laser eye surgery, if I knew it better, I had done CXL + Lasik\Lasek from the beginning, it cost a fortune but Its Worth it.
Lexx Ro lasik thins out your cornea more
Wrong. Lasik isnt for Karetaconos
Lasik for Keratoconus will make you go blind. The cornea is already thin
Did you even have Keratoconus.
There is a type of lasik that is meant for Kerataconus. It’s called PRK.
Have to undergo this soon. Assuming insurance covers it, but I've been told so far its medically necessary in my case.
I’m in the same spot you’re in so I wish you the best.
Has your vision improved after cross linking?
@@Frappy27 has your vision improved after cross linking??
@@alpousnoo3442 haven’t had mine done yet honestly but from what I’ve heard from my appointments so far there’s a good chance that your vision will improve.
Same here, it’s been a medical necessity for a couple years now but my insurance still won’t pay for it so I’m biting the bullet and just getting it done. Next week. I’m so nervous>
I have kerato conus problem what i should to clear that problem
t-ptk+cxl treatment aka smartsurface
How many have stable kc
Is blood work involved?
It’s 5 minutes under the light?? I thought it was like 30
For me (in the UK), it was 30 minutes of Riboflavin being injected every 2 minutes (I.e. 15 times), then whilst the light was on my eye for another 30 minutes, they dropped the riboflavin into my eye every 2 minutes again. So total surgery for me was 1 hour, including 30 minutes of UVA light
what is the whole point of getting this does it improve vision? Can you see better when it's done or is it just strengthening the skin of the eye or cornea and no improvement for eyesight
kevin g it doesn't improve vision, it prevent the disease from getting worse and eventually requiring a transplant
After c3r my vision become more Les as earlier
kevin g really?
Present I am using lence
I need to know how this kid did not move at all -- I'm extremely nervous for how my body reacts as I get anxious when they even put drops in my eyes LOL
I was given diazepam to help with nerves
Probably why they won't do this for children.
My 13 year old has to wait until she is older.
I did mine at 14
Sir I am having myopia power last 10 years my age is 26 years old. Recently I noticed that when I see thing I sow ghost shadows and then I went to eyes chick then they told that I have got .5 astigmatism problem even my mother has astigmatism problem but she has from starting but I have got at 26 I am afraid that I have astigmatism or korticices keratoconus sir plz plz reply my question :-(
Because of covid n cancelled appointments i lost my eye sight in my right eye im going for this operation tomorrow morning on my left eye🤞
What's the update..
@@Akash-bf2vf worst pain I've had In my whole life after the anesthetic wore of couldn't see a thing like having glass in your eyes for three days afterwards not nice
I have keratoconus on both my eyes. My left eye vision is worst than right eye. Recently my right eye also experiencing bad vision and it's getting worst. I have been in follow-up for last 2 years. Don't know what treatment I should require. By the way I'm 24 years old.
@@Akash-bf2vf my right eyes completely gone so this left me completely blind for three days
@@Akash-bf2vf good luck
In Germany it costs 600 Euro / 1 Eye
Very cheap!! Mine cost 1300 pounds /1 eye in England
Going in tomorrow for the first eye.. crapping myself
how’d it go?
I heard the pain is worser than a transplant.
I will do it within 2 hours
literally in the waiting room, waiting to get operated
Fuck
Im having this done again today on my other eye.🙈👁
Did it hurt at all?
@@syedmuhammadsaad3932 the procedure not but afterwards you will have pain for like 2 days or sum
It can improve ur vision
@@aneeshasingh654 no mostly not
Have ur keratoconus stops?
I am doing this on Wednesday
How did it go
I did cross linking in 2011 and kratoconus is growing too! But slowly
Even after the cross linking?
Cross linking role is to Decrease Progression.
It wont improve and even it can not stop progression
@@aneeshasingh654 yes but very slowly
Where is this center ?
Hi Mel, We have 5 locations in Middle Tennessee but do Corneal Crosslinking at our Nashville and Goodlettsville, TN clinics. Visit us online at www.lodenvision.com for more or give us a call at 615-859-3937. Thank you!
I want to the side effects CXL???
Only if we caught my keratoconus early only if.
Would be very nice to wear the mask
my cornea thickness is 378 microns. can I do this procedure
contraindicated for anything less than 400 microns.
Riboflavin eye drops, ultraviolet light for 5 minutes and one contact lense costs $4,200 each eye. Now that's robbery.
I've been told I have the worst case of keratoconus anyone's ever seen :(
Same
@@anastasiagarceya8138 😎 gang
@@christianmartinez7325 gang ❤️🔥
How was your hydrox? 😅 Mine was like a Byakugan and doc's took pictures for their seminars 😂 gang
this video is giving me ptsd
Doctor is stupid for doing this while talking right above his patients eye.
Just had it done it hurts likes a son of a bitch
😖
Why he's not wearing the mask
Because this video is 3 years old
LOL