Graves’ disease and thyroid eye disease and Tepezza treatment. I’m starting Tepezza Monday. Part 17.
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- เผยแพร่เมื่อ 7 ก.ย. 2024
- I finally got approved for a second round of Tepezza. I hope it’ll make my eyes feel better and I hope it will reduce the double vision. I don’t actually expect it to eliminate the double vision though. We will see. I hope all is well with you guys. Take care.
Rick, I've watched all your videos. I'm in the same boat. Thank you for sharing. Please continue informing us. Your videos are the best on this nasty disease.
Wishing you all the best!
Rick, good luck with Tepezza round 2. Just wanted to give you a quick update in case you find yourself where I did. I had adjustable suture done 2 weeks ago (ended up needing it on BOTH eyes despite what I thought) and here to tell you I wish I would’ve done that months sooner. It was nothing near as bad a surgery or recovery I expected, and according to my Dr my right eye was among the worst he’s seen in his decades of experience. I hope if you end up needing surgery that it goes as well for you. I was in and out in -5 hours. Double vision is at least 50% corrected, and I expect it to get better as I exercise my now moving eye.
Good to hear from you and good news on your results. I’m headed in that direction. Plan is for the surgery about March 2024. Thanks for the update.
My Insurance would not Cover a 2nd round of tepezza for my Thyroid eye Disease. My double Vision returned even worse than before ! So now I am going to have surgery !
That might be best. In my case the 2nd round did nothing and just delayed the surgery which worked good.
@@rickburns4572 ThankYou ! Si I am not alone !
I have started my first tepezza infusion as of know September 2 I have 7 more to go so you had a good response to the first round of tepezza?
Yes. The DV improvement was just enough to allow we not to have DV when looking directly forward which was a big deal. The improvement came after about 7-8 infusions and lasted 6 months prior to another active period which made my DV way worse.
I don’t think my DV is quite as bad as your but bad all the same I am hoping tepezza will work i am documenting my progress on youtube hope you get some relief soon
@@rickburns4572 So you relapsed? I am concerned because I have to do SOMETHING about my eyes, but am scared because people report it just relapsing after treatment.
Have you tried steroids infusions that’s what took away my double vision from Ted twice
Nope. None of the doctors suggested that. The only thing I took was prednisone.
@@rickburns4572 when I first had double vision from Ted was in 2017 they put mo on the steroids infusion and it went away it came back in 2022. The doctors didn’t know what to do they recommended tepezza I told them that last time I was on the steroids infusion and it got rid of it so we did the steroid infusion again and it worked but it has to be the infusion the prednisone by mouth is not strong enough
I took prednisone by mouth too it didn’t work as soon as I got the steroid infusions my double vision started getting better after the second infusion
th-cam.com/video/CnDFaVvLt4o/w-d-xo.html
This doctor in the link pretty much explains it