Hey friends! If you’re a Crohn’s warrior, struggle with Ibd, or suffering from chronic illness in general I hope this video is helpful. I think it’s important to share the tough moments as well as the good moments to give those recently diagnosed with a clear picture of what this journey is like. I appreciate your time. Feel free to ask me anything in the comments. I’m happy to answer any questions you may have in the comments. Stay healthy and well my friends! #chronicillness #crohns #ibd
Love you so much Barrett. You are such a sweetheart and genuine person. It’s good to see the positive videos along with the raw bad day videos. It’s all a balance. 💜
I felt your emotional exhaustion. You put tears in my eyes. With a n invisible illness it is so hard. I may not have crohns , but I have a currently unspecified autoimmune disease. What I mean by that is my blood work shows it, but they can’t define it, plus I have fibromyalgia which goes hand in hand. You have just shown the toll this can take on ones soul. I just want to hug you. I will hope and pray this goes easier on you and that you find some relief. Chronic pain and illness is so hard. Take care my friend and know that you have love coming from all over. 😢🥰
Thank you so much. I appreciate the love and support. I’m sending some right back your way. I’m so sorry. I remember that awful feeling waiting to get a straight answer on what was going on. Autoimmune diseases are so tough because it’s so hard to pinpoint what’s wrong. And I know how painful fibromyalgia is. Sending you healing vibes and virtual hugs! 💜💜
yesssssssss!!!! be your real self!!! no matter what do not sugar coat how how you are feeling. This stuff is real life. I think maybe more people will understand how hellish it is for you. You know I am here whenever you need to talk it through... or just vent about your day. Much love my dear friend. Picture it... Sicily . x Rose
Crohn's is such a battle! And those bad days and flareups are so unpredictable. I watched that with my dad. I'm so sorry you're struggling with the symptoms, as well as the insurance! Don't get me started on the insurance. If healthcare would stop sending paper bills for small amounts (hey, they invented email!), they might have funding for treatments like the one you need. That aside, I'm glad you have insurance to at least cover some of this. We can hope, too, that even more advanced treatments will be coming down the road. Take care of yourself. BIG virtual HUGS!!!
Thank you for the encouragement! Imagine a world where I didn’t receive five to ten pieces of mail from my insurer with lots of heavy paper?! The savings would be incredible. But alas, they haven’t let us rule the world yet…but when our time comes Heidi…we’ll be ready! Thank your or the virtual hug my friend! 💜
Good morning Barrett! Thank you for showing is this more vunerable side of yourself, you are very brave to do such. I could relate to some of the things you said because I also have disability (I don't know if you call Crohn's a disability but I call mine one). I have schizoaffective disorder which is a combination of schizophrenia and bipolar disorder and it makes me have the mood pitches of bipolar and the psychosis of schizophrenia. It gives me low energy but some days it makes me manic, right now I am manic and I haven't slept (its five something in the morning). Some days I could sleep all day and still be tired and some days I can do 24, 48, 72 hours on hours worth of sleep. I can relate to only filming on days where you are high energy, I had a wonderful idea for yesterday to film and all these great things and I just couldn't do it. I was low energy and just felt miserable. I thought to myself "what do I want to portray on my channel?" and of course I want everyone to see happy Heather but a lot of the time I am not happy Heather. Today I plan on doing my own bad day video and I want to talk about schizoaffective disorder because it affects every part of my writing life. If you ever want to do a collab on writing with disabilities (or illnesses, again I'm not sure what you call yours) I would be more than willing. Thank you, I hope you have a great day. Sorry for rattling on.
Heather, This comment is so appreciated. Being able to say when we’re not okay is key to be able to move through life with chronic illness. I look forward to both watching your bad day video and collaborating. I’m putting together a panel of Crohnies for a Livestream and I would LOVE for you to join us. Also, I would love to collab on a chronic illness/writing vid/live. Glory, of Glory Writes the Blues, brought up doing a chronic illness/AuthorTube tag and I loved that idea too. You know I’m always down to collab! Sending you healing vibes, unicorns and rainbows. 💜💜
@@BarrettLaurie I am uploading my bad day video right now (you have excellent timing), I'm sure it isn't as good as yours because I feel like I am just rambling to the camera but I think some rambling needed to be done. I'd love to join you on your panel, I'm also always down to collab with anyone. I think a chronic illness tag is a great idea and I have a few people who I would like to tag on that too. I haven't finished your latest livestream, I think it has Glory, it is the first video I have ever seen of her. It takes me a while to watch long videos. I have to take many breaks because I also suffer from ADHD and I can't sit and watch things for that long. I can't watch movies unless I concentrate very hard. Thank you! I could use more unicorns and rainbows in my life!
@@heathergrace4508 that was such a authentic and raw video. Thank you for sharing it with us. I appreciate your shout out, but you’re as much an inspiration to me as I am to you. If we keep owning the truth, even the parts that make us uncomfortable, there will be people we reach that day, “hey, I can relate to that!” I’m so proud of you. Sending you love. You know where to find me if you ever need me.
![LET'S TALK ABOUT OVEREXERTION, INTERNALISED ABLEISM, AND ENERGY LIMITING CONDITIONS 😅 [CC]](http://i.ytimg.com/vi/kigDEzvBbDw/mqdefault.jpg)
Hey friends! If you’re a Crohn’s warrior, struggle with Ibd, or suffering from chronic illness in general I hope this video is helpful.
I think it’s important to share the tough moments as well as the good moments to give those recently diagnosed with a clear picture of what this journey is like.
I appreciate your time. Feel free to ask me anything in the comments. I’m happy to answer any questions you may have in the comments.
Stay healthy and well my friends!
#chronicillness #crohns #ibd
Love you so much Barrett. You are such a sweetheart and genuine person. It’s good to see the positive videos along with the raw bad day videos. It’s all a balance. 💜
Stephanie love to you too! I appreciate your friendship, love, and support. I hope I’ve been able to reciprocate that for you. 💜
I felt your emotional exhaustion. You put tears in my eyes. With a n invisible illness it is so hard. I may not have crohns , but I have a currently unspecified autoimmune disease. What I mean by that is my blood work shows it, but they can’t define it, plus I have fibromyalgia which goes hand in hand. You have just shown the toll this can take on ones soul. I just want to hug you. I will hope and pray this goes easier on you and that you find some relief. Chronic pain and illness is so hard. Take care my friend and know that you have love coming from all over. 😢🥰
Thank you so much. I appreciate the love and support. I’m sending some right back your way.
I’m so sorry. I remember that awful feeling waiting to get a straight answer on what was going on. Autoimmune diseases are so tough because it’s so hard to pinpoint what’s wrong. And I know how painful fibromyalgia is. Sending you healing vibes and virtual hugs! 💜💜
yesssssssss!!!! be your real self!!! no matter what do not sugar coat how how you are feeling. This stuff is real life. I think maybe more people will understand how hellish it is for you. You know I am here whenever you need to talk it through... or just vent about your day. Much love my dear friend. Picture it... Sicily . x Rose
1943...oh Suey I love you like I love my hydrangeas! 💜❤️💜
I can’t tell you how much your friendship means to me. Can’t wait to catch up soon!
Crohn's is such a battle! And those bad days and flareups are so unpredictable. I watched that with my dad. I'm so sorry you're struggling with the symptoms, as well as the insurance! Don't get me started on the insurance. If healthcare would stop sending paper bills for small amounts (hey, they invented email!), they might have funding for treatments like the one you need. That aside, I'm glad you have insurance to at least cover some of this. We can hope, too, that even more advanced treatments will be coming down the road. Take care of yourself. BIG virtual HUGS!!!
Thank you for the encouragement! Imagine a world where I didn’t receive five to ten pieces of mail from my insurer with lots of heavy paper?! The savings would be incredible. But alas, they haven’t let us rule the world yet…but when our time comes Heidi…we’ll be ready!
Thank your or the virtual hug my friend! 💜
Wish I could come and give you a hug. Lots of love to you Barrett. ❤️❤️❤️
Thank you my friend. I would take the hug, yesterday was a tough day. Appreciate you more than you know. 💜💜
Good morning Barrett! Thank you for showing is this more vunerable side of yourself, you are very brave to do such. I could relate to some of the things you said because I also have disability (I don't know if you call Crohn's a disability but I call mine one). I have schizoaffective disorder which is a combination of schizophrenia and bipolar disorder and it makes me have the mood pitches of bipolar and the psychosis of schizophrenia. It gives me low energy but some days it makes me manic, right now I am manic and I haven't slept (its five something in the morning). Some days I could sleep all day and still be tired and some days I can do 24, 48, 72 hours on hours worth of sleep. I can relate to only filming on days where you are high energy, I had a wonderful idea for yesterday to film and all these great things and I just couldn't do it. I was low energy and just felt miserable. I thought to myself "what do I want to portray on my channel?" and of course I want everyone to see happy Heather but a lot of the time I am not happy Heather. Today I plan on doing my own bad day video and I want to talk about schizoaffective disorder because it affects every part of my writing life. If you ever want to do a collab on writing with disabilities (or illnesses, again I'm not sure what you call yours) I would be more than willing. Thank you, I hope you have a great day. Sorry for rattling on.
Heather,
This comment is so appreciated. Being able to say when we’re not okay is key to be able to move through life with chronic illness.
I look forward to both watching your bad day video and collaborating. I’m putting together a panel of Crohnies for a Livestream and I would LOVE for you to join us.
Also, I would love to collab on a chronic illness/writing vid/live. Glory, of Glory Writes the Blues, brought up doing a chronic illness/AuthorTube tag and I loved that idea too.
You know I’m always down to collab!
Sending you healing vibes, unicorns and rainbows. 💜💜
@@BarrettLaurie I am uploading my bad day video right now (you have excellent timing), I'm sure it isn't as good as yours because I feel like I am just rambling to the camera but I think some rambling needed to be done. I'd love to join you on your panel, I'm also always down to collab with anyone. I think a chronic illness tag is a great idea and I have a few people who I would like to tag on that too. I haven't finished your latest livestream, I think it has Glory, it is the first video I have ever seen of her. It takes me a while to watch long videos. I have to take many breaks because I also suffer from ADHD and I can't sit and watch things for that long. I can't watch movies unless I concentrate very hard.
Thank you! I could use more unicorns and rainbows in my life!
@@heathergrace4508 that was such a authentic and raw video. Thank you for sharing it with us. I appreciate your shout out, but you’re as much an inspiration to me as I am to you.
If we keep owning the truth, even the parts that make us uncomfortable, there will be people we reach that day, “hey, I can relate to that!”
I’m so proud of you. Sending you love. You know where to find me if you ever need me.
Your a gift for people with health challenges
Thank you. You’re too kind.
♥️
💜💜
Love you guys!
Love to you! 💜