Seizures in the Night - What are the Causes and What can be Done?
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- เผยแพร่เมื่อ 11 ก.ค. 2022
- Night time seizures or Nocturnal epilepsy is a unique type of epilepsy when seizures happen during sleep. The causes and treatment can be different than other types of epilepsy.
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Doctor why you laughed out of fun when you were recalling that your female patient who used to crawl even to her kitchen while having a nocturnal seizure??? is it a fun for you?? I guess it is....I am shocked with such an attitude of yours....Here you are discussing a disease which has its history even when Pyramids of Egypt were not built, but unfortunately after centuries of research and scientific progress (so called) still modern medical science has no permanent treatment for epilepsy. Doctors are still doing their practices, prescribing fake tests which got nothing to do with real diagnosis or fact findings, doctors are prescribing tons of pills to their epileptic patients who becomes more complicated and serious due to the side effect of these chemical pills. Doctors only prescribes these expensive pills and expensive surgeries to their patients only to earn millions of dollars as paid to them by pharma mafias....
its my request to you doctor please don't laugh next time specially when you would tell your patients stories/ situation that how they deal themselves during epileptic attacks.
@@AhmadAli-gp4ig I experience the same tonic clonic seizures at night. Waking up, no memory of where or who I am. No balance and I try to walk somewhere. I even went down 4 stairs, after a while, I walked passed people and walked out of the front door. All in my underwear with a pillow under my arm.
*When I woke up, I was in my bed, I only had flashbacks walking on the street in my underwear so I thought it was all a dream. Then my roommates told me they did see me looking confused, not responding and walked outside and they simply walked me back to bed.
When I tell this story (And I have 10s of others) I think they're so absurd I laugh with others when telling them.
So yeah, tonic clonic seizures are horrible, also a lot for others to witness (outside in public and at night it's terrifying). But when a story itself is simply absurd, like mines are, I have the right to tell it and decide whether it's funny or not. I would find it strange when I tell my story and someone else decides I can't laugh, because epilepsy is a serious disease.
My wife had night seizures her entire life for over 50 years. Ten years ago I discovered that space weather triggers her seizures 100%. The reason that her seizures occur around 2am to 3am window, (sometimes 11pm window) is because that is when something called magnetic reconnection occurs. ( it is an earth sun thing ie space weather forcing). Not every night is strong magnetic reconnection, so her seizures don't occur every night. Every once in awhile if the space weather is really bad and goes over the medication threshold, she will have at other random times, but it is rare. (Like today at 1900 UTC she had one because we had bad space weather at that moment). I built a shielding room to block the space weather from triggering the seizure and it not only stops a seizure immediately with no or very little post seizures problems (use to take a day to recover), she also can prevent the seizure from occuring 100% of she gets in the shielding box before it occurs. She has not had a seizure for close to ten years now, except when we arw away from home and she cant get inside the shielding box. I subsequently tracked people I meant and they were also triggered by space weather, some having seizures at the same time. I also looked at many seizure diaries, including a dog and all the seizures match the space weather... literally 100%, so past predicting along with mitigating seizures, I am confident that space weather flux is the primary trigger mechanism. I should note that this all applies to my wifes migraines as well, but I have not tracked but a few others migraines which also match space weather flux, but geo magnetic storms, which to my suprise is notnthe kind of space weather I found tonteigfer a seizure, there has to be three types of space weather hitting at the same time, not one and so maybe this is why they have not discovered it yet, most space weather effect from a non linear processes to begin with. Thought you might find this intresting.
also found HSV1 activation from latent state when a proton storm occurs. Found that also that endothelial, ACE2 and inflammation activation from specific space weather. Interestingly the covid wait for the ACE2 receptor to become active to enter the cell and as expected, the fever cycle matches space weather flux.
I’m 36 and they are just now starting to evaluate me for this because I had a daytime episode.
I’ve been experiencing everything since I was small.
Talking, walking, jumping up and running before collapsing or just getting back into bed.
Screaming so bad I don’t remember it, but I wake up to my voice and throat raw from screaming (embarrassingly neighbors called the police one time)
Like having strings and being a marionette, I’ve rolled over my partner and out of bed, flipped up and out of bed. I’ve launched out of bed and onto my feet, arms swinging.
Meds for BP seemed to sometimes help a little. I thought they were just “night terrors of unknown origin” for the last 15 years.
We wonder how long this has been happening. I was diagnosed last 4 years with hyperadrenergic pots/Dysautonamia and whole host of other layered genetic conditions.
I had a sleep study 15 years ago, but they only could say I don’t enter the stages of sleep deeply the one night I was tested.
I just put a camera up in my room 2 nights ago and it caught me first night, suddenly hacking and choking and gasping. Captured then my roommate coming to check on me, talking to me and me being completely incoherent and confused and disoriented. Speaking gibberish.
I often startle out of sleep, or jerk quickly, but then it stops.
I hope they help me find answers soon. My local health system and providers are so over taxed.
This has been an embarrassing and dangerous plague, my entire life.
Never knowing when I’ll have one or where I’ll be. Hoping it’s not at a friends or someone I’ve begun dating. It’s so embarrassing 🤦🤦🤦
Worse, now worrying if it will happen while driving.
It’s been just another part of a whole system decline into total disability, in the short space of 6 months.
I’m tempted to give your office a call. I’m in Seattle though.
I got diagnosed with epilepsy when I was 20 with my first tonic clonic seizure. I ONLY had seizures during the day, with no apparent triggers for my first 5 years. Then I suddenly had a nocturnal tonic clonic seizure for the first time. Then I NEVER had a seizure during the day. Only during the night for the next 5 years (I'm 30 now). Heavy tonic clonic seizures, when waking up no memory, no sense of balance, tongue bites and breathing in is painful for 2 days and migraines.
Medication doesn't help well and scans show no specific location. And relationships are impossible.
Imagine finally getting your masters in psychology in 7 years, and not being able to work anywhere, because after every seizure I'm out for 2 days.
*I hope the people here with epilepsy can still live a functioning life with friends, family and goals for happiness.
There is so many people who are having seizures even though they are married and have children and working in high positions, it is not an obstacle
@@x-zw2xs Epilepsy comes in incredibly many forms. I knows someone who has seizures of 20 seconds, while they keep functioning and even talking. And there are people who have tonic clonic seizures throughout the day, they will never be able to have a job or children.
So whats your point about "it is not an obstacle"?
I had bad nocturnal seizures back in the day. I had a nasty head trauma as a preschooler, and it wasn't until around 2 years after when I had my first attack. No one knew what it was because it was only tonic, not clonic. For a few years, my parents were baffled by my condition because they thought epilepsy, which they also call seizure, is only clonic, with all the jerking and stuff. When I had my first EEG (electro encephalogram) almost 3 years after that attack, we found out several facial nerves are sending erratic synapses near or on the REM stage of my sleep, which causes me to loose conciousness, turn blue and become stiff, which could take anywhere between 5 to 10 minutes. Contrary to the name, it also happens to me during the day, when I take my siesta. Fortunately, it was properly diagnosed and I got the proper treatment. 13 years later, and I'm hoping I could be of help to another patient. 🙏
Am so pleased to hear you got help i keep seeking help for my son 26yrs of age its bad only haooens in his sleep😢
Thank you for this video. It really helped understand my 7yo night time seizures
Thank you! 😃
Now i know clearly what is nocturnal seizure, and how it attacks me.
Clear information. 💜👋
I had my first seizure when I was 60. It continued and sent me to the hospital 8 times. They tried all kind of medications on me. Finally, a young doctor in UCLA put me on a combination of 200mg of vimpat and 600mg of lamotrogine a day, and I have been seizure free for the last 4 years.
To everyone that has night time seizures, I recommend start sleeping on your side at night. I started doing that after getting sleep paralysis a few years ago, so it became a habit.
This was very helpful for me, because I have night time seizures now.
Update: I don't have nighttime seizures anymore. They were caused by my mental health and medication, I think.
I started having seizures a few months ago. One of the triggers is sleeping on my left side.
Hey do you mind sharing what meds you were taking? I am currently experiencing the same and am on some meds as well
Please what medications did you take ?
Same experience as you for years. Sleeping on side definitely helps. May also be contributed to sleep apnea when on back.
@TeacherMom80 me too on my side it seems to be better.
He explained the nocturnal seizures so well, and the waking up and suddenly yelling was delivered pretty damn well too Dr. Danoun. BY THE WAY. I can hardly wait until we meet again. Thank you and finding you is pretty awesome, when that gather of more knowledge is given about my current battle against my epilepsy.
Perfect illustration
Thank you.. Glad you like it
I always hate when especially in the evening, after 8:00pm, whatever I'm doing in my bedroom, I unexpectedly doze off to one, and then wake up, and find myself coughing, bit my tongue 👅🩸🩸🩸😥 and then I think it's the next day, but it isn't. It's the same hour, before 9PM! This happened twice this year! I'm currently seeing a neurologist every about 6 weeks for a follow-up, which was highly recommend by my physician.
Thanks🎉
I have seizures only when I'm falling asleep, I'm half awake, sometimes I can stop it.
i get this weird pulsation feeling and feel very weird before and after. I get stuck in the middle of falling asleep and waking up I shake and my lips tremble, nightmares sometimes and idk what to I’m scared it’s almost every night now
I get the exact same thing I'm 38 and it only just started to HAPPEN
I found changing my diet really helped and I quit smoking and vainglorious and it hasn't happend since although it only happend once
I only had seizures at night, also sometimes I can stop sometimes I cannot stop, my problem is that whenever I had seizures my left shoulder always freeze, whene seizures stop, my shoulder have so much pain
@@aerroc I only started getting mine after I got my first vaccination, wbu?
Thanks
Ask me any questions about epilepsy and seizures
Hi Dr Omar . I have experienced norctunal seizures and started 22 yrs ago. I am on tegretol 200mg 1 daily.
My greatest is my memory that is really scanty
Hi dr. Am having epilepsy seizure only in the night after taking meds then too what should I do now
What state are you in
Why is it when I apparently have a seizure the left side of my face is swollen and tender to the touch ,swelling only subsides 24hrs .
Can epilepsy be cured?
You are amazing my younger brother is going through this problem
Thank you
35 year old female here, trying to understand and learn more about my type of seizures. To start, never had seizures before ever in my life. I was diagnosed about 7 months ago in October 2023 with nocturnal epilepsy.
This started with tongue bites that occurred during sleep. I assumed it was stress related at the time because my mother whom I lived with my entire life and help me raised my son, passed away unexpectedly 6 months prior (Oct 2022) to my first documented tongue bite. Within 48 hours of her death, my ex (history of alcoholism and domestic abuse) took advantage of her death and filed an emergency order that I couldn’t afford to fight and I lost primary custody of my 6 yr old son, who is now 8 (LONG story but no I didn’t do anything). It was just my mother, son and I since he was born, so after I lost them it was just myself. The stress and emotional pain was so immense that my period stopped for 6 months (menstrual cycle was normal since it started @12 years old). The tongue bites started when my period came back and my menstrual cycle has been normal since.
The tongue bites started occurring more and more frequently but progressively became worse. Then I started waking to unexplained bruises that also became worse. I didn’t seek medical treatment until it came to a head in October 2023. I woke up to a bloody shirt, my chin was busted, a cut on the bridge of my nose, right side of my face bruised, right shoulder bruised and of course a bruise, bloody and VERY swollen tongue. I woke up in bed, just as I had before falling asleep. I checked for signs of break in and sleepwalking but nothing was out of place. My dog was sleeping peacefully on the couch as well.
I took that day off of work but had to return the following day (not enough PTO). I looked crazy but tried my best to work. Job was in the county government motor vehicle tax office and required multitasking, communicating with the public and memory. I struggled with all of this, not even all my post it notes could help. My emotions were kind of fragile but I held it together until my boss called and complained that I wasn’t fast enough (yes she knew I was having symptoms of seizures). After going back and forth for several minutes, with my agreeing with her and explaining over and over how I was trying to adapt (post it notes etc), telling her I was trying my best, she said “well everyone else is doing it”. I again said I’m trying which at first was in a speaking voice and ended with me yelling and slamming the phone down. Felt like I was watching myself from the outside and it was extremely embarrassing. I ran to the bathroom in tears, almost broke my hand punching the tile wall. That comment hit a nerve because of the girl sitting next to me talking on her iPhone ear piece off and on ALL DAY. I was also the first on the phone carousel that day. Incoming calls started on my line, if I didn’t answer it went to the next, then eventually the girl who was on her personal phone. Needless to say I lost my job.
Since then I’ve been unable to work and became homeless. My epilepsy treatment has been inconsistent due to the housing insecurity, lack of funds and having to move several states away to my nearest family.
Something else to note, I was diagnosed with generalized anxiety disorder and major depression at 12 years old (after my menstrual cycle started). Then PTSD was diagnosed after my son’s father and I separated, shortly after I became pregnant. My mental health had been consistently treated and stable since my pregnancy. After a seizure, it exacerbates my mental health. The worse the seizure, the worse it affects my emotional wellbeing.
Also only one person saw one of these nocturnal seizures and called the ambulance. My first memory was waking up in the back of the ambulance after I had been loaded in on a stretcher. They didn’t keep me overnight.
I was not using any drugs other than those prescribed to me. I didn’t drink a single drop of alcohol either since before pregnancy.
I was initially prescribed Lamotrigine prior to the ER visit. That was changed to the generic form of Lacosamide which was changed last week after a suspected allergic reaction but also continuing seizures happening 2x weekly. The new medication is Oxycarbazepine, I’ve been on this for a week now. I had a seizure 2 days after being discharged from the hospital (Wed) and another this past Saturday. Since starting medication, the severity of the seizures has decreased but the frequency has increased. I can tell by minor cheek/tongue bites, bruises and a sudden shift in mood (extremely depressed and suddenly suicidal). The worst symptoms now are my balance becomes way off, severe muscle cramps and weakness, difficulty in speaking and remembering words (also things in general). I’ve also been told by the homeless shelter staff that I “lose my color” or become pale after a seizure.
Only one occurred while awake. This was right after I woke up (within 30 min). Before I felt suddenly nauseous, extremely anxious, heart racing. Ran to the toilet thinking I was going to throw up and ended up blacking out, waking on the floor an hour later.
Still learning about auras but the primary one is that it feels like an electrical impulse shoots down my spine and my legs spasm, have a muscle contraction. Sometimes I fall asleep but can’t move, can still hear but then wake up either to my legs spasming and/or gasping like I stopped breathing momentarily.
All this being said, I’m at my wits end. I WANT to work, to be independent and most importantly TO GET MY SON BACK.
Sorry for the book but yeah… main point is I’m wondering if there’s a connection between the menstrual cycle, trauma and seizures. I’ve heard of Catamenial Epilepsy but could someone have both Catamenial and Nocturnal Epilepsy? I also had a venous stent placement due to “severe stenosis of the right transverse sigmoid sinus junction” in Dec 2017. This started with vision loss and papilledema. Most recent CT scan from Feb 2024 mentions “chronic subdural hemorrhage, along the lateral margin of the right frontal lobe”. So I’m not sure if it’s a combination of hormones, stress, mental health, the stent, or the hemorrhage.
My appt with my new neurologist isn’t until June 20th. I’ve put all my medical documents in a folder and photos of my tongue bites, bruises etc plus a seizure diary. I’m hoping he’ll take the time to listen instead of brushing me off and making assumptions. Due to everything I’ve been through medically and emotionally I feel like there’s some dots to connect. I need solid answers because I can’t function like this. I’m on my own with not a dollar to my name. I’m getting desperate.
Edit: I have had 2 EEGs, both 30min while I was awake. First one said “abnormal EEG due to rare left temporal slowing”. The second says “findings consistent with at least a mild diffuse disturbance in brain function”. A longer EEG is needed while asleep but again, the housing instability has put that off. Hoping it’ll happen soon.
Have A VNS & Had Replaced Once.
When i first started having seizures it was always at night. (i have TLE).i only started having seizures in my early 20s (due to tumour on my temporal lobe) snice then ive started having seizures during the day to, 29 now. hopefully ill find the right meds soon. well either that or its the next step. surgery to remove the tumour.
I was diagnosed with nocturnal frontal lobe epilepsy a few months ago. Unfortunately my neurologist is not as informative as you. Wish I could find one like you in AZ or NM. Very informative thank you! The medications I was on made my personality change and I was super aggressive- I didn’t recognize myself.
Thank you.. Yes please review the video on best antiseizure medication for epilepsy.. Not every medication is appropriate for every patient
What medication were you on?
@@ninjaprincess26 Keppra 🙃
I have various different types of seizures including nocturnal and I liken it to running a marathon upon waking. Ie. sore muscles
I had my first nocturnal seizure when I was 26. I was put on Dilantin and slowly was weaned off of it after 2 years. I then had another seizure. I was on Dilantin for 20 years and purposely did not have children because Dilantin was known for causing birth defects. Every EEG after my first one showed normal brain function. I was told I had seizure disorders, not epilepsy. I also lived in a very old house with a lot of dust. And I was in a very stressful marriage. I divorced, moved out of state, and slowly weaned myself off of the Dilantin. I am now 69 years old, happily remarried, and haven’t had a seizure in over 30 years. I always wondered if my nocturnal seizures were from the dust in the older home, perhaps from the air ducts not being clean, and the stress from an unhappy marriage.
I was asleep I woke up shouting and hollering at the top of my lungs
I was diagnosed with nocturnal epilepsy 3months ago ,I'm 55yrs old . I'm on epillum 200 mg BD. Ihaavent had any major episodes since . But still experience mild to moderate episodes a few times a week . Apparently I've been undiagnosed for 4decades . I remember as a child getting up in the morning and unable to speak coherently. My mother thought I was a bed wetter because on many occasions I would get up with my bed wet .
Thank you for sharing your experience
I also had seizure for almost 16 years now and I haven't seen a neurologist even once because I have no money to pay for check ups and medications😔 I don't know what kind of seizure is this, but it only attacked on night time just after I fell asleep, which is I am thankful because atleast it wouldn't cause me to harm myself, just like any other person with seizures that just fell suddenly without signs/ warnings. I only remember having one attacked on day time because I fell asleep after I ate my lunch. I know that my seizure will attack at night because I have signs. It would start in the morning after I woke up. I feel uneasy, not able to breath well, fast heart beat, I feel like their is something electricity (or I don't know how to describe that feeling) coming from my right ring finger, and then suddenly running through my vein up to my arm, and then up to my right brain, and then their you go, it's like someone is hammering on my brain really hard, it will last for about a minute or 2, but it wouldn't make me out of consciousness. I just feel uncomfortable and sleepy the whole day, with fear and assurance that it will surely attacked again during the night just after I feel asleep. During the night, I really wanted to cry, to scream😢 begging that I hope it won't attack again😢 I haven't seen myself having a seizure because I don't want to😢 I just feel pity for myself😢 during the seizure, the last thing that I will remember after I fell out of consciousness is that, I want to shout begging for help from someone, but I cannot open my mouth anymore😢 I feel like my body is braided and I cannot breath😭 which is so hard😭 and then after I came back to my consciousness, I was their, not on my mind, wet because of peeing on my pajamas which is really embarassing, my mother are already their crying asking me what are happening to me😢 which makes me even more sad because I don't want her to worry about me😢 it would repeat 1 to 3 times every attack. The last attack that I remembered was when January 2021, and I haven't been experience after that, which I thought that I am already free from that illness, but I was wrong, because after almost nearly 2 years, it attacked me again last night of December 6😢😢😢 I then feel dejavu day after the attack, body and muscle aches, bitten my tounge and no energy at all. I just want to sleep the whole day. I hope you can help me if what kind of seizure is this sir and what triggers why it attacked again, and what to avoid. We don't have epileptic record on our family😢 i was the only one and it made me feel weird and lost😢😢😢
Thank you for sharing your experience. I am sorry that I couldn't provide medical advice online. Please check with your neurologist
Same problem likes me ....what did you do for that??
Jesus Christ can heal you fully through deliverance of his children,Deliverance is the only way we can be fully set free from all curses. Jesus deid on the cross for our sins. Matthew 6:9-13
@@user-mq9zr1dg1i Amen
Make a room (a big box, big enough to go inside amd lay down) use foil faced polyisocyanurate or HDPE to make the box. Make sure you have layers of aluminum foil separated by each layer of polyisocyanurate, use half inch polyisocyanurate with foil layers then stack to make at least 2 inches thick. Then add layers of aluminum foil on the outside of the box. (start with 2 or 3 , but may need to add more later if continuing to have seizure) The main thing is to have layers. Use aluminum tape for everything, even the hing for the door, just as long as the box is sealed as best you can. Cut in a fan for air, drawing air from a metal duct a few feet (duct on outside is ok). When you feel one coming on, get inside box and it will prevent seizure. If having one, get inside and it will stop immediately.
Thanks Dr for your videos. I only have one question if the seizures only happens at night and I am taking phycompa 4g + Briviact 50g before sleep do I have to take second bill in the morning ?
Hi Doctor, my son had liquid Keppra when he was younger for nocturnal seizures. He went almost 2 year’s seizures free but ended up getting them again. I noticed that they switched him to slow release tablet but he was getting seizures upon falling asleep. I experimented with giving his evening dosage earlier in the day so that it’s in his blood stream by the time he falls asleep and it seems like it’s working. Do you think the earlier dosage could possibly be the reason why it’s helping?
Hi doctor, I have generalised tonic colonic seizures, problem is I used to have my seizures in morning now mostly at night, but I what I don't understand is at certain time of day around 6 - 9pm I fell auras every single day at that time. I take my medication around 8pm. I used to take it around 11pm & my life was great now I can't get past 8pm without taking my medication or a crave of medication will occur. I currently am on epilim, tegretol & small dose of keppra twice a day.
I have epilepsy during the early part of the morning and all day.😊
Last Nov. I had my very first seizure in my sleep, and another later that day in the hospital. I ended up spending 3 days in the hospital from spine and lung damage and was placed on anti seizure medicine. I had so many tests done and even saw a neurologist afterwards that was not helpful at all. Things were going pretty well and I figured I was good. I woke up to my apartment completely in shambles on Saturday morning, turns out I had another seizure and was alone, as well. I took myself to the hospital and had a second seizure there.
Yes seizures once happen especially during sleep they tend to come back and that is the diagnosis of epilepsy and needs treatment.. Discuss with your neurologist.. Thank you for sharing your experience
I never had seizures before until i had kids. During both of my pregnancies i had seizures at night and only at night. I was diagnosed with epilepsy but im not to sure that is what caused it. I haven't had any since pregnancy either. I had a scan that came back clear and was on medication during my first pregnancy and was still having seizures. Id love to see if anyone else has had seizures only at night and only during pregnancy.
I had my first seizure this year on 25th august in morning time while sleeping I woke up with my tongue bitten and with terrible body ache, I went to hospital they did mri to my brain and results came back normal and yesterday too had another seizure same time in morning and now I’m worried if they’re gonna come back and I live alone in different country , please help doctor what should I do ?
Hello thank u for your videos i am 44 years old i never used to have seizures then 1 night i had 1 so bad that i flex my body so hard i broke my own spine and almost bit off my tongue during 1 now life is so difficult please any advice will help thanks.
I'm I the only one who dreams a roach crawls on his neck during those sizures?
I'm really afraid of that bug so I developed a réflex where I woke up instantly and smack My neck with My hand instanly, thats how I discovered the palpiations were in neck área.
I my case it happens less often with age and only between 3 and 7 am give or take an hour.
I also had alot of hits in my head as a child.
It's honestly not a Big problem, not worst than a nightmare, Injust sharing in the case someone may find it useful.
Thanks for the video btw, really helpful.
I have had nocturnal seizure where I actually got out of bed and crawled into my parents room and told them how scared I was
It scared me knowing I was able to leave and sleep walk. Never know what you’re capable of doing
Me too
For me I wake up before it triggers, it starts with tingling in left leg and which crawls upwards then I loose consciousness and get up with huge headaches
I have a traumatic brain injury from a motorcycle accident my front lobe not really quite sure what they call mind. Sometimes they have an amazing times 30 day times they’re intense sometimes they’re not they’ve got me on Keppra vimPat Lamictal and they got me on Lamotri currently life has been very hard
Will Valparain Chrono & Lobazam also aid in treating these Nocturnal Seizures ? Because I've been using them for treating my Eating Epilepsy as per Doctor's recommendation.
Also , is Eating Epilepsy be the cause for this type of seizures?
Please let me know...
سلام.اگر علت تشنج درخواب مشخص نباشد یا ژنتیکی باشد و به دارو مقاوم باشد قابل درمان هست؟
Hi good day, i was never diagnosed with epilepsy, but on sunday 5th may 2024 i was on work and i had a seizure, i fell and hit my head on the concrete floor, i was told my body was shaking alot. I have not yet seen a Neurologist, its very expensive, i live in Trinidad and Tobago. I have not had any episode since. What should i do
I have seizures night and day when have night my breathing slows other half turns me over and stops it then eases or he gets a few kicks
dr i have tonic seizure is that dangerous i am Very panicked now
Omg, this has been happening to me for years. 😭😭😭 I always thought it was night terrors. It is terrifying. I wake up screaming fiercly & thrashing & hyperventilating & disoriented & in the hall & my brain vibrating, sometimes a weightless experience as If Im disconnected from my body, which I hate. Ive had sleep anxiety my whole life because of this. Its been really bad at times for years. Interestingly it hasnt happened since I was prescribed ivermectin for long covid. Could it possibly be induced by an auto inmune disorder that was triggered by different diseases throughout my life? My son developed chronic neurologiccal problems from lyme disease years ago & his spasms, ticks, jerking, etc stopped ehen he was prescribed ivermectin too. How do I get this diagnosed?
@DrOmarDanoun if they have a sigzers but them not crawling around but they are still in the bed though during their sleep
I have them during day too never unconscious!
I have a temporal traumatic brain injury I wake constantly in the night don’t remember any dreams but I wake up confused I’m hoping my eeg will give my doctors answers to this they believe I have epilepsy on two different medication but still have symptoms of daytime and possibly night time epilepsy I spend alot of time waking up it’s very stressful during the day most of the time it’s like black of stares the night time stuff is even more distressful because I’m losing sleep
This is currently what I’m going through, I’m waking almost every hour bright eyed and then instantly need to fall back asleep! It’s draining me through the day. I’m on medication for focal epilepsy but getting no response from my consultant! What can I do?!
3:53 me too my son attack only at night but during the day almost normal but during the night it happens 2 or 3 times what should we do to make it back yo normal again thank you 4 suggestions
I’ve created my channel to help provide video evidence of nocturnal seizures and how they could change into having them happen any time of day. Majority of my nocturnal seizures will occur a few hours before normal wake up times. Left front temporal lobe is location of start, with most recent SEEG being able to detect 2 different starting points, in comparison to just 1 being able to be detected with EEG. The wire removal process during the SEEG did cause a stroke along with creating a whole new level of behavioral changes. 🧠 💪🏻
Hi Dr. Danoun, after each episode of nocturnal seizure, i will have difficulty understanding conversations, comprehension, recalling, and always have lost memory as well. The above sympton will go on for several weeks until it gradually recovers but overall things are going downhill. The lost memory part never comes back & i will have to re-learn lots of things in life. Any suggestion for the brain function part? Thanks!!!
Right I hate the loss of memory part. You can’t even go and have a good time and remember that experience you had.
Actually that's me. When I'm over tired or stressed out. Meds I'm on keppra I have 2 more. They don't actually work. So help I'm 51 soon to be 52 this year.
Hello Doctor. im from Philippines., I hope you can help us. My baby just recovered from bacterial meningitis when he was days old after one month. And now he is four months old, and the seizures reoccur usually when he is waking up. our doctor give him medication but still it is happening and its not giving patterns anymore, the seizure happens any time of the day right after our baby wakes up.
My dad had a stroke, and sometimes while we were all sleeping he would suddenly growl and shake at the same time as his eyes were closed, because he couldn't control his body so much that his teeth would bleed. Mom and I are very panicked and we don't know what to do but it doesn't happen often
Better to see a neurologist for evaluation and treatment
That's sad. Your poor Dad. Must feel so scary to him when it's happening. How is he now?
My mom is have night time seizures, started at age of 45 few months back.... she's not using proper medication....is there any treatment doctor?
My son suffers from nocturnal seizures. He wakes up quivering like electricity is running through his body. If he tries to stand he falls to the floor. Took him to a neurologist had several tests done to no avail. Going to take him to a specialist soon. He is sixteen years old. This began around six months ago.
Good idea
My son has this too! It has happened since he was a baby, he is now 3. Whilst he is shaking we wake him and his eyes will be open but he doesn’t respond to his name or anything, he’s just blank. Eeg and sleep study were all normal however it only ever happens every 6 months or so. So desperate for answers because it just doesn’t seem normal! I hope your specialist can give you some answers!!
I get this too. Very ad hoc
@@louisechikwanda7950 I recognise what your description with myself. I also get tonic clonic seizures (perhaps your son also makes a strange breathing noise like snoring/growling?) cause my breathing is also strange. Then when waking up I'm blank, can't stand up due to my balance being completely gone. Don't remember anything, my name, the place where I am, nothing. It slowly comes back (very inconvenient with ambulances who have to take you home!). Cause I used to to have these seizures during the day, now for the last 5 years all during the night.
I'm on depakine, lamotrigine and clabazam. Not sure if they work though.
50 year old male here, I started having night seizures in the last year... I am not happy with my neurologist and am seeing a new doctor that specializes in epilepsy only soon... I was taking depacote and now am on vimpat, it still not fully stopping the bizarre night time seizures but at least they aren't the crazy grand mal ones that were putting me in the hospital.. my neurologist thinks it may be as a result of my motocross racing where I had some severe wrecks... I would love to know if there are certain meds you recommend for nocturnal seizures? Thanks for the video Dr Omar!
Thank you...No specific medications for night time seizures but as we discussed head trauma is a common cause...if seizures are not getting better you need to see the epilepsy center and the epilepsy specialized neurologist
@@DrOmarDanoun Thank you Dr! I am scheduled to see Dr Gill in N.Virginia on the 22nd who specializes in epilepsy, I am totally unsatisfied with my current neurologist and never even got a formal diagnosis - if you see this I have a quick question, do you know any doctors who have prescribed Epidioliex - I am going to ask her if I can try it instead of Vimpat, it is FDA approved! If you have heard about this cannabidiol, do you think it can potentially be good for nocturnal seizures?
I have been having chronical "sleep paralysis" for like 3 or 4 years by now, or so that's what I think. Lately I've been thinking that it might be seizures because my little sister has also epilepsy and most of the times happens when she. Is sleeping. So the thing is that when the "sleep paralysis" kicks in I just can feel my jaw rigid and going to the left, my body completely tense and my legs bicycling, when I wake up o just feel completely tired I can hardly stay awake, feel like my body is not responding and I try to stay awake but I just can't and mostly fall sleep right away to only have that same thing happen to me again (all of this happen while semi conscious). So I don't know if these could be symptoms of nocturnal epilepsy.
I've been struggling with this for years and it really is hurting my life and I just want it to stop, but I don't know what is happening to me when I sleep. I don't see people having "chronic sleep paralysis". This happens to me between two and three time in a week, and that's when I have a good week. Sometime it happens every single day
Like 7 years ago I suffered a severe head injury. Two years later I went to make some studies of my brain because my psychiatrist asked to do them, they told me I had a cerebral irritation and explained to me that that was kind of like epilepsy but not triggering the seizure. By the next year is when the things I described started to happen to me.
Maybe I'm just overthinking it. But I remember my sis having a seizure and mostly having her entire body rigid and her feeling so tired she couldn't stay awake at all.
I can't provide medical advice online.. But you can get overnight sleep study and EEG with video to tell apart which one you have. Better to see a neurologist for evaluation and treatment
I've had plenty sleep paralysis since I was a kid. Now as an adult when it happens i am able while paralyzed to ask my wife to shake me awake. Once I flicked myself off the bed on purpose and woke up as i hit the ground. About a week ago I took a rest on a Sunday afternoon and had a seizure which my wife saw later had another while also sleeping went to see a neurologist after first spending a night in hospital have now been diagnosed with epilepsy after having a EEG. Other symptoms i had for years include being very tired in the mornings no matter how many hours I slept, brain fog from some foods and twice smelling something that I thought I recognized but couldn't place the smell which i since learnt are all symptoms of epilepsy.
@@tjvanaarde hi i feel you .i have it whole my life ...but no one is understood it ...i have low memories.that means i am forgetfull...,sorry for my bad english
I got a pnes diagnosis but I find myself having siezure when I just wake up now,
I had a traumatic brain injury in 2019 the first hit was to my left forehead. I started having seizures in my sleep in March of 2022. It always starts with my heart rate falling below 30 bpm. I know this because my watch alerts my Caregiver when this happens. By the time they get to my room they say I am seizing. But the wonderful er doc at the bandaid hospital here says I have something called pnes or something because I didn't respond to Keppra.
You are having a trauma induced seizure. Start therapy ASAP 💜
I have seen seizure in my brother in sleeping early morning , that happen 2 time in gap of 6 months , ct scan show bilateral maxillary sinusitis . But according me its have been sleep myoclonus ,plz help me to understand whats going on
My seizures originated in my sleep. They started off as petite mal seizures and later became grand mal seizures, resulting in me getting temporal lobe lobectomy. I have had a few seizures in the day time, the majority are in my sleep.
What are the treatments you have taken.
Dr,is Depakine (Valproate acid) good medication for noctural seizurs? And is posible to someone have seizur first time after wisdom tooth extraction?
Valproate works for all types of Seizures. The choice depends on the patient’s background as I explained in the Valproate video. Tooth extraction should not cause epilepsy. But discuss this with your neurologist
Please try UCLA in California
They have the best epilipsy center in the United States.
Thanks Dr. Omar. Can AEDs induce night time seizure? This what I have been told. I have tonic clonic epilepsy and when I used lamictal I started to experience night time seizures (myoclonic) almost every-night. Now I am on Briviact and valproic acid and still get it about 3 to 4 times a month. Is it something I am going to have to live with? Of course when stress level is high I get it more often.
We know that Lamictal can cause myclonic jerks in cases of juvenile myclonic epilepsy
.. I can't tell the future without knowing your case well.. Please discuss with your neurologist
@@theeclecticbombshell7562 anti eplisetic drug
@abdullah depends on you 24-48 eeg are you getting abnormal eeg during the day or night ? Pirior to taking lamicatal were you on another substitute aed ? There medication that caused siezure withdrawal
I have night time seizure. Before that it is also in a day but now only in night without a missed drug. with 3 month interval there is seizure. I take carbamezipne & fluextine drugs. Doctor please reply. I am from Ethiopia
I’m 36 and they are just now starting to evaluate me for this because I had a daytime episode.
I’ve been experiencing everything since I was small.
Talking, walking, jumping up and running before collapsing or just getting back into bed.
Screaming so bad I don’t remember it, but I wake up to my voice and throat raw from screaming (embarrassingly neighbors called the police one time)
Like having strings and being a marionette, I’ve rolled over my partner and out of bed, flipped up and out of bed. I’ve launched out of bed and onto my feet, arms swinging.
Meds for BP seemed to sometimes help a little. I thought they were just “night terrors of unknown origin” for the last 15 years.
We wonder how long this has been happening. I was diagnosed last 4 years with hyperadrenergic pots/Dysautonamia and whole host of other layered genetic conditions.
I had a sleep study 15 years ago, but they only could say I don’t enter the stages of sleep deeply the one night I was tested.
I just put a camera up in my room 2 nights ago and it caught me first night, suddenly hacking and choking and gasping. Captured then my roommate coming to check on me, talking to me and me being completely incoherent and confused and disoriented. Speaking gibberish.
I often startle out of sleep, or jerk quickly, but then it stops.
I hope they help me find answers soon. My local health system and providers are so over taxed.
This has been an embarrassing and dangerous plague, my entire life.
Never knowing when I’ll have one or where I’ll be. Hoping it’s not at a friends or someone I’ve begun dating. It’s so embarrassing 🤦🤦🤦
Worse, now worrying if it will happen while driving.
It’s been just another part of a whole system decline into total disability, in the short space of 6 months.
I’m tempted to give your office a call. I’m in Seattle though.
OKAY so does it feel like your shaking and can't control it but your eyes are open and you feel the shaking. Try to stop it and it goes to a slower shake, but you didn't stop?
Dr i am from pakistan i am facing this situation from 2017 before this it never heppen to me when i sleep i make a loud noise then my hand and legs get locked after few minutes i speak different languages and i don't know my father mother brother sister who they are front of me but slowly slowy i remember every thing and know every one after this few minutes condition i feel very stronger pain in my body for few days and when i getup at morning i forget every thing what happend to me at night
Dr can u tell me what is this and how can i control this thing
I have this from a SAH
I have the same problem from last 5 years nearly. First it was started in night but after 3-4 months these intensity and frequency increased. Now i have these seizures when i was just in a state to sleep, at night, or whenever my mind start to goes relax….the doctor did a video EEG and called me that it’s frontal lobe epilepsy…and advised me for surgery…because after taking Carbamazepine CR 600 BD Lamotrigine 100 BD, and clobazam 10 HS….these are not stopping….I don’t want surgery but be on medications only….please help.
Hope you’re doing good now 🤗
I just found out I have nocturnal seizures, I didn't know that could happen!
Yes can happen
@@DrOmarDanoun I'm starting treatment for it soon but I think my neurologist said to wait to take the medicine until they decide i need a lumbar puncture for something or not
@@Ezdrools How do you know for sure my mother was talking with my sister who has epilepsy about her seeing me snoring deep one second then the next I’m it’s like she said I couldn’t breathe and I was moving around a bit but i don’t remember it or notice anything In the morning
@@NobodyNobody-wq2ij this sounds like sleep apnea, but I'm no doctor. I was told by my doctor about this though. I would suggest talking to your primary care to get you referred to a neurologist for an EMU and for sleep studies. I hope youre okay!
I have discovered that I have night time seizures, well I have been told because I wake up not remembering anything, tired and my tongue will have a small cut and a bit swollen, these seizures only happen at night while I'm asleep and happen once in atleast 3months...this started 3years ago after I gave birth, I'm 29yrs
Mine started after giving birth as well and are nocturnal. Have you figured anything out? Any medication that works or cause?
Pls suggested WHT best medicine
Treatment depends on the cause and the patient situation. Please review the video on best antiseizure medication and discuss with your neurologist
OK doc thank you so much
Why do I have most of my seizures while sleeping?..I remember nothing and if I do it's like a dream and people tell me what I do or say during such episodes
my 3years old do have nocturnal seizures,this is the 4th episode and am so scared, please what should I do?
My nocturnal seizure can be cured? If yes, how long, does it have time or year range? 💜💜💜
I would like to thank #DrObulor for all the time he had to put into his work, I'm unable to stop thinking of how I could continue living with epilepsy however what's destined to be will be. I kept praying and also receiving marital support and energy and my prayers were answered through Dr Obulor he's just the better doctor and I recommend him💕....
Dr. Omar I've been having night time seizures since I was 36 they have been going on now for about 7yr can these be misdiagnosed for PNES? When I have them I have the bicycle movement, my arms stuffing up, I try biting my tongue, My heart rate even rises. This has been told to me by my mother, son and husband, but my Neurologist is wanting to still diagnose as pnes, when I have these night seizures it takes me about 2 days to fully recover from having these. Can you please help me understand the difference between frontal lobe and pnes seizures
Yes, I explained these differences in details in the frontal lobe epilepsy video and the PNES diagnosis video. Please review them and discuss with epilepsy specialized neurologist. You can't just make the diagnosis of PNES based on the symptoms alone. At least an experienced epilepsy doctor will not.
Can i adjust my bedtime 3 or 4 hours late.
I am trying to travel to Cyprus for further studies. Can you please give me some tips and advice. For my situation.
Depending on the case. You either slowly change your sleep schedule or just wait until you get there and you will adjust.. Discuss with your neurologist.. Thank you
Diagnosed with epilepsy after 5 known grand mal seizures in late 30's. I take Keppra and had no seizures (that I know of) since taking the medication (2 years now). Is it possible to have auras, but no seizure after? I get uneasy feeling in stomach, see flashes of light like fireflies, almost hyperventilate just to breathe and the feeling of needing to sit out of fear of fainting.
Yes. Please review the video on auras
Are you able to drive a car?
Spiritual Warfare... always trying to escape and defend
Question. I have a complete body seizure once every year to year and a half. It is a nighttime seizure when my brain first hits REM sleep. I had many CT's, MRI's, EGG's, and each does not show anything. Had sleep studies and still nothing. The only thing I was told is that it has something to do with sleep depravation or something. I feel lost. I only have had 5 of them and in the last 6 to 7 years. Any thought?
This can happen. Seizures fluctuate in frequency. Some happen once a week and some once a year... If left untreated, seizures can get worse and more frequent overtime. I hope this helps
No! Dont take medication! MCT oil😊
Dr pls reply.my 2 years old boy has some movement in body and eyes are open but not rolling for 5 sec.neurology dr took eeg.all report normal.then diagnose its benign sleep myoclonus so no need treatment.nothing to worry .it will stop when child reaches age 6.i am worried.pls reply sir
Is it common to remeber the seizures during the night? I have problem with this.
1. I am waking up every night being fully awake, my heart is raising and im saying 2-3 words. I often remeber theese events.
2. I have had 3 grand mal seizures during my sleep, im waking up from deep sleep, feeling I will have a seizure and it starts. I then black out and wakes up around 10-20 minutes after and I am completley disoriented.
3. During the daytime I get theese "attacks" where im getting stronger heartbeat, thinking negative about my self, feels like everybody is watching me. I have no idea what this is but it is affecting my life completely.
Any idea what I can be suffering from? I have been to the doctors several times and I will be under an EEG soon
Yes best way to handle this is to see a neurologist for evaluation and treatment
Why do I spit spit so much and sound like I'm choking or snoring?it is how they have heard me in My room when having seizures in my sleep
I usually have seizures during my sleep and I wake up with my tongue being bitten either on one side or both sides of my tongue. Which leaves me to have mouth ulcers as a result of biting my tongue hard.
I recently had a seizure where I was conscious and fell to the floor which left me with a cut on my forehead and the side of my cheek to be red. I got sent to hospital that day as it lasted longer than 5 minutes.
I'm on medication, Levitracetam and I take one 500mg tablet in the morning, another 500mg along with a 250mg tablet at night.
My seizures used to come every two weeks but has been getting less frequent pushing to sometimes not having one in three weeks to a month.
I've tried cutting my screen time and playing less video games. I've tried eating a bit healthier but I'm unsure on what to keep on changing and removing.
Hope you feel better soon... There are many different medications and treatments...you can review the drug resistant epilepsy video and discuss with your neurologist
I have my seizure during sleep or when half wake up,maybe twice a year since two year ago. I always feel that I would die when seizure attacked my left brain was like shocked by electricity,but only after few seconds then I lost my consious.second day I woke up I can only remember how I felt before seizure happened.I do not want take ASM,I am trying herb tea and ketogenic diet，just trying to find out if it will stop my epilepsy.I am not very strict with ketogenic,I just reduce a lot of carbohydrate food like rice,bread,potato,noodles.I only eat one spoon rice or potato every meal,the rest food I cook meat,fish,or chicken with vegetables.sometimes I have that Panic and anxiety feelings like I will get my seizure soon,then I keep telling myself calm down,calm down with deep breath then nothing happen afterwards.The pine needles tea help me relax.I am still observe more things about my seisure trigger,such as my thyroid problem,my emotion etc,hope I never need take the ASM pills.
Hope you are doing well now. How are you feeling now? Have they more less frequent?
@@safzkool Haven't had a seizure in 53 days which is pretty good, I'm quite forgetful but I have been taking photos when I take them so I can remember which has been useful.
I also got 2 seizure during sleep having gap of 5 to 6 months .....
Now I am also on the same medication as yours ...
I just wanna ask that if you've got any seizure during medication or not
I got this just before ramadan. But I also had jinn possession is there any correlation?
There is no Jinn possession.. It is not true. Epilepsy is a brain condition... Prophet Mohammad PBUH had a woman with epilepsy come to him ask for help and he made duaa for her. He did not tell her you have Jinn..
I don’t get seizures to often every few months or so but my most recent seizures have been at night and I bit my tongue and pissed the bed. This is the first time they started to happen at night. How do I know what type of epilepsy I have?
By visiting a neurologist and doing the work up
How can a person identify the difference between sleep apnea or a night seizure?
By medical evaluation and sleep study
Doc,my baby have epilepsy also😢😢
Here maintenance is phenobarbital
It's hard 4me,to accept this until now..I'm cry.,bcoz my baby suffered epilepsy,.also she have blood infection..that's,y..were always in the hospital..
Dude, what about the ketogenic diet? That beats brain surgery any day. Have you seen the movie "First Do No Harm"?
OXCARBAZEPINE was prescribe to my daughter she’s six years old she only had two seizures that we are aware of.
I have not start her on this medication as yet because I need way more information these medication has a Lot of major side effect and I’m not trying to make her situation worse.
hi im a 17 years old boy and i think i had my first sleep seizure like few months ago and i have had 5 or 6 sleep seizures for now. should i be scared doctor? like should i tell my parents and ask them to take me to a doc? a reply would be great 🙏🏼
Yes you should go to see a neurologist right away
My son had Dengue encephalitis when he was 6 years old. He now has nocturnal seizures while sleeping. His eyes open , neck twists to right side and eyeballs move to right. He makes swallowing sounds. Lasts for 20 to 30 seconds. He is taking oxetol 600mg BD , Keppra 500 mg OD and cloba 10mg OD
but no improvement. What to do?
Please review the video on drug resistant epilepsy for full information and discuss with your neurologist
My daughter has seizures upon waking up they started at age 18 she just all of a sudden developed this has has 3 bites her tongue very scary to see lasting about 4-6 minutes she takes keppra and has not had one in a year exactly today what is happening will she always have these what makes the body all
Of a sudden experience these will she always need meds? Still no exact diagnosis just epilepsy her doctor is very vague says fascinating continually while explaining symptoms what are your thoughts please see this ❤
Epilepsy is a chronic condition and needs long term treatment
Hi I am Kavita from India I have focal seizures and is it because of brain tumor
I have nocturnal epilepsy for nearly 4 years now, has anybody experienced twitches or spasms in there hands while there awake
I have theses unfortunately too. Been on medication for 5 years now and I still get around 3 or so a year in my sleep despite taking the medication. What surgery can I get done. I have frontal lobe epilepsy.
Please review the video on drug resistant epilepsy. It has everything you need to know about surgery
@@DrOmarDanoun ok I will do Jazka Allah may Allah bless you for your hard working and helping humanity ❤️🥰
I have had 7 of these over the last nine years, I wake up confused, and super sore, and not knowing where I'm at, but this only happens at night, when I stop breathing, due to sleep apnea. Dr. What do I do, they have suspended my license, and I can't even work. Is it possible for me to get disability?
It is possible.. See a neurologist for evaluation and treatment
I had 2 seizures at night while traveling by train(Aug 2018, Oct 2019 ), tongue was bitten and there was Little pain in the back.
Taking two pills of Levera 500 mg per day .
How long should I continue the medications ?
Please review the video on stopping antiseizure medications.. Treatment of epilepsy is long term