You DO NOT have Epilepsy
ฝัง
- เผยแพร่เมื่อ 22 ก.ย. 2021
- Are you having shaking that is not responding to seizure medications? Shaking can be caused by many things, not necessarily epilepsy. Today will discuss the other causes of shaking other than Epilepsy and provide you with the possibilities to discuss with your doctor.
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#DrOmardanoun #Epilepsy #SeizureMimics
If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays
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What if you feel sound echo from ears before you faint.
Such a selfless doctor and a very effective communicator!
I’ve been dealing with my epilepsy diagnosis for 4 years now and I’m learning so much from your videos. Great work and thank you for taking time to make these videos.
Excellent...Thanks..You are a real doctor trying to help rather than just prescribing medications. That is getting to the heart of the problem.
This is one of the best information i have ever heard . Now i will be able to follow up my friend's 12 year old who started collapsing and shaking sinc 2021.
Wonderful! ty
More case ‘journeys’ please.
Excellent stuff Omar 👏
Thank you Zakhar 😊... Glad you like it
Awesome information! Thank you!
Glad it was helpful!
انت جدددا مبدع ، اللهم بارك 🌹❤ربي يسعدك
Thank you so much for this!
You're so welcome!
You are an amazing Dr.
You rock!... Thank you
I was diagnosed with PNES over 2 years ago. After seeing these videos, I am convinced I am having frontal lobe seizures. They only last 2 minutes, minimal shaking but lots of vocalizations. I have an appointment with a new neurologist in December
Great video
مبدع دكتورنا
very helpful
His last seizure was in October and it happened twice in one day. The first seizure was at 5 AM and the second one happened at 10 AM. His fever was very high at that time. The EEG result according to the doctor has abnormalities and talked about waves that I do not understand.
I have brain issues which keep changing, wish I could I could find a decline you! Thank you
Sooner or later I will find help. ❤
I have been a patient of epilepsy from years. Some neurologists described it as TLE and some absence seizure. I did 3T Mri and vedio EEG both show normal report. I am taking sodium valproate and clobazam as my medications. My last seizure was in August 22 , but with the medications i am facing lost of problems related to memory. Like learning, and learning recalling the knowledge in exams. And other.
I am very much confused neither i am getting correct diagnosis .
And also memory related side affects, so what to do.
Dr omar D, thanks for your very educative videos. I hope you benefit out of the good work you are doing.
I have a question sir, I once suffered night seizure attack during sleep after an intense weight lifting workout a day before. Then all the tests that l subsequently was put on by the neurologist came out negative.
What could have caused my situation?
I was put on keppra but every time I lift heavy(even after months of no lifting no seizure), I do experience nasty nocturnal episodes. Thrice now, spaced at 5months or just so, apart.
Can't tell without evaluating the patient in my clinic. Please review the video on nocturnal epilepsy
Love your videos Dr. Have had seizures for 53 years and take meds, but also have arrhythmias. Was put on sodium channel blocker and out of the blue had a seizure after being on it for 1 month. They changed me med to Propranolol, and I started getting depressed so I quit taking it after 3 to 4 weeks and had a seizure. I am taking my seizure meds, but still having focal seizures almost 1 every day. This is not normal for me. I read a post from someone who had never had a seizure until they stopped taking their propranolol. The patient started back taking the propranolol and no more seizures. Beginning to wonder if it is my heart that has caused these issues.
Hello, im very happy to found your videos! I have a question, if i have focal epilepsy, can i take piracetam with alpha gpc (acetyl choline)? I have a serious problem after focal seizures, that im most of the time feel forgetful, slow, always non alerted and cant concentrate sometimes, most of time my motivation are fluqtuating, also sleeping really bad most of the time. I found myself that piracetam and alpha gpc given me seriously mood and motivation boost, sleeping well like a child (like never before) can concentrate normally and most important my memory, alertness, reaction and thinking speed are so good now again. But im afraid a bit due side effects of this medicines. I just play myself on these :)
Wow awesome
I had a seizure in 2021 and it lasted for like 2-3 minutes.. and I've been taking one tablet.. my dr. Has told me to take it for one year.. and from that day till now i haven't got any more seizures.. please let me know if this is epileptic seizure or non epileptic seizure.. that was the worst thing that ever happened to me in my entire life.. i still fear it so much.. 😭 I am just praying day and night for Jesus Christ to cure me completely.. ✝️🛐❤️
The same thing happend to one of my friends in our hotel room when we were at a curling meeting he had a seizure in the middle of the night and but his tongue really bad the doctors here said it was fairly common in younger people to have one seizure in there life time this happend about a year and a half ago hes been well ever since and hasn't had a seizure prayers to you my friend
@@jaronbeaulac1152 sad.. hope he is doing well now..your life after a seizure is not the same.. 😢
@@joelmenezes1797 never but he is good and healthy now he hasn't had another one since but my cousin is the same age as me we are both 19 and the beginning of my last you in high school he had a seizure and ever since hes been having them and every doctor he has been to cant figure out why it happens In the last 2 weeks he has had 4 seizures sometimes he will have them twice a day.
@@jaronbeaulac1152 It may be hereditary... Consult a neurologist and get a CT scan and MRI done and a EEG test .. it may help find out the cause of the seizures.. 🙂✌🏻
@@joelmenezes1797 he had actually mentioned something about the doctor talking about doing some kind of a brain surgery
I have so much I want to say on this topic, but I'll keep it short. ....
Please don't settle for the diagnosis of "epilepsy", but rather try to learn the root cause for your seizures.
Seizures could indicate that you're in a severe stage of another medical issue! For example, a food allergy, auto immune disorder, or taking medication for too long, just to name a few.
Thank you for these videos. I have read that conditions like fibromyalgia and ME/CFS can cause PNES. I shave been diagnosed with both. What are your thoughts on this ? How would that be treated ? I have times where I am seizure free for a week or so and then other times when I have multiple events in one day.
Once again your information in so valuable. I have commented on your other videos but would like to ask you if my son took Vyvanse which was not his prescription, stayed up to study and drank caffeine had a seizure. Could he have brought this on to produce more seizures almost 2 years later? Normal mri and eeg for the first seizure. 2 years later tiny t2 flair for 3rd seizure. Just your thoughts would be appreciated. He is hoping he did not bring this on by the horrible mistake of the first one. Thanks
It's hard to give case based answers. Please discuss with your neurologist as they will know the case in depth to answer the question
Can you make more of these videos? This was so fun. Like being a detective as you said. 😁 By the way. Is there a way to check for epilepsy during blood test? I was at the doctor. And been fainting and having seizures alot and spoke with other people who have seizures and nurses. She told me I could be having abscent seizures or simple aware partial seizures. I have other symptoms too. So perhaps other seizures as well. But my doctor wants to take a blood test before we go further. Can you see something on the blood test connected to epilepsy or is it just to rule out other things? I am just curious. I am not asking you to provide medical help, I am in contact with my doctor. Just curious if you can see anything related to epilepsy on your blood test?
Sure thing. No specific test in the blood to prove epilepsy
@@DrOmarDanoun thank you so much for your response. Is it possible to have different types of epileptic seizures? Someone told me usually it is only one type an epileptic person can have. I just think I heard somewhere that one person can have different types of epileptic seizures and it is not just one. And therefore you can't just rule out that it is not epilepsy if it is not the same way every time.
No epilepsy is not diagnosed with a blood test.
Hello. You mentioned that if blood sugar gets too low, the patient can pass out and even have some shaking, but then they will wake up and be OK. What if the blood sugar continues to drop though - would they actually wake up, or would they just continue having a seizure, and possibly go into a coma? For example, a person who is malnourished, and the low blood sugar is not due to insulin dosing - without treating the blood sugar, I imagine it would continue dropping.
Sir, Thank you for your videos Gain a lot knowledge from it , My father had some signs related to seizure but when he had that signs no one was at home my younger brother he saw and he told to the Doctor , So the Doctor diagnosed Seizure without doin any test and he started prescribing medicine, After three months with my request eeg was sone but in eeg seizure was not detected, Till now doctor told to continue medication, Iam just scared I'm not sure also wether he is having seizure or not?? Is he taking medication without having seizure? Pls help me to know about this and what to do??
Can you have auras and still not be epileptic? If your seizures were stressed induced, can you have auras with nonepileptic seizures?
thankyou doc for the tips and advice. i am a mom of 3yrs old kids boy. have a seizure and arachnoid cyst 4cm size found in CT SCAN. with medication of valpr0ic acid❤️
i have a question doc? is it possible the seizure of my son is cause by his arachnoid cyst? please answer doc🤎😍
i was diagnosed with epilepsy, none of my seizures were tonic-clonic. i knew they were seizures before the doctors did and it took 5 years since they started to get a diagnosis. sometimes theyre scary, usually theyre annoying and a little painful
Yes. I loved this sloothing excercise.
Glad you enjoyed it!
Has anyone tried brivact for seizures my neurologist had put me on it after I was on all the other meds and I started having 5 to ten day and then when I was put on brivact I didn't have seizures for 6 years
Pinki finger lol so cute
Please am having seizures which started since 2018 at the age of 26years , it start by lifting my left leg up on the left side of my body.
I always have auras from my toes whenever it want to start . Years ago I fell from a building with my head on the ground but was diagnosed or taken for scan as I was a 10 year old then😭 so I recalled all this and am fully convince it's the caused of this seizures. I need Ur help please
I've had 2 tonic clonic seizures with the time difference of 6 months in between. My doc prescribed me lamotrigine, and i've been taking it for 4 months now. Didn't get any seizure after that. My question is, Do i have epilepsy although i just had 2 seizures & don't get seizures regularly?
Hey Omar, is it possible for Accutane to cause seizures? I used to take a prescribed 40mg dose of Accutane alongside 50mg of Sertraline every evening (I still take Sertraline) before I had my first seizure almost 3 weeks ago so I was wondering if the Accutane might of triggered a side effect that caused the seizure to happen.
Seizures are a rare side effect... Discuss with your neurologist
Hy doc,I lost my kid bro last month 27 Feb,he had epilepsy,now during body viewing he was bleeding from the nose is day normal my doctor for a dead person to bleed sure?
What about if a seizure happens for less than 30seconds as one is falling asleep , and the person can tell u what was happening during the seizure and a feeling of palpitations on their chest area , what type of a seizure could that be?
I have been suffering from epilepsy for 3years
Using/ corbamazapin,/tegral tablet
Two time daily
In three years just few days before I left tablet for not getting here
Again I got attack
I don't know
So how many time I have to uesd it
Dr told me that time used this tablets just for three years
Then after the test we will do test
Plz guide me 😢
I have seizures sml shakes and the very larg seizures when I shake head to food then I don't know what I'm doing I come too as like in faint they tell me what I done not remember the next I have ambulance 90per next to me most to check then I go to hosp for another check some time I wet or bite tounge 😢😮😢😮
I was diagnosed a year ago with focal impaired awareness seizures,which I guess is a form of epilepsy. Since then the normal zone out and kind of forget things for a bit but about 4 days ago I had a 8 minute episode that had progressed into involuntary shaking and jerking movements there were a total of 4 of these shaking episodes that followed my 8 minute “normal” blank out. Not sure what is going on with that but would love to hear some opinions. This is still new to me and I dont know what to think right now.
I was diagnosed with left temporal lobe epilepsy with secondary generalization, although we are starting to suspect maybe seizures are coming from the insula. When I was diagnosed I also began to have psychogenic nonepileptic events. I can always differentiate now based on whether I can talk and how long they last. It's worth a conversation with your neurologist.
Hi dr omar my seizure just like one minute and I use tegretol 200 mg for morning and evening wht will you recommend me
Please discuss with your neurologist. I can't provide medical advice online
Sir I got epilepsy during pregnancy at 9 months. During my second pregnancy I got again epilepsy in my 5 months. I got epilepsy only during my sleep time. How I can control it or I should continue my medication lifetime
Do you know if prednisone high dosages can create an episode mimicking a seizure? My daughter went in with vertigo and was then diagnosed with vestibular neuritis. Hospitalized for 4 days. Released and put on a step down of prednisone, which created an episode on day 4, but I don't believe it's epilepsy. Should we seek out someone other than a neurologist? Thank you. You are very helpful.
Yes best to see a neurologist for evaluation and testing
I’ve been having episodes for 4 years now and doctors don’t know what is wrong with me still they put a vns on me and it hasn’t really helped
I'm on the max possible dose of Dilantin, and take Depakote multiple times a day. Rn I haven't had a memory for 94 days from my last one
If a patient has an eeg during diagnosis, and it shows spikes and waves like those associated with generalized seizures will that be the diagnosis? Is it possible to have something else going on and have an eeg with spik s and waves?
No generalized spike and wave only happens in epilepsy
Hi dr Omar I have the same name as u and I seizure person
I need help from doctor like you tired of medicine that does no good. just because neurologist are too scared to admit could be non-epileptic seizures. Please help any suggestions greatly appreciated!
My brother experience about 5-8 times seizures in one day can u tell what should we do,this is newly happen,he dont experience seizures since birth it just happen now and he was hospital ang the doctor gave him keppra but still he keep on suffering seizures evry hr...
Me 16year we have epilepsy now is not healthy, everyday eat medicine, how to do sir
Hi Dr Omar I would like to know what kind of epilepsy I have my husband and kids say I first start talking weird looking all around and confused then I start shaking all my body I bite my tongue and foam starts coming out of my mouth then I fall asleep when I wake up I start throwing up but I don't remember anything at all. I just notice I get the epilepsy attack cause I start feeling the pain in my body the bite I did to my self. I'll appreciate your response.
I can't provide medical advice online. I suggest they film the event on video when it happens and discuss with your neurologist
Doc can I ask I have seizure and panic attack ..my first Dr give me carbamazepine 200mg just 1 in the morning,,,half zotral 50mg and olzadin 1/4 5mg in the night but still my seizure attacking more when i smell strong like foul smell and also in cold electrfan that's why i go in other dr.he give me test for EEG there was seen abnormal lll (awake) over my left frontal region of my head wich cause my seizure what is it mean doc...my new Dr. Give me 3times a day carbamazepine 200mg..now in my head I feel in my left front region there's flicking is it ok.. I'm still attacking seizure but only when i smell foul smell and so cold electrfan and when I drink coffee ...how can i overcome this doc pls advice mo😢
Hello, I've been watching TH-cam videos about temporal lobe epilepsy and you came up on my feed. I watched your temporal lobe epilepsy video and your frontal lobe epilepsy video. I'm going to post a question in this one because I have a 20 year old son who's had an epilepsy diagnosis for 17 years.
Problem is; that in all those 17 years, no doctor has been able to definitively pinpoint what is a seizure and what isn't. Even Cleveland Clinic could not identify what his seizures actually were. (February 2022)
He has a lot of epileptiform activity in the EEG. Back ground slowing in the left temporal lobe. Spike wave discharge activity in both temporal lobes, some discharges appear in the frontal lobes; along with random spike wave discharges that appear with no pattern in other parts of the brain. I don't think they recorded any spike wave discharge that was more than 6 seconds. The current epilepsy classification is "generalized"; although he obviously does not have generalized seizures. (Or at least generalized seizures that anyone has ever identified on an EEG.)
Thus my question is; can someone have obvious epileptiform activity on an EEG and not have epilepsy?
I've dug through several research papers over the years, trying to figure out what kind of epilepsy he has and I have never found a paper that said one could have notable presence of epileptiform activity on an EEG and not have epilepsy. So, I would conclude that answer to be "no". Though I've had more than one doctor try to tell me "maybe he doesn't have seizures?" (Or doesn't have them any more.) I don't believe that for a second!
Not that he doesn't have manifestations of some sort of neurological problem. He has nearly constant tremors of the extremities; balance issues, can't "stand in one place" because he states he feels like he's going to fall over, has difficulty with stairs (feels like he's going to fall down them = seems to be a "visual input" perception problem? Can go up stairs easier than down them.) Noticeable memory problems. He gets confused. He has some fear of getting lost; more fear of disorientation than "I don't know where I am" type of "lost"?) He exhibited quite a serious speech developmental delay both in receptive and expressive speech. He was in speech therapy until 6th grade. He has some obvious "crossing the midline" motor planning problems (seems to be communication issues) between the two sides of the brain. He also sleeps between 10 and 12 hours a day.
Reasoning capacity full scale IQ score 94
Memory subsets only score in the high 50's to mid 60's though.
He's clearly not intellectually disabled.
He's had all the genetic and mitochondrial testing that can be done. (Nothing). At least 6 LTM EEG's. 3 MRI's at this point. Vascular malformation posterior left temporal lobe of the brain. (Me thinks that's probably the cause of the epilepsy.) They found the malformation on a standard brain MRI that was done when he was 4. Just recently had "epilepsy weighted MRI". Yet to get the results; so I don't know if they are seeing atrophy in the hippocampus, or other scaring in the temporal lobes. I think they'd see it most in the left side; if they find it.
Currently doctors' best guess is "genetic epilepsy yet to be determined". He's currently classified as "intractable" and is on depekote and vimpat. Noted "no EEG change" on or off meds. While off of meds at Cleveland though; his confusion got so bad that he could not answer questions and the hand tremors got so bad that he could not put together Lego sets. At that point he was rather agitated too; (particularly with one specific doctor). So how much of the agitation was neurological as opposed to emotional reaction to environmental factors; is unclear. He's not generally an angry hostile person; but does appear to have some increase in sensory input problems over the past 5 years. It also took about 12 hours back on meds to attain some degree of steady balance.
It doesn't seem likely to me that he doesn't have epilepsy! Seems to me he has cognitive temporal lobe epilepsy and possibly even a combination of that and frontal lobe epilepsy?
After 17 years; we are both pretty irritated and don't understand why it's taken this long and we still don't have a specific diagnosis?
We'll see where current round of testing takes us? We may be contacting your office in the future though for another opinion.
Thanks for these videos though. I've found them useful.
Thank you for the detailed explanation. I agree with you it is frustrating to just get a clear answer. I will be happy to see him and evaluate all the current testing and give you an answer based on the full assessment. I don't want to make assumptions that are not based on evidence and full review. Feel free to give my office a call and get your appointment and I will see you there. If you search on Google you will find it at Henry Ford Hospital
@@DrOmarDanoun - Yes! Thank you. I have your office phone number in my book marks! The end of this month we have an appointment with his current neurologist to go over his most recent MRI.
If I can get my "biggest dream" for him out of all of this; it would be that surgery can stop his seizures and we would no longer have to worry about medication! Either by whether or not it works, or that the pharmacy can get a hold of it!
Have you got any more answers ? This is the exact same scenario as us x
@@kingrex593 - I took my son to Dr. Danoun at Henry Ford in Detroit between December 2022 and April 2023. They did a MEG scan, neuro-psyc testing in evaluation for surgery. He'd had a T-3 MRI done at another facility in November of 2022 so the MRI was recent enough that they could use those images. Plus I had about 19 years of discharge paperwork and school evaluations; I'd brought with us.
The team did identify his seizures. (Eyelid myoclonus) And he was diagnosed with something called "Jeavon's syndrome". Jeavon's syndrome is usually believed to be genetic; but they've yet to identify a genetic link in my son. The clinical presentation of the diagnosis does fit though.
My son also has a cluster of malformed blood vessels in the left temporal lobe of the brain which they did conclude is involved in his seizures. Now whether or not that is a "temporal lobe origin point" or just part of the entire presentation; I don't think anyone is 100% sure of. If he does have a focal epilepsy; they can't tell from the current and most recent EEGs.
And the MEG scan didn't collect enough data to know for sure if the origin point was temporal lobe or deeper in the brain. But what little activity the MEG did pick up was left temporal lobe and did not appear to be a generalized discharge. Unfortunately, they only caught one discharge; which isn't enough data to plot. They need 5 or more.
Now, he was on medication for the MEG scan; but they wouldn't have been able to do the language mapping if he wasn't on meds for the scan; so - six of one and half a dozen of the other. They would have gotten more data off of meds; but the other testing they needed to do; they wouldn't have been able to off meds. The MEG scan did show that he has language on both sides of the brain. Which positively identifies some form of neurological dysfunction in the left temporal lobe. Again though, if that represents an origin point of a focal epilepsy; no one is sure, because clearly identifiable focal discharges are not currently showing up on the EEG. (Although they had in the past. the very first LTM EEG identified a clear focal discharge in the left temporal lobe.) The very first diagnosis was suspected complex partial seizures. But the next LTM EEG had generalized discharges and the focal discharges were not identifiable from that point on.
Also the nero-psych eval showed cognitive deficits coming from the left side. These deficits do affect his short term memory as well as language processing. Multiple nero-psych evals have showed that. (He's had about 4 of them over his life time now.)
So does he have more than one form of epilepsy? That's possible.
Now because the form of epilepsy that best fits the clinical seizure presentation is a generalized epilepsy; and he's not having tonic clonic seizures. Plus where the location of the malformation is; (smack dab in the middle of his language / memory center) his epilepsy was deemed inoperable; though it likely is still classified as refractory epilepsy. He went through a med increase; so until we do another EEG; we don't know what will show up on the EEG. Currently, most short term EEG's are picking up slowing in the left temporal lobe and some sporadic generalized discharges.
They did note that Vimpat was helpful. It is controlling most of the discharges. They did note that on the LTM EEG in Detroit. When they took him off the Vimpat the epileptiform discharges got much more pronounced and he got far less functional (and more agitated). So prior to discharge they did increase the Vimpat dosage.
They wanted to try a different med; but they had problems with the insurance company and timing of authorization. It would take them 72 hours once they got the justification from the doctor for them to decide whether or not they were going to give him the med; and at that point, the patient did not want to stay in the hospital another 3 to 4 days. But that med is still on the "back burner" as an option. It would just require a little more planning if in the future they wanted to do a strait out med swap. (They'd have to put in the request for the authorization upon admission.)
And it is now known that the Depekote was likely contributing to the tremor problem in some way. He went off the Depekote in December of 2022 because after having been on it for 16 years; he was found to have severe osteoporosis of the hips. (Got someone on Depekote; make sure they do DXA scans! His prior neurologist didn't do them until I told him to do them.) Endocrinology says they will repeat the DXA scan in two years. It will take at least that long to get bone density back; but they suspect it will come back at least to some degree on account of his age.
The tremors though did improve notably; but he does still have them. So thus we know they have something to do with his neurology. He is more functional in the increased vimpat and is sleeping better. (He's not sleeping as much and is more "with it" and interactive when he is awake.)
So yes! If you have (or can get) insurance that will cover out of state care (Unless your in MI?) And you want a thorough evaluation; go to Detroit. You will get a thorough evaluation from Dr. Danoun!
So if the patient has Medicare (Not Medicaid - no state will take another state's Medicaid)! Make sure they are on "Classic Medicare" (or switch when your open enrollment starts) and get a Medi-gap plan if you can. That's what we did; although my son also has VA insurance from me. He gets state Medicaid too from our home state; but we're not in MI. In state, Medicaid will pick up what Medicare doesn't cover; but they won't do that for care that's out of state. (Thus you will need a secondary insurance to Medicare if that's the insurance the patient has.)
Now we had to wait for my son's two years on SSDI to qualify for Medicare. But he collects SSDI on his dad's record because his dad is deceased. So yes, dealing with insurance is a mess. But if you can get to Detroit; the team up there will take the time to do the testing to find what ever they can. It may not be wholly conclusive; but they will do their due diligence.
I will pray that you guys find an answer.
I know - it's frustrating!
I was told I have epilepsy,I’ve had 3 seizures and was placed on Keppra and Vimpat medication.I have done MRI and an EGG and the results were negative which I’m grateful for 🙏🏽 I have tongue bite each time it happens and it happens while I’m sleeping.Do you have any suggestions?
Yes all the videos on the channel are about epilepsy and seizures for your information
I have the same thing. It only happens when I’m asleep and I bite my tongue. I did not have an event when they did the video EEG, but the neurologist said it was probably Epilepsy. They only saw “slow waves”. They put me on medication that didn’t stop the seizures. I think they are non-epileptic seizures but the doctor won’t come out and say it. They just want me to take more and more drugs. Frustrating.
Take a quick shower before bed and pray to God Almighty, O my Creator please protect me from all evils and all demons, purify my heart and my soul and bless me with Your Infinite Mercy, Guide me to the Truth and protect me from misguided people, You are Alone in Your Divinity and Might, You have no partners/offsprings, You Alone I worship and You are My Only Real Helper. Amen
NB. Jesus is Not God or Son of God and Virgin Mary is not Mother of God, so please don’t pray to them because they are mere humans and you will be wasting your time.
The problem is if you don't have an event while having an EEG you can come back with a negative EEG. Also keep in mind at least 50% of people they have no idea why. Meaning your MRI can be clear as a bell but you still have seizures even though everything structurally looks ok. That's the thing that irks me. It's like a little phantom just haunting our brains.
Hi, Dr. Omar. My son was recently diagnosed with epilepsy and now taking Depakene as his medication. He only seizure everytime he has a fever. But his neuro pedia cannot explain to us why it only occurs everytime he gets sick with fever. Once he gets a fever it spikes to 39 degrees. A fellow commented on my post on a FB page and told me that my son was misdiagnosed. Should I seek other neuro advice?
I can't provide medical advice.. If you are not convinced sure go ahead and ask a pediatric neurologist
I have the same thing. Get sick, then fever, then seizures. do you live in cold weather?
My son also has the same issue. 39 degrees is the temperature and the Dr said he's epileptic... Did you find any help fro your doctor?
Good afternoon Doctor Omar. I would like to share this with you. I'm a Truck driver. 3 days I was waiting to get loaded. As I was waiting my wife call me, and ask me how I was doing.? So i told her. I feel kinda of wired. I feel my face left side nomeness and my left arm. So I went to the ER room the did a different types of studies. And the neurologist tol the i have focal seizures. I never had any symptoms on the past and I'm 43 . You think is better if I get second opinion. In one of your videos you mention that if you have anxiety shouldn't be taken Keppra and that's what the neurologist prescribe me. I shoul I do ? Please help me
You can go back and discuss this issue with your neurologist... Or call or send them a message.. Correct.. Keppra can worsen anxiety and depression
Hi Dr Omar, my brother is currently on epival, however we have been told that the epival tablets are the cause of his infertility. If this is true, plz can you help with an alternative as he has recently lost his only child to cancer. Thnx!
There are rare cases of Levetiracetam causing low sperm count
Doctors definitely want you to see my cousin
Can you have a patient with a combination of Epilepsy and Psychogenic Seizures?
I have both. Although it's been a long time since I had a PNES.
I experienced absent seizure once, from then on i keep experiencing siezures twice or trice a day. But, everytime i have seizure, there is no saliva or any liquid that comes out from my mouth. Then i went to see a doctor, she gave gave me leviteracetam. But that medicine worsened my seizure, i got seizures moren than 5 times a day and trice at night so i stopped taking that medicine. When i stopped taking it, i only have seizure once or twice a day then i reported it to another doctor so she gave me valproic acid instead then i stopped having seizure. But my EEG and ECG are normal or there is no problem with it. Do i have epilepsy? Thanks a lot.
How are you now ?
I experience exact same what you described here 👆👆
Last 1 one month i have three experienced at same 9am morning, i feel this moment i have experience then i got unconscious for 1 min then i got consicous for 2-3 seconds i feel where i am then i got vomiting then i go for sleep , then i live normal life after 1 aur 2 hour, then i visited doc yesterday he did MRI and EEG test .. both come normal . He give me one medicine to take both time and he said u will be all right. What u think about it doc?
Hard to tell without evaluation..consults are available now..details in the first comment
I have a question. Why is cryptogenic epilepsy so unexplored? I have it and no doctor can tell me exactly why I have it? I had an operation to stop the focal seizures and now I feel much better. I am still wondering how I got this? Is it so mysterious?
About 50 percent of epilepsy is of unknown cause. This should not affect the treatment though
Doctor where is your hospital, I really want to treat my epilepsy. It's really embarrasing
Yes it is available
If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays
Phone: +1-313-916-8443
Email: InternationalPatientServices@hfhs.org
ليتك وضعت ترجمه عربي
تم افتتاح قناة د. عمر دنون بالعربية ونقل جميع الفيديوهات العربية لتلك القناة وسنكمل الطريق في هذه القناة باللغة الانجليزية...اذا كنت مهتم باللغة العربية فقط، الرجاء الغاء الاشتراك في هذه القناة بالانجليزية والاشتراك بالقناة العربية في هذا الرابط 👇
th-cam.com/channels/6Iwi3nw0C-GZKJ4hor-XWw.html
@@DrOmarDanoun منتظرين هذا الفيديو باالعربي 🌹🌹🌹🌹✔ان شاء الله انك تنزله باالعربي ، لان عندي حاله مرضيه الله يلطف بنا
الف سلامة عليك... باذن الله رح اغطي كل الامراض العصبية في الأشهر القادمة والبداية بمرض الصرع والصداع... إذا احتجت اي مساعدة راسلني على الخاص في صفحة الفيسبوك الموجودة في وصف الفيديو
كيف الحل نريد ترجمه ؟
ان شاء الله ستنزل الترجمة العربية غدا
@@DrOmarDanoun شكررررررا لك
Hi what do the Doctors mean when they say the eeg readings are normal
Please review the video on normal EEG and MRI
@@DrOmarDanoun Thanks Dr for these informative videos🙏
Can you talk about persistent PNES? I’m talking a decade.
Yes I made a whole series you can check it out
Seizures since i was 14 all the tests but only diagnosed at 32 when i have a seizure inffront of 250 people waiting to go into a show.
Find out that eeg and mri i had when i was 16 were positive for temporal lobe epilepsy with a lesion in that area too, just no doctors called me back in, i was forgotten about until 32! Now on lifetime medication 😢
Is this genetic or something else
It seems like all of these videos are for epilepsy I don't have epilepsy but have many seizures I got first one after I turn 19 I'm the only one in family that has seizures
I'm waiting on a neurology appointment. My gp keeps sending me to a&e and a&e keep sending me home because my blood tests and ecg are normal. My seizures started about 2 weeks ago. At first it was just one but in the last few days I have been having up to 10 a day. I'm not aware of any specific triggers. I thought they were lasting around a minute but the ambulance person said I had 3 seizures in less than 10 minutes, lasting around 15-20 seconds each. He described them as clonic tonic. I've been watching the videos to try to learn more information until i get the appointments with neurology and the seizure clinic. Can you be awake during clonic tonic seizures? When I have the seizures normally my leg starts stiffening and i know it's starting. If I'm talking I will suddenly forget what I'm saying and be unable to speak. The ambulance man described it as being 'like a light switch' when it starts. I then start convulsing. Normally my eyes are open. I can see and hear what is happening but cannot speak. After they stop I am very tired and it takes me a few minutes to have the energy to get up and speak but generally recover quickly (apart from feeling tired and spaced out). I'm wondering if this sounds like any particular kind of seizure and whether it is epileptic or non epileptic. Thank you
So what was your diagnosis and how are you now .this happems with my child
They diagnosed me with non epileptic attack disorder. I've since been diagnosed with autism and suspected adhd (waiting to be assessed) not had any treatment though. It's all been self management stuff. I think NEAD is a form of FND so I found some resources through fnd action and fnd hope
I'm in the UK so assessment and treatment takes ages on the NHS. Hopefully it would be faster for kids though
مرحبا دكتور ، شوفت فيديو MEG. هو نتائجه أدق من وحدة المراقبة(التخطيط) ؟
وهو من مرة وحدة راح يبان وظيفة البؤرة و سلبية استئصالها؟ والا يتعمل فحص تاني؟ وشكرا كتير والله فيديوهات جميلة 🌹
نعم التخطيط MEG أدق من EEG.. ولكن عملهم مختلف فوحدة مراقبة التخطيط مهمة لتسجيل التشنجات والجهاز الاخر مكمل لها وليس بديل... حسب الحالة.. يمكن بعض الأحيان يبين البؤرة وبعض الاحيان لا اذا كانت صامتة وقت التخطيط... يمكنك متابعة القناة العربية وفيها نفس الفيديوهات باللغة العربية
@@DrOmarDanoun اسأل الله لك التوفيق وان يزيد من امثالك.. شكرا شكرا لك دكتور.
@@DrOmarDanoun دكتور معليش نسيت اسأل حضرتك واحتاج توعية الله يحفظك. انا عندي بؤرة بالفص الصدغي الأيسر وانا اكتب باليمين، فعليا قالولي انه ممكن اعمل الجراحة وانا واعي مش مخدر كامل. عشان يتطمنوا بالعملية وما يسير تأثير اعتقد على الكلام، هل ممكن الإم إي جي تختصر الموضوع وتفيد إذا المكان أو البؤرة بالتحديد ما يسبب اي تأثير لو تم استئصالها؟
انا بوحدة المراقبة ثابت ان البؤرة بالفص الصدغي الأيسر، وعملت عملية استئصال لجزء مثل كرة القولف. بس باقي على علاجين وجرعات عالية يعني الكيبرا انا تلات آلاف باليوم واللاميكتال خمسمية باليوم. واشياء بسيطة من المحفزات بتصير معايا النوبة. انا مليت وكرهت الداء واحتاج معلومات عامة مو تشخيص لحالتي يعني احتاج معلومات عشان اكون فاهم الحلول.
١/ الMEG هل تختصر مدى تأثير الاستئصال للبؤرة بالتحديد؟ يعني اعرف اذا بيتم استئصال مزبوط واتعافى والا مجرد جزء ويسيبو الباقي عشان ما يتأثر الكلام. ابغى اعرف يعني نسبة الشفاء تماما. هل ممكن الMEG تختصر الموضوع وتبين التفاصيل لمدى الفائدة من الجراحة؟
٢/ بصراحة يا دكتور كم مصاب مر عليك بيكتب باليمين والبؤرة بالفص الصدغي الأيسر وتعافى وقطع الادوية؟ بعد استئصال البؤرة، والا كل الي مروا عليك مثلي مجرد قللوا الجرعات واستقرت حالتهم؟ انا بحتاج معلومات عامة ويسير اكون فاهم بس.
@@DrOmarDanoun دكتور عمر كل عام وانتا بخير. ما تنساني من الاستفسار الي كتبتو الله يخليك.
لا أستطيع الحكم على حالتك او إعطاء استشارات طبية فردية لاني لم اعاين المريض مباشرة... ولكن نعم هناك الكثير من الناس تعافوا من التشنجات بعد العملية ولكن ما يقدر توقف التشنجات والتأثير على الذاكرة والكلام هو تتطابق الفحوصات على موقع التشنجات... هذا نقاش مطول مع الطاقم الطبي المشرف على حالتك
I had first time seizure in December.Dr. gave me tablets that have badside effects.Now he says i cant come off them.
You can switch medications! I've been having them for over a year and am trying yet another combination of drugs. The short version is, I've tried three main pills, only take 2, and have been trying different combinations. My current two do NOT have side effects like others, just maybe sleepy sometimes. The seizures haven't quite stopped but I'm feeling close. I recently began a keto diet as well.
I decided it is okay to be on meds forever but the cure can't be worse than seizures!
There are different drugs with different chemicals. Pester your doctor to try another.
Pnes
my girlfriend has been having seizures, she knows when it is about to happen and then she starts to shake and then goes into her seizure and she said it last up to 30 min , what do you think ?
Take her to an actual doctor who can diagnose her & treat . TH-cam is not a diagnosis method. 4:05 😅
I got faint after certain depressed situations.
Kindly guide me plz
Please see a neurologist for evaluation and treatment. I can't provide medical advice without evaluating the patient
@@DrOmarDanoun already done all the medical tests. No one know about my issue exactly 😥
Doctor I want to ask you for your address or how we can contact you, my son have Epilepsy and autism. Chris have very strict Paleo Diet for over then 8 years.
Details in the first comment
❤❤❤
Hye, I'm diagnosed as epilepsy but my EEG results is normal how if EEG is normal can cause epilepsy..
Please review the video on this exact question
The same 😢 i dont know if i have epilepsy or PNES
👍🙏
Where is your location?
So are focal aware seizures epilepsy?
Yes
@Dr. Omar Danoun tjank you for answering. I have quite a complex case.Fell ill at work in November,slurring words unable to eqlk properly,slept for a week then dr sent me for ct showed old up to two years cerebellar TIA,started having seizures in December,getting aura back of my neck beforehand,had EEG showed significant changes in signals on the cerebellar still waiting to see a neurologist could be two years.The seizures wipe me out for days,triggers flashing lights,loud noises,the sun,heat and stress my life has changed I used to be so fit,don't smoke don't drink exercise.
I am over it. 6 months ago i had mania and bipolar with weed black market and vapes. I had two 10 minute clonic seizures. Again Saturday could not sleep for 2 days again it was 6am hadnt slept in 2 days. I dont remember anything. All tests are clear now they are thinking its biploar 1 and mania. My doctot doesnt want me seeing a nuerologist because they have forced Keppra and dilantin on me. I told them i would rather be dead. 2 seizure episodes same thing no sleep two days and vaping nicotine and thc same time went to bed woke up in amblulance. Doctors are useless can anyone at all evaluate me ?
So I don't have epilepsy.Is it my heart.Can I stop taking my medication also
Please discuss with your neurologist
🙏👍👌
My son is only 6 years old .dr diagnose epilepsy ...when he feel fear or disturb in day time he has seizures in sleeping and dr gives him heavy dose day by day ...is this true that at the age of 11 epilepsy cure naturally ...my family member is cure by this disease at the adult age
My sons both have epilepsy, they both stopped for a period of few years but it came back in puberty
Thanks for ur reply...but just tell me your children have epilepsy condition, is it severe or normal? My child eeg is abnormal in left side
My mother has epilepsy from childhood at age of 13 and she take Tegral 200 mg twice a day 2 tablet in morning for 20 years now from last 3 years she is taking keppra 500 mg twice but unfortunately epilepsy getting worse day by day ... Doctor increased the keppra dose 500 mg thrice a day plus lacosamide 100 mg but epilepsy is not well controlled.... suggest me what should we do ... Thanks
I can't provide medical advice online. Please discuss with your neurologist
@@DrOmarDanoun I want my mother check up from you I live in Pakistan... Kindly provide some platform for check up... Can you check patient online.. I really need a good Doctor but unfortunately never found a good nurologist... It would be great favor... waiting for your reply
Please can you tell me.epelipsy can it be heald for ever ??
Please review the video on cure Epilepsy
@@DrOmarDanoun mine english is not too good.can u tell me please is possible or not to be cured 😔
Eat fruit and vegetables daily cut down sugar and packaging food. Do praise of God daily. Drink lemon ginger olive oil tea once a week
How I make this tea
@@indranisutradhar6529 my mom like hot water 4 , 5 drops lemon 4, 5 drops ginger juice few drops olive oil. You can make cold too .