My Keratoconus/ Cornea Transplant Story

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  • เผยแพร่เมื่อ 9 เม.ย. 2017
  • Hi everyone! I made this video to share my story with people who are going through a similar process or are interested in Keratoconus and Cornea Transplants. I hope you enjoyed.
    Subscribe to see more videos!
    XOXO
    -Ashley

ความคิดเห็น • 420

  • @amarkashyap2984
    @amarkashyap2984 5 ปีที่แล้ว +49

    How many of you guys rubbed your eye badly who have keratoconous?

    • @briniduran6149
      @briniduran6149 4 ปีที่แล้ว +1

      i do:/

    • @amarkashyap2984
      @amarkashyap2984 4 ปีที่แล้ว

      @@briniduran6149 dont do it its the key

    • @k.senyah4632
      @k.senyah4632 3 ปีที่แล้ว +3

      I believe it may have started at a younger age doing so without knowing ... more than likely thats why... now I wish I could go back into time.. and tell my younger self not too rub them like crazy.smh.lolz

    • @buzzlightyear5174
      @buzzlightyear5174 3 ปีที่แล้ว

      Me to

    • @asmasherin9284
      @asmasherin9284 3 ปีที่แล้ว

      Me tooooo

  • @zarzaxo12
    @zarzaxo12 7 ปีที่แล้ว +26

    You're so well spoken and this video is so well organized! It's so nice that you decided to share your story on TH-cam and I hope you continue to make videos. I had never heard of your condition and the vid was super informative, it's crazy how much science has progressed

    • @ashleyrodriguez9161
      @ashleyrodriguez9161  7 ปีที่แล้ว +4

      Hi nat! thank you so much for the positive feedback, i truly appreciate it. The condition is super rare so i knew that sharing my story can help and inspire others.

    • @annaretes
      @annaretes 5 ปีที่แล้ว

      Thank you for going more into detail of what to expect today I was told I have to go to the specialist Ill need to be put on the donors list I freaked out I know somewhat about the surgery due to my brother having it as well but m scared but looking forward to my new & improve vision

  • @ieattrollsforbreakfast2973
    @ieattrollsforbreakfast2973 6 ปีที่แล้ว +1

    Thank you so much, I appreciate that you took the time to do this video for others, you are a real Blessing.

  • @irinasavon3548
    @irinasavon3548 7 ปีที่แล้ว +7

    Great job Ashley!!! Loved this video so much. You've helped me so much through all this and I can't wait to see you help so many others!! ❤️

    • @ashleyrodriguez9161
      @ashleyrodriguez9161  7 ปีที่แล้ว +3

      Thank you Irina!! you're the best. You helped me come to terms that i wasn't alone in this process either. thanks girl :)

  • @etgfchj5094
    @etgfchj5094 6 ปีที่แล้ว +6

    I was just diagnosed with Keratoconus , you help me feel a lot a lot better. Thank you for making this video 😘😊

  • @allenhain2222
    @allenhain2222 6 ปีที่แล้ว +2

    Ashley,
    Thanks for such a great video and optimism despite what you’ve been through. Always easier said than done! The video was amazing. You did a great job explaining things. Best of luck to you! Keep kicking Keratoconus’s ass!

  • @AhmedAli-ze7ly
    @AhmedAli-ze7ly 2 ปีที่แล้ว +3

    Thank you so much ! Literally doing the same thing that you did, researching and looking up everything about the procedure. And i appreciate and can relate to this video so much more than the medical ones that speak on it. Thanks again, this did give me a boost of confidence and only positive thoughts from now on 🙏🏾

  • @Malsis1502
    @Malsis1502 2 ปีที่แล้ว +4

    Thank you so much for this video!! I’ve had Kerotaconus for 10 years and am finally booked in for surgery next week! The surgery doesn’t scare me much it’s more so the recovery period that worries me. Thank you for alleviating some of my fears and hopefully I have the same outcome. ☺️

    • @jenelk8279
      @jenelk8279 ปีที่แล้ว +2

      Hope you're recovering well! Just went for mine 3 weeks back.

  • @TheBoycii
    @TheBoycii 6 ปีที่แล้ว +2

    Im so glad u told us your story and your outcome of transplant.. in near future ill probably need transplant also and man im scared as hell of the procedure and the outcome.. its hard with this disorder and nobody really truly understands what are u going through.. wish u all the best Ashley!

  • @cutielovelypinkie
    @cutielovelypinkie 2 ปีที่แล้ว +1

    Thank you so much for sharing your journey! I feel better, calmer about getting the transplant now ❤️ and getting my eyesight back!!!

  • @hhampton
    @hhampton 2 ปีที่แล้ว +5

    I was diagnosed with kerataconus when I was in the early 80s when I was in my mid 20s. I wore rigid gas permeable contacts until my corneas got so thin they were in danger of rupturing. My cornea surgeon said he had not seen thinner corneas.
    I had my left eye done October 2003 and my right April 2005. I was very lucky that I had a friend who was an ophthalmologist who put me in touch with a cornea specialist who was the head of the ophthalmology department of a medical school near to me as well as the director of the regional cornea bank.
    I never had any problems or pain other than when a stitch would break.
    I would not hesitate to do it again, if needed.

  • @lherna9015
    @lherna9015 3 ปีที่แล้ว +1

    Very informative! I've been looking for good information on this procedure and this video is by far the best.
    Thank you

  • @jessikam4137
    @jessikam4137 5 ปีที่แล้ว +8

    Thank you so much for sharing this! ❤️ I haven’t seen in 12 years and I’m getting the cornea transplant

    • @noufaln3259
      @noufaln3259 2 ปีที่แล้ว

      Scleral lence work for mee..but transplant work for mee

  • @portiasandy7968
    @portiasandy7968 6 ปีที่แล้ว +33

    Been diagnosed last month am so so depressed don't know what to do but your video really helped thanks

    • @tailoredproductions4106
      @tailoredproductions4106 6 ปีที่แล้ว +3

      Portia sandy same.. I got diagnosed yesterday

    • @Ghost-my1tr
      @Ghost-my1tr 5 ปีที่แล้ว +1

      @@tailoredproductions4106 got diagnosed just today..

    • @eliasjrleon724
      @eliasjrleon724 5 ปีที่แล้ว +1

      Jonathan it will be okay buddy just do what you’re doc says and you will be alright they well let you know what you have to do

    • @harishharish.r3338
      @harishharish.r3338 4 ปีที่แล้ว +2

      How are u feeling now ... I am totally broken after I get to know that I need a cornea transplant to be done

    • @Givalita
      @Givalita 4 ปีที่แล้ว

      same

  • @m00rtin4
    @m00rtin4 6 ปีที่แล้ว +1

    i have had keratoconus for atleast 5 years now and u are a warrior compared to me to have go through all this. tho i have struggled with depresion cus my keratoconus and i have never been comfortable with the hard /rigid gas lenses i got for my keratoconus. so even if i had not as severe case as u, my life has been greatly affected by this eye condition. thankfully, i have somewhat of a mild case. cus currently i have some soft contacts and they are far more comfortable and vision wise they work almost as good on me as the rigid ones. but yeah, i have imagined if i needed a transplant sometimes. i have visited many eye specialists before i got my first contacts and one told me i needed a transplant. this condition changes over time and it can "get better" or "worse" i guess....glad u are making some positives out of this extremly negative eye condition.

  • @ramiroecheverria2205
    @ramiroecheverria2205 5 ปีที่แล้ว +1

    Thanks so much, I'm going to see my specialist today Linda scared but you gave me strength

  • @AlainK22_
    @AlainK22_ ปีที่แล้ว

    Thank you so much. I have the transplant scheduled for next week and you just made things sound less scary. Thank you

  • @alyssarose2853
    @alyssarose2853 4 ปีที่แล้ว

    I was diagnosed a few months ago and now I’m terrified to wear contacts. So I’m definitely going to start wearing glasses until I get my procedure done. Thank you for making this video!!

  • @epicwatchme8750
    @epicwatchme8750 5 ปีที่แล้ว +1

    Hello, thanks for sharing this story with us , I’m having a transplant next month or so this video really helped me out, hope you post video of your updates in future

  • @carlosc6981
    @carlosc6981 3 ปีที่แล้ว

    Thank you for telling sharing your story. Gives us hope.

  • @EstellaCouture
    @EstellaCouture 5 ปีที่แล้ว +3

    Thanks for this Ashley. I just had corneal transplant 4 days ago.
    Its s great feeling to see through the eye again.

    • @howdo1govern995
      @howdo1govern995 2 ปีที่แล้ว

      I'd love to hear how your getting on I have KC.

    • @MzEstellaTV
      @MzEstellaTV 2 ปีที่แล้ว +1

      @How do 1% govern 99%
      It turned out a bad story, because doctor said I have an immune problem that caused the new cornea to go cloudy.
      2nd surgery is out of the question. So, I am praying to God for a miracle

  • @patricealjoe5026
    @patricealjoe5026 4 ปีที่แล้ว +1

    Thank you so much for sharing. I feel so much better about my journey.

  • @lisalongerot1855
    @lisalongerot1855 2 ปีที่แล้ว +2

    I’ve just had a corneal transplant 6 days ago (Tuesday 6/14/22). Ummmm, they called me Friday afternoon, and said they detected a bacterial infection from the host. So, another eye drop, making it four eye drops with an additional gel like substance (so, 5 meds) four times a day. I’m doing great! I have no pain and my eye is looking great. So far, I think this is the best decision I’ve ever made. Thank you, Dr. Gross, in Phoenix, Arizona. You ROCK!!!

    • @ratherbfishing455
      @ratherbfishing455 ปีที่แล้ว

      How long was it before you could drive? When do you get a new prescription? How long did you have to be on your back? Thank you

  • @blakeedwards6519
    @blakeedwards6519 4 ปีที่แล้ว +1

    Thanks so much, I am told I need the surgery and you've been really informative.

  • @340_ISLANDBOI
    @340_ISLANDBOI 3 ปีที่แล้ว

    Wow! So happy for you! Just had the surgery this past week and I can’t wait for the full results to take form

  • @bpeezy
    @bpeezy ปีที่แล้ว +3

    Just had my second corneal transplant as the first failed. It has improved my life so much so far, fingers crossed it holds and good luck to all the people who have this unfortunate disease. Greetings from Australia.

    • @breathemj
      @breathemj ปีที่แล้ว +1

      God bless you ! Update ?

    • @bpeezy
      @bpeezy ปีที่แล้ว

      @@breathemj my second corneal transplant has stabilised for now. I honestly feel like I have been given a second chance to be able to live a somewhat normal life again. Still not able to drive I don't think but I can live somewhat independently compared to before.

    • @Bruh-sq9fv
      @Bruh-sq9fv 11 หลายเดือนก่อน

      @@bpeezyif you don’t mind me asking, will you be able to drive eventually? That’s my biggest fear when it comes to a transplant and keratoconus in general as relying on other people to get you from point a to point b seems like a headache.

    • @bpeezy
      @bpeezy 11 หลายเดือนก่อน

      @@Bruh-sq9fv I really hope so but unfortunately I won't be able to drive currently. Maybe after I get my corneal transplant on my second eye I could possibly drive.

    • @bpeezy
      @bpeezy 11 หลายเดือนก่อน

      @@Bruh-sq9fv this has been such a pain for me the last 5 to 10 years esp being a male. I felt like a burden and eventually became home bound for 5 or so years due to needing assistance just to go anywhere where including just walking to the local shops. I hope and pray everything works out for you!

  • @zeddluciano1775
    @zeddluciano1775 3 ปีที่แล้ว

    I liked how you were informative and descriptive with how your experience was and how you were emotionally. To see you going through this hurts but I’m happy your vision is getting better.
    I have keratoconus myself and my left eye is scarred and more damaged. I have an appointment for this month sn depending on the situation, I may need a transplant surgery to. Vision is really bad. Honestly, I’m actually scared but seeing how positive you were, I’ll probably do fine.
    After watching this, I legit had a panic attack! I’m okay now but hearing people’s pain or whatever makes me sick to my stomach. Hopefully doctor doesn’t mention a surgery but if it’s needed then I have to. Thanks again for sharing your experience

    • @noufaln3259
      @noufaln3259 2 ปีที่แล้ว

      You transplant 👁️

  • @ColiP2408
    @ColiP2408 6 ปีที่แล้ว +19

    Thanks for your video. I have Kerotaconus in both eyes. I'm currently wearing the hard contact lenses. I've had to get new contracts every year for the past 4 years, due to my cornea changing. I maybe having a cornea transplant in one of my eyes in the future. Thanks for showing me what I can expect.

    • @ashleyrodriguez9161
      @ashleyrodriguez9161  6 ปีที่แล้ว +1

      Hi Colin! thank you so much and I completely understand, i have been doing the same with my hard lenses. It seems scary but if the time ever comes, you can get through it!

    • @MrsB00p
      @MrsB00p 6 ปีที่แล้ว +1

      Colin Puru hang in there

    • @lkayde1996
      @lkayde1996 6 ปีที่แล้ว +2

      I only have Kerataconis in 1 eye but I'm wearing hard contact lenses too to see if it work if not I'll probably have surgery it's my left eye.

    • @noufaln3259
      @noufaln3259 2 ปีที่แล้ว

      @@lkayde1996your lence vision...transplant done

  • @richardkevincaparas7117
    @richardkevincaparas7117 6 ปีที่แล้ว +5

    Thank you this really helped a lot. I do have my hard contacts but I don’t really wear them because it is sooo un comforting

    • @Gopalselva99
      @Gopalselva99 4 ปีที่แล้ว

      Try wearing hard lens on top of the soft lens.

  • @jakec5618
    @jakec5618 2 ปีที่แล้ว +2

    wow u stayed so positive during the whole process.. thats a hard thing to go thru but u made the most of it and stayed in good spirit. thats wasup

  • @ricsantos3885
    @ricsantos3885 3 ปีที่แล้ว

    Thanku for your story it helped alot I've had keratoconus for 4 years and we're hard glass contacts now and it's been an extremely hard journey so it's a blessing to hear that there's someone going through what I'm going through I pray that one day I can have a cornea transplant

    • @vindyasupulmalee3134
      @vindyasupulmalee3134 2 ปีที่แล้ว

      I've had keratovonous also for 4 years and i've also done cross linking to both of my eyes and wearing hard contact lenses. It's really hard .so i want to do this treatment(cornea transplant)but my doctor said it can't do with my situation😑

  • @tameratgwordofa
    @tameratgwordofa 3 ปีที่แล้ว +1

    hey my dear thank you so much this video helped a lot of people who were scared to have surgery because of this video I read the comment and we found a lot of people express my mom gonna have next month and try to steady...how work how it’s risky BUT there is no enough video so this help lat of people.thanks may God bless you and your future as well 🙏🙏🙏🙏🙏💫

  • @chelseageorge7916
    @chelseageorge7916 6 ปีที่แล้ว +8

    Thanks so much! I'm thinking of getting a corneal transplant because I too have keratoconus and I cant explain how colossal the effects have been on me, I had a normal life and I just want everything back. Just want to know how much it costs usually haha, I have no clue and my optometrists haven't really touched on it
    Just let me know if you can

  • @davidcastor8812
    @davidcastor8812 6 ปีที่แล้ว +1

    Thnx for this video very helpful , I got lasik done 11 yrs ago when I was 19 yrs old and it was a disaster, I now need a transplant in both my eyes ,my left eye is worst so this January I'm getting surgery , super nervous but hearing good outcomes from other people give me hope , thank you.

    • @ashleyrodriguez9161
      @ashleyrodriguez9161  6 ปีที่แล้ว

      I can imagine, i hope it all goes well and i'm glad i was able to help! It is challenging but it gets better. Good luck!

  • @aviemore907
    @aviemore907 ปีที่แล้ว

    What an encouraging video for all. I have had keratoconus in my right eye for over 20 years. Was wearing gas permeable lenses but now it's worse, so I've been keen to go for DMEK. I have been scared about blindness at times but not so much about surgery. Love when you said "you aren't alone". Means a lot to me. I heard recently that if we had infrared eyes we could see the rings around Neptune! Technology will only improve for this crazy disease. Surgery sounds worth any recovery pain. Thanks 🧐

  • @akhileshgnanasekaran
    @akhileshgnanasekaran 6 ปีที่แล้ว +20

    I to have keratoconus...In my both eyes...... Wearing hard lenses.... In both eyes... It's paining...I am wearing as it gives me vision..(wow☺️)..... My doc suggested dalk operation.... For left first.... Will it work...
    Life is horrible 😢 with this diseases..... People with good vision are gifted

    • @tupikahielos4758
      @tupikahielos4758 5 ปีที่แล้ว +3

      A kornea transplant is very painfull!..I had one like 17 years ago, and also wear hard lenses.

    • @Master_Churro
      @Master_Churro 5 ปีที่แล้ว +1

      I feel your pain, I have the she situation, doctor told me the same thing. 😭😭😭

    • @jessikam4137
      @jessikam4137 5 ปีที่แล้ว +3

      Akhilesh Gnanasekaran I know how you feel I have Keratoconus and it’s awful! Hard lenses work so well but they are so uncomfortable. It’s the worst eye disease

    • @Shon9tilR
      @Shon9tilR 4 ปีที่แล้ว

      Akhilesh Gnanasekaran Did you have the transplant?

    • @Sukoon_47
      @Sukoon_47 3 ปีที่แล้ว +1

      Go for sclarel lens instead of going for Dalk

  • @demetriofrietze9646
    @demetriofrietze9646 9 หลายเดือนก่อน

    Wow , such a great video. Just one. Was hoping to see more of the long process.

  • @thepincayreport9452
    @thepincayreport9452 6 ปีที่แล้ว +7

    I have Keratoconus as well and plan on making a video about my life with it.
    Thanks for your video it's great to know that I'm not alone. = ]

  • @hsabzevari1
    @hsabzevari1 3 ปีที่แล้ว +1

    Thanks for sharing the insightful video. I am going to go through the same surgery in 3 weeks. How was your vision acuity (in percentage) after a month? Were you able to read computer? Thanks!

  • @stephaniesiyawareva5111
    @stephaniesiyawareva5111 6 ปีที่แล้ว +1

    You described it so well"a bunch of eyelashes stuck in your eye" true that

  • @TinyT1792
    @TinyT1792 6 ปีที่แล้ว +1

    Thankyou for such an informative video. I have a transplant for my left eye next week and this video has helped me immensely. My doc has told due to the pressure it would exert on my eye me that i will never be able to weight lift again which bothers me, but i have heard from others strenous exercise is fine after a while. Would you be able to shed some light on this ?

  • @mrgreen6857
    @mrgreen6857 2 ปีที่แล้ว +2

    Hi Ashley thanks for that..I just had my transplant last week ..on day 3 of recovery ..just wanted to ask few questions ..
    How long does testy and red eye go on for?

  • @user-st9hi2yp1k
    @user-st9hi2yp1k 5 หลายเดือนก่อน

    Thank you Ashley I have credit cards they're thinking about scleral lenses. The transplant is the last resort but if I have to do that you made me feel a lot better do me a favor and just keep on being you❤

  • @bnradebe
    @bnradebe 4 ปีที่แล้ว +3

    I just had my cornea graft on the 7th of November 2019. This video just made me feel much better in recovery journey..thank you so much.

    • @thatolebotsa8682
      @thatolebotsa8682 3 ปีที่แล้ว +1

      Hello Bongani, how's your recovery journey going?
      I'm getting cornea transplant soon and I'm feeling so anxious.

    • @bnradebe
      @bnradebe 3 ปีที่แล้ว

      Hi Thato. The journey had it sips and downs but I'm much better, my sight gets even clearer when stitches gets removed... It's okay to be anxious, but worry not, all will go well.

    • @noufaln3259
      @noufaln3259 2 ปีที่แล้ว +1

      @@bnradebe your vision now

    • @bnradebe
      @bnradebe 2 ปีที่แล้ว

      It's okay, better than what it was. I resumed driving this year with the assistance of spectacles... However my other eye is has worsen. Im still waiting for an available graft

    • @noufaln3259
      @noufaln3259 2 ปีที่แล้ว

      @@bnradebe surgery eye 👁️ vision with glass..20/20

  • @saberur66
    @saberur66 5 ปีที่แล้ว +3

    ive had keretoconus since middle school with contacts changing every 6 months, the pain is the most horrible thing about this disease, depression doesnt even cover the affect this invisible pain has on us. thankfully its finally being treated in america, while before no one had one hell of an idea of what it was.

    • @unknownsource4359
      @unknownsource4359 5 ปีที่แล้ว +2

      I also have keratoconus. I hate wearing contacts. My eyes are very prone to getting bloodshot red from the contact lenses compressing the blood vessels in the eyes. People will think I am high on something or very tired. We do suffer in silence. People with perfect vision and healthy eyes should pray everyday for that huge blessing.

    • @A42yearoldARAB
      @A42yearoldARAB 3 ปีที่แล้ว +1

      This is so true, it is so depressing more than anything that we have to suffer just to have a basic need (vision) .

    • @vindyasupulmalee3134
      @vindyasupulmalee3134 2 ปีที่แล้ว

      @@unknownsource4359 i have similer problem too.😑

  • @peggyk.738
    @peggyk.738 2 ปีที่แล้ว +6

    I know this was a few years ago, but it has been so helpful to me in knowing what my teenage daughter may be going through. She sees a cornea specialist in a little over a week. I feel we are going to go in with more knowledge than the average person now. Thank you!

    • @cyberrespond6310
      @cyberrespond6310 ปีที่แล้ว

      DMEK sounds good. My right eye is keratoconus.

  • @motalks2598
    @motalks2598 3 ปีที่แล้ว +3

    Great video, I've just also undergone a transplant myself and uploaded my experience. How is your situation now 4 years on?

  • @remibolduc6545
    @remibolduc6545 2 ปีที่แล้ว

    Hi Ashley. Thanks for your testimonial. Could you give us an update on your corneal transplant. How has it been going in the last 4 years. Thanks

  • @olsmeistergeneral1953
    @olsmeistergeneral1953 7 ปีที่แล้ว +4

    Great positivity. Currently all stitched up from my second op.

    • @ashleyrodriguez9161
      @ashleyrodriguez9161  7 ปีที่แล้ว +1

      Thank you so much. I hope your recovery goes smoothly and you get well soon :)

    • @howdo1govern995
      @howdo1govern995 2 ปีที่แล้ว

      How did it turn out

  • @rshcry24
    @rshcry24 2 ปีที่แล้ว

    You mentioned avoiding rubbing against the eye. How weak is the eye during the recovery process? Would any type of rubbing or pushing, even lightly for an itchy eye, risk doing serious damage to it?

  • @garysingh4334
    @garysingh4334 6 ปีที่แล้ว +1

    Very clear cut

  • @PlaceHolderName274
    @PlaceHolderName274 5 ปีที่แล้ว +1

    Hey there, how are you doing now with the transplant? Still everything fine? How is your vision without correction? Can you correct your vision with glasses only? I might have to get a transplant soon too.

  • @k.vinothjoushva8952
    @k.vinothjoushva8952 4 ปีที่แล้ว +5

    Hi I am having Keratoconus in my both eyes... October Month 2019 my left cornea tares.. Now I going under treatment for cornea transplant 👍👍👍

  • @hagar6359
    @hagar6359 ปีที่แล้ว +2

    Hi Ashley I have Keratoconus since I was about 15, I am in my late 50s now. I had a transplant in my left eye in 1990, easy operation and stitches in my eyes for 12 months. to this day I still have a partial stitch in my eye. It took many years for my specialist to let me wear contact lens in the eye again. But hey I have much better sight now, the right eye still is corrected with a hard lens. So overall I am a happy guy. Oh back in the 80s I was fitted with a shell, a contact lens the whole size of the eye. Nasty I would never recommend that only one positive, you won't lose it swimming lol

  • @Brandonperezz
    @Brandonperezz 6 ปีที่แล้ว +2

    Just got diagnosed with karatoconus thank you thank you so much for this!

    • @ashleyrodriguez9161
      @ashleyrodriguez9161  6 ปีที่แล้ว

      Thank you so much brandon! im glad i can help

    • @hagar6359
      @hagar6359 ปีที่แล้ว

      Don't worry about it Brandon. I got a transplant in 1990 and never had an issue. Nobody can tell I have it and my vision is fine, I do wear a contact lens over it as I am in my 50s now so need corrective vision. I still play contact sports, still swim and scuba dive. It doesn't stop you doing much at all.

  • @bradfenton9860
    @bradfenton9860 6 ปีที่แล้ว +2

    Will there be an update video?
    How long will drops still be used

  • @victoriameylan4310
    @victoriameylan4310 6 ปีที่แล้ว +2

    Thanks for the video! I have KC my vision is 20/500 without my hard contacts, i had cross linking done in my right eye and that helped a lot! But I'm scheduled to have my cornea transplant done in my left eye in 2 weeks so thank you this helped a lot, i've had hip surgeries but that's nothing like your eye..i see horrible so I hope the surgery helps.

    • @ashleyrodriguez9161
      @ashleyrodriguez9161  6 ปีที่แล้ว

      Hi Victoria, thank you so much. I hope that your surgery goes great, and that you have a speedy recovery. I remember being so nervous but you will feel like a brand new person after a couple of months. You are strong and will be able to overcome this. Wishing you the best of luck!

    • @A42yearoldARAB
      @A42yearoldARAB 3 ปีที่แล้ว

      Did you get sclaros after the cross linking? I just got cross linking 2 months ago and so far my vision is worse and my old contacts don't work at all anymore

    • @victoriameylan4310
      @victoriameylan4310 3 ปีที่แล้ว +1

      Oh my goodness it’s crazy how much people can be alike! I’ve had 3 hip surgeries in my life (I was born with hip dysplasia) and when I was 17 I had cross-linking in my right eye as well. Don’t let the video scare you the surgery is unexplainable when you finally get your vision.. it’s truly a blessing and I look around every day thinking about how awesome it is to see 🙂

    • @victoriameylan4310
      @victoriameylan4310 3 ปีที่แล้ว

      @@ashleyrodriguez9161 I forgot to add your name to my comment lol

    • @noufaln3259
      @noufaln3259 2 ปีที่แล้ว

      @@victoriameylan4310 your transplant eye vision...with glass or contacts

  • @traciehutchison8919
    @traciehutchison8919 2 ปีที่แล้ว

    a definite life altering challenge to have to experience.
    wanted to say nice job on this video.
    I am still struggling with my 2nd transplant in 3 months.
    Been 9 months since I have bad any vision. I can see light.
    but thats it. NOT being able to see was scarier to me than any of this whole ordeal . All I wish for. go back for my 4 week follow up in a week.
    wish me luck
    best wishes for you with your own adaptions you may have to encounter in your future❣

  • @marlonk1771
    @marlonk1771 2 ปีที่แล้ว

    Thank you so much for all the information 😊

  • @MrsB00p
    @MrsB00p 6 ปีที่แล้ว +5

    On feb 26 this year im gonna have my second surgery .. Im so grateful rn 😄😄

  • @brandonthomas9609
    @brandonthomas9609 6 ปีที่แล้ว +2

    I really appreciated this video, Ashley :)
    I had my transplant a few days ago and I needed some encouragement.

  • @jasminearceo4358
    @jasminearceo4358 6 ปีที่แล้ว +1

    I have the samething u have and its difficult for me as a 14 year old to get up early and always have to take the pain and im thinking of having the cornea transplant but im sacred something will go wrong but i want to do before it gets worse. I wear them for about 13 hours and i was wondering if you can give me information about

  • @evilyellow725
    @evilyellow725 6 ปีที่แล้ว +1

    Ashley, do you have some videos with the medical eye plaster? :)

  • @mrsj118
    @mrsj118 7 ปีที่แล้ว +1

    This was so helpful to me! Thanks for the tip about the neck pillow too! My husband's scheduled surgery is this coming Monday.... Question for you? Are the stiches taken out weekly, monthly? How does that work?

    • @ashleyrodriguez9161
      @ashleyrodriguez9161  7 ปีที่แล้ว +1

      I'm so glad i was able to help :) Hope all goes smooth and well for your husband and that he has a speedy recovery! The stitches started coming out after 4 months and it was 2-3 every 2 months after that. I'm past a year already and I still have 5 stitches left. I've talked to some people that had all stitches out before a year and others after 2 years so I think it just depends on the person and doctor.

    • @mrsj118
      @mrsj118 7 ปีที่แล้ว

      Thank you so much.... !!

    • @noufaln3259
      @noufaln3259 2 ปีที่แล้ว

      @@mrsj118 your husband vision...how much...

  • @josephb9342
    @josephb9342 6 ปีที่แล้ว

    I drive easier at night the light hurts so much i hate leaving home at daylight I even switched my job to nightshift and changed all my classes to online and dropped my others. I had my surgery last month my vision better but the light still hurts. And my eye color changed from dark brown to dark blue and purple depending on how light the area im in was it the same for you?

  • @chiagoziedaniel9247
    @chiagoziedaniel9247 3 ปีที่แล้ว +1

    Thanks alot for ur words i have a scar on my right conea i hope one day i will get the opportunity to see again clearly

  • @fauziaawan1640
    @fauziaawan1640 6 ปีที่แล้ว +2

    I am developing it in both of my eyes my first graft is in state of rejection i am suffering in pain

  • @saikasireddy
    @saikasireddy 6 ปีที่แล้ว +1

    i am about to have cornea transplant surgery in a month. i am scared and i want to know how many days will the pain last in the eye after surgery.

  • @easycookbyses
    @easycookbyses 4 ปีที่แล้ว +1

    Hello , ı had a surgery before 1 month. My eye colour is a little bit different seems ligher and green colour my original eye was dark brown. Did you had the same as me? Colour change and smaller eye ? Please assist

  • @americandude3825
    @americandude3825 3 หลายเดือนก่อน

    How are things going now?
    I had corneal crosslinkjng April 2023 in my left eye. It was super painful for 12 hours.
    I feel like the last two weeks my eyes are getting blurry again.

  • @kooner3
    @kooner3 4 ปีที่แล้ว

    Thanks soo much for making this video. I may need to get this surgery and have been soo depressed and anxious thinking about how life will be afterwards.

  • @tristanperalta-vm9dk
    @tristanperalta-vm9dk 2 หลายเดือนก่อน +2

    I got the transplant many years ago the graph is acting up I will need another one it will be ok god is good I have the best eye surgeon

  • @shotaaaalvarez3762
    @shotaaaalvarez3762 2 ปีที่แล้ว

    How many appointments did it take u to finally get the right hard lenses fitting

  • @millions1022
    @millions1022 3 ปีที่แล้ว

    Ashley, The doctors told me sutures need to remain in my eye for a period of 10 months for it to heal. Did u go through irritation everyday during this process? Kindly advice

  • @theduck7830
    @theduck7830 5 ปีที่แล้ว

    Hi, can i ask about the dryness after surgery ? Had you have kind of that side effect?

  • @TarenDonneaud
    @TarenDonneaud 4 ปีที่แล้ว +2

    I am having my transplant in 8 days. I am scared, but excited. I haven't been able to see out of my left eye in 3 years. Thank you for the pointers on how to make recovery easier.

    • @thapelogram2897
      @thapelogram2897 2 ปีที่แล้ว

      How was the experience and hows the vision?

    • @TarenDonneaud
      @TarenDonneaud 2 ปีที่แล้ว

      @@thapelogram2897 It was not successful. It is stable but still unable to see anything more than 20/200

    • @noufaln3259
      @noufaln3259 2 ปีที่แล้ว

      @@TarenDonneaud lence vision

    • @TarenDonneaud
      @TarenDonneaud 2 ปีที่แล้ว

      @@noufaln3259 It is only a -1.25, but requires a scleral content because the cornea is still misshapen.

    • @noufaln3259
      @noufaln3259 2 ปีที่แล้ว

      @@TarenDonneaud lence vision 6/6

  • @hasanhuseyin8874
    @hasanhuseyin8874 ปีที่แล้ว

    Get well soon .. how do you see now ?? How are your eyes after 5 years??? I also have keratoconus and need a transplant but I'm so scared 😣

  • @ljtheartist
    @ljtheartist 5 ปีที่แล้ว +2

    Thank you so much... I'm having my surgery August 7th 2018 so I'm a bit nervous...

    • @JAAviation94
      @JAAviation94 5 ปีที่แล้ว

      How did it Go bro let me knowww

  • @mehediarbi7070
    @mehediarbi7070 2 ปีที่แล้ว

    I'm A medical student... I have advanced Keratoconus... Contact lenses don't even work on me. I'm really struggling studying.... Can't read the lines normally... It also affected my brain... I always get a headache on the back of my head...Even after having a long and sound sleep...Now I have been told by tge docs to go thru surgery.... Did you also feel difficulty studying books before surgery?

  • @dustbat
    @dustbat ปีที่แล้ว

    I just had my eye doc. refer me to the cornea people and go in Sep2022 for our first talk. You have something I have spent, youth. I am 81 and have put off as long as I could doing this. I have Fuch's dyst. Enjoyed meeting you. You are quite pleasant and fun to listen to. Did you have any trouble from your local DMV during healing?

  • @tjoybell8448
    @tjoybell8448 11 หลายเดือนก่อน

    I just had the surgery last week. I am hoping my body does not reject the transplant. This was most definitely an experience. I have not experienced any pain even directly after surgery.

  • @veltg26able
    @veltg26able 5 ปีที่แล้ว +1

    Wow I had almost the same exact experience as you in 2004. During my transplant i had problems but the doctor said it was my weight and the cornea transplant took like 3 hours or more to finish but i didn't know until i woke up. I remember the stitches too. In 2015 I had my second eye done but it was a newer way of the cornea transplant surgery so i had no problem the second time. I have a great specialist doctor in Atlanta for contacts i can see 20/40 almost 20/20. I hope you continue to do well with your transplant

    • @noufaln3259
      @noufaln3259 2 ปีที่แล้ว +1

      20/20 with rgp

    • @noufaln3259
      @noufaln3259 2 ปีที่แล้ว

      You see with contacts 20/20

    • @noufaln3259
      @noufaln3259 2 ปีที่แล้ว

      Contact lences with 20/40

  • @mehediarbi7070
    @mehediarbi7070 2 ปีที่แล้ว

    Before surgery did you used to feel headache/pressure on the back of your head all the time?

  • @al_reyyan1780
    @al_reyyan1780 5 ปีที่แล้ว +2

    hlo i am frm kashmir iwas been diagonsed vd carnatoc orus i did c3r and o got weakness in vision i c thngs in blur dn iwas been suggestd to adopt glases but it does"nt works my age ix jst 19 i am not able to drive even i get troubles in reading and in recognising persons evn wn dy r closer to me plz hlp me wt shld i do

  • @jzayas1987
    @jzayas1987 6 ปีที่แล้ว +1

    Thank you for this!!!!

  • @songlee8456
    @songlee8456 ปีที่แล้ว

    Thanks a lot Ashley. Any update of your visions?

  • @SwEEtL0v3193
    @SwEEtL0v3193 6 ปีที่แล้ว +3

    One of my dr recently told me I am going to need a transplant on my right eye and said that I might need 3 because I am so young and they only last about 20 years am only 23 will u be having anymore transplants?

    • @unknownsource4359
      @unknownsource4359 6 ปีที่แล้ว +1

      It can last way more than 20 years. It all depends on your surgeon's professionalism when in surgery. The donor cornea must be as healthy as it gets and preferably from a very young donor.

  • @Andreyabish
    @Andreyabish 3 ปีที่แล้ว +1

    I went from 20 20 to legally blind in one eye within 2 years. Got glasses and finally diagnosed with this disease. Now looking into cross linking and or transplant.... thanks for the video!! I’m

    • @Anuarbekkaz
      @Anuarbekkaz 2 ปีที่แล้ว

      How is it now? Have u done something like CXL?

    • @Andreyabish
      @Andreyabish 2 ปีที่แล้ว

      @@Anuarbekkaz haven’t done anything… I’ve been stable and I can see fine with glasses…

    • @Andreyabish
      @Andreyabish 2 ปีที่แล้ว

      @@Anuarbekkaz I get tests every 6 months

    • @Roy-qw9mq
      @Roy-qw9mq 2 ปีที่แล้ว

      @@Andreyabish do you get halos and ghosting with glasses ?

  • @rehanaparveen5046
    @rehanaparveen5046 4 ปีที่แล้ว

    Hi Ashley, not sure if you will see this message
    I wish i had seen ur video a year or 2years earlier. I'm 28 this year and just went for my second corneal transplant for the left eye. I had went for my first corneal transplant on the right eye on 2018. I was diagnosed keratcornos at age of 19 and i was using the hard lens. It would drop off all the time & i stopped using it. Fast forward 7 years later my vision got worst and i had scars (conean tear). It got me very depressed. The numerous times of going to hospital coz of the swelling. And going back to hard lens was making life so hard.
    Finally the transplant was done and i had a partial transplant. (4 layers was removed leaving the last layer of mine, this gives more chances of having less rejection). And now fast forward i just had my left eye cornea transplant done. The experience is always scary and painful but it def gets better. I have 2 stitches left on the right eye. The sad part of it is not many people know or understand this condition so to them it would rather seem stupied or disgusting to have stitches ard the cornea. I would ask those people to google up and not make fun of conditions that u do not know of.
    And for those who are going through it ,or have already been through the transplant we are warriors and we have come across it
    Yayy!!! :)) and it will get better.

  • @ibrr2
    @ibrr2 6 ปีที่แล้ว +2

    Thank you very much for this great video

  • @aldoeuflausinodepaulafilho2679
    @aldoeuflausinodepaulafilho2679 5 ปีที่แล้ว

    I'm afraid I'm going to do the same. It's impossible to wear the hard lenses. Hopefully I'll be as happy as you after the procedure. Tks for the video. 😉

  • @chillingintheshire02
    @chillingintheshire02 7 ปีที่แล้ว +2

    Very informative, Ashley! Good job.

  • @shezankhan2591
    @shezankhan2591 5 ปีที่แล้ว +1

    I don't know what to say
    I'm totally speechless
    Beacuse I'm going through the same thing but i yes Congratulations you Ashley now you have new life so take care of it :)

  • @chrysanthemuchallah9225
    @chrysanthemuchallah9225 7 ปีที่แล้ว +3

    i love this!!!

    • @hivehelp3597
      @hivehelp3597 6 ปีที่แล้ว

      Thanks for sharing. I've had very similar experiences with KC. Especially the walking into the door frame part ;-) I'm 53 and was diagnosed 13 years ago. I'm lucky in that my right eye can be corrected to 20/20 with a lense, but I've had to have a lot of surgery on the left eye...which hasn't really worked...yet. Everyone needs to realize this process can take a VERY long time, and results are not always guaranteed. For me, things began with LASIK 5 years ago. That didn't work, so after I'd healed they tried a corneal transplant. I then had to have additional eyelid surgery because the corneal surgery damaged the eye muscles. Five years later, and I've only just had the last stitches taken out of my eyeball. The vision is still poor (20/80), so they are scheduling another round of LASIK and eyelid surgery for me. It's been a long (and you know how painful) process. My advice to anyone considering surgery, do NOT get both eyes done at the same time if you have at least 20/40 in one eye. Blind in one eye has been annoying. Blind in both would be a helluva lot worse.

  • @amandabooth7173
    @amandabooth7173 ปีที่แล้ว +1

    Can you update us? Any chance you could do a new update video? This is super helpful for our teenage son dealing with this…

  • @alexz3004
    @alexz3004 6 ปีที่แล้ว +1

    Did the surgy hurt or did they put you to sleep

  • @preciousdevall693
    @preciousdevall693 2 ปีที่แล้ว

    Do you think we can get an update your transplant. Cause I might have to get this done on my eye soon

  • @jillianbeal61
    @jillianbeal61 4 หลายเดือนก่อน

    My dad gave his corneas when he passed away in November. I got the donor certificate and they said I could send a letter to the recipients. I want to send something but I’m scared because I feel like I have researched so many transplant rejections and I don’t want to assume everything went well and sound ignorant. Any advice?

  • @mrmartywaring
    @mrmartywaring ปีที่แล้ว

    I got my transplant on 9/19/22 & I did notice a difference with clarity almost immediately! That said, my vision is still blurry but it's getting better by the day

    • @jenelk8279
      @jenelk8279 ปีที่แล้ว +1

      Wow hope all is going well. I just did mine 3 weeks back.

  • @deanwill14
    @deanwill14 6 ปีที่แล้ว +2

    how is your eye sight now