My Keratoconus/ Cornea Transplant Story
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- เผยแพร่เมื่อ 4 ต.ค. 2024
- Hi everyone! I made this video to share my story with people who are going through a similar process or are interested in Keratoconus and Cornea Transplants. I hope you enjoyed.
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XOXO
-Ashley
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You're so well spoken and this video is so well organized! It's so nice that you decided to share your story on TH-cam and I hope you continue to make videos. I had never heard of your condition and the vid was super informative, it's crazy how much science has progressed
Hi nat! thank you so much for the positive feedback, i truly appreciate it. The condition is super rare so i knew that sharing my story can help and inspire others.
Thank you for going more into detail of what to expect today I was told I have to go to the specialist Ill need to be put on the donors list I freaked out I know somewhat about the surgery due to my brother having it as well but m scared but looking forward to my new & improve vision
How many of you guys rubbed your eye badly who have keratoconous?
i do:/
@@briniduran6149 dont do it its the key
I believe it may have started at a younger age doing so without knowing ... more than likely thats why... now I wish I could go back into time.. and tell my younger self not too rub them like crazy.smh.lolz
Me to
Me tooooo
I was diagnosed with kerataconus when I was in the early 80s when I was in my mid 20s. I wore rigid gas permeable contacts until my corneas got so thin they were in danger of rupturing. My cornea surgeon said he had not seen thinner corneas.
I had my left eye done October 2003 and my right April 2005. I was very lucky that I had a friend who was an ophthalmologist who put me in touch with a cornea specialist who was the head of the ophthalmology department of a medical school near to me as well as the director of the regional cornea bank.
I never had any problems or pain other than when a stitch would break.
I would not hesitate to do it again, if needed.
Cornea transplant vision and..pain still 6/6
How are you now?
I was just diagnosed with Keratoconus , you help me feel a lot a lot better. Thank you for making this video 😘😊
Just had my second corneal transplant as the first failed. It has improved my life so much so far, fingers crossed it holds and good luck to all the people who have this unfortunate disease. Greetings from Australia.
God bless you ! Update ?
@@breathemj my second corneal transplant has stabilised for now. I honestly feel like I have been given a second chance to be able to live a somewhat normal life again. Still not able to drive I don't think but I can live somewhat independently compared to before.
@@bpeezyif you don’t mind me asking, will you be able to drive eventually? That’s my biggest fear when it comes to a transplant and keratoconus in general as relying on other people to get you from point a to point b seems like a headache.
@@Bruh-sq9fv I really hope so but unfortunately I won't be able to drive currently. Maybe after I get my corneal transplant on my second eye I could possibly drive.
@@Bruh-sq9fv this has been such a pain for me the last 5 to 10 years esp being a male. I felt like a burden and eventually became home bound for 5 or so years due to needing assistance just to go anywhere where including just walking to the local shops. I hope and pray everything works out for you!
I’ve just had a corneal transplant 6 days ago (Tuesday 6/14/22). Ummmm, they called me Friday afternoon, and said they detected a bacterial infection from the host. So, another eye drop, making it four eye drops with an additional gel like substance (so, 5 meds) four times a day. I’m doing great! I have no pain and my eye is looking great. So far, I think this is the best decision I’ve ever made. Thank you, Dr. Gross, in Phoenix, Arizona. You ROCK!!!
How long was it before you could drive? When do you get a new prescription? How long did you have to be on your back? Thank you
how is your eye now? This is the only solution i have been given in uk to go for a transplant if i cant wear contact lenses. With hard contact lens i can see fine but at times it becomes really irritating and restricts me of doing so much stuff. I have had kerataconus for 6 years now and wearing hard rigid lens as well as soft lens underneath (two lens in one eye other eye is fine), that i have come to a point to just want to get rid of contact lens and need a permanent fix. i researched alot and because of the risks involved in cornea transplant i am so hesitant to go for this. I took a second opinion from pakistan hospital and they said i can still go for 1) topographical guided prk or 2) intercorneal ring segments. I am thinking to go for one of the solutions in pakistan as i am so scared with the corneal transplant to even imagine what will happen if my body refuses the transplant cornea in future i will be blind. Has anyone had corneal transplant done in uk? apparently i have been told it will only be done under nhs not sure how long is the waiting time.
Thank you so much for this video!! I’ve had Kerotaconus for 10 years and am finally booked in for surgery next week! The surgery doesn’t scare me much it’s more so the recovery period that worries me. Thank you for alleviating some of my fears and hopefully I have the same outcome. ☺️
Hope you're recovering well! Just went for mine 3 weeks back.
Been diagnosed last month am so so depressed don't know what to do but your video really helped thanks
Portia sandy same.. I got diagnosed yesterday
@@tailoredproductions4106 got diagnosed just today..
Jonathan it will be okay buddy just do what you’re doc says and you will be alright they well let you know what you have to do
How are u feeling now ... I am totally broken after I get to know that I need a cornea transplant to be done
same
Thank you so much for sharing this! ❤️ I haven’t seen in 12 years and I’m getting the cornea transplant
Scleral lence work for mee..but transplant work for mee
Thank you so much, I appreciate that you took the time to do this video for others, you are a real Blessing.
I know this was a few years ago, but it has been so helpful to me in knowing what my teenage daughter may be going through. She sees a cornea specialist in a little over a week. I feel we are going to go in with more knowledge than the average person now. Thank you!
DMEK sounds good. My right eye is keratoconus.
Great job Ashley!!! Loved this video so much. You've helped me so much through all this and I can't wait to see you help so many others!! ❤️
Thank you Irina!! you're the best. You helped me come to terms that i wasn't alone in this process either. thanks girl :)
Thanks for your video. I have Kerotaconus in both eyes. I'm currently wearing the hard contact lenses. I've had to get new contracts every year for the past 4 years, due to my cornea changing. I maybe having a cornea transplant in one of my eyes in the future. Thanks for showing me what I can expect.
Hi Colin! thank you so much and I completely understand, i have been doing the same with my hard lenses. It seems scary but if the time ever comes, you can get through it!
Colin Puru hang in there
I only have Kerataconis in 1 eye but I'm wearing hard contact lenses too to see if it work if not I'll probably have surgery it's my left eye.
@@lkayde1996your lence vision...transplant done
ive had keretoconus since middle school with contacts changing every 6 months, the pain is the most horrible thing about this disease, depression doesnt even cover the affect this invisible pain has on us. thankfully its finally being treated in america, while before no one had one hell of an idea of what it was.
I also have keratoconus. I hate wearing contacts. My eyes are very prone to getting bloodshot red from the contact lenses compressing the blood vessels in the eyes. People will think I am high on something or very tired. We do suffer in silence. People with perfect vision and healthy eyes should pray everyday for that huge blessing.
This is so true, it is so depressing more than anything that we have to suffer just to have a basic need (vision) .
@@unknownsource4359 i have similer problem too.😑
i have had keratoconus for atleast 5 years now and u are a warrior compared to me to have go through all this. tho i have struggled with depresion cus my keratoconus and i have never been comfortable with the hard /rigid gas lenses i got for my keratoconus. so even if i had not as severe case as u, my life has been greatly affected by this eye condition. thankfully, i have somewhat of a mild case. cus currently i have some soft contacts and they are far more comfortable and vision wise they work almost as good on me as the rigid ones. but yeah, i have imagined if i needed a transplant sometimes. i have visited many eye specialists before i got my first contacts and one told me i needed a transplant. this condition changes over time and it can "get better" or "worse" i guess....glad u are making some positives out of this extremly negative eye condition.
Thanks for this Ashley. I just had corneal transplant 4 days ago.
Its s great feeling to see through the eye again.
I'd love to hear how your getting on I have KC.
@How do 1% govern 99%
It turned out a bad story, because doctor said I have an immune problem that caused the new cornea to go cloudy.
2nd surgery is out of the question. So, I am praying to God for a miracle
I got the transplant many years ago the graph is acting up I will need another one it will be ok god is good I have the best eye surgeon
Im so glad u told us your story and your outcome of transplant.. in near future ill probably need transplant also and man im scared as hell of the procedure and the outcome.. its hard with this disorder and nobody really truly understands what are u going through.. wish u all the best Ashley!
Thank you so much ! Literally doing the same thing that you did, researching and looking up everything about the procedure. And i appreciate and can relate to this video so much more than the medical ones that speak on it. Thanks again, this did give me a boost of confidence and only positive thoughts from now on 🙏🏾
I have Keratoconus as well and plan on making a video about my life with it.
Thanks for your video it's great to know that I'm not alone. = ]
I just had my cornea graft on the 7th of November 2019. This video just made me feel much better in recovery journey..thank you so much.
Hello Bongani, how's your recovery journey going?
I'm getting cornea transplant soon and I'm feeling so anxious.
Hi Thato. The journey had it sips and downs but I'm much better, my sight gets even clearer when stitches gets removed... It's okay to be anxious, but worry not, all will go well.
@@bnradebe your vision now
It's okay, better than what it was. I resumed driving this year with the assistance of spectacles... However my other eye is has worsen. Im still waiting for an available graft
@@bnradebe surgery eye 👁️ vision with glass..20/20
Very informative! I've been looking for good information on this procedure and this video is by far the best.
Thank you
Hi Ashley I have Keratoconus since I was about 15, I am in my late 50s now. I had a transplant in my left eye in 1990, easy operation and stitches in my eyes for 12 months. to this day I still have a partial stitch in my eye. It took many years for my specialist to let me wear contact lens in the eye again. But hey I have much better sight now, the right eye still is corrected with a hard lens. So overall I am a happy guy. Oh back in the 80s I was fitted with a shell, a contact lens the whole size of the eye. Nasty I would never recommend that only one positive, you won't lose it swimming lol
You described it so well"a bunch of eyelashes stuck in your eye" true that
I to have keratoconus...In my both eyes...... Wearing hard lenses.... In both eyes... It's paining...I am wearing as it gives me vision..(wow☺️)..... My doc suggested dalk operation.... For left first.... Will it work...
Life is horrible 😢 with this diseases..... People with good vision are gifted
A kornea transplant is very painfull!..I had one like 17 years ago, and also wear hard lenses.
I feel your pain, I have the she situation, doctor told me the same thing. 😭😭😭
Akhilesh Gnanasekaran I know how you feel I have Keratoconus and it’s awful! Hard lenses work so well but they are so uncomfortable. It’s the worst eye disease
Akhilesh Gnanasekaran Did you have the transplant?
Go for sclarel lens instead of going for Dalk
Thank you this really helped a lot. I do have my hard contacts but I don’t really wear them because it is sooo un comforting
Try wearing hard lens on top of the soft lens.
Ashley,
Thanks for such a great video and optimism despite what you’ve been through. Always easier said than done! The video was amazing. You did a great job explaining things. Best of luck to you! Keep kicking Keratoconus’s ass!
I had to go through cornea transplant because i have a severe complication after my lazik (PRK) got a very bad infection which left a huge scar on my cornea … my vision before lazik was much better thn it is now .. well its my 2nd month post keratoplasty .. lets hope for the best .. this video really helped !! ❤
wow u stayed so positive during the whole process.. thats a hard thing to go thru but u made the most of it and stayed in good spirit. thats wasup
Hi I am having Keratoconus in my both eyes... October Month 2019 my left cornea tares.. Now I going under treatment for cornea transplant 👍👍👍
Transplant done
Thnx for this video very helpful , I got lasik done 11 yrs ago when I was 19 yrs old and it was a disaster, I now need a transplant in both my eyes ,my left eye is worst so this January I'm getting surgery , super nervous but hearing good outcomes from other people give me hope , thank you.
I can imagine, i hope it all goes well and i'm glad i was able to help! It is challenging but it gets better. Good luck!
Thank you so much for sharing your journey! I feel better, calmer about getting the transplant now ❤️ and getting my eyesight back!!!
Thank you so much. I have the transplant scheduled for next week and you just made things sound less scary. Thank you
On feb 26 this year im gonna have my second surgery .. Im so grateful rn 😄😄
U had 2 corneal transplant in one eye?
I am having my transplant in 8 days. I am scared, but excited. I haven't been able to see out of my left eye in 3 years. Thank you for the pointers on how to make recovery easier.
How was the experience and hows the vision?
@@thapelogram2897 It was not successful. It is stable but still unable to see anything more than 20/200
@@TarenDonneaud lence vision
@@noufaln3259 It is only a -1.25, but requires a scleral content because the cornea is still misshapen.
@@TarenDonneaud lence vision 6/6
I went from 20 20 to legally blind in one eye within 2 years. Got glasses and finally diagnosed with this disease. Now looking into cross linking and or transplant.... thanks for the video!! I’m
How is it now? Have u done something like CXL?
@@Anuarbekkaz haven’t done anything… I’ve been stable and I can see fine with glasses…
@@Anuarbekkaz I get tests every 6 months
@@Andreyabish do you get halos and ghosting with glasses ?
I just had the surgery last week. I am hoping my body does not reject the transplant. This was most definitely an experience. I have not experienced any pain even directly after surgery.
hey my dear thank you so much this video helped a lot of people who were scared to have surgery because of this video I read the comment and we found a lot of people express my mom gonna have next month and try to steady...how work how it’s risky BUT there is no enough video so this help lat of people.thanks may God bless you and your future as well 🙏🙏🙏🙏🙏💫
Thanks so much, I'm going to see my specialist today Linda scared but you gave me strength
Wow I had almost the same exact experience as you in 2004. During my transplant i had problems but the doctor said it was my weight and the cornea transplant took like 3 hours or more to finish but i didn't know until i woke up. I remember the stitches too. In 2015 I had my second eye done but it was a newer way of the cornea transplant surgery so i had no problem the second time. I have a great specialist doctor in Atlanta for contacts i can see 20/40 almost 20/20. I hope you continue to do well with your transplant
20/20 with rgp
You see with contacts 20/20
Contact lences with 20/40
Im 28 years old I was diagnosed when I was 18 in both eyes with súper advance Keratoconus got my first transplant at 21years old changed my life now it’s 2022 and I will be having my other transplant in my right eye soon…
How much did it improve?
@@vegabondrealestate a lot my life’s changed
@@MrJonnybillHow are you now??
Thank you Ashley I have credit cards they're thinking about scleral lenses. The transplant is the last resort but if I have to do that you made me feel a lot better do me a favor and just keep on being you❤
Thank you so much. My biggest fear is acute corneal hydrops. I’ve been wearing RGP lenses for 12 years and am afraid they might end up scarring my corneas. I’m in medical school and feel like my life would fall apart if I suddenly needed a transplant. However, you story is encouraging, so maybe things would turn out well for me, too.
Thank you so much. I truly appreciate that. Being in medical school wearing RGP lenses and dealing with corneal issues is amazing. Not many people understand how hard it is to study long hours and deal with trying to still be able to see. Congrats! Hope all goes well for you
My left cornea has a huge scar on it and I'm having a transplant to that eye on December 11th..I've had my right eye done in 2010 and I'm very very pleased with the result.I'm so ready to get it done.I felt 0 pain..only bad irritation when a suture gets loose and poking your eyelid
@@yaboyee7606 your visions
@@yaboyee7606 your vision
Had also hydrop ad scar bt hd a graft 6 months ago which is very successful don't fear just find a good expert
I was diagnosed a few months ago and now I’m terrified to wear contacts. So I’m definitely going to start wearing glasses until I get my procedure done. Thank you for making this video!!
I had my right eye done, full thickness transplant, 15 months ago and am going to have my left eye done in a couple weeks. Thanks for the video. Keratoconus is a bitch. I couldn't drive my car for over a year. Thank God for this procedure.
Rt eye vision
Your vision recovery
Your visions nowww
I got my transplant on 9/19/22 & I did notice a difference with clarity almost immediately! That said, my vision is still blurry but it's getting better by the day
Wow hope all is going well. I just did mine 3 weeks back.
Great positivity. Currently all stitched up from my second op.
Thank you so much. I hope your recovery goes smoothly and you get well soon :)
How did it turn out
What an encouraging video for all. I have had keratoconus in my right eye for over 20 years. Was wearing gas permeable lenses but now it's worse, so I've been keen to go for DMEK. I have been scared about blindness at times but not so much about surgery. Love when you said "you aren't alone". Means a lot to me. I heard recently that if we had infrared eyes we could see the rings around Neptune! Technology will only improve for this crazy disease. Surgery sounds worth any recovery pain. Thanks 🧐
Hello, thanks for sharing this story with us , I’m having a transplant next month or so this video really helped me out, hope you post video of your updates in future
Thanku for your story it helped alot I've had keratoconus for 4 years and we're hard glass contacts now and it's been an extremely hard journey so it's a blessing to hear that there's someone going through what I'm going through I pray that one day I can have a cornea transplant
I've had keratovonous also for 4 years and i've also done cross linking to both of my eyes and wearing hard contact lenses. It's really hard .so i want to do this treatment(cornea transplant)but my doctor said it can't do with my situation😑
Just got diagnosed with karatoconus thank you thank you so much for this!
Thank you so much brandon! im glad i can help
Don't worry about it Brandon. I got a transplant in 1990 and never had an issue. Nobody can tell I have it and my vision is fine, I do wear a contact lens over it as I am in my 50s now so need corrective vision. I still play contact sports, still swim and scuba dive. It doesn't stop you doing much at all.
Watch DMEK on you tube. It shows this thirty minute procedure in detail. It is not gross or painful just educational. The donor tissue comes from a dead person who was loving enough to give the gift of sight to someone who would otherwise go blind. Recovery time is quick and awesome to see again in high definition.
Thanks so much! I'm thinking of getting a corneal transplant because I too have keratoconus and I cant explain how colossal the effects have been on me, I had a normal life and I just want everything back. Just want to know how much it costs usually haha, I have no clue and my optometrists haven't really touched on it
Just let me know if you can
Hi Ashley I had Kerataconus in My Left Eye And had a Cornea Transplant about one Year Ago and I am Doing Great my Vision is A lot Better and I can see!!!!
What about cost sir...please tell me
Have*
Vision how
Very clear cut
Thank you so much for sharing. I feel so much better about my journey.
I liked how you were informative and descriptive with how your experience was and how you were emotionally. To see you going through this hurts but I’m happy your vision is getting better.
I have keratoconus myself and my left eye is scarred and more damaged. I have an appointment for this month sn depending on the situation, I may need a transplant surgery to. Vision is really bad. Honestly, I’m actually scared but seeing how positive you were, I’ll probably do fine.
After watching this, I legit had a panic attack! I’m okay now but hearing people’s pain or whatever makes me sick to my stomach. Hopefully doctor doesn’t mention a surgery but if it’s needed then I have to. Thanks again for sharing your experience
You transplant 👁️
Hello , thank you so much for this video .I'm getting my cornea transplant on the 2nd of October. I'm so afraid but I'm a take your advice and think positive..bless
Thanks so much, I am told I need the surgery and you've been really informative.
Thank you so much... I'm having my surgery August 7th 2018 so I'm a bit nervous...
How did it Go bro let me knowww
Wow , such a great video. Just one. Was hoping to see more of the long process.
I feel better now that I know what can happen you I dont know how many times I broke down
Thanks for the video! I have KC my vision is 20/500 without my hard contacts, i had cross linking done in my right eye and that helped a lot! But I'm scheduled to have my cornea transplant done in my left eye in 2 weeks so thank you this helped a lot, i've had hip surgeries but that's nothing like your eye..i see horrible so I hope the surgery helps.
Hi Victoria, thank you so much. I hope that your surgery goes great, and that you have a speedy recovery. I remember being so nervous but you will feel like a brand new person after a couple of months. You are strong and will be able to overcome this. Wishing you the best of luck!
Did you get sclaros after the cross linking? I just got cross linking 2 months ago and so far my vision is worse and my old contacts don't work at all anymore
Oh my goodness it’s crazy how much people can be alike! I’ve had 3 hip surgeries in my life (I was born with hip dysplasia) and when I was 17 I had cross-linking in my right eye as well. Don’t let the video scare you the surgery is unexplainable when you finally get your vision.. it’s truly a blessing and I look around every day thinking about how awesome it is to see 🙂
@@ashleyrodriguez9161 I forgot to add your name to my comment lol
@@victoriameylan4310 your transplant eye vision...with glass or contacts
Thanks alot for ur words i have a scar on my right conea i hope one day i will get the opportunity to see again clearly
pain was dealing with the broken stiches 13 for 10 years , after 14 years of mu corneal trasplant i have my scleral lenses now
The after surgery pain and the stitches scares me the most.
Can you update us? Any chance you could do a new update video? This is super helpful for our teenage son dealing with this…
Wow! So happy for you! Just had the surgery this past week and I can’t wait for the full results to take form
Your vision
I have this also and I have my transplant scheduled for May 21st. I’m so nervous but so excited to FINALLY see 😁
How did it go for u with your transplant did it work
Update pleasee!
I've had a corneal transplant on my right eye back in 2010 and it brought my vision back with correction contact lense to 20/30 in that eye.I'm very pleased with the final result.I'm having my left eye done on December 11th I'm so anxious and ready to have it done.Hopefully I'll get a solid 20/20 in that eye being that it was always better than my right eye
How is your vision now
Hard contact lences
I know that this is an old video but still very helpful.... hope you are doing well... thanks for the content 🙏
a definite life altering challenge to have to experience.
wanted to say nice job on this video.
I am still struggling with my 2nd transplant in 3 months.
Been 9 months since I have bad any vision. I can see light.
but thats it. NOT being able to see was scarier to me than any of this whole ordeal . All I wish for. go back for my 4 week follow up in a week.
wish me luck
best wishes for you with your own adaptions you may have to encounter in your future❣
How are you now?
Thank you for telling sharing your story. Gives us hope.
Great video, I've just also undergone a transplant myself and uploaded my experience. How is your situation now 4 years on?
Thanks for making this video. I am 22 and got diagnosed with kerakotonus in both eyes when I was around 20. And the drs say I can’t have a transplant until I’m around 30 and that my eye may still reject it even if the operation is successful. So am sure this video will help and hopefully make me feel Abit better. I can’t drive due to kerakotonus and it broke me. I have a severe case of kc. My left is severely blurred and my right eye is okay for now and I pray my right eye doesn’t get as bad as my left cus I would be fucked even more if that happens… 🙏🏻🤞🏻
My left eye has Kerataconis but I'm using hard contact lens to see it pushes my left eye back. I probably need surgery if it don't work I hate surgery.
I don't know what to say
I'm totally speechless
Beacuse I'm going through the same thing but i yes Congratulations you Ashley now you have new life so take care of it :)
I really appreciated this video, Ashley :)
I had my transplant a few days ago and I needed some encouragement.
How has the experience been?
I’m scheduled for a full corneA transplant in my left eye in July!!! Terrified!
tdawgsmitz 🙏🙏
I am developing it in both of my eyes my first graft is in state of rejection i am suffering in pain
How are things going now?
I had corneal crosslinkjng April 2023 in my left eye. It was super painful for 12 hours.
I feel like the last two weeks my eyes are getting blurry again.
Hi Ashley, not sure if you will see this message
I wish i had seen ur video a year or 2years earlier. I'm 28 this year and just went for my second corneal transplant for the left eye. I had went for my first corneal transplant on the right eye on 2018. I was diagnosed keratcornos at age of 19 and i was using the hard lens. It would drop off all the time & i stopped using it. Fast forward 7 years later my vision got worst and i had scars (conean tear). It got me very depressed. The numerous times of going to hospital coz of the swelling. And going back to hard lens was making life so hard.
Finally the transplant was done and i had a partial transplant. (4 layers was removed leaving the last layer of mine, this gives more chances of having less rejection). And now fast forward i just had my left eye cornea transplant done. The experience is always scary and painful but it def gets better. I have 2 stitches left on the right eye. The sad part of it is not many people know or understand this condition so to them it would rather seem stupied or disgusting to have stitches ard the cornea. I would ask those people to google up and not make fun of conditions that u do not know of.
And for those who are going through it ,or have already been through the transplant we are warriors and we have come across it
Yayy!!! :)) and it will get better.
Your vision
I just had my eye doc. refer me to the cornea people and go in Sep2022 for our first talk. You have something I have spent, youth. I am 81 and have put off as long as I could doing this. I have Fuch's dyst. Enjoyed meeting you. You are quite pleasant and fun to listen to. Did you have any trouble from your local DMV during healing?
hlo i am frm kashmir iwas been diagonsed vd carnatoc orus i did c3r and o got weakness in vision i c thngs in blur dn iwas been suggestd to adopt glases but it does"nt works my age ix jst 19 i am not able to drive even i get troubles in reading and in recognising persons evn wn dy r closer to me plz hlp me wt shld i do
Thank you very much for this great video
Thank you! i hope it helped
I’m so happy for you!! I’ve had cross linking surgery and might have to get a transplant too and I’m terrified. The cross linking surgery was SO painful and I’ve had a few scratches and tears on my cornea and the pain is unbelievable so the fact that the surgery is painful just makes not want to do it. I don’t have to yet but it’s most likely in my future. Thank you for making this video, it did help even though I’m still a bit scared lol ❤️
Cross linking is a uv light and eye drops? It’s painless. Uncomfortable, yes. But normally painless.
@@LancelotVantuyckom maybe that’s your experience. Many others like me found the surgery to be extremely painful. Your opinion is your opinion but try not to invalidate someone’s experience just bc you haven’t had the same one :)
@@lisastern7331 normally the procedure is painless. I commented not because I wanted to discredit your experience but because something isn’t right when you endure pain during these minor invasive surgeries. No malicious intent. Stay safe, Lisa. Hope you get better.
@@lisastern7331 I was wrong, looked it up! I apologize. You had a different procedure than I had. The crosslinking you had was epi-off crosslinking where they scrape off the front part.
This is indeed a painful procedure but much more effective! I am curious how your progression is now. How is it holding up?
good luck!
@@LancelotVantuyckom no worries, I appreciate the clarification! :) My eyes have been pretty much stable since I had the cross linking, small variations only. I have to use hybrid contacts though, which are uncomfortable but help me see much better! Thank you :)
Had corna transplant 30yrs ago both eyes ,get another transplant Dec 4th don't fear the surgery it will find.
I like the sound of DMEK. My right eye basically blinded with keratoconus
Very informative, Ashley! Good job.
Thank you so much Gen! I appreciate it
Doctors refer me for cxl but I don't wanna that bcz of risks of bilndness issue
I don't know what I do
Hi Ashley thanks for that..I just had my transplant last week ..on day 3 of recovery ..just wanted to ask few questions ..
How long does testy and red eye go on for?
how is your eye now? This is the only solution i have been given in uk to go for a transplant if i cant wear contact lenses. With hard contact lens i can see fine but at times it becomes really irritating and restricts me of doing so much stuff. I have had kerataconus for 6 years now and wearing hard rigid lens as well as soft lens underneath (two lens in one eye other eye is fine), that i have come to a point to just want to get rid of contact lens and need a permanent fix. i researched alot and because of the risks involved in cornea transplant i am so hesitant to go for this. I took a second opinion from pakistan hospital and they said i can still go for 1) topographical guided prk or 2) intercorneal ring segments. I am thinking to go for one of the solutions in pakistan as i am so scared with the corneal transplant to even imagine what will happen if my body refuses the transplant cornea in future i will be blind. Has anyone had corneal transplant done in uk? apparently i have been told it will only be done under nhs not sure how long is the waiting time.
Thankyou for such an informative video. I have a transplant for my left eye next week and this video has helped me immensely. My doc has told due to the pressure it would exert on my eye me that i will never be able to weight lift again which bothers me, but i have heard from others strenous exercise is fine after a while. Would you be able to shed some light on this ?
i love this!!!
Thanks for sharing. I've had very similar experiences with KC. Especially the walking into the door frame part ;-) I'm 53 and was diagnosed 13 years ago. I'm lucky in that my right eye can be corrected to 20/20 with a lense, but I've had to have a lot of surgery on the left eye...which hasn't really worked...yet. Everyone needs to realize this process can take a VERY long time, and results are not always guaranteed. For me, things began with LASIK 5 years ago. That didn't work, so after I'd healed they tried a corneal transplant. I then had to have additional eyelid surgery because the corneal surgery damaged the eye muscles. Five years later, and I've only just had the last stitches taken out of my eyeball. The vision is still poor (20/80), so they are scheduling another round of LASIK and eyelid surgery for me. It's been a long (and you know how painful) process. My advice to anyone considering surgery, do NOT get both eyes done at the same time if you have at least 20/40 in one eye. Blind in one eye has been annoying. Blind in both would be a helluva lot worse.
I got my surgery in 2018z everything you said I went through. lol I will be needing a transplant on my other eye now. Ughhh starting over again lol
Could you do another video on how you feel now 6 years later 🙏
Been living with the same problem since I was 10 13 yrs later I'll be undergoing a cornea transplant
Me I'm going to do a transplant.....pray for me
I am 15 and I have it :( it sux I wanna join sports but I think I can't cause of it :(
how is your eye sight now