A New Way To Look At Symptom Flareups [Gamechanging!] | CHRONIC FATIGUE SYNDROME
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You Are Just One Mindshift Away From Living Life Without Chronic Pain and Fatigue
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Tags: Cns fatigue, cns burnout, nervous system burnout, nervous system fatigue, cns exhaustion, chronic fatigue, cfs, chronic fatigue syndrome, bedridden, housebound, adrenal fatigue, chronic fatigue syndrome treatment, cfs symptoms, cfs recovery, cfs health, chronic pain, chronic pain syndrome, chronic pain explained, chronic pain meditation, post-viral fatigue syndrome, long covid, covid long hauler
#cfs #cfsrecovery #cfsme #bedridden #anxiety #somaticsymptoms #somatic #panicdisorder #panicattacks #chronicpain #chronicsymptoms #longcovid #postviralfatigue
DISCLAIMER: I am not a medical doctor or therapist. I am sharing my own experience and research. My video content is for information and educational purposes only. Please consult with your medical professional.
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Ive been in CFS Academy for a month and went from bed/couchbound to walking 20 minutes, some housework, having friends round. Thanks Miguel and coaches 😘🤩😁
Great job, do not let your enthusiasm get ahead of you. I made that mistake. Take it slow with caution till the end👊
Thanks for the advice. I'm definitely taking it slow and when I'm tempted to do way more, I remind myself no no no!
You got it!! 👊👊
@@cfsrecovery I do!! All thanks to you guys 🤠. I managed to get my 3 year old up, teeth cleaned, dressed and brekky this morning before he went to nursery. Feels so good!
Good for you, i was 2 months in there get me from half day working to bedbound. But i think it is my Personal fault, the academy was "not enough" I had needed a lot of personal coaching everyday and that you are not getting in the academy only if you book platinum what is very expensive. So coaches and people were really nice but did not helped me, when i need Personal Support each day. Great it worked for you!!! ❤
I have been telling people around me to quit pushing me…..I am listening to my body and I know when I need to rest. I know that you are sooooo right! I want to live again! Please and thank you!
Your self-awareness is empowering! Listening to your body is crucial, and taking the time to rest is a step towards reclaiming your life. Here's to a brighter, more vibrant future! ✨
I’ve watched dozens of videos on the topic, and since developing long COVID in June 2023, I’ve been making great progress by applying various techniques I’ve learned from multiple sources-essentially taking the best from all approaches. I have to say, this has been a major breakthrough for my mindset in how I handle the symptoms, and the video offers truly immense practical value!
Thank you so much…you are one real motivation. I have been having these cfs symptoms from the past 4 months, and your videos really gives strength. I am trying to understand the mechanism of cfs and it really helps to recover. But sometimes little efforts like walks and little physical stress gives me adrenaline rush which make my symptoms worse and gives me nausea, migraine and body pain. Hope one day all this will stop and i ll be back to life….Thanks MB🙏🏻 love from India.
You're very welcome! It's great to hear that my videos are motivating and helping you through this challenging time. Remember, progress can come in small steps, and with patience and a positive attitude, you can work towards recovery. Sending love and positivity your way from across the globe! 🌟🙏🏻❤️
Hi Vikas. I am also inspired by Miguel. Would you like to touch base and discuss?
This makes a lot of sense. Three days ago, I went out for the first time in a while, drove on the freeway, and went into a VERY stimulating situation. The next day, I felt shockingly well! I thought I was healed! Today, I'm in ROUGH shape. That didn't figure because yesterday was super chill. I think what happened three days ago is catching up to me. But that's fine. It was a good workout! Time to recover from the "soreness."
Great video, as always!
I’m so thankful this is working for me….this program works if you are willing & ready to make real change & do the hard work of recovery. Wishing everyone a healing recovery journey!
You’re crushing it Emily!
I love this man. The humility and compassion is unmatched ☀️
Such a heartwarming compliment! The combination of humility and compassion goes a long way. Grateful for your kind words! ☀️😊
Are you joking? This guy literally stole the whole program from Toby Morrison. He has no shame.
This makes sense. And right now I have a big flare up and I have covid as well. So this vid really makes me think in a more positive way. Thank you so much for all the vids...they are so helpfull. Sending love from the Netherlands 🙏🍀
Man, your channel is mindblowing, I have been dealing with CFS for the past three years, and now more than ever, knowledge is more than power, it is taking your life back.
Well said 😊
I was a
Personal trainer lady before Covid 2021. I never experienced teard before. But since 2021 am not able to walk outside this is very hard to accept it. Am trying my best to overcome my system but i don’t see any change.thank you again Miguel 🙏🏾
You’re very welcome 😊
your last video about symptoms changed everything for me. it was sooooo sooo good. after watching it, I had some of this miracle moments everybody is talking about. Now I can sometimes turn symptoms of with calming my nervous system. you explain it so well. and the good thing is, when you succeeded once, you know that you can do it again. so when my symptoms flair up and their is this big wave of emotions and negativ thoughts coming with it, I remind myself that I know what to do. stay calm and find a way to come out of fight and flight or freeze mode. On bad days I need to meditate for two hours, one hour to relaxe and one so that the magic can happen. for me thats so much progress. last year I couldn't get out of survival mode for some months. so thank you very very much for your work. when you can switch your symptoms on and of it really changes how you see health and illness. The symptoms feel like a program your body is doing in order to protect you. or like a false response to a signal, like an allergy. for me it is very important to come out of the mind in my body when I face my symptoms.
I am so glad it resonated with you. 😊
Do you mind linking the video you are referring to? Thank you!
Thank you sooo much, this makes perfect sense!! This helps me to see the connection when I experience increased symptoms as I try to live normally.
I have so much difficulty managing my thoughts when symptoms increase though. Stress, negative thoughts, worry, and anxiety are a big part of what has led me to this over sensitive nervous system disorder, so I’m not really surprised that I have such a big problem controlling my thoughts when symptoms arise. I do try to remind myself that the symptoms are just an adjustment period and not a crash, but my mind just tends towards anxiety.
Do you have any more more tips for changing these negative thought patterns? Thank you again for all the wonderful work you are doing and your generosity in helping so many people. God bless you!!!
Thank you so much 🙌🔥❤️
I feel exactly the same when symptoms worsen.
This video has got me thinking that I'm capable of more activity than I realize. I bet I'm feeling stuck because I'm trying to avoid symptoms. Which is keeping me at this same level. No dr has ever told me what to do about my cfs. I've had it over 20 years. Thanks for these videos, I think I'm on the right track here.
You got this! 💪
This program has changed my life! I’m so thankful for it. I wish you well.
Thank you for your kind words! ❤️
It really makes sense and is so encouraging for me.
We're glad you find it helpful ❤️
Thank you for your effort god bless you.🙏🏾
You are so welcome 😊❤️
Good Video, the only Problem i have is that when the symptoms coming back from a flare up or AP my capacity which dropped before is not coming back. The capacity and the muscle shutdown is my Problem, not a fast heart rate or buzzing or fatigue. But the capacity is dropping that is why you always feeling going backwards and starting from the scratch
I totally understand 👍 Please check this link. I hope it helps!
th-cam.com/video/Q60hShcBIrA/w-d-xo.htmlsi=ksY55mbY-_wRPQjg
I can rest the body when when resting physically, please do a video on how to rest the mind. If I do nothing, Im in a catch 22 .... i think too much. so I watch screen time to stop my mind from negative or just thinking too much, so I watch tv/ computer. But screen time causes headache/ eye pain/ too much nerve stimulation.
Please watch this and hopefully it helps:
th-cam.com/video/bSQVKusFK3U/w-d-xo.htmlsi=i5LOeuBk78n9yNc5
Thank you for breaking it down in this way! Very much appreciated as this is where I am getting stuck! I had recovered for the most part from CFS. Still had and have fibromyalgia. I was diagnosed in 1989...when they didn't actually have a name for any of it. I would say somewhere around 2008 I seemed to have the CFS problems worked out and I was functioning better with my fibromyalgia. When I say functional, I mean that I could manage walking a few times a week, take carevof the house chores, my 3 chuldren, go out for shopping necessities. Have a life with my husband, and friends. I still had limitations but I was able to rest and pace accordingly, for the most part. I would have flare ups with fibromyalgia, still do, and the odd flare ups of overwhelming fatigue, where I would do my marathon sleeping. I would sleep for 14 hours or so, get up and eat and go back to sleep for another 6 hours , then eat, stay up for a few gours and then go to sleep for another 12 hours. Etc. This could go on for a few days to a week but then my chronic fatigue would lift mostly and I could go back to my life managing fairly well. I have been unable to be in the "Work Force" since I became ill in 1989. I did try and work for a period of time but did not have the stamina to even hold a part time job. So all of this was my life..,and for the most part I was managing until Covid in January 2022. Was horribly sick for 3 weeks but did not have to go to hospital. Got better a bit but April I had full blown long covid! In August I got covid again...and have been in a living nightmare since! Long covid kicks CFS in the butt...it is on a whole other level. I am now 22 months in and am getting better very, very, very slowly. My pots symptoms are under control, as is my breathlessness! Also pots, I know. The fatigue and pain are so bad still and it just seems like a never ending flare up between long covid and fibro. I am trying to increase activity to be able to go for a 5 minute walk, but the next day...I am done with crushing fatigue and pain, along with sore throat, and chest pain. I am doing daily meditation and it has been a wonderful healing tool for me along with breath work and cool showers, getting outside in nature. Anyway, that is my story and I thank you for this way to see and understand how my body is healing, and reacting with flare ups. I am not pushing but after listening to you, I do think that I am mentally getting in my own way, and also expecting to get better too quickly! It is exhausting, though as almost 2 years more of my life has been surrendered to illness!! I do feel that I am coming out the other side a completely different person, with gratitude and a simple love of life, little things are precious, now!! Sending healing hugs to everyone! We will all get there, slower than we want, probably, but we will recover!! Hang in there everyone!! ❤😊
I am happy for you, really
How did you cure your cfs the first time?
@@Stella-kn1sl Thank you Stella ❤😊
@@TunesAndToys I really am not sure, to be honest. I did a lot of resting, sleeping, resting, and sleeping. I was unable to work so I was able to really rest when I needed to as I didn't have children when I was first sick with cfs and fibromyalgia. I paced myself and really never pushed myself, too much anyway. I was 18 when I first got sick and by the time I was 22, I started to get a bit more energy. I was able to function at a very slow paced level. I had figured out my limitations for the most part and was able to sleep and rest if I crashed, which was more than I could ever count. I got used to the levels of energy or lack of energy and it was just life for me. I never returned to work at a job outside the home. I think it was a mixture of time, listening to my body, resting, sleeping and not pushing myself. When I commented on this video it was a year ago. I am happy to say that I am much better than I was then but I am definitely not fully recovered from long covid yet. There are times I think that I am though, so that is saying something! It is hard for me to tell if I am still in long covid or it is just my fibromyalgia that has gotten worse because of long covid. Either way, I am doing better, it is very slow and I am still mostly housebound...just doing the basics. I still do my meditation daily and I do believe that it has helped me stay grounded and also given me that relaxation that I need in my day. I still sleep 10 to 12 hours per night and have a hard time actually getting out of bed but once I am up, I am okay. My life is very simple...I do what I can when I can. I have accepted that my life is this way and I no longer resist what is here or wish that I was better...at least for the most part. I am learning everyday how to just love myself and live in gratitude for the life that I do have. It has almost been 3 years now since I got sick with covid so time is definitely our friend as is patience. I try not to react to symptoms but acknowledge them and just let them be there. I wish you all the best and I hope that I have helped you, at least a little bit. I have learned that there is no secret supplement, or magic pill, or even a definitve answer to how to get better. I have also learned to how to be happy with where I am now. To meet yourself where you are is the best thing you can do to stop the disappointment when you have a setback. I still do get stuck sometimes but for the most part I just accept that today is a rough day physically but it doesn't have to define my mood or even how my day goes. I can be happy while I rest. I do believe being grateful for something, no matter how little, changes how you feel emotionally. Wishing you the best in your recovery 😊❤
@@kathyforeman5603 wow glad to hear you're better. I'm afraid i might have developed POTS just today. Did you ever have that? My heart rate refuses to calm even at rest. And standing up makes it jump over 30bpm higher! eesh
Thanks for this video. I've been declining for a while. Now I want to de-stress properly before really retraining and building up again!
You're very welcome! Wise decision! Take the time for self-care and de-stressing. 🧘 Your journey to recovery is a personalized adventure. Wishing you strength and success! 💪
@@cfsrecovery thank you Miguel. Doing somatic nervous system work was very helpful and I'm going in a good direction. My mottos for the new year are patience and acceptance
Flare ups are not in the way. They are on the way! 👏🏽👏🏽👏🏽
You're right! 👍
Super helpful video thanks 🎉
I'm so glad it was helpful! 😊🙌
Has he ever mentioned where he found such a good physician? I have not been so fortunate.
Dr. Moskovitz
He stole his whole program from Toby Morrison. There is no magical doctor.
This is so accurate for me. When I’m tired after an activity the anxiety or depression increase in addition to soreness. It’s like those two things happen when I am in a flare up. I find it very hard to rest after being hyped up some. Is it normal to have increased anxiety and depression when these flare ups happen?
Absolutely! It's common for mood shifts during flare-ups, and taking it easy afterward is a great step. 🌟 Take care!
Except it’s impossible to turn the thoughts down when resting, or sleeping, or doing activity.. the brain just spins out of control, driven by the nervous system. I can be in an AP / crash.. and all past traumas, all stresses, just flatten me - even if I’m calmly swatting them away.. they come back harder and harder saying ‘listen!’.. I have to go about addressing/healing traumas first?
Some days just wired and unable to calm down at all.. all trapped in my nervous system. I still after 18 months cannot ‘calm down’ or be relaxed..🤷🏼♂️ it’s a boom and bust cycle where I can never switch off amd symptoms are stuck on.. the cortex/rational thoughts around the ‘past being the past’ butt heads with the limbic system that is more powerful and ‘knows’ things are unresolved, so projects danger response 24/7.. you can’t rationalise with the limbic system, it runs on felt safety… so there is the paradox.
Rationally: I’m fine, life is safe, the past is the past, xyz can’t hurt us.. etc🙂
Limbic memory/trauma memory: nope.. sorry buddy it’s danger time, and I call the shots/send the signals/symptoms/etc.. 🙃
So trauma healing needs doing, as part of the process?
It’s so bad that my brain scans and creates scenarios where leaving the bed/house/etc (sliding scale) is a no no.. it took me 3 months to be able to get across the house as the body was in constant panic.. yet I rationally knew it’s rubbish/safe..
My crashes are just so apparent in them being driven by an overwhelmed stress response.. even daylight causes pain - but rationally it’s rubbish..
The body keeps the score, the enemy becomes you…
Any advice - I KNOW all my symptoms/AP/crashes/autoimmune issues/sleep.. the whole lot are a cascade of trauma response ‘stuck’ and hardwired into my brain/nervous system..
I love life, was an artist, ran a big workshop, had friends, musician, was confident and I know rationally the world is safe.. now I can barely function upright for the fog and depersonalisation and am bedridden 23+ hours a day for 18 months.. it’s a battle of cortex/rational vs limbic/feeling..
How do I ‘feel’ safe..?
Thanks
I’d recommend watching his videos on the brain retraining - it’s helped me a lot!!! Also was bedridden, but now after 2 months of this program can be up around the house for a good amount of time each day. God bless you.
@@emilycole6453 what has allowed you to make shifts? I have tried for so long.. 🕊
To ‘feel’ safe ?
Do you know the phrase “fake it till you make it”? For me, I just started telling myself the exact opposite of whatever negative thought was in my head, every single time I recognized I was having negative thoughts….so I sway away the negative thought & then REPLACE the negative thought with the opposite….even if at first I didn’t believe it yet, but then over time & consistency your brain & nervous system start believing….and you find yourself having less & less negative thoughts & naturally just start telling yourself: I’m ok, this too will pass, I’m totally safe, I can do hard things, etc.
Learning to talk to myself as I would a best friend, or even a child - being kind and patient. It does take time, practice & consistency. But for me, this program has helped & I’m only at the 2 month mark.
Watch as many of his videos as you can, take notes & refer to those notes in times of struggle to remind yourself the basics.
I hope you get well! I know how hard this can be. Hang in there! You can heal! You can do it! ❤
@@andybreedloveI remind myself (in the times of symptom flares especially) that this is just the nervous system over reacting, & that I know I am safe, it’s just the nervous system. Also, I remind myself that even in my hardest episodes I didn’t die…like that’s evidence my brain can use that nope, we are safe!
Good comparison! But CFS is 1000000 times heavier than the heaviest physical workout. No joking.
You're absolutely right! 💪👍
Yep totally
And about the crash you have to be bedbound
I never been bed bound but house bound but I can assure you that it was a crash. I believe that when feeling very very horrible it’s a crash
Could introducing new supplements possibly be stimulating to the nervous system - thus - causing flare-ups?
I made a video about this. Check this out: th-cam.com/video/aLiO9T0x3sc/w-d-xo.html&list=PUh610cYKG5yfXlTT8Se97Vg.
I hope this helps! 😊
Going to the bathroom 3 times a day already makes me flare up, plus eating 2 times. I wish i could do a 100 meter walk. Should I now wait 4 months or longer until I no longer get flare ups from the bath and eating? That could take forever because it's already so exhausting for my body, it's a huge stimulus. They don't just get smaller like that. It's just too physically demanding. I could do without food, I hardly eat anything anyway. But it just ends up being much worse. So how can I expand if these mini tasks a day are enough?
So to stay with the muscle analogy, I can't set a stimulus and then "take a break" for 3 days, because I have to set the stimulus again tomorrow, because I HAVE to eat and go to the bathroom again. So I work myself down like in sport and that's exactly how it feels.
Have a look at these videos to get a better understanding on how you can increase your activities:
th-cam.com/video/I6HE8WtI2Z4/w-d-xo.html&pp=iAQB
@@cfsrecovery hey miguel, i know all this Videos allready, but they do not answer my question. Can you not answer my question? That would be so awesome ❤️
How come some days I can’t move for the 50+ symptoms and daylight hurts.. and other days I can drive to the shop.. both experiences cause AP - a highly sensitised day causes the next to be awful, and a day (still sensitised) but more active also causes AP..?
I have rested months and not found a reduced symptom state / baseline… and I’ve had periods where I’ve been more active for days in a row and end up in the same position… I can’t find a baseline or predictable place of reduced symptoms, it’s like shifting sands 🤪
Same, some days I can do lots of things no crash, then another day one little thing and im sick for months, I can't work out what causes it
Please check this link. I hope it helps!
th-cam.com/video/Dhjm6_lknNM/w-d-xo.htmlsi=DpHOrBEhLGiLACh6
After 3 years of bed rest, when I walk just get up my muscles are extremely painful any suggestions thank you 😊 Annmarie
Please watch this and hopefully it helps:
th-cam.com/video/Y9-OXD0JZEE/w-d-xo.htmlsi=oXUM7mzj-1e27Du1
Dont understand ..if I increase walking for example..can walk 10 without break and walk every day and tomorow dont have flare up and starte 12 ,13 min than get flare up..and tomorow cant go to job becouse of pain..ok ..than 2,3 day rested..not work and when pain decrease what I shoul do..again 12 min and again increase pain and cant work..what is my baseline than..seem to me like increase activity thane feel worst..then rest ..then again repeate activities which again couse.flare ups..so cant understand how to stabilise flare ups..how to work and dont lose job if you always flare ups..and how to establish baseline..confused..
@user-hs8mt9em8f,
It sounds like 10 is your baseline. Increase by 10 or 20 seconds to half a minute for 3 days. If you have no flare-ups increase by 10, 20 or 30 second increments depending on how well you feel that day.
Think: I am getting stronger and healthier. I am building up my stamina and strength. 💪 Listen to positive meditations, there are plenty on YT! 😊
PS I am also doing something similar to build up without crashing.... 🤞🏻
Please check this link. I hope it helps! th-cam.com/video/poowTjEEfHc/w-d-xo.htmlsi=lKCt9_JVmXU0Yzvf
Just can’t afford your CB program. Why is it so expensive?
Don’t buy it just watch the free TH-cam videos
@@cfsrecovery I do watch the free videos. Is there a set of these videos you could recommend? Trying to get well.
@@zeusthegreek4664 I would go through the different playlist we have, especially the principles of recovery playlist
@@zeusthegreek4664 I mean the must watch videos th-cam.com/play/PLJT8-UVmfsmJdvlXWeGaR1NQKEbK5qCDt.html&si=hZTlm3bCejOl6UWN
Is there a reason you weren’t able to say the word ‘Covid’ in this video?
Yup because I don't want to get this account taken down, they were cracking down on anybody who mentioned it!
@@cfsrecovery wow, that's awful that they're doing that - absolute madness!
It got too warm ha
😅😂
Some men with true CFS cannot build muscle. You can lift all you want...but if you have 24x7x365 muscle weakness, then the normal rebuild process is broken! This video will not help that subset. We all remember what real muscle breakdown-rebuild is supposed to feel like. It seems the creator doesn't understand true CFS in men when muscle weakness never ever goes away.
Absolutely false, not true in any regard. Don’t spread false information on here
@@cfsrecovery Let other men chime in. There is a large subset of us that cannot build muscle and have 24x7x365 muscle weakness that never wavers. Who else has this? Chime in and educate the masses. Thanks
@@cfsrecovery Changed to "some men"
I’m sorry that you’re not understanding his meaning…maybe watch some of his other videos on the more basic principles of brain retraining & how that leads to eventually being able to build ourselves back up. I wish you well.❤