Why patients cannot work living with myasthenia Gravis

Patients with myasthenia gravis (MG) may find it difficult or impossible to work due to several factors:
1. **Fluctuating Symptoms**: The unpredictable nature of muscle weakness and fatigue can make it hard to maintain a consistent work schedule.
2. **Physical Limitations**: Weakness in the arms, legs, neck, and respiratory muscles can hinder the ability to perform job-related tasks, especially in physically demanding roles.
3. **Cognitive Effects**: Fatigue can affect concentration, memory, and overall cognitive function, making it challenging to stay focused on tasks.
4. **Medical Appointments**: Regular doctor visits and treatments can take time, leading to absences from work.
5. **Exacerbations**: Periods of increased weakness (exacerbations) may require extended time off for recovery.
6. **Stress and Fatigue**: The demands of a job can exacerbate symptoms, leading to increased fatigue and stress, which can further impact health.
7. **Support Needs**: Some individuals may require accommodations or assistance that are not feasible in all work environments.
These factors can lead many patients to reconsider their employment options or seek disability support.

[@imgm94]

I work. I found something that accommodates my myasthenia gravis. It's not easy, but it's possible. Of course, before I was stable, I could not work. I was too sick. Everyone is different. We know our bodies and do what we can 😊

[@jenniferdailey2540]

@@imgm94 I absolutely agree about everyone being different. I have been on disability for sometime now since being diagnosed with myasthenia Gravis . I used to be a CNA and enjoyed working and actually miss the work I used to do. Unfortunately I suppose it’s impossible for me to go back working as a nursing assistant. It’s been rough throughout these 9 years because I have generalized MG and my symptoms recently returned last December after being in remission for 4 years. I desperately want to do something part time but I’m afraid it will trigger my symptoms.