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The Dailey Advocate
United States
เข้าร่วมเมื่อ 12 พ.ย. 2017
The Dailey Advocate is a channel where individuals living with Myasthenia Gravis can become educated about a rare disease that is unknown in the public eye and help spread awareness about MG.
Why Do Patients with Myasthenia Gravis Experience Choking
Patients with myasthenia gravis (MG) may experience choking or difficulty swallowing (dysphagia) due to weakness in the muscles that control swallowing. MG is an autoimmune disorder that affects the communication between nerves and muscles, particularly at the neuromuscular junction, where nerve signals trigger muscle contractions.
Here's why patients with MG may choke:
1. **Oropharyngeal Muscle Weakness**: MG often affects the muscles involved in the initial stages of swallowing, including the tongue, soft palate, and pharyngeal muscles. Weakness in these muscles can impair the ability to control food and liquids in the mouth, making it difficult to form a cohesive bolus (a mass of chewed food) and push it toward the throat.
2. **Delayed Swallowing Reflex**: The weakness of the pharyngeal muscles can delay the initiation of the swallowing reflex, increasing the risk of food or liquid entering the airway (aspiration) instead of being directed down the esophagus.
3. **Incomplete Airway Protection**: Normally, during swallowing, the larynx (voice box) elevates, and the epiglottis covers the airway to prevent food or liquid from entering the lungs. In MG, the weakness of the muscles that perform these actions can result in incomplete closure, increasing the risk of aspiration and choking.
4. **Fatigue**: Swallowing involves a coordinated and timely sequence of muscle contractions. In MG, muscle weakness and fatigue can worsen with repeated use, leading to progressive difficulty with eating and drinking during a meal. This can increase the risk of choking, especially if the patient becomes fatigued during a meal.
5. **Bulbar Symptoms**: When MG affects the muscles involved in speech and swallowing (referred to as bulbar muscles), patients may experience dysarthria (difficulty speaking) and dysphagia, which contribute to choking hazards.
### Management and Prevention
1. **Dietary Modifications**: Patients may need to switch to softer foods or thickened liquids to reduce the risk of choking. This helps to ensure that the food or liquid moves more slowly and can be better controlled during swallowing.
2. **Swallowing Therapy**: Speech-language pathologists can work with patients to strengthen swallowing muscles and teach techniques to reduce the risk of aspiration, such as chin-tuck swallowing or alternating between sips of liquid and bites of food.
3. **Medication Management**: Adjusting MG medications, such as anticholinesterase agents (like pyridostigmine), can help improve muscle strength and reduce symptoms. It's important to take medications at appropriate times, especially before meals, to maximize muscle function during eating.
4. **Feeding Strategies**: Patients may be advised to eat smaller, more frequent meals to avoid fatigue and use specific postures or swallowing maneuvers to facilitate safer swallowing.
5. **Monitoring and Support**: Regular monitoring by healthcare professionals, including neurologists and speech-language pathologists, can help manage symptoms and adjust treatments as needed.
6. **Emergency Preparedness**: Caregivers and family members should be educated on recognizing signs of choking and how to respond, including performing the Heimlich maneuver if necessary.
Effective management of swallowing difficulties in MG is crucial to prevent choking, aspiration pneumonia, and other complications. It often involves a comprehensive approach tailored to the individual's needs and the severity of their symptoms.
#lifewithmg #myastheniagravis #mgstrong #mgwarrior #myastheniagravisawareness #myastheniagraviscommunity #myastheniagravisfight #myastheniagravisfighter #myastheniagravishope #myastheniagravisjourney
Here's why patients with MG may choke:
1. **Oropharyngeal Muscle Weakness**: MG often affects the muscles involved in the initial stages of swallowing, including the tongue, soft palate, and pharyngeal muscles. Weakness in these muscles can impair the ability to control food and liquids in the mouth, making it difficult to form a cohesive bolus (a mass of chewed food) and push it toward the throat.
2. **Delayed Swallowing Reflex**: The weakness of the pharyngeal muscles can delay the initiation of the swallowing reflex, increasing the risk of food or liquid entering the airway (aspiration) instead of being directed down the esophagus.
3. **Incomplete Airway Protection**: Normally, during swallowing, the larynx (voice box) elevates, and the epiglottis covers the airway to prevent food or liquid from entering the lungs. In MG, the weakness of the muscles that perform these actions can result in incomplete closure, increasing the risk of aspiration and choking.
4. **Fatigue**: Swallowing involves a coordinated and timely sequence of muscle contractions. In MG, muscle weakness and fatigue can worsen with repeated use, leading to progressive difficulty with eating and drinking during a meal. This can increase the risk of choking, especially if the patient becomes fatigued during a meal.
5. **Bulbar Symptoms**: When MG affects the muscles involved in speech and swallowing (referred to as bulbar muscles), patients may experience dysarthria (difficulty speaking) and dysphagia, which contribute to choking hazards.
### Management and Prevention
1. **Dietary Modifications**: Patients may need to switch to softer foods or thickened liquids to reduce the risk of choking. This helps to ensure that the food or liquid moves more slowly and can be better controlled during swallowing.
2. **Swallowing Therapy**: Speech-language pathologists can work with patients to strengthen swallowing muscles and teach techniques to reduce the risk of aspiration, such as chin-tuck swallowing or alternating between sips of liquid and bites of food.
3. **Medication Management**: Adjusting MG medications, such as anticholinesterase agents (like pyridostigmine), can help improve muscle strength and reduce symptoms. It's important to take medications at appropriate times, especially before meals, to maximize muscle function during eating.
4. **Feeding Strategies**: Patients may be advised to eat smaller, more frequent meals to avoid fatigue and use specific postures or swallowing maneuvers to facilitate safer swallowing.
5. **Monitoring and Support**: Regular monitoring by healthcare professionals, including neurologists and speech-language pathologists, can help manage symptoms and adjust treatments as needed.
6. **Emergency Preparedness**: Caregivers and family members should be educated on recognizing signs of choking and how to respond, including performing the Heimlich maneuver if necessary.
Effective management of swallowing difficulties in MG is crucial to prevent choking, aspiration pneumonia, and other complications. It often involves a comprehensive approach tailored to the individual's needs and the severity of their symptoms.
#lifewithmg #myastheniagravis #mgstrong #mgwarrior #myastheniagravisawareness #myastheniagraviscommunity #myastheniagravisfight #myastheniagravisfighter #myastheniagravishope #myastheniagravisjourney
มุมมอง: 62
วีดีโอ
How Does Myasthenia Gravis Affects Your Lungs
มุมมอง 4714 ชั่วโมงที่ผ่านมา
Myasthenia Gravis (MG) primarily affects the muscles by causing weakness, and this includes the muscles involved in breathing. The main ways MG affects the lungs and respiratory system are:Respiratory Muscle Weakness: MG can lead to weakness in the muscles that are crucial for breathing, such as the diaphragm (the main muscle for breathing), the intercostal muscles (which help expand the chest)...
Cervical Spine Pain and Myasthenia Gravis
มุมมอง 4114 ชั่วโมงที่ผ่านมา
Cervical spine pain can be a challenging issue for individuals with myasthenia gravis (MG). While MG primarily affects voluntary muscles, leading to weakness and fatigue, it can indirectly contribute to musculoskeletal pain, including cervical spine pain, for several reasons: 1. Muscle Weakness : The muscle weakness associated with MG can lead to poor posture, compensatory movements, and muscle...
Why Does Everyone with MG have Their Thymus Removed? Is it Elective?
มุมมอง 15วันที่ผ่านมา
#MyastheniaGravis #MGStrong #MGWarrior #MyastheniaGravisAwareness #MyastheniaGravisFighter #MyastheniaGravisSupport #MyastheniaGravisCommunity #LifeWithMG #MyastheniaGravisSucks #MyastheniaGravisLife #MyastheniaGravisStories #MyastheniaGravisNeverGiveUp #MyastheniaGravisFight #MyastheniaGravisHope #MyastheniaGravisJourney
Thyrotoxicosis is a danger for myasthenia Gravis
มุมมอง 86วันที่ผ่านมา
thyrotoxicosis can pose a significant danger for individuals with myasthenia gravis (MG). The interaction between these two conditions can exacerbate symptoms and complicate management. Here are the specific ways in which thyrotoxicosis can impact myasthenia gravis: 1. Increased Muscle Weakness : Thyrotoxicosis can exacerbate muscle weakness, a primary symptom of myasthenia gravis. This can lea...
Restrictive Lung Disease and Myasthenia Gravis
มุมมอง 44วันที่ผ่านมา
Myasthenia gravis (MG) can lead to restrictive lung disease, a condition where the lungs have difficulty expanding fully. MG primarily affects the skeletal muscles, including those involved in breathing.Here’s how MG can contribute to restrictive lung disease:Respiratory Muscle Weakness: MG can weaken the diaphragm and intercostal muscles, which are crucial for breathing. This weakness makes it...
Parenting while Managing Myasthenia Gravis
มุมมอง 62วันที่ผ่านมา
Parenting while managing Myasthenia Gravis (MG) can be challenging, but there are ways to make it more manageable. Here are some tips:Prioritize and Delegate: Focus on the most important tasks and delegate others when possible. Enlist the help of family members, friends, or even hire help if feasible.Establish Routines: Create predictable daily routines for both you and your children. This can ...
Donating Plasma
มุมมอง 5514 วันที่ผ่านมา
#MyastheniaGravis #MGStrong #MGWarrior #MyastheniaGravisAwareness #MyastheniaGravisFighter #MyastheniaGravisSupport #MyastheniaGravisCommunity #LifeWithMG #MyastheniaGravisSucks #MyastheniaGravisLife #MyastheniaGravisStories #MyastheniaGravisNeverGiveUp #MyastheniaGravisFight #MyastheniaGravisHope #MyastheniaGravisJourney #donateplasma #savesthelivesofotherds
Finding A Cure for Myasthenia Gravis
มุมมอง 9714 วันที่ผ่านมา
Finding a cure for myasthenia gravis (MG) involves ongoing research across various fields, including immunology, neurology, and genetics. While there is currently no cure, significant progress is being made in understanding the disease mechanisms and developing more effective treatments. Here are some key areas of research and potential future directions: Current Treatments 1. Symptomatic Treat...
Why is Myasthenia Gravis called the Snowflake Disease
มุมมอง 4514 วันที่ผ่านมา
Myasthenia gravis (MG) is called the "snowflake disease" due to its highly individualized nature. Here are some key points that illustrate this concept: 1. Symptom Variation : - Types of Symptoms : MG primarily affects voluntary muscles, leading to muscle weakness and fatigue. However, the specific muscles involved and the severity can differ greatly. Some may have ocular symptoms (ptosis, doub...
Don't give up just because you have Myasthenia Gravis
มุมมอง 4121 วันที่ผ่านมา
Living with Myasthenia Gravis (MG) can be challenging, but many people with the condition lead full, active lives with proper management and support. Here are some motivational tips and strategies to help cope with MG: Stay Informed - Educate Yourself : Learn as much as you can about MG, including treatment options, lifestyle adjustments, and new research. Being informed empowers you to make th...
Why patients cannot work living with myasthenia Gravis
มุมมอง 15721 วันที่ผ่านมา
Patients with myasthenia gravis (MG) may find it difficult or impossible to work due to several factors: 1. Fluctuating Symptoms : The unpredictable nature of muscle weakness and fatigue can make it hard to maintain a consistent work schedule. 2. Physical Limitations : Weakness in the arms, legs, neck, and respiratory muscles can hinder the ability to perform job-related tasks, especially in ph...
My Weight Transformation With Myasthenia Gravis
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My Weight Transformation With Myasthenia Gravis
The Latest on Myasthenia Gravis Research
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As of the latest updates, ongoing research into myasthenia gravis (MG) has been focused on several key areas: 1. Immunotherapies : There continues to be exploration into new immunotherapeutic approaches, including monoclonal antibodies targeting specific immune pathways involved in MG, such as complement inhibitors (e.g., eculizumab, ravulizumab) and B-cell depleting agents (e.g., rituximab). 2...
Heat Can Exacerbate Myasthenia Gravis Symptoms
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Spreading Awareness about Myasthenia Gravis
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How Myasthenia Gravis Affects Pregnancy
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How Myasthenia Gravis Affects Pregnancy
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Keeping Track of your Myasthenia Gravis Symptoms
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Actual Video About One Step Forward, Two Steps Back Living with MG
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Axial Of SpondyloArthritis with Myasthenia Gravis
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Axial Of SpondyloArthritis with Myasthenia Gravis
Other Combinations of Autoimmune Diseases that go with Myasthenia Gravis
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Other Combinations of Autoimmune Diseases that go with Myasthenia Gravis
Accommodations In The Workplace for Individuals With MG
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Accommodations In The Workplace for Individuals With MG
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Family Friendly Explanations About Myasthenia Gravis
I am suffering from this
Thanks 🎉
@@concernedcitizen6326 you’re most welcome 🙏🏻
I am MG patient
@@abdulawalkhokon3098 How long have you been battling MG?
Keep the content going 👏🏾
@@KaNishaTatyana thank you I will do💕
You're welcome ❤️ @@jenniferdailey2540
Please tell me the best websites to get information.
@@trishknight6983 hi, I get most of my information from the raredisease.net and the myasthenia Gravis foundation website otherwise there’s a variety of websites I search and piece information together because honestly there’s not much information online about MG hope this helps.
@@jenniferdailey2540 Yes, it is helpful. I have similar symptoms but haven't been diagnosed. They did draw blood but no results yet. I'm frustrated that it takes so long to figure out what is wrong with me, but I've read that delays are common. All the best to you & I hope treatment is helping you!
True Heat makes me crazy
Definitely agree I try to stay out the heat and if I’m out I make sure to be well hydrated and I wear a sun hat to shade me from the heat. Thanks for your reply ❤️
How you lose weight
Thanks for your reply. I’m a diabetic and I had to learn how to be a diabetic I had changed my diet by eating smaller portions, and I exercised for 30 minutes every day while having a waist trainer on and I lost 30 pounds I was determined to get that weight off me because I had never been overweight before and it was depressing to see myself like that. It was the side effects of prednisone that caused the weight gain.
I work. I found something that accommodates my myasthenia gravis. It's not easy, but it's possible. Of course, before I was stable, I could not work. I was too sick. Everyone is different. We know our bodies and do what we can 😊
@@imgm94 I absolutely agree about everyone being different. I have been on disability for sometime now since being diagnosed with myasthenia Gravis . I used to be a CNA and enjoyed working and actually miss the work I used to do. Unfortunately I suppose it’s impossible for me to go back working as a nursing assistant. It’s been rough throughout these 9 years because I have generalized MG and my symptoms recently returned last December after being in remission for 4 years. I desperately want to do something part time but I’m afraid it will trigger my symptoms.
What an amazing transformation you did good and you look good 👏🏾👏🏾
Thank you so much 🤗
Thank you so much ❤
HTTPS://the-dailey-advocate.printify.me/products
Yes, flexibility and balance are going to be MG best friend because that's what is needed, so choose the workplace wisely. No strict boss, and strict schedules. Great information!
Thank you it’s much appreciated
You're welcome @@jenniferdailey2540
Thank you for creating this video, my Wife doesnt understand how painful and ashamed I am to not make a simple bottle of milk for our 18 month old Son. She believes that I don't want to look after our Son. I'm just ashamed and feel like dying.
You're welcome. Don't feel ashamed you're just trying to be cautious hopefully you two can watch my videos together so that she will see how MG affects individuals living with this debilitating condition.
This is interesting & good job👏🏾 God bless you for being the good advocate that you are. ❤
Thank you Ka’Nisha I appreciate that. You keep up the good work as well
I am so glad to have found you. Thank you for describing me.
You’re so very welcome please continue to watch for more educational videos and thank you for following my journey. Please tell others you may know that have MG.
I love this 😍 👏🏾
Thank you 😊
Great Job 👏🏾 Keep it going !
Thank you so much! I most definitely will.
Please help me I have mg
Hi, I can provide you as much information as I can there is a lot more of these educational videos on here to learn about MG. You can ask me anything about MG and if I can’t answer it I will research the information and will get back to you with an answer. I am also on TikTok, Instagram(@thedebilitatinggroup), and Facebook where you can access all my videos about MG.
Good Presentation 👏🏾
Thank you my girl💕
Do you have any clue about the mechanism involved in execution of the symptoms? I have general body MG. I understand that the acetylcholine receptors are blocked by antibodies And I understand that the whole process is in microseconds. What I don't understand is how stress or physical activity leads to eye lid droop or flareups. Which mechanism goes And does this. Is it the defence mechanism that has already identified those points and goes And attacks or maybe there is chemical reaction going on in those parts of the body that attract antibodies more.
Unfortunately, I don’t but if you give me sometime to do some research I will most definitely find out.
I didn't know
I’m just learning all this as well. Trying to help others as well as myself to become better educated about MG. Because the more we know about this debilitating disease the more we can manage it and be able to advocate for ourselves.
@@jenniferdailey2540 you're very right. If we don't have our back, who will
Thanks so much for sharing
You’re most welcome
❤❤❤
💯%!
Hlo Mam plz tell me When will zilucoplan come to Pakistan 🥺 I need zilucoplan but its too expensive i think? Plz answer
When will it come to Pakistan plz tell me Mam 🥺
I was unaware about this new drug a fellow MGer had mentioned it to me and asked if I would do research on it and make a video about it. Unfortunately, I don’t have that information to share with you as you would have to do research to find more out about this drug. Sorry I could not be more helpful to you.
😔@@jenniferdailey2540
Its tooo expensive 🥺🥺🥺
Price plz Mam 🥺
Thanks for mentioning your eye twitching! I feel like no one ever mentions that and it is definitely one of the most annoying things.
Thank you for responding to my video it’s much appreciated. Yes it is hardly ever mentioned and very annoying.
Thank you, just started this today
You’re very welcome.