I just got out of the hospital yesterday. After a ton of test they told me I have moyamoya disease. I'm 39 years old I had 2 small strokes. I got a wife and 3 sons. It's a scary place to be in. God bless you.
Hi @joember9080 how are you feeling now? Are there any side effects of the operation? My sister lives in Oslo and she has got Moyamoya Disease, too. We are confused if we should operate or not.
Hi im 34 years old and i’ve been diagnosed with moya-moya for a year now..had multiple TIAs...I just need to know after the surgery how long is the treatment plan?
Hi...... there is no standard treatment plan I don't think, as each case is different. My son is deaf from birth and didn't learn he had moya-moya until he had a stroke when he was 43, of which I have written on this site. Look up William Coryn...... He had surgery in Nashville, Tn with Dr. Robert Mericle in 2013 and still suffers some side effects such as tinnitus and difficulty swallowing. He is also deaf from birth, not related to the moya-moya, and you can read more of him on this website. Good luck to you.........
I just got out of the hospital yesterday. After a ton of test they told me I have moyamoya disease. I'm 39 years old I had 2 small strokes. I got a wife and 3 sons. It's a scary place to be in. God bless you.
Dustin Smith prayers. For u and your family. My mother has Moya Moya. And is hard. She’s 49. And has diabetes
I have also Moyamoya disease 🦠 i have operation on October 2019 thanks yo Dr. Marcus in Norway 🇳🇴 in Rikkshospetalet Oslo. God is good 🙏🙏🙏
Hi @joember9080 how are you feeling now? Are there any side effects of the operation?
My sister lives in Oslo and she has got Moyamoya Disease, too. We are confused if we should operate or not.
Do you know anything about the moya moya center in Zurich
My sister just found out that she has this . she has had 2 strokes and she is 43 she lives in Texas and they're looking for a doc to treat her
Hi im 34 years old and i’ve been diagnosed with moya-moya for a year now..had multiple TIAs...I just need to know after the surgery how long is the treatment plan?
Hi...... there is no standard treatment plan I don't think, as each case is different. My son is deaf from birth and didn't learn he had moya-moya until he had a stroke when he was 43, of which I have written on this site. Look up William Coryn...... He had surgery in Nashville, Tn with Dr. Robert Mericle in 2013 and still suffers some side effects such as tinnitus and difficulty swallowing. He is also deaf from birth, not related to the moya-moya, and you can read more of him on this website. Good luck to you.........
Does anyone know about the moya moya center in Zurich
Hello..where did you have the surgery
I just got out the hospital where I found out I have moyamoya disease it's scary
Sandra Harris my dad has it 😔 and hes single and its gonna change my life cause im only 10 im really scared and sad
@@timmyhammer2602 dude i got it when i was 4 YEARS OLD
Iam moyamoya