Cash Lee's Moyamoya Story

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  • เผยแพร่เมื่อ 11 มิ.ย. 2019
  • NBC Live interviews the parents of Cash Lee, a little boy that was initially misdiagnosed and received months of unnecessary medical treatment until he was seen by Stanford neurosurgeon and director of the Stanford Moyamoya Center, Dr. Gary Steinberg. Using virtual reality Dr. Steinberg was able to correctly diagnose Lee and then performed brain surgeries to treat moyamoya.

ความคิดเห็น • 55

  • @maree5201
    @maree5201 2 ปีที่แล้ว +9

    Great family, amazing story. So inspiring. I'm also a Moyamoya survivor from Japan. Thanks again for sharing this.

  • @ovrtyme1
    @ovrtyme1 19 วันที่ผ่านมา

    He’s 3 yrs old and speaks like he’s 21. Very intelligent child. So glad his mother and father went with their guts and fought for their son. Too many times I’ve sen parent Shiet to work the doctors diagnoses even when they themselves had doubts. We parents need to be our children’s advocates and protect them to the best of our abilities.

  • @quiadaturner6914
    @quiadaturner6914 3 หลายเดือนก่อน

    How inspiring. I’m a single mother and I just found out that my 5 month old daughter has moyamoya. I don’t know where to start. This was very inspiring.

  • @tania_siebzehn
    @tania_siebzehn 4 ปีที่แล้ว +9

    I really like his role in Good Doctor

  • @kristithepamperedchefgal931
    @kristithepamperedchefgal931 4 ปีที่แล้ว +30

    Dr. Steinberg has saved many lives, mine included 6 years ago, after I was told hospice was my only choice. Unfortunately Moyamoya is a progressive disease and surgery only slows the progression down.

    • @allisonmintz4369
      @allisonmintz4369 ปีที่แล้ว +1

      He saved my life too. How can we thank him? I think it is impossible.

  • @paulozhan
    @paulozhan 2 ปีที่แล้ว +3

    California's Jennifer Lee also had Moyamoya, that's how I heard of the disease. God bless this family.

  • @bluehoodie91
    @bluehoodie91 4 ปีที่แล้ว +16

    GOD Bless this family

  • @musicnet200v
    @musicnet200v 5 ปีที่แล้ว +10

    Bless this family

  • @andysummer9790
    @andysummer9790 4 ปีที่แล้ว +6

    Thank god it's a miracle.

  • @SkateNana
    @SkateNana 3 ปีที่แล้ว +1

    beautiful little boy HAPA kids are always BEAUTIFUL!

  • @llouvakates
    @llouvakates 2 ปีที่แล้ว +3

    I swear they gotta show a story about a moyamoya patient on the good doctor. I had my moyamoya surgery 2 years ago. It took 16 years for every doctor to find out I had moyamoya! Thanks to the modern day medicine. Dr. Steinberg helped so many people! Thank God for Dr. Steinberg

    • @notyaboymatty5907
      @notyaboymatty5907 2 ปีที่แล้ว

      My dad has moya moya just been diagnosed an he's in his late 40s is this normal because I'm reading that it mainly affects kids it also has taken them over 2 years to dignose to the point my dad had already had 3 strokes and half his body no longer works somthing I'm kinda really concerned and worried about any info or help would be greatly appreciated

    • @TTPotterUltraPower
      @TTPotterUltraPower ปีที่แล้ว +1

      They just did, and Park was the lead surgeon for it! Plus the storyline was very much inspired by this documentary

  • @kisskisskate
    @kisskisskate 2 ปีที่แล้ว

    Happy birthday from ex.east! So sweet family😊

  • @thebeastgamer8256
    @thebeastgamer8256 หลายเดือนก่อน

    God bless this family as always and happy belated birthday Cash 🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽 🥳🥳🥳🎉🎉🎉

  • @MzDreaNichole38
    @MzDreaNichole38 ปีที่แล้ว +1

    Wow I’ve just been recently diagnosed in 12/2022 after repeat mri scans Ct and angiograms and the medications don’t really help my headaches are horrible along with other symptoms I deal with on a daily basis I’m on medical leave and so far have not been able to get surgery it’s been very stressful and painful , idk really next steps from here as I’m working with my care team 🙏🏾❤️ I’m learning so much more about this myself and they recently did genetic testing as well so I’m hoping and praying through this and god bless him ❤️

  • @LissetteLissie
    @LissetteLissie 3 ปีที่แล้ว +4

    Wow. I'm so happy he's ok. God bless the family, the doctor and all the healthcare workers and Cash... So happy he's ok!!!!🙏🙏🙏🙏🙏

    • @willyunlee8508
      @willyunlee8508 3 ปีที่แล้ว

      Hey there ..! Thanks for support and love so far without you my super fans I wouldn’t have been here ...!!

  • @rashidulislam8921
    @rashidulislam8921 5 หลายเดือนก่อน

    Happy Birthday cash🎉🎉🎉🎉

  • @melissagargus2564
    @melissagargus2564 ปีที่แล้ว +2

    Our daughter passed away at 14 exactly one year ago. No one believed she was having strokes. 45 minutes after surgery she had a major stroke and passed away. 02/24/2022

    • @cashflownpv
      @cashflownpv 2 หลายเดือนก่อน

      I'm so very, very sorry for your loss.

  • @joember9080
    @joember9080 3 ปีที่แล้ว +6

    I have also moyamoya illness i have operations here in Norway 🇳🇴 on October 2019

    • @joember9080
      @joember9080 3 ปีที่แล้ว +1

      Thanks to Dr. Marcus he is Norwagian Doctor

    • @parthoroy6794
      @parthoroy6794 2 ปีที่แล้ว

      How are you now?
      I have also Moyamoya
      I from India

  • @DashtinGirasol
    @DashtinGirasol 3 ปีที่แล้ว +3

    So if you have been misdiagnosed does those doctor or people liable?

  • @eliftokgoz313
    @eliftokgoz313 8 หลายเดือนก่อน

    Hello..Do u know anything about the moya moya center in Zurich?ıt is for children.

  • @maryamtaylor8824
    @maryamtaylor8824 3 ปีที่แล้ว +1

    Hi, my son was diagnosed with Moyamoya but after all tests they refuse to do surgery for him. Would we be able to get his file reviewed from your hospital? We are from Melbourne Australia and would like a team that actually understands the disease and is experienced to review his file. Thanks

    • @michaelching8485
      @michaelching8485 3 ปีที่แล้ว

      You can take your child to hua shan hospital in Shanghai to find Dr. Xu Bin. He's the most experienced moyamoya disease surgeon in the world

    • @notyaboymatty5907
      @notyaboymatty5907 2 ปีที่แล้ว

      My father also has moya moya and they want to send him to Sydney for surgery but I'm quite scared for that fact because apparently the doctor in Sydney is the only one in Australia who can do the surgery we live in QLD it has taken them over 2 years to diagnose and he's now had 3 to 4 strokes they don't 100% know for sure

    • @eliftokgoz313
      @eliftokgoz313 8 หลายเดือนก่อน

      Why didn t they do the surgery..why did they refuse

  • @rashidulislam8921
    @rashidulislam8921 5 หลายเดือนก่อน

    My baby 3 years old.. Now attack moya moya syndrome.. 😢😢😢 plz help me😢😢😢😢😢😢

  • @jcreed09
    @jcreed09 3 ปีที่แล้ว +3

    Thank God, the Yun Lee's stuck to their guns. Can't imagine how that poor kid went through all that chemo and pills- was MISDIAGNOSED! I'd be suing the shit out of those Docs.

    • @willyunlee8508
      @willyunlee8508 3 ปีที่แล้ว +1

      Hey there ..! Thanks for support and love so far without you my super fans I wouldn’t have been here ...!!

  • @anthonylockridge3587
    @anthonylockridge3587 3 ปีที่แล้ว +3

    I had a stroke because I didn't have the surgery it's a long road to recovery and I can't use my left hand

    • @willyunlee8508
      @willyunlee8508 3 ปีที่แล้ว +1

      Hey there ..! Thanks for the support and love so far without you my super fans I wouldn’t have been here ...!!

  • @user-cu3lc5sr2m
    @user-cu3lc5sr2m 3 ปีที่แล้ว

    Salom yahshimisiz apiratsani natijasi yahshi boldimi

  • @fuma2980
    @fuma2980 2 ปีที่แล้ว

    wei shen

  • @manluispunay4681
    @manluispunay4681 4 ปีที่แล้ว

    Good baby cases

  • @anurruti
    @anurruti 3 ปีที่แล้ว +2

    how can a doctor diagnose vasculitis and then another doctor diagnoses diametrically different disease.
    If I had been the parent witnessing that unnecessary suffering of that child I would have gone ballistic on the first doctor.

    • @rubaiatsanjidhossain9855
      @rubaiatsanjidhossain9855 3 ปีที่แล้ว

      Doctors are human, human make mistakes. As it is a rare disease it can be missed. Although team work minimize the risk of misdiagnosis.

    • @anurruti
      @anurruti 3 ปีที่แล้ว

      @@rubaiatsanjidhossain9855 stop brownnosing doctors. They are to be held accountable like any other profession.

    • @rubaiatsanjidhossain9855
      @rubaiatsanjidhossain9855 3 ปีที่แล้ว

      @@anurruti Ofcourse, his work should be accounted by the authority as per rule but that shouldn't mean he should be beheaded or shooted. Where the baby was treated is a first world country.

  • @rssokhal5852
    @rssokhal5852 3 ปีที่แล้ว

    Can yu talk to me

    • @willyunlee8508
      @willyunlee8508 3 ปีที่แล้ว

      Hey there ..! Thanks for support and love so far without you my super fans I wouldn’t have been here ...!!

  • @piercenguyen9260
    @piercenguyen9260 ปีที่แล้ว

    Father from Sleeping Dogs.

  • @tslnation8959
    @tslnation8959 4 ปีที่แล้ว

    He might have conronaVARUS

  • @shayla6963
    @shayla6963 ปีที่แล้ว +2

    Omg. I watched him on The Good Doctor last night treating The Moyamoya disease . I said this episode seemed so personal to him 😭 now I see y🫶🏾❤️