We are now able to do consultations and treatment via Zoom in most cases without a trip to our clinic needed! To find out how to schedule a consultation visit powerhealthconsult.com
Have burning pain in my arms, legs & torso. For 25 yrs. Have had better days. Lately getting worse. Take 3 medications. Anxiety, Nerve pain & depression. Wish there was a doctor that really could help me. 😢🙏🏻
@@ursulabarajas3022 Even i do get a kind of buring pains Initially i got scared.. but some youtube chanel helped to know, the varrying pains in fibromyalgia
Thank you so much for finally explaining what this could possibly be. I’m crying watching this, because I’ve been a nurse for 25 years, and now being on disability my life, purpose, and quality of life are basically gone. I’ve never seen a patient be as dismissed, and struggled as hard as I have with any condition to just get help, and answers. This pain is absolutely horrific, and 100% real. I spent 25 years of my life trying to help people, and now when I need help, nobody is there (family, friends, husband, doctors) I’m totally alone, and I would trade the pain from my botched surgery that severed a major nerve, and caused pain for years I never thought was humanly possible to bare, for this condition in a heartbeat. I’ve tried everything, and now I am couch bound, unable to drive, cook, or even wash my hair by myself. I’m currently looking into the MAID program which is legal for my conditions now. (I have multiple qualifying conditions) which I never thought I would even consider, but I can’t live like this anymore. I’m heartbroken for everyone who suffers from this, and is treated the way we are. The way we are treated makes it a million times worse!
10 Years I've suffered with all those symptoms, had people call my lazy, crazy and what not, then my friends wife got diagnosed with fibromyalgia and the light bulbs went on. I have PTSD (I'm Ex Forces) I've gone from a healthy 12 stone guy who ran every day, did weights and ate healthy to an 18 stone slug, I only eat once a day because of my IBS playing up, my stomach bloats so bad it's painful and causes difficulty breathing. I suffer insomnia and yet I'm bone tired all the time,having no energy and I'm just sick and tired of being in pain. I've just made an appointment to see a Doctor, hope to God this helps. Thank you for this informative video.
I hope you get some relief. Keep looking for anything pertaining to fibro and talk to people who have dealt with it a long time to see how others manage. Everyone has some different stuff. I very sensitive to smells, chemicals and sometimes light.
Many get accused of doing Drugs. You'll be bed ridden then when you are able to get out of bed you try to do everything, cleaning, doing laundry, etc. Because you know you'll go back down. To many people don't understand and don't want to understand. Bi- Polar and chemical imbalance , Thyroid all have similar illness and symptoms. Including major Depression, Extremely exhausted, it gets so hard to walk you feel like you're dying. Feel like you're burning up with fever and your temperature is extremely low. ( 92- 94). When my BP was 70/ 40, don't tell me I'm fine. When my hair is falling out having bald spots, don't tell me I'm fine. I had Lyme disease when Drs tell you it's just dry skin, and you have Morgellions, nothing , not one prescription has helped. Don't believe it. ! Don't give up. My friend and I went to a Lyme center. I had 3 bacteria in me, Lyme was only one. My friend had had Lyme so long it affected her heart. Never give up. ! You know your own body! Trust it! If a doctor can't believe what I'm telling them, then they can't help me.
@@a.p.5429 I am too. About died before o found a Doctor that had a clue what was wrong with me at 38yrs . Didn't have half the vitamins and minerals in my body to be alive. 3 months in hospital. Was Bi- Polar, not sleeping, Chemical imbalance, depression, some triggered off from chemicals from being put to sleep for Surgeries. Florescent lights put me to sleep. Can't stay awake, zapped my energy, headaches, etc. LED lights work better. I'm allergic to so many foods, medications , stuff they use for fillers in medication. Couldn't eat eggs for 5 yrs. Gave me terrible stomach aches. After much research discovered it was what they were feeding the chickens. Everything needs to be cage free. Smells affect are a big deal also. Ammonia Zappes me of energy and puts to sleep. Bad smell bring on depression and good smells bring on feeling good. Mood swings are caused by smells, light, food. And the way one says something. One must learn to ask: how did you mean that? Or did I take it wrong? It's very hard to ask but to break the cycle and not go home depressed wondering , just ask. I wasn't getting enough serotonin toy brain, caused by damage to in life: maybe when I was a newborn, blood transfusion ( almost died) lack of oxygen. Being hit in the head to many times as a toddler and child, ( by parents) husband almost strangled me to death( 20). The important thing is found the problem and what to do. #1..Forget the past.Forget blame. #. You know the problem and understand it. #3. A real Chance at Life. # 4. Take care of yourself. Then you are able to help others. An "upper cervical chiropractor"can Help. Prayers work. Keep looking for a Dr. that takes you serious and believes what you tell him/her no matter how weird it may sound, If they don't believe you, they can't help you! Never give up. Takes a good smart doctor that understands about neurotransmitters. 4 main chemicals that are necessary for the BRAIN.. SOMETIMES the problem could be the Thyroid and glands near / connected to Thyroid is inflamed. I take two medicines for my thyroid. Maybe Lyme disease . Our Government makes it very hard for Drs to test you for Lyme. With all the same symptoms. And severe itchy skin. Can get lab test at lab center, you pay for the test, get results and take to the Dr.,. My friend and I went to a Lyme center about 4 hrs away from home. She had had Lyme so long it had affected her heart. Had to get a pacemaker. Her medicine bottle was $600.00. i had 3 bacteria in me. The prescriptions were like i was a dog on Parvo. Extremely sick , extremely weak for 3monthd. Lyme doesn't just come from tics.!! This usually comes with Morgellions ( rare skin conditions). Some Drs .believe in it, others don't..some will admit it's a Rare Skin Condition. Most will start out treating you for scabies. Then diagnose you with eczema, nothing helps, then they label you paranoid. There were many outbreaks the public wasn't suppose to be aware of , when Obama stopped many Lifesaving medications, especially for Seniors and Disabled on Medicare or Medicaid, especially in Nursing homes. Seniors couldn't get Dental help neither..Mountain people have used Sulfur+ Bag Balm+ ivermectin mixed on skin to get the skin better .. Wonder what COVID IS? WHEN IVERMECTIN KILLS COVID? Threw everything away. Had to. You can't scald it , you can't freeze it.Experienced it all. Don't GIVE UP! KEEP SEARCHING , SOMEONE OUT THERE KNOWS HOW TO HELP YOU.
I have had a constant companion for 28 years whose name is fibromyalgia. I wish that pain had colors so people could see just how much this perfectly normal looking persons pain is like everyday.
Yes! I get the but you look fine or you can walk or whatever others see but inside I am suffering in pure pain. I always say I wish these people with this kind of thoughts, attitudes could live one day in my body..... they would shut up I guarantee afterwards.
Narcissistic people in my life! My mother, father & husband. I completely get it now. The feeling of being stuck with these people and not being able to free myself from them. Huge part of trauma or stress. Had no idea my body is still dealing with this.
It's unfortunate that a lot of fibromyalgia patients don't have the money to pay for the proper care at no fault of their own. I really appreciate this valuable information. I can use it to better advocate for myself and do my part to get better!! Thank you for sharing!!!
I’ve suffered with Fibro, chronic Lymes, and arthritis for almost 20 years. Before the opioid ‘crisis’ raged, I was perfectly managed for years on a combination of long- and short-term opioids, never needing an increase in dose. I had a life: could work in the yard, enjoy my grandchildren, no more depression, no more blood pressure problems. I didn’t even have to take any medicine at all except the pain meds. Then the government and insurance companies got involved, they strong-armed the doctors, and screwed it all up completely. Now I suffer with intractable pain, take a box full of medicines for everything under the sun. I’ve always said “control the pain and everything else falls into place.” At least it worked for me. I’m almost 70 years old and now wasting away in bed 90% of the time. I can’t understand why my quality of life was denied me.
I'm so sorry & I literally feel your pain! THIS is my exact story right now. I'm in my late 30s & was on pain meds for close to 20 yrs. Now it's been taken away & replaced with 6 new meds... which NONE work. I have a young child and I'm unable to do SO MANY things I used to easily tough through. I dont understand. & my pain Dr is a real a**hole. It seems like he doesn't even believe in MY pain, MY lived experience in my body or even in Fibromyalgia.
I feel like crying watching this, they explain this so well and understand me better than any Dr I've ever been to, including my current rheumatologist. I just want to cry. I wish I could have an appt with these dr's.
Yes. Fibromyalgia patients helpless, the kind sufferings.i do close my door when in severe pains and cry a lot. After that i apply some rub vix.whete i hv maximum pains.later for some hrs its lesser..i feel
@@geethanair5803 Please try max 20 grams of carbs a day I suffered for years and it’s the diet that’s killing us Intractable pain from 2007-2018 (in pain clinics) Pain free since June 2018 Not 1 doctor told me to look at what I ate
I had fibro since 2009 and it’s a struggle everyday to live. Some days I feel like giving up and just don’t care anymore.just to get out of bed each day is a struggle. I didn’t know fibromyalgia could be this bad and wouldn’t wish this on anyone. Been to doctor after doctor but no help at all. Just take pain pills and try each day to make it through!
I am amazed to hear doctors speak about the childhood trauma as a trigger for Fibromyalgia. I got a revelation about this when I was diagnosed in 2013 and the doctor who diagnosed me looked at me like I was crazy when I told her this. Great job guys!!!
It started after my first baby. I had Hashimotos, I had frequently tonsillitis.. mostly when I worked as a nurse in emergency. I couldn't sleep and I had brain fog. Then I had pain all over, lost weight. I had a tough childhood. I couldn't cope with 3 children and just slept anything possible. There's more but I should write a book.. Nobody believe d me for many years. This is a great video.🇨🇦
Hello Doctors, I'm a 60 year old woman who was diagnosed with Fibromyalgia recently but have been suffering my entire life with ALL or most as the years have gone by, of these problems. I have just recently given up on life because no one would help me, but now after watching this video I am feeling more hopefully. I have always believed I had some sort of central nervous problem because I started to have severe panic attacks at the age of 21, I was diagnosed with IBS at 17 and emotional abandonment as a small child. Much counseling, thyroid problems, over weight, vitamin deficiencies, depression, and pain and the list goes on and on. I cried watching your video, I just want to say Thank you, Thank you so much!! Your information has helped me greatly!! Thank you for your efforts and thank you for believing us that are suffering.
Vicki Paczesny ...Vicky, my life mirrors yours almost. Grew up witnessing domestic violence, childrens homes, foster care, unloved, no trust, hurt, loss of my two children, died within 15 months of each other, then back surgery, and much more,symptoms started aged 39, no diagnosis till aged 52. Always felt that my illness was related to my stressful life. I am 62 now, looking after myself, eating well, feeling better. I hope you are doing well and coping with your Fibro. Sincerely, Frangi, England. xx
I feel the same way. Having a great support System is important. YOU ARE NOT ALONE! I used to feel like a hypochondriac when I would try and explain my symptoms. Try and find a Dr who actually believes in fibromyalgia.
Vickie I'm 60 too and have a classic case of cfc/fibro, I had also given up, mostly because I have been poked and prodded to death. Now after watching this video "I get it". I have a new GP whom has touch on this but I didn't get it, so I will start there.
Vicki Paczesny I'm a 43 year old man and I've been laying in bed for six years now and I no this is what I have now. But now I have to go and convince my county hospital doctor this. They said I had an anxiety disorder and they put me on Prozac I took it for 2 months got my body use to it. But I quit taking it because all I did was lay back in bed and just taking the medication. And I've never heard of anybody taking Prozac for fibormyalia so I new that Prozac was not the medication for me. I'm seeing a new doctor next month at my county hospital. Let's hope and pray this doctor say dam let's get you fixed up.
My doctors office tested 15 fibro patients for Lyme disease after one of the doctor's wives who had fibro was diagnosed with Lyme disease. Fourteen of them came back with positive Western blot tests. I was one of those tested then treated for Lyme. Three years later, I'm pain free, have my energy and my mind back and am living a normal life.
I’m in floods of tears watching this. I’m in the uk and NO DOCTOR I’ve seen believes in fibromyalgia. THANK YOU! for making this video! Its helped me understand my illness perfectly in the first 20 mins watching this than the 18yrs + of seeing numerous specialists. From the bottom of my heart THANK YOU 🙏 xx
My heart goes out to you Diane!! It is one illness that is difficult to find a support system. Our families and friends often don’t get how bad we feel which can be invalidating and lonely. I visit the MyFibro support group sometimes and I find it helpful. Gentle hugs. ❤️
I am sharing this with my doctor first thing next week. She would do anything to help me and is just as lost as I am on what to do next. My pain is so severe right now and the flare ups are weekly. My life has been abandonment after abandonment and I feel hopeless and truthfully am ready to quit life. I have been trying to explain my Borderline personality disorder to family for years but it’s lost on them and then to be diagnosed with fibromyalgia has just been overwhelmingly heartbreaking and lonely. I have a little girl to live for and this has given me an understanding that is filled with hope. I am so grateful
Fibromyalgia has controlled my life. People including the medical community don't understand what its like to deal with the many symptoms that this condition has. Living with fibromyalgia is a full time job that drains you.
Dr Martin's Story 1- 13:15 Overview 13:15 -14:26 Dr Martin's Experience 14:27 - 16:20 How a typical Fibro patient presents, usual symptoms and stress 16:21 - 29:36 Their Paradigm 29:37 -30:00 Role of Stress in fibromyalgia explained : 30:01 : 45:26 The Paradigms : 46:20 - 48:34 Explaining what fibromyalgia is 50:59
Hallelujah and praise the Lord for you two physicians! You are describing my life as a fibromyalgia sufferer. As a nurse I can understand the medical jargon, even though the disease process is quite complicated. I've had it at least 25 yrs, I am 54. This is the absolute best explanation I've ever seen. Thank you so much. I've recorded your names and will be following your studies on FMS so I can help myself.
Exercise? I used to exercise before invasive surgery. Now with fibromyalgia I feel like I was electrocuted or have a bad hangover everyday. Trying to exercise is like impossible.
I have all these illnesses. I was abused, and raped as a child and suffer from ptsd. My fibromyalgia is so bad today that I can’t stand the pain!!! I’m on no medications either. I don’t like the medications or side effects! So, much pain and I don’t want to be touched!!! 😩😭😢 People can’t SEE MY PAIN! I feel I’ve had it all my life! I’ve just worked through it, until it got so bad, that I couldn’t!
What you’re describing, thank you for doing that lol. I feel crazy explaining that to people. So glad I found this video. About to get on a virtual appointment with a doc and I’m nervous about describing all of this.
I cried watching this. For 20 years, I have had fibro. No help from doctors. I have been told my pain is fake, intimidated by doctors to shut up and stop complaining, or out right that I am a drug seeker. Only because I wanted help.
2 hours ago I almost didn't click the video because of the white coats and the clickbaity title. Now I realise this was the single most important video of my life. Thank you so much.
I'd kill to have a doctor listen to me instead of assume im making things up, ive been falling apart for years, YEARS! I have a vitamin D level of 3 and IBS with gallblatter removal, 2 csections and an issue with weight gain ive been up to 350 pounds when i was barely 120 as a teen. All i ever hear is you are too young for this, i am running out of strength and sanity. I need help :(
Amber AnnMarie you’re not alone, I’m 23 and had to get an iud because of Menorrhagia, i can’t experience southern summer sunlight for an hour without an emergency room vist and allot of vom bags, IBS, I average an emergency room visit once every one or two weeks (I have no health insurance so that really tells you something), I cannot keep weight on me (seriously guys stop complimenting the symptoms of my illness) 5’4” and 98lbs at 23 is not normal, I have to take a pretty moderate SSRI in order to get out of bed and handle direct sunlight (but it makes me puke and I don’t experience hunger on it so not helping the weight thing) and I lost a fiancé because he couldn’t help me anymore. The one thing in my life I wish I could get rid of is this very real pain. It’s ruined my life and then there’s the doctors that don’t believe you because they’re looking for a physical injury/malformation type cause and not a neurological cause
@@katerinachelmis568 hi this is my boyfriends account I have the same feelings I’m so sick I’m in Canada the sun everything makes me sick and the doctors say I’m too young for this much pain. Why would someone make this stuff up?
I'm 38 and have been suffering for years. Things keep getting worse, but no one can find anything, even when my joints are swelling and I can't use my hands or walk properly. Or have diarrhea for 2 weeks! TMI maybe..lol. It makes me feel like I'm absolutely crazy. I hope that you manage to get some relief :(
I'm with you. I'm doing intermediate fastingvand cut sugar to help with inflammation. I've bern scouring the yt for videos on diets for autoimmune disorders. Believe it or not the carnivore life may be my next go too.
Not to take anything away form you ladies, but being a man with it sucks. It's listed as a woman's medical issue so men are looked down upon. When I've said I have fibromyalgia, I've even had that response...."isn't that a woman's disease?" Going in and saying I'm in constant pain and being looked at as a drug seeker and treated as such just pisses me off. I am an Army Ranger I can deal with pain but this is soul consuming pain not a rucksack on my back and hot feet after 12 mile march. Sadly, I do want drugs now. I have had enough pain. I want it to go away. If I didn't know in my heart that taking my own life just transfers the pain to someone else to carry then I'd of checked out and been a member of the 22 a day. I refuse to let this define me but some days it wins. Then I fight back.
I use to be in the military with this condition as well and I'm sorry that this is happening to you. It's horrendous how little medical cares about those under their care. I will say not everyone there is like this and they deal with a lot, but there's so many more that just don't want to deal with us and act like we're just trying to get drugs. I don't like that fibro is considered a woman's illness and it does make it harder for males to get the help they need. It was hard enough getting help for myself, I can't imagine how difficult it was for you to just to get a diagnosis. It needs to be taken more seriously and it needs to be better recognized and an illness that can effect men as well as women. I hope you get proper treatment for it soon and I hope you get better.
I used to train rough horses and got knocked around on the daily, so I know how to take a lickin and keep on tickin, but you are right, this chronic all over all of the time coupled with crushing fatigue is a different matter. I use meds, but my best defense is to remind myself that these pain signals are not protecting an injury. There is a limit to the discipline of mind over matter, but you are no stranger to discipline. I can defy electro chemical signals, but the fatigue must be honored or I just get worse. I don’t know if that will help you, brother, but I’m glad you spoke up so that I could hear you today, a year after you let the world hear your perspective.
Sir, you could have not said it better! I did 21 years in the Marine Corps. I know that rucksack pain you speak of. But like you said, it went away after a couple days or so. This feels like your carrying a ruck sack that heavy all day. From head to toe. It frekin sucks! A year after I retired this came on. Within 2 years boom! This life sentence only we can understand.
Wow! From the inner ear issues, hashimotos, fatigue, chronic pain, childhood illnesses, these guys could be writing my story. I will continue to follow their program.
I wonder what the rates of PTSD and Fibromyalgia comorbidity is. It seems like fibro tends to be set off by trauma most of the time , and we then discuss the “fight or flight” which seems to be compromised. I’d be interested in seeing studies done !
I told my doctor ten years ago ( I have diagnosed fibro ) when I have no stress , which is basically never I feel fit enough to run a marathon. His eyes widened in disbelief. Fibro is mostly psychological .
I cannot thank you enough for sharing your symptoms and life with us. Your story is mine through and through. I feel as though I'm stuck in a Fibro vortex. Will be watching all of your videos for some much needed answers. Bless you both. Beverly
One has to wonder why the enormous rise in all of these auto immune disorders? I believe it’s in the environment and in our food. We are putting something in our mouths we shouldn’t, or need to be putting something in our mouths that we should. When they started messing with GMO’s in the 90’s and our wheat supply was changed is when a lot of these autoimmune disorders skyrocketed. I am currently dealing with bacterial infection in my colon and going to GI Dr in two days. I have White Matter Disease(diagnosed 6 months ago), MS, CFS, Fibro, multiple chemical sensitivities, Adrenal Fatigue, severe insomnia, Spinal Stenosis, DDD, Major Depression, no libido. I’m now in the last two years having intense night sweats. I can not regulate my body temperature. It’s terrible waking up all hours of the night soaking wet. I thought it was related to menopause and my hormones. Now I realize it may be in my nerve fibers as they are dying off as you explained. My excellent memory is now declining. I quit eating meat/dairy and it’s not helped. My body stays INFLAMED. The STRESS RESPONSE you speak of is EXACTLY what I believe as well. I have suffered the childhood trauma and I can recall what started this cascade of events. I had a horrific gallbladder surgery in March 1999. I had 25-30 stones the size of small olives. My gallbladder had adhered to my liver. I have never felt right or well since that terrible surgery. Do either of you believe that GLYPHOSATE could play a role in making our immune system attack itself as in the explosion of auto immune disorders since the introduction of GMO wheat and the use of RoundUP/Glyphosate? Im an RN and practiced for 17 years in a high risk unit on night shift before receiving my disability in 8 months in 2009. Then finally after 5-7 years of normal blood and diagnostic testing, my brain started showing the MS lesions in 2007 after having a grand mal seizure as they done an MRI. Then Drs started taking me seriously. It has been one roller coaster ride. Thanks!
@ beginning: That tall doctor looks like a bouncer or security waiting for one wrong word and “it’s on”😅. Also, when the doctor looks up at him, my neck hurts, and I feel like it’s going to trigger his/my fibro😂. In all seriousness, nice to see a physician who has lived this!! Ty🤗
He said it!!! "You need to loose xxx pounds and this wouldn't be a problem" I dont know how many times I have cried after getting that answer... That sarcastic tone while he said it 👏 I love it
Thankyou Dr. Rutherford and Dr. Gates for the wealth of information on Fibromyalgia!!! You continue to validate and educate us, and your knowledge is valued and appreciated! I lead a Fibromyalgia support group in my hometown, and I plan to share this video with my group, but also my friends and family! God bless you both!!!
I am an 80 year old woman. I have had fibromyalgia since I was 28. I have been told everything. I am on pain meds because I’ve just given up on feeling better. I’ve learned so much from this. Thank you.
This is wild because all of this is me, pretty much exactly what happened in order. Chronic infections since childhood and trauma and neglect, got EBV and then CFS and chronic UTI, tummy issues like IBS, and then more stress, then panic attacks, PTSD and now diagnosed FIBRO. funny Im on cymbalta and gabapentin and a bunch of vitamins including Turmeric & curcumin, but my BMs started burning so I cut the last one and eventually got tired of all the horse pills and cut them all. I was found to be anemic and Vitamin D deficient so Im now on cymbalta gabapentin iron and vitamin c under doctors orders (I was taking vitamin D for many many months and was still low.) I started focusing on my sleep quality and stress reduction quite awhile ago but i'm cracking down. I do have to see a therapist for psychological reasons and everyone I've seen thus far has actually been quite helpful and at least don't make me feel like a liar. They in fact knew I had fibro before I did. I have been vegan for 2 years and intermittent gluten free. I am now aiming for gluten zero for life lol. I felt immensely better after a year GF and then after getting ridiculed so much I stopped because the "science" was mocking me. I have watched and researched so much on the issue and I am convinced, no one should be eating the stuff. Especially with how food has been modified to be gluttinier than ever!! Vegan alone helped tremendously with my chronic UTIs, IBS, and mood. I was even diagnosed with Lichen Planus and going vegan helped that significantly as well, for awhile it went away completely. It was not a cure all of course. I actually remain hopeful that I can either cure myself or eventually they'll find a cure. Psychology is so important for chronically ill patients because life with this is HARD! I meditate, do yoga, eat mindfully, go outside often, do fun hobbies etc... I am still so anxious and stressed but it all helps and it takes time. I can tell you many times my hope came through for me and I was right to keep believing. One day at a time, or even one step at a time.
Scoria . (guest).. Hello, Scoria. Your post about your experiences rang so many bells with me : I have got about half way through the 2 docs' video, which also rang many bells ! I stopped to list all possible very early traumas, e.g., difficult birth experience, parents always fighting, early sexual assault attempts (6 and 11years old , then many from teens on, only subsiding gradually ! ( I am 69 now , so less vulnerable, hopefully!), early perceived abandonment ( sent away when mum's 3rd baby being born), niggling cough from age 12, loads of stress through adult life including " collapse" from job stress, malnourishment, sleep loss, poor living conditions( horrid one room in nasty old house , thieves stole my grandmother's engagement ring ( a gift)), then 50 years worry, overwork and chronic stress , ending up now with very little income, after partner lost our house ( not my fault), had effects of partner's mismanagement & bankruptcy , then cancer ( huge stress, knew it was a very bad one ), gradual long term dispirited feeling, never any improvement, always worry and 7 day weeks, with no outings or holidays , and now , constant fatigue, mild depression, chronic cough and arthritis !!!! I have been watching Dr. John Bergman's videos, which make such a lot of sense : he too says don't treat symptoms, but look for cause. It seems that chronic stress has spoiled my life more than I realised : I thought if you soldiered on and took anti-depressants , it could be at least lessened...but there is much more to it than that. I knew for years that the brain does store memories, a survival mechanism against falling into danger . I have tried very hard to make a good balanced diet ( based loosely on the Hay System), and that must have helped, but with advancing age, I think the body is less able to defend itself, so to speak : longer to heal, tired more easily, etc. So the effects, from whatever cause, will be more troublesome, and need extra effort to manage. So Fibromyalgia might be the answer to all the varying problems, as the Doc's say here. And understanding the causes, plus having strategies must be a great help. I am so happy to be able to listen to these videos, and hope all those struggling with this complicated syndrome / condition will be able to take heart : " bless" all those taking the time and effort to tell us all they have found : it all rings true. And thank you, Scoria, for sharing your experiences. Take care. ☺☺☺☺☺
Seriously these doctors are life savers. They really break it down and allow you not to feel crazy. This describes me in a nutshell. Been to so many doctors and been made to feel insane. No answers for literally years. We t through a car accident, surgery and HP Pylori and was getting married all in the same year. This makes so much sense now. Thanks doctors!
You have just answered all my problems that I have been suffering for years. No doctor has ever touched on any of this. I have just learnt to live with it, put up with it, but just wishing it would all end. Thank you so much for such an informed explanation. I no longer feel like I am just going through this alone and no one understands. Thank you to you both 🙏🏻
I'm an RN. Had Fibromyalgia for a few decades. This was the best explanation I have ever heard. I have a fibromyalgia art group on Facebook. This will be my first 'medical' Share with the group. My doctor came close to getting it right, but stopped short. I actually finally figured lots out from learning about the etiology of IBS. (PS Considered non-compliant, I was more like "less is more" most of my life. Sounds so much beter. 😉) Thank you!
Yes i wish we had more doctors like this .. My spouse had fibromyalgia and was always sick with IBS and had stressors which made her fibro worse. But several doctors didnt believe her .
YES SIR, THIS SOUNDS LIKE ME.. I HAVE STARTED TO CHANGE MY DIET. IT HAVE NOT BEEN EASY.. THIS FIBROMYALGIA WILL WAKE YOU UP OUT OF YOUR SLEEP.. THE PAIN SOMETIMES IS UNBELIEVABLE!!!!
I am convinced that this is what my wife has and could never be diagnosed! She has IBS, pains all over her body....lately has mild fever mostly at night ...she has hypothyroidia, she is very depressed. We just discovered that she has inflamation in the blood. Gastroscopy confirmed she has Two huge bleeding polyps (one removed) one left to remove. Another problem is her kidneys are working at 40-45%. They want to do a biopsy because they do not know from blood tests why they are not functioning properly. Our GP missed it since at least 2013! My wife has pain all over her body.....mainly fingers, toes, feet, lower back, shoulders, knees. Now the search for a Dr. who can diagnose in Ottawa Canada. She has had several very stressful life events.
Thank you for validating all the symptoms of fibro patients. I'm blessed to have a good rheumatologist and neurologist but your detailed explanations are very helpful.
Less is more! Truly the truth...l have discovered that on my own and now at 75 years old I am living fairly well with my fibromyalgia... but these guys rock!
Thank you so much. This video is priceless for fibromyalgia patients like myself. Understanding our condition is so crucial. I went to many specialists during 10 years and only last week was diagnosed. Thanks for your research and for communicating to the public in general. Your work may improve and even save lives.
this information was absolutely outstanding. you've put all the pieces together and finally the symptoms all make sense. they truly are all connected. thank you for your insightful video. greatly appreciated.
I have Hashi's & Fibro and had E.B. & had a similar experience with pain & weight gain and people telling me I was going nuts. My relationship went downhill as well. Thankfully Im much better now. Thank you for getting the word out!
I was diagnosed 25 years ago...only because I synchronistically met a woman who described my symptoms & had a diagnosis. I was able to go to a doctor & ask him to check me for FM. I had 24 out of the then 24 possible trigger points. However no one innerstood what FM really was, although I could feel that it was an over firing of my hypervigulant nervous system & I knew it had been brought on by one too many stress & trauma. I could feel that my body had gotten one too many stresses & that was it, something just snapped. In 2003 I went to see a beautiful Pain Specialist who specialized in FM & who went to world FM conferences & they knew the basic cause at least. He agreed that it had been found by hundreds of specialists worldwide that it was indeed an over firing of the nervous system. Now days it is called hypervigulance of the glial cells - the immune nerves. However I have since learned that I was subjected to extreme abuse & trauma as a child - the memories were repressed because the trauma was so extreme - & it is common that adults of child severe abuse end up with a nervous system that is hypersensitive & hypervigulant as FM is described. Essentially we need to release the trauma in order to heal... but it doesn't help if abuse & trauma continues throughout life, which is common with women especially, who were severely abused as children & who continue to attract what we know: abusive, predatory men. In my experience, even with decades of trauma release, the best I've been able to do is manage the complex PTSD & hypersensitive nervous system & tone down the glial cells with a herbal supplement of bilberry or blueberry capsules.
I've had fibromyalgia for 18 years ,started after the traumatic and sad (last) pregnancy with my twins, I had a epidural with them which the dr screwed up and punctured my spinal cord and left me paralyzed for 4 days.. I became very sick after that and just continued to get worse...I'm 50 years old now and feel like I'm 90...I'm sick and in constant agonizing pain every single second of every day.....I think fibromyalgia has something to do with the spinal cord and effects the brain...I have issues with speech and memory loss I'm slower mentally also brain fog I get confused easily, it's embarrassing and frustrating...I don't even trust myself to drive anymore 😪😥😞☹😢😭 ..it's nothing fake about fibromyalgia, I wouldn't wish this on anyone , people and doctors who are skeptical and think it's bs and attention seeking and wanting drugs...just try to live one day in my body...you wont survive it
I am so glad I found your channel. I feel like I have been living among people who speak a different language. I can’t get them to understand me no matter how hard I try. But then I listen to you two speak and it is like finding my own people! Finally!! God bless you both!!
Retired RN me, w/fibro is profoundly enlightened w/an upside down A+P presentation will now live a better life...worth the price of my computer, is this video! WOW..Never knew about gluten/depression/relateing to killing of brain cells link either. Blessings!
This is so me... I wish my physician would help me. I have had all over pain, depression, PTSD from finding my Dad had committed suicide. I have stomach problems, I seldom eat much. Everything makes me nauseous. Heart palpitations, anxiety. I can't sleep. I am 60 years old & have no energy. Most days I spend in bed. I had pneumonia @ 21. I wish I could just die! No Dr. Seems to want to help me. They say it is old age & arthritis. I wish someone could help me. I am so sad . Don't think I will ever be better. Can't even work anymore. Maybe my Dr. thinks I'm crazy. Ty for sharing your information. God bless you
Joy Sheets so sorry you've been experiencing all of this. Please know you are not alone. Check out Jen Brea's TED Talk about when your doctor doesn't know what's wrong for more who have experienced similar things. I encourage you to look for a different doctor who will listen and respect you. It took me years and many doctors before I found ones who could actually help and give me a real diagnose. Unfortunately that's not unusual. Please don't give up fighting for yourself.
this is more helpful than any doctor i’ve talked to in real life… the way he explains the fight or flight mechanism made me connect some dots on what’s going on with me. wow.
I'm a sufferer of fibromyalgia, and I truly believe my grandma had it too. This was back in the 70s. She went through many doctors who believed her to be a hypochondriac. She really had a lot of pain. It wasn't as bad for me when I started having problems in mid 90s. But there is still hard.
This is awesome. I keep saying after I had my hysterectomy six months later I started having all these issues. Good information is not giving after you have it.
Thank you for that clear explanation. I was diagnosed by a rheumatologist in 2007 but it is very difficult to get across to family how sometimes I can do something and other times I can't. They also don't appreciate the difficulties of remembering and how low and tearful I get every couple of weeks or so. I frequently get 'what's the matter with you....sort it out' attitude. They don't get it. I think mine was triggered by the suicide of my adoptive father when I was 13....(I had already lost my father from cancer and mum remarried). I was very close to him, he was already my uncle through marriage. So, 50 years later I'm still struggling but I feel hopeful listening to you both that I may be able to improve things. I'm about to watch the next video.
Thank you fellas for putting this whole puzzle together and sharing with us. I knew that this had to go a lot deeper than just some trauma episode. About 8 or 9 years ago I went to the doctor and said please tell me what is wrong with me; I just want to die! I told him my symptoms and he said it sounds like you have fibromyalgia and he put me on some medicine. It is not good for my liver but it helped me want to live again! Since then, I have been searching for some microbiology answer to where this stems from. You guys have shed a lot of light on the subject. Thank you so much. God bless you both. 🙏
I never went to the doctor or had a prescription in my life. After invasive surgery I was never the same. The doctor didn't know why I wasn't feeling better, I should be. Put my symptoms in the computer and fibromyalgia came up. Six years since "invasive" surgery and I still battle fibromyalgia everyday. People look at me like I'm crazy, you look fine? It's the invisible disease. I can't describe the feeling, it's like a bad hangover lurking over me every single day. Yes, I don't sleep at night and yes, I notice I have brain fog. I can't remember famous people's names. When I go grocery shopping my eyelids are so heavy I feel like I could fall asleep in the middle of the store. People look at me like, fibromyalgia what's that? And yes I talk to people who say they have it but I do question, it doesn't sound like the same suffering I'm going through. Some say mine went away. I think well mine's not going away aren't you lucky.
EMS electric magnetic frequency Had to be factored in as a cause. And has to be considered during treatment and managing. Frequency has gotten a lot stronger since the 80s and causing many more problems
I'm at 21 minutes and you just have hit the head on everything. Your amazing.
7 ปีที่แล้ว +18
It feels scarier and scarier inside my body with all the symptoms getting worse and no research what is causing it inside of me...here in the Netherlands.
I'm 14 years old and I have extremely bad pain in my legs back and arms I have problems breathing I never sleep or have energy my stomach hurts all the time I get chest pains sometimes I feel like I can't think right I get nauseous and I'm too of that I'm 14 I'm going through a big change in my body plus school majority of the time I have to do work at home and my school doesn't believe me and I feel like my thinks I'm faking part of it she thinks I have it but she doesn't think it's as bad as it is. A couple years ago I was spending summers with my grandma just because we get along so great she's not like a normal grandma who knits she likes to do fun stuff but her daughter my aunt is on drugs and she ended up having to live with my grandma all they did was scream and yell at each other and yell at me and I was extremely stressed out for years and then people at school were me and I'm a perfectionist so I do everything as best I can do it so I was extremely stressed from the school and my aunt also my grandma has arthritis and my great aunt has lupus which may or may not have anything to do with it. I'm so mad and depressed everyday I just wish I could go back before those summers and prevent myself from spending my summers with that crazy aunt because now I'm worried about school I'm very smart I was going to start a business at 16 I have so much stuff I've been working/figuring out since I was 11 not many kids can say that these days I hope lord I hope I can do something so I can atleast go to school if I can just go to school I'dc if I have to get in bed right when I get off the bus I have to go to school i wanted to get a masters and go to a higher school such as Princeton I was taking classes two grades ahead of me but now I can barely go to school thank I will finish this video and get my mom to watch it to and I'm hoping this will help because everyone thinks I'm crazy and it doesn't help when your 14 and your body is changing thank you so much Finnaly I feel as if I'm watching something real not something that's nonsense
Obviously we wouldn't be able to diagnose you from this brief history, but you have many of the core symptoms that many of our fibromyalgia patients present with. Hopefully the video has helped you to know that you're not crazy and is able to help you explain to others what is going on and hopefully get you on the right path to getting better. Best of luck to you in the future sounds like you got the tools to make a big difference out there! As a side note I used to live on 8 miles away from Princeton good choice.
This is spot on and had most if not all symptoms and tried most of these remedies, I have been going to a lot of doctors and not one has had anything to say about fibromyalgia even if I did ask. But in my case no problems until I got to 55 years of age no medication and no smoking. After 10 years I have got back on track or at least much better life quality. 1. Stress reduction is as you say the most important thing to get fibromyalgia under control. In my case yoga and soft exercise and saying NO. Lying on a nail mat is also a good way to release stress and improve blood circulation. 2. Food , mostly plants based organic Whole Foods, no junk foods , no alcohol. Fasting now and then most styles work, but I prefer the easy way like time restriction or 24 hours a couple times a year. Wish all people with fibromyalgia see this. Should be mandatory at school.
THANK YOU! Finally something that makes sense and feels like an answer that is real. I took notes during the broadcast because I would forget half when trying to discuss this with my sister. I will be heading over to your site..
Hello Doctors. I'm a watercolor artist - drawing is all I know and I could not live if I did anything else. The battles I've faced with my Fibro has had me quit my job (which was great to live on my art full time by attending anime / comic con conventions) yet has left me too weak, pained, or discouraged to continue my up most passion. To hear this information is such a relief and hope knowing there's people actively researching ways to treat this. I thank you so much.
IM SO GLAD I FOUND THIS !!!! THANK YOU SO MUCH FOR EXPLAINING THIS !! EVEN THE RHEUMATOLOGIST THAT DIAGNOSED ME DIDNT EXPLAIN THIS TO ME AS WELL AS YOU GUYS !!. IM JUST SO TIRED OF PEOPLE SAYING YOU DONT LOOK LIKE YOU HAVE PAIN !!1 THERE ARE TIMES I JUST SIT A CRY BECAUSE THE PAIN IS SO BAD AND PEOPLE JUST DONT UNDERSTAND. I HAVE A VERY HIGH PAIN TOLERANCE AND EVEN THOUGH I STILL HURT BEYOND BELIEF. AGAIN THANK YOU FOR THIS !!
I’m 67 and my Rhymatologist diagnosed me at 35. I’ve been with him ever since , a lot of drs way back when I was diagnosed, did not believe in it. I feel so blessed I found him. He is now a Professor Your video is going to help many Thank you for doing this video
GOD Bless you, this is amazing and a breaking new hope for all of us fibromyalgia warriors. THANK YOU THANK YOU, once I am able to walk and be able to have less pain . I will strive to become a neroscientist 😄😄😅😅
This is spot on and had most if not all symptoms and tried most of these remedies, I have been going to a lot of doctors and not one has had anything to say about fibromyalgia even if I did ask. But in my case no problems until I got to 55 years of age no medication and no smoking. After 10 years I have got back on track or at least much better life quality. 1. Stress reduction is as you say the most important thing to get fibromyalgia under control. In my case yoga and soft exercise and saying NO. Mail mat is good as stress relief and for blood circulation. 2. Food , mostly plants based organic Whole Foods, no junk foods , no alcohol. Fasting now and then most styles work, but I prefer the easy way like time restriction and 24 hours a couple times a year. Wish all people with fibromyalgia see this. Should be mandatory at school.
I'm flaring at the mo with FM, the pain, I'm wrecked walking around like a zombie. I had huge stress last week and hey how it's back like a big monster. One area gets so bad my breathing is effected, then my breathing is ok. What did we do to deserve this
Suffers of Fibromyalgia cannot rely on medication alone, lifestyle changes are most importante. Meditation or mindfulness works wonders for stress relieve and management - Yoga best exercise for Fibromyalgia.
This has helped me so much now I know it’s not all in my head I am ashamed to tell anyone that I have fibromyalgia because mostly the reaction is Oooooo k you are making it up I am 69 years old I know when I was young I realize I had it then
I literally feel sick watching this.. it just hits home so hard. Feel like some of this could have been avoided. Have just given up at this point. There are no good docs like these guys here in TX . What does someone do?
This is a very informative video. It explains so much and why my whole life has led to a Fibromyalgia diagnosis. I now also understand why I cannot lose weight no matter what I do. There are so many factors to consider. These two doctors are well educated, well informed, and are passionate about this disease. I wish they could come to me and tell me what I need to do in order to feel more like a human being. I commend these two doctors for researching and educating themselves on a much dismissed disorder. Thank-you!
Very helpful indeed! Thank you so much for taking the time to explain this wretched illness to us fellow sufferers. I can't wait to watch the next videos in the series.
OMG this put me in tears. Thank you so so much. Every Dr. should watch this, should be mandatory. I'm in Canada and I've had fibro for ten years. No matter how many times I tried to explain to DR's that it's not arthritis they don't seem to understand the nerve pain.I was diagnosed and went through all the meds. Now in past five years it's my gut that's suffering and yes bowels.
Every one of your programs I listen to, I learn. Even when the medical issue is not my specific issue, I still learn as the piece of the puzzle of autoimmune conditions are put together. Today I leaned that my husband's supposid "mono" at age 15 was really EBV. And his lifetime of a bad gut/digestive issues and allergies and his current high blood pressure, insulin resistence, short term memory loss, periferal neuropathy and probably a thyroid problem (cold feet.). I am also learning it is ALL connected... And yes, I have no tonsils, uterous (endometriosis) gull bladder and now Hashimotos and chronic fatigue. Thank you for all that you do. I sure wish you were closer to Michigan!!
Dr. Rutherford, I'll have to watch the rest later, but....I could swear that I'm listening to myself. I've experienced severe stress/trauma, I've had pneumonia twice, I had a period were I lost blotches of facial for almost a year...etc. To this day, part of my fibro symptoms is difficulty breathing. Sometimes my lungs fill up with liquids. After 30 years, and having taken every fibro remedy out there, pain killers work like magic. My life has been restored, except for at night. (Pain, and difficulty breathing, causing severe sleep deficiency.) I've tried 2 doses of Xanax, and had the best sleep I've had in decades. I've been trying to get my doctors to prescribe 30 pills a month, but they would rather I die from my 3rd heart attack rather than prescribe me a schedule IV narcotic. Anyway, I look forward to seeing the rest of the video.
Thank you for a comprehensive and well delivered explanation of this terrible ailment. I have been through every test and continue being told there’s nothing wrong with me. I wish more doctors would take the time to understand the factors involved.
I have had FM for over 40 + years now. I am 75 yrs of age. I have had very bad years, lots of surgeries, tried many medications. Have stuck to OTC for pain. Prescription medication is a must for sleep. I have been fortunate to have always had good doctors. Have found if I get 8 hrs of good sleep, most of the time I can cope with the pain. Less medication is because I am a medical person, and have made this choice. Stress does make me flair. Meditation, biofeedback, light exercise, all things in moderation, hot bath, Tens. I have found that even though arthritis, Graves Disease, IBS, etc, made my condition worse, brain is gradually rewiring it’s flight or fight area. Weather changes do continue to bother me. I in a honesty feel I am doing better today, than in my 40-50-60. Knowing I can not change my condition, only that I can change how I think about it. Try not to dwell on your symptoms. Don’t let it win!
OMG I wish you could be my doctor!! EBV infection back in the 90s, domestic abuse survivor, been homeless, had a special needs child at age 43, now have a positive ANA, Hashimotos since giving birth, had Shingles in 2014!! Today I’m disabled and currently going through a flare since weather changed. Don’t take narcs or benzos anymore. Don’t take SSRIs because I refuse to give up my Flexeril (Serotonin Syndrome). Use high doses of naproxen but have Diverticulitis now. Have back injuries from car accidents. I was just approved for medical marijuana because nothing else has worked. High CBD isn’t working so will try 1:1 ratio formula soon. I’ve had times where I’ve felt better and could function. Right now is the worst since the weather turned cold. I’ve had doctors treat me like psychotropic drugs would cure me. I’ve have a rheum tell me to leave his office so he can treat people who are really sick! Thank you for this video😊
We are now able to do consultations and treatment via Zoom in most cases without a trip to our clinic needed! To find out how to schedule a consultation visit powerhealthconsult.com
Have burning pain in my arms, legs & torso. For 25 yrs. Have had better days. Lately getting worse. Take 3 medications. Anxiety, Nerve pain & depression. Wish there was a doctor that really could help me. 😢🙏🏻
Do you provide consults to patients in Canada via Zoom?
Do you take any insurances?
@@ursulabarajas3022 me too I have gastritis, ibs and leaky gut I'm seeing a gastronerologist for that.
@@ursulabarajas3022
Even i do get a kind of buring pains
Initially i got scared.. but some youtube chanel helped to know, the varrying pains in fibromyalgia
Thank you so much for finally explaining what this could possibly be. I’m crying watching this, because I’ve been a nurse for 25 years, and now being on disability my life, purpose, and quality of life are basically gone. I’ve never seen a patient be as dismissed, and struggled as hard as I have with any condition to just get help, and answers. This pain is absolutely horrific, and 100% real. I spent 25 years of my life trying to help people, and now when I need help, nobody is there (family, friends, husband, doctors) I’m totally alone, and I would trade the pain from my botched surgery that severed a major nerve, and caused pain for years I never thought was humanly possible to bare, for this condition in a heartbeat. I’ve tried everything, and now I am couch bound, unable to drive, cook, or even wash my hair by myself. I’m currently looking into the MAID program which is legal for my conditions now. (I have multiple qualifying conditions) which I never thought I would even consider, but I can’t live like this anymore. I’m heartbroken for everyone who suffers from this, and is treated the way we are. The way we are treated makes it a million times worse!
What is the MAID program please? Thank you.🙏
@@ocelotcat it is the “medical assistance in dying” program.
I am not as bad as you, but I am also a nurse and was treated so badly by a consultant in my own hospital 😡
my heart goes out to you! I shall pray for you, Jesus can and WILL help you! I have been accused of being lazy, milking the system, etc,.
lam sam 😢😢😢😢😢😢😢😢
Also, extreme changes in weather is a huge trigger. A sudden 30 degree drop or increase can be traumatic for a fibro patients.
So very true
100% from Australia
Absolutely! And weather is a trigger you cannot avoid!
absolutely. I feel so much worse when there is a sharp change
Same. Triggers terrible migraines for me.
10 Years I've suffered with all those symptoms, had people call my lazy, crazy and what not, then my friends wife got diagnosed with fibromyalgia and the light bulbs went on. I have PTSD (I'm Ex Forces) I've gone from a healthy 12 stone guy who ran every day, did weights and ate healthy to an 18 stone slug, I only eat once a day because of my IBS playing up, my stomach bloats so bad it's painful and causes difficulty breathing. I suffer insomnia and yet I'm bone tired all the time,having no energy and I'm just sick and tired of being in pain.
I've just made an appointment to see a Doctor, hope to God this helps. Thank you for this informative video.
I hope u got answers and help.
I hope you get some relief. Keep looking for anything pertaining to fibro and talk to people who have dealt with it a long time to see how others manage. Everyone has some different stuff. I very sensitive to smells, chemicals and sometimes light.
Many get accused of doing Drugs. You'll be bed ridden then when you are able to get out of bed you try to do everything, cleaning, doing laundry, etc. Because you know you'll go back down. To many people don't understand and don't want to understand. Bi- Polar and chemical imbalance , Thyroid all have similar illness and symptoms. Including major Depression, Extremely exhausted, it gets so hard to walk you feel like you're dying. Feel like you're burning up with fever and your temperature is extremely low. ( 92- 94). When my BP was 70/ 40, don't tell me I'm fine. When my hair is falling out having bald spots, don't tell me I'm fine. I had Lyme disease when Drs tell you it's just dry skin, and you have Morgellions, nothing , not one prescription has helped. Don't believe it. ! Don't give up. My friend and I went to a Lyme center. I had 3 bacteria in me, Lyme was only one. My friend had had Lyme so long it affected her heart. Never give up. ! You know your own body! Trust it! If a doctor can't believe what I'm telling them, then they can't help me.
I hope this doctor can help you or refer you to a doctor that can help you. I so get your pain you are not alone brother!
@@a.p.5429 I am too. About died before o found a Doctor that had a clue what was wrong with me at 38yrs . Didn't have half the vitamins and minerals in my body to be alive. 3 months in hospital. Was Bi- Polar, not sleeping, Chemical imbalance, depression, some triggered off from chemicals from being put to sleep for Surgeries. Florescent lights put me to sleep. Can't stay awake, zapped my energy, headaches, etc. LED lights work better. I'm allergic to so many foods, medications , stuff they use for fillers in medication. Couldn't eat eggs for 5 yrs. Gave me terrible stomach aches. After much research discovered it was what they were feeding the chickens. Everything needs to be cage free.
Smells affect are a big deal also. Ammonia Zappes me of energy and puts to sleep. Bad smell bring on depression and good smells bring on feeling good. Mood swings are caused by smells, light, food. And the way one says something. One must learn to ask: how did you mean that? Or did I take it wrong? It's very hard to ask but to break the cycle and not go home depressed wondering , just ask. I wasn't getting enough serotonin toy brain, caused by damage to in life: maybe when I was a newborn, blood transfusion ( almost died) lack of oxygen. Being hit in the head to many times as a toddler and child, ( by parents) husband almost strangled me to death( 20). The important thing is found the problem and what to do. #1..Forget the past.Forget blame. #. You know the problem and understand it. #3. A real Chance at Life. # 4. Take care of yourself. Then you are able to help others.
An "upper cervical chiropractor"can Help.
Prayers work. Keep looking for a Dr. that takes you serious and believes what you tell him/her no matter how weird it may sound, If they don't believe you, they can't help you! Never give up. Takes a good smart doctor that understands about neurotransmitters. 4 main chemicals that are necessary for the BRAIN..
SOMETIMES the problem could be the Thyroid and glands near / connected to Thyroid is inflamed. I take two medicines
for my thyroid.
Maybe Lyme disease . Our Government makes it very hard for Drs to test you for Lyme. With all the same symptoms. And severe itchy skin. Can get lab test at lab center, you pay for the test, get results and take to the Dr.,. My friend and I went to a Lyme center about 4 hrs away from home. She had had Lyme so long it had affected her heart. Had to get a pacemaker. Her medicine bottle was $600.00. i had 3 bacteria in me. The prescriptions were like i was a dog on Parvo. Extremely sick , extremely weak for 3monthd. Lyme doesn't just come from tics.!! This usually comes with Morgellions ( rare skin conditions). Some Drs .believe in it, others don't..some will admit it's a Rare Skin Condition. Most will start out treating you for scabies. Then diagnose you with eczema, nothing helps, then they label you paranoid. There were many outbreaks the public wasn't suppose to be aware of , when Obama stopped many Lifesaving medications, especially for Seniors and Disabled on Medicare or Medicaid, especially in Nursing homes. Seniors couldn't get Dental help neither..Mountain people have used Sulfur+ Bag Balm+ ivermectin mixed on skin to get the skin better .. Wonder what COVID IS? WHEN IVERMECTIN KILLS COVID? Threw everything away. Had to. You can't scald it , you can't freeze it.Experienced it all.
Don't GIVE UP! KEEP SEARCHING , SOMEONE OUT THERE KNOWS HOW TO HELP YOU.
I have had a constant companion for 28 years whose name is fibromyalgia. I wish that pain had colors so people could see just how much this perfectly normal looking persons pain is like everyday.
I Agree
Yes! I get the but you look fine or you can walk or whatever others see but inside I am suffering in pure pain. I always say I wish these people with this kind of thoughts, attitudes could live one day in my body..... they would shut up I guarantee afterwards.
I have this same wish. FM has stuck with me for 28 years also.
that would be nice. my family and friends can tell when I'm worse but strangers can't.
My constant companion called Fibromyalgia has been with me 67 years... It all began at birth.
A Doctor who really understand, That it's not all in our heads.
this is a good start to educate people out there
Watch the documentary 'Unrest'
Two brilliant doctors who are giving us advice & making sure we don’t feel alone! Thanks 🙏 to these two I’m feeling a little better x
@@florence1395 Thank you for sharing this Video to helping Doctors and Fibromyalgia Sufferers to understand of what really is happening!
If it's in my head then why cant i cure it with chocolate?
Narcissistic people in my life! My mother, father & husband. I completely get it now. The feeling of being stuck with these people and not being able to free myself from them. Huge part of trauma or stress. Had no idea my body is still dealing with this.
Thats my story as well!!
I feel the same I live with my daughter and I'm so afraid of her
Yes its materialised as physical stress
@@gracekane7807 Get help hun you shouldnt live like that x
@@gracekane7807 praying for you. Pray your daughter becomes a Christian.
It's unfortunate that a lot of fibromyalgia patients don't have the money to pay for the proper care at no fault of their own. I really appreciate this valuable information. I can use it to better advocate for myself and do my part to get better!! Thank you for sharing!!!
I’ve suffered with Fibro, chronic Lymes, and arthritis for almost 20 years. Before the opioid ‘crisis’ raged, I was perfectly managed for years on a combination of long- and short-term opioids, never needing an increase in dose. I had a life: could work in the yard, enjoy my grandchildren, no more depression, no more blood pressure problems. I didn’t even have to take any medicine at all except the pain meds. Then the government and insurance companies got involved, they strong-armed the doctors, and screwed it all up completely. Now I suffer with intractable pain, take a box full of medicines for everything under the sun. I’ve always said “control the pain and everything else falls into place.” At least it worked for me. I’m almost 70 years old and now wasting away in bed 90% of the time. I can’t understand why my quality of life was denied me.
I'm so sorry & I literally feel your pain! THIS is my exact story right now. I'm in my late 30s & was on pain meds for close to 20 yrs. Now it's been taken away & replaced with 6 new meds... which NONE work. I have a young child and I'm unable to do SO MANY things I used to easily tough through. I dont understand. & my pain Dr is a real a**hole. It seems like he doesn't even believe in MY pain, MY lived experience in my body or even in Fibromyalgia.
Too bad there weren't more of you to be accessible to more of us!
I feel like crying watching this, they explain this so well and understand me better than any Dr I've ever been to, including my current rheumatologist. I just want to cry. I wish I could have an appt with these dr's.
You're not alone! Every time he uttered one of my many diagnosises... It feels good to know someone out there understands.
Yes. Fibromyalgia patients helpless, the kind sufferings.i do close my door when in severe pains and cry a lot.
After that i apply some rub vix.whete i hv maximum pains.later for some hrs its lesser..i feel
@@geethanair5803
Please try max 20 grams of carbs a day
I suffered for years and it’s the diet that’s killing us
Intractable pain from 2007-2018 (in pain clinics)
Pain free since June 2018
Not 1 doctor told me to look at what I ate
@@peggym8657
Thanks a lot
Agree 💯% with you I leant so much looking at this. I also want to cry
This is the most underrated video for fibromyalgia.
I agree
Fibromyalgia ruins lives.
Yes it does
It sure ruined mine
I won't let it.
I had fibro since 2009 and it’s a struggle everyday to live. Some days I feel like giving up and just don’t care anymore.just to get out of bed each day is a struggle. I didn’t know fibromyalgia could be this bad and wouldn’t wish this on anyone. Been to doctor after doctor but no help at all. Just take pain pills and try each day to make it through!
It changed who i was!
My skin hurts to touch at different areas.
I am amazed to hear doctors speak about the childhood trauma as a trigger for Fibromyalgia. I got a revelation about this when I was diagnosed in 2013 and the doctor who diagnosed me looked at me like I was crazy when I told her this. Great job guys!!!
It started after my first baby. I had Hashimotos, I had frequently tonsillitis.. mostly when I worked as a nurse in emergency. I couldn't sleep and I had brain fog. Then I had pain all over, lost weight. I had a tough childhood. I couldn't cope with 3 children and just slept anything possible. There's more but I should write a book.. Nobody believe d me for many years. This is a great video.🇨🇦
I am certain childhood trauma was my trigger.
Hello Doctors, I'm a 60 year old woman who was diagnosed with Fibromyalgia recently but have been suffering my entire life with ALL or most as the years have gone by, of these problems. I have just recently given up on life because no one would help me, but now after watching this video I am feeling more hopefully. I have always believed I had some sort of central nervous problem because I started to have severe panic attacks at the age of 21, I was diagnosed with IBS at 17 and emotional abandonment as a small child. Much counseling, thyroid problems, over weight, vitamin deficiencies, depression, and pain and the list goes on and on. I cried watching your video, I just want to say Thank you, Thank you so much!! Your information has helped me greatly!! Thank you for your efforts and thank you for believing us that are suffering.
Vicki Paczesny ...Vicky, my life mirrors yours almost. Grew up witnessing domestic violence, childrens homes, foster care, unloved, no trust, hurt, loss of my two children, died within 15 months of each other, then back surgery, and much more,symptoms started aged 39, no diagnosis till aged 52. Always felt that my illness was related to my stressful life. I am 62 now, looking after myself, eating well, feeling better. I hope you are doing well and coping with your Fibro. Sincerely, Frangi, England. xx
I feel the same way. Having a great support System is important. YOU ARE NOT ALONE! I used to feel like a hypochondriac when I would try and explain my symptoms. Try and find a Dr who actually believes in fibromyalgia.
Vickie I'm 60 too and have a classic case of cfc/fibro, I had also given up, mostly because I have been poked and prodded to death. Now after watching this video "I get it". I have a new GP whom has touch on this but I didn't get it, so I will start there.
Vicki Paczesny I'm a 43 year old man and I've been laying in bed for six years now and I no this is what I have now. But now I have to go and convince my county hospital doctor this. They said I had an anxiety disorder and they put me on Prozac I took it for 2 months got my body use to it. But I quit taking it because all I did was lay back in bed and just taking the medication. And I've never heard of anybody taking Prozac for fibormyalia so I new that Prozac was not the medication for me. I'm seeing a new doctor next month at my county hospital. Let's hope and pray this doctor say dam let's get you fixed up.
Vicki Paczesny I say ditto to your life story. Thank you .
My doctors office tested 15 fibro patients for Lyme disease after one of the doctor's wives who had fibro was diagnosed with Lyme disease. Fourteen of them came back with positive Western blot tests. I was one of those tested then treated for Lyme. Three years later, I'm pain free, have my energy and my mind back and am living a normal life.
Wow thats great!!
I did that test for Lyme but was negative :(
That’s interesting.
I’m in floods of tears watching this. I’m in the uk and NO DOCTOR I’ve seen believes in fibromyalgia. THANK YOU! for making this video! Its helped me understand my illness perfectly in the first 20 mins watching this than the 18yrs + of seeing numerous specialists. From the bottom of my heart THANK YOU 🙏 xx
Glad it helped!!
My heart goes out to you Diane!! It is one illness that is difficult to find a support system. Our families and friends often don’t get how bad we feel which can be invalidating and lonely. I visit the MyFibro support group sometimes and I find it helpful. Gentle hugs. ❤️
@@Sweetpea064 where do you find this group? On Facebook, or elsewhere?
In UK to they believe in it but don't give a dam
I am sharing this with my doctor first thing next week. She would do anything to help me and is just as lost as I am on what to do next. My pain is so severe right now and the flare ups are weekly. My life has been abandonment after abandonment and I feel hopeless and truthfully am ready to quit life. I have been trying to explain my Borderline personality disorder to family for years but it’s lost on them and then to be diagnosed with fibromyalgia has just been overwhelmingly heartbreaking and lonely. I have a little girl to live for and this has given me an understanding that is filled with hope. I am so grateful
How are you now
How are you?
Fibromyalgia has controlled my life. People including the medical community don't understand what its like to deal with the many symptoms that this condition has. Living with fibromyalgia is a full time job that drains you.
It's a gut problem along with mineral deficiency
@@cosmichealth3907 fhtmr gene
@@Truerealism747 repressed anger ,emotions,behaviour and personality traits...fix the emotion's
@@cosmichealth3907 yeah take some doing but yes aka tms
@@Truerealism747 you got it....
Dr Martin's Story 1- 13:15
Overview 13:15 -14:26
Dr Martin's Experience 14:27 - 16:20
How a typical Fibro patient presents, usual symptoms and stress 16:21 - 29:36
Their Paradigm 29:37 -30:00
Role of Stress in fibromyalgia explained : 30:01 : 45:26
The Paradigms : 46:20 - 48:34
Explaining what fibromyalgia is 50:59
Thanks!
Thank you, much appreciated.
Hallelujah and praise the Lord for you two physicians! You are describing my life as a fibromyalgia sufferer. As a nurse I can understand the medical jargon, even though the disease process is quite complicated. I've had it at least 25 yrs, I am 54. This is the absolute best explanation I've ever seen. Thank you so much. I've recorded your names and will be following your studies on FMS so I can help myself.
God's good ❤
Exercise? I used to exercise before invasive surgery. Now with fibromyalgia I feel like I was electrocuted or have a bad hangover everyday. Trying to exercise is like impossible.
I have all these illnesses. I was abused, and raped as a child and suffer from ptsd. My fibromyalgia is so bad today that I can’t stand the pain!!! I’m on no medications either. I don’t like the medications or side effects! So, much pain and I don’t want to be touched!!! 😩😭😢
People can’t SEE MY PAIN! I feel I’ve had it all my life! I’ve just worked through it, until it got so bad, that I couldn’t!
Explains why I feel like I have electricity running through my whole body!!!!
I watched all the way through.... missed that part I guess. Do remember what was said about the electricity?
Me too !!@ arms feet ...
You know what I did feel like electricity ⚡️ is running through my body I told myself that a while ago and brushed it off wow
What you’re describing, thank you for doing that lol. I feel crazy explaining that to people. So glad I found this video. About to get on a virtual appointment with a doc and I’m nervous about describing all of this.
I cried watching this. For 20 years, I have had fibro. No help from doctors. I have been told my pain is fake, intimidated by doctors to shut up and stop complaining, or out right that I am a drug seeker. Only because I wanted help.
2 hours ago I almost didn't click the video because of the white coats and the clickbaity title. Now I realise this was the single most important video of my life. Thank you so much.
Glad it was helpful.
OMG! Where have you been? I have 98% of what you said.
My family and friends need to see this.
Yes. All the family and friends need to get educated.
I'd kill to have a doctor listen to me instead of assume im making things up, ive been falling apart for years, YEARS! I have a vitamin D level of 3 and IBS with gallblatter removal, 2 csections and an issue with weight gain ive been up to 350 pounds when i was barely 120 as a teen. All i ever hear is you are too young for this, i am running out of strength and sanity. I need help :(
Amber AnnMarie you’re not alone, I’m 23 and had to get an iud because of Menorrhagia, i can’t experience southern summer sunlight for an hour without an emergency room vist and allot of vom bags, IBS, I average an emergency room visit once every one or two weeks (I have no health insurance so that really tells you something), I cannot keep weight on me (seriously guys stop complimenting the symptoms of my illness) 5’4” and 98lbs at 23 is not normal, I have to take a pretty moderate SSRI in order to get out of bed and handle direct sunlight (but it makes me puke and I don’t experience hunger on it so not helping the weight thing) and I lost a fiancé because he couldn’t help me anymore.
The one thing in my life I wish I could get rid of is this very real pain. It’s ruined my life and then there’s the doctors that don’t believe you because they’re looking for a physical injury/malformation type cause and not a neurological cause
@@katerinachelmis568 hi this is my boyfriends account I have the same feelings I’m so sick I’m in Canada the sun everything makes me sick and the doctors say I’m too young for this much pain. Why would someone make this stuff up?
I'm 38 and have been suffering for years. Things keep getting worse, but no one can find anything, even when my joints are swelling and I can't use my hands or walk properly. Or have diarrhea for 2 weeks! TMI maybe..lol. It makes me feel like I'm absolutely crazy. I hope that you manage to get some relief :(
I'm with you. I'm doing intermediate fastingvand cut sugar to help with inflammation. I've bern scouring the yt for videos on diets for autoimmune disorders. Believe it or not the carnivore life may be my next go too.
Not to take anything away form you ladies, but being a man with it sucks. It's listed as a woman's medical issue so men are looked down upon. When I've said I have fibromyalgia, I've even had that response...."isn't that a woman's disease?" Going in and saying I'm in constant pain and being looked at as a drug seeker and treated as such just pisses me off. I am an Army Ranger I can deal with pain but this is soul consuming pain not a rucksack on my back and hot feet after 12 mile march. Sadly, I do want drugs now. I have had enough pain. I want it to go away. If I didn't know in my heart that taking my own life just transfers the pain to someone else to carry then I'd of checked out and been a member of the 22 a day. I refuse to let this define me but some days it wins. Then I fight back.
I use to be in the military with this condition as well and I'm sorry that this is happening to you. It's horrendous how little medical cares about those under their care. I will say not everyone there is like this and they deal with a lot, but there's so many more that just don't want to deal with us and act like we're just trying to get drugs. I don't like that fibro is considered a woman's illness and it does make it harder for males to get the help they need. It was hard enough getting help for myself, I can't imagine how difficult it was for you to just to get a diagnosis. It needs to be taken more seriously and it needs to be better recognized and an illness that can effect men as well as women. I hope you get proper treatment for it soon and I hope you get better.
I used to train rough horses and got knocked around on the daily, so I know how to take a lickin and keep on tickin, but you are right, this chronic all over all of the time coupled with crushing fatigue is a different matter. I use meds, but my best defense is to remind myself that these pain signals are not protecting an injury. There is a limit to the discipline of mind over matter, but you are no stranger to discipline. I can defy electro chemical signals, but the fatigue must be honored or I just get worse. I don’t know if that will help you, brother, but I’m glad you spoke up so that I could hear you today, a year after you let the world hear your perspective.
God be with u! Thank u for your service!
You are not alone. Fight the good fight. 🙏
Sir, you could have not said it better! I did 21 years in the Marine Corps. I know that rucksack pain you speak of. But like you said, it went away after a couple days or so. This feels like your carrying a ruck sack that heavy all day. From head to toe. It frekin sucks! A year after I retired this came on. Within 2 years boom! This life sentence only we can understand.
I'm in tears, so much of my life is being explained before my eyes. Thank you both so very much.
It's "this is your life" for realz.
@@LauraBeeDannon yes f.e.a.r
Wow! From the inner ear issues, hashimotos, fatigue, chronic pain, childhood illnesses, these guys could be writing my story. I will continue to follow their program.
My sister has all these issues.
I wonder what the rates of PTSD and Fibromyalgia comorbidity is. It seems like fibro tends to be set off by trauma most of the time , and we then discuss the “fight or flight” which seems to be compromised. I’d be interested in seeing studies done !
I told my doctor ten years ago ( I have diagnosed fibro ) when I have no stress , which is basically never I feel fit enough to run a marathon.
His eyes widened in disbelief. Fibro is mostly psychological .
I cannot thank you enough for sharing your symptoms and life with us. Your story is mine through and through. I feel as though I'm stuck in a Fibro vortex. Will be watching all of your videos for some much needed answers. Bless you both. Beverly
One has to wonder why the enormous rise in all of these auto immune disorders? I believe it’s in the environment and in our food. We are putting something in our mouths we shouldn’t, or need to be putting something in our mouths that we should. When they started messing with GMO’s in the 90’s and our wheat supply was changed is when a lot of these autoimmune disorders skyrocketed. I am currently dealing with bacterial infection in my colon and going to GI Dr in two days. I have White Matter Disease(diagnosed 6 months ago), MS, CFS, Fibro, multiple chemical sensitivities, Adrenal Fatigue, severe insomnia, Spinal Stenosis, DDD, Major Depression, no libido. I’m now in the last two years having intense night sweats. I can not regulate my body temperature. It’s terrible waking up all hours of the night soaking wet. I thought it was related to menopause and my hormones. Now I realize it may be in my nerve fibers as they are dying off as you explained. My excellent memory is now declining. I quit eating meat/dairy and it’s not helped. My body stays INFLAMED. The STRESS RESPONSE you speak of is EXACTLY what I believe as well. I have suffered the childhood trauma and I can recall what started this cascade of events. I had a horrific gallbladder surgery in March 1999. I had 25-30 stones the size of small olives. My gallbladder had adhered to my liver. I have never felt right or well since that terrible surgery. Do either of you believe that GLYPHOSATE could play a role in making our immune system attack itself as in the explosion of auto immune disorders since the introduction of GMO wheat and the use of RoundUP/Glyphosate? Im an RN and practiced for 17 years in a high risk unit on night shift before receiving my disability in 8 months in 2009. Then finally after 5-7 years of normal blood and diagnostic testing, my brain started showing the MS lesions in 2007 after having a grand mal seizure as they done an MRI. Then Drs started taking me seriously. It has been one roller coaster ride. Thanks!
@ beginning: That tall doctor looks like a bouncer or security waiting for one wrong word and “it’s on”😅. Also, when the doctor looks up at him, my neck hurts, and I feel like it’s going to trigger his/my fibro😂. In all seriousness, nice to see a physician who has lived this!! Ty🤗
He said it!!! "You need to loose xxx pounds and this wouldn't be a problem" I dont know how many times I have cried after getting that answer... That sarcastic tone while he said it 👏 I love it
Thankyou Dr. Rutherford and Dr. Gates for the wealth of information on Fibromyalgia!!! You continue to validate and educate us, and your knowledge is valued and appreciated! I lead a Fibromyalgia support group in my hometown, and I plan to share this video with my group, but also my friends and family! God bless you both!!!
Dr Rutherford, you both have given me the hope for finding some hope again! Thank you!!!
I am an 80 year old woman. I have had fibromyalgia since I was 28. I have been told everything. I am on pain meds because I’ve just given up on feeling better. I’ve learned so much from this. Thank you.
This is wild because all of this is me, pretty much exactly what happened in order. Chronic infections since childhood and trauma and neglect, got EBV and then CFS and chronic UTI, tummy issues like IBS, and then more stress, then panic attacks, PTSD and now diagnosed FIBRO. funny Im on cymbalta and gabapentin and a bunch of vitamins including Turmeric & curcumin, but my BMs started burning so I cut the last one and eventually got tired of all the horse pills and cut them all. I was found to be anemic and Vitamin D deficient so Im now on cymbalta gabapentin iron and vitamin c under doctors orders (I was taking vitamin D for many many months and was still low.) I started focusing on my sleep quality and stress reduction quite awhile ago but i'm cracking down. I do have to see a therapist for psychological reasons and everyone I've seen thus far has actually been quite helpful and at least don't make me feel like a liar. They in fact knew I had fibro before I did.
I have been vegan for 2 years and intermittent gluten free. I am now aiming for gluten zero for life lol. I felt immensely better after a year GF and then after getting ridiculed so much I stopped because the "science" was mocking me. I have watched and researched so much on the issue and I am convinced, no one should be eating the stuff. Especially with how food has been modified to be gluttinier than ever!! Vegan alone helped tremendously with my chronic UTIs, IBS, and mood. I was even diagnosed with Lichen Planus and going vegan helped that significantly as well, for awhile it went away completely. It was not a cure all of course.
I actually remain hopeful that I can either cure myself or eventually they'll find a cure. Psychology is so important for chronically ill patients because life with this is HARD! I meditate, do yoga, eat mindfully, go outside often, do fun hobbies etc... I am still so anxious and stressed but it all helps and it takes time. I can tell you many times my hope came through for me and I was right to keep believing. One day at a time, or even one step at a time.
Scoria . (guest)..
Hello, Scoria. Your post about your experiences rang so many bells with me : I have got about half way through the 2 docs' video, which also rang many bells ! I stopped to list all possible very early traumas, e.g., difficult birth experience, parents always fighting, early sexual assault attempts (6 and 11years old , then many from teens on, only subsiding gradually ! ( I am 69 now , so less vulnerable, hopefully!), early perceived abandonment ( sent away when mum's 3rd baby being born), niggling cough from age 12, loads of stress through adult life including " collapse" from job stress, malnourishment, sleep loss, poor living conditions( horrid one room in nasty old house , thieves stole my grandmother's engagement ring ( a gift)), then 50 years worry, overwork and chronic stress , ending up now with very little income, after partner lost our house ( not my fault), had effects of partner's mismanagement & bankruptcy , then cancer ( huge stress, knew it was a very bad one ), gradual long term dispirited feeling, never any improvement, always worry and 7 day weeks, with no outings or holidays , and now , constant fatigue, mild depression, chronic cough and arthritis !!!! I have been watching Dr. John Bergman's videos, which make such a lot of sense : he too says don't treat symptoms, but look for cause. It seems that chronic stress has spoiled my life more than I realised : I thought if you soldiered on and took anti-depressants , it could be at least lessened...but there is much more to it than that. I knew for years that the brain does store memories, a survival mechanism against falling into danger .
I have tried very hard to make a good balanced diet ( based loosely on the Hay System), and that must have helped, but with advancing age, I think the body is less able to defend itself, so to speak : longer to heal, tired more easily, etc. So the effects, from whatever cause, will be more troublesome, and need extra effort to manage.
So Fibromyalgia might be the answer to all the varying problems, as the Doc's say here. And understanding the causes, plus having strategies must be a great help. I am so happy to be able to listen to these videos, and hope all those struggling with this complicated syndrome / condition will be able to take heart : " bless" all those taking the time and effort to tell us all they have found : it all rings true. And thank you, Scoria, for sharing your experiences.
Take care.
☺☺☺☺☺
Seriously these doctors are life savers. They really break it down and allow you not to feel crazy. This describes me in a nutshell. Been to so many doctors and been made to feel insane. No answers for literally years. We t through a car accident, surgery and HP Pylori and was getting married all in the same year. This makes so much sense now. Thanks doctors!
Did your car accident cause it
You have just answered all my problems that I have been suffering for years.
No doctor has ever touched on any of this.
I have just learnt to live with it, put up with it, but just wishing it would all end.
Thank you so much for such an informed explanation. I no longer feel like I am just going through this alone and no one understands.
Thank you to you both 🙏🏻
Brilliant video. I wish more practitioners had this level of understanding about Fibro and autoimmune conditions.
I'm an RN. Had Fibromyalgia for a few decades. This was the best explanation I have ever heard. I have a fibromyalgia art group on Facebook. This will be my first 'medical' Share with the group. My doctor came close to getting it right, but stopped short. I actually finally figured lots out from learning about the etiology of IBS. (PS Considered non-compliant, I was more like "less is more" most of my life. Sounds so much beter. 😉) Thank you!
Are you still doing art?
Yes i wish we had more doctors like this .. My spouse had fibromyalgia and was always sick with IBS and had stressors which made her fibro worse. But several doctors didnt believe her .
YES SIR, THIS SOUNDS LIKE ME.. I HAVE STARTED TO CHANGE MY DIET. IT HAVE NOT BEEN EASY.. THIS FIBROMYALGIA WILL WAKE YOU UP OUT OF YOUR SLEEP.. THE PAIN SOMETIMES IS UNBELIEVABLE!!!!
I am convinced that this is what my wife has and could never be diagnosed! She has IBS, pains all over her body....lately has mild fever mostly at night ...she has hypothyroidia, she is very depressed. We just discovered that she has inflamation in the blood. Gastroscopy confirmed she has Two huge bleeding polyps (one removed) one left to remove. Another problem is her kidneys are working at 40-45%. They want to do a biopsy because they do not know from blood tests why they are not functioning properly. Our GP missed it since at least 2013! My wife has pain all over her body.....mainly fingers, toes, feet, lower back, shoulders, knees. Now the search for a Dr. who can diagnose in Ottawa Canada. She has had several very stressful life events.
Thank you for validating all the symptoms of fibro patients. I'm blessed to have a good rheumatologist and neurologist but your detailed explanations are very helpful.
Less is more! Truly the truth...l have discovered that on my own and now at 75 years old I am living fairly well with my fibromyalgia... but these guys rock!
Thank you so much. This video is priceless for fibromyalgia patients like myself. Understanding our condition is so crucial. I went to many specialists during 10 years and only last week was diagnosed. Thanks for your research and for communicating to the public in general. Your work may improve and even save lives.
this information was absolutely outstanding. you've put all the pieces together and finally the symptoms all make sense. they truly are all connected. thank you for your insightful video. greatly appreciated.
I have Hashi's & Fibro and had E.B. & had a similar experience with pain & weight gain and people telling me I was going nuts. My relationship went downhill as well. Thankfully Im much better now. Thank you for getting the word out!
I was diagnosed 25 years ago...only because I synchronistically met a woman who described my symptoms & had a diagnosis. I was able to go to a doctor & ask him to check me for FM. I had 24 out of the then 24 possible trigger points. However no one innerstood what FM really was, although I could feel that it was an over firing of my hypervigulant nervous system & I knew it had been brought on by one too many stress & trauma. I could feel that my body had gotten one too many stresses & that was it, something just snapped. In 2003 I went to see a beautiful Pain Specialist who specialized in FM & who went to world FM conferences & they knew the basic cause at least. He agreed that it had been found by hundreds of specialists worldwide that it was indeed an over firing of the nervous system. Now days it is called hypervigulance of the glial cells - the immune nerves. However I have since learned that I was subjected to extreme abuse & trauma as a child - the memories were repressed because the trauma was so extreme - & it is common that adults of child severe abuse end up with a nervous system that is hypersensitive & hypervigulant as FM is described.
Essentially we need to release the trauma in order to heal... but it doesn't help if abuse & trauma continues throughout life, which is common with women especially, who were severely abused as children & who continue to attract what we know: abusive, predatory men. In my experience, even with decades of trauma release, the best I've been able to do is manage the complex PTSD & hypersensitive nervous system & tone down the glial cells with a herbal supplement of bilberry or blueberry capsules.
I've had fibromyalgia for 18 years ,started after the traumatic and sad (last) pregnancy with my twins, I had a epidural with them which the dr screwed up and punctured my spinal cord and left me paralyzed for 4 days.. I became very sick after that and just continued to get worse...I'm 50 years old now and feel like I'm 90...I'm sick and in constant agonizing pain every single second of every day.....I think fibromyalgia has something to do with the spinal cord and effects the brain...I have issues with speech and memory loss I'm slower mentally also brain fog I get confused easily, it's embarrassing and frustrating...I don't even trust myself to drive anymore 😪😥😞☹😢😭 ..it's nothing fake about fibromyalgia, I wouldn't wish this on anyone , people and doctors who are skeptical and think it's bs and attention seeking and wanting drugs...just try to live one day in my body...you wont survive it
I am so glad I found your channel. I feel like I have been living among people who speak a different language. I can’t get them to understand me no matter how hard I try. But then I listen to you two speak and it is like finding my own people! Finally!! God bless you both!!
Retired RN me, w/fibro is profoundly enlightened w/an upside down A+P presentation will now live a better life...worth the price of my computer, is this video! WOW..Never knew about gluten/depression/relateing to killing of brain cells link either. Blessings!
This is so me... I wish my physician would help me. I have had all over pain, depression, PTSD from finding my Dad had committed suicide. I have stomach problems, I seldom eat much. Everything makes me nauseous. Heart palpitations, anxiety. I can't sleep. I am 60 years old & have no energy. Most days I spend in bed. I had pneumonia @ 21. I wish I could just die! No Dr. Seems to want to help me. They say it is old age & arthritis. I wish someone could help me. I am so sad . Don't think I will ever be better. Can't even work anymore. Maybe my Dr. thinks I'm crazy. Ty for sharing your information. God bless you
Joy Sheets so sorry you've been experiencing all of this. Please know you are not alone. Check out Jen Brea's TED Talk about when your doctor doesn't know what's wrong for more who have experienced similar things. I encourage you to look for a different doctor who will listen and respect you. It took me years and many doctors before I found ones who could actually help and give me a real diagnose. Unfortunately that's not unusual. Please don't give up fighting for yourself.
Knowing Jesus has helped me so much...
this is more helpful than any doctor i’ve talked to in real life… the way he explains the fight or flight mechanism made me connect some dots on what’s going on with me. wow.
Ok I get it but no indication of how to start the destressing process . I live in UK. So explained it well but not much help here for me
I'm a sufferer of fibromyalgia, and I truly believe my grandma had it too. This was back in the 70s. She went through many doctors who believed her to be a hypochondriac. She really had a lot of pain. It wasn't as bad for me when I started having problems in mid 90s. But there is still hard.
This is awesome. I keep saying after I had my hysterectomy six months later I started having all these issues. Good information is not giving after you have it.
Thank you for that clear explanation. I was diagnosed by a rheumatologist in 2007 but it is very difficult to get across to family how sometimes I can do something and other times I can't. They also don't appreciate the difficulties of remembering and how low and tearful I get every couple of weeks or so. I frequently get 'what's the matter with you....sort it out' attitude. They don't get it. I think mine was triggered by the suicide of my adoptive father when I was 13....(I had already lost my father from cancer and mum remarried). I was very close to him, he was already my uncle through marriage. So, 50 years later I'm still struggling but I feel hopeful listening to you both that I may be able to improve things. I'm about to watch the next video.
Thank you fellas for putting this whole puzzle together and sharing with us. I knew that this had to go a lot deeper than just some trauma episode. About 8 or 9 years ago I went to the doctor and said please tell me what is wrong with me; I just want to die! I told him my symptoms and he said it sounds like you have fibromyalgia and he put me on some medicine. It is not good for my liver but it helped me want to live again! Since then, I have been searching for some microbiology answer to where this stems from. You guys have shed a lot of light on the subject. Thank you so much. God bless you both. 🙏
I never went to the doctor or had a prescription in my life. After invasive surgery I was never the same. The doctor didn't know why I wasn't feeling better, I should be. Put my symptoms in the computer and fibromyalgia came up. Six years since "invasive" surgery and I still battle fibromyalgia everyday. People look at me like I'm crazy, you look fine? It's the invisible disease. I can't describe the feeling, it's like a bad hangover lurking over me every single day. Yes, I don't sleep at night and yes, I notice I have brain fog. I can't remember famous people's names. When I go grocery shopping my eyelids are so heavy I feel like I could fall asleep in the middle of the store. People look at me like, fibromyalgia what's that? And yes I talk to people who say they have it but I do question, it doesn't sound like the same suffering I'm going through. Some say mine went away. I think well mine's not going away aren't you lucky.
EMS electric magnetic frequency
Had to be factored in as a cause.
And has to be considered during treatment and managing. Frequency has gotten a lot stronger since the 80s and causing many more problems
I'm at 21 minutes and you just have hit the head on everything. Your amazing.
It feels scarier and scarier inside my body with all the symptoms getting worse and no research what is causing it inside of me...here in the Netherlands.
The pain is so bad I just don't ever want to wake up again.
Susan Camp I could barely tolerate being in bed. We must keep healing and never give up. 🧡
Don't give up my prayers are with you all
I know exactly what you mean
I'm 14 years old and I have extremely bad pain in my legs back and arms I have problems breathing I never sleep or have energy my stomach hurts all the time I get chest pains sometimes I feel like I can't think right I get nauseous and I'm too of that I'm 14 I'm going through a big change in my body plus school majority of the time I have to do work at home and my school doesn't believe me and I feel like my thinks I'm faking part of it she thinks I have it but she doesn't think it's as bad as it is. A couple years ago I was spending summers with my grandma just because we get along so great she's not like a normal grandma who knits she likes to do fun stuff but her daughter my aunt is on drugs and she ended up having to live with my grandma all they did was scream and yell at each other and yell at me and I was extremely stressed out for years and then people at school were me and I'm a perfectionist so I do everything as best I can do it so I was extremely stressed from the school and my aunt also my grandma has arthritis and my great aunt has lupus which may or may not have anything to do with it. I'm so mad and depressed everyday I just wish I could go back before those summers and prevent myself from spending my summers with that crazy aunt because now I'm worried about school I'm very smart I was going to start a business at 16 I have so much stuff I've been working/figuring out since I was 11 not many kids can say that these days I hope lord I hope I can do something so I can atleast go to school if I can just go to school I'dc if I have to get in bed right when I get off the bus I have to go to school i wanted to get a masters and go to a higher school such as Princeton I was taking classes two grades ahead of me but now I can barely go to school thank I will finish this video and get my mom to watch it to and I'm hoping this will help because everyone thinks I'm crazy and it doesn't help when your 14 and your body is changing thank you so much Finnaly I feel as if I'm watching something real not something that's nonsense
Obviously we wouldn't be able to diagnose you from this brief history, but you have many of the core symptoms that many of our fibromyalgia patients present with. Hopefully the video has helped you to know that you're not crazy and is able to help you explain to others what is going on and hopefully get you on the right path to getting better. Best of luck to you in the future sounds like you got the tools to make a big difference out there! As a side note I used to live on 8 miles away from Princeton good choice.
Look into the ketogenic diet. It helped me tremendously.
This is spot on and had most if not all symptoms and tried most of these remedies, I have been going to a lot of doctors and not one has had anything to say about fibromyalgia even if I did ask. But in my case no problems until I got to 55 years of age no medication and no smoking.
After 10 years I have got back on track or at least much better life quality.
1. Stress reduction is as you say the most important thing to get fibromyalgia under control. In my case yoga and soft exercise and saying NO. Lying on a nail mat is also a good way to release stress and improve blood circulation.
2. Food , mostly plants based organic Whole Foods, no junk foods , no alcohol. Fasting now and then most styles work, but I prefer the easy way like time restriction or 24 hours a couple times a year.
Wish all people with fibromyalgia see this. Should be mandatory at school.
By far the best video I've seen on the subject, finally I feel like I'm not going crazy and there is hope of relief if not a cure.
Thank you so much! Finally someone who gets it. My worse experience with a physician was when he asked me if I was munchausen.
THANK YOU! Finally something that makes sense and feels like an answer that is real. I took notes during the broadcast because I would forget half when trying to discuss this with my sister. I will be heading over to your site..
I have been dealing w this for 11 years. It's has ruin my life & can't even remember the last time that i didn't feel like absolute total
shit!
THANKS SO MUCH FOR CUTTING THROUGH THE BS! YOU TRULY UNDERSTAND OUR PAIN....
Hello Doctors. I'm a watercolor artist - drawing is all I know and I could not live if I did anything else. The battles I've faced with my Fibro has had me quit my job (which was great to live on my art full time by attending anime / comic con conventions) yet has left me too weak, pained, or discouraged to continue my up most passion. To hear this information is such a relief and hope knowing there's people actively researching ways to treat this. I thank you so much.
IM SO GLAD I FOUND THIS !!!! THANK YOU SO MUCH FOR EXPLAINING THIS !! EVEN THE RHEUMATOLOGIST THAT DIAGNOSED ME DIDNT EXPLAIN THIS TO ME AS WELL AS YOU GUYS !!. IM JUST SO TIRED OF PEOPLE SAYING YOU DONT LOOK LIKE YOU HAVE PAIN !!1 THERE ARE TIMES I JUST SIT A CRY BECAUSE THE PAIN IS SO BAD AND PEOPLE JUST DONT UNDERSTAND. I HAVE A VERY HIGH PAIN TOLERANCE AND EVEN THOUGH I STILL HURT BEYOND BELIEF. AGAIN THANK YOU FOR THIS !!
I’m 67 and my Rhymatologist diagnosed me at 35. I’ve been with him ever since , a lot of drs way back when I was diagnosed, did not believe in it. I feel so blessed I found him. He is now a Professor
Your video is going to help many
Thank you for doing this video
Are you any better now did he tell you of brain connection this is the work of Dr Sarno tms
Many doctors don't even know or will admit there's such an illness as Fibromyalgia explaining the problems we have.
GOD Bless you, this is amazing and a breaking new hope for all of us fibromyalgia warriors. THANK YOU THANK YOU, once I am able to walk and be able to have less pain . I will strive to become a neroscientist 😄😄😅😅
I'm going to have to show this video to my doctor see what he says
This is spot on and had most if not all symptoms and tried most of these remedies, I have been going to a lot of doctors and not one has had anything to say about fibromyalgia even if I did ask. But in my case no problems until I got to 55 years of age no medication and no smoking.
After 10 years I have got back on track or at least much better life quality.
1. Stress reduction is as you say the most important thing to get fibromyalgia under control. In my case yoga and soft exercise and saying NO. Mail mat is good as stress relief and for blood circulation.
2. Food , mostly plants based organic Whole Foods, no junk foods , no alcohol. Fasting now and then most styles work, but I prefer the easy way like time restriction and 24 hours a couple times a year.
Wish all people with fibromyalgia see this. Should be mandatory at school.
I'm flaring at the mo with FM, the pain, I'm wrecked walking around like a zombie. I had huge stress last week and hey how it's back like a big monster. One area gets so bad my breathing is effected, then my breathing is ok. What did we do to deserve this
Suffers of Fibromyalgia cannot rely on medication alone, lifestyle changes are most importante. Meditation or mindfulness works wonders for stress relieve and management - Yoga best exercise for Fibromyalgia.
This has helped me so much now I know it’s not all in my head I am ashamed to tell anyone that I have fibromyalgia because mostly the reaction is Oooooo k you are making it up I am 69 years old I know when I was young I realize I had it then
I feels like my skin as been ripped off and the pain is unbearable and the doctor is saying its due to depression..yea right
I literally feel sick watching this.. it just hits home so hard. Feel like some of this could have been avoided. Have just given up at this point. There are no good docs like these guys here in TX . What does someone do?
This is a very informative video. It explains so much and why my whole life has led to a Fibromyalgia diagnosis. I now also understand why I cannot lose weight no matter what I do. There are so many factors to consider. These two doctors are well educated, well informed, and are passionate about this disease. I wish they could come to me and tell me what I need to do in order to feel more like a human being. I commend these two doctors for researching and educating themselves on a much dismissed disorder. Thank-you!
Very helpful indeed! Thank you so much for taking the time to explain this wretched illness to us fellow sufferers. I can't wait to watch the next videos in the series.
OMG this put me in tears. Thank you so so much. Every Dr. should watch this, should be mandatory. I'm in Canada and I've had fibro for ten years. No matter how many times I tried to explain to DR's that it's not arthritis they don't seem to understand the nerve pain.I was diagnosed and went through all the meds. Now in past five years it's my gut that's suffering and yes bowels.
Every one of your programs I listen to, I learn. Even when the medical issue is not my specific issue, I still learn as the piece of the puzzle of autoimmune conditions are put together. Today I leaned that my husband's supposid "mono" at age 15 was really EBV. And his lifetime of a bad gut/digestive issues and allergies and his current high blood pressure, insulin resistence, short term memory loss, periferal neuropathy and probably a thyroid problem (cold feet.). I am also learning it is ALL connected... And yes, I have no tonsils, uterous (endometriosis) gull bladder and now Hashimotos and chronic fatigue. Thank you for all that you do. I sure wish you were closer to Michigan!!
Dr. Rutherford, I'll have to watch the rest later, but....I could swear that I'm listening to myself. I've experienced severe stress/trauma, I've had pneumonia twice, I had a period were I lost blotches of facial for almost a year...etc. To this day, part of my fibro symptoms is difficulty breathing. Sometimes my lungs fill up with liquids. After 30 years, and having taken every fibro remedy out there, pain killers work like magic. My life has been restored, except for at night. (Pain, and difficulty breathing, causing severe sleep deficiency.) I've tried 2 doses of Xanax, and had the best sleep I've had in decades. I've been trying to get my doctors to prescribe 30 pills a month, but they would rather I die from my 3rd heart attack rather than prescribe me a schedule IV narcotic. Anyway, I look forward to seeing the rest of the video.
Thank you so much! As a Fibromyalgia suffer this video was life changing for me ✌🏻
In all the years I've had these problems this is the best video I have ever seen thank you so much
Thank you for a comprehensive and well delivered explanation of this terrible ailment. I have been through every test and continue being told there’s nothing wrong with me. I wish more doctors would take the time to understand the factors involved.
I have had FM for over 40 + years now. I am 75 yrs of age. I have had very bad years, lots of surgeries, tried many medications. Have stuck to OTC for pain. Prescription medication is a must for sleep. I have been fortunate to have always had good doctors. Have found if I get 8 hrs of good sleep, most of the time I can cope with the pain. Less medication is because I am a medical person, and have made this choice. Stress does make me flair. Meditation, biofeedback, light exercise, all things in moderation, hot bath, Tens. I have found that even though arthritis, Graves Disease, IBS, etc, made my condition worse, brain is gradually rewiring it’s flight or fight area. Weather changes do continue to bother me. I in a honesty feel I am doing better today, than in my 40-50-60. Knowing I can not change my condition, only that I can change how I think about it. Try not to dwell on your symptoms. Don’t let it win!
This is me! I am tearing up, because I understand. Thank You so much!
OMG I wish you could be my doctor!! EBV infection back in the 90s, domestic abuse survivor, been homeless, had a special needs child at age 43, now have a positive ANA, Hashimotos since giving birth, had Shingles in 2014!!
Today I’m disabled and currently going through a flare since weather changed. Don’t take narcs or benzos anymore. Don’t take SSRIs because I refuse to give up my Flexeril (Serotonin Syndrome). Use high doses of naproxen but have Diverticulitis now. Have back injuries from car accidents.
I was just approved for medical marijuana because nothing else has worked. High CBD isn’t working so will try 1:1 ratio formula soon.
I’ve had times where I’ve felt better and could function. Right now is the worst since the weather turned cold.
I’ve had doctors treat me like psychotropic drugs would cure me. I’ve have a rheum tell me to leave his office so he can treat people who are really sick!
Thank you for this video😊