The Two Types of Long Covid (and the Role of Autoimmunity) | With Prof. Carmen Scheibenbogen
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- เผยแพร่เมื่อ 1 มิ.ย. 2024
- This is the first of a three part series where Dr Asad Khan and I talk to Professor Carmen Scheibenbogen from the University Hospital Charite in Berlin. She’s a long recognised expert in the field of ME/CFS, and has recently been researching patho-mechanisms and treatments in Long Covid.
In this film we talk about the two types of Long Covid that were recognised in her paper that was published in Nature Communications, and just how big a role auto-immunity might play in driving the condition.
The paper discussed in the video:
www.nature.com/articles/s4146...
Prof Scheibenbogen’s most recent paper:
www.frontiersin.org/articles/...
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Before I caught Covid in March 2020 I was a filmmaker. I’m not well enough to go back to work yet (shoot days are brutal), but I’ve decided to indulge my passion by breaking down the hottest recent films and TV shows (from an insider’s perspective) to describe exactly how they work. Sound interesting? Here’s my first film on my second channel, on Top Gun vs Top Gun Maverick (and why the sequel is better!)
• 5 Reasons Why Top Gun ...
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The Long Covid Handbook (Feb 2023) by Gez Medinger & Professor Danny Altmann (and published by Penguin Books) is now available in paperback, ebook and audiobook. A singular resource that brings together everything patients, clinicians and academics have learnt about the condition to date, as well as lessons from sufferers and researchers of ME/CFS and other chronic conditions. It offers world leading expert advice on understanding, managing and treating Long Covid. It is available from the following links.
US: a.co/d/0gvkJCU
UK: amzn.eu/d/9KjurGb - วิทยาศาสตร์และเทคโนโลยี
I think the best way for me to describe the relationship with accessing energy post exertion with Long Covid is this: Imagine the water cistern tank in your attic is full, you know the water is there, but after you flush your toilet, it takes AGES for the toilet cistern to refill, due to low water pressure. So, no matter how many times you try to flush it, you only get a tiny little flush, or just the noise of an attempt with no water. That's how it is trying to access your energy stores with Long Covid. You know your body has energy, it has fat stores etc., but you can only use a small bit, and then your body just takes ages to refill the tiny 'cistern' it appears to be using with Long Covid. Or, it's like a plane that has a full fuel load, but only uses the 'reserve' tank until it runs out. Then the plane crashes, with full fuel tanks, because it would only recognize the reserve tank and not use the main tanks. Does anybody else identify with this?
Absolutely!!
YES YES AND YES!!! My husband has had long covid since last May. He was seriously the energizer bunny before Covid, now? He can barely walk across the room without getting out of breath, chest pain, and fatigue, and muscle weakness. He says the same thing...his mind wants to work, but the body says no way! If he makes the mistake of pushing it, he suffers for days with muscle pain, general body aches, and extreme fatigue. He also suffers debilitating headaches, and muscle pain. So far he has had lung tests, a cardiac stress test which had to be stopped 5 minutes in due to shortness of breath, and severe dizziness. On Monday June 19th, he is slated to have a contrast CT of his heart. He is being tested for a lot, he is seeing a lot of different doctors, but none of them seem to be communicating with each other to actually identify and give a formal diagnosis or even a proposed treatment plan. Very very frustrating.
@@cindysplace8984 So sorry for all he is going through (and you by extension). We are in uncharted waters, and we are the pioneers. So many weird and unexpected symptoms. Back to basics, my Dr. advised me to try a whole-food plant based diet. It helped reduce inflammation, but nothing is a magic bullet. I also take plenty of supplements. I take medications where advised, but there is little that actually has an effect. Recovery is very unpredictable and comes in peaks and then troughs. You have to watch for the long term trend, not the short term. And, of course, keep an eye on all the amazing research coming out. Look for little bits of joy each day and catch yourself being happy when you didn't expect it (I'm happy in THIS moment enjoying the morning sun on my face etc.). Remember, you are not alone.
Thank you, Michael, for the words of encouragement. It is so hard to watch a loved one go through this kind of hell and feel so helpless. We both contracted covid at the same time. After about a week, we both started to feel better, and then 2 weeks later, he began to back slide and just could not shake it. I suffer from multiple autoimmune illnesses, yet I came out of it with no issues. One step, and one day at a time. We celebrate any little victory, and I really make sure that I stay positive and supportive.
Has any Doctor given him prednisone? My husband had the very same symptoms your husband is suffering with, and 20 mg of prednisone daily has given him his own life again. For him, it is a miracle.
My son had a nearly non sympton Covid positive on March 9th having two vaccines and two boosters. In less than 4 weeks, he barely could sleep 47 mins/nigth. His brain was on fire he said, POTS was very extreme, with 98% oxigen level in his lungs he couldn't breath and tachycardia was way too high . An episode of allucinations on week 8th. made him been accepted in a "mental health facility". Systematic extreme pain in all his nerves, organs, head and muscles after week 9th. Cronic fatigue hits in week 10th. He decided to end his life, he said he could manage one pain at a time, but not FIVE or sin. His pain was unvarable and the ER didn't accept him - again - saying all his tests came "normal". He was saying "he does not belong to that body" and living that kind of life was "not living". What is happening with doctors that don't know anything about LC and which are the medications recommended for this type of pain? Is it normal so many doctors do not know whats going on? Is it normal many are commiting suicide? All this in Portland U.S.A.
Why you delete comment about jabs? My life is ruined after 2nd dose of pfizer... Same syntoms of long covid or worse. Stop lying to people. Why i can't write i m injured from jab?
Is your son still alive? Was this all this year? There are medications that can help, but few doctors know enough. For POTS, ivabradine. For nerve pain and insomnia, pregabalin. Fluvoxamine and LDA for brain symptoms, LDN for fatigue.
Sorry to hear about your son 😢💔
I am so sorry and yes, it seems typical for doctors to ignore and even refuse tests. Very disturbing. but typical even for CFS patients since the early 1990's; I do not see improvement from medical community. Sometimes there are interested Naturopaths, Homeopaths and Functional Medicine Doctors who have an interest and knowledge. It is a difficult illness. I hope your son finds some support and Relief.
I'm sorry to hear of your and your sons struggles. I don't know your sons' age but its not uncommon to develop PANS/PANDAS after viralinfection. Its an autoimmune disease that artack the brain and giving harsh psychiatric symptoms.
This autoimmunity & stress in the body & blood vessel problems are exactly what I got. Good to hear they are making progress!
Look into the peptide thymus alpha 1 and l-glutathione
Vasoconstriction and lack of vasodilatation is CLEARLY involved. You can feel it. And it explains a lot. But like she says, it's difficult to assess what triggers this in every individual. I've had priors thruout my life. The ppl around me who suffer the most were the most stressed and depressed in general. There is an underlying mechanism that the spike sparked.
Yes it’s involved, however I personally believe that although the blood vessels aren’t functioning as they should, this is just an effect of another problem. i.e. the mitochondria within every cell of the body (including the endothelial cells and the blood vessel system) has been put into a ‘Cell Danger Response’ (CDR is a hypothesis by Professor Robert Naviaux) CDR is normal during sickness, The entire system goes into a CDR a hibernation like state in order to conserve energy and only use it on essential immune defences and preserving organs. After the initial infection has been eliminated the body returns to its normal homeostasis, but people with Long Covid (with PEM) and ME/CFS the CDR never turns off. It appears to be locked on.
Meaning all cells of the body, including blood vessels, are pooped out and can’t do the job properly. So targeting the blood vessels or the endothelial system isn’t going to fix the problem because the cells just don’t have the energy to do their job. That goes for every cell in the body. Even neurones are pooped out (hence brain fog)
The reason the heart is able to keep pumping this because it has a much more densely powered mitochondrial system than normal cells. It has evolved to keep going under extreme conditions. Although the heart too does seem to be affected after day 2 of exercise testing, as it can’t keep up with the demands of exertion, notably a lower bpm than required during exertion. During times of rest however the heart can beat a lot faster than it should as is trying to supply blood to the body because the blood vessels aren’t helping return the blood via their own constriction/dilation pumping system because their cells have pooped out of energy.
If we can work out how to turn the CDR off to restore normal mitochondrial function then the entire system should just reset to a healthy state.
Unless it’s autoimmune issue that’s keeping CDR on, then targeting that instead will be the answer
@@brobinson8614 very good hypothesis. I also think the exact same. It feels like the body is fighting something (maybe itself - hence the auto immunity). I've also suffered nerve dammage. Tingling, burning, my core muscles are weak and have no tone (I was very fit) and I sometimes have difficulty walking. Brain fog has turned into mild dementia.
Auto-immunity and cancer tumors after prolonged exposure to inflammation scares the hell out of me.
I really agree although I think ALOT of this is the virus itself. Years ago, Sars was out there.
People got sick and even those vaxed with the annual flu shot, it was very, very difficult to kick. Others stated they also got the bug twice, then finally recovered.
I believe it does have a mitochondrial component in terms of what some people don't have enough of, or possibly, their unique immune response doesn't kick in at the end to resolve the culprit.
I recall years ago when those scientists were ill with Ebola. They used " blood" of the recovering subjects to assist those who were essentially dying. It worked ?
What exactly happened, and was the antidote properties ever published? Was it male to female or another combination used?
There is so much research related to the mitochondrial strengths and weaknesses in each of us.
Doctors have known about all this for years, too especially those in nutritional medicine.
Let's hope more can be shared.
Thank you.
🙏
Autoimmunity against Acetylcholine Receptors, could also be involved as Citicoline helped. Glycine also helps with LC as it activates Vasodilation
@@KaspaStacker This I have read more often, although I’m not sure how to test for it. Over the past couple of months I’ve been experimenting with citocholine, huperzine a, soy lecithin and mestinon (the latter being prescription medication) and I do find some interesting results. Most curiously, I am a lot less thirsty the day after I take a pill of mestinon (typically I drink 5 to 10 liters of water a day). As for the supplements, I do feel some effects, but they are also being actively used in the nootropics community so I suppose a lot of people feel ‘something’ when they take it. So ideally I’d like to test for Acetylcholine deficiency but I have no idea as to how I could do that. The doctor I’ve spoken to about this doesn’t seem to know.
Excellent. It’s so important to subgroup as specifically as possible. Also all long covid studies should really have non-covid triggered ME, disease control group.
YES!!!!
Absolutely. I contracted Epstein Barr virus and it later developed into ME/CFS. Now I have several autoimmune illnesses.
Flu, ebv, intestinal virus, chronic lyme and now long covid = ME/CFS
Lovely to see Prof. Scheibebogen on! I first read her and Klaus Wirth's hypotheses two years ago and felt that, at last, I could make sense of what was happening to me. She is really changing the game for ME/CFS
Thank God for people like her!! ❤🙏.
I was diagnosed with ME/CFS (Canadian criteria) 30 years ago and diagnosed with Long Covid after getting Covid in March of 2020. I've been housebound and recliner/bedbound for the past 9 years. So going to medical appointments are few and far between, as they make my PEM fly off the charts for a long period of time. Getting medical care for ME/CFS & long Covid is impossible in much of the U.S., especially in Florida where I live. I can't travel in the car for more than a few minutes, even though I recline in my seat while my husband drives. I am 68 years old and have very little hope of ever having any improvement. PLEASE keep working as hard as you can for me and for everyone like me. This isn't living.....it's merely existing.
I can only hope things improve for you asap.
Indeed your quality of life right now is far less than you deserve.... the mental health aspects by far must be the most challenging. The isolation and watching everyone else lead their lives. I hope you can find windows of hope and joy, being human is difficult, terrifying and unfair, as well as full of love and connection. What's happening to you right now is awful, life should be better, but I you are more than this experience - your life has been and will be more. Take care.
Did you get the covid vaccines
@@billyballsup2685 what a wonderful way of displaying your concern.
@@jpdprophotography6693 you listen to this and you will work out it vaccines causing all these problems it's not covid. It's another cover up.
th-cam.com/video/5LLk_xB071s/w-d-xo.html
This womans efforts have saved my life. Im so much better now im on autoimmune meds, now im not in remission but being in a place of finally understanding my disease means im pursuing treatment. What a fucking legend she is her and her team
oh yeah jex if been meaning to ask if you know if doctor khan knows someone who wants any data ive got from bloods and autoimmune treatment stuff? dunno who to ask but im going overseas soon for a big autoimmune treatment and i wondered if there was someone in the NHS who could use the data as a case study to help them develop proper stuff for patients who cant pay?
Fantastic to hear this!
very interesting - witch med did you get? B007?
How did you recover, which meds?
Thank you both for giving us your precious time and energy. Vasodilation clearly a problem - you can feel your blood flow is sluggish. It can be briefly and mildly alleviated by hot baths and aspirin (for those who can take it) but interesting to know about these defective antibodies. How do we switch the little suckers off? Elevated levels of inflammation seem to be a given. Also the link with asthma interesting - I found my asthma and me/CFS correlated. On behalf of the me/CFS crowd… thank you and don’t forget about us!!
It’s hard to SEE the light… asthma, ME-CFS, LC and, as a rezult, chronic pericarditis… how escape, my dear friends? Thank YOU, Gez, for trying so hard to enlighten us all!
Wow! How complicated is the immune system and the response to SARS COV 2 in some individuals? ...but it's all good news in unravelling the pathology and then developing treatment protocols. Thank God for these brilliant researchers...and Gez, for hunting it all down and brilliantly presenting it all for us , thank you ! 😊
This was fascinating. Can’t wait for part 2 & 3. Thank you Gez for all of your hard work trying to help us. Truly appreciate your efforts….. you have provided the best actionable info out there.
Thank you!
Yes, I agree. Much gratitude for these interviews with researchers.
Listen to Dr's like McCullough and Frontline Doctors. They have a shitload of truth and protocols that are working.
Thank you Gez and others. Please please continue we are so sick i don’t want to live like this anymore is because of my kids but i have given up my life. I can’t. Sorry
I developed Myasthenia Gravis (a relatively uncommon autoimmune condition) three weeks after a second AZ dose in Oct 2021. This has been confirmed by the presence of a high level of ACH antibody (> 8 nmol/L) and formally by a neurologist. I was resident in West Australia at the time where there was zero COVID in that state so this is NOT Long Covid. Overall whether you want to point to the artificial origin of SCV2 or the numerous people injured by the vaccines - this will go down at the greatest medical catastrophe of our generation. From fit and active I now have to carefully manage my energy expenditure every day like many others commenting here. And although most of the time I'm OK much of what I have worked hard for, my dreams for my future - all gone.
Very complex , I probably have to listen to her again! Good luck to everyone out there suffering from this horrible disease in the long term. There might be an effective treatment being developed. Fingers crossed
Very interesting (as always).
I know this was not done under clinical conditions however I went away to Cyprus (much warmer and more sunshine!) for a month. My LC gradually eased until life was pre-Covid. The daily Raynaud’s I experience gradually eased until by week 2, I no longer had the daily symptoms (temperatures were in the 30°s). My daily bruising subsided and my LC rashes disappeared and were a thing of the past.
I had initially gone because of my skin condition - I was convinced the sun would resolve the LC rashes. The other conditions were bonuses.
I have spinal issues so hoped the heat would help that - it did.
I know I will have to sell up and leave the UK for a hot country if I want any quality of life. Obviously I will have to research various things, but that’s what it fundamentally boils down to.
Great to hear! Were you having any treatments out there or was it just R&R?
@@RUNDMC1
R&R with the advice to “pace myself” (I have been to Pain Clinic previously because of FMS) and pain medication.
I forgot to mention within 2 weeks I’m virtually back to where I was with musculoskeletal pain, Covid Fog, rashes etc.
I for one am definitely an advocate for heat treatment, rather than chemical treatment!
Yes…. Vessel constriction through the winter coagulation? The Raynauld’s and chilblains went crazy post covid infection. Along with blurred vision and brain fog .
I finally bought cases and cases of Stick on body warmers placing them along my neck spine, especially at the base of my neck and spine along with over my digestive and urinary track as I slept and on my ankles and toes that deep heat for as many hours as possible along with very very slow walking with tons of lacing and bracing with supports in ankles and feet daily enabled me to survive winter.
The heat applied directly to those vessels seemed the ONLY was to get them to function to support circulation and digestion and urination and blood to flow around my brain heat applied to the vagus nerve. 🤷♀️
Now dealing with the heat of Summer it’s a different problem the vessels are so inflamed and irritated bulging in the heat humidity all the blood flows down and hypertension blood pressure and tendon issues due to lack of support. Still lacing and bracing and wrappings to try to support the tendons and vessels and blood flow but it’s harder. But I refuse to give up my very very very slow walk in the shade of the woods… the fresh air and outdoors my only sanity despite the effort and supports necessary to do so.
If I don’t move then everything constricts to a degree I can’t move.
Truly there is a certain temperature that really supports the system to heal…. Seeking 70° with low humidity and a nice breeze with incremented diffuse shade yes give me a beach somewhere and I think every little things gonna be all right
Your results match some of the studies done in hospitals on using red/near infrared light to heal from Covid. I’ve purchased a small light system (Joov) and it does seem to help the intermittent bulging, painful leg veins I developed post Covid. Being outside in the sun helps immensely too, but agree there’s a sweet spot in temperature as too hot also creates more swelling.
@@SweetiePieTweety I have been using an infrared light mat which has helped me.
As always, thank you Gez, for your never ending commitment to helping out all of us with your interesting research and interviews 😊❤
Thank you Kathy!
Thanks so much for spending your precious time and energy providing us with these interesting informational videos!
Least I can do!
@@RUNDMC1 You are a hero to many.
@@RUNDMC1 So very grateful to you Gez. Thank you.
@@wildhorses6817 thanks for your continued support!
Thanks for this.
So glad I'm still in the control group.
I was having such a good summer. Well that was until it clouded up and I was forced to wear a long sleeve shirt outside. I mow lawns all day long. My long covid symptoms are gut health and heavy right leg. They are connected. Well the day after it got cold, my symptoms returned. I take a small sip of pepto bismuth and seems to help. Also have learned long covid includes The lack of D absorption, or resistance.
Thanks again Gez appreciate your videos so much . And the time you take making them for all of us
Thank you both Gez and Asad! It’s an amazing work you do! So valuable!!
Thank you Tanja!
Many thanks for this Gez.
Thank you for this interview, Gez. Very informative and answers many questions I’ve had.
PLEASE FIND HELP FOR VAXX INJURED .....HOPE WE CAN DISOLVE IT SOMEHOW .
My skin is mottled and has been for 3 years now. Is this vasoconstriction?
Lovely to see Asad. Thank you as always.
It’s endotheliitis and poor perfusion / impaired capillaries
@@RUNDMC1 Thank you Gez.❤ Also have loads of tiny broken blood vessels on chest...
I started into long-haul a couple months after my first round of Covid Delta, the long-haul started mid-October 2021. Fast-forward to today, and my first day out from under yet another strafing run of the long-haul.
Blessedly, all three bouts of Covid I had were comparatively light, no hospitalization. Long-haul symptoms thankfully mild, compared to some.
What frustrates me is that I could not find any knowledge or support from other than online. I wanted to report my symptoms, my experiences, in hopes of helping the research along, after exhaustive searches on TH-cam ann Google, basically non-responsiveness. Closest clinic to us two hours away, no interest of even getting me on any wait list.
A bright spot, my primary care doc is in my corner, but I am the one feeding her information I find, not the other way around. Our county health is clueless, local hospital clueless.
Brightest spot of all, my husband is my champion, my cheer leader, and wonderful support.
But I'm tired of having this going on with no real person that has it. No support groups at all, I wanted to start one , but again, no ressponse, online or otherwise, no interest, no one coming out with, "Hey, that happens to me, too."
And, although Covid numbers are thankfully dropping, the less serious anyone takes long-haul. I have no idea in the US who to contact.
Where have numbers been dropping? Because the corrupt media says so? Statistics are skewed.
Hello I am looking for a support group as I suffering from this long COVID crap and like you have only watched videos and research online as much as I can to innerstand what is happening inside my body and head. I had omicrunked variant twice and it was hell for ten days on my body yet no hospital stays (yaaa) and no asthma attacks or anything respiratory which in its own is a miracle because I am asthmatic and have lived my life doing everything I can to get off all my asthma medications and free myself of this horrible debilitating illness. During both omicrunked bouts I was down for 8 to ten days with headaches like nothing I have ever experienced and fatigue that kept me in bed in a fetal position with eyes closed in one spot to get relief from the misery. The second omicrunked episode lasted longer and again the headaches and fatigue left me bedridden and miserable that was till the second week I developed shaking bouts in my head and eventually into my right hand like Parkinsons is how I could define it. Now four months after omicron crunkin I have fatigue still and tremor fits that flare up whenever they feel and the fits last from half hour multiple times a day to now two to 6 hours of intense violent shaking fits that hinder me from driving, going to work, and anything else that needs to be done as I have to lay in bed and just let the tremor work it's way out and the pillows help my head from snapping off my neck. The shakes make my head go sideways back and forth like nodding NO and YES continuously till I find a spot it ceases and remain there till it moves into my right hand and then it does it's thing wearing me out and causing pains in my neck and shoulder blades. I went to hospital in a fit and had head scan no tumors and they gave me Valium which only made me drool more lol then a referral to neurology
So two neurologist clinics have wanted to get me in asap but my insurance doesn't work at either one
So I have been trying the supplements and treatments I found online like the vibration ball in my hand to confuse the tremor and trick it into stopping which this has helped a bit yaaa. I am at a standstill till I can get coverage from who knows where for insurance to be able to get my head checked properly and hopefully some answers to fix this as it's absolutely killing my ways of life and my relationships with family and my husband as I am not very reliable as it's a day to day moment to moment for what I am able to do. Most of all is learning pacing and picking my battles on storing enough energy to simply go to work I am a server and it's been hard keeping my job when going into these tremors at work or calling in on short notice because a tremor hits.
meditation therapy and rest and prayers to get answers to learn how to manage in this new way of life without losing my mind or causing any brain damage from my head bouncing so hard is where I am at for today. The videos have been good at least for learning about this after I put my symptoms in to see what I am experiencing and this long haul long COVID seems to be accurate since it was not my life before I got omicrunked. Lol
I have to find humor in this because I will be in an isolated depression if not. It's absolutely debilitated my world and is embarrassing at work to have my coworkers see me and the look on their faces and feeling their worry and wanting to help me is absolutely painful for me. I explain to them it's more painful on others because I can imagine how I look and I am okay it just needs to work itself out so I let it rip and pray it's a light one that passes quickly. Well now they rip for hours but not daily usually I get hit with a bad two days of hell shakiiiing quaking and it's okay for a day or I go with one bad episode then another next day for days which isn't so bad except then the fatigue heightens and I am down again in this vicious cycle over and over again. I had to miss a wedding and a trip already and time with my two granddaughters because of these tremors. My relationship is hurting as it is hard to do my daily housework let alone yardwork or anything that requires energy because I have to work number one priority and if I overdue myself then I risk not being able to get to work and do my work duties. My work has been amazing and I am grateful for the support
It's the mental thing that messes me up sometimes explaining to my loved ones about this and seeing that I look fine and my mind is there mostly hahaha I am true blond so the brain fogging clutzy forgetting ding ding thing is part of my wonderfulness though through this I do feel dumbed up at times in really stupid ways. It's frustrating embarrassing overwhelming and I feel so sad in my heart for anyone experienced in this situation. When I first began learning about this and watching others stories about this LC bs I felt like I wasn't crazy and finally made sense that this is really happening and once again confirming my intuition that humans know a lot about nothing and this whole sars has a purpose created by those out for their own agenda and we are here for the party. The docs at hospital all confirmed this is a all learning as we go along rollercoaster ride and all we can do is buckle up and pray we don't fall of the tracks and together we can get through this without the loss of our minds or our lives. I don't believe it can't be fixed as I go deeper inside myself and feel the life inside every ounce of this body I gain knowledge in myself and journal the journey so maybe just maybe something clicks and there will be the light that turns on to end this terror attacking my being.
I am not the same as I was before I was omicrunked and I will be better then before and hopefully be able to help others who are living this so we may at least find innerstanding and peace to get the joys back into our worlds. And help others get out of the ignorance and get in the light of love and compassion. Bless you for being proactive and supportive and open to finding better ways. Anyways sorry so long this is where I am with this not for Long hauling COVID crappy way for today. Lol ❤️😭 long live me not hauling covey anymore hahahaha
@@reginarusso8181 Your experience sounds very similar to mine, except my symptoms aren't as pronounced, but they do come and go at will.
A couple weeks ago, I woke in the middle of the night and felt a general shaking. Since we live in the northwest, I thought we were experiencing a mild earthquake. I have been through mild quakes in years past. But he reassured me there was no quake, although I was certainly going through one. It faded away within thre minutes, but, there you go. Such is long-haul.
One thing that I think may be helping me now is taking a few tablespoons MCT oil throughout the day, which is supposed to help the cell mitochondria do the job of processes for releasing energy, plus am intermittent fasting. I started out with only a tablespoon in the morning, just to make sure my system can handle it, and have had no problems. Also switched from sugar to allulose, as there is a study claiming erithritol association with clogging arteries (Dr. Steven Gunderson and research).
@@judyjones5089 How many jabs have you had so far there?
@@safeeffective385 Thank you, I got the JNJ single dose a month before I actually got Covid for the first time, and in retrospect to the findings that have come out on the vaccines now, I am SOOOO glad I did not get any more. My hubby got the MRNA and got Covid a week before I did. He brought it home from an out-of-town convention, as several travelers in his party also had it the same time.
Thank you Gez. Good information.
Can not thank you and Asad enough for the time and research you put into LC!
Thanks Andy!
Thank you Gez. This is all so fascinating. Perhaps we can finally get to the bottom of the ME/CFS mystery. I hope you are doing well too.
Thanks Erika!
thanks for this video, Gez
my buddies kid almost died after he took the shot. he's all messed up to this day. the doctor says he has long covid. weird that the younger crowd seemed to do ok with the first wave of covid but after they all took a certain thing a lot of them suddenly got really sick from covid. doctor please explain
🦗🦗🦗🦗🦗
Funnily enough mine had the Pizer six months later severe anemia b12 deficiency followed by a cfs/me diagnosis. By the way there is now an established link between that jab and the b12 if you did not already know. Dr John Campbell you tube. The docs are only saying its long covid as they cannot possibly tell us it was the jab it flies in the face of all that they tell us about its safety and so on they have to spin it to be a positive.
Thank you.
So glad to see another video of yours. They really saved my life and started my journey of recovery over two years ago ❤ Keep up the good work #notrecovered
As I’ve mentioned previously, I’ve been diagnosed with Long Covid and Functional Neurological Symptoms secondary to Covid. Functional Neurological Disorder is even more stigmatised than ME/CFS: the diagnosis follows presentation of motor or sensory symptoms that lack compatibility of the symptom with a neurological substrate. In other words, it’s psychological.
In my case, it means I’ve been told there’s nothing to be done, I have to change my perception of pain and I have to take responsibility and self manage. It’s not help by the Scottish Government declining to take a strong lead on LC and leaving it to local NHS boards to decide their own approach. My board has only just appointed a clinical lead for LC, there are no specific services and access to support is down to GPs - I’m rural and the only practice I can access is dismissive.
I’m now written off as someone who doesn’t take responsibility, is malingering (previous GP at an inner city practice actually said that) and is probably just after drugs (“not going to prescribe anything that leads to dependency” - in response to requesting help with symptom management and not asking for medication). I may work in the NHS but increasingly despair at the attitude of many of the healthcare “professionals”I encounter thanks to LC. They use their power over patients to indulge their prejudices and blame the patient.
The research papers are interesting: some report overlaps between LC and FND others says LC and FND should not be linked. It’s challenging typing citations on an iPhone SE due to the small screen so I’ve abbreviated them:
Albu et al (2022) Functional neurological disorders in post COVID-19 patients. Case series
Gillio et al (2022) Case Report: Overlap Between Long COVID and Functional Neurological Disorders
Kachaner et al (2022) Somatic symptom disorder in patients with post-COVID-19 neurological symptoms: a preliminary report from the somatic study (Somatic Symptom Disorder Triggered by COVID-19)
Teodoro et al (2023) Functional neurological disorder in people with long COVID: a systematic review
Van Der Feltz-Cornelis et al (2023) Neurological Dysfunction in Long COVID Should Not Be Labelled as Functional Neurological Disorder
Wildwing and Holt (2021) The neurological symptoms of COVID-19: a systematic overview of systematic reviews, comparison with other neurological conditions and implications for healthcare services
I have a diagnosis of ME 2019, post infection and more recently FND - a month ago. I wasn’t aware of the physiological changes tho my brain either in 2 areas of gliosis and a dva but neuro said these are stable, not in an area that would suggest MS and it looks like a symptom pattern of FND with ME so not to worry. I had Covid x3 too and wonder, is this all related?
Look up the origins ~ patents taken out on both the non novel coronavirus and its buddy the toxic injection and include the patent on the PCR test. Both virus and injection contain gain of function research and spike protein ~ ie toxicity aka poison.
Over my 50 year experience with medicine, many "psychological" syndromes have been found to have explanations in inflammation, infection and dysregulation of physiology. Docs would get more respect if they told patients the truth - "I can't explain why you have your symptoms - yet."
@@johnauner671 The GPs I had in Edinburgh at the start of my "Covid journey" were excellent, saying just that "early days with a novel virus" and exploring ways to manage the symptoms. My next surgery, also in Edinburgh, made it clear I was a malingerer (one GP actually said that) and a phony - even with a senior consultant's diagnosis backed up by reports from various specialities and my then charge nurse speaking up for me with another judgmental GP. I escaped them when I moved to Aberdeen and found another excellent practice with an FY2 GP backed by an excellent senior team of partners. They took the same approach as the first surgery: "let's see what we can do to manage your symptoms and exclude ant other possible conditions". And then I returned home, going to back to a rural practice. "I don't know why you're seeing a neurologist for normal aches and pains," according to one GP. ""There's nothing to be done" and "you have to take responsibility and self manage," according to another. It's a lottery and if you draw the wrong surgery or GP, you're screwed. My experiences are mired by those of my patients with Long Covid: get the right GP and you get some support (scarce resources means it's not much but it's there), get the wrong GP and you're cast into the wilderness as a whinging, hypochondria malingerer.
Thank you Gez. I would appreciate a definition of all the acronyms used in each video listed the video description. Not all of us know what they are.
Yes good shout
Gez! Next time ask her about Epstein-Barr activation because ca. 70% of LC patients have this endogenous virus activated (because of stress and B cell proliferation after infection ( EBV lives in B cells and lengthens the lifetime of these cells by producing ROS)) - in many cases it's the cause of fatigue, arthralgia, brain fog etc.
Also, some excess antibodies against EBV cross-react with our collagen structures and so break down tissues in our spine/joints for example.
We need more fiber and polyphenols in the food to feed the immune system the right way, so T cells control the EVB and auto-immunity will be lowered too - butyrate, the gut bacterial metabolite of fiber, is an important food for T cells and immune memory cells.
NAC and vitamin C helps to deal with elevated ROS in B cells temporarily but in the long run we need a correctly run redox system with healthy food feeding the iver the right way (glutathione reducing/producing foods etc).
Activation of many latent pathogens seems to be common. EBV, VZV, Lyme. Basically the immune system no longer keeps them in remission
@@rangerdoc1029 Indeed. To be honest, cytomegalovirus (another endogenous herpes virus practically everyone has once reaching old age) is what often causes death in elderly once all major bacteria and famous diseases are ruled out.
Not necessary to do much about it though, other than strengthen the immune system itself, yes. In a way the terrain theory guys are right that it depends on the terrain - not exactly that, there is still pathogens that cause the disease but yes, that on a weakened terrain.
Versus the bioweapons though, more people are vulnerable.
That was very interesting. I did one of those specific CFS antibody tests in a lab in Berlin that is not related to the Charité. My levels were increased however I got mixed opinions from doctors as to what that means. There is Immunoadsorption which is a dialysis where the antibodies are removed from the blood. But we don’t know if that actually helps us patients or only wastes a ton of money. I heard very mixed reviews from those that tried it. 5 sessions cost about €14.000. A ton of money and here in Germany its not even tax deductible.
If this works and cures people it’s just a matter of time before it will become accessible to greater numbers of people. For now it’s the select few who can throw very serious amounts of money at trying out every medical procedure.
es gibt auch inuspherese in HH, kostet 2.8k pro sitzung, ob es hilft, who knows
Love the info thanks for Sharing Gez-
The comparisons and similarities between ME/CFS and LC yet again! highlighted nicely by Prof Scheinbenbogen -
So still if we have a large number of GPCR AB's it is still quite suspicious! - Is there a hint that the Virus has affected the production output of GPCR AB's - and that now they are slightly altered GPCR antibodies which do behave differently? - and this results in these symptoms ?
I have listened several times and still dont fully get my long covid brain around this.
Thanks Gez for Long Covid awareness & all your work on this till date. I am still not able to get proper sleep even after 2 years almost when I first got infected with covid 19. Please advise any specific drugs, vitamins or therapy to add to my current routine. I have been taking B1,B12 Vitamins for improving neuro-functions.
Melatonin and L-tryptophan help me with sleep
@@RUNDMC1 thanks will surely try.
Oh my gosh you look so different Gez ! . So healthy 🎉 congratulations you made it to the healing
Well I’m not quite there yet. The sun tan is an LC disguise 🤣
I got Covid19 in July of 2024 and spent 6 months in the hospital, I coded twice, in ICU and diagnosed with Covid19 pneumonia, put on life support, got kidney failure and dyalises, never damaged, drop feet, both legs and feet, and could not us my left arm, got out in January 2021. Just recently diagnosed with copd,and asthma. Walking but knub feet, lot's of pain and fatigue still. Just had test run for autoimmune disorders and I am at a score at 42
Is there a particular paper reference for the discussion of Beta-Adrenergic Autoantibodies, towards the end? And does all this look like it may tie in with Prusty's complement system/IgM issues?
Great talk! Hopefully BC007 will be able to get rid of these autoantibodies.
Is BC007 a prescription drug and how safe is it?
@@MaryinOmshanti It's a new drug currently running phase 2 clinical trial for long covid. It will take 2-3 years until it is available.
Why very low blood pressure, blood pooling in lower legs, and LACK of vasoconstriction? This is common.
Me too
Add salt
Add antihistamines.
I have been suffering long covid for the past year and a half. INFLAMMATION is the number one symptom I am suffering from...right now my ankle is swollen like a grapefruit and cannot walk. Sucks. Brain fog, low energy, trouble with memory and speaking, cannot smell or taste. Sucks.
Same here , it's horrible
I have LC, but don’t suffer as much as both of you, and I considered mine severe. So sorry for your situation, I hope something from Gez’s video’s help you. I am taking a few of the supplements recommended on his videos and I am having improvement. LC affects everyone so differently. Sending you both hope for discovering a way back to health! ❤
Post Covid, I used to have severe pain and inflammation too.. I took some meds and physical therapy to help with the pain. Now I have learnt to control it though diet.
In my case, inflammation is caused mainly due to my body’s intolerance to certain foods. As long as I avoid those foods, the pain and inflammation is manageable. Hope you get better.
@@MinouMinet please list what you are taking, it may help others. Thank you.
@@littlest2 please list what foods you avoid, it may help others. Thank you.
🙏❤ thank you
This is so frustrating to listen to.
I went to the Charité with ME/CFS and long covid. I didn't see Scheibenbogen but a colleague of hers. She wrote that I don't have sufficient PEM after exertion - because she wrote something that didn't remotely reflect what I told her! 😮 I told her about episodes that lasted a week or three... But no, I don't have PEM. It was utterly bizarre reading a report that just didn't relate to what I told her.
Naturally, I never had the energy to challenge it.
So sorry to hear this Rose :(
Great stuff, thanks as always Gez!
Germans
Unfortunately very typical since the early CFS years and continues. No one really gets this unless they experience it. Worst of all is referring to it as fatigue, it is nothing like fatigue. It is more like death.
@@davidsaxton4211 Ha it’s doctors everywhere. But the Germans do have a way of seeming like awful people when they actually do things we all do and in fact often make an effort to be better than many other countries do. (FYI I speak German fluently and have been to Germany and Austria many times)
I'm really interested in this thank you. I was diagnosed with LC July 2021 after my 2nd covid jab. Previous to that I had a radical prostatectomy and was almost at 5 years of undetectable results. Suddenly my psa test showed detectable levels of psa again. Since then it has fluctuated, stayed slightly raised, testing as undetectable and this time, raised to recall levels again. My consultant and oncologist can't work out what's happening, it's very unusual! I was diagnosed with ME 29 years ago, from which I considered myself fully recovered). I felt I was dealing with extra viral symptoms in the two weeks before my recent psa test but I'm so familiar with the ME/LC aches, pains, fatigue, inflammation, stress etc that I didn't think too much of it. This is a very long way of asking whether you think inflammation or other
factors from LC could be affecting my psa blood tests? There is anecdotal evIdence on PCUK but I can't find scientific thinking, research, evidence that might understand why something like this is happening. I'd ready like to find enough scientific thinking, understanding/reading or research to share with my medics and would be very grateful if you have come across anything in that area.
Long COVID targets weak spots we have ! Even among those that were healthy it targets weak spots. Take at least 2 NAC 1200mg a day , at least 2 Longvida Tumeric pills and omega 3 fish oil to reduce inflammation and get your CRP to a low level in blood test. Improve your diet turn vegetarian or vegan for a while at least that will help turn your inflammation levels further down.
Take vitamin D with K2 MK7 variant. Walk get sun exposure. Reduce your stress levels then check out your blood markers again . Long COVID after 2 years symptoms can get better and I noticed when symptoms get better blood markers improve too!
In my case cholesterol went up for no reason suddenly and it went down only after my long COVID symptoms improved! It took 2 years .. but unfortunately last year around July I was reinfected with COVID and long covid came back ! Pushing my cholesterol levels up again!
I suggest you take precaution of not getting covid again ! If you get flu or cold always test for COVID so you know if the infection you had was COVID or not incase it makes your long COVID worse as another infection can delay recovery by years. At least you can understand why you are getting worse is its because of new COVID infection.
My best wishes ✌️
Hi, How did you recover from ME?
I (unvaccinated, 64)) had a very mild form of covid for the first time at the beginning of 2023.
I'm sorry to hear that you ended up with long covid in spite of being double vaccinated and hope that Long Covid sufferers like you will make a full recovery.
I often wonder what people who took this experimental jab and still became ill with Covid and sometimes Long Covid make of this vaccine now. In my experience they do not wish to talk about it.
I have bad covid toes and fingers even 3 years on so this autoantibody stuff feels very relevant to my experience. I’ve started propanolol a few months ago and its made a huge difference to my functionality. I look forward to seeing as the cold weather comes on whether it will help avoid covid to and finger issues too. Since this reduces adrenaline and these natural autoantibodies seem to feed on adrenaline i wonder if that is how it is working for me. Thank you so much for this video 😊
For some reason I feel much improved ( close to normal ) ( temporarily) , after flying in a plane , I have been thinking that maybe this is due to some vasodilation at cabin pressure. Machine altitude training also replicated this improved feeling for a couple of days.
Flying makes things worse for me ~ Dysautonomia.
If lowered atmospheric pressure gives relief, perhaps a trip to the mountains would help. Passenger aircraft typically pressurize to an altitude equivalent of about 8000 feet. Which is about 2400 meters.
does anyone know which inflammation biomarkers, aside from ESR and CRP, she would be referring to when she mentions she sees elevated in ME/CFS patients triggered by covid?
Excellent thanks .. yes after walks I get all over inflammation. It can last days , weeks 😢
Cold water therapy is helping me ATM
Finding it hard to keep hope 😞... Please say there might be treatment soon 🙏
@@EllaSloman Yes, very challenging to maintain hope, I understand.
Thank you Gez, is there any value in nailfold capillaroscopy to identify blood vessel issues?
I’m not an expert on that tbh, sorry! (Although logically I can see how it could be useful)
After I caught SC2 I lost elasticity of my veins head to toe. My veins turned from soft and pliable to hard knot cords and all my veins blew after IVs. I developed vessel spasms and could feel blood pulsating in a very erie way especially in the cranial and calf area. I developed chronic seizure / syncope and dangerous low BP and none of the symptoms have resolved. My vascular system is actually getting worse. I've had these symptoms for 4 years so I'm long long hauler
@@Ikr2025 research vasoconstriction and vasodilation
I had a lot of those problems and more it seems. I started using a hot sauna and after 6 months a lot of my symptoms disappeared. I had already suffered for two years so I knew the difference from the hot sauna. I finally got insurance and got a good doctor and where they were checking me for something else they found out that my three veins you're my heart are very clogged and that is why I can barely walk long-distance. But I believe the sauna saved my life because my veins rerouted and that's why my other symptoms got better. Having surgery in 3 weeks to fix it and I'll be able to walk again. Get a morzh sauna.
I probably have long Covid and now have breathing problems followed by severe chest pain on my right side. I think I’m getting better but still have fatigue. My doctor gave me this medication and it made my skin so soft. My hands and finger nails are the softest. I really don’t know how to describe it just that my skin is so soft now. The medication is Vascepa 1GM capsules. He also changed my cholesterol medications. I wasn’t able to walk to the mailbox and back home without collapsing on the ground trying to catch my breath. Now I can go for walks with my dogs again.
LC affects the adrenals among other things. If your BP is low try adding Himalayan pink salt to your meals especially if you are craving salt or it tastes good. Forget the bogus research that says salt is bad for you. See if this helps stabilize your BP.
@@revelation1215 I believe it but the problem is SC2 effects the kidneys too and when I eat sodium I retain fluid and get severe edema in my feet and legs and that's because the kidneys can not regulate electrolytes as well after covid
Is it possible to have these vasoconstriction and vasodilatation issues in a localised area? I get it daily in my left leg and ankle with cramping and spasming..ever since Covid in 2021 .Much worse after exercise, taking several days to recover (if Im lucky). I've had multiple scans and there is 'nothing to see'.. Currently I wear a compression sock to reduce the pain. Any advice, on who to consult or treatment, would be amazing! (I did have cold hands for a long time too as well as other symptoms of LC, but this one is the most frustrating now!)
Did you have the veins check near your heart. They found out that's what was causing all my problems. They became clogged up after long covid. I was using a sauna and after 6 months my blood vessels reroute it but I still had trouble walking but no more inflammation. Now that I have insurance they accidentally discovered while doing a Dan for something else that three of my veins had become clogged. In three weeks I'll be having surgery and in three weeks after that I should be back to normal and able to walk again. I have been dealing with long covid since January of 2021.
Could you please supply a text version of her speech? I'm missing too many of her words to make sense of an entire sentence. Also, she is using medical terms I'm not familiar with.
Highly informative and thought provoking discussion. Quality listening. Thank you. 🇺🇲👊🔜
Has she been testing them for MG Myasthenia Gravis? I know many who have MG as well combined
Another fascinating podcast - Thank you Gez 🙏If you do happen to read this comment- I'm struggling to find your 'Flip the Script' podcasts - I'm definitely doing something wrong 🙄 I'm finding a band/ song 😂
Here’s the latest one! Subscribe to the channel then should be easy to find in the future :)
th-cam.com/video/9GpVfuX1zLw/w-d-xo.html
And here’s the first one on Top Gun!
th-cam.com/video/HovOLqcaxyE/w-d-xo.html
@@RUNDMC1 Wahey ! Thank you - I've subscribed 👏👏👏🙏
Ps - Morning 🌄
Morning! :)
I’ve had LongCovid for the last 16 months. Dizziness has been my worst symptom. It seemed to be improving but after going for a very long walk I developed a feeling of pressure in my head along with increased dizziness. That was a month ago and I’m dizzier than ever. So frustrating since I had been feeling better before that.
Exactly & I totally am going through the same and it’s relentless 😢I’m going on 3 years and iv learned to navigate through it but so frustrating.
@@ilovesketching1 How many jabs have you had so far?
How is your BP? Is it low?
So you bang on about long covid. Lots of these problems are vaccine injuries.
A small (
@@RUNDMC1 th-cam.com/video/5LLk_xB071s/w-d-xo.html
@@RUNDMC1 th-cam.com/video/UR1X9O2lMlA/w-d-xo.html
@@RUNDMC1 th-cam.com/video/TuZ7-J7d0jk/w-d-xo.html
@@RUNDMC1 th-cam.com/users/liveszh3_ZnSC28?feature=share
Question: are the subgroups depending on which strand of the virus they caught? Are the different symptoms related to whether you had Alfa, Beta, Delta or Omicron?
We don’t really know yet, but it doesn’t seem so.
Re. Post exertional malaise, it seems that the recent NIH paper on core symptoms that found post exertional malaise in many but ME/CFS in much fewer, was using a very broad sense of post exertional malaise that did not recognise how the term is defined in ME. It is an M E term, not just any old term. Now post exertional malaise is being use more, people are just using the term for any negative effects whereas in ME it’s prolonged, disproportionate, delayed often and potentially dangerous (the negative effects felt in exertion with diseases outside ME afaiu do not cause disease progression as we see in ME/CFS). I am not happy as someone with ME/CFS with our core feature and own term being appropriated and misused and diluted so that many people outside ME with lesser exertion effects, talk about their PEM. And it being used inappropriate Ly in long covid. PEM was ME, pre 2020 & pretty much only ME pre 2020. I asked the U.K. physios org if they had seen PEM in other illness, their reply, in 30 years experience- no. It would be like taking tremor, which has a specific definition, very commonly used in Parkinson’s etc and making it mean lesser symptoms so it’s taking away descriptive language.
Hello and good day. If a disease worse than HIV/AIDS were to come along how would it compare to COVID/Variants please ?
Hi Jez - do you know how many people go on to develop autoimmune disease after Covid? As a data point, I just started Graves Disease (overactive Thyroid owing to autoimmune) after having Covid back in March 2020 and then LC for the year following. I made pretty much a full recovery, back to exercise, etc for the next two years although I still suffered from some head pressure issues. There are no thyroid problems in my family, so I assume it's down to Covid which is a bummer. Anyone else?
Cases of IBS have doubled since covid - may well be related.
@@RUNDMC1 I wonder of it's worth you conducting another of your famous polls on how people are doing 3 years after Covid and whether we are seeing a higher level of autoimmune disease (or other conditions) compared to baseline? All the best!
My partner has developed 'overactive Thyroid owing to autoimmune' a few months after 2nd Pfizеr jаb. That said, he has had almost symptom-less covid (tested for antibodies) 1,5 years before that and before the injections.
I have bp under 90/45 at rest. Standing sometimes causes tachycardia over 100 but my bp stays low. sometimes bp as high as 255/86 upon standing. Sometimes both spike at the same time when I stand. I sit down and again my bp and 90/55 low and heart rate around 45 or 50 bpm. do I have pots? (I had cfs in the early 90's)
Sounds like POTS. Low bp, tachycardia, shortness of breath and dizziness are my issues. My doctor said it might be psychosomatic. Yeah right.
Try adding Himalayan pink salt to your meals especially if you are craving salt and keep monitoring BP. LC caused adrenal dysfunction and salt helps support the adrenals. You might look into adrenal fatigue treatment.
Have someone tips for very painfull joints? Nothing works for me :/ thank you 🙏
Turmeric.
@@JenniferJacksonxminecraftlifex thank you 🍀
I am now severe ME sick (longcovid and pots)
Went from mild to severe due to lack of pacing in 2.5 yrs.
Does this mean that mitokondria damage is irreversable ?
Honestly we don’t know, but people are still recovering from LC after 3 years
Thank you, Im so grateful you are actually taking the time and anwer me.
I sweden noone believes in ME, and took some time until they believed in postcovid.
Are you meaning that even if Im now bedridden, people at this stage can recover? Or be a bit better?i became bedridden for 3months ago due to an fysical activity that I will never forgive to myself.
Is there any test that shows mitochondrier damage and if its reversable?
Thank you so much for your time.
@@user-jy5jp2ny5j unfortunately there isn’t any test for mitochondrial damage. Right now I would say it’s more likely to be dysfunction - which can certainly improve. There are definitely people who have gone on to recover after previously having been bedridden. This period will just require superhuman patience. Rest up!
What exams has to do injured from jabs? My life is ruined after 2nd dose of pfizer... 21 months of pain every day. Same syntoms of long covid. I can't recover. Was fit and healthy...
Same here. Same here…
Same. Exactly. Can’t go to Western Med for help. Perhaps naturopaths to help get rid of spike?
@@sharlene4mylife spyke if exists is one of the matter... Inside there was something else... I did a blood exam...doctor said me there was graphene.. I notice i am worse near EMF... something is injuring tissues, mitochondria... Tissues lacks of oxygen...
Nearly 2 years but still have breathing issue, like i have asthma after taking foods, i dont know what is the trigger,, after i eat i feel dizziness, and asthma
Histamines?
Anyone try Wormwood with Fulvic acid?
Thank you for this. DVT In May 2019. Covid April 2020 which led to LC. Covid again Feb 2023 and May 2023. Blood clots in lungs despite being on blood thinners since May 2019.
I know what I’m experiencing. I lost my NHS job because of Covid, which I caught on a new Covid Red ward.
So sorry to hear this :(
Nattokinase and Serrapeptase may assist ~ I'm so sorry that you were infected. Did you also have the injection and boosters?
@@MaryinOmshanti definitely didn't before catching their first cov infection.
@@MaryinOmshanti Hi. Yes over a year after first infection. Thank you for asking.
@@feistybrit please, no more injections. Both the virus and the injection contain gain of function research and spike protein.
My hands are constantly cold starting with this. This is probably why.
I believe we will dropping like flies i the next few years
Thanks Lord for your salvation
Thanks Lord for your peace
Sorry, that sounds like "we don't simply know".
Well we don’t know everything yet - that’s the point!
@@RUNDMC1 Do you even know what the point of having these "vaccines" is really even for then?
It takes a strong person with healthy self esteem to allow theirselves to say “I was mistaken” and quite obviously, most don’t have that today.
Then, there are those of you that live under the delusion of that you are of “superior intellect”, so can never admit when wrong (about most anything) as it would be a devastating blow to your delicate ego and fragile psyche.
@@RUNDMC1 Do you understand how heavily-involved the US military industrial complex has been with these "vaccines"?
Chronic epipharyngitis could be the problem in many long covid cases and EAT therapy is the treatment
Veins will not dilate. Can’t get pump when I work out. Makes sense.
Yes! That’s it. I was a bodybuilder. I cannot get a pump now.
Confirmed blood clots on left side, and microclots in whole body.
@@BadAppleToday crazy I feel like workout people got hit worst. Pumped it around the body. Glimmer bro. Got tiniest of pumps just recently. Prob 10 percent of what I could before. Hoping time is helping 💪😬
Cool so what am i supposed to do about it
Coming up in the next films in the series 👍
@@RUNDMC1 I have an autoimmune condition so am excited to see parts 2 & 3. Thank you Gex
@@RUNDMC1 Thank you Gez
😅ArtemiC Rescue and Support combo treatment for Longcovid - it works😅
All very interesting, but seeing as involvement with UK / NHS long COVID clinics is almost impossible. Research is one thing, but what we / I need is help and action .... At 3yrs and 2 months post ICU covid, I feel like I've been forgotten by my employer the NHS.
You’re not the only one John
It takes a strong person with healthy self esteem to allow theirselves to say “I was mistaken” and quite obviously, most don’t have that today.
Then, there are those of you that live under the delusion of that you are of “superior intellect”, so can never admit when wrong (about most anything) as it would be a devastating blow to your delicate ego and fragile psyche.
“Sometimes, the most damning lies are the ones we never tell.”
Dr Gabor Mate mentioned of a lady that cured her autoimmune disease in his book
Which book of Gabor was it?
@@dorotadeli3181 think it was the body says no
High doses of vitamin D + K2 to prevent hypercalcemia + magnesium. Works wonders
I didnt understand the difference between me/cfs and long covid
Did we know at what tissue temperature did SARS COV2 better replicate?
Why ?
Because at TWiV Nr 659 at min29 virologist Christian Drosten suggest that SARS COV2 better replicate at very low tissue temperature.
Finally! I’ve been waiting for this interview for a long time :)
Enough of the micro clot stuff !!
Haha, it’s all connected!
Maybe they should ask those who created this weapon called CV19
I am not a doctor but I did wonder if microclots could affect circulation?
You think?
Possible...💯
I don’t have autoimmune issues and no inflammatory markers but still have PEM post Covid. I believe LC and mecfs are different even though they may appear to be similar. I don’t know if science will ever figure it out..
Yes they are different but LC is another virus like EBV that can trigger me/cfs.
Yes, Cfs/ME are definitely different then Long covid. I have had cfs for over 30 years. At that time I was also diagnosed with fibromyalgia, although it took years for them to put a proper name to that. It was after I had a very bad flu that all those symptoms started for me. They told me I had EBV but then changed it saying that I didn't have the regular results with the test for that. My only answer back then was rest and pace. I was 18. I tried to go back to work and soon collapsed...realizing that was not going to happen. Along the way, I have picked up other neurological syndromes. Then I got covid. Then long covid and it is definitely like me/cfs but much worse, at least for me. I never had breathing problems or Pots symptoms with cfs. Fibromyalgia just compounds the pain and muscle spasms and all of these cause PEM. Very frustrating as it seems that they just lay on top of each other. Its like my mind doesn't have multiple personality disorder but my body sure does lol Who is coming out today?? The roll of the dice, right?
@@baileystruss7319 yes, agree.
Lactate….
What is ME/CFS? It is never described...
Do yourself a little Google!
Long Covid you mean side effects from the …. Long Covid sounds scientific right?
These doctors are not looking into peptide therapy to treat long covid. BPC-157 and l-glutathione are very promising. I believe BPC 157 was and is used in China on Covid patients
TB 500 also has much potential
It's terrible 🤦♀️
I have almost no breath sinds 2 years. After a few steps a need to rest. Have no taste and smell. Migraines....etc..
Tudca
Long covid????? Ok buddy
Thanks for your support Jay 👍
Her accident. Is bad and she rambles😮