Understanding Long COVID: What Every Patient Needs to Know
ฝัง
- เผยแพร่เมื่อ 19 ธ.ค. 2023
- Michael Brode, MD, a board-certified internal medicine specialist and the Medical Director of UT Health Austin’s Post-COVID-19 Program, explains what long COVID is, which symptoms are associated with long COVID, and who is more likely to experience long COVID.
To learn more about long COVID treatment, please visit: • Long COVID Treatment E...
For more information about the Post-COVID-19 Program, visit uthealthaustin.org.
Video filmed and edited by: Shriya Alli
I'm sitting here crying right because this is literally my life right now 😢
What symptoms you got?
Me too
Same here.. 3years in
Exactly! My life since March 2020
Mine too..first time I came across a video explaining my symptoms
Ive been diagnosed with CFS/Post viral fatigue syndrome from a Rheumatologist Dr after having Mono/EBV in 2020! Havnt worked since 5/21.
Still waiting on getting approved for SSDI.
Living with ME/CFS IS NOT REALLY LIVING
THANK YOU FOR FINALLY TELLING THE WORLD THAT THIS ILLNESS IS REAL
So true after 30 long years, the best years of my life stolen by some invisible illness now the covid people understand how we felt all these years . Put down made fun of ridiculed it's all in our heads. BS.
I’m in my mid 20s. I was in my best physical and mental shape ever. Just got my pilots license, I was riding a high I’ve never before known in life. All my dreams and plans were finally going to work!
Two weeks later I got covid. My life has never been the same since. I am 7 months on. I have half the energy I used to. Most days I am too tired to really do all that I need to go get better in my life. I am mentally not the same sharp mind I once was. But I think more than anything else I lost the confidence that made me who I was. Hard to be confident when you body sweats 24/7 like you have a fever. I’m not religious but I pray often that this goes away. I just want my life back. What I had before. I never realized how lucky I really was to just be normal. I’m so tried, I just want it to stop.
😢 me too
Cymbalta and keto significantly helped by long-vax (which is LC caused by the vaccine). I’m a PhD that’s done vaccine research, so you can imagine my frustration.
Betaine TMG 500mg 30 mins before breakfast, dinner & evening meal, increasing as tolerated to 500mg with breakfast and evening meal & 1 gram with dinner for 2 weeks. Talk to your doctor before considering
you are not alone I have lyme and long cvid horrific all the best to you
Me Too
NOOOOOOOO many of us have severe lung and heart damage and we WERE NOT hospitalized. In winter/spring March 2020 we were refused care, not tested, not admitted to hospitals . told we had anxiety. This is well documented the damage those of us who werent hospitalized have
Indeed
Back then we had no idea what was going to happen. As a retired veteran RN in the US 30 years and much of that was critical care in teaching hospitals. How many years have chronic fatigue or even lupus years ago. In my opinion it’s unacceptable that we have no plan to coordinate and stop the next pandemic that’s coming soon. We left people to their own defenses snd couldn’t even test accurately or people were turned away from hospitals and clinics. I myself was caught when I saw these Chinese posts showing people fully clothed passed out on the street dead. YT was censuring anyone who mentioned CV in their content. I happen to have a N-95 mask I was fit for when I was working in a local hospital. I found it in my office at home and started wearing it in public on my BD Jan 20.
It’s been my observation however that we have been warned for DECADES something like this was coming. We as a world must be able to agree on how to handle the next contagion. I was lucky I got an attenuated case of Cv-19 9/22. I took Vitamin D, low dose Aspirin twice a day, nattokinase and the usual respiratory hygiene and I was lucky I don’t think I have long Covid. It is the reason however I have been masking again indoors in public. I feel it’s a tool I’m able and willing to use at my own discretion. We could have managed this contagion so much better IMO. It’s decimated American healthcare which was in pretty bad shape to begin with.🤷🏼♀️
leaving out the heart and lung damage that people who caught covid and had a mild initial infection who were very fit is something that can be changed right here right now beginning with this inaccurate video. doctors not believing and listening to patients is something that has to change right here and right now. @@islandbirdw
dx people with anxiety instead of having basic medical knowledge that viruses can cause heart damage is medical neglect. medicine change from a healing art to a factor business. much of this precedes the pandemic. @@islandbirdw
@@islandbirdwexactly long covid is on the ME website same symptoms and onset after viral infection if more had been researched on these conditions there would be a treatment for long covid now but these sufferers did not even have clinics were not believed I once asked a health care practitioner whom I suspected did not believe in the condition.."well if it is not a condition
Then how come it's got a name
I was told by a consultant you referred .me to what was wrong with me I did not tell myself
He did not answer me bout asked me to find another Dr because I was out of his catchment area I had been with this practice from I was a child relieved this news in the same envelope as a result of heart scan with findings of a regurge on the aortic heart valve which was ordered after my family paid for me to see a top consultant which this Dr was not happy about saying I could have referred you to specialist I said after 8yrs of this condition your only telling me that now well the money has been paid that was back in early 2000s hence still got ME now so sounds like nothings changed in 24yrs people need to stick together globally and demand better treatment care and research because it will happen again there is plenty of knowledge on tests and how to look after patients suffering after viruses I've listened to lectures of Dr's who cured themselves wanting a global data base allowing this information
to be accessed instantly on line by all primary health care practitioners
How brilliant that would be for patients
'Believe the patient'. Thank you.
As a fellow MD, unfortunately suffering from Long Covid since 2021, sincerest thanks for the presentation. It is well overdue to have other MD's acknowledge this horrible disease. It is still far from having mainstream acceptance in the medical community, but you are helping that cause!!!
That you Considered Betaine TMG?
As a fellow sciency person - is it LC or an overexaggerated bodily response to the rus due to ur likely 2-3 sh0ts? something to think very, very carefully about. merging all these into one thing - LC - is not helping the patients. Get your IgG4 and microbiome checked. you are probably super low in bifido/lacto. good luck.
What the doctor said is true; post vital conditions have been around for a long time. It's too bad that the medical establishment has ignored the post viral patients in the past, even pushing them off as being psychological in nature.
Now that thousands of people have come down with long covid, suddenly the medical community is paying attention. The years lost on progression are sad. We could have been further ahead if attention, which would have been paid to chronic lyme, chronic fatigue, and reactivated Epstein Barr.
This is spot on, the medical community is trash 🗑️
You are correct
Absolutely true. In 1980 at the age of 19 had a bad flu. I was flat on my back for nearly two weeks, and had to sleep with my mum. I was already very skinny but lost 10 pounds in weight. It took me nearly one year to feel normal again, especially mornings. My taste was also affected where everything tasted differently for a long time.
Yep 30 years in and no disability. Such a tragedy life stolen from us with CFS while we were/are still alive. Not many can comprehend the horror of such a painful life both mental and physical. To watch life go on around us while we stand still.
Coming up on 4 years since first infection, long covid started a few months later. Was healthy before, now have PEM, POTS, inflammation and neuro issues. Glad to see some progress in the research, but as mentioned in comments, it really needs to be considered a disability.
Consider talking to your doctor about taking Betaine TMG. Studies have shown that COVID-19 patients have increased levels of numerous inflammatory cytokines, including IL-1β, IL-2, IL-6, IL-10, IFN-γ, TNF-α, IFN-γ. Betaine lowers these key cytokines. Studies looking at the spike protein of the virus found that it triggers a hyper inflammatory T Cell immune response via TLR4 proteins. Betaine inhibits TLR4 proteins. Male Covid patients with severe Covid were found to have low or severely lower testosterone levels. Testosterone helps regulate systematic inflammation. Betaine temporarily increases circulating testosterone. Betaine also has anti inflammatory and anti thrombotic properties and lowers both cortisol and homocysteine levels. The virus maybe intentionally triggering this hyper inflammatory T Cell immune response in order to stimulate excessive release of cortisol to counter act the inflammation as cortisol can disrupt the immune response to infection by disrupting pathogen presentation pathways in dendritic cells and suppress IL-8 cytokines. Il-8 cytokines in a form of TB were found to bind to the infection and stimulate CD4 and CD8 T Cells to the site of infection. This effectively would disrupt the primary immune response. Cortisol can also lower circulating testosterone needed to regular systematic inflammation. Betaine TMG in high doses ie 4mg per day or more can increase blood cholesterol levels and cause diarrhoea so consult with your doctor before considering. I hope this information helps
Well those of us with CFS have same symptoms and get no help no disability been 30 years for me. Hope not that long for you to get help.
Exactly how my life is playing out after COVID. Exactly 4 years here too, long COVID started 3 months later. I was told your ok, just a respiratory infection. After that, was told There is nothing wrong with you. Oh yes there is, but nobody cares.
Cymbalta and keto significantly helped by long-vax (which is LC caused by the vaccine). I’m a PhD that’s done vaccine research, so you can imagine my frustration.
What patients need to understand is that their lives are ruined and nobody cares 😢
I have to agree . I feel
Like crap everyday and nothing is wrong with me ???
😢😢you are right
That’s what happened to us with cfs. Been 30 years of this hell for me. We were made fun of called yuppie flu was no flu. No research worth anything done never money for it. We’re told all in our heads . We have every symptoms that Covid people have. Never got disability. All tests were normal the few they did way back. Every day you wake another symptom to replace the one you had last week. It’s like wack a mole trying to get the body’s symptoms straight enough to have a near decent hour. I sure hope you are not writing 30 years from now to the next group of test rabbits about your Covid like I am about my cfs and nothing done to help. All the meds had worse side effects they gave us and made more problems, I stopped all of them. Sure hope all of you get the help you deserve. We didn’t.
But they will say you look fine, same as ever, as if looking good has anything to do with feeling good.
People have already lost their houses and jobs. When will this be considered disability so we can get some help?
Yes! I have private disability insurance that I have paid for at least 20 years. My primary doctor will not sign the papers. He does not have enough info to call it long Covid syndrome. Tests show shows that the EBV is active and kicking my butt. Actively looking for new Primary but endocrinologists are few and not taking new patients.
The fatigue is epic. The fainting is annoying. The breath hunger is real. Ugh! 18 months of this awful nonsense.
@@tgm2754 find a long covid clinic, they are much more aware and sympathetic. Still havent been approved for disability though 😢
I’m so very sorry😢
Right when will we have a conversation in America that addresses the huge disibility as a result of Covid-19?
@@islandbirdw politicians are too busy, turning us against each other to make any helpful laws. I’m personally not holding my breath. However, soon this will become a new epidemic and once it starts impacting economy and large businesses, they will have to do something about it. It will probably take years before this happens.
It would be interesting to see how many suffer from long COVID after vaccination
I had a bad neurologic reaction to the Covid vaccine. I was in excellent health but suddenly found myself having joint pain, fatigue and muscle spasms (that never went away fully) and a myriad of other symptoms.
Me too! I was very fit but suffered neurological symptoms as these cleared up the rashes began. Still suffering - 2 years, 8 months. So sorry to read you are suffering too.
Me! Cymbalta and keto significantly helped by long-vax (which is LC caused by the vaccine). I’m a PhD that’s done vaccine research, so you can imagine my frustration.
This guy is an absolute BRO of an MD, from long covid patient going on 3 years. Thank you.
This should be spread around the world to all medical doctors! Even if we do not yet have a cure or a clear duagnostic tool, we DO have proof that the fatigue and nervous system problems are real issues, not something that we patients creates by being afraid of the symptoms, wich most doctors I have met seems to think. It is NOT ”all in your head”!
For sure. Been to 20+ visits with several practitioners and doctors in 2 states. Have been feeling horrible over a year. Started when living in a moldy house and stress from life and spinal pains. Yet to have a clear diagnosis. Or anything close. New pcp keeps gaslighting me saying it’s mental. Only referral he will give is to mental health counselor, who after 3 meetings still thinks it’s a nuero issue vs straight depression. The health care system is broken. The whole work 40 hours a week, pay taxes life style is a joke to me after doing that for 19 years. Never thought I’d have chronic health issues at 34. Had to close my business down, couldn’t work for a year. Started working 3 months ago at a company doing lighter duty work, tho at the point where I may have to quit due to the extreme fatigue, brain fog, memory and balance issues. Have had eye floaters for 10 months, ear aches for the same and tinnitus started a month ago. ENT just says Eustachian tube disfunction and had me doing Flonase for 6 weeks and counting. Such poor diagnostic skills in the health care world.
6 months in, still struggling with fatigue, brain fog and chest pains, 5 month's ago i felt like my body was shutting down...blood pressure was of the dial and i had a feeling of impending doom.
i feel you brother, same exact timeline... i never comment on youtube but i resonated with this.
Consider talking to your doctor about taking Betaine TMG. Studies have shown that COVID-19 patients have increased levels of numerous inflammatory cytokines, including IL-1β, IL-2, IL-6, IL-10, IFN-γ, TNF-α, IFN-γ. Betaine lowers these key cytokines. Studies looking at the spike protein of the virus found that it triggers a hyper inflammatory T Cell immune response via TLR4 proteins. Betaine inhibits TLR4 proteins. Male Covid patients with severe Covid were found to have low or severely lower testosterone levels. Testosterone helps regulate systematic inflammation. Betaine temporarily increases circulating testosterone. Betaine also has anti inflammatory and anti thrombotic properties and lowers both cortisol and homocysteine levels. The virus maybe intentionally triggering this hyper inflammatory T Cell immune response in order to stimulate excessive release of cortisol to counter act the inflammation as cortisol can disrupt the immune response to infection by disrupting pathogen presentation pathways in dendritic cells and suppress IL-8 cytokines. Il-8 cytokines in a form of TB were found to bind to the infection and stimulate CD4 and CD8 T Cells to the site of infection. This effectively would disrupt the primary immune response. Cortisol can also lower circulating testosterone needed to regular systematic inflammation. Betaine TMG in high doses ie 4mg per day or more can increase blood cholesterol levels and cause diarrhoea so consult with your doctor before considering. I hope this information helps
How are u feeling now
@jasonlax2102 Things are improving, I'm back at work and can get around more without heart palpitations and much chest pain, I've had no brain fog or headaches for 3 week's. I was extremely fit before I had covid....so looking forward to gradually getting back into exercise.
@@andyac6200 thanx God good to hear may god heal u completey I'm now 13 month from covid and its getting better but very very slow I'm angry all the time I'm slow moving I can't play my drums for more then 15 min but half a year ago I thought I'm not going to make it I was having panic attack heart papiltatoins and just sluggish hopefully I will start recovering faster the further I get from the virus
This is me. Went from doing CrossFit to barely being able to cut my grass.
I finally feel heard and seen. I got hit hard with covid summer of 2022, prior to this I was super active and healthy, since I am a changed person, both mentally and physically, I can no longer walk up a set of stairs, severe depression. I'm currently on a medical leave because I can no longer work. I'm 37 female. Its crazy. And no doctor listens. Thank you so much for the work you are doing on this.
Cymbalta and keto significantly helped by long-vax (which is LC caused by the vaccine). I’m a PhD (female) that’s done vaccine research, so you can imagine my frustration.
I rarely hear doctors with this level of detailed knowledge or openness in America.
You’re here for every patient and sound like the doctor to hear everyone’s concerns instead pf the type that says “oh you’re just whining” and ignores the patient’s needs
Great description! This is spot on for my symptoms of long covid. I've been in all 3 frameworks as time moves on. I'm still trying to recover almost 3 years later.
3.. 🙁
Me, too.
What every patient needs to understand is ... nothing is being done, researchers keep covering the same ground repeatedly, no urgency on trials and 2+ years later still I am affected.
It does seem that way!
Maybe after next yr Election takes place!
I notice same in Sweden despite for example they have repeated a south africa studie on microclots in a town called Lindköping. They are there. I show the Doctors, and they treat it as a hypoteses, or teori.. I say, no they are F there, look, its a scientific Swedish/native studie. But they dont want to touch that info.
Have you seen microclots in your blood? I'm tempted to get that next.😢@@Vidis88
30 years of chronic fatigue syndrome. They did same or really nothing for the millions of us. Made fun of us ridiculed us. Said all in our heads. You can imagine how we feel.
Thank you Dr. Brode! I’m grateful to be one of your long COVID patients!
Fact,my wife never fully recovered from Her first round of COVID and when she got it the second time she passed away in two days even though she was fully vaccinated.
16:03 16:03 omg I'm so so so for your loss sorry sending prayers and ❤
😢
So sorry for your loss. Rest in Peace
And if this happened because of vaccines?
@@user-ok7fq7si8t I would be pissed
Great video, thanks for putting this out there. It is just short of 2 years since omicron got me. Your descriptions of the fatigue and related issues are spot on. A few months ago, I started exercising again (and I couldn't really do so prior to that, due to "energy crash" - been through a few of those). I am now at a point of walking 30 - 60 min per day, and just getting back on my bicycle. For others going through this ... there is hope ... slooooowly start doing things and get a feel for how much you can do without having an "energy crash".
Hi. It's good to see some hope. How did you treat this? When did you stop having the crash?
@@giovanazimermmaneNo particular treatment - none available. I just developed a feel for how much I could do in a day and gradually worked up from there. Been two years as of this week ...
Right on!
Thank You for join your experience. It is hope¡
This is the most comprehensive video I've seen yet on this subject. It frigthens me on the one hand that research could still take a long time, but on the other hand, this vid gives me also hope. For anybody in the same situation, keep on having fatih!
this video is fantastic! thank you!
No word about ME/CFS... really bad. Thus is not a new thing, we known this for decades but just ignored it!
this is one of the best thank-you
Thank you so much for making this video because I am in the process myself right now of trying to make things work with my job, and I’m so thankful for my employer who continues to stand by me in a world full of heartless ones. Please continue to educate the public about this as well as healthcare providers of all kinds because this disease deserves a cure too!! My heart goes out to everyone who is suffering with this like me! We got this!🎉❤
Thank you Dr Brode. An excellent presentation.
Well explained..thank you..
Have long covid for 3 years and wonder if im even going to be able to work or what's going to happen to my life at this point.
So sorry for you. I'm in the same boat with 3 years of it. The brain fog causes horrible depression and anxiety. So scary.
Yes, 4 years for me. 💔🌻
I hope they figure out tinnitus visual problems like static or visual snow syndrome and extreme anxiety from post covid....
A fantastic video about the current state of knowledge. Thank you so much!
Started 2 weeks post infection. Been a year of horrible myopathy, weakening lungs, worsening fatigue, joint pain, fogginess, neurological problems, and being told all my labs look great, get some exercise and sleep more. Meanwhile I went from hiking 50 miles on weekends to having trouble walking up the stairs, there’s not much left for me anymore and I’m close to just ending the suffering
Don’t give up, I’m dealing with it too. It’s frustrating. I wish you the best.
I have long covid for over a year and its finally getting a little better
@@jasonlax2102 that’s great to see! I feel like mine might be as well 👊
Been there. I'm just short of 2 years in, and the first year was rough. Keep up the fight. Try to slowly increase your activity but be prepared for setbacks - I've lost count of how many times I thought I was done with it, only to have a relapse ... but the relapses became shorter and milder over a frustratingly long time. If you need to sleep in, if you need to go to bed early because you are knackered, do it. But do try to do whatever activities you can.
Praying for you🙏
Thank you so much for explaining this .I had covid just after Christmas this year noticed now im depressed and tired all the time .yesterday I looked up the symptoms of long covid and yes I've got long covid .all I can say here is the depression is almost overwhelming
The fatigue makes the depression worse than it is .
Thanks for the hope "time is healing"
Thank you.
Thank you for your videos. Your description matches much of my 3-year long covid experience. Early on I had significant immune system upregulation (positive autoimmune marker and severe histamine sensitivity). About 18 months into my long covid I did a prolonged water fast which seems to have "reset" my immune system (autoimmune marker is now negative and no histamine sensitivity) and made major improvements, but I still have some remaining ANS dysfunction. ANS treatments are slowly helping. I would love to see a follow-up video on targeted therapies for ANS dysfunction and mild traumatic brain injury.
Pretty much hit the nail on the head. At least, as best you can. I tried everything under the sun to get better and the only thing to make a difference is time.
And histamine free diet acupuncture brain retraining no sugar gluten dairy for anti-inflammatory benefits all helped me go from bed bound to working. Still battling. Thank you vaccine. It’s not just a virus. Anytime the immune system is provoked you can get these symptoms. It isn’t new. This happened with the HPV vax too. Doctors need to wake up and know the down sides to be allowed to administer these shots.
Same here. It has been 2 very miserable years.
I have had long covid for more than a year now and this video was so informative and nice to listen to. Thank you so much.
Consider talking to your doctor about taking Betaine TMG. Studies have shown that COVID-19 patients have increased levels of numerous inflammatory cytokines, including IL-1β, IL-2, IL-6, IL-10, IFN-γ, TNF-α, IFN-γ. Betaine lowers these key cytokines. Studies looking at the spike protein of the virus found that it triggers a hyper inflammatory T Cell immune response via TLR4 proteins. Betaine inhibits TLR4 proteins. Male Covid patients with severe Covid were found to have low or severely lower testosterone levels. Testosterone helps regulate systematic inflammation. Baroness temporarily increases circulating testosterone. Betaine also has anti inflammatory and anti thrombotic properties and lowers both cortisol and homocysteine levels. The virus maybe intentionally triggering this hyper inflammatory T Cell immune response in order to stimulate excessive release of cortisol to counter act the inflammation as cortisol can disrupt the immune response to infection by disrupting pathogen presentation pathways in dendritic cells and suppress IL-8 cytokines. Il-8 cytokines in a form of TB were found to bind to the infection and stimulate CD4 and CD8 T Cells to the site of infection. This effectively would disrupt the primary immune response. Cortisol can also lower circulating testosterone needed to regular systematic inflammation. Betaine TMG in high doses ie 4mg per day or more can increase blood cholesterol levels and cause diarrhoea so consult with your doctor before considering. I hope this information helps
Excellent video
Thank you, thank you, thank you for this excellent presentation. So clearly communicated and extremely informative. I am experiencing long covid for the second time. Will share this with friends and family.
What an amazing explanation. Dr. Brode. Thank you for your work :)
Taking the antihistamine Benadryl daily has greatly improved my symptoms. I assume this is due to lowering the histamine response in the body. There were a few news stories about a study from UC IRVINE & a paper from NIH regarding using antihistamines. Whatever it is, it works for me. I can tell a huge difference the few times I forgot to take it. Praying others find help🙏
I'm taking 3 different antihistamines.
Thanks, daily Zyrtec 10mg has gotten rid of a lot of the brain fog , and almost all of the heart pounding that plagued me for years. Extreme fatigue and feeling like crap, inflammation, stomach problems still persist though .
@@boodrowwilson1894 Get an xray of your colon, if it's impacted that can cause a ton of problems including inflammation and constipation. Just happened to me a few weeks ago, but now all is better after a course of PEG to empty out the colon and reduce inflammation.
please stop benadryl. as gen 1 antihistamin is has anticholinergic side effects and can cause dementia.
also, i sometimes used doxylamine, which is gen 1 too, and can report that mostly the calming side effect is the positive outcome vs long covid symptoms and not the h1 or h2 block. I compared by using loratadin
Good sensible video. Accurate
I was a boxer in the gym everyday....never had any of the long covid symptoms before covid...doctors do not listen yo us....now i can bearly exercise qithout having to go to e.r from feeling like this...i have severe brain fog that when its at its most extreme its scary...noone who has never whent threw this can understand...but to all who do ..i will say this my brothers and sisters ....nothing last forever wether good or bad it has an end wether it be death or gettn cured...at times thats how i know death is merciful...yes i would miss my fam and friends and everything i enjoyed in life but this is not living this is torture so at times im learning to accept to deal with this ...we are all going threw this experience to learn from it we are chosen to learn from it....i always say if i ever heal i am going to live life to the fullest ...so dont be sad or angry appreciate this even tho its scary but i would rather be the one to have this insted of anyone i love.. ill be the one to go threw this rather than see my nieces or nephews go threw this... appreciate life and all its lessons abd blessing... everything bad in life is a lesson and everything good is a blessing
After having CFS 30 years now I understand. I have Spent most of my years trying to explain the symptoms. Was made fun of called Yuppie Flu. Doc would say get my hair done or have my husband take me out more, it's been awful. Or I am anxious for no reason Having your best years of life stolen from you is terrible. At least the long covid people are getting some validity imaging if you were told for 20 years it's all in your head. Hopefully you won't have to wait 30 years for help.
@@jewelleryaddict I'm sorry to hear that...I hope you find a cure ...sometimes I ask myself why bad things happen to people ...I question if what I'm going threw is part of my karma for all the bad I've done ..I'm no saint I've done somethings I wish I could change ...having this I learned to love life ...I hope one day you get back to feeling normal I really do ...
@@RoyJones-nx6zi well I have degree in health Ed and started 3 support groups for 22+ years for people with chronic illness cfs and fibro and lupis and chronic pain at local hospitals. I enjoyed it tho after each session had to spend 3 days in bed to recover. I hope I helped alot of people. Before that was in Air Force so I am not worried about my karma, would think it should be good but who knows? . Someone bigger then me runs the show. Hope you have some good or better days ahead.
@@RoyJones-nx6zi no karma. My husband says same thing but he did the bad stuff when way younger we are old now. He says that if anyone is punished it should be him not me. I have been the one using my education for 20+ years while sick myself to help others who are sick with chronic illnes. I loved what I did but had to quit cost me to many more days in bed as I got older after menopause. So the karma thing is just a thing. We just get what we get, look around the world so many suffering for no good reason. It's a crap shoot, a numbers game. None of us seem to get what we deserve illness wise maybe it's best huh?? Kidding.
@@jewelleryaddict have u tried IV therapy?
Im exercising and doing saunas and cold showers along with taking some supplements. He mentioned oxygen not being used fully by the mitochondria. I think this is the biggest hurdle as I can’t exercise as much due to PEM. Keep at it, you can heal. Keep searching for the right therapies. Exercise, saunas, cold showers, light therapy, supplements, etc. If none of this work try long term water only fasting. Don’t give up!
I had covid in December and it lingered for about 5 weeks. Now I have vague headaches, chills, stomach aches, malaise and general soreness throughout my body. I also had EBV around 2006 and chronic fatigue in the 1980s. I wish there was something that could help me.
It helps seeing all these reactions. 3 years ago I had covid and was out of the running pretty much since then. Few months ago I was getting better and got it again. Stay strong everyone❤
Thank You
March 16, 2020 was the day my old self died. I have been unwell, experiencing variable levels of disability for four years. Cerebral inflammation, respiratory inflammation, kidney and bladder inflammation, inflammation of the gut and abdominal organs. The inflammation feels like a fire in the organ(s) affected. I am single and rely on my job for my income, so I have had to work through this which has also had a deeply detrimental effect on my ability to relieve my symptoms and heal. I'm convinced my long Covid is driven by autoimmune dysfunction (but I don't test for any specific, "testable" autoimmune diseases). Additionally, about 6 months prior to Covid, I was diagnosed with Lyme (and treated successfully with antibiotics).
It's great to see it at least acknowledged and established. That's a step forward! The medical progress is slow, too slow for us of course (average problem to solution track for pharmacology is 15-17 years) but it is progressing!
I had bed ridden LC for 6 months and disabling symptoms for 12 more. I felt like I had made excellent progress until a virus denier (straight up doesn't think it was real or really happened. Kook.) reinfected me over the holidays. Oh well, start again.
I've had covid twice, 11 days to recover last year and my second three days ago with some lingering and light symptoms. I was expecting the next train car of symptoms that haven't arrived, or may not arrive. loss of olfactory, taste. Mainly stiff neck, headache from hell, profound fatigue, 103.8 or 38.3 fever and muscle pain, it's gone. I am unvaccinated. I'd like to know the differentials between vax vs unvax with long covid otherwise this is academic. I also believe that many of these issues are centered in the thyroid and parathyroid function which regulates many things. Before I had covid, my thyroid function and parathyroid - two separate tests, was in the normal range, but could have been optimal. I'm a 60 year old male. We really need to pay attention to white clotting which started showing up post distribution of covid intervention in autopsy and mainly embalmers.
This makes sense. 2 years in still brain fog, PEM, chest pain, burning feet and legs. Asthma. Liver problems. Chronic fatigue.
And not one person behind bars
?
Or sued for false claims.
I think it would be fair to discuss the connection of long Covid to receiving the vaccine, which in itself causes some of the
symptoms you discuss.
It's not the vaccine I never got it and feel all these symptoms ...
Post covid vaccination syndrome is real. But it is a much smaller percentage those getting Long Covid after the Covid infection.
Doctor prescribed prednisone for covid. Worked great!
I got LC from exertion while having almost asymptomatic covid. Woke up the next day feeling like I was runover by a truck, everything in my body is damaged. I was recovering until I got diverticulitis about 7 months later, which I attribute to covid but I can't say for sure. Then I got some bug over xmas that set things back further, I have no idea what it was. In desperation I tried ivermectin and it was a night and day difference. I've tried a ton of remedies and the only other things I know for sure helped are electrolytes and Win Hoff technique of breathing and cold exposure. Before I tried ivermectin I thought it was a matter of time until I had a heart attack or stroke, the body is just under constant stress and it's not sustainable. Now I feel like I have a real shot at recovery.
Lovely video, thanks for making it. I think the metabolic and immunologic abnormalities seen with long Covid, POTS and M/CFS are likely just another symptom of dysautonaumia. Parasympathetic nervous system rehab and brain retraining seem to be helping a lot of people, although I haven’t seen the medical community paying much attention to this.
Nope they don't do anything
@@kimbo1414anything to back your opinion ?
What helped me the most was undergoing genetic testing. The report of the company that did the test was so so but after taking a look on the raw data myself, I found out that I have some mutations for Ehlers-Danlos Syndrome (I only had POTS after Covid and slightly more flexible arms), heriditary hemochromatosis (higher iron absorption --> more prone to certain bacterial and parasitic infections (I noticed this when I got infected by Yersinia bacteria), higher chances of iron deposits in brain that might lead to migraine and schizophrenia (I have a family history of schizophrenia and I myself have migraines), heterozygot for aceruloplasminemia (iron overload in the brain, leading to symptoms similar to parkinson's or schizophrenia), Lynch Syndrome (higher likelyhood of colon cancer - my grandmother had colon cancer), several defects in a gene that lead to higher odds of acute pyelonephritis (I had this after a flu).
Now, just recently there has been a study that found that a disturbed iron metabolism is indicative of the development of Long Covid.
Well... I have at least two genetic mutations that alter iron metabolism. And migraine and a mother with schizophrenia with both diseases shown to imply intracellular iron accumulation in the brain with low ferritin and low iron in serum. I found bacalin (scutellaria baicalensis) and doxycyclin to be helpful. Both act as iron chelators and can reach into the brain cells. So basically, getting the trapped iron out of the cells into the system.
I'm suffering from PEM since 20 years. It's not better with time.
EBV reactivated. Hashimoto 30 years.
Anti-depressant Prozac 30 years. If I double up on Prozac I have a much better day physically and intellectually( I can find the right words which tend to fly away when I need them. This fatigue is real. Glad the POTS fainting is gone. The pain is real. Inflammation: Trying histamine free foods . Gluten free: read that EBV loves gluten. after 10 days I do not have to take Advil. Hmmmm…
Multiple Covid infections over the last 3 years. Everything is strange about this condition.
Just wondering why the "post malaise" problem would only happen on a treadmill and not when running outdoors - as seems is happening to me .. and what about older people (I am 67, sorry). What about other endurance exercise? Could there no more tests be done for ethical reasons?
Thankyou Dr Brode, wish you were my GP!! At last, a concise, clear, explanation with no waffle, about what is going on here and how people have been damaged by these WEF maniacs! There is hope! Have a nasty itchy tickling cough that comes back every 4-5 weeks or so, after going away for a while. I think I'm lucky after reading some of the reports from the poor souls opposite.
I'm positive I've got long Covid. I can't sleep because I wake up drenched in sweat, my brain fog is horrific, I can barely manage daily tasks, my stomach is all over the place and i have awful energy levels.
Check out Dr. Boon Lim on youtube. He is a well respected cardiologist. Check out his video on Long Covid Dysautonomia. The malfunction in your autonomic nervous system is responsible for the sweating.
I also suffer from sweat after covid recovery specially after walking or doing efforts
that makes me worried and I asked two doctors about this side effect , they told me that their is no problem
@@Hossam-Y makes life difficult doesn't it?
@@Oldmanyellsatcloud1985
Yes , especially with nervous effects and sleep habits changed
But don't worry
Trust in God, our immune system discover the rest of this damn virus
Everything makes sense now. I thought I was going crazy.
I was not hospitalized when I got Covid in Oct 2022. I now have airway problems/shortness of breath, cognitive impairment, headaches, POTS, PEM, etc. I am on intermittent disability leave, and trying to figure out how to afford to retire early. I managed to work 4 hours this morning, and have been in bed since. I’m working maybe 10-20 hours a week and using up 20 years of accumulated sick time. I was healthy, happy, and extremely physically active before. It’s gonna kill me.
Cymbalta and keto significantly helped by long-vax (which is LC caused by the vaccine). I’m a PhD that’s done vaccine research, so you can imagine my frustration.
are the symptoms from long Covid similar to Vaccine injury symptoms ? How do you tell the difference ? and what can doctors do to treat these people ?
I got worse after the vaccine
Most cases of long covid comes from the jabs or jabs and then covid and doctors know it... But they lie about jabs. My life is ruined after 2nd dose of pfizer... I am sure long covid from jabs is way worse than from covid.. Inside that poison there was something toxic by purpose. Damn me the day i trusted doctors.. Life ruined forever..
@@kimbo1414 Interesting . I am sorry to hear this .. Hope time helps healing .
@@karenfuchs1674thanks Karen I appreciate your comment x
Even doing a line of yayo doesn't even help I still fell weak and tired so I no I'm sick
How many die bc of of not having the care they need
Had covid a year ago and still have symptoms
My symptoms are extreme fatigue, hair loss (especially eyebrows and eyelashes) and constant colds. It could be worse, but it sucks a lot
I wish they would specify whether or not they were vaccinated.
That’s exactly what they discovered with me in the study at University of Derby. I went on a bike and as I increased the load, the oxygen levels crumbled. Basically, not enough oxygen goes from my lungs into my blood. However, I never tested positive for Covid, I only had metabolic and stomach issues. Huge nausea, no energy, very dry mouth, strange bowel movements (no diarrhoea or constipation or bloating, just movement and many stools, even in the middle of the night), and a very dry mouth. I lost 8 kg. In two and a half weeks I was laying down in bed. I was absolutely terrorised.
I wish you were my Doctor … Easter is the 1 year anniversary of the last time I had Covid. I’m a shell of my former self … been reaching out to my doctor for help… have been on a long COVID clinic wait list since August.. I’ve been in denial for so long because so many people say LC doesn’t exist .. but I can’t push thru… it’s real and I’m a mess.
I wish all you genius doctors stop talking about it, and figure out solutions!
8:05 - What about individual genetic diversity? An italian study showed that people with a neanderthal gene variant were more likely to develop severe COVID and long COVID, one of the reasons why so many people died in Northern Italy for example.
So, white folks essentially?
Interesting.
I’d like to know what you can do about it
Some help from Dr. Boon Lim on youtube. He is a well respected cardiologist. See his video on Long Covid Dysautonomia.
While the next bioweapon is in the making
Hopefully, we can have a breakthrough. 💔🌻
#CoVidLongHauler since 2020
What does the research show about people improving after having it for 2+ years? I’m only 19 and I’ll have had it for 2 year in about 20 days and my symptoms have either stayed the same or gotten worse
Yeah, same with me😢
I'll be 4 years next month.
All I can say is that it's really true about exercise not being good for people with long covid. After pushing through since pretty much the beginning I am now much worse. My energy levels have plummeted even more and I'm less able bodied than I was a couple of years ago!
Rest is key. Pacing helps. But I see this as permanent now, so it's all about working with what I can, rather than push myself beyond energy limits
@@solotraveller1234I’m sorry man that really sucks. Have you seen any doctors about it? I work at a really great research hospital so I’m gonna try and use my connections I’ve made to get into their long covid program, but even as an employee it’ll be at least a year of waiting and as a college student idk how long I can wait before the neurological symptoms destroy my GPA
@@dhskwkebbf I've been to several long covid programmes, doctors, hospital, it's long covid they say. It's ok. Rest helps 🙂
Virus is found in every organ in the body during autopsies of all ages.
I have had Long COVID since Nov. 2020. I had tested "critically high" for Covid-19 and I was in the hospital a couple of times with pneumonia and other complications. I was physically fit before getting the virus. I also had 2 Pfizer shots in Mar. 2021. The second shot nearly killed me. I had to leave my job of Industrial Construction. I thought I would get better over time. But, I have gone down hill quickly over the past 6 months. I now have severe dysautonomia, severe orthostatic hypotension, POTS, fibromyalgia, extreme fatigue, post exertion malaise, small fiber neuropathy, atonic bladder, large post void urine retention, I now have to wear a permanent Foley catheter, I have ileus in my intestines, my colon does not move my stool like it should, I have left ventricle failure, the bottom of my lungs are collapsed, and I have several other health problems. Unfortunately, I know of many others like me who have been fighting the virus for 3-4 years now and who are also getting worse. We need answers and help before it is too late.
Thanks for sharing. You had several months between Nov 2020 till March 2021. Did you have all these symptoms during that time? bc i highly highly doubt that. While I am terribly sorry about ordeals - I don't think you are fighting the rus. I think you are fighting acupuncture* injuries + over reaction to the rus bco the over-exaggerated response due to the acupuncture. So I don't think it's correct to say you have been fighting the rus. I'm not criticizing but I'm saying there is a need to be exact about descriptions of our issues so that we could help people better. I have had some form of LC but I was not acupunctured. I have some mini version of dysautonomia bc I just had another rus 4 weeks ago and i had the darn thing 5 times. i have nothing like what u r describing. i did have some stubborn candida that i finally fixed. it had to do with blood flow and i had to use some special exotic soaps. you should get your microbiome checked. your bifido/lacto are very low probably. feel better.
I actually did have my LC symptoms all the time up to getting the jabs. I was told that I needed to get the jabs to help with my LC symptoms.@@partdeux992
I've had it with these people doing nothing ! I've had this crap since 2020 and I do 10% of what I used to do !!!! GET SOMETHING DONE
Im so sad for the ones loosing jobs ,homes,etc.i have long covid too.but im 82 retired on sos sec.all have to lose is my health.which is bad too.but???😢😢😢
I like the comments of hope¡
There are two problems, one caused by covid one caused by jabs. I never had jabs put mine down to covid but I have LC, first time Feb 2020 another two attacks 22, 23, started going downhill 6months into 2020. Now I understand better can work on improving. I am 75 but I will not let it beat me.🙃😊🙃😊
Cymbalta and keto significantly helped by long-vax (which is LC caused by the vaccine). I’m a PhD that’s done vaccine research, so you can imagine my frustration.
I had covid 19 some 2 years ago, the fatigue was so much and I cured it thru moving, always walikng, working something at home, rest when tired then go again. Then went well. Then decided to have Pneumonia vaccine for life and I felt safer.
I think thar I have had long covid for 3 years. The doctors missed this diagnosis. I have dysautonomia, brain fog and fatigue. My main problem are the chills which I am getting some help for but the battle is not over. Check out a TH-cam video by Dr. Boon Lin about Dysautonomia and Long Covid which has helped me. He is a world class cardiologist.
I'm not crazy..... I know how I feel and it's not going away. :( tons of test from the best hospitals....still they say I'm ok.
I have COVID since Feb 14, 2024, this is the second time. This time I had vomiting and diarrea by the 8th day. Is this caused by COVID? Thank you.
These were also among my symptoms during my 2nd bout of Covid, not with the 1st or 3rd episodes, so I think it definitely depends on the particular virus strain
@@dianacano780 Were you vaccinated?
For those posting here about your struggles with long covid we are going to assume that you were fully vax'd and boosted, unless you indicate otherwise!
My doctor tell me to go to work and stuck it up like everyone else i said ya ok
tldr: after nearly 4 years, we still know nothing
Yep. They have no idea and don't want to know either.
Never helped the millions world wide with CFS. Made fun of us Yuppie Flu. Told it's all in our heads how insulting can they get? It's real like covid.
Eliza grey.better off not going to hosp.people I know went to hosp.& died in there,no loved ones or died shortly after they got home.😢😢😢😢❤❤❤❤
I will donate whatever you want to prove I have long-haul covid. I can't live like this anymore.
All my symptoms started after the vaccines - I never had covid !
People arent getting better bc there are no treatments or a cure. The people dont need it to be sugarcoated they need the truth.
What a funny coincidence, I got a sponsored by Pfizer ad before your video
studies show most get better but how many of those will relapse when they get covid again? As we get covid more and more, there will be less and less able workers. Even if you recover, its only a matter of time till your infarcted again which can lead to permeant organ damage. If this disease is not fixed, how will we look in 15 years when the average person has had this disease 10-20 times. There will be more sick then healthy.
Dozens of long covid treatment clinics are popping up all over (heavily jabbed-up) California.
What does the tell you?
Just a couple days ago a headline was "700000 Coloradans have Long Covid" !
that tells me nothing
prove that the vaccines are poison and i'll leave
i've been vaccinated and boosted ("jabbed" as you say) and haven't had covid