I have a syndrome and I am the only one in the world who has it. My parents fostered whatever specialness I had which was a lot. I ended up becoming a nurse and going to medical school being a published author became a social worker with a master's degree and got my PhD in nutrition science. I'm 54 years old now and things are getting worse as they have the last 30 years so I'm in a wheelchair now and in constant horrible pain. But I am here and I have given my life both in my vocation and evocation to caring for others. Now I have two caregivers 6 days a week and cannot dress or undress myself. But I am still here I have done something for the world and I am happy.
❤️ Thank you for your story I was called to die at the age of 8 But I still bather the world with my p resents That is now 36 years ago & although I went through Chemotherapie & I should never be a mom Now I am a mom for two years And I am still here ❤️ God bless you & kisses From Leipzig Germany
What a beautiful soul. His mother is lucky to have him. Not everyone has the gift to touch people like this. He is truly annointed. God bless him and his family.
@@HarryPotter-nc6yl I am so sorry that you went through that. I am a mother of 5 children and could never image hurting them. But I was abused as a child by my father. So I understand, I'm praying that you will not let the abuse define you as a person. Prayers..
Harry Potter . I am so sorry this had to happen to you. May Our Lord give you the strength to make for yourself a happy life, surrounded by people who love you.🙏🏻❤️🌷
My sister have a similar syndrome.. Though she could not walk of talk like him. .but she's the one bringing us closer to God. And we thank God for giving us an angel .
When he clenches in excitement, it just makes my heart soar. What a miraculous soul, what a magical gift to the world and those who know him personally. I adore how he just cherishes every moment. ❤️
Das ist das Syndrom der LIEBE ❤️Danke für dieses liebevolle Video!!! 🙏Ich wünsche Ihnen und Corner weiterhin viel Glück und den Segen des Herrn! Gott ist die Liebe ❤️
This is the most precious mother!! She's so positive about her son and I'm sure he's really grateful to have a mother that appreciates how perfect he is
I'm not religious in any way, shape or form. I found this extremely touching and thank you for allowing me and others to see it. I wish the best for all of you.
He truly is beautiful and yes we are all blessed with children and they are all a gift his smile makes it all worth while, bless this wonderful young man x debbie
That smile! I just randomly came upon this video in my "recommended" feed. Your Connor is clearly such an incredible guy! God's love absolutely radiates through that smile!
So blessed this young man is.. You are truly an inspiration. I have a son with Fragile X Syndrome/Autism and it's amazing to me that people don't understand my unconditional love for him. Your unwavering faith, patience, outlook and understanding is truly something to behold. Your son is beautiful and so are you. God bess you and your family.
I've never seen a more beautiful smile. Connor is pure, he is real, he is an angel amongst us. What a beautiful mom & family! Thanks for sharing Connor and for making my heart smile!!!
I help a single mother care for her six year old little girl, Lucy, who was also born with NCBRS. I had no idea that this disorder existed and when I first met them I felt extremely clueless and was at a lost as to how I could ever be of any help to either of them. Part of me wanted to just keep my distance, fearing that I would do something wrong or flat-out never understand this disability or the many different challenges that come along with it. That was around a year and a half ago. Today, I couldn’t imagine life without Lucy. Other than my own children , I have never felt such a close bond and unconditional love for a child like I do for Lucy. Every day that I am fortunate enough to have an opportunity to spend time with this amazing little girl is a gift. There are plenty of struggles, sure, and I do get frustrated at times, wishing that certain things could change, but I also thank God for placing this amazing little miracle and her beautiful family in my life. She has such an almost otherworldly warmth and an undeniable aura of complete and utter innocence and truth about her that it really is awe-inspiring along with almost impossible to describe to anyone who has never had the pleasure of meeting someone like Lucy or Conner. I may not be thankful about her being born with this condition but I am eternally grateful for being able to play a part in Lucy,s life. It is an honor and a privilege.
So beautiful! I don't understand how people can say there is no God when blessings like Connor show us how God's love is joyous and neverending. What a wonderful gift God gave this family.
He is just precious! He has the cutest most outshining, beautiful smile out of all the children I have seen! God bless his innocent little soul. He is so cheerful and most definitely beautiful!
We see so much bad stuff all the time, then to see a beautiful mother and loving family like this restores my faith in humanity 🙏💐 A story like this shines sooo bright it wipes out the pain of 10 bad stories ....there are still some very beautiful and loving people on this planet ...seeing her read the Bible with Connor well I cant stop crying . God bless these beautiful people ....wait I can see they have invited YOU into their hearts and what comforts and blessings you have brought them ...I am niagra falls now ...God bless and thank you for sharing this beautiful story ...💝
I really wish they would update these videos. I was so touched by Connor and his mom and I’m sitting here feeling so full and happy for them and thanking God for my own children (my youngest son is disabled) as well. To be able to hear or see an update would be really perfect. For me I’m watching this beautiful, feel good, heart touching story and I sit and wonder where are they now? Is he ok? Is his mom? What lessons and messages can they share with us now all these years later? Sending prayers to Connor and his family ❤️❤️❤️
Connor and his impact on his family reminds me of our niece's autistic son, Alex. He is precious to his family, a ray sunshine, loved exactly as he is.
What a lovely story. This family has such a perfect attitude. There is a reason for everything. This family really understand what a blessing each child is. This story warms my heart Connor is a beautiful boy. I am so glad his family appreciates him.
God bless always!!! What a strong and inspiring young man!! I'm from Lexington and it's great to see just how amazing my fellow Kentuckians always are!!! Sending all my love
Yes, as others have said, I sure do appreciate you sharing!! It is so refreshing to see good, positive, loving stories. Also, of course Connor is the star, but mom....you are quite the lady. I'm going to assume you are humble and quite modest and wouldn't want people gushing over you, however, that being said, not every mom could do this with the grace you have. In some sort of 'collective soul' I just know your heart and love ya as a sister in the way GOD intended. ;) ♡
I have fallen in love with Connor...., What a beautiful child. I'm blessed to have been able to bear witness to your blessing and am blessed by your generosity. Thank you
Happy NCBRS day! Your video was the first video I saw after I received my son’s diagnosis for Nicolaides Baraitsers in 2016. Your video has helped me so much in these past few years. I feel exactly the same way you do about Connor. My son Iman is now 6 and I agree the syndrome might as well be called the beautiful syndrome.
ITS CONNOR,I know conner from a nicolaides meeting my little bro Harley has the same disability,PLZ REPLY!!!!!!havent seen conner in a while send him all of our love!!
this video really touched my heart. he is a sweet boy. God loves him in every way. My love goes out to him and his wonderful Christian family. May your brother Harley feel the same love and may God cherish him as well.
A mothers love is unconditional, what a beautiful loving caring family, Connor is beautiful too, his loving soul shines through, truly touching video. ❤️
Thank you for your video! I cried when I watched this video, not out of sadness but because of the spiritual beauty of the entire family! The depth of joy in the wonder and beauty of music and animals shows that Conner sees and appreciates that which is closest to Gods heart. Beautiful video, beautiful music, beautiful mom, and of course beautiful Conner, the apple of Gods eye without a doubt!
i believe that these special beautiful children are given to parents that will love them unconditionally, you have done an amazing job for your son xxx
Bless his little heart! An angel on earth! Wouldn't the world be a wonderful place if everyone was like Conner? He's not the odd man out. The rest of us are! What a beautiful soul God has given his family in the form of a child.
What an amazing Mom and Dad, what an amazing Child, what an amazing difference a shift in perspective makes, So glad you all made your own happiness, Life is truly Beautiful!
Amazingly caring and loving family and a very beautiful young man this Connor. Imagine every child with any syndrome or illness being welcomed this warm into the world. The way this mother speaks about Connor and his syndrome is very inspiring, and an example to everyone.
Im guessing yall are here in NC? If youre not too far from Kenly (smithfield), maybe you could bring him by our place to see the horses sometime! We have TONS of animals to love on!💖💖
Conner makes me smile by seeing this video and this is why I am a paraprofessional. 30 years of enjoyment not just a job but a passion Keep smiling Connor.
What a cutie Pie!!! Absolute joy to watch, I feel like my joy meter was gonna bust. Born in a state of perpetual joy, and with parents to treasure him. My first was happy like that, he would make strangers laugh out loud with his exuberance. This child must have an ancient soul.
Any updates on Connor’s life?is he still alive? What can he do for himself without help or assistance? How long can he do things by himself without anyone else helping or hovering?
You make me proud, Beautiful Mama. Your love for God lives in your love for your baby. Your son is so beautiful. Makes my heart soar seeing his smile. I have so much love for you and Connor:) May God continue to bless you and your whole family. Especially Connor.
I have a syndrome and I am the only one in the world who has it. My parents fostered whatever specialness I had which was a lot. I ended up becoming a nurse and going to medical school being a published author became a social worker with a master's degree and got my PhD in nutrition science. I'm 54 years old now and things are getting worse as they have the last 30 years so I'm in a wheelchair now and in constant horrible pain. But I am here and I have given my life both in my vocation and evocation to caring for others. Now I have two caregivers 6 days a week and cannot dress or undress myself. But I am still here I have done something for the world and I am happy.
Sounds like a life well lived! I hope you are doing well.
❤️ Thank you for your story
I was called to die at the age of 8
But I still bather the world with my p resents
That is now 36 years ago & although I went through Chemotherapie & I should never be a mom
Now I am a mom for two years
And I am still here ❤️
God bless you & kisses
From Leipzig Germany
@@bonecholampworks wonderful words ❤️
Good for you to keep going! happy 4 u.despite the pain.i think we all have pain sometimes .
Elizabeth Shaw you are an inspiration to us and a beloved child of God.
What a beautiful soul. His mother is lucky to have him. Not everyone has the gift to touch people like this. He is truly annointed. God bless him and his family.
The love of a mother ....is just everything. ..
Yeah! my mother abused me so much that I ran away from home and got destitue
@@HarryPotter-nc6yl I am so sorry that you went through that. I am a mother of 5 children and could never image hurting them. But I was abused as a child by my father. So I understand, I'm praying that you will not let the abuse define you as a person. Prayers..
@@kristyblackwell7691 Hey! ...I am now a father of two...a good neighbour - and an atheist!
Harry Potter . I am so sorry this had to happen to you. May Our Lord give you the strength to make for yourself a happy life, surrounded by people who love you.🙏🏻❤️🌷
Happiness is a blessing. This boy has smiled more in this video than i have in my whole life!
What a gorgeous smile he has! Beautiful boy.
My sister have a similar syndrome.. Though she could not walk of talk like him. .but she's the one bringing us closer to God. And we thank God for giving us an angel .
"For everything there is a purpose" ❤
When he clenches in excitement, it just makes my heart soar. What a miraculous soul, what a magical gift to the world and those who know him personally. I adore how he just cherishes every moment. ❤️
What a beautiful boy. Thanks for sharing. What a blessing to the world.
Beautiful words. God bless you mommy. He is so fortunate to have you.
Das ist das Syndrom der LIEBE ❤️Danke für dieses liebevolle Video!!! 🙏Ich wünsche Ihnen und Corner weiterhin viel Glück und den Segen des Herrn! Gott ist die Liebe ❤️
This is a mom who truly knows the meaning of unconditional love. Such a sweet story.
Connor is truly one of God's biggest blessings! Thank you for sharing his touching story, & may God continue to bless you all.
Connor emits pure joy! Absolutely warmed my heart.
He seems happy all the time. You can tell he brings his family so much joy.
Thats exactly what I noticed to. Always a smile on his dile and a Mother who sees him as pure joy who wouldnt change a thing about him.
@@elysabethpoodle6234 dile?
This is the most precious mother!! She's so positive about her son and I'm sure he's really grateful to have a mother that appreciates how perfect he is
I'm not religious in any way, shape or form. I found this extremely touching and thank you for allowing me and others to see it. I wish the best for all of you.
God bless your beautiful loving family.
He truly is beautiful and yes we are all blessed with children and they are all a gift his smile makes it all worth while, bless this wonderful young man x debbie
That smile! I just randomly came upon this video in my "recommended" feed. Your Connor is clearly such an incredible guy! God's love absolutely radiates through that smile!
A true blessings. God bless him
Connor is pure, sweet and beautiful soul.
What a beautiful gift this video has been given to me this Easter morning. Thank you. Conner is beautiful indeed. God bless him and your family
Precious boy! Thank you for sharing your story. God bless Connor and his family. ♥
Wow! He has a awesome smile and he seams like he is a lo of fun to be with!,!!!!! God bless him and your family! He brings a smile on my face!
Chery
Cheryl64014 yes! He is so happy!, ❤️
Cheryl64014 xxxxxxxxxxxxxxxx
هةر له خوشيدابن
What a beautiful child!!!
I think that our society could sure take a lesson or two about love and happiness from our special kiddos! God bless you, Connor!
Such an adorable young man. You can see the happiness and enthusiasm in his face when he sees the horses, yet he's so gentle.
he has the best smile!
yes he has
What a sweet boy and such wise and loving parents. God certainly is being glorified.
So blessed this young man is.. You are truly an inspiration. I have a son with Fragile X Syndrome/Autism and it's amazing to me that people don't understand my unconditional love for him. Your unwavering faith, patience, outlook and understanding is truly something to behold. Your son is beautiful and so are you. God bess you and your family.
I've never seen a more beautiful smile. Connor is pure, he is real, he is an angel amongst us. What a beautiful mom & family! Thanks for sharing Connor and for making my heart smile!!!
Connor smiles so much. He is beautiful.
what a gentle sweet boy , GOD gave this child to the right family with lots of love
Something about him brings a beautiful calm to the world! God Bless your entire family!!
Gosh he really is beautiful & I love his mom's attitude. His smile makes me smile
I help a single mother care for her six year old little girl, Lucy, who was also born with NCBRS. I had no idea that this disorder existed and when I first met them I felt extremely clueless and was at a lost as to how I could ever be of any help to either of them. Part of me wanted to just keep my distance, fearing that I would do something wrong or flat-out never understand this disability or the many different challenges that come along with it.
That was around a year and a half ago. Today, I couldn’t imagine life without Lucy. Other than my own children , I have never felt such a close bond and unconditional love for a child like I do for Lucy. Every day that I am fortunate enough to have an opportunity to spend time with this amazing little girl is a gift. There are plenty of struggles, sure, and I do get frustrated at times, wishing that certain things could change, but I also thank God for placing this amazing little miracle and her beautiful family in my life. She has such an almost otherworldly warmth and an undeniable aura of complete and utter innocence and truth about her that it really is awe-inspiring along with almost impossible to describe to anyone who has never had the pleasure of meeting someone like Lucy or Conner. I may not be thankful about her being born with this condition but I am eternally grateful for being able to play a part in Lucy,s life. It is an honor and a privilege.
This is what every parent hopes for... a child just like Connor. A dream come true. You are so blessed.
"The Beautiful Syndrome" Love it. I wish my quality of life put a smile on my face half as much as this young mans.
So beautiful! I don't understand how people can say there is no God when blessings like Connor show us how God's love is joyous and neverending. What a wonderful gift God gave this family.
He is just precious! He has the cutest most outshining, beautiful smile out of all the children I have seen! God bless his innocent little soul. He is so cheerful and most definitely beautiful!
We see so much bad stuff all the time, then to see a beautiful mother and loving family like this restores my faith in humanity 🙏💐 A story like this shines sooo bright it wipes out the pain of 10 bad stories ....there are still some very beautiful and loving people on this planet ...seeing her read the Bible with Connor well I cant stop crying . God bless these beautiful people ....wait I can see they have invited YOU into their hearts and what comforts and blessings you have brought them ...I am niagra falls now ...God bless and thank you for sharing this beautiful story ...💝
Family is nice to have i thank God for that
What a sweetie.
I really wish they would update these videos. I was so touched by Connor and his mom and I’m sitting here feeling so full and happy for them and thanking God for my own children (my youngest son is disabled) as well. To be able to hear or see an update would be really perfect. For me I’m watching this beautiful, feel good, heart touching story and I sit and wonder where are they now? Is he ok? Is his mom? What lessons and messages can they share with us now all these years later? Sending prayers to Connor and his family ❤️❤️❤️
Wow. This is so beautiful. Connor looks like such a true joy to be around.
He is absolutely a doll!! He is just the sweetest and happiest little boys I have ever seen!! God bless him and his amazing, loving family.
What a sweet, sweet, little man! ❤️
My heart melts for Connor.
He is absolutely precious ❤️
Connor and his impact on his family reminds me of our niece's autistic son, Alex. He is precious to his family, a ray sunshine, loved exactly as he is.
Wow, this is truly beautiful. Keep smiling Conner.
Denise Lancaster in
What a precious child and strong mother.
Connor is beautiful. Thank you for bringing such a bright light into this world.
conner is so blessed to have such loving and caring family such as yours. may god continue to bless the world with his son in conner
What a lovely story. This family has such a perfect attitude. There is a reason for everything. This family really understand what a blessing each child is. This story warms my heart Connor is a beautiful boy. I am so glad his family appreciates him.
My son has Freeman Sheldon syndrome and he is adorable just like your son. They bring so much joy to your life.
God bless always!!! What a strong and inspiring young man!! I'm from Lexington and it's great to see just how amazing my fellow Kentuckians always are!!! Sending all my love
You are by far thr best, most loving mother ive ever seen.. Thank you for sharing Connor with us (and that infectious smile!)
He is beautiful and what a beautiful story. Thank you for sharing.
Conner is a beautiful boy with a beautiful soul! he is an inspiration, a shining light, he is joy and love!💙
Yes, as others have said, I sure do appreciate you sharing!! It is so refreshing to see good, positive, loving stories. Also, of course Connor is the star, but mom....you are quite the lady. I'm going to assume you are humble and quite modest and wouldn't want people gushing over you, however, that being said, not every mom could do this with the grace you have. In some sort of 'collective soul' I just know your heart and love ya as a sister in the way GOD intended. ;) ♡
I have fallen in love with Connor...., What a beautiful child. I'm blessed to have been able to bear witness to your blessing and am blessed by your generosity. Thank you
He exudes such a joy for life. You can see pure joy in his eyes, his smile and his actions. That kind of joy only comes from a divine source.
His mom is incredible! Wonderful, positive and happy lady. Conor is bless to be delivered by an amazing mother like her!
Happy NCBRS day! Your video was the first video I saw after I received my son’s diagnosis for Nicolaides Baraitsers in 2016. Your video has helped me so much in these past few years. I feel exactly the same way you do about Connor. My son Iman is now 6 and I agree the syndrome might as well be called the beautiful syndrome.
ITS CONNOR,I know conner from a nicolaides meeting my little bro Harley has the same disability,PLZ REPLY!!!!!!havent seen conner in a while send him all of our love!!
this video really touched my heart. he is a sweet boy. God loves him in every way. My love goes out to him and his wonderful Christian family. May your brother Harley feel the same love and may God cherish him as well.
A mothers love is unconditional, what a beautiful loving caring family, Connor is beautiful too, his loving soul shines through, truly touching video. ❤️
Conner is beautiful! He made me smile just watching how happy he is! Thanks for sharing your beautiful family!
What a wonderful story. He so cute. Thank you for sharing your story.
You can tell there is nothing but joy inside his heart. So truly beautiful.
You are an amazing mother! I think you set a major example of how all mothers should be!
Oh my goodness, I LOVE this boy. If only the rest of the world could have a fraction of his happiness, it would be a beautiful world!
Beautiful young man. High five Connor 💕
Beautiful.....just beautiful. What a WONDERFUL momma!
Thank you for your video! I cried when I watched this video, not out of sadness but because of the spiritual beauty of the entire family! The depth of joy in the wonder and beauty of music and animals shows that Conner sees and appreciates that which is closest to Gods heart. Beautiful video, beautiful music, beautiful mom, and of course beautiful Conner, the apple of Gods eye without a doubt!
May God bless you always. Amen ❤😢
I'm so happy he's happy.yes God blessed u with this wonderful child.amen!
Connor is a beautiful child! Thanks for sharing!
Such a loving mother, he's so blessed to have his family. I wish nothing but happiness for Connor.
i believe that these special beautiful children are given to parents that will love them unconditionally, you have done an amazing job for your son xxx
What an angel! Such a beautiful story and wonderful mother! ❤️
Conner is BEAUTIFUL. I love how he worships! God bless you and your family❤
He's smile is amazing! Like a Ray of sunshine thanks for this video really uplifting
Bless his little heart! An angel on earth! Wouldn't the world be a wonderful place if everyone was like Conner? He's not the odd man out. The rest of us are! What a beautiful soul God has given his family in the form of a child.
Any animal lover is a friend of mine, sensitivity and grace with animals shows the true soul, bless you Connor. xo
What an amazing Mom and Dad, what an amazing Child, what an amazing difference a shift in perspective makes, So glad you all made your own happiness, Life is truly Beautiful!
Amazingly caring and loving family and a very beautiful young man this Connor. Imagine every child with any syndrome or illness being welcomed this warm into the world. The way this mother speaks about Connor and his syndrome is very inspiring, and an example to everyone.
Beautiful boy! Good job momma! You can tell the light of God shines in him.
I am such a lucky mom... Bless You and your family for sharing. He is a blessing to this world.
what a sweet and blessed family. God made sure Connor was given to a beautiful sweet Mother, God bless you!
Beautiful soul. Mother’s unconditional love can conquer all!! God Bless
I really hope he can find relief if his seizures. He has the brightest smile that lights his eyes up too. His happiness and kindness is beautiful.
Im guessing yall are here in NC? If youre not too far from Kenly (smithfield), maybe you could bring him by our place to see the horses sometime! We have TONS of animals to love on!💖💖
Conner makes me smile by seeing this video and this is why I am a paraprofessional. 30 years of enjoyment not just a job but a passion Keep smiling Connor.
What a cutie Pie!!! Absolute joy to watch, I feel like my joy meter was gonna bust. Born in a state of perpetual joy, and with parents to treasure him. My first was happy like that, he would make strangers laugh out loud with his exuberance. This child must have an ancient soul.
Beautiful family!!!! Beautiful Conner!!!! Amazing story of love and God's blessings!!
You are a lovely mother with a beautiful son. God bless you ma'am.
Any updates on Connor’s life?is he still alive? What can he do for himself without help or assistance? How long can he do things by himself without anyone else helping or hovering?
I would like to feel just 1/10th of the joy and happiness I see on Connor's face. I see why Conner is loved so much. :D
I'd love to see an update video some day!!!!
You make me proud, Beautiful Mama. Your love for God lives in your love for your baby. Your son is so beautiful. Makes my heart soar seeing his smile. I have so much love for you and Connor:) May God continue to bless you and your whole family. Especially Connor.