Wow this really hit the nail on the head for me and I wasn't diagnosed until I was 29. Not realizing I had dry mouth until recently because it was just my normal for nearly my whole life. The relentless fatigue through middle and high school... this just explains so much.
So, basically, everything except veggies 😢 It is hard to find a diet that works. I also hace Celiac Disease so I find it hard to find accesible food if it is not cooked at home
What a mix of emotions and the feeling of a heavy burden that has put some of the missing pieces together. I am 59. I didn’t get diagnosed until I was in my early 50’s, despite all the mixture of symptoms I struggled with since childhood. The symptoms discussed where prevalent and and made my self esteem my worst enemy and the constant persist of silently wondering “what is worn with me. Why did God. I couldn’t understand how I was so talented one day and a fatigued forgetfully tired little girl who lost and misplaced very import items. I had regular mouth sores , dtr noun and choked in try going... the. Pike SS are coming together. My oldest son was born with a Congenital heart defect.. now known that momsWith Sjogren’s Are at a higher risk of giving give biithb zTo a baby with a congenital heart d defect. I had absolutely no knowledge at the time. But my recent diagnosis explains a lot. Now to figure out the best way to explain this all to my children and to explain the fact they may have the afflicted with it to
Thank you so much for doing this. I can only imagine what these kids and parents are going through. I grew up with Sjögren's without the current supports. I would love to help the foundation in this area. Let me know www.arthritisdietitian.com
My son was just diagnosed sjorens, celiac, and rheumatoid arthritis. The only reason he got a diagnosis within 6 months is due to me having lupus, and rheumatoid arthritis. He's always in a lot of pain in his joints and muscles. His teeth are decaying from dry mouth. He sleeps 24/7. It's awful and I'm really questioning my faith now.😥😥
@@realisrare38 Oh no. I am so sorry to hear this. I can't even imagine what you are going through. I hope he is in good hands and getting the right care. Celiac disease could deteriorate the enamel too. Please don't lose faith. Your boy needs you.
Wow this really hit the nail on the head for me and I wasn't diagnosed until I was 29. Not realizing I had dry mouth until recently because it was just my normal for nearly my whole life. The relentless fatigue through middle and high school... this just explains so much.
Can A sjogren patient of age 60 yr can take COVID vaccine,if yes ,then which vaccine??
So, basically, everything except veggies 😢 It is hard to find a diet that works. I also hace Celiac Disease so I find it hard to find accesible food if it is not cooked at home
What a mix of emotions and the feeling of a heavy burden that has put some of the missing pieces together. I am 59. I didn’t get diagnosed until I was in my early 50’s, despite all the mixture of symptoms I struggled with since childhood. The symptoms discussed where prevalent and and made my self esteem my worst enemy and the constant persist of silently wondering “what is worn with me. Why did God. I couldn’t understand how I was so talented one day and a fatigued forgetfully tired little girl who lost and misplaced very import items. I had regular mouth sores , dtr noun and choked in try going... the. Pike SS are coming together. My oldest son was born with a Congenital heart defect.. now known that momsWith Sjogren’s Are at a higher risk of giving give biithb zTo a baby with a congenital heart d defect. I had absolutely no knowledge at the time. But my recent diagnosis explains a lot. Now to figure out the best way to explain this all to my children and to explain the fact they may have the afflicted with it to
Thank you so much for doing this. I can only imagine what these kids and parents are going through. I grew up with Sjögren's without the current supports. I would love to help the foundation in this area. Let me know www.arthritisdietitian.com
My son was just diagnosed sjorens, celiac, and rheumatoid arthritis. The only reason he got a diagnosis within 6 months is due to me having lupus, and rheumatoid arthritis. He's always in a lot of pain in his joints and muscles. His teeth are decaying from dry mouth. He sleeps 24/7. It's awful and I'm really questioning my faith now.😥😥
@@realisrare38 Oh no. I am so sorry to hear this. I can't even imagine what you are going through. I hope he is in good hands and getting the right care. Celiac disease could deteriorate the enamel too. Please don't lose faith. Your boy needs you.