EDS Patient’s Impression on Smoov

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Hi, my name is Olivia!
I was born with a rare genetic condition known as Ehlers Danlos Syndrome (EDS for short). Living a normal life with this condition while receiving proper treatment and support is just about as rare as the condition. EDS causes a multitude of secondary conditions and with each secondary condition comes complications. In return this causes many medical professionals to reject patients that live with EDS out of fear from the unknown. This causes strain on ones mental health.
My goal in life is to help those that struggle with mental health by becoming a motivational speaker as well as raise awareness for EDS. I came to know of my life purpose through a miraculous experience that brought me faith. The struggles of this world are big and try to tear me down but my God is much greater and beyond the dirt of any planet.
What is EDS?- www.ehlers-danlos.com/what-is...
My experience with EDS- • My Rare 🧬Genetic Condi...
My secondary conditions- • P.O.T.S ❤️| THE TRIFEC... , • My Progressive Disease...
Link to Purchase: www.bonfire.com/oli-keeping-t...
Just want to donate? Click on this link-
www.gofundme.com/f/21bw1arho0...

[@argusburebistus8602]

Now i didn't have a freaking clue i heard about this disorder but never actually know what the hell is i do know about a TH-cam channel with a woman who use to have it she died some years ago she spent her last moments in hospice and she pass away sounded by family......it was heart braking for me my wife have some genetic conditions like albinism and macromastia how ever that did work in her favor because i married her because she looks very exotic 😁

[@OliKeepingTheFaith]

Thank you for taking an interest in learning more about the condition and watching my videos. Many of my favorite Ehlers Danlos Syndrome (EDS) TH-camrs that I used to watch have passed away as well. They were only in their early to mid twenties. The condition can be very hard to manage at times and I have had some very scary complications!
Spreading awareness is very important for others to receive an early diagnosis. Awareness also helps to increase & improve the research for EDS to hopefully decrease complications, improve management, increase life span and most importantly improve quality of life.
I’m happy for you and your wife and I hope y’all are doing well!

[@argusburebistus8602]

@@OliKeepingTheFaith we got lots of kids more one there way we expect twins the tribe getting bigger and bigger and i did expensive 🫰 genetic testing to be sure no surprises appear we are clean of course the kids will be caring the Albinism genes i don't have it so no Albino kids probably the girls they gonna have in there teenage years big chest like there mother gonna attract lots of attention special from boys 😁