Update on Lyme Diagnostics, Treatment, and Mental Health with Global Lyme Alliance's Laura MacNeill

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  • เผยแพร่เมื่อ 14 ต.ค. 2024

ความคิดเห็น • 40

  • @wendyhirschi
    @wendyhirschi 8 หลายเดือนก่อน +18

    Do you know about the research being done by RED labs in Belgium? This lab has the Phelix Phage test. This lab is expensive but it has the technology to test for chronic and acute infections. My husband was ruled out for Borrelia Burgdorferi but positive for Borrelia Miyamotoi. He was diagnosed with Babesia through Igenex labs in the US. This pcr testing should be used here in the US. It’s absolutely awful that for years we thought he had some sort of Lyme disease but the testing as u said hasn’t been improved since typewriters were used and went undiagnosed most of his life. Now his treatment is very difficult and we don’t really know if he will actually be cured from this. There are no bacteriophages to kill these bacterias which makes his treatment even more difficult and the only doctor who will even prescribe his treatment is in Belgium. It’s absolutely insane that we have no access to help here and have to search for it and hopefully to find it. It’s a miracle that I even found this help in the first place and our healthcare system shouldn’t be this difficult to navigate

    • @freddiamond7485
      @freddiamond7485  8 หลายเดือนก่อน +4

      I didn't know about this but am not surprised. Sorry your husband is going through this.

    • @sikorn6680
      @sikorn6680 8 หลายเดือนก่อน +2

      I think Phelix Phage test is only a test right? It is not a treatment? I live in Europe. My feeling is that there is a much broader community of doctors in the US when it comes to treatment of chronic lyme diesease, but of course very expensive. In Europe it is nearly impossible to find even a doctor who wants to treat you for chronic Lyme. Do you know "How Can I get better" from Dr. Horowitz? There might be some answers for you in this book.

    • @elisatarantini2389
      @elisatarantini2389 8 หลายเดือนก่อน +4

      I' m italian, i was in Mexico and Miami 24 years ago, now i have 44, and i Just find out i" m positive ti borrelia. I have diagnosi of Fibromialgia and Sclerosi Multipla, but now i understood Is something else. I' m living in hello, with a lor of pain everywhere, Vertigo, tiredness , brain fog. Can you tell me if there Is a way tu cure a Cronic Tardive Lyme? This Is what i' m booking fir trying to understand as more videos i can in english becouse in Italy everything Is confused

    • @wendyhirschi
      @wendyhirschi 7 หลายเดือนก่อน

      Thank you. Hopefully this lab does end up getting this testing out here in the US so that it is not such an ordeal for people to get tested. Getting tested into the mainstream would be HUGE for everyone because I am sure a HUGE majority of the population has this crap. Mine and my children's tests just came back and I have three strains of borrelia. Fortunately we will get treatment with our dr because he knows what he is doing and actually is passionate about getting those who he has the ability to treat better @@freddiamond7485

    • @wendyhirschi
      @wendyhirschi 7 หลายเดือนก่อน

      YES you are correct. That is the hardest step in this process, getting tested. So far, the treatment is not mainstream. YOU live in Europe so you can go see my doctor way easier then we can! Go to the Himmunitas clinic in Belgium. The doctor will get you this test sent to RED labs. And yes I am pretty sure that we will be bankrupt after all of my family is fully tested and treated. Insurance doesn't cover anything here in America as it is a controversial diagnosis and most doctors are aware of this and afraid to really dealve into it. @@sikorn6680

  • @Tinyteacher1111
    @Tinyteacher1111 6 หลายเดือนก่อน +4

    I have been diagnosed with several infections of Lyme, including a live form of Babesia Mycroti. This was 18 months ago, and I was on anti-malarials antibiotics, and am now on herbal remedies. I went through living hell killing off the Babesia, but I’m still sick every day! Arthritis (bone and joint pain, muscle aches, leg aches, a fused spine, eye issues, etc., and I live alone at 69 years old. I can’t even make a lunch date because my pain and flu-like symptoms are unpredictable. I can rarely go anywhere, and I’d like to help, if possible. Thank you!

    • @Kellycreator
      @Kellycreator 6 หลายเดือนก่อน +3

      Reading this is like I’ve typed this myself. My spine is ruined from late diagnosis and treatment. I had a meningococcal infection too with 95% infected CS fluid. My eyesight is affected daily too. Sending love and understanding from England ❤❤

    • @Tinyteacher1111
      @Tinyteacher1111 6 หลายเดือนก่อน

      @@Kellycreator Wow! So is mine! I can’t even stand or sit up and I feel sick constantly.
      We should try to keep in touch!

    • @Tinyteacher1111
      @Tinyteacher1111 6 หลายเดือนก่อน

      @@Kellycreator I just remembered that I was diagnosed with Ankylosing spondylitis two years ago, after having severe back pain since age 14. My spine has fused together, making it nearly impossible to do much! 🙏

    • @gailpetherick1879
      @gailpetherick1879 13 วันที่ผ่านมา +1

      Thanks for sharing...I feel for you and can relate to the unpredictable phases of Lyme and babesia, which often interfere with any socializing. The die off effects when being treated for both diseases are terribly had to endure too...I had lymphatic drainage massage to help this each week and did some walking in a swimming pool very gently to help lymphatic system and inflammation

    • @Tinyteacher1111
      @Tinyteacher1111 12 วันที่ผ่านมา

      @@gailpetherick1879 Did that help? I’m by myself because my bfs all left. I can’t do this house alone.

  • @justdawndb
    @justdawndb 8 หลายเดือนก่อน +6

    Lymesince 89, i trust No One. Im
    hopeful for this new antibiotic. To tell people to seek help is like a slap in the face...
    Thank you Laura & Fred for your efforts.

  • @bobreichel
    @bobreichel 8 หลายเดือนก่อน +3

    I don't know if this has any relevance, but I have joint pain in my wrists, my hands, my elbows, my shoulders, my hips. My skin is extremely sensitive. I don't know if I have Lyme disease or not. I haven't been diagnosed yet for any particular item. What I found interesting was when I got COVID-19. I had three days of fever, and all symptoms went away. As soon as my fever went away, all the symptoms came back, and then some. Apparently, somebody else also experienced the same thing. I don't know if this is something to look into, but I just thought I'd make it known.

    • @freddiamond7485
      @freddiamond7485  8 หลายเดือนก่อน +2

      Yes, I would get it checked out. Today.

    • @bobreichel
      @bobreichel 8 หลายเดือนก่อน

      I got tested for arthritish, Lyme disease, and Rocky Mountain. All came out negative going to a rheumatologist tomorrow.
      Unfortunately, I have to go through the VA.

    • @wendyhirschi
      @wendyhirschi 7 หลายเดือนก่อน

      @@bobreichel if you are a veteran, you may have sent oversees. I was sent to Saudi Arabia when I was in the air force. My testing recently said the borrelia strain I have is from Africa so close to where I was. I don't know if I got it there but it is chronic and the only reason I know this is due to spending thousands of dollars on testing in Belgium and a doctor who I see through zoom now. He luckily came this past weekend to Reno and I was able to see him along with my kids. Unfortunately if you have any form of lyme disease, you will only be tested for one or two strains here in the US. That is why my husband's borrelia Miyamotoi was never detected until the correct test, phage pcr testing, was done. He is now chronic and barely has a life. This could be something you need to check into out of the country if you really want to find out that you have any form of Lyme. Good luck with the doctors in the US they aren't going to be able to help unfortunately.

    • @LeslieNice
      @LeslieNice 6 หลายเดือนก่อน

      There are no reliable tests!

    • @barbarabarrett5854
      @barbarabarrett5854 2 หลายเดือนก่อน

      Detox. Heavy metals

  • @jackiemcdonell1737
    @jackiemcdonell1737 6 หลายเดือนก่อน +4

    Who was the doctor from long ago that used a home microscope to look at the blood? I think the blood was diluted with water in the petri dish before observing. All this money & bureaucracy... Everything is over complicated while the folks in control figure out the best way to profit off the public while simutaneously quieting any dr's or researchers that have brought forth real help.

  • @James-ln3hx
    @James-ln3hx 4 หลายเดือนก่อน

    I'm in Texas and can't get help

    • @cheryllindberg1975
      @cheryllindberg1975 3 หลายเดือนก่อน

      Look into frequency healing. Alternate healing has helped me

    • @barbarabarrett5854
      @barbarabarrett5854 2 หลายเดือนก่อน

      Ivermectin it’s pa parasites

    • @barbarabarrett5854
      @barbarabarrett5854 2 หลายเดือนก่อน

      Try the infrared sauna they have to get so hot and then the spider Keats will burst, but then you have to detox to get it out and kill the larva

  • @ginaarendtson9478
    @ginaarendtson9478 8 หลายเดือนก่อน +1

  • @shawnshawn7477
    @shawnshawn7477 7 หลายเดือนก่อน +3

    How much does Laura make per year? Seems like people are collecting a lot of money and not providing any results to those infected with Lyme or "autism".