Living with Lyme…and More, Please Hear Me - (Patient Panel with Q&A) - Lyme Summit 2023
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- เผยแพร่เมื่อ 5 ก.ย. 2024
- Living with Lyme…and More, Please Hear Me - (Patient Panel with Q&A)
Dan Cummings, Moderator
Ryan Maness, JD, Virgie Townsend, JD, Adam Siegers, MD and Royale Scuderi, Patients at Lyme Summit 2023 hosted by CNY Lyme & Tick-Borne Disease Alliance and SUNY Upstate Global Health Institute.
I know for an absolute FACT that on MANY MANY occasions, some lab workers do NOT take their job seriously and just want the paycheck without having to actually do the testing.
Where?
My doc wanted me to pulse doxicycline for 2 years. I wont as doxi causes serious depression. I use an herbal protocol.
@@alancooper3473 Typically in hospital labs, but it probably happens in other medical labs as well
One of my clients is a director at a pathology lab and she says that people would be horrified at the amount of technicians who just sit there poking on their phones and do not care AT ALL about doing their jobs well. She thinks today’s diagnostics are a crap shoot at best .
Lyme is horrendous! I thank God every day that I managed to heal myself.
I contracted Lyme in 2015 and I wouldn't wish it on my worst enemy. I couldn't walk, couldn't lift my arm and I couldn't sleep because of the severe pain 24 hours a day. After a few weeks in hospital the doctor's told me that they couldn't do anything to help me and that my body would have to heal itself. After 3 months in hell I was on the verge of taking my own life just to end the pain. What saved me was reading a book by Professor Buhner's called 'Healing Lyme' and followed his protocol to the letter. When I told the doctor's what I was going to do that they laughed at me. What else was I supposed to do?
It was a very slow process because first you have to kick start your immune system and second you have to fight the bacteria of which actually hides from your immune system - known as 'pathogenic bacteria'. What is different about the Lyme bacteria to other bacteria is that it eats the magnesium in your body whereas most bacteria eat iron. Without magnesium your muscles can't work. Little by little I began to improve but I won't lie, it was the fight of my life. All in all it took about one year for all the symptoms and the pain to stop. Only then could I begin to build up my strength again. Today, 2024, I play golf and I am a 8 handicap. If I ever contracted Lyme againI don't think I could go through it a second time and would probably just end my life. That's how vicious it is.
For anyone reading this who has Lyme - don't give up - your body can kill it. It takes a special diet, special herbs and sheer will power. It will be the fight of your life but if you want your life back that is what you must do. Anyone interested; I made a video of my Lyme recovery journey and posted it on my youtube channel vlog
Helping a friend with her yard, I
acquired Lyme.
I worked in Pharma, and after
complaining about not feeling well,
a colleague suggested I get a
Lyme test.
It came out a false negative.
3 or 4 months later, one of our
Pharmaceutical doctors insisted
I get retested again (different) lab.
It was positive. I month of taking
Doxycycline, and I felt like a
different person. I did however
lose my gallbladder.
It was filled with calcified small,
Spiro-???
I now take a Lyme tonic to be on
the safe side....
Interesting. I lost my gallbladder too!
May I ask what your tonic is? I’ve heard Japanese Knotweed, CSA, and Cat’s Claw.
Probably everywhere!
What Lyme tonic?
Yes… what is Lyme tonic please?
So there a link between Lyme and the gallbladder? I have had pain on and off under my right rib for years along with yellow stool, Dr's have never found anything. Just recently l discover Lyme and definitely think l have it 😢
Excellent, realistic, accurate, and informative on so many levels. One of the best presentations on Lyme I have seen.
The dr has a story like mine anaplasmosis is a beast same with bartonella as a kicker with Lyme it’s been a long time with unbelievable pain my brain is gone dementia symptoms know. Till this day never been publicly diagnosed or treated 8 years.
Can you start to treat yourself? Check out Dr. Rawls who has a protocol, if nothing else!
Key word was publicly I was and am privately treating out of pocket but good news my mris are coming back remarkable maybe not so good news and the VA just called and they’re diagnosing me with neuro Lyme.it’s impossible to get treated they don’t recognize objective truth they have been brainwashed by university to except there fake/subjective reality for money and a job there souls are owned by money and carrier bending reality for money. time has come and gone 8 years know I’m devastated in every way positive financially physically soul provider to three kids who could have had it and did have it really good know it’s poverty.
I think bill has Parkinson’s from tbds obviously and is coping with plant medicine we need accurate diagnostics to believe anybody antibiotic’s are natural medicine they do cure infection if caught early I would protect my brain and loved ones from something that is a brain infection that is transmitted I have a responsibility even though drs have betrayed there’s.
Basically it’s going to be antibiotics that fixes this once and for everybody maybe hydromycin a in combo with ext… maybe Tim haystead at duke will pan out we will have anti microbial treatment that works way better eventually.
I was bit in summer of 2023 by deer tick that tested positive for lyme bacteria. --I am suffering constantly with dizziness and vertigo, visible muscle and soft-tissue loss, causing weakness and pain. I was as active and healthy as can be before this happened, but am currently housebound for a year. --I'm still looking for proper testing and treatment.
Thank you for sharing this!
My wife is 82 yrs old. She has Parkinson's. As well as Lyme. Her doctor was faced with old age problems as well as Parkinson's and Lyme. What is the cause of her problem?? Still working through it all.
The conventional testing does not work. I got tested properly by holistic drs and found everything I have, and its all etiological. But treatments for the immune system and these disease are very difficult.
Great video! Thank you!
PLEASE READ THIS BECAUSE:
I found a product people could try.
I’d also love to help (or be a Guinea pig) in any way I can: PLEASE!!
I’m now 69, single (it’s very hard, especially when no one understands Lyme.), and have been sick and in horrific pain for 21 years. I luckily was able to teach high school for 40 years before I had to retire because I was so sick. I have an extensive education, raised two children mostly alone, and now I live in Rochester, MI, an upscale city northeast of Detroit.
I’ve been an advocate for several invisible illnesses; breast implant illness (which caused several autoimmune diseases, several major operations within 10 months, hideous infections, sepsis, and a stroke), autoimmune encephalitis, (which my adult son has due to Lyme meningoencephalitis at age 7, which caused him brain damage and disability), mold toxicity (which we both had from different houses), and now Lyme.
I have several coinfections of Lyme including a live Babesia Mycroti for which I am being treated, but went through all the malaria symptoms!
I realize I’ve had it since I was a child with horrific leg pain, stiff necks, boils, lethargy, malaise, etc. yet, no one considered Lyme back then.
I’ve had to change my entire lifestyle and diet as well. I lost almost my own life during an operation. and everyone in my life, SO MUCH MONEY, and I have ADHD, brain and neurological issues, and CPTSD, because of the medical system for lying to women and allowing breast implants which immediately put me in danger of every disease imaginable. (Black box warning now!), dismissing mold toxicity, and chronic Lyme disease. I could be a poster child.
BUT:
Try: Biotics Research: Ultra Vir-X, a supplement I got online from an integrative health doctor in Michigan, Dr. Brownstein, who has now gotten into Lyme protocols. He’s written books on other things, and is well-known in his field.
I was thinking about the viral particles, and tried this. My leg pain that was the worst, has substantially subsided!
If you’ve read this far, I you probably have Lyme or know someone who has it. I hope to God you get better! My sincerest wish is to hope that generations to come (including my 8 year-old granddaughter) never have to experience any of these traumatic and life-changing illnesses! Much love…🩷
Can blood gene test tell if I have Lyme disease or not? I have morgellons 2 years. I had blood gene test which cover 17500 pathogen no speical finding. But fibers in different length in different shape and different color constantly come out of my skin.
His website doesn’t work
Fasting and not eating processed food especially seed oils, meat instead with plenty of kelp and other healing plants. But mostly fasting no food or water. An don't ever use a doctor.
Has that helped? How long do you go without water?