Caroline's progressive MS story
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- เผยแพร่เมื่อ 21 พ.ย. 2024
- ‘I want something that’s going to mend my nerves. Those nerves currently can’t be treated by existing treatments. We need to make sure there’s something for the future, for me and others like me.’
Caroline from the UK was diagnosed with secondary progressive MS 8 years ago. Hear her story and the hope that the Alliance gives her. 📣
For over a million people like Caroline, progressive MS can affect all parts of daily life. The International #ProgressiveMSAlliance is rallying experts around the world, working too accelerate research and ensure that people with progressive MS can live fulfilling lives.
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This disease stinks, never thought I would be diagnosed at 68. It’s changed my life was a runner, outdoor person & a dancer. My prayers go out to all who have MS 🙏
How are you doing ?
I was diagnosed in Oct 2022 at 69. What a surprise
@@evekrawczyk633 I know what u a dealing with, stay strong ❤️
I also have primary progressive multiple sclerosis I was diagnosed 10 years ago, my neurologist back, then told me I would be bedbound or dead in 10 years. I’m still driving and cooking for myself, because I took my health into my own hands after he threw his hands up in the air and said there’s nothing more I can do for you, I said thank you and walked away and now I tell people this disease is a blessing, and a curse a curse, because it is so hard to even stand up a blessing because now I know how the human body works. I know exactly what I did to myself to come to this state, God bless anyone out who is suffering from any debilitating disease God bless you always calculate your next move and take it one day at a time. Happy holidays, everyone
Okay, so let's see what we've got: From the information as stated in 2023, the disease is being brought on by at least One Virus; Epstein Barr.
Now, it appears, at least in my case, {another virus} Triggered the development of the more obvious symptoms we see as MS.
Then, most of what ive seen since the late 90s, showed / shows the slowing down of the symptoms, but no effective treatment or cure; only the management of the decline. Outcomes from 97 - 17 amounted to therapies but no real reverse of the disease; why..? Answer:
The inability to Manage Viruses. Seems my 1989 bout with Mono, and sudden diagnosis of MS in 2016, came about 4 Months after being given Oral Herpes by my girlfriend at the time.
So: It does appear, One Virus; Epstein Barr causes the Fatigue, Lethargy, etc. The Other Virus; HS1, is causing my Optic Neuritis, as the girlfriend was experiencing Her own Neuritis and vision loss in her right eye as well. Was taking her to the doctor for it as I recall, come to think of it.
Conclusions: So what I see taking place, is the body's attempt to rid itself of at least Two Viruses, that become endemic, fusing and blending into the body after many months and years, that to the body... ' it would appear that the body would / is attacking itself, quite correct.
Answer: What we now need, is an approach or treatment, that Nullifies both Viruses, so the body no longer is forced to attack itself. Thank you. Peace. ❤
Can yo u elaborate on wh at you did to help yourself? I'm e xpecting a diagnosis at just 29 years old. I'm terrified.
Diagnosed 27 years ago and the past 5 years have been THE most challenging. It's a cruel disease.
Yup, I'm 17 years in and it's now active secondary progressive MS. Stay strong 🙏🏼
She sounds like a remarkable and intelligent lady. Such a shame.
I can relate to all of this.
Your honesty is appreciated
My mom has had it for 25 years. These last 5 have been hell. This is a family disease that affects everyone in the household. My mom can't do anything anymore, and now she's losing the ability to stand up with her walker, so it's getting scary for everyone. It's been really hard having to grow up watching my mom deteriorate right in front of me.
TH-cam only has a thumbs up to represent that you appreciate or like the video. In a case like this I wish it was more like Facebook that had a sadness emoji.
My 41 yr old daughter just got diagnosed with progressive MS 😢😢😢 it’s very depressing to not being able to do anything to help her , I pray constantly for her and try to just be here but she doesn’t contact me much 😢only by texts even though she lives only an hour away 😢😢 she doesn’t like anyone to visit 😢😢 if you could give me any insight to what I could possibly do to help her ….. please tell me 🙏🙏🙏
You can do something. I know from experience
keep praying, she is may depressed coz of it, advice her to eat more greeny dark vegetables, eat more fish salmon, sardine, try to go out in sun and walk and take off course vitamin D daily along with vitamin K to absorb it, also omiga 3 pills, try to be happy it helps a lot, and a lot said Lion's mane mushroom pills help. and manuka honey..just be positive with her, share successful stories together.. it may help.. lets pray for each other every day.. God is great ❤❤👋🌷
If you have money try HSCT in mexico or russia my wife was diagnosed with ms six months ago we haven’t done it yet cuz of financial issiues but ill do it for her if it means ill sell my kidney
No please not sell your kidney
@@koko_7yes she may very well be depressed! Keep praying, I will join with you in prayer for her🙏🙏❤️
I Daniel McCoy M S .about a year ago I can still use all my limbs. I will begin to start trimming. I hope I found a cure.
Yes how are you doing?
We are in the same boat.🙁
What causes MS and is acupuncture therapy good for treatment of MS and what are the names of the medicine prescription for MS diagnoses.
Not sure if you still need a reply since I’m 4 months late😅
But MS is caused by an autoimmune reaction where your immune cells mistake your myelin sheath (the coating of nerves in your brain and spinal cord) as something else, and therefore attacks it. Without the coating of the nerves, the brain has more trouble effectively communicating with the body
There’s a lot of different medications for MS, some are to manage symptoms like fatigue, but to manage the disease course itself there are lots for relapsing remitting MS, but only 1 approved for primary progressive MS (called ocrevus)
EBV virus causes ms...
I have MS. Food and minerals have brought me tremendous relief and longer remissions in between attacks. Bless you guys
@@Dasani_water_drinkerwhat foods and minerals🤔 i know only vitamin d helps
You want to eat healthy, get good sleep, and exercise. Those things are important for everyone, but critical for MSers. It is an immune response like the first commenter said. I would recommend looking for Dr. Boster on TH-cam. He is a neurologist who works with medication trials and is a MS specialist. Any questions you have can be found in his video library and he will frequently answer questions from viewers.
I feel just like you . Its a horrid disease
Caroline- how are you getting on?
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