Perspectives from a Neurologist Living with MS
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- เผยแพร่เมื่อ 30 ก.ย. 2024
- A neurologist living with MS discusses how the team approach works at his comprehensive MS Center and speaks about what the future looks like for someone newly diagnosed or living with MS.
I was diagnosed with Multiple Sclerosis 4 days ago, I’ve never thought I’d catch something like this and my symptoms really sucked. The worst part of MS is when people ask me “how are you doing” or “how are you feeling” deep down inside we know we’re not okay but in the outside we look okay.
So sorry... have u had any infections or vaccinations within the last 3-4 months of your first symptoms?
I had i was ill 4 weeks before ms@@freethinkeralways
I have multiple sclerosis was diagnosed in February horrible disease. Thing that annoys me people saying look fine but would like to swap body for a while to show how it feels.
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Yeah, you’ll always get that. I have learned to be grateful that that is the case. “ if I can’t feel good might as well look good” stay strong! 💪🏻
Hi i feel constant pain in my legs and body is it usual thing for MS????
Because I feel my doctors just gave me wrong diagnosis
Thank you doctor I needed that today. I was diagnosed 5 years ago and my journey has been a bumpy road since.
Thank you for this video. Give us hope. I love the line: I got shot. When someone asks why are u limping? Life is a journey and MS is a speed bump.
I was diagnosed this past may so very recent. Been feeling scared beyond belief. Felt like life was over. But watching this gave me so much hope.🎉❤
You should have hope, there are many things to be tried. I was scared too but sometimes things that seem like bad luck end up being advantages, look at this doctor and what hes become!
As someone newly diagnosed with MS this video is very hopeful also Diego is a genius 😂
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Thank you Dr. I am listening to you lying in a hospital bed awaiting a lumber puncture test tomorrow. One of the diseases I am being checked for is ms. Your video gives me hope. Thanks again.
This is truly an inspiring man. I don’t have MS but my 40 year old daughter has recently been diagnosed with MS. This Doctor has given me the answers I’ve struggle with and now I have peace and hope for my daughter and her family members. Much thanks to you Doctor.
All the best too you! That was an amazing story.
Glad you enjoyed it!
Dr- thank you so much for your great insight on this disease. I was diagnosed in March 2022 and on Kesimpta & feel pretty great. I sleep way more than I did before & even dreaming again! I am 54 and feel grateful & hoping for the very best especially road cycling.
Look forward to your video's in the future. Best from COLO
Road cycling??? I was a road cyclist- tell me more !
I was just diagnosed with optic neuritis and have to have an MRI Tuesday. I'm really scared I just had a baby and my wife watched her uncle get slowly debilitated by MS. I'm scared for myself but mostly for my family. These videos help a lot knowing it's possible to live a somewhat normal life. Thanks so much
Any results? After I had my first child I lost vision in my right eye too. That was 22 yrs ago.
vast majority will become spms...get hsct to stop rrms from turning into spms.
I’ve been searching for an answer for going on 3 years now. My primary doc feels I have MS, as do I. I’ve had a rheumatologist test me for every autoimmune disease and it all came back except my ANA which stays positive. I have a “Dawsons Finger” lesion on the top right side of my brain. I have SO many symptoms. But every neurologist I see chooses to use the McDonald criteria to diagnose and it requires more than 2 lesions. I just need a neurologist who CARES and doesn’t use some criteria requiring more lesions.
I have had symptoms for 5 years. It has taken my life from me ! I'm a shell of my former self. I was just diagnosed after a ER visit. It caused me to have a stroke because of the flair. I ended up with 12 different doctors for every different issue I was having. The whole time I told them I just needed someone to connect the dots. And now they see it so now. I have misunderstood,not heard, and pushed aside by doctors. Keep ur head up and if u need someone to talk too I'm here. I also last year got diagnosed with RA. Only neurologist can diagnose MS.
@Tina how are you today? Any diagnosis? I’m in the same boat as you except I only have lesions in my spine
You can’t fight your purpose. It was meant to be! 🧡
I like this Dr and wish I could be seen by him..
The unknowns the ifs the cost the toll of physical and emotional issues relative to Ms are frightening
Dr Wade you will forever be a part of Steve and I's family. We miss you so much.
I was diagnosed 2 years ago but I’ve had it much longer. Am on treatment now. Thank you for giving us hope!
What an amazing video. Hero! 🧡
Why, after confirmed MS for 20 year's, do I suffer from groin debilitating pain muscle spasms, and what can I do.. I streach... But my Neurologistics retired...and my new nurse neurologist practitioner can't prescribe medication .. I feel helpless
I get the exact same pain, have ms 10 years. Do you also get snapping hip?
Insist on being seen by a doctor. NPs have only a fraction of the education and experience you have the right to be seen by a physician don't let them pressure you into settling for less
Hi, thanks for your story and insights. I have been having symptoms for 1-2 years. Off and on. Recently I had a brain, c spine, thoracic, lumbar and sacral MRI spine. Scanned with 1.5 Tesla without contrast. All came back normal with no evidence of lesions of demyelination. My dad has MS. I wonder if the scan was strong enough or if something was missed or if this is all in my head now, what do you think Steve or should I rule out MS? Thanks
Dr, I'm not slamming you, but if you've had MS, like i do, for +40 years and can function so well, go to college for ?yrs and get a neurology degree and now go to an office to see patients, you Do Not know our World. You may have a few symptoms but so do millions of people.
Many people have lesions in the brain and are incorrectly diagnosed with MS.
I am wondering how hes managing his career with ms
Chronic fatigue is the worst
He has zero symptoms.
he passed from covid in 2022...it hits ms peopleharder.
I understand, just wanting to know what's wrong.
I'm sorry, but I find it difficult to feel sorry about that. I can emphasize, because I too, have MS.
But, you have a really nice job and a pension coming your way. So blessed compared to others that will struggle mightily.
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He worked for 2 decades to become a doctor. That is not easy one bit.
He never enjoyed penny of his pension...he passed in 2022 of covid at age 65.
Covid is harder on ms patients..but he was just lucky to be in the 1% who never get disability. People say it gives
them hope..more like the wrong idea.
I was diagnosed with MS in 2018 at age 57. The neurologist wanted me to take an experimental drug. It only cost $30,000 per year. The potential side effects of the drug were far, far, far worse than my symptoms. I chose to go the Naturopathic route. I am now a vegan and stopped drinking alcohol. My MS is in remission. Western medicine is a great business model. Too bad it doesn’t work.
"Western medicine" does work.
I had the same talk about expensive drugs that delayed rather than cured. Instead of using those drugs i researched the scientific literature and found out about treatment pioneered in University of Chicago hospital using HSCT (normally used for blood cancers). In 2017 I had the treatment and although it may not have been a miracle cure, but it has stopped the MS completely. I haven't had one single attack since.
It has also worked for many other people, and has more proof of concept than many other methods.
I agree I was diagnosed over a year now dmt drugs are so expensive who can afford it really long term to live on meds doesn't seem feesible for someone who wants to have children. The root cause needs to be addressed I am currently on the natural journey too diet therapy exercise and supplements my MS is active but I am trusting the process waiting for transcranial magnetic stimulation to see if that can heal my multiple lesions on my brain and spine. Good luck fellow MS fighter 😊
DMT does not work and does not stop evolution of spms....hsct can stop rrms from
becoming spms..
A vegan diet is not healthful long term.