Thankyou for watching this video! Watch the new video on my stick > My experience using a WALKING STICK for 6 months: th-cam.com/video/sI2OCQlb0-Q/w-d-xo.html
27 and just bought my first stick! I’m absolutely terrified that I’m not “disabled enough” and what people will think, even though I know I’m struggling to walk the majority of the time. Thank you for this.
You got this!! You are disabled enough to use anything that will help you and I've learnt that most people don't pay much attention to other people's mobility aids!! 💖
Thanks for this video. I’m 16 and just bought my first cane. I’m terrified of peoples judgement in all honesty. And I have constant thought engraved in my mind from my father that I’m perfectly fine and functional, however I know a cane would help me with joint pain and daily dizzy spells. It’s really hard to except I’m worthy enough of a mobility aid.
You can do it! The fear of judgment is difficult for sure but I know that you can get through it and use whatever aids you need when you need them!! You are DEFINITELY worthy of the help a mobility aid can give you!!
Hey! I’m 15 and also a new cane user. It’s difficult, and my school isn’t completely disability friendly. Ik the staring is always tense and accepting being a mobility aid user is hard, but whatever happens we’ll make it thru :) hope you’re doing well
I am 50 but don't look it. I have Cerebral Palsy and just had to start using a walking cane. But ...mine is a Martial Arts cane. It can go ANYWHERE and Also helps me feel more secure. It has a dual purpose. Recently an old man said I was to young to have one. I said my Doctor doent think so!
I too faced that impostor syndrome "Am I disabled enough?" I live with fibromyalgia and it's been a part of my life for 16 years. My mobility has declined to a point where I need a walker some days, a cane on others depending on flare ups. I also had to "come out" as disabled, which was hard. I'm in physical therapy for balance impairments.
That imposter feeling is definitely tough! Do you find a walking better than a cane? I imagine it’s better for stability but more difficult to manoeuvre? 💜 hope you’re feeling ok today 💕
@@ElinorBrown A walker is much easier than a cane, but not for narrow spaces. Some models fold down the middle to get through tight spaces. My physical therapist recommended that I use my walking since my balance impairments are significant. I can walk much farther with a walker, with less pain and fatigue especially when I get a dizzy spell. But I'm feeling ok, thanks. I hope your cane helps you. There is no shame in using something that helps you get around.
@@ElinorBrown Also some people face internalized ableism which is why they refuse to use a cane. Using a cane is so much better than falling. I don't recommend being stubborn. Using a cane should never be considered "being weak" or "giving in" to a condition that's not your fault; it's a tool to restore your freedom and maintain independence. Ignore ableist jerks who make comments. I personally don't give a hamster's fart about people saying I'm too young for fibromyalgia and mobility aids.
as a 20 year old cane-user, why do people use it as a conversation started?? especially to ask “What’s wrong with you?” or “What happened?” like ah yes, thank you so much for blocking the aisle i’m trying to get to just to ask me about my medical information! here it is! like, I just came in here to get some sprinkles because I want to bake cupcakes. I don’t want to think about why I’m using the cane 😭
I’m a 51 year old, 6’1”, 18 stone, former professional, rufty tufty rugby player, and I have recently acquired my 1st walking stick. I have chronic pain, and I had the same anxieties that you spoke about. I needed the stick, rather than wanted it, although I wouldn’t admit it - however your video has given me the confidence to venture out and meet friends today. They all said "about time", and then admired my stick - it’s unique and a real beauty! You’re helping young, and now, not so young, cross hurdles, thankyou 👍
Oh I love this video! I'm 14 and I recently got a cane for stability, as my neurological illness effects my balance as well as my energy. I'm really nervous to start using it around people I've known for years, since I've never been visibly ill. Thank you for making this. it's reassuring that other people are going through it too (: (By the way, my cane has multicolored cats printed on it. Pretty snazzy haha)
Thanks you so much for making this video. I’m 17 and suffer from chronic pain. Hearing another young person say the things I have been thinking makes me feel like I’m not alone. Thank you! You have no idea how much this video has helped me!❤️
I'm so glad you have found a mobility aid that you are comfortable with and that is pretty too. Seriously, it's gorgeous! It must be so great! Just a reflection of mine regarding the old woman you described, who stared at you. It has been my experience, that some older people (who may or may not be struggling with health issues of their own) don't consider the possibility that there actually are young people who struggle with their health, and especially if you have an invisible illness. I remember sitting down on a bus once, and two older women sat down on the seat opposite to mine (their seat was one of those seats that are big for one person but can be small if you're two sitting on it). They went on and on, talking to each other, about how young people these days don't offer their seats to the elderly, clearly meaning that I should have gave up my seat for them. Maybe I should have said something, but that day I was utterly exhausted and out of breath. Also, I didn't want to get into my chronic illness right in the middle of a moving bus, with a lot of people on in, and explain to them how I actually needed to sit, and that not all is as it seems.
So true!! some elderly people definitely think they have a monopoly on health issues, and unfortunately for us it's not the case. People question me a lot less with the stick than without it though!! especially sitting in disabled seats on public transport!
You just described me. I'm still having issues accepting that I'm disabled enough. You wear the pink hair for the same reason I wear wacky pins, so people will LOOK UP and not see disability. I love your cane. The end of this month I will be having my first wheelchair sitting appointment. I'm both nervous and excited.
23 year old former college athlete, still look relatively athletic lol and have severe chronic back pain. Have done multiple rounds of injections and burning nerves, got a temporary disability placard that I mostly use just for school so I don't have to walk a mile after standing on a shuttle for 30+ minutes. People would not even believe the looks you get parking in a handicap spot looking like a college athlete. Have been thinking of getting a cane mostly to lean on when standing for more than 10 minutes at a time. Think I am going to get one but might take a WHILE to actually get the confidence to use it in public. Invisible pain/disability just as real as obvious ones.
My family been insisting in me getting a walking stick , a cane for me to walk since I can’t walk on my right leg due to OA , I feel like getting a cane is for “old people” and how people will see me 🙁 , today I bought my electric wheelchair , since and I can’t barely walk , after watching your video , gave me courage to get a cane , and not be ashamed for it . Im still battling a lot in my head with me being disabled and is really scary but I hope God gives me strength to overcome this , and help myself to move around and not care what others think ! You inspire me ! Thank you 🙏
Yayyy!! I hope it really helps you!! they are def not just for old people, they are for anyone who needs the extra support!! it can be so difficult to getting your head around the idea of being disabled but i'm sure you'll get more comfortable over time, like i did!! you totally got this!!!
Love your cane! I am 48 and need a walker/rollator and cane for walking for the past 4 years and I am still struggling to accept my disability. Your video made me smile and remind me I am not alone with my feelings and struggles. 💕
Im 25 and I've started bringing my cane to work because I know that it was going to be very beneficial. Every other customer that comes in asks "what'd you do to yourself" like I had an accident or a sports injury and the easiest response I have found is "i am chronily ill, nothing new" and it makes them either shut up or feel really bad for asking. At first I felt so dramatic and like everyone was going to judge me but there's been so much love and support so far ♡
I'm 23 and just started using a cane. I was stabbed years ago and after years of working out it wore out my upper right leg. For it was doing triple the work of my other leg. Making it weak on one side. I can walk but it feels unsteady and limpy, making me walk funny. Also my weaker leg started hurting from over use. Thank you so much for this video. It gives me comfort.
I got in a car accident when I was 4 and tore my ligaments and tendons in my lower back. I’m 31 now and I felt something slip in my lower back two days ago and I haven’t been able to walk very well since. I ended up buying a black cane yesterday and painted spiderwebs on it to feel cool…my family doesn’t really understand why I would even need a cane, but it’s always been hard for me to move or function when my back is out. So here I am. Walking with a cane. I figured I would be able to go a little longer without needing to use a cane.
Hey, thanks for making this! I’m 15 and I’m going to attempt to buy my first walking stick tomorrow with my mom. I personally haven’t been too concerned with the stuff about faking disability as I’ve already been living with one my whole life (I am autistic), but I know how important hearing that can be for someone who isn’t certain. I just looked at some of your other videos, and congrats on the new wheelchair! Definitely subscribing after this.
If you don’t mind me asking, are you getting the stick to help with autism related stuff (like bad balance, bad coordination, frequent injuries,etc)? I’m also autistic and I’m considering a cane to help my hypermobility spectrum disorder which causes hip/knee/ankle pain and injuries.
@@infinitybauer1187 i didn’t get a cane specifically for my autism no, but I see no issue in using it for that! I use my cane for all sorts of stuff now, including vertigo. I think a cane sounds great for you
I also used to do sporty stuff--mixed martials arts, 5K runs, etc. It's really hard to still feel that energetic, capable person inside you with all the limitation of your disability.
I'm considering getting a walking stick, I get quite bad leg pain and I'm unstable on my feet, I've had it for about 7 or 8 years now. I'd have to go to the doctor first but my biggest issue would be using it at school. I'm not scared of bullies or any of that, I'm worried because my school is quite a strict school and I fear their reaction to me having a walking stick, I know that my Form teacher would be supportive but not most my other teachers might judge.
Your school should not stop you using a mobility aid! If they make it difficult for you, i would definitely suggest having a parent or another adult talk to the school and explain why its necessary! you can even get doctors to phone your school or write them a letter, if you need something more official to persuade them! good luck !! 💖💖
I’m soon to be 41 and I’ve struggled since 2019 to walk unaided, to the point I just don’t go out anymore now, unless absolutely necessary. The fear of what other people think + how they may judge me has put me off being seen in public with a walking aid. I bought a fold-up stick in 2020 and tried it a few times in the shops but the looks + sniggers would get to me. I don’t think it helps that I’m carrying some extra weight due to reduced mobility, and in my head I think “people must just think I’m using this stick because I’m fat”. So much stigma that comes with it, but I think I need to suck it up and get a nice one ordered (like yours), and stop caring what other people may or may not be thinking. You also hit the nail on the head when you said how when you’ve been able bodied and then developed chronic conditions/diseases that you still think of yourself as able bodied, that’s so true! In my head I feel well, strong, healthy, but my body tells a different story + I can’t keep fighting it. Thanks for sharing the info on where it was purchased, I’ll definitely be looking to buy one now. X
I’m 28 years old, and I’ve been going about without my walking stick. I’ve started using my stick recently. I’ve been put off because there’s elderly people not using them and I feel a fraud. However, the older generation like to struggle and that’s up to them. But I’ve come to terms that I’ll never be understood as those people judging or looking at me clearly don’t know what I go through. So I’ll always have people looking at me. Thanks for your vid :)
This was great! I recently admitted to myself that i need a cane, but struggled with... well pretty much the same things you mentioned in the video. You def opened my eyes, and made me feel alittle more confident in using it. So thank you! ^^
I relate so much, the reasons I didn't get any mobility aids earlier when I needed it and ended up becoming bedbounded as there was too much exertion without support(had human support, but that's nowhere enough, it's like no one can carry me on their backs everyday everywhere. It was advised that I should get some cuz I have an extremely complicated medical history, physically and mentally. Then quite a little while ago, friends and family said just stop being so stubborn and just stop trying to act tough(they know I've been like that all my life, I don't want to be preserved as weak, hence anxious about stares and judgement), get at least a walking stick. I was already crawling instead of walking at that point, and even that I could barely get out of the room, I could get up and walk for a bit with rails and walls and human assistance. It's not like I'm not aware of the severity of my health, I knew before they did that I need to get aids, because they didn't find out until I couldn't hide it anymore(it's kinda obvious when u fall asleep a lot in random places and constantly faint and fall, covered in bruises and scrapes haha). It was a big step for me to start accepting that I need help, and put on a badge, sunflower ones, though people always assume they are mask exemption cards, I have one for just ASD originally, then decided to also be open with all of my illnesses and difficulties, so now I have a "I have multiple hidden disabilities" one. I was taking it off a lot when I was using the autism one, but I got the concessionary bus pass while I was planning on getting the current card, which it would be difficult for me if I didn't wear it with me, so I just attached the current card to the lanyard holding the concessionary pass. I was looking at folding walking sticks at first cuz I can hide that in my bag, and only use it when people are not around, I can't find any that I like, nor do any of them have almost perfect reviews(I'm picky). Then as I already heard about Neo-walk, and while I was researching about how to not be embarrassed using a mobility aid as a young adult, I'm 20 now, the clearly noticeable symptoms started mildly at 14, and neo-walk has been mentioned again, so I looked it up, I also fell in love with it, it just makes it look like it's a decorative accessory with my belongings, rather than clearly being a walking stick used by a person that doesn't look disabled, bruh, blue badge only shuts their mouth, not their brains. So eventho I can't hide it, I definitely am going for it, no maybe, no other "competitors", just this. So here I am, searching videos about Neo-walk, I am so happy to see that someone is explaining almost exactly how I feel while I struggle to express myself(I'm not happy about disability itself but the experiences being shared and I can relate so much). I'm saving up for Neo-walk, struggling to afford food, eventho I only eat a small meal a day, occasionally 2, so altho I can't afford other stuff like electric wheelchairs and scooters, I will eventually be able to get a Neo-walk.
Thank you I've struggled coming to terms with the fact that at 20 years old I need a stick and because of the denial often pushing my body too hard although I've had it all my life it's a hard thing to cope with and sadly young people with mobility aids are questioned by society or pitted by them which I think puts a lot of people off from doing what's best for them ❤️
just wanna thank you for these videos !! im a teenager and just bought my first cane. ive constantly battled with ‘am i disabled enough for this’ and your instagram and yt has helped sm!! 💕
@@ElinorBrown ah just a simple black one ! thinking of getting some stickers to personalise it. its foldable too which is great because i always underestimate my support needs so i can carry it in my backpack!! 💕
i’m getting assessed on wednesday to see if i still need mine. i’m 13 and have had been diagnosed with crps in my right leg, spreading to left, since i was 10!! i’ve had a mobility aid since i was 12, and i love to decorate mine. i love the clear one, i might consider getting one because it’s so nice!! :DD
At 39 I am looking at getting a walking stick. I got diagnosed with early onset osteoarthritis in both hips, bursitis in my left thigh and arthritis in my lower back. I have been using one of my hiking poles for over 4 months now which has been helping a great deal. I am due to fly out to Kos in October and know that my walking pole wouldn’t be allowed in hand luggage. I don’t want a walking stick that looks like nhs style or old person spec. I have looked at the Neo Walk Walking Sticks and the variety of colours and choices is amazing. I’m toying with the idea of getting one in mango tango, with a Saphire Blue or Purple Velvet Right Handed Ergonomic Handle with a Berri Purple Rubber Tip. I must admit it is taking a lot to get used to the fact I have these conditions that have an impact on my daily life alongside mental health issues to. I’m hoping the new Walking Stick will give me a boost in confidence when I’m out and about.
Thank you so much for making this!! I just bought my first stick. I've had all of the same thoughts about it. I'm trying to embrace it and have fun with it. It's so comforting to hear from someone who's going through the same thing. I'm sure I will watch this many times! Thanks for helping me! ♥️
Thank you so much for uploading this video - you've voiced all the concerns and thoughts that have been bouncing around in my head for years. It's only been this year when my partner suggested maybe I get one for fatigued that I have felt 'disabled enough' to get one - It's so silly. As you said, "if it'll help, get it" - such a simple statement yet so much internalised ableism to unpack to actually do it!
You're so right, its difficult to get over the fears we have but its so worth it!! If you think one might help you definitely try one out!! You got this!
@@ElinorBrown Thanks so much! I ordered my very own NeoWalks one this past week and I'm excited more than nervous so definitely made the right decision! Hope you're having a good day ☺
Thank you so much for talking about this, I've just found your channel through your Instagram. I also have cfs/me and have had increasingly bad pain in my joints especially my hips. I've been considering getting a stick for a while now and seeing someone my own age use one (and be iconic while doing it) and this has pushed me to accept that I will be able to do more with that support ❤❤
I’m so happy this video helped you 💖 definitely let me know if you get a stick, I’d love to hear about it 💜 and Thank you so much for the lovely comment 💕
I'm the same way but with a walker instead. I got my first rollator walker earlier this week. It has been a game changer. I mostly got it cause I'm dealing with POTS and struggle with standing and longing too long. I decided to get a walker so I could sit down at traffic lights or bus stops that don't have the seat. I noticed that since I got the walker I don't get as winded when walking and my muscles don't ache as much cause I'm not having to carry a the things I used to have to carry. Definitely made a huge difference.
I'm debating getting a stick, never even really considered myself disabled(let alone disabled "enough")even though I have loose ligament syndrome and poorly formed knee joints that definitely impede my ability to do things(and only just learned that Ehlers danlos syndrome runs in the family), and a lot of what you were saying is stuff I'm going through now. I was told that I'd need a cane starting in my late 20s or early 30s, but I'm only 18 now and had two separate knee issues two days in a row. Before I was able to not exactly accept but handle that I'd need a walking aid in a decade or more, but now facing that I'm going to be entering college, my 20s and basically adulthood with an aid has been incredibly jarring. I really appreciate videos like these, helps to remind me that I'm not the only one going through something like this
I have inflammatory arthritis and my pain is getting bad enough I've been considering getting a mobility aid. I'm only 25 so at times I feel like I don't "deserve" it and I should just "tough it out" because I'm young. Then I remember that 1) it's not my fault I have an autoimmune disease and 2) it's more important to take care of myself and I deserve to be comfortable no matter what other people think. Also, ayy same Birthday :) 🎂 🥳
You are an inspiration! Thank you for your channel! I'm 32, have endometriosis, M.E. and have just been diagnosed with fibromyalgia. I've been researching walking sticks and was looking at Neo Walk sticks just moments before I found your video. I too have anxiety about what people will think and say so this really helps.
Thank you for sharing your experience. I'm 26 and have been putting off getting a cane for a while now, for the very same reasons. You've convinced me to get one. I cannot thank you enough for being so open and honest about your experience
Lovely video! New subscriber! I love your walking stick! You’re so “fluent” in using it. When I try to use mine, I feel & look like a peg legged pirate. 🤷🏼♀️🤣I rarely use mine for all the reasons you mentioned. And the pirate issue ha I’d love to have a lovely stick from Neo but unfortunately they’re a bit out of my price range. I’ll have to shop around & see what I can find similar. :)
thankyou so much! hahah, i'm sure you'll get better with practice! I'm a bit rubbish with my left arm to be honest! they are quite expensive unfortunately and i havent seen anyone selling anything similar, but you could always get a plain stick and paint it or cover it in stickers to personalise it, if that is your style!!
thank you for this video! I've been recently diagnosed with MS and I've had a relapse where my left leg often goes weak. I can still walk well enough, for now, so I've been looking at cute sticks to get if I eventually progress to the point where I need one. I completely understand what you say about how it's like growing up able-bodied, just a year ago I was running marathons..
I'm currently undergoing tests to see if I've got MS as well, and can relate to the relapses of your left leg going weak! It's reassuring to know that's something others have experienced. I just ordered my first cane this week for that exact reason. I hope it proves helpful for you as well if you continue having relapses of that sort!
@@that_silly_ginger Hi Amber! I'm really sorry to hear that you may have MS. But luckily, there are many treatments available and coming in the near future, which greatly prevent progression of the disease! As for me, I never ended up getting a cane as the symptoms gradually left and I don't really experience them as much anymore. Though, after developing a lesion in my cerebellum last September, I still get some vertigo/lightheadness when I'm really tired or stressed. It's an odd disease, but i have hope for the future. I hope it all goes well for you, take care xx
thank you so much for this video. i’ve been looking into getting a cane for a short while as my me/cfs and pots has made walking and standing very draining; i am hesitant for the same reasons you were. my condition has only been severe to the point of being primarily homebound for about a year, so other than my extended absence, acquaintances at school don’t know of anything being wrong with me. as much as being 17 with a cane sounds less than ideal to say the least, i feel less alone in my situation after watching this :)
I have a clear acrylic cane(among others in my collection) but I was able to put a small light on the end so it can light up like the guy in Tron. In my late 20s and have intermittent joint pain in my knees, (more in my right) but I also recently switched my health care plan, so I'm thinking it may be early onset arthritis(as it runs heavily in my family.) It helps when I feel I need it and it looks cool. I'll have to get one with bubbles like you have.
@@ElinorBrown An update: I was able to get a glow in the dark rubber end for it though it was intended for a smaller diameter cane, but I was able to work in on, but now it glows at night and some of the ambient light from it travels up the cane. Looks awesome.
We have the same birthday!! Thanks for the video-I got a stick last year (when I’d just turned 20). It took me forever as well. I love seeing other young folks talk about mobility aids and disability.
I'm 36 and I am a veteran. Even with being in the military and receiving compensation for my disabilities I still don't feel "disabled enough" even with my chronic pain. It's a hit to my pride to need a cane but I need it and I'm tried of hurting as bad as I do. This really helps thank you.
I just started using a cane for my CFS. Thankfully my case is mild, so I only need the cane when I have a crash and my muscles are too weak to walk (which thankfully isn’t that often) but it’s weird getting used to having to walk with one. Especially when people don’t know how to react when you only need a cane SOMETIMES.
As a 26 year old who got my first stick about 3 years ago now, this is the best walking stick I've ever saw and I want one! 😍 I've been getting plain coloured ones and jazzing them up with stickers
Took me 5 years to get a cane more out of embarrassment than anything. I decided that I would get a cheap but and that way I would be excited to use it, if it didn't work I wouldn't have spent a fortune, and I wouldn't have the 'it's too much of a hassle' excuse that I would if I couldn't just shove it in my bag when I don't/can't use it. Absolutely changed my life and I want to buy an even cuter one eventually bc if I have to be the 23yr old with a cane I'm gonna make them envy me for carrying such a cute fashion accessory. If you have anxiety about getting a cane at a young age I'll tell you something. Most people flat out refuse to mention it. They don't want to look at it or talk about it or anything bc they don't want to offend you and I have only met one person who asked about why I needed it. Rude kids will sometimes ask 'what's wrong with you' and my response has always been 'that's not a nice way to ask that. Can you instead say 'why do you need a cane'? Get one that you actually think is cute and pretend that it's a fashion choice, most people won't even mention it!
I'm so happy you decided to face the fear and go ahead and get the support that you need!! Its so great that its been so useful for you!! I agree most people don't mention it at all!! I've not had any rude kids, but i have had some adorable small children ask about it! I'm sure the ones who are rude are just curious and don't know how to phrase the question properly, so great that you gently give them an example of a better question!!
@@kathyattwood2165 yes! the purple colour is so pretty! I really like the light up ones, they kind of look like lightsabers which is really cool but i dont really go out in the dark so i feel that would be a ridiculous purchase.
I'm still learning how to walk with my stick. I have to tell my brain to not put pressure on my leg that has been weight bearing to help me support myself for the past 26 years and that has been a challenge.
I’m a 24 year old momma, I have knee pain from an injury during lockdown and I’ve been using a forarm crutch if I feel pain. I feel awkward when I use my crutch. 😑I always feel scared when I use it around out at work or going out. But I know my kids will understand that others need help with getting around.
I have a neo walk stick on order being use a walking stick that I borrowed from a friend they have a few walking sticks. But the one I have borrowed is a folding one with a floral pattern and I get self conscious with it even if it help as I worry that people think that I have stole a old person's stick. I really hope that my neo walk stick take this feeling away.
I have been recommended hiking sticks rather than a walking stick, so have been tryjng that for the past few days. Very self-conscious, but it is helping.
When I first started using my stick all the time people would ask me 'what have you done?' - and I'd be like, er...I was born(!?) - sometimes these people already knew of my conditions; it just makes it so much more obvious when there's an aid - less invisible. But I have the comfort of knowing I'm probably not going to fall over (and that's benefit enough!)
Ive just gotten a walking stick as I’ve been struggling lately with chronic pain after it starting over a year ago. We are meant to go on holiday soon with my family and this will be the first time I’ll be using it and in front of my family. My parents haven’t seen me this bad in a while and whilst I know its going to help me, I can’t help but think about how my family will look at me when they see I need the aid.
I hope it goes ok! remember that if it helps you then its worth you having!! even if they are a little surprised at first, i'm sure they'll come around, people get used to it fairly quickly!! (and if for some reason they don't, your decision to use one is still valid, no one can tell how you feel!!) YOU GOT THIS!!
Regarding age and walking sticks, years ago, most 'gentlemen' used a walking stick as a matter of course, nothing to do with disability, it was a 'required' accessory, especially for officers in the British army around the early 20th. Century.
great video..i have pads and fibro..and since getting covid i get out of breath easily as well so i know how you feel..i use a stick when i need to ,it was a bit odd at first as i still don't consider myself as disabled (i hate that word)..differently abled is a better way to say it ,much nicer.. my problem i just wont accept it in my head. but i do like your stick its very trendy ,,keep up the good work i will be watching more of your vids ..
Im 14 and have been struggling with my joints for years. I’ve never once thought about get something like this to help even though just standing can be hard some days. Im thinking about getting something to try out and see if it helps in any way.
I'm 15 and am considering looking into a cane, I have FND which causes a bunch of things. One of those is leg pain, and occasional weakness. I'm only worried about what my parents will say
It can be so scary to talk to people about!! almost everyone is super kind though!! I was worried for nothing, even the people who were surprised, got used to the idea pretty quick!! If your parents understand your condition, then I'm sure they'll understand why you want an aid. Let me know how it goes, if you decide to talk to them about it. And I'm always here to chat!! (you'll get a faster reply on insta)
@@ElinorBrown Update: I got one! I got it a few months back, (it was originally for my dad as he has Ataxia which gives him balance issues, and it didn't work for his needs). I love it so much, I'm still working on my fear of using it in public though
Idk... I've worked as a CNA for 4-5 years on and off while caring for mom. A few years ago I fell down the stairs and sprained my back, well... I still continued doing my job... With lifting more and more... And helping mom... My back... And now my legs are weak... To the point when I get up... I can barely stand or walk without limping or stagering... I got a cane a year ago for just in case... I might have to use it... Bc I'm basically getting worse... And I honestly don't know what's wrong with me. I wish there wasn't a stigma around canes or walking sticks... That you can only use them if you're disabled or old...
Would you say it is okay to use a walking stick just to help take pressure off your legs and back for when you have to stand for long periods of time? I have arthritis and fibromyalgia but I don’t feel like I need it as a walking aid but to do my job with less pain and aggravation.
I would say its ok to use a walking stick if you think it will help even a little bit!! there are no rules, you definitely don't need to justify your reasons!! If it will help you to feel less pain then i say go for it!! You definitely deserve to reduce the pain as much as possible!! let me know if you get one and if it works!!
I’m 31 , my knees are toast from military service and I also had hernia surgery. I use a cane now and I’m so embarrassed by it , I feel that everyone is judging me. I also have to use hearing aids everyday. Literally I’m falling apart.
If someone is staring I just walk up to and ask “Is there something you need? I noticed you were looking at me” Most people get flustered or if they don’t you can tell them to their face that’s it’s none of their business. It’ll be awkward at first but the feeling will pass
I’m a service dog user (with green hair and a lot of visible scarring), so I get a lot of stares in public. I usually stare right back at them until they get embarrassed. 😂
I'm 46 and have been diagnosed with neck injuries, osteoarthritis, fibromyalgia, and chronic fatigue syndrome, migraine disorder. They also suspect Rheumatoid arthritis but haven't been diagnosed. This past year and half my hip pain has increased 10 fold. My hand and feet on fire, joints ache and halfway through work I'm so stiff and shuffling almost. It hurts to sit, stand, walk. I am seriously considering one. The fact that I look fine on outside but miserable on inside but I was always called a hypercondriac by my mom made me not get one. Idk what to do anymore.
I am considering a cane or walking stick because my ankles and knees sometimes flare up and hurt. They hurt to walk on and such. It sucks! My parents never took it seriously.
I’m disabled, never needed a walker or rollator. My mobility aid used to be Afo braces. I had surgery this year 20201, for TT fusion, I have to use mobility aid like crutches, walker, and a rollator because I lost function in my right ankle. I’m healing so I heavily relied on those or else I have to slide around on my butt to get anywhere 😂😭 I’m planning to pimp my mobility aid because I’m done looking like a grandma.
@@ElinorBrown Wrap it with 3 different shades of pink duck tape, kawaii sticker bomb the rest of the metal part. I planning to buy a cute bag to put on all of the walkers so I can carry stuff with me.
I'm almost 17, and I'm thinking about getting a cane. Still trying to figure out the cause of my issues, might be fibromyalgia. I get dizzy spells, joint pain/weakness. My legs give out a fair bit :( Should I try getting a cane?
I know you mentioned u suffer from fatigue, I have that issue as well where I get extreme fatigue so suddenly. Still trying to get a diagnosis right now, you know how annoying that process can be, but am curious how I know if something like this would be the right choice for me. I want to be able to keep working and doing things without getting as exhausted as I do.
Its hard to know for sure, but for me the stick helps with stability, balance and strength, so if those are problems you have as well it might be worth it. It doesn't stop the fatigue because walking is still a lot, but it helps with the effects of the fatigue for me!! hope this helps!
I'm 14 and I recently got crutches. Yesterday I went for a walk with one crutch. And I was so nervous, I live in a village, so eventually we met someone and they asked me, what's wrong. And I really want a walking stick, but then people would know, that it isn't temporally...
It’s sad I used crutches for 3 months it helped with my broken foot but I also have been struggling with chronic pain for 2 years and they kind helped it but not really I would love to get a walking stick as I do have some mobility issues but I’m not diagnosed with any chronic pain condition so I don’t feel like I deserve to use one
@@leefox9973 yea and also my foot is still not right lol 🙃 it’s been 6 months 🤦♀️ and of course my doctor said it fine it might take 5 months and almost 7 months later still not right . One question do you use/have a shower chair it is amazing i has saved me so many times if you don’t have one I think you should get one
@@countrygirlsstopanimationw6928 oh no! I hope your foot will get well soon! And no, I don't have a shower chair although I really want one. But I live at my parent's and yeah, idk I can't.
My doctor thinks I may have fibromyalga (I can't spell it) walking without support on bad days can be super duper painful so Ive been considering purchasing some form of mobility aid but am scared people will think my pain isn't "bad enough" for one even tho I feel it will give me my independence and freedom back
in my experience most people mind their own business and don’t question mobility aid use at all! and no one knows how much pain you’re in except you! you got this! x
This must be hard for so many of you,I'm 53 and just bought my first walking stick.. Its going to be weird for me too, some things are just unavoidable.
I don't really have a chronic illness I think, I have a slight thingy that my growing gaps in my knees are too big (This apparently grows together when I'm fully grown, I haven't noticed it getting better tho) so my knees just randomly hurt. I'm 16 in a few weeks and even though it hurts and it's uncomfortable when they hurt, much of the time they don't hurt and I'm fine. I really don't know if I should get a cane, especially since I am constantly told that I am fine and healthy??
That can be tricky and I'm sure super annoying!! I would say that if you think a cane might help sometimes but not others maybe try finding a really cheap one second hand and just use it was you need it, and then if it gets better then you could get rid of it if you wanted to. I would try not to get bogged down in the question of whether you have a chronic illness at the moment, you don't need to have one to use a mobility aid. (Whether you use a mobility aid is how you feel not what others say about you!! It's not at all like medication you don't need permission from the medical profession to use it.) Hope this helps 💜
Thankyou for watching this video!
Watch the new video on my stick > My experience using a WALKING STICK for 6 months: th-cam.com/video/sI2OCQlb0-Q/w-d-xo.html
"I almost drowned in a lake because I was worried people would think I was being dramatic." wow wow wow, that one hits!
27 and just bought my first stick! I’m absolutely terrified that I’m not “disabled enough” and what people will think, even though I know I’m struggling to walk the majority of the time. Thank you for this.
You got this!! You are disabled enough to use anything that will help you and I've learnt that most people don't pay much attention to other people's mobility aids!! 💖
@@ElinorBrown hope you okay .
@@emilyjames3110 I'm going by me a a clear one too. I got a black one
same! Im 18 and just got mine, ive wanted one for so long but ive always been too scared
I feel the exact same
Thanks for this video. I’m 16 and just bought my first cane. I’m terrified of peoples judgement in all honesty. And I have constant thought engraved in my mind from my father that I’m perfectly fine and functional, however I know a cane would help me with joint pain and daily dizzy spells. It’s really hard to except I’m worthy enough of a mobility aid.
You can do it! The fear of judgment is difficult for sure but I know that you can get through it and use whatever aids you need when you need them!! You are DEFINITELY worthy of the help a mobility aid can give you!!
Hello! Im also 16 and a cane user. I hope you feel better about using one
My mum is also the same, she thinks I look normal so I have to act normal and I'm perfectly fine, and doctors are making fake diagnoses :/
Hey! I’m 15 and also a new cane user. It’s difficult, and my school isn’t completely disability friendly. Ik the staring is always tense and accepting being a mobility aid user is hard, but whatever happens we’ll make it thru :) hope you’re doing well
I am 50 but don't look it. I have Cerebral Palsy and just had to start using a walking cane. But ...mine is a Martial Arts cane. It can go ANYWHERE and Also helps me feel more secure. It has a dual purpose. Recently an old man said I was to young to have one. I said my Doctor doent think so!
I too faced that impostor syndrome "Am I disabled enough?" I live with fibromyalgia and it's been a part of my life for 16 years. My mobility has declined to a point where I need a walker some days, a cane on others depending on flare ups. I also had to "come out" as disabled, which was hard. I'm in physical therapy for balance impairments.
That imposter feeling is definitely tough! Do you find a walking better than a cane? I imagine it’s better for stability but more difficult to manoeuvre? 💜 hope you’re feeling ok today 💕
@@ElinorBrown A walker is much easier than a cane, but not for narrow spaces. Some models fold down the middle to get through tight spaces. My physical therapist recommended that I use my walking since my balance impairments are significant. I can walk much farther with a walker, with less pain and fatigue especially when I get a dizzy spell. But I'm feeling ok, thanks. I hope your cane helps you. There is no shame in using something that helps you get around.
@@ElinorBrown Also some people face internalized ableism which is why they refuse to use a cane. Using a cane is so much better than falling. I don't recommend being stubborn. Using a cane should never be considered "being weak" or "giving in" to a condition that's not your fault; it's a tool to restore your freedom and maintain independence. Ignore ableist jerks who make comments. I personally don't give a hamster's fart about people saying I'm too young for fibromyalgia and mobility aids.
@headbanger1853 Tell them you Doctor disagrees with them. Puts them right in there place.
as a 20 year old cane-user, why do people use it as a conversation started?? especially to ask “What’s wrong with you?” or “What happened?” like ah yes, thank you so much for blocking the aisle i’m trying to get to just to ask me about my medical information! here it is!
like, I just came in here to get some sprinkles because I want to bake cupcakes. I don’t want to think about why I’m using the cane 😭
I’m a 51 year old, 6’1”, 18 stone, former professional, rufty tufty rugby player, and I have recently acquired my 1st walking stick. I have chronic pain, and I had the same anxieties that you spoke about.
I needed the stick, rather than wanted it, although I wouldn’t admit it - however your video has given me the confidence to venture out and meet friends today. They all said "about time", and then admired my stick - it’s unique and a real beauty!
You’re helping young, and now, not so young, cross hurdles, thankyou 👍
I'm so glad I can help! I'm so happy you had such a good experience and that your friends are so supportive!!
Oh I love this video! I'm 14 and I recently got a cane for stability, as my neurological illness effects my balance as well as my energy. I'm really nervous to start using it around people I've known for years, since I've never been visibly ill. Thank you for making this. it's reassuring that other people are going through it too (:
(By the way, my cane has multicolored cats printed on it. Pretty snazzy haha)
awwww!! im so glad you enjoyed it!! That sounds really cool !!
i used to have a cat cane too!! mine’s just magenta and white now because it matches my school uniform :,,)
Thanks you so much for making this video. I’m 17 and suffer from chronic pain. Hearing another young person say the things I have been thinking makes me feel like I’m not alone. Thank you! You have no idea how much this video has helped me!❤️
you're so welcome 💕 I'm so glad this video has helped, it really makes my day to hear!! feel free to reach out whenever you need 💖
I'm so glad you have found a mobility aid that you are comfortable with and that is pretty too. Seriously, it's gorgeous! It must be so great!
Just a reflection of mine regarding the old woman you described, who stared at you. It has been my experience, that some older people (who may or may not be struggling with health issues of their own) don't consider the possibility that there actually are young people who struggle with their health, and especially if you have an invisible illness. I remember sitting down on a bus once, and two older women sat down on the seat opposite to mine (their seat was one of those seats that are big for one person but can be small if you're two sitting on it). They went on and on, talking to each other, about how young people these days don't offer their seats to the elderly, clearly meaning that I should have gave up my seat for them. Maybe I should have said something, but that day I was utterly exhausted and out of breath. Also, I didn't want to get into my chronic illness right in the middle of a moving bus, with a lot of people on in, and explain to them how I actually needed to sit, and that not all is as it seems.
So true!! some elderly people definitely think they have a monopoly on health issues, and unfortunately for us it's not the case. People question me a lot less with the stick than without it though!! especially sitting in disabled seats on public transport!
You just described me. I'm still having issues accepting that I'm disabled enough. You wear the pink hair for the same reason I wear wacky pins, so people will LOOK UP and not see disability. I love your cane. The end of this month I will be having my first wheelchair sitting appointment. I'm both nervous and excited.
23 year old former college athlete, still look relatively athletic lol and have severe chronic back pain. Have done multiple rounds of injections and burning nerves, got a temporary disability placard that I mostly use just for school so I don't have to walk a mile after standing on a shuttle for 30+ minutes. People would not even believe the looks you get parking in a handicap spot looking like a college athlete. Have been thinking of getting a cane mostly to lean on when standing for more than 10 minutes at a time. Think I am going to get one but might take a WHILE to actually get the confidence to use it in public. Invisible pain/disability just as real as obvious ones.
Get a beautiful wooden one. It is sturdy and I like mine. It has a Sheppard's crook but it doesn't hurt my wrists.
My family been insisting in me getting a walking stick , a cane for me to walk since I can’t walk on my right leg due to OA , I feel like getting a cane is for “old people” and how people will see me 🙁 , today I bought my electric wheelchair , since and I can’t barely walk , after watching your video , gave me courage to get a cane , and not be ashamed for it .
Im still battling a lot in my head with me being disabled and is really scary but I hope God gives me strength to overcome this , and help myself to move around and not care what others think !
You inspire me ! Thank you 🙏
Yayyy!! I hope it really helps you!! they are def not just for old people, they are for anyone who needs the extra support!! it can be so difficult to getting your head around the idea of being disabled but i'm sure you'll get more comfortable over time, like i did!! you totally got this!!!
Love your cane! I am 48 and need a walker/rollator and cane for walking for the past 4 years and I am still struggling to accept my disability. Your video made me smile and remind me I am not alone with my feelings and struggles. 💕
Im 25 and I've started bringing my cane to work because I know that it was going to be very beneficial. Every other customer that comes in asks "what'd you do to yourself" like I had an accident or a sports injury and the easiest response I have found is "i am chronily ill, nothing new" and it makes them either shut up or feel really bad for asking. At first I felt so dramatic and like everyone was going to judge me but there's been so much love and support so far ♡
I'm 23 and just started using a cane. I was stabbed years ago and after years of working out it wore out my upper right leg. For it was doing triple the work of my other leg. Making it weak on one side. I can walk but it feels unsteady and limpy, making me walk funny. Also my weaker leg started hurting from over use. Thank you so much for this video. It gives me comfort.
I got in a car accident when I was 4 and tore my ligaments and tendons in my lower back. I’m 31 now and I felt something slip in my lower back two days ago and I haven’t been able to walk very well since. I ended up buying a black cane yesterday and painted spiderwebs on it to feel cool…my family doesn’t really understand why I would even need a cane, but it’s always been hard for me to move or function when my back is out.
So here I am. Walking with a cane. I figured I would be able to go a little longer without needing to use a cane.
Hey, thanks for making this!
I’m 15 and I’m going to attempt to buy my first walking stick tomorrow with my mom.
I personally haven’t been too concerned with the stuff about faking disability as I’ve already been living with one my whole life (I am autistic), but I know how important hearing that can be for someone who isn’t certain.
I just looked at some of your other videos, and congrats on the new wheelchair! Definitely subscribing after this.
Thankyou!! How is your walking stick??
@@ElinorBrown it’s great! I got this cool chrome purple one that I’m super happy with. Thanks for asking!
If you don’t mind me asking, are you getting the stick to help with autism related stuff (like bad balance, bad coordination, frequent injuries,etc)? I’m also autistic and I’m considering a cane to help my hypermobility spectrum disorder which causes hip/knee/ankle pain and injuries.
@@infinitybauer1187 i didn’t get a cane specifically for my autism no, but I see no issue in using it for that! I use my cane for all sorts of stuff now, including vertigo. I think a cane sounds great for you
I also used to do sporty stuff--mixed martials arts, 5K runs, etc. It's really hard to still feel that energetic, capable person inside you with all the limitation of your disability.
I'm considering getting a walking stick, I get quite bad leg pain and I'm unstable on my feet, I've had it for about 7 or 8 years now. I'd have to go to the doctor first but my biggest issue would be using it at school. I'm not scared of bullies or any of that, I'm worried because my school is quite a strict school and I fear their reaction to me having a walking stick, I know that my Form teacher would be supportive but not most my other teachers might judge.
Your school should not stop you using a mobility aid! If they make it difficult for you, i would definitely suggest having a parent or another adult talk to the school and explain why its necessary! you can even get doctors to phone your school or write them a letter, if you need something more official to persuade them! good luck !! 💖💖
I’m soon to be 41 and I’ve struggled since 2019 to walk unaided, to the point I just don’t go out anymore now, unless absolutely necessary. The fear of what other people think + how they may judge me has put me off being seen in public with a walking aid.
I bought a fold-up stick in 2020 and tried it a few times in the shops but the looks + sniggers would get to me.
I don’t think it helps that I’m carrying some extra weight due to reduced mobility, and in my head I think “people must just think I’m using this stick because I’m fat”.
So much stigma that comes with it, but I think I need to suck it up and get a nice one ordered (like yours), and stop caring what other people may or may not be thinking. You also hit the nail on the head when you said how when you’ve been able bodied and then developed chronic conditions/diseases that you still think of yourself as able bodied, that’s so true! In my head I feel well, strong, healthy, but my body tells a different story + I can’t keep fighting it.
Thanks for sharing the info on where it was purchased, I’ll definitely be looking to buy one now. X
I’m 28 years old, and I’ve been going about without my walking stick. I’ve started using my stick recently. I’ve been put off because there’s elderly people not using them and I feel a fraud. However, the older generation like to struggle and that’s up to them. But I’ve come to terms that I’ll never be understood as those people judging or looking at me clearly don’t know what I go through. So I’ll always have people looking at me.
Thanks for your vid :)
This was great! I recently admitted to myself that i need a cane, but struggled with... well pretty much the same things you mentioned in the video. You def opened my eyes, and made me feel alittle more confident in using it. So thank you! ^^
I relate so much, the reasons I didn't get any mobility aids earlier when I needed it and ended up becoming bedbounded as there was too much exertion without support(had human support, but that's nowhere enough, it's like no one can carry me on their backs everyday everywhere. It was advised that I should get some cuz I have an extremely complicated medical history, physically and mentally. Then quite a little while ago, friends and family said just stop being so stubborn and just stop trying to act tough(they know I've been like that all my life, I don't want to be preserved as weak, hence anxious about stares and judgement), get at least a walking stick. I was already crawling instead of walking at that point, and even that I could barely get out of the room, I could get up and walk for a bit with rails and walls and human assistance. It's not like I'm not aware of the severity of my health, I knew before they did that I need to get aids, because they didn't find out until I couldn't hide it anymore(it's kinda obvious when u fall asleep a lot in random places and constantly faint and fall, covered in bruises and scrapes haha).
It was a big step for me to start accepting that I need help, and put on a badge, sunflower ones, though people always assume they are mask exemption cards, I have one for just ASD originally, then decided to also be open with all of my illnesses and difficulties, so now I have a "I have multiple hidden disabilities" one. I was taking it off a lot when I was using the autism one, but I got the concessionary bus pass while I was planning on getting the current card, which it would be difficult for me if I didn't wear it with me, so I just attached the current card to the lanyard holding the concessionary pass.
I was looking at folding walking sticks at first cuz I can hide that in my bag, and only use it when people are not around, I can't find any that I like, nor do any of them have almost perfect reviews(I'm picky). Then as I already heard about Neo-walk, and while I was researching about how to not be embarrassed using a mobility aid as a young adult, I'm 20 now, the clearly noticeable symptoms started mildly at 14, and neo-walk has been mentioned again, so I looked it up, I also fell in love with it, it just makes it look like it's a decorative accessory with my belongings, rather than clearly being a walking stick used by a person that doesn't look disabled, bruh, blue badge only shuts their mouth, not their brains. So eventho I can't hide it, I definitely am going for it, no maybe, no other "competitors", just this.
So here I am, searching videos about Neo-walk, I am so happy to see that someone is explaining almost exactly how I feel while I struggle to express myself(I'm not happy about disability itself but the experiences being shared and I can relate so much).
I'm saving up for Neo-walk, struggling to afford food, eventho I only eat a small meal a day, occasionally 2, so altho I can't afford other stuff like electric wheelchairs and scooters, I will eventually be able to get a Neo-walk.
sorry its been so difficult for you, but i hope getting more comfortable with the idea of mobility aids will help! xx
@@ElinorBrown so far I'm getting along with my stick :))
I felt the same at 43 but ended up getting a folding one I can keep in my backpack.
Such a good idea
UR STICK IS SO PRETTYYYYYYYY
Thank you I've struggled coming to terms with the fact that at 20 years old I need a stick and because of the denial often pushing my body too hard although I've had it all my life it's a hard thing to cope with and sadly young people with mobility aids are questioned by society or pitted by them which I think puts a lot of people off from doing what's best for them ❤️
just wanna thank you for these videos !! im a teenager and just bought my first cane. ive constantly battled with ‘am i disabled enough for this’ and your instagram and yt has helped sm!! 💕
your welcome 💖 Im so glad this helped you, it really means a lot to me 💖what type of cane have you bought ?? 💕
@@ElinorBrown ah just a simple black one ! thinking of getting some stickers to personalise it. its foldable too which is great because i always underestimate my support needs so i can carry it in my backpack!! 💕
i’m getting assessed on wednesday to see if i still need mine. i’m 13 and have had been diagnosed with crps in my right leg, spreading to left, since i was 10!! i’ve had a mobility aid since i was 12, and i love to decorate mine. i love the clear one, i might consider getting one because it’s so nice!! :DD
Thankyou! how have you decorated yours?? Tape? stickers? paint?
@@ElinorBrown I love to use washi tape and stickers!!
At 39 I am looking at getting a walking stick. I got diagnosed with early onset osteoarthritis in both hips, bursitis in my left thigh and arthritis in my lower back. I have been using one of my hiking poles for over 4 months now which has been helping a great deal. I am due to fly out to Kos in October and know that my walking pole wouldn’t be allowed in hand luggage. I don’t want a walking stick that looks like nhs style or old person spec. I have looked at the Neo Walk Walking Sticks and the variety of colours and choices is amazing. I’m toying with the idea of getting one in mango tango, with a Saphire Blue or Purple Velvet Right Handed Ergonomic Handle with a Berri Purple Rubber Tip. I must admit it is taking a lot to get used to the fact I have these conditions that have an impact on my daily life alongside mental health issues to. I’m hoping the new Walking Stick will give me a boost in confidence when I’m out and about.
hope it works out for you! sounds like a cool colour combo!
Thank you so much for making this!! I just bought my first stick. I've had all of the same thoughts about it. I'm trying to embrace it and have fun with it. It's so comforting to hear from someone who's going through the same thing. I'm sure I will watch this many times! Thanks for helping me! ♥️
Glad it was helpful!
Thank you so much for uploading this video - you've voiced all the concerns and thoughts that have been bouncing around in my head for years. It's only been this year when my partner suggested maybe I get one for fatigued that I have felt 'disabled enough' to get one - It's so silly. As you said, "if it'll help, get it" - such a simple statement yet so much internalised ableism to unpack to actually do it!
You're so right, its difficult to get over the fears we have but its so worth it!! If you think one might help you definitely try one out!! You got this!
@@ElinorBrown Thanks so much! I ordered my very own NeoWalks one this past week and I'm excited more than nervous so definitely made the right decision! Hope you're having a good day ☺
You’re so beautiful & amazing sweetie!❤❤❤❤❤ Im 31 & have spina bifida so I’m in a wheelchair 🦽, sometimes i wish I could walk
Thank you so much for talking about this, I've just found your channel through your Instagram. I also have cfs/me and have had increasingly bad pain in my joints especially my hips. I've been considering getting a stick for a while now and seeing someone my own age use one (and be iconic while doing it) and this has pushed me to accept that I will be able to do more with that support ❤❤
I’m so happy this video helped you 💖 definitely let me know if you get a stick, I’d love to hear about it 💜 and Thank you so much for the lovely comment 💕
I'm the same way but with a walker instead. I got my first rollator walker earlier this week. It has been a game changer. I mostly got it cause I'm dealing with POTS and struggle with standing and longing too long. I decided to get a walker so I could sit down at traffic lights or bus stops that don't have the seat. I noticed that since I got the walker I don't get as winded when walking and my muscles don't ache as much cause I'm not having to carry a the things I used to have to carry. Definitely made a huge difference.
I'm debating getting a stick, never even really considered myself disabled(let alone disabled "enough")even though I have loose ligament syndrome and poorly formed knee joints that definitely impede my ability to do things(and only just learned that Ehlers danlos syndrome runs in the family), and a lot of what you were saying is stuff I'm going through now.
I was told that I'd need a cane starting in my late 20s or early 30s, but I'm only 18 now and had two separate knee issues two days in a row. Before I was able to not exactly accept but handle that I'd need a walking aid in a decade or more, but now facing that I'm going to be entering college, my 20s and basically adulthood with an aid has been incredibly jarring.
I really appreciate videos like these, helps to remind me that I'm not the only one going through something like this
I’m getting my first cane tomorrow and it’s just plain black, but you’ve inspired me to decorate it! I love yours!!!
Thats great!!
I'm 23 and just got a walking stick I feel embarrassed to use it but I know I need it ❤ thanks for sharing
I have inflammatory arthritis and my pain is getting bad enough I've been considering getting a mobility aid. I'm only 25 so at times I feel like I don't "deserve" it and I should just "tough it out" because I'm young. Then I remember that 1) it's not my fault I have an autoimmune disease and 2) it's more important to take care of myself and I deserve to be comfortable no matter what other people think.
Also, ayy same Birthday :) 🎂 🥳
No need to tough it out, get whatever aids you want!!! You definitely deserve to reduce your pain as much as possible!!!
You are an inspiration! Thank you for your channel! I'm 32, have endometriosis, M.E. and have just been diagnosed with fibromyalgia. I've been researching walking sticks and was looking at Neo Walk sticks just moments before I found your video.
I too have anxiety about what people will think and say so this really helps.
Thank you for sharing your experience. I'm 26 and have been putting off getting a cane for a while now, for the very same reasons. You've convinced me to get one. I cannot thank you enough for being so open and honest about your experience
You can do it! 💜
I resonated with every part of this video but I’m 27. Thank you for sharing your story with us.
Glad you enjoyed it!
Very fashionable walking stick! Thanks for sharing your story.
Glad you enjoyed it
Lovely video! New subscriber! I love your walking stick! You’re so “fluent” in using it. When I try to use mine, I feel & look like a peg legged pirate. 🤷🏼♀️🤣I rarely use mine for all the reasons you mentioned. And the pirate issue ha I’d love to have a lovely stick from Neo but unfortunately they’re a bit out of my price range. I’ll have to shop around & see what I can find similar. :)
thankyou so much! hahah, i'm sure you'll get better with practice! I'm a bit rubbish with my left arm to be honest! they are quite expensive unfortunately and i havent seen anyone selling anything similar, but you could always get a plain stick and paint it or cover it in stickers to personalise it, if that is your style!!
thank you for this video! I've been recently diagnosed with MS and I've had a relapse where my left leg often goes weak. I can still walk well enough, for now, so I've been looking at cute sticks to get if I eventually progress to the point where I need one. I completely understand what you say about how it's like growing up able-bodied, just a year ago I was running marathons..
I'm currently undergoing tests to see if I've got MS as well, and can relate to the relapses of your left leg going weak! It's reassuring to know that's something others have experienced. I just ordered my first cane this week for that exact reason. I hope it proves helpful for you as well if you continue having relapses of that sort!
@@that_silly_ginger Hi Amber! I'm really sorry to hear that you may have MS. But luckily, there are many treatments available and coming in the near future, which greatly prevent progression of the disease! As for me, I never ended up getting a cane as the symptoms gradually left and I don't really experience them as much anymore. Though, after developing a lesion in my cerebellum last September, I still get some vertigo/lightheadness when I'm really tired or stressed. It's an odd disease, but i have hope for the future. I hope it all goes well for you, take care xx
thank you so much for this video. i’ve been looking into getting a cane for a short while as my me/cfs and pots has made walking and standing very draining; i am hesitant for the same reasons you were. my condition has only been severe to the point of being primarily homebound for about a year, so other than my extended absence, acquaintances at school don’t know of anything being wrong with me. as much as being 17 with a cane sounds less than ideal to say the least, i feel less alone in my situation after watching this :)
I have a clear acrylic cane(among others in my collection) but I was able to put a small light on the end so it can light up like the guy in Tron. In my late 20s and have intermittent joint pain in my knees, (more in my right) but I also recently switched my health care plan, so I'm thinking it may be early onset arthritis(as it runs heavily in my family.) It helps when I feel I need it and it looks cool. I'll have to get one with bubbles like you have.
I've seen light up ones! they are so cool!!
@@ElinorBrown An update: I was able to get a glow in the dark rubber end for it though it was intended for a smaller diameter cane, but I was able to work in on, but now it glows at night and some of the ambient light from it travels up the cane. Looks awesome.
I just got diagnosed with pots, Ive never related to a video more. It means alot ❤
We have the same birthday!! Thanks for the video-I got a stick last year (when I’d just turned 20). It took me forever as well. I love seeing other young folks talk about mobility aids and disability.
Really?! wow thats so cool 💖 you're welcome! Im so glad you enjoyed the video 💕
I'm 36 and I am a veteran. Even with being in the military and receiving compensation for my disabilities I still don't feel "disabled enough" even with my chronic pain. It's a hit to my pride to need a cane but I need it and I'm tried of hurting as bad as I do. This really helps thank you.
I just started using a cane for my CFS. Thankfully my case is mild, so I only need the cane when I have a crash and my muscles are too weak to walk (which thankfully isn’t that often) but it’s weird getting used to having to walk with one. Especially when people don’t know how to react when you only need a cane SOMETIMES.
As a 26 year old who got my first stick about 3 years ago now, this is the best walking stick I've ever saw and I want one! 😍 I've been getting plain coloured ones and jazzing them up with stickers
aww thank you! it is pretty cool i know! 💖 personalising with stickers is a good idea tho!!
@@ElinorBrown I bought a neowalk one yesterday! :D (the bubble one like yours) can't wait for it to arrive
Took me 5 years to get a cane more out of embarrassment than anything. I decided that I would get a cheap but and that way I would be excited to use it, if it didn't work I wouldn't have spent a fortune, and I wouldn't have the 'it's too much of a hassle' excuse that I would if I couldn't just shove it in my bag when I don't/can't use it. Absolutely changed my life and I want to buy an even cuter one eventually bc if I have to be the 23yr old with a cane I'm gonna make them envy me for carrying such a cute fashion accessory.
If you have anxiety about getting a cane at a young age I'll tell you something. Most people flat out refuse to mention it. They don't want to look at it or talk about it or anything bc they don't want to offend you and I have only met one person who asked about why I needed it. Rude kids will sometimes ask 'what's wrong with you' and my response has always been 'that's not a nice way to ask that. Can you instead say 'why do you need a cane'? Get one that you actually think is cute and pretend that it's a fashion choice, most people won't even mention it!
I'm so happy you decided to face the fear and go ahead and get the support that you need!! Its so great that its been so useful for you!! I agree most people don't mention it at all!! I've not had any rude kids, but i have had some adorable small children ask about it! I'm sure the ones who are rude are just curious and don't know how to phrase the question properly, so great that you gently give them an example of a better question!!
I have the same one 😍 so pretty! I still feel a bit weird using it but it really helps me to feel more stable. I kinda want more colours now hehe
wow thats so cool, we match !! i know, id love a variety! what colour would you get next ??
I love them all! Hehe. But I’d love a purple one 😍
@@kathyattwood2165 yes! the purple colour is so pretty! I really like the light up ones, they kind of look like lightsabers which is really cool but i dont really go out in the dark so i feel that would be a ridiculous purchase.
I can relate to allllllllll of this.
Yaayyy! im so glad xx
I'm still learning how to walk with my stick. I have to tell my brain to not put pressure on my leg that has been weight bearing to help me support myself for the past 26 years and that has been a challenge.
unlearning things is so difficult!!
@@ElinorBrown I'm happy to say I've been getting better walking with my stick now x 💜☺️
I’m a 24 year old momma, I have knee pain from an injury during lockdown and I’ve been using a forarm crutch if I feel pain. I feel awkward when I use my crutch. 😑I always feel scared when I use it around out at work or going out. But I know my kids will understand that others need help with getting around.
I have a neo walk stick on order being use a walking stick that I borrowed from a friend they have a few walking sticks. But the one I have borrowed is a folding one with a floral pattern and I get self conscious with it even if it help as I worry that people think that I have stole a old person's stick. I really hope that my neo walk stick take this feeling away.
You got this!
I have been recommended hiking sticks rather than a walking stick, so have been tryjng that for the past few days. Very self-conscious, but it is helping.
Sorry you feel self conscious, but it does get better over time!!
When I first started using my stick all the time people would ask me 'what have you done?' - and I'd be like, er...I was born(!?) - sometimes these people already knew of my conditions; it just makes it so much more obvious when there's an aid - less invisible. But I have the comfort of knowing I'm probably not going to fall over (and that's benefit enough!)
Thats great! have you found that people have gotten used to it and stopped asking about it??
@@ElinorBrown I think so, yeah - it's sort of part of me now.
I think I might get one for “just incase” if I’m out in town and my joints get bad it will mean I don’t have to sit and rest every 30 mins
that's a great idea!! i wasn't sure how much i'd use mine but its so worth it!!😀💖
@@ElinorBrown I’m so scared to use it as it feels like I’m imposter :(
Cool walking stick. I keep a walking pole in my car. Just use it when I need to. Cheers great video 😎👍
That's a great idea! Thankyou!
Ive just gotten a walking stick as I’ve been struggling lately with chronic pain after it starting over a year ago. We are meant to go on holiday soon with my family and this will be the first time I’ll be using it and in front of my family. My parents haven’t seen me this bad in a while and whilst I know its going to help me, I can’t help but think about how my family will look at me when they see I need the aid.
I hope it goes ok! remember that if it helps you then its worth you having!! even if they are a little surprised at first, i'm sure they'll come around, people get used to it fairly quickly!! (and if for some reason they don't, your decision to use one is still valid, no one can tell how you feel!!) YOU GOT THIS!!
Regarding age and walking sticks, years ago, most 'gentlemen' used a walking stick as a matter of course, nothing to do with disability, it was a 'required' accessory, especially for officers in the British army around the early 20th. Century.
The U.K. has THE MOST beautiful walking sticks! Hold your head up with confidence when you use it...you look like a fairy 🧚 with a magic wand.
great video..i have pads and fibro..and since getting covid i get out of breath easily as well so i know how you feel..i use a stick when i need to ,it was a bit odd at first as i still don't consider myself as disabled (i hate that word)..differently abled is a better way to say it ,much nicer.. my problem i just wont accept it in my head.
but i do like your stick its very trendy ,,keep up the good work i will be watching more of your vids ..
Im 14 and have been struggling with my joints for years. I’ve never once thought about get something like this to help even though just standing can be hard some days. Im thinking about getting something to try out and see if it helps in any way.
Have you found any things yet ?
@@countrygirlsstopanimationw6928 I've found a few things, but I haven't bought anything yet since I don't have a lot of money at the moment
@@mxlodiq yea but if you don’t have a shower chair you 💯 need one it’s a game changer
I'm 15 and am considering looking into a cane, I have FND which causes a bunch of things. One of those is leg pain, and occasional weakness. I'm only worried about what my parents will say
It can be so scary to talk to people about!! almost everyone is super kind though!! I was worried for nothing, even the people who were surprised, got used to the idea pretty quick!!
If your parents understand your condition, then I'm sure they'll understand why you want an aid.
Let me know how it goes, if you decide to talk to them about it. And I'm always here to chat!! (you'll get a faster reply on insta)
@@ElinorBrown Update: I got one! I got it a few months back, (it was originally for my dad as he has Ataxia which gives him balance issues, and it didn't work for his needs). I love it so much, I'm still working on my fear of using it in public though
Idk... I've worked as a CNA for 4-5 years on and off while caring for mom. A few years ago I fell down the stairs and sprained my back, well... I still continued doing my job... With lifting more and more... And helping mom... My back... And now my legs are weak... To the point when I get up... I can barely stand or walk without limping or stagering... I got a cane a year ago for just in case... I might have to use it... Bc I'm basically getting worse... And I honestly don't know what's wrong with me. I wish there wasn't a stigma around canes or walking sticks... That you can only use them if you're disabled or old...
definitely give it a go if you think it might help you!!
Would you say it is okay to use a walking stick just to help take pressure off your legs and back for when you have to stand for long periods of time? I have arthritis and fibromyalgia but I don’t feel like I need it as a walking aid but to do my job with less pain and aggravation.
I would say its ok to use a walking stick if you think it will help even a little bit!! there are no rules, you definitely don't need to justify your reasons!! If it will help you to feel less pain then i say go for it!! You definitely deserve to reduce the pain as much as possible!! let me know if you get one and if it works!!
I’m 31 , my knees are toast from military service and I also had hernia surgery. I use a cane now and I’m so embarrassed by it , I feel that everyone is judging me. I also have to use hearing aids everyday. Literally I’m falling apart.
If someone is staring I just walk up to and ask “Is there something you need? I noticed you were looking at me” Most people get flustered or if they don’t you can tell them to their face that’s it’s none of their business. It’ll be awkward at first but the feeling will pass
That's so brave!! I usually just look back at them so they know that I've seen!
I’m a service dog user (with green hair and a lot of visible scarring), so I get a lot of stares in public. I usually stare right back at them until they get embarrassed. 😂
I'm 46 and have been diagnosed with neck injuries, osteoarthritis, fibromyalgia, and chronic fatigue syndrome, migraine disorder. They also suspect Rheumatoid arthritis but haven't been diagnosed. This past year and half my hip pain has increased 10 fold. My hand and feet on fire, joints ache and halfway through work I'm so stiff and shuffling almost. It hurts to sit, stand, walk. I am seriously considering one. The fact that I look fine on outside but miserable on inside but I was always called a hypercondriac by my mom made me not get one. Idk what to do anymore.
I am considering a cane or walking stick because my ankles and knees sometimes flare up and hurt. They hurt to walk on and such. It sucks! My parents never took it seriously.
I’m disabled, never needed a walker or rollator. My mobility aid used to be Afo braces. I had surgery this year 20201, for TT fusion, I have to use mobility aid like crutches, walker, and a rollator because I lost function in my right ankle. I’m healing so I heavily relied on those or else I have to slide around on my butt to get anywhere 😂😭 I’m planning to pimp my mobility aid because I’m done looking like a grandma.
Yes! That would be cool! What are you planning on doing to it?
@@ElinorBrown Wrap it with 3 different shades of pink duck tape, kawaii sticker bomb the rest of the metal part. I planning to buy a cute bag to put on all of the walkers so I can carry stuff with me.
I'm almost 17, and I'm thinking about getting a cane. Still trying to figure out the cause of my issues, might be fibromyalgia. I get dizzy spells, joint pain/weakness. My legs give out a fair bit :( Should I try getting a cane?
I would say yes
I'm 30 and I've just recently accepted that I occasionally need a cane. My hips and lower back, not my legs, are the reason I need a cane. 🤷♀
I know you mentioned u suffer from fatigue, I have that issue as well where I get extreme fatigue so suddenly. Still trying to get a diagnosis right now, you know how annoying that process can be, but am curious how I know if something like this would be the right choice for me. I want to be able to keep working and doing things without getting as exhausted as I do.
Its hard to know for sure, but for me the stick helps with stability, balance and strength, so if those are problems you have as well it might be worth it. It doesn't stop the fatigue because walking is still a lot, but it helps with the effects of the fatigue for me!! hope this helps!
@@ElinorBrown thanks so much! I really appreciate your insight 😊
I'm 14 and I recently got crutches. Yesterday I went for a walk with one crutch. And I was so nervous, I live in a village, so eventually we met someone and they asked me, what's wrong. And I really want a walking stick, but then people would know, that it isn't temporally...
It’s sad I used crutches for 3 months it helped with my broken foot but I also have been struggling with chronic pain for 2 years and they kind helped it but not really I would love to get a walking stick as I do have some mobility issues but I’m not diagnosed with any chronic pain condition so I don’t feel like I deserve to use one
@@countrygirlsstopanimationw6928 Yeah same for me, I don't have a diagnosis yet. And good healing for your foot! And you deserve a walking stick!
@@leefox9973 yea and also my foot is still not right lol 🙃 it’s been 6 months 🤦♀️ and of course my doctor said it fine it might take 5 months and almost 7 months later still not right . One question do you use/have a shower chair it is amazing i has saved me so many times if you don’t have one I think you should get one
@@countrygirlsstopanimationw6928 oh no! I hope your foot will get well soon! And no, I don't have a shower chair although I really want one. But I live at my parent's and yeah, idk I can't.
@@leefox9973 aww thank you. And yea but if you can I would 💯 Get one
Thank you so much for sharing this with us
Also do you know how I could look into ordering a walking stick like the one you have
Its from Neo Walk Sticks
The website and Instagram are linked in the description!
@@ElinorBrown thanks so much I did end up finding them! I appreciate it your video was was really great!
My doctor thinks I may have fibromyalga (I can't spell it) walking without support on bad days can be super duper painful so Ive been considering purchasing some form of mobility aid but am scared people will think my pain isn't "bad enough" for one even tho I feel it will give me my independence and freedom back
in my experience most people mind their own business and don’t question mobility aid use at all! and no one knows how much pain you’re in except you! you got this! x
This must be hard for so many of you,I'm 53 and just bought my first walking stick.. Its going to be weird for me too, some things are just unavoidable.
it was at the beginning, but not anymore! just feels normal to me now! x
Nice
I don't really have a chronic illness I think, I have a slight thingy that my growing gaps in my knees are too big (This apparently grows together when I'm fully grown, I haven't noticed it getting better tho) so my knees just randomly hurt. I'm 16 in a few weeks and even though it hurts and it's uncomfortable when they hurt, much of the time they don't hurt and I'm fine. I really don't know if I should get a cane, especially since I am constantly told that I am fine and healthy??
That can be tricky and I'm sure super annoying!! I would say that if you think a cane might help sometimes but not others maybe try finding a really cheap one second hand and just use it was you need it, and then if it gets better then you could get rid of it if you wanted to. I would try not to get bogged down in the question of whether you have a chronic illness at the moment, you don't need to have one to use a mobility aid. (Whether you use a mobility aid is how you feel not what others say about you!! It's not at all like medication you don't need permission from the medical profession to use it.) Hope this helps 💜
@@ElinorBrown Yeah, I've thought about that too! I'll try that soon with the premise "it looks cool" and "it's for cosplay"! Thanks!