Thank you for sharing this video! I am the youngest of six siblings, each with children, and a few with grandchildren. Myself and my own 3 children have a clinical diagnosis of ATS (along with a few other rare things ) Is there an ongoing gene study that we could be involved in? Or maybe a group for comparing VUS in the non-gene patients?
Nicole, we are glad that you found this video helpful. As for your question, please submit it thorough the Ask an Expert portal on the periodicparalysis.org website and address it to Dr. Tawil. He would be the one with that information. Here is the link - periodicparalysis.org/ask-the-experts-disclaimer/
Yes, we try and provide as much new research as we can during our conferences every two years, most of it is done by Dr. Cannon if you would like to read more about it. periodicparalysis.org/drcannon/
Thank you for reaching out to us. We hope we are able to provide you some helpful information. In this presentation, Dr. Tawil covers medications for treatment and common triggers to avoid for patients that have ATS. If you have further questions, please reach out to the Ask an Expert on our website. Here is a link - periodicparalysis.org/ask-the-experts-disclaimer/
We are sorry to hear that you are having difficulty listening to this video. We are not seeing any issues on the video on our side, we can hear it loudly. You may want to try and watch it on another device.
We are sorry that you are having difficulty hearing the video. You may want to try another device. The sound is playing loud from the actual media site. As for captions, we will look into that.
Thank you for sharing this video!
I am the youngest of six siblings, each with children, and a few with grandchildren. Myself and my own 3 children have a clinical diagnosis of ATS (along with a few other rare things )
Is there an ongoing gene study that we could be involved in? Or maybe a group for comparing VUS in the non-gene patients?
Nicole, we are glad that you found this video helpful. As for your question, please submit it thorough the Ask an Expert portal on the periodicparalysis.org website and address it to Dr. Tawil. He would be the one with that information. Here is the link - periodicparalysis.org/ask-the-experts-disclaimer/
Hallo gibt es irgendwelche Studien , Fortschritte in diese krankheiten.bitte um Rückmeldungen
Yes, we try and provide as much new research as we can during our conferences every two years, most of it is done by Dr. Cannon if you would like to read more about it.
periodicparalysis.org/drcannon/
I am diagnosed with this disease and I do not know what to do to relieve the symptoms of this disease
Thank you for reaching out to us. We hope we are able to provide you some helpful information. In this presentation, Dr. Tawil covers medications for treatment and common triggers to avoid for patients that have ATS. If you have further questions, please reach out to the Ask an Expert on our website. Here is a link - periodicparalysis.org/ask-the-experts-disclaimer/
Can't hear it on full volume
We are sorry to hear that you are having difficulty listening to this video. We are not seeing any issues on the video on our side, we can hear it loudly. You may want to try and watch it on another device.
Yeah audio is garbled
agreed, hard to hear. worse when hearing impaired. Captions would greatly benefit.
hard to hear. worse when hearing impaired. Captions would greatly benefit.
We are sorry that you are having difficulty hearing the video. You may want to try another device. The sound is playing loud from the actual media site. As for captions, we will look into that.