Periodic Paralysis Association
Periodic Paralysis Association
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I am more than just HKPP. I am a person. | Documentary Clip | PPA
Monica discusses how her life goes beyond HKPP, sharing love for horse-riding and other rigorous activities, defying the conventional expectations that often surround people with chronic conditions.
#PeriodicParalysis #TemporaryParalized #PPA
Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org
We'd love to hear from you. Comment below on your experience with PP or with questions about the condition.
You can also donate at
www.periodicparalysis.org/donate
Your donation will help with Dr. Cannon's genetic research or a list of other extremely helpful options. The great thing is you can decide how you want your donation to be used.
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Connect with us on social:
Facebook: periodicparalysisassociation
Instagram: periodicparalysis
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#PPA #NotFaking #paralyzed
มุมมอง: 130

วีดีโอ

My journey to getting diagnosed with HKPP | Documentary Clip | "I Never Fake It: A Medical Odyssey"
มุมมอง 3114 หลายเดือนก่อน
Experience Monica's journey as she goes from confronting puzzling symptoms of weakness to her eventual diagnosis. But her story doesn't end there, check out the full documentary available right here: #PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA websit...
I Never Fake It: A Medical Odyssey | Full Documentary | PPA
มุมมอง 2.5K5 หลายเดือนก่อน
Experience Monica's heartfelt and inspiring story as she opens up about the journey of discovering her rare medical condition, and the science which led to her diagnosis. 3 MAIN HASTAGS GO HERE #PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at w...
"I Never Fake It" Documentary TRAILER | A Medical Odyssey | PPA
มุมมอง 3845 หลายเดือนก่อน
Trailer for the official documentary "I Never Fake It: A Medical Odyssey." Explore one woman's journey of discovering she has a rare medical condition, and the science which led to her diagnosis. #PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at...
2023 aanem annual meeting dr karen suetterlin mp4 1080p
มุมมอง 1757 หลายเดือนก่อน
#PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with questions about the condition. You can also donate at www.periodicparalysis.org/donate Your ...
2023 aanem annual meeting dr stephen cannon mp4 1080p
มุมมอง 1247 หลายเดือนก่อน
#PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with questions about the condition. You can also donate at www.periodicparalysis.org/donate Your ...
Giving Tuesday 2023 PPA Video
มุมมอง 1699 หลายเดือนก่อน
#PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with questions about the condition. You can also donate at www.periodicparalysis.org/donate Your ...
2023 PPA Conference: Dr Chuquilin: Medication options for Primary Periodic Paralysis 002
มุมมอง 4359 หลายเดือนก่อน
2023 PPA Conference: Dr Chuquilin: Medication options for Primary Periodic Paralysis 002 #PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with que...
2023 PPA Conference: Dr Cannon: What is Primary Periodic Paralysis 001
มุมมอง 7419 หลายเดือนก่อน
2023 PPA Conference: Dr Cannon: What is Primary Periodic Paralysis 001 #PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with questions about the c...
2023 PPA Conference: Anita Dharwadkar: Periodic Paralysis and Nutrition 005
มุมมอง 2139 หลายเดือนก่อน
2023 PPA Conference: Anita Dharwadkar: Periodic Paralysis and Nutrition 005 #PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with questions about ...
2023 PPA Conference: Dr. Harr: Navigating the World of Anesthesia Medications for Periodic Paralysis
มุมมอง 2139 หลายเดือนก่อน
2023 PPA Conference: Dr. Harr: Navigating the World of Anesthesia Medications for Periodic Paralysis #periodicparalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP...
2023 PPA Conference: Dr Cannon, Therapeutic Pipeline for Primary Periodic Paralysis 004
มุมมอง 2139 หลายเดือนก่อน
2023 PPA Conference: Dr Cannon, Therapeutic Pipeline for Primary Periodic Paralysis 004 #periodicparalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with ques...
2023 PPA Conference: Dr Cannon, Potassium and Periodic Paralysis Secondary Periodic Paralysis 003
มุมมอง 3269 หลายเดือนก่อน
2023 PPA Conference: Dr Cannon, Potassium and Periodic Paralysis Secondary Periodic Paralysis 003 #periodicparalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or...
2023 PPA Conference: Sandy Drenner, Mind Body Connection Fact or Fiction 006
มุมมอง 1879 หลายเดือนก่อน
#PeriodicParalysis #TemporaryParalized #PPA Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicparalysis.org We'd love to hear from you. Comment below on your experience with PP or with questions about the condition. You can also donate at www.periodicparalysis.org/donate Your ...
Kirsten and Janine PPP Mentor Connect™ and Community Impact CS 1
มุมมอง 17011 หลายเดือนก่อน
After Janine and Kirsten were diagnosed with #PPP, they felt isolated not knowing where to turn for support. Connecting with others living with PPP was life-changing for them both. When Janine attended our annual conference, she realized she had finally met “her people.” And when Kirsten talked to someone through the PPP Mentor Connect™ Program, she finally felt seen. Hear Janine and Kirsten de...
FINAL Dennis PPA Video KEVEYIS 08 01 2023
มุมมอง 194ปีที่แล้ว
FINAL Dennis PPA Video KEVEYIS 08 01 2023
Vahe PAM Experience and Patient Support in PPP CS 1
มุมมอง 177ปีที่แล้ว
Vahe PAM Experience and Patient Support in PPP CS 1
KEVEYIS Joe PAM Experience July2023
มุมมอง 315ปีที่แล้ว
KEVEYIS Joe PAM Experience July2023
Medications and Periodic Paralysis with Dr. Chuquilin
มุมมอง 1.4Kปีที่แล้ว
Medications and Periodic Paralysis with Dr. Chuquilin
The role genetic testing plays in diagnosing PPP -- a LIVE Webinar with Dr. Cannon
มุมมอง 8992 ปีที่แล้ว
The role genetic testing plays in diagnosing PPP a LIVE Webinar with Dr. Cannon
Most FAQ About Periodic Paralysis Part 2 | Ask The Expert Ep 08
มุมมอง 9482 ปีที่แล้ว
Most FAQ About Periodic Paralysis Part 2 | Ask The Expert Ep 08
Most FAQ's About Periodic Paralysis | Ask The Expert Ep 07 | Part 1 of 2
มุมมอง 1K2 ปีที่แล้ว
Most FAQ's About Periodic Paralysis | Ask The Expert Ep 07 | Part 1 of 2
Andersen Tawil Syndrome | PPA SUMMIT 2021 Supercut #6
มุมมอง 1.6K2 ปีที่แล้ว
Andersen Tawil Syndrome | PPA SUMMIT 2021 Supercut #6
CRISPR Editing for Rare Disease, Periodic Paralysis | PPA SUMMIT 2021 Supercut #5
มุมมอง 5652 ปีที่แล้ว
CRISPR Editing for Rare Disease, Periodic Paralysis | PPA SUMMIT 2021 Supercut #5
Paramyotonia Congenita - An Expert Discussion | PPA SUMMIT 2021 Supercut #4
มุมมอง 1.7K2 ปีที่แล้ว
Paramyotonia Congenita - An Expert Discussion | PPA SUMMIT 2021 Supercut #4
Family Genetic Testing Finds SCNA4A Variant Defect | PPA SUMMIT 2021 Supercut #3
มุมมอง 7932 ปีที่แล้ว
Family Genetic Testing Finds SCNA4A Variant Defect | PPA SUMMIT 2021 Supercut #3
Safe Anesthesia for Periodic Paralysis Patients During Surgery | PPA SUMMIT 2021 Supercut #2
มุมมอง 9572 ปีที่แล้ว
Safe Anesthesia for Periodic Paralysis Patients During Surgery | PPA SUMMIT 2021 Supercut #2
Repurposing A Drug for Preventing Attacks of Periodic Paralysis | PPA SUMMIT 2021 Supercut #1
มุมมอง 8772 ปีที่แล้ว
Repurposing A Drug for Preventing Attacks of Periodic Paralysis | PPA SUMMIT 2021 Supercut #1
Sharing | #GivingTuesday | Giving A Voice By Sharing | #GivingAVoice For Rare Diseases
มุมมอง 1372 ปีที่แล้ว
Sharing | #GivingTuesday | Giving A Voice By Sharing | #GivingAVoice For Rare Diseases
Vulnerability | #GivingTuesday | Giving A Voice With Vulnerability | #GivingAVoice For Rare Diseases
มุมมอง 1482 ปีที่แล้ว
Vulnerability | #GivingTuesday | Giving A Voice With Vulnerability | #GivingAVoice For Rare Diseases