I've just found you and subscribed to your channel. Thank you for describing the seven stages of dementia. My husband has Lewy body dementia. I'm not sure if it's stage 5. I'm taking one day at a time. We live in Sweden, where the care offered is amazing. But thank you again for your wonderful presentation!
I'm going through this with my mom right now. She's in stage 6 and refuses to leave her home. This is the hardest thing to go through and watch her decline. PRAYERS! PLEASE🙏
My 51-year-old daughter has been diagnosed with dementia. I thank you very much for this video. I think she may be in stage 3-4. She still works, but all she does is wash dishes and clean some. She has been there for 10 years, so I guess that is why she can still do it. It’s basically repetitious. Too, the people there help her when she needs it. When she gets agitated, they just tell her to take a break. I really appreciate them. She can’t drive anymore, because she gets lost and she gets highly agitated in traffic. She lives with my oldest daughter, so she takes her to work. She can remember things that happened many years ago when her children were little but can’t remember what you told her 5 minutes ago. It breaks my heart to see her like that. She is my baby. 😢😢. She lives with my oldest daughter and is well-cared for. I live about 5 hours away. I wish I could be closer, but my oldest daughter says God has me in the right place; at my own home. Sorry for the long post. Maybe I just needed to “talk” to someone not family. Thank you again, and I will continue to watch your videos.
My heart goes out to you, I can't imagine what it's like for you. You certainly are very brave holding up as well as you seem to be doing you didn't need to apologize for taking up so much time. I am glad you have a place to vent, sometimes it's hardest to talk to the ones with whom we are closest. Stay strong🎉❤❤
I am sorry for your pain. It must be difficult for you. Like you mentioned, she is blessed to have her big sister there for her. She is with family who love her when you live so far. God bless you and your girls.
Cannot imagine what it must feel to watch a child of yours suffer with dementia. My heart goes out to you. My prayers and big hugs. 🫂And of course strength and hug to the angel of your other daughter, the amazing caregiver. You are so lucky in her. God bless you all. Thanks for sharing - so I know what I have to be thankful for in the midst of my own grief. 🙏
YES!! My Heart Goes Out Deeply To Your Daughter!! I Hope The LORD Bless 🙏 Her In Many Ways!! Then One. And I Say Bless 🙏 You As Well.. For Taking Your Time To Tell Her Story 🕊️.
My mother’s brother, who was an inventor & had enormous amounts of info on every topic, had bits of forgetfulness & a few dents on his car before we realized he was in trouble. He lived alone & only visited family occasionally. Then he showed up with a battered face & couldn’t really explain who did it or when. His brothers began checking in him. Within 6 months, he couldn’t drive, carry on a conversation or realize where he was & was in a care facility. The last time I visited him, he was at a table being fed. He was in a zombie like state & had to be told to open his mouth, then to chew, & then ti swallow. He did not know me & wasn’t really there. I left with tears running down my face.It is a horrible end to anyone’s life. God bless those who have it, those who witness it, & the caregivers. Heartbreaking for all.🙏🏼
From everybody I know , who has this awful disease, it truly appears to be the most intelligent human beings who end up suffering with it. More research should be done studying whether overtaxing your brain is one of the factors
I cared for my mother with dementia for three years. She died only a few days ago in her own house and bed as I promised her. The experience is something I shall never forget although in the end she died peacefully. Her own doctor never visited her in all that time and she passed away at the age of 97. She always managed to walk up the stairs with me behind her but seven days before she died she suddenly stopped walking while going upstairs and I had to carry her up. She spent the remainder of her life being cared for in bed.
God bless her and God bless you for having her with you all that time. I lost my mother to cancer in 2020. She was 83. Loss of a mother is like losing a part of your soul.
I think my wife of 47 years is in stage 6 now. She can’t carry on a normal conversation anymore but she still eats pretty good and dresses herself but not well. She was so smart and could do most anything she put her mind to. She did bank mergers when she worked for BB&T, traveled by car all along the east coast by herself before we had GPS and was so quick thinking and organized. Breaks my heart but she still remembers Jesus and church and still wants to go. I know the Lord is taking care of her and helping me along the way.
I'm so sorry. The Lord will help you both through this. It is so sad and yet so hopeful that she remembers him and will be with him one day. God bless you both.
@@EN-ne3hu No, she did before it got bad but has no idea now. I don’t know how nurses and caregivers deal with patients every day. It has given me a better appreciation for them. They are special people.
My dad had dementia or altzheimers so bad he couldn't even talk in the end. He was a generator and alternator rebuilder. Had his hands in solvents all the time. It makes me want cry when i think about it. I could never had a better father
My husband has been diagnosed with this… I’ve been in Denial… he’s in 4/5. Just got diagnosed about 6 months ago, they found it in his cerebral spinal fluid… I had no clue what those shuttle signs were but after a surgery last year it came in with a vengeance, and our daughter is worrying us both, I am a retired nurse so I think as far as physical I will be ok, but I am soooo depressed. And watching this video answered so much. He’s refusing the meds, he’s went From a 38-30 to a 30-30 in a little over a year is when the decline started, my 220 strapping strong man is now 160lbs, and I feed him often…he is very strong willed, but this video put it all into perspective.. my hearts broken in a 1000 pieces…we need to pray for each other.🥺🙏♥️
My mother has dementia, and my sister has altzheimers and yes it’s heartbreaking to witness.😭 I find myself crying most of the time when I’m with them. 🌸
@@stevechandler8487 I have prayed and God is so good. Seems when faced with a new challenge I worry but things have always worked out. Sometimes I work a little harder, prayers without work is a complete waste of time. God is great 🌸
it is a nightmare to be honest. I cant think too far into the future, or I couldnt cope with my husband and all the possibilities. Some days it is overwhelming, I just wan t to sit and cry. But i have a hobby and still get out and about with good friends.
Thank you. my sister is in stage 2 , she is in denial saying the doctors are wrong, she does not think she has it. she is on medication to slow the dementia down a bit. you are so great at explaining everything.
Thank you so much. My mother had dementia. I learned to listen to the old stories of her childhood that she could recall. Those beautiful stories are the memories I carry about the last years of her life.
Omg! My husband is in the early stages of dementia, and I am so grateful to have found your TH-cam channel! I am profoundly grateful. This certainly helps me understand what is going to happen on our journey together. Thank you thank you thank you.
Stages are fluid: GDF Stage 1-3. Still Independent Living Stage 1: No cognitive decline Stage 2: very mild cognitive decline-AMI-slight memory loss-more of an annoyance Stage 3: Mild Cognitive Decline - a deficiency; forget what they read; denial Stage 4-7 Stage 4: Early Dementia; Moderate Decline-Difficulty planning events; vacation; navigating an airport; balancing a checkbook; structuring finances. May withdraw from social engagements that demand more bandwidth. Impaired awareness of current events. Time and place difficulty. Personality may become more toned down or flat. Stage 5: person will need some assistance to survive. Will not know things like medical history, grandchildren names, day of the week, the month , year or season. Usually will recognize their own name, and mostly know their children and spouses names. Still independent in toileting and feeding themselves but may need assistance in choosing appropriate attire for the situation. Stage 6: Moderately Severe Cognitive Decline: occasionally may not remember spouses name; will be able to differentiate a familiar person from a stranger even if they can’t remember their name. May have toileting issues and need assistance. May have personality changes and may have trouble regulating their emotions. They may start having hallucinations and become suspicious of others. May have repetitive behaviors…may get violent. Loss of will-power because of inability to hold thoughts long enough for action. Stage 7: Severe Dementia: Very Severe Cognitive Decline: communication will cease, will not express desires but will understand kind gestures. Can sometimes tap or hum to music. 100 percent dependent. Cannot walk or feed themselves. Heart will finally stop working. Be kind to yourself…this is not easy. Support available on this channel.
What is the timeframe for each stage? I know it is an individual thing, but on average? In my experience seems like 6, 7 go by rather quickly. I am in stage 3. Just curious how much good time I have left.
This is very helpful. I believe I am in stage 2. My mother died at 93 and I watched her progress through these stages. Her generation was not really aware of this as a diagnosis although they had relatives who "went senile". My children note that I have a tendency to leave things when I visit them (hats, coats etc). I first suspected the diagnosis 20 years ago when trying to cope when visiting a strange city in a strange country in a different time zone. Over the past 2-3 years my memory for current day and date, for names and words has markedly deteriorated (noticeable to me only). I have very poor sense of smell. There are other memory symptoms I could list. I still function at a high level and I don't think friends would have noticed anything. I do a lot of physical exercise, both aerobic and resistance training as I believe the evidence suggests that this slows down progression. I am also on a low sugar diet. I successfully run my own fairly complex investment portfolios though wonder how long I can do this. I live alone so no wife to notice things. I have recently given up some teaching work in retirement that I no longer have the previous great enthusiasm for. I am 78 this year and think I probably have another 2 good years, maybe more. I am a retired medical practitioner so have some medical insight. It is important to try and keep these things hidden as long as possible, because the label or even suspicion of early dementia affects all social relationships. Yet certain things have to be done to tidy one's life and prepare for the worst while still competent. I have had a good life and have made preparations for what I will do when I reach a certain stage. Read into that what you will. Future society will have to face the option of predetermined voluntary assisted dying for those with severe dementia. Let's face it - who would want to continue living in that dreadful demeaning and mindless condition?
The best video Ive seen so far on this topic..will watch it again..my 93 year old neighbor is losing her memory..I noticed this in January..now in March..her personality is irritable and is sometimes aggressive..shes in denial.😢
Very clear explanations‼️ THANK YOU‼️ Have two sisters with early stages of dementia, not easy to handle, they are stubborn and in denial, so, patience is the name of the game.
Thank you Debra, that was insightful. My mum had a memory test which just as you explained she couldn’t answer correctly, she is now going to see a doctor. It’s heartbreaking, my once vivacious and proud Mum is a shadow of herself.
Our hearts is broken. Our son in law was diagnosed with Picks desease at 33. Extremely intelligent.. with all his symptoms ..we realize he is in stage 7.. he start to forget his 16 year old daughter name and age....he has a 10 year old son.. he is now 39.
I’m so sorry for you and your family your son in law is in GOD HANDS PLEASE TAKE THE TIME TO SUPPORT YOUR Daughter she must be so scared.and help your grandchildren knew you care help them to understand their father love the always and is very sick.maybe GOD BLESS YOU IN A MIGHTYWAY
This is the most comprehensive explanation I have seen to date, thank you. I am in Australia. My husband of 55 years began showing signs around 12 months ago, he is 79 and he is fully aware and understands what is happening. It is so sad to see him needing explanations of many things which he used to explain to me over the years. His concentration level has diminished, he watches a lot of TH-cam, as do I, for information on his vegetable gardening and he downloads and watches series and movies. He cannot read anymore and retention is not as good. Our GP has noted our concerns and he passed the cognitive test with flying colours. This is very frustrating for both of us but I do keep calm and reassure him that it is ok to ask me a million times what we are doing today or tomorrow, even though he has his own diary he forgets to look at it and if he does can't remember. Some days he seems pretty well his old self but overall he has changed and is quite insecure without me present and has withdrawn from everything other than his lap swimming 3 mornings a week and two friends. I do most of the driving as he feels insecure particularly on busy motorways so he stays close to home, say 10 mins away. We don't have children and our closest relatives, who care, are 2 hrs away by air or overseas. I was a carer for my mother until 4 yrs ago so am aware of the impact on my life. He is very keen to see me do things with others but if I go out to shops etc he has to accompany me except on rare occasions when he is very tired.
I'm so glad you like the information! Thanks for taking the time to comment. I hope you've subscribed. You've got a long, hard road ahead. Try to find some iCal support, including home care. Even a few hours a week to give you a break....
Yes I know exactly what your talking about. My mom is also 79 and sounds a lot like your husband. Right now she’s in a rehab because she fell. I had to have a conference call with my mom, social worker, nurse and therapist. Well I made a comment about being concerned about when my mom goes home because when she was home she was very confused. She was taking too much medicine and she wasn’t eating a lot. So the nurse said “ I know where your going with this but we haven’t seen any signs of this” I’m thinking well than you haven’t been around her too much because it was very apparent to my family and I. So it’s very frustrating like you said because sometimes they seem fine. I guess because she’s there and everyone’s doing everything for her, it’s hard to tell. I also noticed she’s very quiet. My mom was always talking. If I went to see her, she would be talking the whole time. And she never calls me anymore. I have to call her and she usually doesn’t pick up and when she does, she acts like she doesn’t know what to do.
Have her checked so that you have an actual diagnoses and ask for an MRI - if she had not had one, and has insurance, might as well, she is paying them enough. As for my opinion, I'm working on a book of healing foods. A lot of our food is poisoned, this is no joke - processed stuff, carcinogens and worst things for your brain - metals. So you need to know what to eat to keep your health. If my mom was in your mom's situation I would first have her ditch: meat, dairy, sugar and alcohol completely. Then I would detox - this will greatly improve her thinking. Best juices to detox with - follow fullyraw Kristina. She has awesome stuff. Then after detox adopt a healthy lifestyle - I still eat meats, dairy, sweets - but they are all healthy versions of them. The only two oils you should ever heat are organic unrefined coconut oil and flaxseed oil. All others turn to trans fat under high heat and keep in mind - HEALTHY fats are brain food, so you want stuff like avocado, nuts, coconut mana. The best thing to drink when you are mentally impaired is coconut water straight from the fruit. Definitely not processed sugary drinks, coffee or dairy and definitely not alcohol. Green tea is great if you can find it pure. Your mom should be also doing stuff like puzzles or games that make her think, Sudoku, memory games etc. Also, movement that moves your eyes side to side like playing the piano, watching tennis = according to TCM this helps. Check out my healing foods at www.veganalienfood.com
My partner is MCI, I’m thinking stages 3 and sometimes 4. He see’s his Neuro doc every 6 months for progression. I will not let him drive even though he probably could. I do a lot of reading on things I can do for him. He’s on B12, Vitamin D, and Fish Oil. He has always been an avid book reader and he stopped reading. Two months after starting the fish oil he started reading books again. I’m not saying fish oil is some sort of miracle supplement but I’m always trying what we can do to make his life better. To see him reading again and going back to something he loved was so good for me to see. I’ll never be prepared for the advance stages but as long as I’m alive I’ll be his caregiver and advocate. Prayers for all who are diagnosed with this disease. It’s very cruel.
I was diagnosed in 01 with M/S it crushes ME every time I think of my pain I have put on my wife after 42 years ! She Doesn't Deserve MY hurt, I Thank GOD everyday I have her ! 😥🙏
My sweet neighbor of many years is getting 'strange' really quickly. Two years ago she seemed really fine, she was book keeper for two family companies .Now her ex husband has moved in and the family are trying to cope. My neighbor has taken to watching for my delivered groceries and Amazon parcels. She 'collects' my parcels and takes them for safekeeping. It wasn't until her husband found my deliveries that I realised I have to check the tracking sites all the time if I expect a delivery. This is the same friend who looked after my cats when I had to be away, shared home made soups and sent little treats. Unfortunately she has become agressive and has hurt people close to her. This is dreadful and very tragic. Your site is useful, thank you.
Thanks so much for this. My father, 90, is clearly on Stage 6. He is now in a hospice since just a month ago, and the caretakers already have noticed a definite and constant decline. So sad.
Thank you for this i went through it with my Dad who died in 2008. My Mom stayed in denial and demanded that he be “ normal” like driving her around. He had bad behaviors that got him into legal trouble. She felt it was not her problem. My two boys that had been very close with their grands stayed on me until I realized I had to be the informed one, sometimes the bad guy. My only sibling, a brother, refused to see any problem at all, except with me. I got as educated as I could. I read about stages several times but was unable to match him with them. Your explanation of fluidity hit home with me. Thank you. Going through all this was the hardest thing I ever did. How hard is it to notify the DMV that your Father should not drive? My Mom was very angry and thought a doctor had done it. I have to find more of your videos. Thank you again. You know what I think? You never grow up completely until you have gone through old age with your parents.
Just found you on You Tube yesterday and I have learned more in two days than in the past two years. Thank you so much. My wife has Alz. and I'm her hubby. She has no short term memory at all and you have showed me how to respond to her. May God bless you.
Just found this very excellent video,Debra. Thank you. My spouse has long been diagnosed (10 years) & as a retired health care person, I recognized it early on. Knowledge is understanding & can be the good foundation for better partner care. All the best. 🌈
My husband is 89, I’m 84 coming up in a month. We both have considerable trouble remembering certain things. I find that I’ll have a word missing that perfectly fits the bill. His is more - can’t remember, when I mention something that happened months, or years, ago. Only today we were talking about vehicles we’ve owned. He could tell me that his first brand new car cost him $888.00 I can still remember what we bought, where we bought it, and what it replaced. He tends to cease to be interested in the discussion when his memory starts to fail him, yet he is still able to paint the lower portions of each of the four walls of the house (outside) and would be prepared to go higher via a ladder, but I forbid it, using the excuse that I NEED him to be around to help. I know if I go out, he’ll probably climb that ladder to start going higher. Basically I think he is only at stage 2, so he hopefully has years yet. He’s been very slowly deteriorating over the last five to ten years. As for me, I have the occasional loss of memory of a specific word, but still do all the telephoning, and bill paying. I hope we can both die in our sleep, as my parents did. He’s the only one left of six siblings, having outlived the eldest of the others by almost ten years. The rest of them died one by one, leaving him on his own. I attribute it to the good food I prepare for us both, and we don’t smoke or drink, although he did both at one time. Sorry for the mini biography
You and your husband are doing well I sometimes can't remember a word but I don't out that down to dementia. My mother had dementia and died as a rest of it. She always had the best of food she out lived all her sibling but I think you are unfair to your husband's sibling's and their parteners to think your good food is the reason outlived them. There will be one in every family is the last to be alive. I wish you and husband the best of luck in life 🌹
@@user-cy4vw1qj9m but they were all heavy drinkers, and that why I say they were author of their own misfortune, although the last brother to die refused an operation that would have given him more years. After his wife died he gave up the will/desire to live without her
@@anniewright6358I hope you have a relationship with Jesus for He loves you and your husband and cares more than words can say!!! I will pray for you both!!! God bless you!!! ✝️🙏🏻🙏🏻🙏🏻💜
Thank you so much. I never thought I would be spending my Thursday evening researching dementia, regarding my Aunt Lila. She has always been the strong one and pillar of our family, and has been a mother to me when my mom passed away many years ago. I believe that she is being abused and neglected but there doesn’t seem to be much that I can do. I am only her niece. God bless those who suffer from this awful disease making them vulnerable to the world. And God bless the caregivers who sacrifice to care for the ill.
Been through all of this with my Grandma, an aunt and my mom!!! I took care of my mom until the very end. I kept her at my home with me until her last breath. ❤ it’s been 4 years on 6/3 since she’s been gone and I still miss her every second of every day. Thank you
My step mom, and my dad’s love of his life, has both Lewy Body Dementia and Parkinsons Dementia. She is well into stage 6, with some regression periodically into stages 4 and 5. It has been heartbreaking for all of us, and her rapid decline into stage 6 has been overwhelming and confusing and frustrating and scary for my dad. He refuses to put her into a home but I see the toll it is taking on him, and I know that I’m going to lose him quicker because of it. It’s all just so dang awful. No one deserves to lose their mind like this, and no one deserves to see their loved ones take that journey. And there’s not a damn thing we can do other than wish that we had death with dignity options in our country (if you don’t have them, like the US). She is so unhappy, so confused, she had to go into hospital last week and she was violent and had to be strapped to a chair! She’s never had a violent bone in her body, she has always been so reasonable and so informed and so incredibly intelligent. Now she does not know who my dad is most days, and mixes him up with her first husband from over 40 years ago. She will sometimes ask someone who someone is, not recognizing her own daughter or brother or grandchild. She has to be catheterized constantly, has constant UTIs from not drinking enough water, is constantly dehydrated, which just makes the confusion even worse. She then also sometimes loses control and makes a mess all over herself, the floor, the bed, etc. she gets food all over everything when she tries to eat. She can no longer type/can’t make her fingers do what she wants to do and can’t recognize that emails or typing is illegible to anyone else. She falls frequently, is very unsteady on her feet, cannot make her legs do what she wants them to do many times, and has a very slow, very shuffling walk. She still sometimes talks about current events, though that is definitely less frequent now. She often will be speaking but then completely forget about what she was talking about. She thinks my dad is having affairs with people (he would never), or that the hospital is out to get her, or whatever. She hallucinates constantly, always seeing people in their house. She thinks they’re using her toothbrush, sleeping in her bed, wearing her clothes, etc. she sees creatures in piles of clothes or a pillow or a blanket. She does not think she’s in her home but rather a home that looks just like her home but isn’t her home. She’s calling 911 and reporting that my dad is dead or she’s scared or there are intruders. She walks over to the neighbors house in the middle of the night to tell them the same kind of stuff. She does not see or recognize messes. She cries a lot, is so scared and confused. I share all this in case anyone else is going through something similar. You are not alone, but it is hard. It’s the hardest thing I’ve ever gone through, losing this vibrant woman that we love, and seeing its impact on my dad. Every day i wish i could fix it, i wish I could help, I wish that i could somehow make it better, or just make it end (terrible, I know, but true.)
Ahh! sorry to hear this and I know how hard this is, the disease is so cruel. My Mum is showing many of the symptoms you have raised above and it is somehow comforting to know that we are not alone, but sometimes it feels like this as others dont see this and when trying to get help it is also hard as the health professionals talk to mum and what she says to them are sometimes automated replies like are you okay with paying bills and she just says yes, when my brother has been sorting this for a long time now and she has no financial knowledge anymore., your last sentence is what my brother and I have been thinking too, although this seems terrible to think that. Thank you for your honest and frank account of what you are going through and I wish you all the love and strength in coping with this.
I take care of my Mother-in-law. She has always been a mean and hateful person and dementia has amplified it. When i read articles on dementia they always refer to " a loved one". That is not the my situation. I take excellent care of her at the risk of my mental health. She has ni friends and only my husband as family. She has never concidered me family. She is 85 and i have realized i will never put my family through this hell. My husband deals as best he can. Being a caretaker is this hardest job. I can't imagine doing this for "a loved one".
I can relate, I always thought my husband was just a grump. I stayed with him because I didn't want to raise our daughter without a father. He never laid a hand on us, and the fact that he worked nights and I worked days, we weren't around each other much. Oh! We had our good times, but the longer time went on we were not friends. After over 30 yrs of marriage I found out that the accident he had been in when he was 25 was severe head trauma. His sisters did not tell me that his personality had changed completely after the accident. We did have some fun times, but I stayed too long. I believe based on this article he's anywhere between stage 4&7. I'm sorry for what you are going through. For me it's been at least 20yrs of unhappiness. I can't blame him, I made the choice to stay hoping things would change. I did not know about dementia until about five yrs ago, then it was too late to leave him.
i have to do this soon enough my mother-in-law we do not talk at the minute just phones for her darling son every 5 minutes just blacks me out to all the family I see it at work every day be hard for sure what it is coming scary times she took my kids away favored her throughout no family time for there own mother not right that isn't.
My husband has just been diagnosed. After watching your video, I am thinking he is in stage 4. Both his parents had this awful disease, so I kind of know what to expect. Taking one day at a time. Thanks for the great video and am looking forward to seeing more.
I'm in denial about having Dementia. I can't stop listening to lectures on TH-cam about it and shaking my head saying "no, not me" I need to be tested. I'm Bipolar and things are getting weird for me. The things happening in stages 1-4 are happening and I'm not happening.
Going to the Dr will not change your outcome, but it will help you in other ways. Now is the time to prepare and plan while you still can. PLEASE go to the dr....
I really appreciated this video and the manner in which was presented. My wife has been diagnosed with MCI. I want to relate for the benefit of others how "we" got to where my wife is at. The first thing I noticed was her inability to keep events in sequential order. Then it progressed to mixing two or more unrelated events together. Along with the aforementioned she began having to ask the same question over and over. When she had a medical appointment it became necessary for me to be present in the exam room to get the instructions from the practitioner. It became necessary that I finally brought the memory issues up to a practitioner. She was given the Montreal Cognitive Exam and scored 24 of 30. She was referred to a neurologist who, with a NeuroPsychologist, made the MCI diagnosis. She was displeased with me, but I think she was more frustrated with having to accept the memory problem. Right now she probably bounces between stage 3 and 4. My wife was always an excellent student and honors graduate from college. It really difficult to be the one who forces the need to get a diagnosis when it is someone you love. She was upset, but now accepts her reality.
@logotimeclark I was diagnosed with MCI over 5 years ago. I was never told it was stage 3, I just thought it was a sort of "catch all" like some docs use "fibromyalgia". I was a HS valedictorian and had high honors from both college degrees. I sometimes wonder if we just used up our good brain? I will be evaluated at an actural Memory treatment center next month. It's a scary journey for sure.
This makes me think of my sweet Granny, even all the way at the end when she didn't even remember me anymore. When I put her to bed she never forgot to pray.😢
I am a carer for my lovely, sadly late husband who had Lewy body dementia. That is the worst of all these horrible dementia diseases. As far as God goes, he for me just doesn't exist. No way would someone who is said to love all let so many lovely people have such a frightening sad end to life. I'd never rely on God for anything.
I believe I may be in stage three now. It is pretty frightening to know that you are on that downhill path, not knowing how long it will be before your world just fades away. I am not going to be a burden to others at the end of my days. That is a promise I made to myself long ago.
My mom was mean and lied most of her life and it’s was hard to understand if she was just being herself or it was the dementia. I tried until I couldn’t anymore she had state4 tumorous breast cancer it was the hardest to go through. I did it until I couldn’t because she started to poison us and my animals it’s when I couldn’t anymore i broke down and placed her in a really good nursing home with the help of hospice . God bless you and get lots of support.
Same here….combative with everything, meds, fluids, bathing, bedtime, refusing to be without my wife (her daughter) and it’s been a six year decline. But she eats like a champ and it’s the only thing that keeps her from being agitated. He constant demands are crushing my wife. And, at almost 97, she’s dropping F-Bombs like a Sailor!
Yea my mom too and if she got made at me she would try to poison me it was scary. The focus should be on trumps mental decline he differently has dementia and every he says and does must come from that awareness then it’ll make sense coming from that disease and what it does he’s mind is declining and when under pressure it gets worse he’s mental decline he’s very dangerous and I pray they don’t give him briefing soon knowing full well he’s selling our secrets to foreigner’s that’s very damaging. As president I knew he had the beginning of dementia and yrs later we’ll look at him he goes insane at times but the main stream media doesn’t really shine a light on this because he makes them money how evil that’s is because they rather let him destroy the country they live in for greed they helped make this monster they better wake the hell up. Now I believe he’s going to have a stroke sometime soon I doubt he’ll be alive in November and I’m praying on that but I doubt he’ll become president again but it’s what’s he’s doing right now that’s is hurting millions of innocent Americans that are tired of seeing a old man that wears diapers and does speed you can only tell have us watch a man watch him have deteriorating brain damage get worse when it’s not our business he needs to get ready to be put in jail or start thinking about his long term care and not smashing him in our faces . Please with your mom be very careful and if you just can’t care for her then get the help I cared for my mom myself and she hates me and she had stage 4 breast cancer a tumor that grew to a size of a basketball I’m not joking I couldn’t do both even with hospice care i finally had a mental breakdown and I had no choice but to place her in a 24 assistant living which she went to a very good one thank god. I sending lots of love and light it’s very challenging no matter what. God bless you always.
I’m a caregiver to a 101 year old lady with dementia. I’m at the end of my rope because the only time I get off is when a family member visits. I have health issues that I put on the back burner but the family has made me feel bad when I had time off for melanoma and lymph node removal. Please pray I make it through this because I’m drowning.
@@yvonnepeyton4291 take care of yourself first. My mom was 79yrs old and the pressure was so high I snapped and had a nervous breakdown I had to put my mom in a nursing home and the guilt was overwhelming but I had no choice but to let go I also had health problems and I was getting worse don’t let the family guilt trip you it’s their responsibility to take care of there own by caring for her or placing her sometimes you just have to walk and say good byes to her inside of you and just call the family and tell them to come and care for her and hang up. Families shouldn’t guilt trip you but be understanding. God knows in your heart and soul you did your best for however length of time you cared for her. Trust me the family will have no choice but to step in. God bless you and your situation and god bless her in getting proper help after you.
My husband is now 84, I believe he is now between stages 4-5 He was diagnosed with PCA 18 months ago. Its so sad to see a once vibrant man slide into decline. We have been married for 62 years. Thank you for this video which has helped me a lot. We take one day at a time.
@@paulohlsson27 still plodding on. He had major surgery recently which has set him back. Memory worse. Anaesthetics do not agree with him. At least he is home . Hopefully he won’t deteriorate any more.
I am 62 years old. I used to have a very good memory. I recently went to my GP and my worries were dismissed after no investigation. The most notable problem is that I can watch a movie and a month later have no recollection of ever having heard of the movie. I do not recall the title, the plot or any of the actors. On one level this it great - I m getting more value from my amazon prime subscription. Normal forgetfulness is getting worse. I believe this is a result of regularly being hit around the head as a child. Has anyone else similar symptoms?
I'm almost 80 but I have the same thing. I never had a good memory, long or short all my life. I just laugh about it because what else can I do? In the end, it's God's call, not mine.
This video was very helpful. Unfortunately, one of my brothers-in-law appears to be stage 6, the other is about 4. Also, my younger sister died last November from what we think was stroke-caused dementia. I do have to say, dementia is very stressful on the patient, caregivers and family. My sister would call me often (until stage 7) and when I answered, I did not know who it would be on the other end of the line. Sometimes she was clear-headed and we could converse and reminisce, other times she was delusional and thought her caretaker was trying to kill her or there were strangers living in the upstairs rooms. But in her clear hours, she was upset that she knew she wouldn't remember our talk the next day. As she was in Mexico and I am in Washington, it was a very helpless feeling for me to know how terrible it was for her and I couldn't help. It broke my heart when she died but at the same time, I knew it was for the best and she is free of that body that let her down. Thanks for making this video and helping me understand what happened to her and what is happening to my other family members.
My poor uncle is 81 he's at the end of stage 7 It's so hard to understand seeing this in a strong man at one time not long ago. God bless you uncle Franz, and Aunt Dolly for being so strong . Update My uncle Franz passed away on June 4th 2024you will be missed Rest In Peace.
My mother had to give up driving around 82 years of age. She started repeating herself by 83 . She also began experiencing hallucinations by 84(2016) . The end came in 2020
I am so thankful I found your channel. I am dealing with this with my mother. We have not been able to get her officially diagnosed because the doctors just won't take the time to listen to me or my aunt. They acted as if we were not in the room. This really became noticeable to my dad and I about 20 years ago. My mother would forget her way home after finishing her errands in town. She called me often and asked me to help her get home. And once she asked my niece, who was 3 at the time, to "show me the way to granny's house". She played it off as a game so it wouldn't frighten my niece. My husband and I now live with my parents, and I take care of them. Thankfully my dad is still very independent and helps me when he can. But I see it taking it's toll on him to watch his wife of 56 years slowly slipping away. After watching this video, I can say that my mother is back and forth between 4, 5, and 6. Her personality is a huge change we all have noticed. She used to be the sweetest and hardest working woman I have ever known. Never cussed or talked bad about anyone. Now she can be downright mean and rude to (mainly) me, daddy, and her twin sister. She will talk about how someone is dressed or how they look physically. Just mean!! If she doesn't get her way, she will through fits like a child and pout until we have given in. I have tried to please her and it just seems to never be good enough. Thank you for this video because it has answered so many questions about why my mother is acting like she is.
Went through this with my parents and my mother in law. Devastating to all involved. I still vividly remember the first time my parents didn’t recognize me. I fear this happening to me.
Firstly,I am not a medical person, however over many years I have studied it and came up as to why dementia happens, I also noted that is happening to people in there 30s and 40s, the brain is suffering from information over load due to the over use of computers, iPads, etc, we are inundated with information that is no use to us, we have forgotten to think, why think when the computer does it for you, mindless numbing ads on tv compounds the problem, turn off your computer, it is bad for you.
I'm exactly in the same boat, mate! Having watched this video, my mum appears to be in her final stage, and after 5 months, I could hardly recognize her. She also had two strokes which gradually caused to shut her brain down. However, I often wonder if I'll end up like her! Sadly sometimes I recognize some remote traits of hers in me that make me frightened.
very good video,I am a care giver of my actual wife who acording your video is at stage 5. Its been hard for me to take care of her but my love for her allow me to be strong and keep helping her. Thanks
Thank you so much for this! I am a 62 year old woman who worked with seniors in assisted living and memory care for many years. This is a wonderful explanation. Unfortunately, my mother and grandmother both had dementia / Alzheimer's. I know so much about it so I am able to realize what's happening to myself. Listening to your explanation, I would say I'm between stages 3 and 4. I only drive a couple blocks from home, my husband does my meds, and I am very uncomfortable with lots of people around. I'm having a hard time getting my family to really see what's going on with me. I think they want to look at the bright side of things and think I'm okay, but I know I'm not. I know so much about this disease, and worked with so many people for so long, I know what's going on in my head. My recall is really bad, I often times don't remember 30 seconds ago what was going on. I have a referral to a neurologist, so I'm hoping I can get a real diagnosis and my family will realize what's going on. Again, thank you so much for spelling things out so clearly. ❤ Marylou
MaryLou, Iam glad your going to a neurologist. Hopefully your family will get on board soon. It's hard for them to face facts. The more training they get, the better. Share this channel with them and order my book.
I am a 67 years old woman working hard to accomplish my dissertation of my PhD in Psy….. I am learning in English as my second language…. I pray in five language just to exercise my brain …. My hobbies are painting and make jewelry…. I almost forget to mention that I returned to college when I was 48 years old…. Then when I was 54 I was gunshot in my head by a man who I never see him before…. Two months later I was again in colleague but this time I choose to study psychology…. I believe that learning constantly new skills has been a good strategy to keep my mind in good shape…. Oh …. I take a minimum amount of medication. Yes, my brain is programe to keep learning forever!
My partner has been diagnosed with dementia recently when I asked what kind the doctor said "Does it matter"I'm looking for another Doctor.This is so new to me.. I am the complete care giver. I never realized that younger people got this.Thank you for all the info.
My husband diagnosed at 54 with frontal temporal lobe dementia. Get a good doctor! I’m also the complete caregiver and it’s HARD. Having support is key!
So glad I found your channel. Mom was just recently diagnosed with dementia and will be moving in with my husband and I in the next few weeks. It will definitely help to know the stages as she progresses. Her younger sister has early dementia, I'm guessing about stage 3, and their dad passed away with Alzheimers. Just subscribed and will be binging on your content. Thank you for all of the information and all that you do. 🙏🏻
Thank you Miss Deborah I’m so glad that I found your TH-cam channel. My mother is in stage six I believe right now it is very difficult. She’s become combative rude nasty and she likes to fight. That is so hard to deal with. I look forward to your next TH-cam. Thank you.
Thank you Debra, for teaching me and helping me to understand little ways to redirect and to not stress over things. My Dad just passed away on Jan 8th, 2024. Thank you so much for your help. I especially enjoyed attending one of your live classes recently before the holidays. Sincerely, Cyndi
Thank you Debra ,I've just realized that along time friend has been showing short term memory problems .It is believed that she has a dementia related problem .But just by chance I came across your program and I am grateful for the info .It will help me to be better informed and what I should look out for .Thanks again .....
Very well presented. My mother is currently in a very good memory care nursing home in stage 7. Incontinent, wheelchair bound, losing the ability to speak, but I think she still knows me. She's been on hospice care for months now. My greatest challenge right now is what to do when she outlives her assets. She was diagnosed formally about 5 years ago, but was declining for some time prior to that. I'm currently trying to do whatever I can to prevent this disease in myself. I'm 64, working and don't notice any cognitive decline yet. This is more than just an illness. It's an excruciatingly slow death.
If you are in the US medicaid should kick in if she runs out of money. Talk to a social worker where she is living. They should be able to tell you what will happen. Even if ahe dosent know you she will feel your love....I hope you subscribed to our wonderful family.
Thank you for this video. I've read a lot if the comments too, and will be praying for all of you. My Momma was diagnosed with frontal lobe dementia in 2014. I have read everything I could find on it, so I would know how to best help her and what "signs" to look for in the various stages. With the tyoe of dementia she has, she goes in and out of stages, and I never know from day to day, or sometimes from morning to evening where she will be in the stages. This is one of the hardest diseases to go through..for the person who has it and the caregivers who live it with them. It is so hard to lose a little more of her every day, but I feel blessed that God has allowed me to take care of her these last 4 years and I will til He takes her. I will definitely be looking for more of your videos. God's blessings to all.
As my dad used to say, if you live long enough, most people get dementia. I saw this happen to both of of my parents. Sadly they both passed away in 2022 six months apart. My mom declined with this so much after my dad died. It's such a sad thing to see.
I had family in late nineties and one was a hundred. No dementia, so lucky. BUT had a cousin with first signs of dementia in seventies. Her grandmother had it even earlier.
Thank you so much, Ms. Debra. You are my life raft through this. I feel so bad that my husband will have to deal with this. He is my rock but I just hope and pray that I don't take him down with me.
Thank you so very much! Your video helped me understand the disease better. I am 63 and my husband is 82. He was diagnosed with Alzheimer’s disease last year. I think he is in stage 5. It helps to know what is yet to come. 😢
Thank you for the information! I appreciate the advice about expectations. Sometimes they seem fine and you forget, and then the odd behavior catches you off guard. Managing expectations is important. My family member is not diagnosed but seems to be between 3 and 4. The fear of losing control must be really terrifying.
I can not thank you enough, Ms Debra. For the last 2 mos. I have been caring for my 79 yrs old Sister. Her Husband of 37 yrs did the unthinkable that caused their separation. My Brother and I are trying to figure out the whole process. It's not easy. It sounds like she's stage 5-6. Thank you for explaining the stages so well.
Thank you for this video. Informative and so perfectly presented. My mum is currently undergoing tests, but this has given me in real insight into what lies ahead.
Thank you very much for the information. I am currently going through this with my mother and her husband who is currently your primary caregiver to see my mom. She’s not the same person she’s put on a ton of weight she can hardly walk and she’s swears at the television all the time it’s at the point that her grand children don’t want to see her and her great granddaughter is afraid of her.
Bless...I've got so precious informations from you that confirms me the reality !! We all looking for informations when one of the relatives is developing this horrible disease...so glad to find informations that's connecting the reality in different way !! Bless🙏
Heartbreaking disease we knew nothing about, the doctor was unhelpful. My mom went quickly, a stroke (stage 6) for almost 3 months, then the last week was stage 7. She's with our Lord Jesus now 🙏🏾 thank you for this helpful summary of all the stages.
Thank you for your videos. I also live in the Rochester, NY area. My mother has FTD and I have been trying to learn as much as I can. After watching your video on the 7 stages she is between stage 5/6.
My 90 year old aunt is somewhere along the dementia line. I relocated to live with her because she wasn't eating properly and I worried about her wellbeing. She doesn't want to deal with anything. She only goes out once a month to her doctor appt. The rest of the time she stays in bed until I call her to the table to eat. She is constantly taking laxatives, and doubling up on them, then takes Imodium. I try to monitor it all but she takes them when I'm in my room. The other day she couldn't find her reading glasses and we looked everywhere for them. I told her the must be in her bed. Later when I took her a cup of tea I seen the glasses and said "oh good, you found them. where were they?" She looked at me like I'd lost my marbles and said "they're right here, where I always keep them." I will watch this video again, and your other videos, so I can understand the situation better. Thank you.
Dementia or brain cancer not sign's way before diagnosis of brain cancer metastatic lung cancer to the brain??? Operation of the brain after was very aggressive and it his life within 3 MONTHS 😂 it seemed like he was used as a ginny pig JHH IS SUPPOSED TO BE TEACHING & RESEARCH HOSPITAL! NOT SURE IF THAT'S SO😢 MY BELVETH MORE RESEARCH COULD HAVE BEEN DONE.! PERHAPS HE WOULD STILL BE WITH US HEARTS ARE BROKEN 💔 HE SUFFERED GREATLY😢 APPRECIATE ❤ TO VIDEO VERY INFORMATIVE I I NOW GET BETTER INSIGHT WHAT REALLY DEEPLY CONCERNS ME IS HE DID NOT GET PROPER CARE SO VERY REGRETFUL I WAS NOT INFORMED WE MISS HIM TERRIBLY 😢 MORE COULD HAVE BEEN DONE 😂😂😂. THINGS WHERE GOING TO OO FAST HE WASN'T GIVING A FAIR CHANCE VERY HEART BREAKING THANKS AGAIN 🎉❤😮
I lost both parents to Dementia 3 years ago just 3 months apart. Caring for them was HARD and I had to retire because I was diagnosed with fibromyalgia and depression (which started after a car crash and long term recovery). I get terrible brain fog with the fibro and can no longer read books so I worry that I’m following in my parents footsteps 🤯
My wife had 2 bad strokes in her 40s and was diagnosed a few years later So frustrating to deal with on a daily basis. Especially when the meanness comes out I know it's not her fault but those words still hurt.I still see some of the woman I fell in love with 27 years ago. I would trade places with her in a heartbeat if I could .My counselor said I'm pre grieving but it's hard not to. This is a cruel long windy road and hard to travel alone.
Very informative indeed my mom had this in her early 80s she died at 95 years old in 2003. She was in a nursing home she was very smart and independent when she was younger. We all felt bad how she declined in her older years .
Thank you Ms. Debra for your kind approach. It is just what I needed to hear. The doctors and nurses taking care of my mom have not explained the different stages, what to prepare for!
In the throws of long haul COVID-19 I personally experienced what dementia is like. Compromised by a lack of oxygen to the brain from COVID-19, the forgetfulness was especially difficult because it robs one of time, quality of life, so one surrenders to it. Fortunately, I was able to overcome it, I'm back to normal, but what an experience.
@@sibalogh The first three injections were Pfizer, it was determined the second Pfizer caused "vaccine damage" according to the researchers at O.H.S.U. who have been studying my long haul COVID. The fourth injection was the Moderna in May. I passed on the fifth jab in October and was infected with COVID-19 December of '22.. The infection was little more than a head cold.
My mother battled dementia for 18yrs. I think we got it very early as I have autism and I picked up on the little memory and confusion issues. We made a plan that we would read, play computer games, crosswords, arts and craft. Anything and everything to stimulate the brain as long as we could. In 2021 she was still able to go up to bed, drink herself and eat. We had in house carers to help clean, cook and be a companion to her. She ended up catching covid that left her in Hospital for 2 months. She didn’t need ventilation or ICU, she was strong enough to battle it along with sepsis and severe dehydration. She left hospital with long covid. Bed ridden, peg for feeding, oxygen support and had to relearn to walk. I was allowed to fly to her and admitted into the hospital to she her, when I was escorting her for the peg operation she grabbed my hand and said my name. First time in months. We had her at home with 5 care givers working around the clock to support her. She whispered once that she wasn’t ready to go. So I ordered the antibiotics to help her. She gave me clear instructions to allow her to go when dementia got too much. When quality of life is no longer there. She lost her Battle 26th December 2023. Her last wishes was to see her last grand child born and push him in the pram, read to him and take him to school. She managed all that. Dementia is the worst disease around as you don’t lose the person once but every time they forget who you are. When she was in the late stages she had a pinched nerve in her back, the doctors gave her some strong pain medications and I can say in a few days she was able to remember, have full conversations. I have reported this to every research team I can think of as maybe there was something in that or mixture when her dementia medications had a positive impact. I lost my dad to dementia in 2022, he sister the year before. My mother’s sister and brother both have it. I carry the gene from both parents so at a greater risk. Live life today, make memories today.
My hardest decision was the quality of life. She was busy singing, playing with toys, going out two times a day in her wheelchair, watching golden girls and old songs and news clips. To me quality of life compared to before dementia was impacted. But I had to toss up that this is her life and she is engaging.
I took care of my mother for 3-1/2 years before she passed. I used to go home crying every nite after I left her. Bc I could see she was deteriorating and there was nothing we could do to turn it around. It was the hardest thing to watch a loved one deteriorate before your eyes. I fear dementia. Bc I saw what it did to my mother. To me. She didn’t deserve that after all the great things she did for her family our dad 12 children & many grand children & great grand children. It got worse after our dad passed away. They say trauma exacerbates it. I miss her so much. 😢😔 🙏🙏🙏❤❤❤
Hi Debra, thank you that was very helpful. For about a year now I’ve noticed symptoms with my 79 yr. old mom. Right now she’s in a rehab because she fell. But she has a feeding tube and trach and she wasn’t feeding herself like she should and lost a lot of weight. Also overdosing on medication, repeating herself, calling 30-40 times a day. And she kept saying “ I don’t know what I’m suppose to do” or “ I don’t understand what’s going on”. I had to start paying her bills because she was paying them twice and the bank called me because there was overdrafts on the account. So we realized she couldn’t live alone anymore and started to look for a nursing home. You would think that would be easy but it’s not. It’s been a couple of weeks and I’m still looking.
She really needs 24/7 care. I’m not sure what I’m going to do when she comes home because I can’t be there all day long and either can my siblings. And she only has social security and a little in the bank but not enough to pay someone to come everyday.
@Gina Whittaker is she in the US? Tell the social worker that she is not a safe discharge. She can go on medicaid and they should place her. The problem with that is you may not have a choice in the place and it could be a sh*! Hole.....
@@answersaboutalzheimers yes, she’s actually in another state because when she was in the hospital they couldn’t find her a nursing home/ rehab in the area and she couldn’t stay in the hospital because they said there wasn’t anything physically wrong with her and Medicare wouldn’t pay for it. So they found 3 rehabs that were a state away from us, so we sent her there because we felt like we didn’t have a choice and also so she could get stronger and be someplace where there were people to take care of her. Her secondary insurance pays for her to be in rehab up to 100 days. The social worker understands the situation and seems like he thinks she should stay there, which would be fine because their taking good care of her but it’s in another state and we would like her to be closer so we can see her more. I don’t know if we don’t find her a place could the social worker force her to stay there? We don’t have power of attorney. My brother’s suppose to look into it.
Thank you this was really helpful. I know an old lady who is 89. She can remember my name but she can never remember her main carer's name even though they have known each other for almost half a century and they live together, seeing each other daily. She can remember most other names but his. It's so strange! Things started to go downhill after a fall and neck break and after that a UTI and DVTs etc.
Excellent video. Thank you. My exhusband was diagnosed with dementia 1 year ago. I believe it began 2 or 3 years ago. It is heartbreaking. My ex-husband became belligerent, aggressive, violent. It was frightening.
Thank you Ms. Debra, this is a video everyone should watch and be informed about dementia. Your video was very well presented.
Wow! Thank you so much! I hoped you've subscribed!
I've just found you and subscribed to your channel. Thank you for describing the seven stages of dementia. My husband has Lewy body dementia. I'm not sure if it's stage 5. I'm taking one day at a time. We live in Sweden, where the care offered is amazing. But thank you again for your wonderful presentation!
Hi Debra this is my mom been having
All stages and Decline .
Before she died of July 10 2009
Thank you Debra
Same
I was diagnosed with dementia 4 years ago, and I am still doing great.
Happy new! Congratulations!
❤
That's so awesome! I'm happy to hear you're doing great & wish you continued wellbeing always 🙏🥰
What are you doing to keep doing great? God bless you
Well done..keep pushing...
I'm going through this with my mom right now. She's in stage 6 and refuses to leave her home. This is the hardest thing to go through and watch her decline. PRAYERS! PLEASE🙏
My prayers are with you. The reason she won't leave the house is most likely fear. Poor thing
@@answersaboutalzheimers u
Ty 1
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My 51-year-old daughter has been diagnosed with dementia. I thank you very much for this video. I think she may be in stage 3-4. She still works, but all she does is wash dishes and clean some. She has been there for 10 years, so I guess that is why she can still do it. It’s basically repetitious. Too, the people there help her when she needs it. When she gets agitated, they just tell her to take a break. I really appreciate them. She can’t drive anymore, because she gets lost and she gets highly agitated in traffic. She lives with my oldest daughter, so she takes her to work. She can remember things that happened many years ago when her children were little but can’t remember what you told her 5 minutes ago. It breaks my heart to see her like that. She is my baby. 😢😢. She lives with my oldest daughter and is well-cared for. I live about 5 hours away. I wish I could be closer, but my oldest daughter says God has me in the right place; at my own home. Sorry for the long post. Maybe I just needed to “talk” to someone not family. Thank you again, and I will continue to watch your videos.
My heart goes out to you, I can't imagine what it's like for you. You certainly are very brave holding up as well as you seem to be doing you didn't need to apologize for taking up so much time. I am glad you have a place to vent, sometimes it's hardest to talk to the ones with whom we are closest. Stay strong🎉❤❤
I am sorry for your pain.
It must be difficult for you. Like you mentioned, she is blessed to have her big sister there for her. She is with family who love her when you live so far. God bless you and your girls.
Cannot imagine what it must feel to watch a child of yours suffer with dementia. My heart goes out to you. My prayers and big hugs. 🫂And of course strength and hug to the angel of your other daughter, the amazing caregiver. You are so lucky in her. God bless you all. Thanks for sharing - so I know what I have to be thankful for in the midst of my own grief. 🙏
YES!! My Heart Goes Out Deeply To Your Daughter!! I Hope The LORD Bless 🙏 Her In Many Ways!! Then One. And I Say Bless 🙏 You As Well.. For Taking Your Time To Tell Her Story 🕊️.
@@donalddavis6689 thank you so much! ❤️
My mother’s brother, who was an inventor & had enormous amounts of info on every topic, had bits of forgetfulness & a few dents on his car before we realized he was in trouble. He lived alone & only visited family occasionally. Then he showed up with a battered face & couldn’t really explain who did it or when. His brothers began checking in him. Within 6 months, he couldn’t drive, carry on a conversation or realize where he was & was in a care facility. The last time I visited him, he was at a table being fed. He was in a zombie like state & had to be told to open his mouth, then to chew, & then ti swallow. He did not know me & wasn’t really there. I left with tears running down my face.It is a horrible end to anyone’s life. God bless those who have it, those who witness it, & the caregivers. Heartbreaking for all.🙏🏼
Carol, my heart breaks for you. I too have a horrible story that will be out in a video soon. I will pour my heart out for all of you...
❤
This scares me too. I am age 66 Husband age 70
From everybody I know , who has this awful disease, it truly appears to be the most intelligent human beings who end up suffering with it. More research should be done studying whether overtaxing your brain is one of the factors
Scary. I’m 68, forgetful of words and things. My husband is 76, forgets things and dates.
I cared for my mother with dementia for three years. She died only a few days ago in her own house and bed as I promised her. The experience is something I shall never forget although in the end she died peacefully. Her own doctor never visited her in all that time and she passed away at the age of 97. She always managed to walk up the stairs with me behind her but seven days before she died she suddenly stopped walking while going upstairs and I had to carry her up. She spent the remainder of her life being cared for in bed.
I'm so sorry...
sorry for your loss
God bless her and God bless you for having her with you all that time. I lost my mother to cancer in 2020. She was 83. Loss of a mother is like losing a part of your soul.
So sorry for your loss.
Exact same journey as my mom but she was only 83. But I'm so happy she still knew she was a mom. ❤
I think my wife of 47 years is in stage 6 now. She can’t carry on a normal conversation anymore but she still eats pretty good and dresses herself but not well. She was so smart and could do most anything she put her mind to. She did bank mergers when she worked for BB&T, traveled by car all along the east coast by herself before we had GPS and was so quick thinking and organized. Breaks my heart but she still remembers Jesus and church and still wants to go. I know the Lord is taking care of her and helping me along the way.
Thank you for shearing.
Bless her precious heart. My mom remembered Jesus too and she knew all of her 6 children. She passed at 93.
I'm so sorry. The Lord will help you both through this. It is so sad and yet so hopeful that she remembers him and will be with him one day. God bless you both.
This is so sad. Does she recognise the problem?
@@EN-ne3hu No, she did before it got bad but has no idea now. I don’t know how nurses and caregivers deal with patients every day. It has given me a better appreciation for them. They are special people.
My dad had dementia or altzheimers so bad he couldn't even talk in the end. He was a generator and alternator rebuilder. Had his hands in solvents all the time. It makes me want cry when i think about it. I could never had a better father
Hi Diane, how's your day going with you?
My husband has been diagnosed with this… I’ve been in Denial… he’s in 4/5. Just got diagnosed about 6 months ago, they found it in his cerebral spinal fluid… I had no clue what those shuttle signs were but after a surgery last year it came in with a vengeance, and our daughter is worrying us both, I am a retired nurse so I think as far as physical I will be ok, but I am soooo depressed. And watching this video answered so much. He’s refusing the meds, he’s went
From a 38-30 to a 30-30 in a little over a year is when the decline started, my 220 strapping strong man is now 160lbs, and I feed him often…he is very strong willed, but this video put it all into perspective.. my hearts broken in a 1000 pieces…we need to pray for each other.🥺🙏♥️
You know Im doing a free bathing master class on tuesday! Just send me your e mail. It's at 1:00 eastern on zoom
Feel for you as I am in the same situation 😢❤
Hi Sandra, how's your day going with you?
My mother has dementia, and my sister has altzheimers and yes it’s heartbreaking to witness.😭 I find myself crying most of the time when I’m with them. 🌸
Prayers
@@stevechandler8487 I have prayed and God is so good. Seems when faced with a new challenge I worry but things have always worked out. Sometimes I work a little harder, prayers without work is a complete waste of time. God is great 🌸
y
T
😢r5
Cold delivery 😢
How do think your Mother & Sister feel about their condition, please think about them rather than how it makes you feel
My god, what a nightmare. I'm so sorry for anyone dealing with this.
it is a nightmare to be honest. I cant think too far into the future, or I couldnt cope with my husband and all the possibilities. Some days it is overwhelming, I just wan t to sit and cry. But i have a hobby and still get out and about with good friends.
@@gillyb44 We need a breakthrough!
Thank you for not sugar coating, and using words like, terrifying and awful.
Thank you. my sister is in stage 2 , she is in denial saying the doctors are wrong, she does not think she has it. she is on medication to slow the dementia down a bit. you are so great at explaining everything.
Hi Joanne, how's your day going with you?
Thank you so much. My mother had dementia. I learned to listen to the old stories of her childhood that she could recall. Those beautiful stories are the memories I carry about the last years of her life.
Hi Ronelle, how's your day going with you?
Omg! My husband is in the early stages of dementia, and I am so grateful to have found your TH-cam channel! I am profoundly grateful. This certainly helps me understand what is going to happen on our journey together. Thank you thank you thank you.
Anytime my fried. If you ever need, I do dementia coaching...I hope you're a subscriber.
Hi Francesca, how's your day going with you?
⅕²@@answersaboutalzheimers
My Husband is at the early stage can you please let me know more about it thanks 😢
Stages are fluid: GDF
Stage 1-3. Still Independent Living
Stage 1: No cognitive decline
Stage 2: very mild cognitive decline-AMI-slight memory loss-more of an annoyance
Stage 3: Mild Cognitive Decline - a deficiency; forget what they read; denial
Stage 4-7
Stage 4: Early Dementia; Moderate Decline-Difficulty planning events; vacation; navigating an airport; balancing a checkbook; structuring finances. May withdraw from social engagements that demand more bandwidth.
Impaired awareness of current events. Time and place difficulty. Personality may become more toned down or flat.
Stage 5: person will need some assistance to survive. Will not know things like medical history, grandchildren names, day of the week, the month , year or season. Usually will recognize their own name, and mostly know their children and spouses names. Still independent in toileting and feeding themselves but may need assistance in choosing appropriate attire for the situation.
Stage 6: Moderately Severe Cognitive Decline: occasionally may not remember spouses name; will be able to differentiate a familiar person from a stranger even if they can’t remember their name. May have toileting issues and need assistance. May have personality changes and may have trouble regulating their emotions. They may start having hallucinations and become suspicious of others. May have repetitive behaviors…may get violent. Loss of will-power because of inability to hold thoughts long enough for action.
Stage 7: Severe Dementia: Very Severe Cognitive Decline: communication will cease, will not express desires but will understand kind gestures. Can sometimes tap or hum to music. 100 percent dependent. Cannot walk or feed themselves. Heart will finally stop working. Be kind to yourself…this is not easy. Support available on this channel.
Mom is close to stage 7...
What is the timeframe for each stage? I know it is an individual thing, but on average? In my experience seems like 6, 7 go by rather quickly. I am in stage 3. Just curious how much good time I have left.
This is very helpful. I believe I am in stage 2. My mother died at 93 and I watched her progress through these stages. Her generation was not really aware of this as a diagnosis although they had relatives who "went senile". My children note that I have a tendency to leave things when I visit them (hats, coats etc). I first suspected the diagnosis 20 years ago when trying to cope when visiting a strange city in a strange country in a different time zone. Over the past 2-3 years my memory for current day and date, for names and words has markedly deteriorated (noticeable to me only). I have very poor sense of smell. There are other memory symptoms I could list.
I still function at a high level and I don't think friends would have noticed anything. I do a lot of physical exercise, both aerobic and resistance training as I believe the evidence suggests that this slows down progression. I am also on a low sugar diet. I successfully run my own fairly complex investment portfolios though wonder how long I can do this. I live alone so no wife to notice things.
I have recently given up some teaching work in retirement that I no longer have the previous great enthusiasm for.
I am 78 this year and think I probably have another 2 good years, maybe more. I am a retired medical practitioner so have some medical insight.
It is important to try and keep these things hidden as long as possible, because the label or even suspicion of early dementia affects all social relationships. Yet certain things have to be done to tidy one's life and prepare for the worst while still competent.
I have had a good life and have made preparations for what I will do when I reach a certain stage. Read into that what you will.
Future society will have to face the option of predetermined voluntary assisted dying for those with severe dementia. Let's face it - who would want to continue living in that dreadful demeaning and mindless condition?
My mother, who had was stage 6 at the end of her life, often said: Old age is not for the faint of heart.
That's the truth!!!!
That's 200% Truth
My FIL says getting old isn't for wimps.
I say old age is not for the ELDERLY
😢
The best video Ive seen so far on this topic..will watch it again..my 93 year old neighbor is losing her memory..I noticed this in January..now in March..her personality is irritable and is sometimes aggressive..shes in denial.😢
Very clear explanations‼️ THANK YOU‼️
Have two sisters with early stages of dementia, not easy to handle, they are stubborn and in denial, so, patience is the name of the game.
Yes patients! You got it!
Mymom,had It,notmy,dad,but allhis,brother s,had It,my,momssister,both,had it,
Mydadssistersboth,had,it
Very good
Thank you Debra, that was insightful. My mum had a memory test which just as you explained she couldn’t answer correctly, she is now going to see a doctor. It’s heartbreaking, my once vivacious and proud Mum is a shadow of herself.
Thank you for this very informative video. I’m dealing with my mom right now. I think she’s at stage 5 or 6. God give me strength.
Our hearts is broken. Our son in law was diagnosed with Picks desease at 33. Extremely intelligent.. with all his symptoms ..we realize he is in stage 7.. he start to forget his 16 year old daughter name and age....he has a 10 year old son.. he is now 39.
I’m so sorry for you and your family your son in law is in GOD HANDS PLEASE TAKE THE TIME TO SUPPORT YOUR Daughter she must be so scared.and help your grandchildren knew you care help them to understand their father love the always and is very sick.maybe GOD BLESS YOU IN A MIGHTYWAY
m@@Maggie19701
This is the most comprehensive explanation I have seen to date, thank you. I am in Australia. My husband of 55 years began showing signs around 12 months ago, he is 79 and he is fully aware and understands what is happening. It is so sad to see him needing explanations of many things which he used to explain to me over the years. His concentration level has diminished, he watches a lot of TH-cam, as do I, for information on his vegetable gardening and he downloads and watches series and movies. He cannot read anymore and retention is not as good. Our GP has noted our concerns and he passed the cognitive test with flying colours. This is very frustrating for both of us but I do keep calm and reassure him that it is ok to ask me a million times what we are doing today or tomorrow, even though he has his own diary he forgets to look at it and if he does can't remember. Some days he seems pretty well his old self but overall he has changed and is quite insecure without me present and has withdrawn from everything other than his lap swimming 3 mornings a week and two friends. I do most of the driving as he feels insecure particularly on busy motorways so he stays close to home, say 10 mins away. We don't have children and our closest relatives, who care, are 2 hrs away by air or overseas. I was a carer for my mother until 4 yrs ago so am aware of the impact on my life. He is very keen to see me do things with others but if I go out to shops etc he has to accompany me except on rare occasions when he is very tired.
I'm so glad you like the information! Thanks for taking the time to comment. I hope you've subscribed.
You've got a long, hard road ahead.
Try to find some iCal support, including home care. Even a few hours a week to give you a break....
Yes I know exactly what your talking about. My mom is also 79 and sounds a lot like your husband. Right now she’s in a rehab because she fell. I had to have a conference call with my mom, social worker, nurse and therapist. Well I made a comment about being concerned about when my mom goes home because when she was home she was very confused. She was taking too much medicine and she wasn’t eating a lot. So the nurse said “ I know where your going with this but we haven’t seen any signs of this” I’m thinking well than you haven’t been around her too much because it was very apparent to my family and I. So it’s very frustrating like you said because sometimes they seem fine. I guess because she’s there and everyone’s doing everything for her, it’s hard to tell. I also noticed she’s very quiet. My mom was always talking. If I went to see her, she would be talking the whole time. And she never calls me anymore. I have to call her and she usually doesn’t pick up and when she does, she acts like she doesn’t know what to do.
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Have her checked so that you have an actual diagnoses and ask for an MRI - if she had not had one, and has insurance, might as well, she is paying them enough. As for my opinion, I'm working on a book of healing foods. A lot of our food is poisoned, this is no joke - processed stuff, carcinogens and worst things for your brain - metals. So you need to know what to eat to keep your health. If my mom was in your mom's situation I would first have her ditch: meat, dairy, sugar and alcohol completely. Then I would detox - this will greatly improve her thinking. Best juices to detox with - follow fullyraw Kristina. She has awesome stuff. Then after detox adopt a healthy lifestyle - I still eat meats, dairy, sweets - but they are all healthy versions of them. The only two oils you should ever heat are organic unrefined coconut oil and flaxseed oil. All others turn to trans fat under high heat and keep in mind - HEALTHY fats are brain food, so you want stuff like avocado, nuts, coconut mana. The best thing to drink when you are mentally impaired is coconut water straight from the fruit. Definitely not processed sugary drinks, coffee or dairy and definitely not alcohol. Green tea is great if you can find it pure. Your mom should be also doing stuff like puzzles or games that make her think, Sudoku, memory games etc. Also, movement that moves your eyes side to side like playing the piano, watching tennis = according to TCM this helps. Check out my healing foods at www.veganalienfood.com
My partner is MCI, I’m thinking stages 3 and sometimes 4. He see’s his Neuro doc every 6 months for progression. I will not let him drive even though he probably could. I do a lot of reading on things I can do for him. He’s on B12, Vitamin D, and Fish Oil. He has always been an avid book reader and he stopped reading. Two months after starting the fish oil he started reading books again. I’m not saying fish oil is some sort of miracle supplement but I’m always trying what we can do to make his life better. To see him reading again and going back to something he loved was so good for me to see. I’ll never be prepared for the advance stages but as long as I’m alive I’ll be his caregiver and advocate. Prayers for all who are diagnosed with this disease. It’s very cruel.
I was diagnosed in 01 with M/S it crushes ME every time I think of my pain I have put on my wife after 42 years ! She Doesn't Deserve MY hurt, I Thank GOD everyday I have her ! 😥🙏
In sickness and in health!
My sweet neighbor of many years is getting 'strange' really quickly. Two years ago she seemed really fine, she was book keeper for two family companies .Now her ex husband has moved in and the family are trying to cope. My neighbor has taken to watching for my delivered groceries and Amazon parcels. She 'collects' my parcels and takes them for safekeeping. It wasn't until her husband found my deliveries that I realised I have to check the tracking sites all the time if I expect a delivery. This is the same friend who looked after my cats when I had to be away, shared home made soups and sent little treats. Unfortunately she has become agressive and has hurt people close to her. This is dreadful and very tragic. Your site is useful, thank you.
❤
Thanks so much for this. My father, 90, is clearly on Stage 6. He is now in a hospice since just a month ago, and the caretakers already have noticed a definite and constant decline. So sad.
Thank you for this i went through it with my Dad who died in 2008. My Mom stayed in denial and demanded that he be “ normal” like driving her around. He had bad behaviors that got him into legal trouble. She felt it was not her problem. My two boys that had been very close with their grands stayed on me until I realized I had to be the informed one, sometimes the bad guy. My only sibling, a brother, refused to see any problem at all, except with me.
I got as educated as I could. I read about stages several times but was unable to match him with them. Your explanation of fluidity hit home with me. Thank you.
Going through all this was the hardest thing I ever did. How hard is it to notify the DMV that your Father should not drive? My Mom was very angry and thought a doctor had done it.
I have to find more of your videos. Thank you again.
You know what I think? You never grow up completely until you have gone through old age with your parents.
Very weel said!
Hi Linda, how's your day going with you?
Just found you on You Tube yesterday and I have learned more in two days than in the past two years. Thank you so much. My wife has Alz. and I'm her hubby. She has no short term memory at all and you have showed me how to respond to her. May God bless you.
Just found this very excellent video,Debra. Thank you. My spouse has long been diagnosed (10 years) & as a retired health care person, I recognized it early on. Knowledge is understanding & can be the good foundation for better partner care. All the best. 🌈
My husband is 89, I’m 84 coming up in a month. We both have considerable trouble remembering certain things. I find that I’ll have a word missing that perfectly fits the bill. His is more - can’t remember, when I mention something that happened months, or years, ago. Only today we were talking about vehicles we’ve owned. He could tell me that his first brand new car cost him $888.00 I can still remember what we bought, where we bought it, and what it replaced. He tends to cease to be interested in the discussion when his memory starts to fail him, yet he is still able to paint the lower portions of each of the four walls of the house (outside) and would be prepared to go higher via a ladder, but I forbid it, using the excuse that I NEED him to be around to help. I know if I go out, he’ll probably climb that ladder to start going higher.
Basically I think he is only at stage 2, so he hopefully has years yet. He’s been very slowly deteriorating over the last five to ten years.
As for me, I have the occasional loss of memory of a specific word, but still do all the telephoning, and bill paying.
I hope we can both die in our sleep, as my parents did. He’s the only one left of six siblings, having outlived the eldest of the others by almost ten years. The rest of them died one by one, leaving him on his own. I attribute it to the good food I prepare for us both, and we don’t smoke or drink, although he did both at one time.
Sorry for the mini biography
Annie,
Thank you for sharing!
Get rid of the ladder.....that way you don't have to worry.
You and your husband are doing well I sometimes can't remember a word but I don't out that down to dementia. My mother had dementia and died as a rest of it. She always had the best of food she out lived all her sibling but I think you are unfair to your husband's sibling's and their parteners to think your good food is the reason outlived them. There will be one in every family is the last to be alive. I wish you and husband the best of luck in life 🌹
@@user-cy4vw1qj9m but they were all heavy drinkers, and that why I say they were author of their own misfortune, although the last brother to die refused an operation that would have given him more years. After his wife died he gave up the will/desire to live without her
@@anniewright6358I hope you have a relationship with Jesus for He loves you and your husband and cares more than words can say!!! I will pray for you both!!! God bless you!!! ✝️🙏🏻🙏🏻🙏🏻💜
Very interesting. Cranberry sauce is good for memory.
Thank you so much. I never thought I would be spending my Thursday evening researching dementia, regarding my Aunt Lila. She has always been the strong one and pillar of our family, and has been a mother to me when my mom passed away many years ago. I believe that she is being abused and neglected but there doesn’t seem to be much that I can do. I am only her niece. God bless those who suffer from this awful disease making them vulnerable to the world. And God bless the caregivers who sacrifice to care for the ill.
Been through all of this with my Grandma, an aunt and my mom!!!
I took care of my mom until the very end. I kept her at my home with me until her last breath. ❤ it’s been 4 years on 6/3 since she’s been gone and I still miss her every second of every day. Thank you
My step mom, and my dad’s love of his life, has both Lewy Body Dementia and Parkinsons Dementia. She is well into stage 6, with some regression periodically into stages 4 and 5. It has been heartbreaking for all of us, and her rapid decline into stage 6 has been overwhelming and confusing and frustrating and scary for my dad. He refuses to put her into a home but I see the toll it is taking on him, and I know that I’m going to lose him quicker because of it. It’s all just so dang awful. No one deserves to lose their mind like this, and no one deserves to see their loved ones take that journey. And there’s not a damn thing we can do other than wish that we had death with dignity options in our country (if you don’t have them, like the US). She is so unhappy, so confused, she had to go into hospital last week and she was violent and had to be strapped to a chair! She’s never had a violent bone in her body, she has always been so reasonable and so informed and so incredibly intelligent. Now she does not know who my dad is most days, and mixes him up with her first husband from over 40 years ago. She will sometimes ask someone who someone is, not recognizing her own daughter or brother or grandchild. She has to be catheterized constantly, has constant UTIs from not drinking enough water, is constantly dehydrated, which just makes the confusion even worse. She then also sometimes loses control and makes a mess all over herself, the floor, the bed, etc. she gets food all over everything when she tries to eat. She can no longer type/can’t make her fingers do what she wants to do and can’t recognize that emails or typing is illegible to anyone else. She falls frequently, is very unsteady on her feet, cannot make her legs do what she wants them to do many times, and has a very slow, very shuffling walk. She still sometimes talks about current events, though that is definitely less frequent now. She often will be speaking but then completely forget about what she was talking about. She thinks my dad is having affairs with people (he would never), or that the hospital is out to get her, or whatever. She hallucinates constantly, always seeing people in their house. She thinks they’re using her toothbrush, sleeping in her bed, wearing her clothes, etc. she sees creatures in piles of clothes or a pillow or a blanket. She does not think she’s in her home but rather a home that looks just like her home but isn’t her home. She’s calling 911 and reporting that my dad is dead or she’s scared or there are intruders. She walks over to the neighbors house in the middle of the night to tell them the same kind of stuff. She does not see or recognize messes. She cries a lot, is so scared and confused.
I share all this in case anyone else is going through something similar. You are not alone, but it is hard. It’s the hardest thing I’ve ever gone through, losing this vibrant woman that we love, and seeing its impact on my dad. Every day i wish i could fix it, i wish I could help, I wish that i could somehow make it better, or just make it end (terrible, I know, but true.)
thank you for sharing
Q WA
😢😢😢
Ahh! sorry to hear this and I know how hard this is, the disease is so cruel. My Mum is showing many of the symptoms you have raised above and it is somehow comforting to know that we are not alone, but sometimes it feels like this as others dont see this and when trying to get help it is also hard as the health professionals talk to mum and what she says to them are sometimes automated replies like are you okay with paying bills and she just says yes, when my brother has been sorting this for a long time now and she has no financial knowledge anymore., your last sentence is what my brother and I have been thinking too, although this seems terrible to think that. Thank you for your honest and frank account of what you are going through and I wish you all the love and strength in coping with this.
@@christinewilliams5852 thank you so much, I wish you strength and love also!!
I take care of my Mother-in-law. She has always been a mean and hateful person and dementia has amplified it. When i read articles on dementia they always refer to " a loved one". That is not the my situation. I take excellent care of her at the risk of my mental health. She has ni friends and only my husband as family. She has never concidered me family. She is 85 and i have realized i will never put my family through this hell. My husband deals as best he can. Being a caretaker is this hardest job. I can't imagine doing this for "a loved one".
Sending love, pray for you and please pray for us too battling with it
You’re super kind. Best of luck in this hideous journey.
I can relate, I always thought my husband was just a grump. I stayed with him because I didn't want to raise our daughter without a father. He never laid a hand on us, and the fact that he worked nights and I worked days, we weren't around each other much. Oh! We had our good times, but the longer time went on we were not friends.
After over 30 yrs of marriage I found out that the accident he had been in when he was 25 was severe head trauma. His sisters did not tell me that his personality had changed completely after the accident. We did have some fun times, but I stayed too long. I believe based on this article he's anywhere between stage 4&7.
I'm sorry for what you are going through. For me it's been at least 20yrs of unhappiness. I can't blame him, I made the choice to stay hoping things would change. I did not know about dementia until about five yrs ago, then it was too late to leave him.
i have to do this soon enough my mother-in-law we do not talk at the minute just phones for her darling son every 5 minutes just blacks me out to all the family I see it at work every day be hard for sure what it is coming scary times she took my kids away favored her throughout no family time for there own mother not right that isn't.
I can relate.
My husband has just been diagnosed. After watching your video, I am thinking he is in stage 4. Both his parents had this awful disease, so I kind of know what to expect. Taking one day at a time. Thanks for the great video and am looking forward to seeing more.
Thanks for sharing your story.
I hope you have subscribed.....see you soon!
@@answersaboutalzheimers😅
How old is he …. My hubbys mom died from it .. and im terrified my hubby is going to get this
@@FERRARICWH69my pawpaw has dementia
I'm in denial about having Dementia. I can't stop listening to lectures on TH-cam about it and shaking my head saying "no, not me" I need to be tested. I'm Bipolar and things are getting weird for me. The things happening in stages 1-4 are happening and I'm not happening.
Going to the Dr will not change your outcome, but it will help you in other ways. Now is the time to prepare and plan while you still can. PLEASE go to the dr....
I really appreciated this video and the manner in which was presented. My wife has been diagnosed with MCI. I want to relate for the benefit of others how "we" got to where my wife is at. The first thing I noticed was her inability to keep events in sequential order. Then it progressed to mixing two or more unrelated events together. Along with the aforementioned she began having to ask the same question over and over. When she had a medical appointment it became necessary for me to be present in the exam room to get the instructions from the practitioner. It became necessary that I finally brought the memory issues up to a practitioner. She was given the Montreal Cognitive Exam and scored 24 of 30. She was referred to a neurologist who, with a NeuroPsychologist, made the MCI diagnosis. She was displeased with me, but I think she was more frustrated with having to accept the memory problem. Right now she probably bounces between stage 3 and 4. My wife was always an excellent student and honors graduate from college. It really difficult to be the one who forces the need to get a diagnosis when it is someone you love. She was upset, but now accepts her reality.
You might consider taking the Certified Master Dementia Strategist course.
@logotimeclark I was diagnosed with MCI over 5 years ago. I was never told it was stage 3, I just thought it was a sort of "catch all" like some docs use "fibromyalgia". I was a HS valedictorian and had high honors from both college degrees. I sometimes wonder if we just used up our good brain? I will be evaluated at an actural Memory treatment center next month. It's a scary journey for sure.
One thing I noticed thru out my nursing career with people with dementia- they never forget who God is
People with dementia remember lots of imaginary things.
"Throughout"
@@cdow9032 What a pity that god can't cure them...
This makes me think of my sweet Granny, even all the way at the end when she didn't even remember me anymore. When I put her to bed she never forgot to pray.😢
@@JohnKoenig-db8lk that is how i feel and i work in a church based home why can a god do that
I am a carer for my lovely, sadly late husband who had Lewy body dementia. That is the worst of all these horrible dementia diseases. As far as God goes, he for me just doesn't exist. No way would someone who is said to love all let so many lovely people have such a frightening sad end to life. I'd never rely on God for anything.
I lost my mother to dementia just days ago. This video describes the last years of her life very accurately. Well done.
I'm so sorry
Just lost my uncle July 3rd and I’m beating myself up about it .
I believe I may be in stage three now. It is pretty frightening to know that you are on that downhill path, not knowing how long it will be before your world just fades away. I am not going to be a burden to others at the end of my days. That is a promise I made to myself long ago.
I am in a similar position with MCI. Mine is probably vascular oriented but it's all the same in the end.
This has been the best explanation of dementia I have ever watched. Thank you. (Ingrid Acosta)
Thanks! I hope you subscribed to our family. We would love to have you.
My mother is going thru this right now. She has turned combative, very rude and nasty. Very hard to deal with.
My mom was mean and lied most of her life and it’s was hard to understand if she was just being herself or it was the dementia. I tried until I couldn’t anymore she had state4 tumorous breast cancer it was the hardest to go through. I did it until I couldn’t because she started to poison us and my animals it’s when I couldn’t anymore i broke down and placed her in a really good nursing home with the help of hospice . God bless you and get lots of support.
Same here….combative with everything, meds, fluids, bathing, bedtime, refusing to be without my wife (her daughter) and it’s been a six year decline. But she eats like a champ and it’s the only thing that keeps her from being agitated. He constant demands are crushing my wife. And, at almost 97, she’s dropping F-Bombs like a Sailor!
Yea my mom too and if she got made at me she would try to poison me it was scary. The focus should be on trumps mental decline he differently has dementia and every he says and does must come from that awareness then it’ll make sense coming from that disease and what it does he’s mind is declining and when under pressure it gets worse he’s mental decline he’s very dangerous and I pray they don’t give him briefing soon knowing full well he’s selling our secrets to foreigner’s that’s very damaging. As president I knew he had the beginning of dementia and yrs later we’ll look at him he goes insane at times but the main stream media doesn’t really shine a light on this because he makes them money how evil that’s is because they rather let him destroy the country they live in for greed they helped make this monster they better wake the hell up. Now I believe he’s going to have a stroke sometime soon I doubt he’ll be alive in November and I’m praying on that but I doubt he’ll become president again but it’s what’s he’s doing right now that’s is hurting millions of innocent Americans that are tired of seeing a old man that wears diapers and does speed you can only tell have us watch a man watch him have deteriorating brain damage get worse when it’s not our business he needs to get ready to be put in jail or start thinking about his long term care and not smashing him in our faces . Please with your mom be very careful and if you just can’t care for her then get the help I cared for my mom myself and she hates me and she had stage 4 breast cancer a tumor that grew to a size of a basketball I’m not joking I couldn’t do both even with hospice care i finally had a mental breakdown and I had no choice but to place her in a 24 assistant living which she went to a very good one thank god. I sending lots of love and light it’s very challenging no matter what. God bless you always.
I’m a caregiver to a 101 year old lady with dementia. I’m at the end of my rope because the only time I get off is when a family member visits. I have health issues that I put on the back burner but the family has made me feel bad when I had time off for melanoma and lymph node removal. Please pray I make it through this because I’m drowning.
@@yvonnepeyton4291 take care of yourself first. My mom was 79yrs old and the pressure was so high I snapped and had a nervous breakdown I had to put my mom in a nursing home and the guilt was overwhelming but I had no choice but to let go I also had health problems and I was getting worse don’t let the family guilt trip you it’s their responsibility to take care of there own by caring for her or placing her sometimes you just have to walk and say good byes to her inside of you and just call the family and tell them to come and care for her and hang up. Families shouldn’t guilt trip you but be understanding. God knows in your heart and soul you did your best for however length of time you cared for her. Trust me the family will have no choice but to step in. God bless you and your situation and god bless her in getting proper help after you.
My husband is now 84, I believe he is now between stages 4-5 He was diagnosed with PCA 18 months ago. Its so sad to see a once vibrant man slide into decline. We have been married for 62 years. Thank you for this video which has helped me a lot. We take one day at a time.
Hi Gill, how's your day going with you?
@@paulohlsson27 still plodding on. He had major surgery recently which has set him back. Memory worse. Anaesthetics do not agree with him. At least he is home . Hopefully he won’t deteriorate any more.
@@gillyb44 Good morning Gill, how was your night?
I am 62 years old. I used to have a very good memory. I recently went to my GP and my worries were dismissed after no investigation. The most notable problem is that I can watch a movie and a month later have no recollection of ever having heard of the movie. I do not recall the title, the plot or any of the actors. On one level this it great - I m getting more value from my amazon prime subscription. Normal forgetfulness is getting worse.
I believe this is a result of regularly being hit around the head as a child. Has anyone else similar symptoms?
I'm almost 80 but I have the same thing. I never had a good memory, long or short all my life. I just laugh about it because what else can I do? In the end, it's God's call, not mine.
Same thing here, but I usually am reading books. I guess I have as many books as I need - NOT! 😅
This video was very helpful. Unfortunately, one of my brothers-in-law appears to be stage 6, the other is about 4. Also, my younger sister died last November from what we think was stroke-caused dementia. I do have to say, dementia is very stressful on the patient, caregivers and family. My sister would call me often (until stage 7) and when I answered, I did not know who it would be on the other end of the line. Sometimes she was clear-headed and we could converse and reminisce, other times she was delusional and thought her caretaker was trying to kill her or there were strangers living in the upstairs rooms. But in her clear hours, she was upset that she knew she wouldn't remember our talk the next day. As she was in Mexico and I am in Washington, it was a very helpless feeling for me to know how terrible it was for her and I couldn't help. It broke my heart when she died but at the same time, I knew it was for the best and she is free of that body that let her down. Thanks for making this video and helping me understand what happened to her and what is happening to my other family members.
Thank you!! My mom is stage 6. I enjoy your videos and your kind voice. Being a caregiver is the hardest job but worth it too.
My poor uncle is 81 he's at the end of stage 7 It's so hard to understand seeing this in a strong man at one time not long ago.
God bless you uncle Franz, and Aunt Dolly for being so strong .
Update
My uncle Franz passed away on June 4th 2024you will be missed Rest In Peace.
my beautiful friend has this I believe she's at her end stage she's wanting to sleep alot do you think that's the end stage
My mother had to give up driving around 82 years of age. She started repeating herself by 83 . She also began experiencing hallucinations by 84(2016) . The end came in 2020
She is at peace now. And at 84, she had a long life. God be with you.
I am so thankful I found your channel. I am dealing with this with my mother. We have not been able to get her officially diagnosed because the doctors just won't take the time to listen to me or my aunt. They acted as if we were not in the room. This really became noticeable to my dad and I about 20 years ago. My mother would forget her way home after finishing her errands in town. She called me often and asked me to help her get home. And once she asked my niece, who was 3 at the time, to "show me the way to granny's house". She played it off as a game so it wouldn't frighten my niece. My husband and I now live with my parents, and I take care of them. Thankfully my dad is still very independent and helps me when he can. But I see it taking it's toll on him to watch his wife of 56 years slowly slipping away. After watching this video, I can say that my mother is back and forth between 4, 5, and 6. Her personality is a huge change we all have noticed. She used to be the sweetest and hardest working woman I have ever known. Never cussed or talked bad about anyone. Now she can be downright mean and rude to (mainly) me, daddy, and her twin sister. She will talk about how someone is dressed or how they look physically. Just mean!! If she doesn't get her way, she will through fits like a child and pout until we have given in. I have tried to please her and it just seems to never be good enough. Thank you for this video because it has answered so many questions about why my mother is acting like she is.
Went through this with my parents and my mother in law. Devastating to all involved. I still vividly remember the first time my parents didn’t recognize me. I fear this happening to me.
It's very scary, because there is no controll. This also my biggest fear!
Firstly,I am not a medical person, however over many years I have studied it and came up as to why dementia happens, I also noted that is happening to people in there 30s and 40s, the brain is suffering from information over load due to the over use of computers, iPads, etc, we are inundated with information that is no use to us, we have forgotten to think, why think when the computer does it for you, mindless numbing ads on tv compounds the problem, turn off your computer, it is bad for you.
I'm exactly in the same boat, mate! Having watched this video, my mum appears to be in her final stage, and after 5 months, I could hardly recognize her. She also had two strokes which gradually caused to shut her brain down. However, I often wonder if I'll end up like her! Sadly sometimes I recognize some remote traits of hers in me that make me frightened.
Sometimes my wife thinks I’m her dad or my dad. 12:13
Fearing is of no use.What use is fearing death?Make sure you are at peace with all those closest to you so that help can feature when necessary!
very good video,I am a care giver of my actual wife who acording your video is at stage 5. Its been hard for me to take care of her but my love for her allow me to be strong and keep helping her. Thanks
Thank you so much for this! I am a 62 year old woman who worked with seniors in assisted living and memory care for many years. This is a wonderful explanation. Unfortunately, my mother and grandmother both had dementia / Alzheimer's. I know so much about it so I am able to realize what's happening to myself. Listening to your explanation, I would say I'm between stages 3 and 4. I only drive a couple blocks from home, my husband does my meds, and I am very uncomfortable with lots of people around. I'm having a hard time getting my family to really see what's going on with me. I think they want to look at the bright side of things and think I'm okay, but I know I'm not. I know so much about this disease, and worked with so many people for so long, I know what's going on in my head. My recall is really bad, I often times don't remember 30 seconds ago what was going on. I have a referral to a neurologist, so I'm hoping I can get a real diagnosis and my family will realize what's going on. Again, thank you so much for spelling things out so clearly. ❤ Marylou
MaryLou,
Iam glad your going to a neurologist. Hopefully your family will get on board soon. It's hard for them to face facts. The more training they get, the better. Share this channel with them and order my book.
www.amazon.com/Forget-Not-Alzheimers-Professional-Caregivers/dp/1959096109
I believe you MaryLou. Best of luck with your future life. ❤️❤️❤️
I am a 67 years old woman working hard to accomplish my dissertation of my PhD in Psy….. I am learning in English as my second language…. I pray in five language just to exercise my brain …. My hobbies are painting and make jewelry…. I almost forget to mention that I returned to college when I was 48 years old…. Then when I was 54 I was gunshot in my head by a man who I never see him before…. Two months later I was again in colleague but this time I choose to study psychology…. I believe that learning constantly new skills has been a good strategy to keep my mind in good shape…. Oh …. I take a minimum amount of medication. Yes, my brain is programe to keep learning forever!
❤
Thank you for your kindness..will be watching more...😢❤
My partner has been diagnosed with dementia recently when I asked what kind the doctor said "Does it
matter"I'm looking for another
Doctor.This is so new to me..
I am the complete care giver.
I never realized that younger people got this.Thank you for all the info.
Definitely get another Dr. I can't even say what I want to say about that! Omg!
My husband diagnosed at 54 with frontal temporal lobe dementia. Get a good doctor! I’m also the complete caregiver and it’s HARD. Having support is key!
So glad I found your channel. Mom was just recently diagnosed with dementia and will be moving in with my husband and I in the next few weeks. It will definitely help to know the stages as she progresses. Her younger sister has early dementia, I'm guessing about stage 3, and their dad passed away with Alzheimers. Just subscribed and will be binging on your content. Thank you for all of the information and all that you do. 🙏🏻
Thank you Miss Deborah I’m so glad that I found your TH-cam channel. My mother is in stage six I believe right now it is very difficult. She’s become combative rude nasty and she likes to fight. That is so hard to deal with. I look forward to your next TH-cam. Thank you.
Hi Rose, how's your day going with you?
That was valuable. Alzheimer’s runs in the family and is my worst fear. Thanks very much for clarifying the stages of the disease.
Absolutely my friend!
Thank you Debra, for teaching me and helping me to understand little ways to redirect and to not stress over things. My Dad just passed away on Jan 8th, 2024. Thank you so much for your help. I especially enjoyed attending one of your live classes recently before the holidays. Sincerely, Cyndi
Cyndi,
I'm so sorry to hear of your dad's passing. Can you remind me which class you were in, and where?
Hi Cyndi, how's your day going with you?
Thank you Debra ,I've just realized that along time friend has been showing short term memory problems .It is believed that she has a dementia related problem .But just by chance I came across your program and I am grateful for the info .It will help me to be better informed and what I should look out for .Thanks again .....
Very well presented. My mother is currently in a very good memory care nursing home in stage 7. Incontinent, wheelchair bound, losing the ability to speak, but I think she still knows me. She's been on hospice care for months now. My greatest challenge right now is what to do when she outlives her assets. She was diagnosed formally about 5 years ago, but was declining for some time prior to that. I'm currently trying to do whatever I can to prevent this disease in myself. I'm 64, working and don't notice any cognitive decline yet. This is more than just an illness. It's an excruciatingly slow death.
If you are in the US medicaid should kick in if she runs out of money. Talk to a social worker where she is living. They should be able to tell you what will happen.
Even if ahe dosent know you she will feel your love....I hope you subscribed to our wonderful family.
@@answersaboutalzheimers Yes, medicaid will kick in and she'll have to move to a different nursing home and she'll likely pass within weeks.
@cathyallshouse2981 she will have to move? That's horrible!
@@cathyallshouse2981 That is so sad that she will have to move. My mother died of dementia 🙏
@user-cy4vw1qj9m I agree!
Thank you for this video. I've read a lot if the comments too, and will be praying for all of you. My Momma was diagnosed with frontal lobe dementia in 2014. I have read everything I could find on it, so I would know how to best help her and what "signs" to look for in the various stages. With the tyoe of dementia she has, she goes in and out of stages, and I never know from day to day, or sometimes from morning to evening where she will be in the stages. This is one of the hardest diseases to go through..for the person who has it and the caregivers who live it with them. It is so hard to lose a little more of her every day, but I feel blessed that God has allowed me to take care of her these last 4 years and I will til He takes her. I will definitely be looking for more of your videos. God's blessings to all.
As my dad used to say, if you live long enough, most people get dementia. I saw this happen to both of of my parents. Sadly they both passed away in 2022 six months apart. My mom declined with this so much after my dad died. It's such a sad thing to see.
It is very very sad! I hope you subscribed.
Heartrending. So sorry.
I had family in late nineties and one was a hundred. No dementia, so lucky. BUT had a cousin with first signs of dementia in seventies. Her grandmother had it even earlier.
The greatest fear for most of us. My parents and grandparents did not suffer with this. As a geriatric therapist this is the long goodbye. 🙏🙏🙏
@paularudeen5374 Long and hard.
Thank you so much, Ms. Debra. You are my life raft through this. I feel so bad that my husband will have to deal with this. He is my rock but I just hope and pray that I don't take him down with me.
I'm here for you!
I am starting to go thru this with my brother, I believe he is in stage 2. Thank you for this information.
Chris, you are welcome. Be sure is subscribe so your in the family.
Thank you so very much! Your video helped me understand the disease better. I am 63 and my husband is 82. He was diagnosed with Alzheimer’s disease last year. I think he is in stage 5. It helps to know what is yet to come. 😢
Thank you for the information! I appreciate the advice about expectations. Sometimes they seem fine and you forget, and then the odd behavior catches you off guard. Managing expectations is important. My family member is not diagnosed but seems to be between 3 and 4. The fear of losing control must be really terrifying.
Hi Alisha, how's your day going with you?
I can not thank you enough, Ms Debra. For the last 2 mos. I have been caring for my 79 yrs old Sister. Her Husband of 37 yrs did the unthinkable that caused their separation. My Brother and I are trying to figure out the whole process. It's not easy. It sounds like she's stage 5-6. Thank you for explaining the stages so well.
Hi Delores, how's your day going with you?
Very good and clear definitions of stages and how to recognize them, thank you.
Thankyou so much Me Debra .The thing about 20 years prior ..just opens everything for us .Thankyou ❤❤❤❤❤❤❤❤❤❤
Great advice!
I always had to remind myself that it's the disease, not the person.
That's awesome Ed. I hope you subscribed? Happy you're here with us...
😮
Good point! I believe I am in Stage 3.
One of the first signs I noticed with my dad was the way he walked.
Thank you for this video. Informative and so perfectly presented. My mum is currently undergoing tests, but this has given me in real insight into what lies ahead.
I'm so glad to be of help. Please subscribe if you haven't already!
Thank you very much for the information. I am currently going through this with my mother and her husband who is currently your primary caregiver to see my mom. She’s not the same person she’s put on a ton of weight she can hardly walk and she’s swears at the television all the time it’s at the point that her grand children don’t want to see her and her great granddaughter is afraid of her.
God bless you for sharing this life giving information! Going through this with my husband 😢Wouldn't wish this on anyone. Thank you angel 👏🏽
Hi Janice, how's your day going with you?
Bless...I've got so precious informations from you that confirms me the reality !! We all looking for informations when one of the relatives is developing this horrible disease...so glad to find informations that's connecting the reality in different way !! Bless🙏
I have early onset dementia, and she is so correct in what she's saying.
Thank you Becky. If I can help with any, please reach out!
Hi Becky, how's your day going with you?
Heartbreaking disease we knew nothing about, the doctor was unhelpful. My mom went quickly, a stroke (stage 6) for almost 3 months, then the last week was stage 7. She's with our Lord Jesus now 🙏🏾 thank you for this helpful summary of all the stages.
Thank you, Debra.
God Bless
So clearly put and helpful. Thank you Deborah for you kindness and caring expression of this presentation. ❤️👏🌹
Outstanding professionalism . I was seriously studying about myself. I will watch more for sure.
Thanks Brian. I hope you subscribed!
Thank you for your videos. I also live in the Rochester, NY area. My mother has FTD and I have been trying to learn as much as I can. After watching your video on the 7 stages she is between stage 5/6.
My 90 year old aunt is somewhere along the dementia line. I relocated to live with her because she wasn't eating properly and I worried about her wellbeing. She doesn't want to deal with anything. She only goes out once a month to her doctor appt. The rest of the time she stays in bed until I call her to the table to eat. She is constantly taking laxatives, and doubling up on them, then takes Imodium. I try to monitor it all but she takes them when I'm in my room. The other day she couldn't find her reading glasses and we looked everywhere for them. I told her the must be in her bed. Later when I took her a cup of tea I seen the glasses and said "oh good, you found them. where were they?" She looked at me like I'd lost my marbles and said "they're right here, where I always keep them." I will watch this video again, and your other videos, so I can understand the situation better. Thank you.
God bless you Missy for taking care of your aunt! What a wonderful niece you are. ❤️
Thank you for covering this so well. My husband has this terrible disease. I will be looking forward to your program.
Thanks Sue for letting me know that you liked the video. Is there any other topics you'd like to see covered?
Dementia or brain cancer not sign's way before diagnosis of brain cancer metastatic lung cancer to the brain??? Operation of the brain after was very aggressive and it his life within 3 MONTHS 😂 it seemed like he was used as a ginny pig JHH IS SUPPOSED TO BE TEACHING & RESEARCH HOSPITAL! NOT SURE IF THAT'S SO😢 MY BELVETH MORE RESEARCH COULD HAVE BEEN DONE.!
PERHAPS HE WOULD STILL BE WITH US
HEARTS ARE BROKEN 💔 HE SUFFERED GREATLY😢 APPRECIATE ❤ TO VIDEO
VERY INFORMATIVE I
I NOW GET BETTER INSIGHT
WHAT REALLY DEEPLY CONCERNS ME IS HE DID NOT GET PROPER CARE
SO VERY REGRETFUL I WAS NOT INFORMED
WE MISS HIM TERRIBLY 😢
MORE COULD HAVE BEEN DONE 😂😂😂. THINGS WHERE GOING
TO OO FAST
HE WASN'T GIVING A FAIR CHANCE
VERY
HEART BREAKING
THANKS AGAIN
🎉❤😮
I lost both parents to Dementia 3 years ago just 3 months apart. Caring for them was HARD and I had to retire because I was diagnosed with fibromyalgia and depression (which started after a car crash and long term recovery). I get terrible brain fog with the fibro and can no longer read books so I worry that I’m following in my parents footsteps 🤯
Wow that's tough. I'm here for you...
😢 so sad for you. God bless. x
My wife had 2 bad strokes in her 40s and was diagnosed a few years later
So frustrating to deal with on a daily basis. Especially when the meanness comes out
I know it's not her fault but those words still hurt.I still see some of the woman I fell in love with 27 years ago. I would trade places with her in a heartbeat if I could
.My counselor said I'm pre grieving but it's hard not to. This is a cruel long windy road and hard to travel alone.
Thank you for your kind, empathic talk about dementia. Very informative. God bless you
Thank you 😢 I now think my husband is in stage 2 - 4. Your explanation has helped a lot. So sad for our future as he is only 65 and just retired. 😢
You got this!
Hi Siobhan, how's your day going with you?
Very informative indeed my mom had this in her early 80s she died at 95 years old in 2003. She was in a nursing home she was very smart and independent when she was younger. We all felt bad how she declined in her older years .
This video is VERY HELPFUL and fascinating! Thank you so much for sharing this information.
Thanks Sharie for your comments. What else would you like to hear about?
Have you subscribed? We'd love to have you in the family!
Thank you Ms. Debra for your kind approach. It is just what I needed to hear. The doctors and nurses taking care of my mom have not explained the different stages, what to prepare for!
thank you, my dad and best friend😢
Thank you so much Debra,
I have my husband with frontotemporal dementia he don’t talk for 3 years, it is so har but I know I’m not alone ❤🙏
Take the Certified Master Dementia Strategist course!
In the throws of long haul COVID-19 I personally experienced what dementia is like. Compromised by a lack of oxygen to the brain from COVID-19, the forgetfulness was especially difficult because it robs one of time, quality of life, so one surrenders to it. Fortunately, I was able to overcome it, I'm back to normal, but what an experience.
Have you received a Covid vax and which one?
We are so glad your back to normal. It's a wake up call Isn't it?
I hope you've subscribed to the channel!
@@sibalogh The first three injections were Pfizer, it was determined the second Pfizer caused "vaccine damage" according to the researchers at O.H.S.U. who have been studying my long haul COVID.
The fourth injection was the Moderna in May. I passed on the fifth jab in October and was infected with COVID-19 December of '22.. The infection was little more than a head cold.
You actually sound smug when you say "but don't worry, they're on their way" 😢
@@sibaloghthey can't answer because they're dead
My mother battled dementia for 18yrs. I think we got it very early as I have autism and I picked up on the little memory and confusion issues. We made a plan that we would read, play computer games, crosswords, arts and craft. Anything and everything to stimulate the brain as long as we could. In 2021 she was still able to go up to bed, drink herself and eat. We had in house carers to help clean, cook and be a companion to her. She ended up catching covid that left her in Hospital for 2 months. She didn’t need ventilation or ICU, she was strong enough to battle it along with sepsis and severe dehydration. She left hospital with long covid. Bed ridden, peg for feeding, oxygen support and had to relearn to walk. I was allowed to fly to her and admitted into the hospital to she her, when I was escorting her for the peg operation she grabbed my hand and said my name. First time in months. We had her at home with 5 care givers working around the clock to support her. She whispered once that she wasn’t ready to go. So I ordered the antibiotics to help her. She gave me clear instructions to allow her to go when dementia got too much. When quality of life is no longer there. She lost her Battle 26th December 2023. Her last wishes was to see her last grand child born and push him in the pram, read to him and take him to school. She managed all that. Dementia is the worst disease around as you don’t lose the person once but every time they forget who you are. When she was in the late stages she had a pinched nerve in her back, the doctors gave her some strong pain medications and I can say in a few days she was able to remember, have full conversations. I have reported this to every research team I can think of as maybe there was something in that or mixture when her dementia medications had a positive impact. I lost my dad to dementia in 2022, he sister the year before. My mother’s sister and brother both have it. I carry the gene from both parents so at a greater risk. Live life today, make memories today.
My hardest decision was the quality of life. She was busy singing, playing with toys, going out two times a day in her wheelchair, watching golden girls and old songs and news clips. To me quality of life compared to before dementia was impacted. But I had to toss up that this is her life and she is engaging.
I took care of my mother for 3-1/2 years before she passed. I used to go home crying every nite after I left her. Bc I could see she was deteriorating and there was nothing we could do to turn it around. It was the hardest thing to watch a loved one deteriorate before your eyes.
I fear dementia. Bc I saw what it did to my mother. To me. She didn’t deserve that after all the great things she did for her family our dad 12 children & many grand children & great grand children.
It got worse after our dad passed away. They say trauma exacerbates it. I miss her so much. 😢😔 🙏🙏🙏❤❤❤
Hi Debra, thank you that was very helpful. For about a year now I’ve noticed symptoms with my 79 yr. old mom. Right now she’s in a rehab because she fell. But she has a feeding tube and trach and she wasn’t feeding herself like she should and lost a lot of weight. Also overdosing on medication, repeating herself, calling 30-40 times a day. And she kept saying “ I don’t know what I’m suppose to do” or “ I don’t understand what’s going on”. I had to start paying her bills because she was paying them twice and the bank called me because there was overdrafts on the account. So we realized she couldn’t live alone anymore and started to look for a nursing home. You would think that would be easy but it’s not. It’s been a couple of weeks and I’m still looking.
Oh man! It's really hard to choose a nursing home. I'm planning to do a video on that topic.... If she can afford home care????
She really needs 24/7 care. I’m not sure what I’m going to do when she comes home because I can’t be there all day long and either can my siblings. And she only has social security and a little in the bank but not enough to pay someone to come everyday.
@Gina Whittaker is she in the US? Tell the social worker that she is not a safe discharge. She can go on medicaid and they should place her. The problem with that is you may not have a choice in the place and it could be a sh*! Hole.....
@@answersaboutalzheimers yes, she’s actually in another state because when she was in the hospital they couldn’t find her a nursing home/ rehab in the area and she couldn’t stay in the hospital because they said there wasn’t anything physically wrong with her and Medicare wouldn’t pay for it. So they found 3 rehabs that were a state away from us, so we sent her there because we felt like we didn’t have a choice and also so she could get stronger and be someplace where there were people to take care of her. Her secondary insurance pays for her to be in rehab up to 100 days. The social worker understands the situation and seems like he thinks she should stay there, which would be fine because their taking good care of her but it’s in another state and we would like her to be closer so we can see her more. I don’t know if we don’t find her a place could the social worker force her to stay there? We don’t have power of attorney. My brother’s suppose to look into it.
This was incredibly informative and I thank you so much for explaining how the stages progress
Thank you this was really helpful. I know an old lady who is 89. She can remember my name but she can never remember her main carer's name even though they have known each other for almost half a century and they live together, seeing each other daily. She can remember most other names but his. It's so strange! Things started to go downhill after a fall and neck break and after that a UTI and DVTs etc.
Excellent video. Thank you. My exhusband was diagnosed with dementia 1 year ago. I believe it began 2 or 3 years ago. It is heartbreaking. My ex-husband became belligerent, aggressive, violent. It was frightening.
Hi Lauren, how's your day going with you?