What is Lewy Body Dementia?

Amie Clark, Co-founder of #TheSeniorList.com talks with Jill Johnson-Young, LCSW about Lewy Body Dementia and why it's different than other types of #dementia.
Jill specializes in grief and loss, end of life, and dementia and is a national speaker in those areas. Her career has included more than a decade with hospice as a medical social worker and as director of social workers, chaplains, and grief staff. Jill's second wife, Casper, died of #LewyBody Dementia. Jill's goal in her career is to make a difference in how we talk about death, grief, and dementia.
Timestamps:
0:00 Amie introduces Jill Johnson-Young
1:30 Jill is a Lewy Body Dementia expert both personally and professionally
1:50 What is Lewy Body Dementia
3:03 How is Lewy Body Dementia different than other types of dementia?
3:36 Jill talks about her experience with early onset Lewy Body Dementia
4:05 All dementias are terminal illnesses
6:15 Lewy Body Dementia is misunderstood and is often misdiagnosed
7:55 How would you advise families who are noticing potential signs of dementia?
11:15 Way to help a loved one during a physician's appointment or medical visit
15:09 Behavioral challenges in people with Lewy Body Dementia
16:36 Resources for families who need support
Learn more on our website: www.theseniorlist.com ​
Subscribe to our TH-cam channel: / @theseniorlist
Related Links:
Alzheimer’s and Dementia Life Expectancy Calculator: www.theseniorlist.com/caregiv...
Caring for a Parent With Dementia at Home: www.theseniorlist.com/caregiv...
Best Medical Alerts for Alzheimers & Dementia: www.theseniorlist.com/medical...
Find Jill Johnson-Young at jilljohnsonyoung.com/, www.therebelliouswidow.com/, and www.centralcounselingservices....
Lewy Body Dementia Association: www.lbda.org/
Lewy Body Dementia Support Group on Facebook: groups/lynds...
Lewy Body Dementia Association Symptoms Checklist: www.lbda.org/comprehensive-lb...
Alzheimer's Association: www.alz.org/
National Instution of Health: www.nia.nih.gov/health/topics...
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[@patboda4173]

We need serious research with this and treatment! We CAN'T let go, we can't ignore this any longer! We absolutely have to find treatments for this.

[@bojest8646]

I lost my wife to LBD January 2020, it was a horrible 5 years, she's at peace now, it broke me as her caregiver,

[@annrodriguez2891]

My prayers are with you..Lost my mother in December 2019...worst way to die I have ever seen...My grandmother had Alzheimer's but LBD is more destructive in my experience...Romans 15:13..May the God of Hope fill you..

[@AllieSheffield]

I lived with my partner for few years, exactly as explained, now he is in a home, and I have hard time with accepting his illness. Thank you for information. You are absolutely right, like you are explaining what I have experienced.

[@allonaread3037]

Thank u so much I have Lewy Body and is very hard on my husband I am trying to get through this I am two years in this finally I have found a doctor to believe me but it's taken two years and my symptoms are getting greater it's the same symptoms now I can't remember things it comes and goes one day it does one day it doesn't one day I can raise my arm one day I can't when you go to a doctor in the beginning they want you to draw a clock which has nothing to do with the Lewis ottey you will be able to draw the clock it doesn't mean you're well it means you can draw the clock he still can't remember anything and you still get confused and you still get scared and no one would listen to me either I give you a lot of credit for helping her and giving her someone to lean on I think you're a wonderful person God bless you and you were a good provider and caregiver

[@cataderian]

So sorry about the loss of your partner. So hard to go through. Hope you are recovering well- BIG HUG

[@jodydonaldson4125]

Fabulous, informative interview.

[@Theseniorlist]

Thank you so much Jody! We hope it was helpful for you.

[@sharonkintz2429]

I am so sorry for your loss. Thank you so much for sharing a heartbreaking reality. I am torn between actually facing the reality and continuing to disguise the issue for my husbands reality. He does not want to know what is wrong.

[@margoguy1845]

Thank you for helping.

[@angelakindon6061]

Thank you!

[@tube_trance]

Very informative and empowering/reassuring. I viewed Ms. Johnson-Young's websites and found a wealth of resources there as well. Thank you very much.

[@Theseniorlist]

So glad it was helpful for you, thanks for the feedback! Yes, Jill is a wealth of information.

[@ruthgillis7898]

Thank you both for sharing this ,im going to study up on it.

[@cindyhaus8129]

Interesting I had none of these full on symptoms. Mine was merely found per MRI, Pet scan.

[@maryroberts8566]

First your completion is flawless and you are a beautiful person .My husband who has Dementia is dealing with frontal sinus infection and needs surgery to release pressure in his forehead .I would appreciate any advice for me to turn to

[@torontokat54]

My father has Lewy Body Dementia, does that make it possible for me to get it as well?

[@angelakindon6061]

Thank you. I am alone and think I have this.

[@Theseniorlist]

Hi Angela, I'm so sorry to hear that. I would recommend talking with your physician as soon as possible.

[@4estdweller4ever]

Angela, my heart goes out to you. I am alone too. I know how vulnerable it feels. Maybe it will help to join the Facebook support group. Sending love and concern to you. ❤

[@jodiebird1551]

The more I research this the more awareness is needed as caregivers are being reported to elder abuse if police get involved, automatically loving caregiver gets wrongly blamed and shamed.

[@sunahamanagai9039]

8:53 So it's more common to have mixed dementia? Good god.

[@KarenMcClane]

A comment she said her late wife had what was multiple TIAs which were actually the proteins doubling. Wow, my husband has had many many tias. Some I believe were but some were different and since he had stroke n tias in history, we were told it was TIA. I now believe it was lest body!

[@joycepearljones4907]

Lewy D Robin Williams worst of 12; Lewy Trouble with late wife who died Tia first years Base of the Brain; a protein does ;
psychosis at the same time; 1st I'm exhausted age 57 3.5 to 5 years; other ; all are term inal; it will take your life; lose memory; become ; Jethro; psychosis; wife on kids name; Norm Mack Lewy Body Demen; pain full Shakey; The Senior List; Exhausting; Sleep ; No energy;

[@thomasjensen6243]

So on this channel, LBD is the most common. On other channels LBD is a rare type of dementia.