I know this comment is late, but I would recommend looking into yoga for PN. It may not solve your issue, but it may help release some tension. It helped release some tension for me. I hope everyone suffering with PN finds great relief of their symptoms. 💗
Agreed : 1. Stand up alot 2. sit only on a soft cushion or hemmroid donut or airline travel neck support pillow 3.mild leg butterfly stretches 4. very warm sitzbaths 5 walking 6. stretch OBTURATOR muscles 7. Floss Perdendal nerve 8.Learn true diaphram breathing through nose 9. Get an Anti-inflamitory nerve injection from an MD 10. sit with your spine straight
Bingo bullseye correct. Don't sit on your behind all day, all night long. It's best to stand and walk around every 15 minutes or so. And yes, laying on your back straight and flush on a couch bed etc... and pillow under knees raised up really helps, so you don't get this self induced health problem. It's your nerves, not really muscles in your glutes that crush, smash, pinch, flatten that really messes you up. But also get to staying active off your behind that helps your body in many ways. Good luck all.
It's great to get such a clear view of the two ligaments. My left scrotal pain started from using a knee cart and pushing off with eversion. Can that cause the piriformis muscle to shift?
Had an extremely difficult childbirth 49 years ago, couldn't sit without intense burning afterward. I'd sit (while breastfeeding) until I couldn't stand the burning any more, always leaning on left buttock, then stand up at which time the burning would sharply increase for a few seconds before subsiding. Eleven months later the docs decided I must have broken my tailbone during childbirth, so they went in to surgically remove it. About a month later, I learned the surgeon who did this lost his med license due to being drunk while operating. The surgery made no difference in my sitting pain. Insane. Over the years I've always had to sit for brief periods on soft surfaces, leaning on left buttock and leaning forward a bit. During a recent evaluation for neck and low back burning pain, my entire spine was x-rayed, and I was told my coccyx was still there, nothing was removed at all. ?? Regardless, the docs now think the coccyx was never the problem; it was a pudendal nerve injury during childbirth 49 years ago. The only doc who treats this near me does not accept anyone's insurance, and charges $500 for a virtual visit! Needless to say, I haven't seen him. What else can I do?
I have been suffering with pain down there since I was 15 terrible insidious pain wondering if anyone can give me adive or tell me a dr who can help?terrible periods cramps clots had endodemteosis,had a hystertomy at 35 still have pain and pressure constant bladder infections yeast infections burning continuation now 60and it’s all getting worse I’m wondering if this has anything to do with this nerve your talking about ?and what can I do?????
hi have you come across pelvic muscle wasting disease/virus and neuro pain/infection as we have someone that cannot walk and have areaised it to the pelvic muscle that has been attacked by a insect bite any help appreciated
Can spine compression from cervical or lumbar stenosis cause this? Like can they impact the nerve roots of the pundenal nerve? I have some pain/but more so numbness down there and have loss feeling of sensation (I am able to have an election and ejaculate with little to no sensation of orgasm) and it feels one sided like from my right which happens to be the same side I've had leg numbness that is most likely due to such stenosis. I'm just curious if this is a separate issue or could it be attributed to the spine compression at the cervical level (I'm having acdf surgery next week but I haven't discussed this symptom yet with my neurosurgeon as it started a week or so ago) I continue to feel the.numbness there constantly though- not just upon sexual activity. This may have started last year but was minimal and prompted nw ti see urologist who ruled out alot of things and said maybe prostatitis then but that's also been ruled out on a recent visit even though at that time it seemed to go away. But it's back now and far more intense than before and conveniently at the same.time as my myelopathic synptoms from the compression so could it be related?😊
I’m 42 I had a total abdominal hysterectomy in June of last year. The only thing left behind were my ovaries. I have no pain whatsoever until I have an orgasm. The pain is generally deep and goes up the right side of my vagina. I’m wondering if this could fall into the category of Pudendal neuralgia?
I had knee surgery. Was sliding forward on my sofa to get up I felt a pull between my hip and my leg. Not long after that went to sit down in my in car And as I spun around like the doctor showed me to get in the car after knee surgery I started having very bad burning pain on the bottom of my hip set bone. I suffered through seven or eight cortisone injections. It’s making my organs are all up inside and it causes irregular erections. Absolutely no one understands it especially in my area the band the doctors aren’t much help. Does anyone have any information of doctors in North Carolina they can help the situation?
Dr Lila.. mines just on MY far left side in Pelvis, where leg attached to pelvis. Sharp pains, can't hardly walk, or move in out of bed/bath. 2 days w/it. Day before it started I was doing side to side squat jumps. When I use my muscle to move leg sharp pains happen.
Hi, my mother is 78 years old. She’s been suffering from a condition that we don’t know. At this point she has been misled to different doctors and at the end no one can help her out she cannot sit down. She has to stand up all day. She have problems around her pelvic area, she feel like something gets tight around there and she’s been suffering from a lot of pain but we haven’t figure out what doctor or specialist she supposed to be referred to .I will appreciate your help
I have been having these excruciating pains in my rectum, vagina and public bone area during most bowel movements. It actually started 15 years ago after I gave birth to my son. I tried telling the GYN that it felt like I had a tight string pulling from my clitoris up my urethra and felt like it was in my bones where I sit! It never lasted more than 30 seconds at a time in pulsing pain. Then the urinary incontinence started and a persistent sciatic nerve pain that would actually cause my leg to just give out if i bent the right way. I would rather experience labor over and over with zero meds than take another pain attack. Does this sound anything like Pudendal Neuralgia? Because I have had multiple procedures and operations investigating alternatives for the source of my numerous afflictions: urinary incontinence, urgency to defecate yet chronically constipated, severe lower pelvis pain before and during bowel movements, pain and feeling like something is very heavy in my pelvic floor, painful intercourse especially on the right interior wall of the vagina...ugggh haaaaalp🙄
Levator ani muscle..this one controls all your sphincters. If you can find a pelvic physio with indiba, it could help. Also a physio working slow : asking for relaxing the multifidus muscles on the backbone, this could well free some things at the sacrum-coccyx levels and relief some nerves. (I guess we may have the same kind of neuralgia)
This so me for the last one year.. feeling stressed I no longer enjoy intercourse cause of the itchy vagina...oops I suscept maybe my doc disturbed the pudendal nerve during the CS 2020.This problem started 8mnths after.Done alot of tests eeish but this on the genitals it's so much irritating 😢
This is such a painfully condition, with an array of symptoms. I went to pelvic physical therapy and have had two rounds of trigger point injections to treat the spasms. My dr at time of examination said I was at least an 8/10 in severity. I had been having this pain for a few years and one day I met with a new gyn (MD) and she was surprised how much I was spasming during the exam. I’m so thankful I saw her, I’m feeling as if I will need to see her soon for a 3 round of injections again. I feel for people who suffer with this.
@@hopes1569 I am much much better. I have had 3 rounds of trigger point injections. I did get steroid injection in the pundedal nerve by a pain specialist about 9 months ago. It took a some time and a few appointments to get this under control, but very much worth it. Thank you for asking. 🙂
Can you have neuropathic pain that radiates to your groin? I experience intermittent pain in R groin. Just wondering if Pudendal pain can go here. Thanks
Pudendal nerve pain can be felt in the rectum, buttocks, perineum, vagina, scrotum, Penis and down the legs, feet, also bowel, bladder, sexual problems. Pray you find help you need.
I have no pain mostly , sometimes pressure and feeling like something is there and will fall out like a full feeling but lots of spasms for months I don’t know where to get checked as my gynecologist didn’t know anything
I acquired entrapment when a Titanium metal Filshie clip used in my tubal ligation surgery migrated post op after ten years and landed on my rectum. A colonoscopy embedded the clips in tissue. The second clip forged its way into ileum bowel behind my bladder. Doctors saw them and wouldn’t remove them. They covered up their Iatrogenic injury. Now that I’m less sedated, I’ve realized my compression WAS caused by juxtaposed overused ligaments. The nerve became entrapped between them and stuck on them and surrounding fascia. The clips exacerbated the pain and should have been removed stat.
When I got up from the wrestling mat one day during practice I had this weird, mild pain in the perineum, and that night I lost almost all feeling in my genitals and even my nipples. Over a period of a few years I had a lot of tingling on the right side, in my testicles , and pain right down into my right knee. Also my penis got longer and skinnier at rest. Eventually I had a spinal fusion at L5 S one..I can get an erection and ejaculate but I have very little feeling which is incredibly odd. Anyway… I really need some help with this, and I’m very unhappy about it.
So I went to a Pelvic specialist who Said that my pelvic floor is spazzing. She wrote me a prescription for Valium suppositories and a referral to a pelvic physical therapist. This morning I noticed that when I lay on my stomach I have a lot of sensation in my Genitals. I think I might be moving in the right direction. Seeing the specialist on the 18th. I’m also taking vitamin B6, B12, and lions mane to help rejuvenate nerves.
@@mgreene011 I have a similar incident as you, mine was after doing muay Thai kicks. I too can ejaculate but I have lost sensation and pain in the perineum, pelvic pain around as well. May I know how's your condition so far?
@@Interloper322 Not good. I've haven't seen any significant improvement since my last post. I haven't quit trying yet though. One thing I've noticed is that my testicles are uncomfortable when I'm sitting so much though that I am constantly having to make adjustment to the position of my testicles and penis. I think that I'm going to do my best to avoid sitting for the next week to see if that helps. Hey, do you have numbness in the perineum around the anus? Do you have pain in your feet?
@@Interloper322 Do you have any back pain? Have you tried laying on your stomach and resting your chin on you fist? Maybe even put one fist on top of the other and rest you chin there. That seems to allow my genitals to relax if I do some deep breathing during the pose.
@@mgreene011 I am also experiencing stabbing pain around the left testicle and it radiates to the inner thigh and anus. I am unable to sit on hard surfaces longer than 10mins , this shit really sucks big time. I was doing martial arts for 5years and nth like this has happened before. Now I can't even do any form of exercise because it irritates the pelvic area. Have you seen pelvic floor therapist or urologist?
After my d&c (for asherman syndrome) I'm suffering from pudendal nerve pain for 25 days and believe it feels like my left pubic bone is crashing and the pain goes deep down to my anus area and idk how I'll overcome this but d&c isn't the easy surgery for everyone😢
When I was little I fell off a bunkbed onto the corner of window sill ever since that happened it really hard to piss and stings.They tried putting a catheter in wouldn't go in an was stabbing me this was 10 years later cause I was scared of them doing that when I was young got misdiagnosed when I was 10.Im now 21 an still have it figured out on own it was my back and went back in my memory an realized it was from that time when I was little didn't have those symptoms ever until I hit lower back on windowsill. When I was about 20 I pulled my back lifting a heavy tree branch while drunk 🥴 ever since that now multiple nerves hurt an doctors basically say I'm a liar they denied helping me in anyway thought I was drug seeking the medical field is useless. I went to hospital was stabbing pain through my nerves all through my pelvis even my dick. I went about 30 times in 2 months. I started taking fentanyl cause what are my choses I have zero can't do anything physical I went from running miles everyday skateboarding almost everyday for 10 years about no joke 10 hours a day very active .Now I don't do shit I'm depressed an lay in bed everyday I dont care to be here no more I can't have a relationship cause nerves are all fucked I have to Crack my back everytime I sit anywhere I lay on a thick pillow can't lay on sides at all cause it hurts I have a high pain tolerance but nerve pain is a whole new world of pain it's like your bones muscle an skin are barriers from pain nerves are the bodies weakest points. Doctors are very clueless people. I just have no reason to be here no more 11 years so far of dealing with this peeing problem it's like the bladder sphincter won't open unless I hurt Mt back more I notice it sometimes will open if it's at a sensitive area. SO I know for fact it's Mt nerves the dots all connect an they deny people help 😒 who are they are they living this life no how they going to deny what they can't feel I have a disease to people say I look fine but guess what I'm not fuck war on drugs an all the adficts that ruined it for people in pain thx I don't respect the doctors no more they are little grown kids fucking cry babies fucking ignorant cunts
I am female and have had same pain for years, exactly same attitude as you get, Dr's think you are drug shopping. I don't have money to buy drugs. My life eventually was in my bedroom 22/7. I have lived in 3 different countries during this, opiodphobia is everywhere and it will end up that you only have opiods when in actual hospital. All over medications, lyrica etc etc bring their own set of problems which excarabste the problem. Lost all sense of self, developed social anxiety, depression AND SHAME, from people dr, pharmacy, friends, family even acquaintances viewing me as a drug shopper, lazy, attention seeking, drama queen. Finally, got some tramadol which doesn't help and confirms to some people that I did want drugs. Besides PAIN, grief at loss of self, I feel RAGE!!! I have learned not to blame Dr's as they have to follow rules or loose license. A few of them have been very upset snd besides themselves that they can't give me what I need. Dr's vocation is to help people, so it's like a failure for them. I now live in cyprus where weed is zero tolerance and long prison stays, AFTER completing months of rehab. In desperation and near suicide I prayed to God as I just gave up laid in bed, crying, raging, not eating, cut off all relationships, except husband who I need to care for me (that's a guilt trip for me, I am the child and he is parent, plus I bitch constantly at him), eventually husband marched to the Dr and told them I was suicidal and he was overwhelmed and felt like he was letting me down not been able to fix me. Well God must have been listening as lovely lady Dr who has seen me suffer for past years (not something you can fake for years), finally had enough herself, she suspected after examination that it was pudendal nerve. She ordered mri of pelvis, gynaecology exam, and gastroenterology exam to rule out other things and got me a top notch neurosurgeon who will be doing a nerve block procedure for me in 8 days, that is if no other tests say different. I got opiods to see me through examinations and the procedure, then she will take me off them. I never thought in a million years I would get help. I don't have money, I don't know her well. But God took my husband to go see her, he is healthy, rational and not over emotional like me, and the dr happened to be one of those that felt like she had failed. So fingers crossed things get sorted, even when they do I have to work at physio, take antidepressants to get me out of the funk. I keep praying that it works and i am patient to stick with recovery plan. I will pray for you too, to a tree, if God doesn't appeal to you. I sincerely send all my blessings that you get s turn around. We deserve to live an actual life, just a normal life, a bit of hope to give enthusiasm.
I’ve had this for 3 and half years now. Came on during lockdown from sitting at a computer for two weeks. Can’t sit anymore except on a toilet seat, have to wedge 2 wooden blocks under my thighs to drive. It’s excruciating and very debilitating. I’ve noticed my both greater trochanter muscles are really tender and my left inner thigh too. I can’t lift my left leg on my own accord and have to physically lift it to put shoes and socks on. I saw a chiropractor, it was extremely painful and since then my mobility has been much worse. I’m male, 55yrs old.
Hello , i have one question , i would like Know if the pudendal nerves is just compressed in alcook canal or if is the tissues that surround the nerve are swelling? Did you know how much time are recovering from this surgery Thank you for the answer
You would need to see a highly trained physical therapist. Most of the time it's not entrapment. Surgery could make things worse and should only be a last resort if you know 100% that it is entrapped and where.
The rear branch of my pudendal nerve was stuck to and trapped between ligaments every time I sat AND every time I lay down after having internal physiotherapy. Surgery saved my life. I was misdiagnosed with post herpetic neuralgia. NOT. I almost died from lack of proper pain control and severe sleep deprivation. I’m better now but because surgery was done years too late I’ll need meds for the rest of my life.
I am a male with extremely painful entrapment, it will probably end me if I don't find a solution. The only option I haven't tried is surgery.... please if anyone knows who and where does this surgery, please tell me
@@elizabethmcleod246 Thank you, I'll have to check them out. I found a couple others, but their results were mixed. I had a procedure that shocked my nerves, to reset them, but it didn't help much.
YES, I've been experiencing this for the past week or so. Or my feet sometimes feel like they're in an ice bucket. Also, nothing more strange than whipping it put to pee and feeling like you're holding someone else's junk. Lol
I fell on my femur 8 weeks ago i still have pain in the area but i also have a tingling itching sensation in my testicles with no redness or rash its driving me crazy.
yes , pins amd needles in legs and feet and crazy pain as well at times but getting better with time. 3rd time on my life i’ve had a crazy flare up of this horrible condition
Basically after doing legs stretches and lunge stretches for a week straight by penis went numb, i lost sensation in my genitoanal region, originally lost bladder control which has since returned. It was like a compressed a nerve and blocked it from going beyond that point. I suffer from excess sweating in the region from what seems like vasodilation which i never had before. Is there a chance a nerve got pulled out or compressed in a disk it hadn't move from much before?
Too much bending over your groin picking up things off of the floor, raking and bagging leaves, filling grocery bags too heavy.... anything requiring hip flexion movements. Long term ballet, long term cycling, line dancing, etc.
@@veronicagorosito187 Of course not. I had seven nerve blocks over a 3.5 year period. Only two worked. I was a candidate for surgery. It helped. If only it had been done sooner.
@@veronicagorosito187 I was incontinent with stool for years. No urinary incontinence. I stood up all day for 20 months….that may have helped. My rectum felt electrocuted. It burned 24/7 except not if I stood up. Essentially, ligaments in my ischial spine had been overused ( I was VERY athletic ) and they juxtaposed. Every time I sat or lay down the nerve was in a vice grip! 😭 I’m finally much less incontinent with stool, I’m no longer poly drugged and sedated 24/7 and I can sit for short periods of time. Pain is regular 6/10 when before surgeries it was 20/10 life threatening. I didn’t sleep through the night for years. I lost cognitive function.
@Jéssica Ferrari Have you been offered a diagnostic fluoroscopy or CT-guided pudendal nerve block? The doctor injects both anaesthetic and around 30 mg steroid. The injection is done into the buttock (s) and aims for the Alcock’s canal near the sacrotuberus and sacrosphinous ligaments. After I had my first properly done nerve block ( as described above ), I sat for 12 hours pain free for the first time in 20 months. This nerve block proved it was my pudendal nerve that was in trouble.
I fucking hate this condition. It's ruined my life from sitting sleeping even messed up my sex life. Everyday I live in depression thinking about this condition and even to see a urologist in the UK takes months and months, covid didn't help either with the backlog of appointments
Pudental, CPPS, chronic non bacterial prostatitis, symptoms from radiculopathy...something else? How do you know? And what's the real difference? Pelvic pain is so common that doctors just want to send you directly to PT without imaging or much testing. They say insurance doesn't consider testing medically necessary because treatment is PT either way.
Basically after doing legs stretches for a week straight by penis went numb, i lost sensation in my genitoanal region, originally lost bladder comtrol which has since returned. It was like a compressed a nerve and blocked it from going beyond that point. I suffer from excess sweating in the region from what seems like vasodilation which i never had before. Is there a chance a nerve got pulled out or compressed in a disk it hadn't move from much before?
I found walking a mile a day helps a lot
Thank you for this input. Appreciated.
This will help with anything, even just general wellbeing.
Excellent doctor ❤
I know this comment is late, but I would recommend looking into yoga for PN. It may not solve your issue, but it may help release some tension. It helped release some tension for me. I hope everyone suffering with PN finds great relief of their symptoms. 💗
What causes your PN?
What are the symptoms?
Thank you easy to understand
I overcame it by standing and laying down more often. The problem is sitting for too long
What was your symptoms?
how old were you?
Agreed : 1. Stand up alot 2. sit only on a soft cushion or hemmroid donut or airline travel neck support pillow 3.mild leg butterfly stretches 4. very warm sitzbaths 5 walking 6. stretch OBTURATOR muscles 7. Floss Perdendal nerve 8.Learn true diaphram breathing through nose 9. Get an Anti-inflamitory nerve injection from an MD 10. sit with your spine straight
I wish it was that simple
Bingo bullseye correct. Don't sit on your behind all day, all night long. It's best to stand and walk around every 15 minutes or so. And yes, laying on your back straight and flush on a couch bed etc... and pillow under knees raised up really helps, so you don't get this self induced health problem. It's your nerves, not really muscles in your glutes that crush, smash, pinch, flatten that really messes you up. But also get to staying active off your behind that helps your body in many ways. Good luck all.
This needs to be illustrated better. Also, this is a very frustrating condition. This just makes it more frustrating.
It's great to get such a clear view of the two ligaments. My left scrotal pain started from using a knee cart and pushing off with eversion. Can that cause the piriformis muscle to shift?
Had an extremely difficult childbirth 49 years ago, couldn't sit without intense burning afterward. I'd sit (while breastfeeding) until I couldn't stand the burning any more, always leaning on left buttock, then stand up at which time the burning would sharply increase for a few seconds before subsiding.
Eleven months later the docs decided I must have broken my tailbone during childbirth, so they went in to surgically remove it. About a month later, I learned the surgeon who did this lost his med license due to being drunk while operating. The surgery made no difference in my sitting pain. Insane.
Over the years I've always had to sit for brief periods on soft surfaces, leaning on left buttock and leaning forward a bit.
During a recent evaluation for neck and low back burning pain, my entire spine was x-rayed, and I was told my coccyx was still there, nothing was removed at all. ??
Regardless, the docs now think the coccyx was never the problem; it was a pudendal nerve injury during childbirth 49 years ago. The only doc who treats this near me does not accept anyone's insurance, and charges $500 for a virtual visit! Needless to say, I haven't seen him.
What else can I do?
Did you find the stretching exercises yet? Pendandel Neuralgia
I have been suffering with pain down there since I was 15 terrible insidious pain wondering if anyone can give me adive or tell me a dr who can help?terrible periods cramps clots had endodemteosis,had a hystertomy at 35 still have pain and pressure constant bladder infections yeast infections burning continuation now 60and it’s all getting worse I’m wondering if this has anything to do with this nerve your talking about ?and what can I do?????
hi have you come across pelvic muscle wasting disease/virus and neuro pain/infection as we have someone that cannot walk and have areaised it to the pelvic muscle that has been attacked by a insect bite any help appreciated
Can spine compression from cervical or lumbar stenosis cause this? Like can they impact the nerve roots of the pundenal nerve? I have some pain/but more so numbness down there and have loss feeling of sensation (I am able to have an election and ejaculate with little to no sensation of orgasm) and it feels one sided like from my right which happens to be the same side I've had leg numbness that is most likely due to such stenosis. I'm just curious if this is a separate issue or could it be attributed to the spine compression at the cervical level (I'm having acdf surgery next week but I haven't discussed this symptom yet with my neurosurgeon as it started a week or so ago) I continue to feel the.numbness there constantly though- not just upon sexual activity. This may have started last year but was minimal and prompted nw ti see urologist who ruled out alot of things and said maybe prostatitis then but that's also been ruled out on a recent visit even though at that time it seemed to go away. But it's back now and far more intense than before and conveniently at the same.time as my myelopathic synptoms from the compression so could it be related?😊
been in pain 2 yrs... i'm going crazy. injection and radiofrequency has helped but it only gets worse in end untreated. no dont guess. get detail MRI
I’m 42 I had a total abdominal hysterectomy in June of last year. The only thing left behind were my ovaries. I have no pain whatsoever until I have an orgasm. The pain is generally deep and goes up the right side of my vagina. I’m wondering if this could fall into the category of Pudendal neuralgia?
Yes it's from the hysterectomy
I had knee surgery. Was sliding forward on my sofa to get up I felt a pull between my hip and my leg.
Not long after that went to sit down in my in car And as I spun around like the doctor showed me to get in the car after knee surgery I started having very bad burning pain on the bottom of my hip set bone. I suffered through seven or eight cortisone injections.
It’s making my organs are all up inside and it causes irregular erections.
Absolutely no one understands it especially in my area the band the doctors aren’t much help. Does anyone have any information of doctors in North Carolina they can help the situation?
Dr Lila.. mines just on MY far left side in Pelvis, where leg attached to pelvis. Sharp pains, can't hardly walk, or move in out of bed/bath. 2 days w/it. Day before it started I was doing side to side squat jumps. When I use my muscle to move leg sharp pains happen.
I have this to. What is it?
Jason Waite I have similar pain as you described, have you been able to find any treatment?
Hello there. my pains are gone now
Please, how are you now. There is hope?
@@superanimals9031 you had this too?
Hi, my mother is 78 years old. She’s been suffering from a condition that we don’t know. At this point she has been misled to different doctors and at the end no one can help her out she cannot sit down. She has to stand up all day. She have problems around her pelvic area, she feel like something gets tight around there and she’s been suffering from a lot of pain but we haven’t figure out what doctor or specialist she supposed to be referred to .I will appreciate your help
Have you found pendandel neuralgia stretching yet? It’s just found this. People are screaming about the good results
Could one hip being higher than the other cause this?
I have been having these excruciating pains in my rectum, vagina and public bone area during most bowel movements. It actually started 15 years ago after I gave birth to my son. I tried telling the GYN that it felt like I had a tight string pulling from my clitoris up my urethra and felt like it was in my bones where I sit! It never lasted more than 30 seconds at a time in pulsing pain. Then the urinary incontinence started and a persistent sciatic nerve pain that would actually cause my leg to just give out if i bent the right way. I would rather experience labor over and over with zero meds than take another pain attack. Does this sound anything like Pudendal Neuralgia? Because I have had multiple procedures and operations investigating alternatives for the source of my numerous afflictions: urinary incontinence, urgency to defecate yet chronically constipated, severe lower pelvis pain before and during bowel movements, pain and feeling like something is very heavy in my pelvic floor, painful intercourse especially on the right interior wall of the vagina...ugggh haaaaalp🙄
If you can find a Pelvic Floor Physical Therapist, they may be able to help with this. Good luck.
It does sound like your pudendal nerve is involved.
Levator ani muscle..this one controls all your sphincters. If you can find a pelvic physio with indiba, it could help. Also a physio working slow : asking for relaxing the multifidus muscles on the backbone, this could well free some things at the sacrum-coccyx levels and relief some nerves. (I guess we may have the same kind of neuralgia)
This so me for the last one year.. feeling stressed I no longer enjoy intercourse cause of the itchy vagina...oops I suscept maybe my doc disturbed the pudendal nerve during the CS 2020.This problem started 8mnths after.Done alot of tests eeish but this on the genitals it's so much irritating 😢
I hope you are doing well. Mothers are very strong
This is such a painfully condition, with an array of symptoms. I went to pelvic physical therapy and have had two rounds of trigger point injections to treat the spasms. My dr at time of examination said I was at least an 8/10 in severity. I had been having this pain for a few years and one day I met with a new gyn (MD) and she was surprised how much I was spasming during the exam. I’m so thankful I saw her, I’m feeling as if I will need to see her soon for a 3 round of injections again. I feel for people who suffer with this.
How are you today
@@hopes1569 I am much much better. I have had 3 rounds of trigger point injections. I did get steroid injection in the pundedal nerve by a pain specialist about 9 months ago. It took a some time and a few appointments to get this under control, but very much worth it.
Thank you for asking. 🙂
@@maridelatorre9444 you don t have any pain anymore ? Are you in the US?
@@hopes1569 I am in the USA (Arizona), Since I had the steroidal injection about 8 months ago I have not had pain... :)
@@maridelatorre9444 good I m happy for you
What's the test name
I have falled on the floor on my right side and i think i gott Pudendal Neuralgia??
Hey me too, what are your symptons?
Can you have neuropathic pain that radiates to your groin? I experience intermittent pain in R groin. Just wondering if Pudendal pain can go here. Thanks
Pudendal nerve pain can be felt in the rectum, buttocks, perineum, vagina, scrotum, Penis and down the legs, feet, also bowel, bladder, sexual problems. Pray you find help you need.
@bertie992 Thankyou for this information. I think l am suffering this condition. I have hip arthritis and almost all the symptoms you mention l have.
@@Bernadette688what is the cure
I have no pain mostly , sometimes pressure and feeling like something is there and will fall out like a full feeling but lots of spasms for months I don’t know where to get checked as my gynecologist didn’t know anything
Find a different gynecologist!
It sounds like you need a Compounded vaginal suppository containing Valium or another anti spasm medication. I use them at bedtime.
@@elizabethmcleod246 they are prescribed? By a doc or over the counter ? Thank you does it help a lot
@@abigailfeli8857 Yes, prescribed by my gynaecologist. They work wonders.
@@elizabethmcleod246 but it’s more of a feel better type of thing rather then taking care of the actual issue ? Thank you for replying appreciate it
What type of test is done to see this mess in my body I had MRI all noraml
Pinprick testing in groin area and fluoroscopy guided nerve blocks containing anaesthetic and steroid.
@@elizabethmcleod246 Do you know of a doctor in Miami, FL who performs that procedure?
@@mgreene011 No
Surgery causes it especially hysterectomys and bladder surgery
I acquired entrapment when a Titanium metal Filshie clip used in my tubal ligation surgery migrated post op after ten years and landed on my rectum. A colonoscopy embedded the clips in tissue. The second clip forged its way into ileum bowel behind my bladder. Doctors saw them and wouldn’t remove them. They covered up their Iatrogenic injury.
Now that I’m less sedated, I’ve realized my compression WAS caused by juxtaposed overused ligaments. The nerve became entrapped between them and stuck on them and surrounding fascia. The clips exacerbated the pain and should have been removed stat.
Mine was from kidney stone surgery
When I got up from the wrestling mat one day during practice I had this weird, mild pain in the perineum, and that night I lost almost all feeling in my genitals and even my nipples. Over a period of a few years I had a lot of tingling on the right side, in my testicles , and pain right down into my right knee. Also my penis got longer and skinnier at rest. Eventually I had a spinal fusion at L5 S one..I can get an erection and ejaculate but I have very little feeling which is incredibly odd. Anyway… I really need some help with this, and I’m very unhappy about it.
So I went to a Pelvic specialist who Said that my pelvic floor is spazzing. She wrote me a prescription for Valium suppositories and a referral to a pelvic physical therapist. This morning I noticed that when I lay on my stomach I have a lot of sensation in my Genitals. I think I might be moving in the right direction. Seeing the specialist on the 18th. I’m also taking vitamin B6, B12, and lions mane to help rejuvenate nerves.
@@mgreene011 I have a similar incident as you, mine was after doing muay Thai kicks. I too can ejaculate but I have lost sensation and pain in the perineum, pelvic pain around as well. May I know how's your condition so far?
@@Interloper322 Not good. I've haven't seen any significant improvement since my last post. I haven't quit trying yet though. One thing I've noticed is that my testicles are uncomfortable when I'm sitting so much though that I am constantly having to make adjustment to the position of my testicles and penis. I think that I'm going to do my best to avoid sitting for the next week to see if that helps. Hey, do you have numbness in the perineum around the anus? Do you have pain in your feet?
@@Interloper322 Do you have any back pain? Have you tried laying on your stomach and resting your chin on you fist? Maybe even put one fist on top of the other and rest you chin there. That seems to allow my genitals to relax if I do some deep breathing during the pose.
@@mgreene011 I am also experiencing stabbing pain around the left testicle and it radiates to the inner thigh and anus. I am unable to sit on hard surfaces longer than 10mins , this shit really sucks big time. I was doing martial arts for 5years and nth like this has happened before. Now I can't even do any form of exercise because it irritates the pelvic area. Have you seen pelvic floor therapist or urologist?
After my d&c (for asherman syndrome) I'm suffering from pudendal nerve pain for 25 days and believe it feels like my left pubic bone is crashing and the pain goes deep down to my anus area and idk how I'll overcome this but d&c isn't the easy surgery for everyone😢
Im having this condition for 2 monts now its living hell
I've been this way for 2 years now. I got my pudendal neuralgia from kidney stone surgery. 😢 it's so painful
@@kmw992617 i wear sacroiliac joint belt and i got so much better in last month try
@@techxway1 how did you get your pn?
@@kmw992617 too much sitting on hard chair
what are your symptom and are you male or female
Will MRI OR CT scan show this
No, unfortunately not
When I was little I fell off a bunkbed onto the corner of window sill ever since that happened it really hard to piss and stings.They tried putting a catheter in wouldn't go in an was stabbing me this was 10 years later cause I was scared of them doing that when I was young got misdiagnosed when I was 10.Im now 21 an still have it figured out on own it was my back and went back in my memory an realized it was from that time when I was little didn't have those symptoms ever until I hit lower back on windowsill. When I was about 20 I pulled my back lifting a heavy tree branch while drunk 🥴 ever since that now multiple nerves hurt an doctors basically say I'm a liar they denied helping me in anyway thought I was drug seeking the medical field is useless. I went to hospital was stabbing pain through my nerves all through my pelvis even my dick. I went about 30 times in 2 months. I started taking fentanyl cause what are my choses I have zero can't do anything physical I went from running miles everyday skateboarding almost everyday for 10 years about no joke 10 hours a day very active .Now I don't do shit I'm depressed an lay in bed everyday I dont care to be here no more I can't have a relationship cause nerves are all fucked I have to Crack my back everytime I sit anywhere I lay on a thick pillow can't lay on sides at all cause it hurts I have a high pain tolerance but nerve pain is a whole new world of pain it's like your bones muscle an skin are barriers from pain nerves are the bodies weakest points. Doctors are very clueless people. I just have no reason to be here no more 11 years so far of dealing with this peeing problem it's like the bladder sphincter won't open unless I hurt Mt back more I notice it sometimes will open if it's at a sensitive area. SO I know for fact it's Mt nerves the dots all connect an they deny people help 😒 who are they are they living this life no how they going to deny what they can't feel I have a disease to people say I look fine but guess what I'm not fuck war on drugs an all the adficts that ruined it for people in pain thx I don't respect the doctors no more they are little grown kids fucking cry babies fucking ignorant cunts
I am female and have had same pain for years, exactly same attitude as you get, Dr's think you are drug shopping. I don't have money to buy drugs. My life eventually was in my bedroom 22/7. I have lived in 3 different countries during this, opiodphobia is everywhere and it will end up that you only have opiods when in actual hospital. All over medications, lyrica etc etc bring their own set of problems which excarabste the problem. Lost all sense of self, developed social anxiety, depression AND SHAME, from people dr, pharmacy, friends, family even acquaintances viewing me as a drug shopper, lazy, attention seeking, drama queen. Finally, got some tramadol which doesn't help and confirms to some people that I did want drugs. Besides PAIN, grief at loss of self, I feel RAGE!!! I have learned not to blame Dr's as they have to follow rules or loose license. A few of them have been very upset snd besides themselves that they can't give me what I need. Dr's vocation is to help people, so it's like a failure for them. I now live in cyprus where weed is zero tolerance and long prison stays, AFTER completing months of rehab. In desperation and near suicide I prayed to God as I just gave up laid in bed, crying, raging, not eating, cut off all relationships, except husband who I need to care for me (that's a guilt trip for me, I am the child and he is parent, plus I bitch constantly at him), eventually husband marched to the Dr and told them I was suicidal and he was overwhelmed and felt like he was letting me down not been able to fix me. Well God must have been listening as lovely lady Dr who has seen me suffer for past years (not something you can fake for years), finally had enough herself, she suspected after examination that it was pudendal nerve. She ordered mri of pelvis, gynaecology exam, and gastroenterology exam to rule out other things and got me a top notch neurosurgeon who will be doing a nerve block procedure for me in 8 days, that is if no other tests say different. I got opiods to see me through examinations and the procedure, then she will take me off them.
I never thought in a million years I would get help. I don't have money, I don't know her well. But God took my husband to go see her, he is healthy, rational and not over emotional like me, and the dr happened to be one of those that felt like she had failed. So fingers crossed things get sorted, even when they do I have to work at physio, take antidepressants to get me out of the funk. I keep praying that it works and i am patient to stick with recovery plan. I will pray for you too, to a tree, if God doesn't appeal to you. I sincerely send all my blessings that you get s turn around. We deserve to live an actual life, just a normal life, a bit of hope to give enthusiasm.
I’m sorry you’ve been gas lighted and essentially neglected. Is your fentanyl prescribed by a doctor? Are they prescribed duragesic patches?
Please hang in there.😢 9 years here.
For me it's going good until the climax where it hurts
Never mind it's just sensitive after busting a nut
I’ve had this for 3 and half years now. Came on during lockdown from sitting at a computer for two weeks. Can’t sit anymore except on a toilet seat, have to wedge 2 wooden blocks under my thighs to drive. It’s excruciating and very debilitating. I’ve noticed my both greater trochanter muscles are really tender and my left inner thigh too. I can’t lift my left leg on my own accord and have to physically lift it to put shoes and socks on. I saw a chiropractor, it was extremely painful and since then my mobility has been much worse. I’m male, 55yrs old.
Did you find the penandel neuralgia exercises yet? I just found them
I'd try and get an MRI if you have decent enough insurance 🙏 not being able to lift your leg by itself is no joke
Hello , i have one question , i would like Know if the pudendal nerves is just compressed in alcook canal or if is the tissues that surround the nerve are swelling?
Did you know how much time are recovering from this surgery
Thank you for the answer
You would need to see a highly trained physical therapist. Most of the time it's not entrapment. Surgery could make things worse and should only be a last resort if you know 100% that it is entrapped and where.
2 years. Someone had rhis done on a Facebook group calked, Pundenal Neuralgia Hope.
The rear branch of my pudendal nerve was stuck to and trapped between ligaments every time I sat AND every time I lay down after having internal physiotherapy. Surgery saved my life. I was misdiagnosed with post herpetic neuralgia. NOT. I almost died from lack of proper pain control and severe sleep deprivation. I’m better now but because surgery was done years too late I’ll need meds for the rest of my life.
Elizabeth McLeod where did you go to have surgery
Shawntis Tarver St. Paul, Minnesota.
I am a male with extremely painful entrapment, it will probably end me if I don't find a solution. The only option I haven't tried is surgery.... please if anyone knows who and where does this surgery, please tell me
Search up who David McCoid is
Dr. Hibner in Arizona. Dr. Mark Conway in Nashua, New Hampshire.
@@elizabethmcleod246 Thank you, I'll have to check them out. I found a couple others, but their results were mixed. I had a procedure that shocked my nerves, to reset them, but it didn't help much.
@@kevinbuchanan67 Good luck
Dr. Hibner was no help to me.
Anyone else have this along with genital numbness numb button and increased pressure on feet when walking
YES, I've been experiencing this for the past week or so. Or my feet sometimes feel like they're in an ice bucket. Also, nothing more strange than whipping it put to pee and feeling like you're holding someone else's junk. Lol
I fell on my femur 8 weeks ago i still have pain in the area but i also have a tingling itching sensation in my testicles with no redness or rash its driving me crazy.
yes , pins amd needles in legs and feet and crazy pain as well at times but getting better with time. 3rd time on my life i’ve had a crazy flare up of this horrible condition
Basically after doing legs stretches and lunge stretches for a week straight by penis went numb, i lost sensation in my genitoanal region, originally lost bladder control which has since returned. It was like a compressed a nerve and blocked it from going beyond that point. I suffer from excess sweating in the region from what seems like vasodilation which i never had before.
Is there a chance a nerve got pulled out or compressed in a disk it hadn't move from much before?
I believe I have just. Ause ghis by sitting crosslegged. I sit cross legged all the time.
I'm sorry.. the title said causes but there were no causes mentioned
Too much bending over your groin picking up things off of the floor, raking and bagging leaves, filling grocery bags too heavy.... anything requiring hip flexion movements. Long term ballet, long term cycling, line dancing, etc.
@@elizabethmcleod246 skateboarding for over 20 years and multiple hip injuries??
Nick Revitte I got it from falling on my tail bone after a failed tre flip like a decade ago. Wrecked my life lol, how are you?
Luke Stuart I knew falling on my tailbone after jumping down a flight of stairs on rollerblades would come back to haunt me. No injury at the time.
@@Skywohka how are you doing? Found any treatment to this pain?
Are there any way to tell if Pudendal Neuralgia caused by entrapment or not?
No. Decompression surgery will allow that.
@@elizabethmcleod246 You don't do surgery before diagnosing.
@@veronicagorosito187 Of course not. I had seven nerve blocks over a 3.5 year period. Only two worked. I was a candidate for surgery. It helped. If only it had been done sooner.
@@elizabethmcleod246 Oh so sorry to hear that....
But you recovered functions and sensation? What were your physical symptoms?
@@veronicagorosito187 I was incontinent with stool for years. No urinary incontinence. I stood up all day for 20 months….that may have helped.
My rectum felt electrocuted. It burned 24/7 except not if I stood up.
Essentially, ligaments in my ischial spine had been overused ( I was VERY athletic ) and they juxtaposed. Every time I sat or lay down the nerve was in a vice grip! 😭
I’m finally much less incontinent with stool, I’m no longer poly drugged and sedated 24/7 and I can sit for short periods of time.
Pain is regular 6/10 when before surgeries it was 20/10 life threatening. I didn’t sleep through the night for years. I lost cognitive function.
If you massage this area does it help. A few tips would have been helpful. Thanks
No..it agitates the nerve if it’s truly entrapped.
Have you tired a mild Cobra pose?
@@elizabethmcleod246 okay so it's not just me good to know I have that same problem with anything being touched in the wrong area
@Jéssica Ferrari Have you been offered a diagnostic fluoroscopy or CT-guided pudendal nerve block? The doctor injects both anaesthetic and around 30 mg steroid. The injection is done into the buttock (s) and aims for the Alcock’s canal near the sacrotuberus and sacrosphinous ligaments.
After I had my first properly done nerve block ( as described above ), I sat for 12 hours pain free for the first time in 20 months.
This nerve block proved it was my pudendal nerve that was in trouble.
@@elizabethmcleod246how are you feeling now? Did you get healed? I'm really suffering. Advice me please.
I fucking hate this condition. It's ruined my life from sitting sleeping even messed up my sex life. Everyday I live in depression thinking about this condition and even to see a urologist in the UK takes months and months, covid didn't help either with the backlog of appointments
I'm there with you. It is ruining my life. I have to keep hanging on though.
This a condition I would never wish even to my worst enemy.. feeling like divorce sex nowadays is like a luxury..ooh lord help us
Can this be seen / diagnosed in an MRI?
still no answer.. i requested detail MRI. i wanna know for sure, not guess too
No
Pudental, CPPS, chronic non bacterial prostatitis, symptoms from radiculopathy...something else? How do you know? And what's the real difference? Pelvic pain is so common that doctors just want to send you directly to PT without imaging or much testing. They say insurance doesn't consider testing medically necessary because treatment is PT either way.
Lila is hottt.
Basically after doing legs stretches for a week straight by penis went numb, i lost sensation in my genitoanal region, originally lost bladder comtrol which has since returned. It was like a compressed a nerve and blocked it from going beyond that point. I suffer from excess sweating in the region from what seems like vasodilation which i never had before.
Is there a chance a nerve got pulled out or compressed in a disk it hadn't move from much before?