Pudendal Neuralgia - Symptoms, Causes & TREATMENT
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- เผยแพร่เมื่อ 3 เม.ย. 2022
- Cure Pudendal Neuralgia for Men: aidplan.com/pudendal-neuralgi...
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I wish more doctors were this educated like you. I tried to explain this to several different doctors and got nowhere. Amazing video. Thank you so much for this video
I just want to know why us as the patient have to diagnose ourselves then find a dr That one even knows about the pudenal nerve and that who believes us?!! You would not believe how many specialists I've had to go to and still have no diagnosis. Or actually somebody that even knows what the diagnosis is or what It means much less how to help me!
@@lindsaymarie7238 Hi Lindsay, I'm so sorry to hear this. I know exactly what you mean. This is the 2nd urologist I'm seeing. The only thing he did was give me antibiotics. He claims my prostate is inflamed, but when I said I want a ultrasound of my prostate he said no it's not necessary. He could tell with a rectal exam. Know matter how many times I go over the symptoms with him. It's like talking to a wood chuck and a coal stove. I'm in pa. My neurologist gave me a specialist in Philadelphia but my insurance won't cover it. What else have you gone through?
@@lindsaymarie7238 have you done any stretches? Yoga classes ( one on one ) hot baths, have you heard of the medical wand ?
@@ritchiemarsteller8884 ive definitely been thinking of yoga , I've never done it, no. I do go see a massage therapist every 2 weeks for stretching and deep tissue massages.
My insurance company demanded an EMG before I could have a block. I went to the EMG specialist, and I had to show the dam doctor a picture of the nerve. He never heard from it. I was beyond pissed off. I live daily in extreme pain, waiting to have this block done.
I was in tears watching this - thank you for being so clear and thoughtful in your explanation. This is EXACTLY what I’m going through and I can share this with anyone who needs to know. I’m hoping the exercises and movements will help and hoping I can find some helpful treatment. THANK YOU again for this video. I need some hope to cling to and this helped.
I was finally diagnosed with this condition late last year. I think I've had it for a long time, but the symptoms have come and gone over the years. Of course I went through multiple courses of treatment for things like bacterial infections first, but I knew it wasn't any of that due to the symptoms and finally a urogynecologist suggested it was a neurologic issue. I started looking around myself and found pudendal neuralgia. It matches my symptoms almost perfectly. A burning pain - for me in the vagina in the urethra area and closer to the perineum with urinary urgency - all of which is made worse when sitting and eases or goes away when standing, lying down or sitting on the toilet. The pain is usually completely gone overnight and slowly comes back as I start my day. Basically everything he said.
I went to a specialist for multiple nerve block treatments, I use muscle relaxing suppositories at night, take pregabalin and I'm doing pelvic floor PT - which has revealed a lot of tension in my pelvic floor. My therapist thinks all of the coughing and sneezing that I did when really sick made the pelvic floor very tense which irritated the nerve.
I will say that all of these things have made an improvement. I'm still not pain free, but it's much better than it was before I started treatment so hopefully with time it will ease and I can feel normal again.
I am facing the same, I also have PCOS So I thought it's pain in my ovaries but, I feel fatigue and pain around my vaginal area and in my hip, I've been listening to anti cancer frequency thought it's cancer, but I get relief when I listen to peripheral neuropathy frequency by Good vibes on TH-cam. But I don't listen to consistently that's why the pain comes back.
Disculpa cuántos bloqueos hiciste y cuánto te salió cada bloqueo y que doctor los hace y con que especialista fuiste.y tenías dolor anal
Hlo dear do u have any swelling around your genital area?
0
Hi, how are you doing now? I have been suffering with this for so long. Are you feeling any better?
This is literally the most complex and simplistic explanation I have ever come across. Spectacular presentation, thank you much!
I am a 70 years old retired woman surgeon. I have had irritable bladder and detrosal muscle symptoms for a few years. About two months ago I started experiencing perineal pain and severe urethral irritation with frequency. I had no urinary/bladder infection or cystitis. I saw a urologist and a gynaecologist who found all is normal including abdominal and intra-vaginal ultrasound. Paracetamol eased the pain a little. I researched my symptoms and believe I had pudendal neuralgia which as you say is twice as common in women but frequently passes undiagnosed. I started exercising my pelvic muscles and continued with my stretching exercise routines. The pain subsided completely within a week and I have been pain free since then. Of course it may return. Thank you for shining a light on this distressing condition that is rarely considered particularly by general practitioners.
Thank you for sharing your story with us, Nahid! In fact, far too many women and men still suffer from pudendal neuralgia and unfortunately, the ailments often go undiagnosed. But like you said, there is a way out! It went surprisingly quickly for you, but even if the treatment is more time-consuming, the most important thing is to become active yourself. With our online course, we hope to be able to make a small contribution to this. All the best to you Nahid :)
Nahid toubia , can u please share Ur exercises. I'm a physician and started having it 4 months back . I have endometrios , deep infiltrative and had a UTI after ocps withdrawal after which I strated having severe right labial and right sides vaginal pain which would get worse on sitting , improve on walking. Also had burning at the same site. Later started having pain in medial calf and last two toes , the sacral plexus has something to do with it
I consulted pain management and they said it's pedundal neuralgia , took amitryptalline and walked , things got better but now again after I sat for a long time things got worse.
Would be a great help if u can let us know how u got rid of it
What exercises or stretches do you advise . Thanks 🙏
@@aidplan9091 sir do u think yeast infection can cause this?
Can you share the exercise and stretch routine you have been following or maybe post a link? Thanks
Thank you. This makes so much sense!
One of the most intelligent explanation
Great explanation for this condition. I subbed because of this video.
Great explanation without mumbo jumbo. Down to earth and realistic
One of theeee best simplification..
Thank you for clarifying this unusual condition.
I can not thank you enough for this. After years of being told by doctors this pain "is nothing, it's all in your head" I think I have found a great starting point. You are describing exactly my symptoms and with this I think I can start finding appropriate treatment. Thank you again!
Thank you very much. It hurts bad. But thank you for explaining
What a wonderfully clear and sensible explanation of the problem. Thank you.
Thankyou sir for your video on pudendal neuralgia I'm having a similar similar symptoms.
Äntligen en läkare som kan förklara det som jag har mistänkt.
Har aldrig haft så ont och ingen som förstår
Detta tillstånd.
Behöver hjälp.
Very nice! Mine was caused by my posture over the years.
I’m 78 and just now going through the process of figuring out why I’m in such pain like you described. Your video has helped me understand it. Thanks. 🙏🏻
Excellent video! This is a great explanation of the condition we're dealing with.
How your symptoms goin?
Thank you for your videos. It is very informative 👍. I fall over my back 2 years ago and after three weeks of the accident I felt pain around my vulva and during urination and around urethra. My doctor told me I have descending perineal syndrom and rectocele and the descending caus a nerve stretching. And told me that the fall was only a trigger point for the prolapse to become systematic. My question is ? Is it the fall or the prolapse which caused this firing pain??? And does physics therapy can help with the enormous pain I have lived with the past two years.
I developed this at age 16 after suffering chronic constipation for a long time and running excessively, stress plus a strong enema at the hospital to try and relieve acute constipation. Nobody could tell me what caused the condition. It made my life hell. I had to drop out of sixth form and give up on going to university. I found it so stressful that it lead to chronic fatigue syndrome.
I now understand this condition and started to in early 20s thanks to the headache in the pelvis book.
My brother also got this because of chronic constipation. What treatment options are you pursuing? Nothing has worked in my brother's case unfortunately. We are hopeless as of now.
I ve been suffering this for 13 years and I got constipation always I thought this maybe be related to constipation and finally I found someone who had this because of constipation I don't know If I will get cure from this some day I feel like will never end I do stretches helps a bit but never can come back to normal
I think meditation with the pain is very important to be able to let go of the resistance to it and the guarding against the pain which keeps everything tense down there. Paradoxical relaxation you'd call it. For me stretches tend to aggravate things so I just do gentle yoga in the mornings.
The meditation that I find most beneficial is called soften and flow. Focus on the area of pain, breathe into it, then on the out breath gently say in your mind soften and flow. Don't expect miracles but over time as you get more used to sitting with the pain rather than distracting or running away from it, things will improve.
How to fix the chronic constipation?
daily ground flax seed for me on top of my porridge. One tablespoon@@LexiNc8284
That's a nice gentle cramping on his nerve. I got a serious injury.
I’m in a FB support group for PN and in all of us there are so many differences in what aggravates it, what helps the pain (including meds) which areas are painful and which are pain free. However, in 100% of cases, upon waking the pain is entirely absent, for moments only. What happens in the brain during sleep (not relaxation since we’re still relaxed when the pain reappears just minutes after waking)? If we could answer this, that would be valuable intel on what is going on that so affects the nerves to cause such horrific pain.
Whats the groups name
@@robertrodriguez8082 Pudendal Neuralgia Hope.
This a very tricky condition before you get there you are treated for many unending ailments and done many tests...may God add a lot of wisdom to our doctors..thanks alot doc I now understand whats my problem through your videos.
4 years of high level daily pain, they say I'm full of trigger points. Where do I even begin? The pelvic floor PTs here just don't have the experience, and I've felt like I was on my own trying to fix this. I just started seeing a sports rehab PT and he's been so much more proactive. First session he did trigger point work with needling ecurrent on my glutes and lower back. This week we're doing the obturator internus. I wish I hadn't just settled for what insurance covered and had just payed the money to see this sports rehab PT from the beginning. Way more experience and sometimes you get what you pay for I guess. My pain began after running marathons without ever stretching or doing any kind of strengthening. I hope someone reads this and learns from my mistakes. Pudendal neuralgia is no joke
Look up the sacrotuberous ligament. Chiropractor did a technique to release that ligament and it instantly gave me relief from the sacrum and groin pain from the pudendal nerve.
Where is this chiropractor located? I am battling this for 5 years with no results.
Thank you. I will.
Thank you so much! This is affecting everything in my life.
Thank you! Im waiting for the next video.
What pressure technique specifically was done for the patient you were talking about? I’d like to know please thank you!
Thank you. Mine isn't worse when sitting. It's worse when standing or laying on my back. Laying on my tummy feels best. It's been 2.5yrs and it started after rotator cuff surgery. I'm getting a diagnostic pudendal nerve block next week. I'm in perfect health other than this. I'm praying 🙏
How did the nerve block go? Did you get relief?
@Lisa Colorado I did not get it. It's a small intestine problem. I'm fasting right now then going gluten free forever and milk/cream free for a couple months.
I have hyper mobile joints everywhere. Did you find yours through MRI or do you have EDS?
@@suzieshreve4464 I have hernias. They are being repaired in two weeks.
Wow that’s interesting how it started! I have chronic neck and back pain and now this.
After having a bartholin gland abcess for 3 weeks, two incisions and drainage that were unsuccessful and then it drained on its own a week later. 3 weeks after this I started experiencing all the symptoms that are explained in this nerve irritation. My gynecologist pressed on the nerve but no pain, but it comes and goes and is less in the morning and gets worse throughout the day. This is a tricky situation when nothing is felt at the gynecologist in the morning but is painful for the rest of the day.
Pelvic floor therapy has helped me reduce most symptoms by 75%. I went 4 months with severe pain.All test came back showing good health from 3 different urologist. My 4th urologist suggested pain management and pelvic floor therapy. Starting my third month of treatment now. I have good weeks and bad weeks but no where near the pain before treatment started.
А какова терапия тазового дна?как происходит лечение?
@@szh4834 it’s stretching to release the muscles then exercises to strengthen to keep body in proper place.
@@brandonmorse9000how r u now?
@@hcs.c 95% better now. Little to no pain each day. Pelvic floor therapy in addition to breathing exercises to calm my nervous system really helped. I used wim hof method for breathing and a program called heal pelvic pain for men (online course) in combination with a local physical therapist. I had three flare during the couple months of recovery but now they have stopped.
What stretches and exercises do you do?
Doctor, what is the relationship of Liorizal 10 to the pelvic nerves?
Wearing heels helps too. It must take pressure off the nerves. What do they teach in med school anyway???
I think this is what I’m experiencing. After two years of pain and research I feel that this moist describes what’s happening to me. I hope I can see a doctor soon and mention this. I’ve actually lost my physically active job and health insurance due to these complications.
how are you now..... what treatment option do you taking
Thank you for you. Mine isn't worse when sitting. It's worse when standing or laying on my back. Laying on my tummy feels best. It's been 2.5yrs and it started after rotator cuff surgery. I'm getting a diagnostic pudendal nerve block next week. I'm in perfect health other than hypermobile SI joints . I'm praying 🙏
Did it help you? My gf got one a couple of months ago and it has hardly made a difference for her.
@@Evonius1 I had 3 incarcerated hernias. They're all fixed now.
A can relate to the guy you mentioned at the end of the video 😔. Same symptoms. I told the Doctor this could be my problem but he doesn’t now much about it.
Doctor keeps telling me all my exams came up good, but I know what I feel and it gets me depressed having this pain and nobody be able to help.
How did the guy you mentioned heal of this terrible problem?. I need help 😔.
Hi doctor, can an ingunal hernia affect pudendal nerve?
Hi sir, can indirect inguinal hernia affect pudendal nerve and cause pelvic pain and numbness? İ have one on my left side but it is not visible from outside.
I have pain 24/7 if i not sleep it was not so often in beginning.
No medications help.
Is so bad pains lt have give me tics and psygogenic sezures.
Is exhousted i have pain all the time but get worse if i stand up, walk and especelly if i sit.
My pain came after surgery.
So grateful you explained this! Mine is constant, sharp. Worse than childbirth on BOTH sides.
Everyone says they have pudendal neuralgia like I do but they’re symptoms are very mild and only occur during sitting.
Mine are constant and torturous
How are you doing now
Mine as well. No medication have work for me hoping botox will work.
@@POCKBA please stay in touch and let me know how things go for you. Having constant pudendal nerve compression is the same suffering as stage 4 cancer but often we are left without any compassion from doctors or others because the compression is so rare. I’m here for you anytime! Hugs
@@onesht4209 same, i am doing ketamine infusions biweekly. I’ve tried everything there is! I’m here for you if you have this too and ever need some one to listen or boost you up. This shit is not for the weak so if you’re still here and have this, you’re already victorious for staying alive. Hugs
@@opt4heavenhearts4thehomele27will you get berve decompression surgery?
I have pins and needles.. Burning sensation in my pelvic area but it happens for 10-15 mins n goes away... It has been happening since last few days.
Hello. Thank you for this video. Everything you have said here is how I'm feeling. I have gluteal minimus tendonopthay and para tendinitis bilateral. Can this cause pudendal neuralgia? Thank you.
I'm a 26 year old man and not ashamed to admit but I've felt this condition on my right pelvic region, feeling a sharp, prickly pain or sensation emanating above and intermittently towards the right testes. Thank God the "ball" itself is fine but still the nerve pain persists, at least occasionally now thanks to more stretching.
Any other recommendations would be helpful 🙂
How r u feeling now
My insurance company demanded an EMG before I could have a block. I went to the EMG specialist, and I had to show the dam doctor a picture of the nerve. He never heard from it. I was beyond pissed off. I live daily in extreme pain, waiting to have this block done.
suffering from bilateral pudendal neuralgia right now as well as sacral neuralgia, waiting for infiltration first, but my doctors told me I need surgery and I am devastated. Its gonna be my 4th major surgery [not for pn but in total]
Disculpa que clase de médico mira esto
@@alexandradelcastillo5553 sorry I only speak English
@@sissi3342 did you get the Surgery done ? I got diagnosed with it too post my second endometriosis surgery
Do you refund if no success….i already saw a lot of scam business about PN like DCT for example
Where’s the video to release this nerve??
Personally I have yet to find anyone who can even prescribe an MRN for pudendal neuralgia to find the places of compression
Can Pudendal neuralgia cause pain in the sacrum??
Peace be upon you, Doctor, 14 months ago I had prostatitis and I went to a doctor who had an anal ultrasound. He began to apply pressure and I screamed in pain. Since then, strange symptoms appeared, and I began to suffer from pain in the anus and perineum. I cannot sit at all, and any wind or cold, even a slight one, increases the symptoms. Urinary tract and pain. Is there a cure for this problem? Is it possible that I have an infection in the pelvic nerve?
Thank you very much. God bless you and ur loved ❤ones good health 🙏 and happiness
Very kind of u to pass ur knowledge to us.
Excuse me the course of cure pudendal neuralgia can be in spanish?
hey puedes mandarme tu contacto por si quieres traduccion
Hello doctor, I fell of from stairs and got myself injured and sit bone near tailbone got injured, but after few years i started getting bladder spasms with frequent urination and stiffness near tailbone. It happens mostly with sitting and during night time i feel completely fine. And also my hip flexors are tight, I also use to sit with crossed leg all the time in the office.Is that pudendal nerve causing this stiffness?
Sure.
I just learned my systems were from the sacrotuberous ligament. Chiropractor did a technique that released the ligament and gave me instant relief. The ligament is attached to your sacrum so your sacrum could be moved just a bit.
Can it cause significant muscle atrophy in the left side buttock and thigh?
So you guys can help if the compression is muscle related, but what if it's compressed in Alcock's Canal or between the sacrotuberous and sacrospinous ligaments? In that case wouldn't it make most sense to get an ultrasound guided prp hydrodissection?
Tommy did you find our what to do? I think mine is caught in between scarotuberous and sacrospinous
In hope of an answer
You need a guided nerve block
done transgluteal via your buttock with anesthesia and steroid
Have recently been diagnosed with this . I have s1 and s4 disc bulges , and the nerve has been affected somehow . I get the feeling in the end of the penis , and it seems to be worse in the morning . When I walk and move gets less . I have been diagnosed with prudential neuralgia; but still having issues helping it .
Hello John, great to hear from you! Did you already start our online course to cure pudendal neuralgia? Also, feel free to write us an email and talk about it. Happy to hear from you :)
Hello, John. Can you send me an email and talk about a little. I have the same problem. Also if you want Instagram or something other. I will be happy to ask you some questions because i do not find anybody here with this problem. I will also ask @AidPlan. Thanks in advance!
@@aidplan9091 Can you please give a link for this course, and perhaps some more info? Thanks
Hi John, I am having the same symptoms. Any luck?
@@aidplan9091
Can i have your e-mail, i need som help plz... Thanks
Will there be a follow up video of the exercises to do .
Hello Smokey Joe, we have a whole series on this topic :) You might want to check our online course on treating pudendal neuralgia. Go to our website or click the link under the video for further information. Maybe see you soon in the online course :)
My pudendal seems to be compressed near the sitting bones Bilaterally but no one can explain this! How can this happen or what can compress it near sitting trochanter areas
I'm in the same boat and it ruins your life! I'm on year 5 and nobody has any answers 🥺
It also moves around making it so confusing 😢
It ruined my life, started in 2015... but I continued my biking exercises.
I just quit biking after 8 years.. so I will see what happens next...
Thanks for this video ❤
Same case brother how are you feeling now
Have y’all tried releasing pelvic floor muscles during exercise
I have similar extremely bad pain in my genital and started in year 2020 when i was sick may be due to corona and then i started cycling too much in weakness and everyday i come home with swelling in genital and soon i started having pain after sitting in morning in office for few hour and initally i thought its urology problem and was given too many strong antibiotics for year , then after 2 year of very bad pain everyday i realize myself that in night pain goes away on sleeping and its not antibiotic which is helping and no neurologist or urologist able to diagnose every report come good and doctor say i am perfect , this is my exact problem for 3 years and i am still suffering every day , please help me with any medicine or exercise as i am very depressed
Try varicocele surgery.
Pudental nerve irritation can cause recurrent UTIs in both men & women. Urologists often diagnose this condition as Chronic pelvic pain syndrome (CPPS) in men. I have been suffering from cpps from last 13 years. I am 32 currently. Pain used to happen in my groin area & it was in vericose vein. Doctor classified it as vericocele but even he wasn't sure about pain because it was constant. Thankfully, I had the surgery in 2014 & pain never occurred again. I still have recurrent UTIs though. I would have a pelvic MRI & will look into this information that you have shared. Urologists across the world are stupid it seems.
What is the name of the operation
hey where was the surgery and what was the name
@@bluenation6379 Vericocele surgery. I had it in India for about 1000$ .
@@stonecold3979 replied!
Do u think yeast infection can cause this?
is it curable or not ???
Is better try to walk every day with no effort, than stay put?, Just laying down? I have this condition for many years. I get cornered. Do you think it's better to keep moving, taking short walks every day?
always better to keep moving as long as you aren't damaging something
🙏thank God respond well with 100mg tramadol 3 times daily🙏
Any side effects after taking Tramadol 100mg. Constipation will be there. I am taking since last 13 years for PN.
Pregabalin works like a miracle for me the pain started when i used to do heavy gym especially the legs
@@jeehpradoonormally in 2 weeks
I've just started pregabalin for this ,can you please tell me how long it takes too help
I've noticed some relief with this medication as well. I'm on a very low dose, but I started feeling improvement within a week. And far less side effects than I had when I was on gabapentin.
@@MdnightWnd I've not noticed a improvement yet be taken pregabalin since the start of December on 100 mg per day with no side effects and they don't make me feel hungry which is a plus hopefully they will help
@@pb.f.1
My dosage is only 50mg per day and thankfully I haven't had any weight gain or increased hunger. However, I also take hydroxychloroquine daily as well and that suppresses my hunger so that might be contributing.
My doctor told me it could take a month or more to get any relief from the pregabalin and also said the dosage might have to be increased. So hopefully with a little more time it will start to help you.
What if there is no pain, but lack of erogenous sensations and erections?
Does this cause frequent urge to urinate
So is this program designed to cure the condition or just manage it? Because I have had this for almost a year and I am fed up with it past my limit.
No cure.
You'll have to buy the program.
Suprise, Suprise.
I get this sporadically, I’ll feel it for a few seconds, then I won’t get it again for months, for me it usually happens when I sit down too long and then I stand up and stretch my abdomen, it’s like there’s a rope attached to the left side of my lower left pelvis and runs down to the tip of my penis and it’s getting pulled casing a burning stinging pain on my penis tip to my lower left pelvis. I’ve been trying to explain this to people for so long and I get laughed at, they think I got a std, or they don’t know what I’m talking about and find it weird.
I don't have pain. But get relapses of back pain and have chronic hip pain. When I get relapses of back pain I get a complete erectile dysfunction. The function comes back somewhat when the pain subsides. But I have to tilt my hip/pelvis sideways while trying to achieve an erection. If I don't do this, nothing happens. I also sometines get like static electrical impulses pulsating down into the left leg and/or the penis. Pretty subtile but during these periods I also get a complete ED. Since I at these periods doesn't get nightly erections either it has started to shrink in size when I have periods when I can get it up. I think I've lost 2 cm in a year. >.
Hi Doctor, I had a fall 3 months ago. After a couple of days, I had a fever which lasted a week. And I felt discomfort burning sensation on my testicles, inner thighs, and anus. I also noticed the vein on my head of penis is very obvious and feeling a little swollen. Now, the feeling just comes and goes. I also have a very sore back pain as well as knee pain. May I know what condition am I having? I'm feel very lost and depressed.. 😢
I have the same symptoms like u
But no fever
This is an incredible light bulb moment for me. I, a man, was sitting with my right leg crossed underneath my left thigh, for years.
That must've contributed to what I went through recently. Am improving, just some pain and discomfort which will disappear, I believe, with simple correct sitting.
Sitting on a travel pillow (donut u shaped) is recommended. Thank you doctor.
how you now
@@SouravMax-dt8xn healing very well thanks. I think what happened was stress, caused temporary issue for months with peripheral nerve, which affects pelvic floor function, and continence.
As body went into repair mode, everything got better. A big thing to do, at least a few times, is pelvic internal therapy.
Use finger or pelvic wand, even better, into anus, and do myofascial release of any tight pelvic muscles.
@@darrenwayne8263 dude what ws your symptoms before.... do you had sitting pain... or urinary problem.. i have pain while sitting in hard surface.... and urinary urgency... what you suggest me to do... get rid of this pain...
@@SouravMax-dt8xn I had the incontinence, pelvic pain, couldn't walk properly for a couple of months.
I'm not an expert, but it sounds Ike it's your pudendal nerve. Fortunately, the pudendal nerve regrows and heals.
The amount of time it takes differs depending on severity, but you will heal. For now, meds can help. I took pregabalin, was good, still taking for a bit longer.
You'll get better for sure.
@@darrenwayne8263 yeah... thanks dude....
But why does no one say if it can be healed naturally? Can it go away on its own within 6 months of injury?
You will recover in a few months, don't worry
I'm getting juddering from my penis and back side had the pain in my back side for years maybe it could be this ?
Did you sort out... I feel compressed from sports and actually pain not while sport but next day. I start to make some pelvis exercises to release pain
Gabapentin might help but it robs me of my memory, balance and gives me peripheral oedema.
Hello sir i have got penile fracture ....what to do now ....it happened 5 6 years ago but didn't recover
Why Is nobody talking about the fact that sexual activity is a definite no go and non-existent and also having bowel movements are nearly impossible now?!?! Has nobody dealt with this as long as I have and nobody got into this point yet. And why is mine so bad and why is there nobody in my area that even knows what a prudential nerve is??!? Why have I been to 10 different specialists and nobody even knows what this is much less how to help me???! I am flat out telling these people what is wrong with me and they still can't. What open a book open Google??? I'm diagnosing myself For Fuck Sake!!! I did the hard part. I just do them to do the research on how to help me! I've been living with this for 20 years looking for answers!
You should thanks the Internet.. it is not common and nerve trigger stuff all over so need nerve specialist
dear I am also suffering of sciatica and pudendal nerve issues as I am suffering of L45and S1 disc issue ..but still I am trying to manage ....yes ur sexual activities may compromise but still u can manage with fascia release and physical therapy only..if don't wannt to go for the surgery
Also heat compression relieves the pain
Who treated this guy, im literally that guy early thirties and 4 years of this pain. Where is this guy i will go there
Does it affect fertility?
I don't have any pain during sitting but only symptom is pain in penis during urination which get worse after cumming ,weak pee stream , symptoms comes and goes from last 5 months. Could this be pudendal neuralgia or CPPS?
I do have same kind.. I did all test and I am all ok. I think I do have this story cause I sit like shit and I need to stretch and find the way lol..
Yes. I got this.
Try Surgey. May 29 2020
Help me
Got this pain. After. Injection. For. Low back spazzing.
May I ask.. what kind of surgery did you get?
The Plastic Surgeon did a Reconstruction. Told me.
So the pain at the tip is bad when am sleeping.
I feel sometime I want to rip off it’s so bad
Thank you for talking to me.
Doc my pain is exactly on the nerve path you said with muscle dysfunction...thank you for your info is it possible to speak with you??
Sir I have same problem as you described..... I had gone through various urologist and Neurologist for last 7 years but nothing helped. Currently I am of 31year and my life quality has totally destroyed. Plz extend your assistance
hey i am from india also.... can you please tell me what your symptoms...?
14 years of pn entrapment....floss & pelvic therapy
What are you doing to control pain. I too am suffering since 14 years. I Tramadol both the times, siltz bath as and when required. No sitting at all. Hollow cushion for limited sitting for dining etc. Pain is unbearable during cold months and in hot summer I am able to manage better. Are you in India?
I am not in India. I rely a lot on my guashua, simple stretches, yoga, prayer. Ice packs and warm baths (Epsom Salts or Soakness). I receive Pudendal blocks at the hospital when I can no longer tolerate the pain. I also get therapeutic massages which help the myofacial restriction.
Does neuralgia cause urinary symptoms. Like hardness of peeing?
Yes
I’m 32 y.o man who have been suffering from this condition since 5 years. I went to many doctors and they were thinking I have a psychological problems and there’s nothing with me until a good urologist told me it’s pudendal neuralgia 😢 what really make me sad that there’s no cause for my case I’m not a bicyclist, I had no surgery or accident. It just happened to me for no reason 😭 why! Why! 😩 will it become worse by the next years?! Nobody even my family believe me and think it’s psychological while I’m suffering everyday. I haven’t been in sexual relationships because of it and I’m afraid to get married. Anyone can tell me if it hardly affects sexually?
I’m 33 and I’ve been dealing with this since 17. It just happened and no doctors could ever help. Sex can hurt sometimes but not always. It can be irritating after sex a bit. I still need to go and get diagnosed with this because I believe this is what I’m going through. Hope your situation gets better. This really sucks
One of the guys in the comment section had same problem. He got well after varicocele surgery (or embolization). Try this because there's no treatment for cpps or pelvic problems.
Do you have urinary symtoms? @@Travis-hr4pi
Pudendal Neuralgia is TMS (Mind+Body Syndrome). AidPlan does not recognize this, and the effectiveness of the treatment is thereby limited.
This is the case when u have tight pelvic floor bacaude of anxiety.
@americandream9473 Anxiety is usually a part of the TMS mechanism, yes. I had pudendal neuralgia on my left side for years, diagnosed by numerous professionals. It was all TMS, though, and disappeared completely after 2 months of following a TMS protocol.
@@Jonas36457 what is TMS protocol?
i have pins in needle in my balls and dick tip what excersises should i do its not severe.
Is it this nerve if you have chronic burning just in the anus ?
I have had this problem for 22 years, but the idiot doctors in the UK keep referring me to urologists and gastrointestinal consultants all these years. The British NHS can definitely kill you.
how are you man ?? are you painfree now
@@anonymous-dg7lb A little better, but getting treatments in the UK is not easy.
@@armandoneri3607 im also visiting gp more than 4 times they are clueless i told them i have pudental nerve problem .what kind of treatment you doing now.....?? can you explain me in detail thanks
please tell me, does this cause scrotal sagging and penis swelling?
Hydrocodone helps me
Is Masturbation causes this?
Yes it can happen when you excessive masturbate often
Sometimes
@@pb.f.1 have you suffered from this?
Does this get better on its own
@@adityalotankar4306 not in my case ,my doctor put me on pregabalin but it's not helping
@@pb.f.1 what are your symptoms
Sir i am 23 year old from the age of 20 age I feel pain in my genital area between the region of labia minora and majora clitoraial region perinal region and when I am sit i feel stinging sensation in my vaginal area burning when i pass urine it cause burning sensation in vaginal area I cant even keep legs together sometimes i had consult to many doctors they check my vaginal area vulva but they can't find anything but i still feel pain i can't even touch my vaginal area what is its cause i am unmarried yet but I feel pain still
You will recover in a few months, don't worry