Holding In My Tics For As Long As I Can | TOURETTES CHALLENGE
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- เผยแพร่เมื่อ 14 ต.ค. 2024
- Hi everyone! Today I am holding in my tics for as long as I can to prove a point! My point is that Tic Suppression is harmful!! It's honestly really hard to hold in your tics, so encouraging people with Tourettes to hold in their tics is really upsetting and rude. This is a Tourettes Challenge & I hope I can provide some education through holding in my tics.
As a girl with Tourette's, I would love to spread awareness and education about my disorder, as I feel it is quite misunderstood in today's society. The media has made it out to be a swearing disorder only, which is far from true. I hope this video will educate you on Tourette Syndrome and tic disorders! Life with Tourettes can be difficult, but just know that we're the same as everyone else...except for the fact we tic like clocks! (:
Thanks for watching!
Follow me on Instagram! @ticcingclock
TikTok: @ticcingtogether
Please don’t do this again I don’t want you to hurt yourself
How would she hurt herself???
@@Rosey-yx5xe Tourette’s syndrome often causes some to hit them selves…very dangerous if you have something in your hand…even a pen can hurt you
@User720-ik6mvwrong
@@Rosey-yx5xeFrom what she has said about tourette’s, it can be pretty bad for people with tics if they fail at doing their tic when needed.
Think of tics as like sneezes, you cant control them and they can sometimes hurt, but if you hold a sneeze in it will hurt way more.
Omg, it's so valuable that you described the impact suppression has on your emotional state. I get this so much and I felt really alone because I didn't hear/see anyone else talk about that. I also have a tic urge that feels like suddenly needing to cry and if I suppress it, I do actually end up crying, which is still crazy to me. Suppression makes my whole body feel wrong and that I need to escape it.
I think it would be better for you if you only talked about the effects of suppression, without forcing yourself to demonstrate it. It's sad that pain gets people views.
I'm totally with you. If I suppress I get overwhelming anxiety. Like everything is sooo wrong and I'm so uncomfortable! It's the hardest to explain to people whom don't have these issues. It's wonderful to have a place of people who understand you 💜
Damn girl, I’m so sorry. You are soooo brave to put yourself out there online to raise awareness.
Thank you 💜
I tried suppressing with her and didn't let myself move until she did and I can not describe the pain that suppression puts us through, I absolutely love the way she explained it, it's just so many negative emotions and physical feelings building up in my bones
100000%
i love the way you described everything! i have autism and do experience mild tics but how you explained feeling when suppressing tics is exactly how i (and many other autistic folks!) feel when we're forced to make eye contact. it's such a simple and very integral social thing but for me it feels like i'm staring into a thousand brightly burning suns. my eyes water and i get a tight knot in my guts that hurts the very fibers of my being. my soul is screaming in pain lol
thanks for helping to end stigma around health and mental wellbeing. i've only just found your channel but i've been binging and you are such a wonderful and beautiful human! i hope you have a fantastic day
I have ADHD and tourettes and autism and functional neurological syndrome so I can relate !!! 🙋🏾
I have adhd and T1D
Suppression is very hard. Not only that, when you finally “let loose” they go crazy So to speak!
The best thing to do if possible is take up an instrument or sports. The concentration can really help. Guitar and football really helped my son.
you look so cute in this video! also, thank you for making some of my favorite TS content on the internet. I love how your videos feel relatable but they don't feel like they're made to be sensational. also you explain suppression so well! I can only surpress if I'm not trying to do any other activity. I have to give it my full energy. I can redirect certain tics, but very few ones.
Honestly you made it longer than I thought you would. Why on earth would anyone want someone to suppress tics? It’s quite obvious it’s involuntary. And now that I see how uncomfortable this is for you, please don’t do it again (just replay this one to make the point). Thank you for your content Carly!❤
Btw, the hood is adorable! 😊
You are a great person for explaining to people how it is to have Tourette's Syndrome. I think there are way to many people that have little to no knowledge on the subject. PLEASE, PLEASE DO NOT suppress your tics anymore! I could see how much that hurts you and I literally wished I was there to give you a hug watching you suffer like that.
I came back after 30 minutes and she already gained 200 subscribers. I won’t be surprised when she gets famous in a mere week.
Omg watching the pain and distress that caused was horrific. I have severe misophonia so I can understand that awful feeling building up. Thank you for educating us!
I don’t have tourrettes but i do have anxiety induced tics and i cycle through them and specific tics can last months or years at a time. If I’m calm/sleeping they can stop. But trying to make myself stop just makes me tic harder and it’s so painful. I hope you’re ok!
Also i agree on how ticcing hurts but trying to stop it hurts more. I wish I didn’t tic because I’m constantly in pain.
I’m 24 as well, with relatively severe tics. I found this video really interesting and a lot of the things you mentioned about the feeling of suppressing tics are spot on and it felt nice to see and hear someone else my age who experiences the same kinda things I do on a regular basis. I’ve not met many people irl with Tourette’s, let alone anyone around my age or anyone with a similar severity of Tourette’s.
But I really enjoyed this vid, thanks for making it!
Oh shit. I didn’t know about the conscious/subconscious ticcing thing. That totally explains how I’m able to like have dinner with my in-laws and shit without making facial movements or swearing (they’re very Catholic and I’ve literally never heard them swear in the 15 years I’ve known them). This explains a lot. Thank you.
It’s like me with stimming although I can control it, not doing it is highly uncomfortable.
First, LOVE peach on you! Also, I pondered if the tingling sensation in someone's leg, i.e. restless leg syndrome maybe a "sorta" comparison? I don't struggle with turrets personally, but my dad struggles with restless leg syndrome; he says it disrupts his sleep due to this urge to move his legs. Like he knows he should lay still in order to sleep, but he can't because of the tingling.
I love your content so much, can't wait to see more🖤
Thank you for sharing your experiences, you are very brave. I used to (and yes I say “used” to because I have gotten the victory!) struggle with OCD for about 16 years and though it is not the same as Tourette’s, the unbelievable urges you get with OCD are incredibly strong and difficult to suppress. I know from experience that talking about your tics bring them on triple time, so again thank you for such bravery.
What is the difference between ocd tics and tourettes tics, i m so confused , i have urges in undearms but i ignore them to a certain period but in the end i m move my hand.
@@mayurgupta1649 I didn’t know there were ocd tics, I know ocd can cause tic disorders tho. Sorry if I’m wrong and uneducated haha-
Everyone has some form of tics, it’s kinda normal ( as far as I know ). It becomes a disorder when it effects your everyday life and stops you from doing everyday activities such as learning, work, and other thing that I’m to tired to think of right now. But if you search it, it’ll all be there for sure
I was literally doing with you lol. Suppression is so terribly UNCOMFORTABLE. My eyes started watering too.
It is painful. I have Tourette’s Andy I know exactly what your talking about. it’s the strangest feeling in the world, but it is definitely comparable to pain. it’s just really strange like almost like the feeling of needing to breathe when you’re holding your breath. that’s what it feels like exactly you want to breathe, but you’re trying to hold your breath as long as you can. that feeling right before where you want to breathe but you’re trying to hold your breath longer. That is the feeling that it feels like when you’re trying not to tic. it’s awful there’s nothing that I think I wished more than that I was born without this disorder.
Thank you for informing! You are very nice to listen to. Is it maybe somewhat similar to trying to supress an itch that you can't physically touch to scratch? It's probably way far from the actual torture you experience, but I just thought about it
i don’t really have a different explanation for suppression because you really hit all the topics. it’s similar to an itch or a sneeze but none of its on the outside of your body, it’s all internal. it’s still a physical feeling but when you’re not ticcing you can only feel it building up inside of you. when you would finally tic it it would feel like you’re scratching that itch, but as only the action and then the relief, but not the itch itself
suppressing is also just annoying to do because like you said it’s all i can think about, stemming from that it makes me angry that I would even have to do it to look normal. especially the “stop doing that it’s hurting you” is so oblivious and so common at the same time. my tics have led to me hitting myself and others. my foster parents threatened to send me to a psych ward for it which my own therapist even agreed to, saying I could always control it. the only reasons i didn’t was because i got a new therapist and a new family placement before anything was finalized. everyone in my life refused to believe I had tourette’s so i always suppressed, only ticcing when i couldn’t control it anymore or when i was alone just leading to even stronger tics.
I wonder how the feeling of supressing tics compares to "urge to breathe" that freedivers feel on long dives. It is very unpleasant feeling, fighting against normal function of ones body. The dive is worth it though, I as an asperger love it when water hugs me, it's very calming.
I have tics, I got diagnosed when I was really little. Mine aren't that severe, and don't happen way too often, but when I try to suppress them, it makes them way worse. Please, people with tourettes reading this, don't try it.
When you surpressed your tics, I could see you were not yourself. I saw sadness and not a glow your normally have. Please be yourself and don't hurt yourself. ❤️
I love how you explain things💜
I don't know if it's the same.. but I think I kinda understand.. When I have a rly bad case of anxiety I feel a pain in the core of my body and limbs that I cant describe and I feel the urge of doing repetitive moves by contracting my muscles or else I start getting rly sick...
I don't think I have Tourettes but I do twitch or jerk my head a lot, especially when I'm feeling something I consider negative, and I don't think about it... like I don't go "Hey, jerk your head!" and do it. I don't realize I'm doing it sometimes, and before I clicked on this video I tried to stop doing it and it was the worst tingling feeling down my spine of the urge to just jerk my head. People can think I'm weird if they want, I don't care, but I'm so sorry you have to deal with the painful parts of Tourettes, that being said, you're a wonderful lovely person and should be anything but who and how you are/want to be and I thank you so much for your honesty and intent to educate.
sounds like compulsive tics, associated with ocd. I have had them :((
I may have read your comment wrong, but if they're associated with intrusive thoughts then it sounds like ocd
You are so strong :) I feel bad for you, but you’re wonderful!
❤️❤️❤️
As someone without Tourette's, the closest thing I can think of to the 'burning' sensation is when I get Restless Legs. I HAVE to move my legs, I don't WANT to move them, but when my body is run down and tired I get them and its the worst. I don't get them super often (RLS) but if I think about it I can almost "trigger" it? It's the worst.
From what you're saying your Tourette's is like that but on steroids! I don't envy having to hold them in like you did, and I want to send all the good vibes of happiness to you!!
Thank you for being so clear and informative with your videos, it's nice to have someone correcting the record out there
I know I'm pretty late to this but I recently devolved tics (no one can figure out how or why, ER doc said it was "a neck cramp") and I hold in my tics during school most of the time bcs Im already prone to bullying. Anyways, my mother found out about this and asked me to hold in my tics around her and omg that *broke* me. I explained it was painful yet she said "well what if I bullied u too?" few days ago I punched her in the face for mocking my tics again. I know I shouldn't have but it was genuinely on instinct and she's already put me through a lot. Anyhow, thank you for making content on tics! It makes me feel normal again ❤❤❤❤
TDLR; I hold in my tics to avoid bullying and my mother threatened to bully me as well to hold in my tics around her and she gets punched in the face later on.
Notice how she doesn't have nearly as many subscribers as those who sensationalized tourettes. Or those trying to make tourettes funny. Says a lot about how sick the world is
. If you want to know hiw bad it can get if ou hold in tics..my daughter used to hold in her tics at school all day. Not because she cared what others thought, but so she could try and hear her teachers and get her work done. She would come home and have full blown tic attacks. Leaving her exhausted. She has posted vids of her tic attacks only. She doesn't want a following and doesn't want to talk about tourettes because it became "trendy". But not all tourettes suffers have tic attacks, so she wanted to show her body and verbal tic attacks. They look like seizures, but unlike seizures, she is aware of what is happening around her and can even talk sometimes to us and even look over at us. She is aware the whole time, but just can't fully get away from it.
I just started looking up Tourettes videos after I found out my favorite rapper, Kydd, has the same condition.
You seem like such a kind soul, very real, very pretty. Hope you have a nice day ✌
Going through heck but showing and discussing something so important for people to realize. You are amazing! When someone says, just cheer up, to someone with major depression it is very similar, but it’s in one’s brain. It’s just awful and painful, insensitive, infuriating, depressing and stupid. People can be idiots, like someone is choosing to be ill, to stand out, seemingly weirdly. Do they say to a cancer patient, stop the cancer stuff?
I didn’t know what else you’d say, but I knew you were going to say the terrible, burning, feeling. That stuck in my brain after the MRI video.
Hope your doing well. 🌻🌻🌻
Guuuuuuurl I kinda know how you feel with repressing your ticks. I have severe restless leg syndrome and if I hold my legs still when I’m having the urge to move them, it seriously burns. It’s painful. It tingles and feels like my muscles are crawling underneath my skin. It’s awful. I’m always wiggling my toes to relieve the discomfort.
I have severe rls too, I’ll try to keep my legs still and the burning gets so bad, it’s so hard to explain to people so it’s nice that someone knows how it feels, not that I want anyone to suffer bc it’s awful!
I cannot even imagine this. When my psoriasis was at its worst and I would scratch it, my husband would tell me to stop scratching. It would make me so mad. If I could have controlled the scratching I would have. When the itch is beneath the skin and you feel like you have to scratch your skin off to get to it, there's no stopping it. It was painful and embarrassing. I am so glad my psoriasis has calmed down tremendously because it was causing so much mental anguish it was terrible. It was the worst on the bottom of my feet and I had thoughts of what it would be like to have my feet cut off to get rid of it.
yes, my TS has increased to inappropriate vocal tics and such and now im so much more aware of ticcing and I supress around my s/o family.. bc im so uncomfortable around them yet.. but then when I do get to the car or home, the tics I have are so much worse even like a tic attack sometimes. Painful and feels like hot HOT electricity is shooting through me when I supress. But when it naturally happens by being distracted or focused by another source then I don't get those same feelings bc my body is naturally just not ticcing in that moment
My mum knew a surgeon with tourettes and he'd suppress them during surgery then afterward he'd go and tic for an hour or something (it depended on how long the surgery was) and I always thought that was really interesting
That’s so interesting!!! Thanks for sharing!!
@@TiccingTogether No problem! I'm glad I'm not the only one who thought it was interesting
I wouldn't want him operating on my brain, I say that with someone with tourettes
@@voluntarism335 fair enough, I think the thought of that would make most people uncomfortable
That can not be heathy please don’t hurt yourself 🥺
I love your hoodie! Also don’t hold back tics-
I tried to suppress my tics along with you. And like you, my less prevalent tics started going off 😂 Like my brain tried to "sneak" some tics and hope I wouldn't notice! 🤣🤣🤣 Weird!
Suppressing is exhausting. I do it all day, every day, but slip all the time because of the constant conscious effort it takes. My evenings are always a pure tic-orama 😅
Please girl don't do this anymore...no one wants to see u hurt. Much love girl❤❤❤
I love your good! I hate that all your life people have tried to force you into suppression. You're so strong and beautiful ♡ please don't do this again. You are YOU ♡ it brought tears to my eyes watching this :(
I followed along and you lasted longer than me, haha. Granted, I probably failed because I'm really inattentive and I forgot what I was doing. Generally I find stimming helpful to reduce my tics, but (as far as I know) I don't have Tourette's, I'm diagnosed with functional tics.
The best analogy for people who don't experience tics I've found, is the feeling you get when you consciously try to keep your eyes open for as long as possible without blinking. With an itch or a sneeze, it's possible to ignore it until it goes away or hold it in, but when you're trying not to blink it's *going* to happen. No matter how hard you try, and the longer you try to hold out the more excrutiating and all-consuming it becomes. That's what it feels like consciously trying not to tic
do not torture yourself like that anymore, I adore you as you are 😘❤️🤪
Honestly, I am really glad I came across this video! I want to learn about these things so that I don't judge others unknowingly. My biggest fear is coming across as judgemental, so thank you for educating me!
There are certain tics that I try with all my might to not let out. Like, about admiring my wife a bit too much, lol. I need to think clean thoughts, I need to be focused on something and redirect my focus to keep away from certain tics sometimes. Like changing the subject may make less obscene tic to come out. What I read I occasionally blurt out, etc.of course there are times that can be a real issue, like while playing a game where you should keep what cards you have secret, etc. Or in an exam, etc. lol. Thank you for sharing! I also share about tics on my channel
My best way to describe mine is a habit is something you can develop while not even knowing. A tic is something you try to hold in and it's a process, you know it's coming and want so badly to conceal it. But eventually it comes out even worse for me. Telling some one to stop ticking or asking if it's contagious is like asking a cancer patient to stop having cancer or if cancer is contagious. To me it's hurts so emotionally and mentally and physically, because although my own comparison is harsh, I have a friend who had stage 4 cancer- ovarian, stomach and breast cancer + tourettes and corperalia and she almost died so many times and so back to the story, it's comparative because it's something you have to deal with and you never know if it's lifelong or if it will ever stop and you definitely do NOT outgrow it. It's extremely painful overwhelming and sensitive to people. They make jokes about the cussing and people don't understand it's not an excuse. We really can't just stop all of a sudden just for your comfort. If someone asks if it's contagious or if we would just stop it's basically asking something so insensitive you're asking us to just die or cease to exist. it's humiliating and makes the tics beyond harder on alot of us. Telling us to stop makes the tics go against us like someone inside of us trying to control our actions or words on a daily basis without our own bodily consent and that person controlling us inside is WANTING to hurt us. It isn't possible to stop! I was put in the hospital for trying to stop for a rude person and I didn't know any better I was like 5 I didn't even know what was going on. I was in the principles office first day of kindergarten and my teacher was the one who needed the education on tourettes syndrome. Aside from that it's nothing to ever be joked around by. We are people too, some of us don't even know we have it!
Are there any tics that you couldn’t suppress for even a second, ones that just come out? Love your content by the way ❤
this happened to me with this ear-wiggle tic I have when I was suppressing along with her. I think it's because it's one that I do so often to lessen the urge of bigger tics when I'm around people especially at school (it helps because unlike a head roll or an arm jerk nobody ever notices it, even less than a blinking or eye roll tic, and it's more convenient than letting my hands tic like under my desk because it'll probably getting in the way of my doing something eventually)
I imagine its like having an itch you know its there and you are told not to scratch it for some reason and it gets worse cause you are thinking about it. I think its awful that anyone tries to make people suppress who they are and how they are to make the rest of society more "comfortable"
Dude I tried to do it along with you, I had to force myself to blink “right” cus I have a lot of blink tics and it was SO HARD omg
I know that feeling of holding tics, it hurts. My tcs are very mild, but when they do happen it hurts more, but holding them in is worse
I tried to follow along and see how long I could consciously suppress my tics. Oh my god about 30 seconds in my neck felt like it was going to explode if I didn’t let it out.
YUP it’s so hard 😅
Although I don't have tourettes I do experience tics on a daily basis, usually my neck but sometimes hands and arms as well. When I try and stop the neck tic, it feels like there is a pressure holding it and doesn't go until that tic. I very rarely get vocal tics, just muscle tics.
Love your channel Carly. One video at a time, you are spreading the truth about Tourettes. I have a question though regarding your tics.
Can you please provide me with some tips on how to somewhat 'control' tics. I don't have Tourettes syndrome, however, I have been diagnosed with anxiety, of which is causing my tics. I have no idea what to do. I have a tic where I flex my eardrum muscles or something, at the same time I also move my chin. This tic has actually become quite frequent, I am doing it all the time and it is really hurting my throat, jaw and neck. I have tried to suppress it, however, it still keeps happening. Thank you.
As someone who had to hide their tics my whole childhood due to abusive family who didn't allow unnecessary movements and noises I wish people understood how much pain it causes to suppress tics
You are beautiful and such an inspiration. I hope your channel keeps growing
I don’t remember this but I’ve been told that when I was younger, before I was diagnosed with turrets my parents would get me to stop my tics, obviously not a good idea but they didn’t know what they were at the time, I apparently got so bad that I was banging my head on the walls and tables and scratching around my eyes until I was bleeding.
They took me to see what was going on shortly after that because they were very worried, needless to say that they didn’t try to stop my tics after they found out I had turrets. I was about 3-4 years old when I was diagnosed with it thankfully, maybe 5 l don’t remember my exact age but it was quite early 😊
the best way that i personally describe tic suppression to people, is imagine you're in a room full of people, and you get the urge to cough. you don't want to cough, since you don't want people to scoot away from you out of fear that you have covid. so, you hold the cough in. the longer the cough is held in, the more uncomfortable it becomes, and the harder it is to focus, since you're exerting so much energy just into not letting the cough out. finally, you get to a spot with nobody around, and you let the cough out. the cough is 100x worse than it would've been if you just coughed when the urge first came up, but since you suppressed it, now you gotta sit there for 30 minutes with water having a coughing fit.
now, sometimes when you first get the urge to cough, you can suppress it, and it will go away. your throat feels weird, but oh well. and sometimes, as a compromise, you can try and cough quietly, or play it off as a sneeze. it depends on how bad your allergies are that day
but, that's what tic suppression feels like for me
("cough" doesn't look like a word anymore lmao)
Thank you so much! I'm about 4 mins into your video and I have thank you for showing such vulnerability and knowledge. My son is 9 and he has these quirks (sounds, movements) that he does a lot at home, in the car.. he calls some itches and some sneezes. He said he surpress it on class but it feels uncomfortable and it comes out in class. I think it's stimming (he has autism and ADHD) coz its Happens way more out of school but I have wondered about Tourettes
when I was little my parents sat me down and made me do this multiple times. It was the most stressful and frustrating thing ever. neither of us knew anything about it so i know they had good intentions but it was hell
I get restless leg at night and suppressing that is so difficult and uncomfortable so I understand how suppressing your tics must be... the description of burning and aching is a perfect description 😞 it must make you exhausted and so frustrated... ❤
This is exactly what I thought of too. Trying to sit still with RLS sucks so bad. Makes me wonder if maybe there's some kind of connection.
I think I have rls, but there is no way to suppress it at all, I just can’t. It just every night or so, moves and shakes in a way I can’t control but whenever it happens once I get so scared I can’t sleep all night plz help 😢
I have restless leg and arm syndrome and it will literally make me crazy if I try to suppress that.Feels like needles and tightness all over and more intense if you try to ignore it
I don't have tourettes syndrome, but from what you're explaining, I think you could liken it to a person who is having explosive diarrhea being told they can't use the restroom and must hold it in. They might be able to hold it briefly, but it's going to be painful, they won't be able to think of anything else except pooping, and it's not going to be very long that they can hold it in before it just comes out.
My tics are supprisingly good today so I decide to watch your videos when my tics decide today we are not going to throw my head into my wall...
I've got to say I'm so glad to see this and how you have explained it, I've done things like that all my life , I need to always stretch my neck and do it that long I pull a muscle on my trapezius, I always have to have my hand on my chest when I do it , then need to open when regular , I always get a stretch that comes in a different places on my body and cant just leave it, when I try to stop it I can a little but just like that I do have to blink my eyes a lot near the end, years a woman I seen asked me "have you got torrettes" and I didn't know it was called something like that, and when I try to stop I can feel it part on my back starts hurting and inside brain its screaming me to starting to move something, I am so glad how you have explained it and i thought yes someone actually knows it and made me listenin and understand it more, I've not been diagnosed all this time and maybe it could be getting me the help I need , thank you very much, all what anyone with the same problems will get a lot better, very much appreciated!!
I'm keep watching more of your videos and I didn't realise that's what causes me having me have to cough constantly, I'm so glad I've seen this profile now, you deserve, you deserve a number 1 trophy for this!!
Ha, maybe I should do this one next.
Day 2 of asking
I don't know if I have torettes because every so often i'll tic/twitch and I really want to know.
Can you make a video stating how to find out you have torettes? I'd really appreciate your help if you did!
I think I have anxiety tics. I think I may have anxiety as I get really worried easily and have panic attacks often over small things. When this happens (mostly as school) I jerk my neck and make a little "oo" sound like a whistle. I get called a faker and an attention seeker and I really don't know what's going on ! I would really like some advice please:(((
Yes please don't hurt yourself xx
I apologize if this has come up before, but have you looked into CBIT/HRT? (Habit Reversal Training, *not* Hormone Replacement Therapy! That's very different!) There are videos here on TH-cam of the process in action, and it's remarkable.
Suppression is hard… but it’s actually a way to treat the disorder. I’ve worked with several people with Tourettes and using CBT interventions with pharmaceutical assistance, some people have become asymptomatic. I’m not saying it’s easy in the slightest (and people with severe tics have a very hard time with treatment).
Edit: I should add that no one else should “force” someone not to tic. I’m talking about in a therapeutic setting.
Do you tick when you’re afraid or going through any strong emotion, like anger or sadness?
When you go through any strong emotions whether your happy,sad,anxious,or angry it can make you tic more I’m not sure if that’s for everyone but for me it is worse
When my daughter gets super happy and excited her tics go crazy.
I know for myself, any strong emotion triggers my tics. I have learned how to keep myself calm which helps keep the tics down a bit. I know when I have a lot of caffeine or am really hungry or tired I also have tic attacks or they come out a lot.
personally, its harder to suppress them and you can't focus on it as much when you're feeling these emotions. Especially with stress, anger, and agitation for me.
I don’t have Tourette’s or any syndrome, but I twitch my head a lot. I also flap my hands together, and my little brother mocks me about it, and it’s very disrespectful. I also flex my butt sometimes, and can’t stop for a while. I get teased for it, and I have no excuse because I have no syndrome. So it’s really annoying.
When I was younger, I didnt know i had tourettes and my brother could constantly yell at me for ticcing, claiming that I was only doing it to annoy him.
One summer when I was 12, my dads partner at the time made the most horrendous decision to, instead of taking a plane that would last a few hours, drag us all on a 24 car ride to poland. I was stuck in the back of the car sandwiched tightly between my brother and my step sisters car seat. I had to suppress my tics for so long during tha car ride because every time I'd tic, my brother would elbow me to get me to shut up, which would cause me to yelp in pain which made my dads partner yell at both of us for "arguing". And we were bunched so close together i couldnt even get away with tensing my leg to help relieve the awful build up that I was having. It was the most panful car ride I have ever experienced.
I finally got diagnosed this January gone, I'm now 20 and I still have to suppress my tics sometimes as members of thepublic are so cruel. I found this video on my recommended today and im so glad that you shared how awful it is so that I can not only explain to others how bad it is to suppress them but also to remind myself tha my health and comfort is more important than a strangers opinion of me. So, thank you so much 💛
I absolutely adore you, ur sweet and kind and just Fabolous! Please don't do anything that hurts u though❤️
Thank you so much!! ❤️❤️
The way you describe not trying to tic was sort of like having restless leg syndrome. The more you try not to move your legs, the more they hurt.
I tried suppressing my tics too. I think I lasted for no more than a minute when I violently jerked my whole upper body. It was JUST as my uncle was walking back to his room. He jumped and looked at me like 😳 asking if I was okay. I was honestly so embarrassed....
Please don't do this again. Don't Want you to feel hurt by holding them in. You be you. The only thing normal is a dryer setting. Nothing else.
I have fuctional tics 😂 You did great you are strong ❤❤❤
Restless leg syndrome is actually a decent comparable ossue. Obv not quite the same. But it involves the overwhelming urge to kick the legs. And its much more common than tourettes
i think holding them in feels like an immense pressure and stiffness that gets harder and harder to stop... until... a huge tic bursts out. i am undiagnosed but its there
Don’t do that anymore you are going to hurt your self.Also I do like the hat
I won’t encourage constant suppression but your driving video explained it as a skill. So maybe there is something to using a secure and controlled setting to practice suppression. Do neurologists permit controlled practice as a therapy? What do you do when you’re practicing suppression?
I definitely don’t think pushing suppression for appearances is right. For those able to home that skill, I do think that suppression can be a tool to help facilitate certain operations such as driving or cooking.
I imagine suppression being like ignoring an itch or sneeze but that build up is through the entire body.
When you suppress your tics, is it ultimately satisfied with a single tic or do you get flooded by various tics?
Thank you for your informative insight.
The bear is cute.
This is a great comment & I appreciate the insight. Definitely only suppress in areas where it’s 100% necessary like driving
carly: it's like an itch that you NEED to scratch...
me: *in the middle of scratching* ... O _ O;;;
I have a facial tic, my mouth/ cheek on my right side will pull up and "grimace". I think I'm aware of it happening the majority of the time but there are times my counselor will point out I am doing so and I didn't realize I was. My tic is almost always worse/ more prominent when I'm emotionally not great or stressed or super tired.
Sometimes my cheek hurts from ticcing so much and/or it annoys the heck outta me. While I'm ticcing it's almost impossible for me to stop on purpose if I try. If I'm not doing it but think about it, it happens more often than not.
You're kinda describing fight or flight for involuntary movement, like someone jumps out at you, you may jump or scream. Tell a person not to be scared or scream in a haunted house attraction, it makes you a bit jumpier. Is it similar to that maybe? Or a bit different?
My premonitory urges always feel so itchy and burning and its a very sudden urge most of the time so I have a really hard time trying to stop them. It's like the spot where I need to tic is on fire and the only way to get rid of it is to let the tic happen even if I slap myself or strain my neck.
i recently developed the “ew” tic
Hello there! I was wondering if Tourette's is in any way related to OCD. I have OCD and this would be great to compare stuff about.
I don't have Tourette's, so I can't possibly fully understand what it's like. from what I understand, it might be kind of like when you have to cough but you really don't want to because you're afraid of being a disturbance, so you force yourself not to but the longer you do, the more you have to cough and it just builds like that. It also sounds a little bit similar to gender dysphoria, which is something I struggle with unfortunately. It's not the same feeling, but it sounds similar in the way that it feels like your body is really really wrong, and it's impossible to describe to people who don't experience it.
You've compared suppressing to not blinking or breathing often... I don't know what it's like but I did my best to not blink or breathe while the time was going. I am so sorry. I only have an idea, but it's pretty miserable.
Can you talk more about subconscious suppressing? I've tried to explain this to my family & friends, but they don't seem to understand
Omg yeah. I'm still in highschool and I'm getting my Tourette's diagnosis, I've had tics (that fit the criteria) since May 2021. My tics have been getting worse but everyone around me hasn't known me as having Tourette's since I developed symptoms so late. So going back again next year with even worse symptoms is going to be so hard. And what I mean by much worse is that last year I was able to subconsciously suppress much more but now it's an active struggle. Can't wait to face everyone and try to have to explain how the mental state works, how it's not always constant, how it gets better or worse over time, etc. etc. I haven't heard anyone else talk about subconscious suppression either and it's really frustrating. Just hearing that it's a valid experience from you makes me feel better already so thank you 😅😅
I don’t have (or at least don’t think I have) Tourette’s but I used to take ADHD meds when I was younger that gave me physical neck tics and vocal voice cracks that I’ve been doing it since I was 13 I’m 22 now but how you described your tics is what it feels like when I try to suppress them. Should I be worried ? Or ask a doctor because I haven’t asked anyone about it?
My brother is 21 this year. When he was in his early teens he also took ADHD meds that gave him tics. However, he changed medicine after a few years and most of the tics went away not too long after that. Sounds super odd, but Marijuana has been helping him with urges and spasms, though most of his ticcing had gone away before he started smoking. I'm not sure if taking the ADHD medicine longer would cause people to continue ticcing afterwards (some ADHD meds have permanent effects on the body, heart, and brain) so it would definitely benefit you to ask your doctor about it. I'm not suggesting you smoke weed if you don't already, just sharing my brother's experiences and what helped him. It's not for everybody.
The actual aid to this would be the opposite, It wouldn't be supressing, Any human told NO will want to do it, It is actually in our nature to do the opposite of what we believe we are suppose to do. So the best possible way to help tiks would be REPLACEMENT, If you go out and do an activity that uses active parts of the brain, singing, Painting, working out, sports is a really good one, etc I've seen it help with not just tourettes but a bunch of neruological disorders, At the center it's a urge that is broken or learned typically tics happen during anxiety like ocd habits, But it's more extreme because when it is in the persons dna, but the brain is surprisingly fluid, I had a different issue with siezures that came on, Point is, When the urges come on, if you redirect your attention in that moment to a specific activity that takes the body and brain to do , IT IS possible to train your brain to do less. Not everybody and not all tourettes is created equal, But the urge based ones, I've seen it do wonders for people. Again, Not all people, But the lucky ones that could do it, it helped
I just go to suppress my tics for 45 seconds and I already have a massive head ache plus that feeling inside of me.
I don't have torretes but I do have severe sensory processing disorder. And when trying to block out sensory input I find it painful doing so it feels like I'm a volcano that could erupt at any moment. Just to hide my disability in plain sight
I love your bear hoodie
Here is a completely idiotic question....would you say it is moderately accurate to say that a tic is almost like a sneeze?
What happens if you've tried muscle relaxers? Do they help with the soreness after?
I have adhd and currently have the erge to move but I can't even imagine what your going through
I'm having chest pain just watching you trying to suppress
omg i hate the supreshion feeling. but i do it to help everyone around me to make them feel better. it is so annyoing 😐