Maureen's Morning diary living with NSIP September 7th

Had to get in shower with carers washing my hair, felt so good to get it washed. Usually I shower myself but because I took spasms washing hair a couple of days ago was a bit scared and can't fully lift arms up without pain, even on the painkillers.
Todayy friend is visiting with lunch from M &S , we were originally gonna record the reflexology course I'm writing but I'm unable to do anything physical at the moment until this run of spasm passes.
Don't quite know how long it will last sometimes it can last week's, months or a few days.
This is definitely something new I'm experiencing, the spasms are quite high in neck , upper traps n rhomboid area, but also feelings in my lungs with the fibrosis is all new to me. Also the fact I'm spasming on the least wee thing like washing hair and the last time was just bending picking up a leaf is quite annoying. I don't know how much activity to cut down to.
Everyone know I like to keep busy, you may assume I'm doing too much, but honestly I am behaving and being mindful in what physical stuff I choose to do and let others do it or wait until I get assistance because truly I'm the one that suffers so I have learned to make these mindful choices and thought I'd mastered it until now.
This is a whole other ball game and not figured out why I'm spasming, maybe it could be the med reduction effects, I've read that coming down on steroids spasms and weaknesses in muscles can occur as your body tries to make up the cortisol ??? All a mystery and learning all the time.
What I know for sure is nothing in life is permanent so it won't last forever.
I've got amazing help, medication for symptom in management, the know how of applying complementary therapies massage, aroma antispasm oils, heat and cold packs, towel origami/bolstering techniques to alleviate pain and laughter which is best medicine.
I'm set for the day😘
Have a winning day
Maureen x

[@ChezzzaM]

💕 hoping for a better day for you! Though seeing your face every day is lovely for us all xx

[@startwithtouchmaureenbonne4199]

Its been a good day xx