They MISSED My RARE CANCER for Over a Year! - Mariana | Adrenocortical Carcinoma | The Patient Story

แชร์
ฝัง
  • เผยแพร่เมื่อ 1 ธ.ค. 2024

ความคิดเห็น • 98

  • @Silenceisgolden-o9o
    @Silenceisgolden-o9o 30 นาทีที่ผ่านมา +1

    You are a Warrior mother! I respect you and admire your tenacity! You are in my prayers now. Sending love and asking Our Lord to bless you with health 🙏

  • @cathytauscher6760
    @cathytauscher6760 ชั่วโมงที่ผ่านมา +10

    I'm sorry you had to suffer for so long! Best wishes for you and your beautiful family. Stay strong!

  • @anaferguson5135
    @anaferguson5135 3 ชั่วโมงที่ผ่านมา +12

    I hope that you went to the doctor that told you that you were eating too much and showed her your results. She needs to listen and not jump into conclusions. You are a very brave and strong woman! GBY!

  • @rosebojorquez1237
    @rosebojorquez1237 9 ชั่วโมงที่ผ่านมา +36

    A good doctor is hard to find. Sometimes you have to be your own advocate and insist. Insurance is also very important to have. They try to keep costs down if you don't have it. God bless you! Don't worry about what other people think. There are people out there who care. ❤🙏 prayers for you are comming from me.

  • @colleenlaviolette7925
    @colleenlaviolette7925 44 นาทีที่ผ่านมา

    You are a wonderful person and I’m sorry you have had to fight so hard.

  • @LizzyMoon
    @LizzyMoon 8 ชั่วโมงที่ผ่านมา +50

    Adult acne, weight gain, puffy face, stretch marks, thin skin .It reminded me of Cushing's Syndrome. It was obvious there was something wrong and they dismissed her. So heartbreaking

    • @anglophils645
      @anglophils645 5 ชั่วโมงที่ผ่านมา +3

      (Cushing's syndrome, not Cushions. Cushions are on your sofa.)

    • @LizzyMoon
      @LizzyMoon 5 ชั่วโมงที่ผ่านมา +4

      @@anglophils645 Thanks for catching that. I was writing in a hurry on the bus on my way to work .

    • @bradmyers7109
      @bradmyers7109 5 ชั่วโมงที่ผ่านมา

      Unbelievable some doctors do not know how to google.
      Pituitary tumors that produce adrenocorticotropic hormone (ACTH) can cause both acne and weight gain:
      Weight gain: ACTH tumors cause the adrenal glands to produce too much cortisol, which can lead to weight gain and fatty tissue deposits around the midsection and upper back.
      Acne: ACTH tumors can cause acne

    • @anniesimone
      @anniesimone 4 ชั่วโมงที่ผ่านมา +2

      Right. Unbelievable. All those rashes and the swollen face and they dismissed to "eating too much"..Heartbreaking indeed!

    • @stirlingrae2465
      @stirlingrae2465 4 ชั่วโมงที่ผ่านมา +3

      Almost 4 years ago in January this is exactly what happened to me with extreme lower back and bone pain. 27 kg within 12 weeks and 2 years later another 6 kg. In 21 i had 4 weeks of pain in my spleen/colon. Threw up and then a pop and I passed alot if blood. Then it stopped and would show up a little here and there. Extreme bloating all the way up to summer of 23. In between that time covid compounded my already existing problems. Then came menstruation problems which led to a hysterectomy. That led to a second bout of COVID-19 and now I've had it 6 times.. Then repeated infections like uti, pneumonia, yeast, eyes, toes, swollen everything fingers, feet, face, liver, high cholesterol, low vit d, bone pain, itching, open sores. All the while these doctors are ignoring the results that are not adding up in my blood and scans. My scans have shown a 1.6 cm mass in my liver and half fatty liver, a nodule in my left lung, pet scan activity in my bone marrow, and ileocecal valve, 2 masses in right my adexnal area, and in my breast which is dense and a bump in my bladder near the entry of the exit. Endoscopy found a bunch of raised bumps that weren't biopsied and damage from h pylori and acid reflux. My colonoscopy from 6 years ago looked very scarred up with alot of white places that didn't look right. My alternative pathway was 109% reference was 39% a year ago after my repeated bouts with covid. No doctor could explain this not even my internist. I went from 48kg to 75kg in a 12 week span. I was active, a runner, a spartan runner, eating healthy, and no reason to gain. Then it reached to 80 kg. Then at my heaviest my weight started dropping coupled with gallbladder induced pancreatitis 3 times along the way. Now I've lost 22 kg in a year in a half.I live in the Netherlands and I'm being dismissed left and right. I've had 5 hospitals now reject me for a second opinion. I'm feeling discriminated against at this point. Until now no doctor has looked further into the findings that were found. No biopsies nothing. I am desperate to find a doctor on here that might recognize these symptoms. No doctor has been willing to actually help me here in this country I live in as an expat. 😢

  • @muscleNPmama
    @muscleNPmama 8 ชั่วโมงที่ผ่านมา +24

    As a primary care provider honestly we see so many women that sit and tell us how much weight they have gained and its shocking to them, etc. I sometimes try to refer them to endocrinology and now specialists dont even want to see patients unless their primary provider has done a cortisol suppression test which many of us are not experienced with.

    • @girlinterrupted9145
      @girlinterrupted9145 6 ชั่วโมงที่ผ่านมา +3

      I had put on more weight than I ever had in my life when I was under a lot of anxiety -so I understand how something like this can be missed. I had inflammation and aches and pains too. Once some of the anxiety decreased , my weight started to come off. I’m a thin gal so 25 pounds was a lot for me. My cortisol levels were most likely the culprit . I also had low vitamin d after spending too much time indoors trying to complete my degree but also living with a controlling immature man who thought daylight was for losers🤷‍♀️. Of course, that was simply an excuse for his own poor behavior . As you can imagine, his health is now suffering as a result.

    • @anglophils645
      @anglophils645 5 ชั่วโมงที่ผ่านมา +4

      Doctor, thank you for mentioning the cortisol-suppression test. I have many of the same symptoms described herein by Mariana, so I'm going to request the test that you are recommending, from my physician.

    • @ezsand0077
      @ezsand0077 30 นาทีที่ผ่านมา

      My doc recommended cortisol suppression test and was told my insurance didn’t cover it

  • @juliemullen365
    @juliemullen365 8 ชั่วโมงที่ผ่านมา +12

    God bless this beautiful women and her beautiful family ❤

  • @reillybab1
    @reillybab1 ชั่วโมงที่ผ่านมา +2

    Wow you are a warrior 💕💪such a beautiful person please know I will keep you in my prayers ❤

  • @sineriafrankenstein7316
    @sineriafrankenstein7316 9 ชั่วโมงที่ผ่านมา +19

    Wow what a nightmare!!! Thank goodness you have persevered and found doctors to listen to you and help you!! I sincerely wish the best for you!!!❤

  • @jimhenderson387
    @jimhenderson387 4 ชั่วโมงที่ผ่านมา +6

    What a terrible and traumatic story! I'm sorry anyone has to go through something like this. I hope you are getting better and wish you only the best in your future.

  • @onwardsandupwards7397
    @onwardsandupwards7397 6 ชั่วโมงที่ผ่านมา +8

    “Keep looking” is important advice. Thank you for sharing your story.❤️

  • @odonovan4725
    @odonovan4725 9 ชั่วโมงที่ผ่านมา +16

    Thank you for sharing your story. Prayers to you and your beautiful family. Lots of love healing. Keep fighting your worth it!!!

  • @bettyperkins7379
    @bettyperkins7379 7 นาทีที่ผ่านมา

    May God continue to bless you, I loss my Mom, and my sista 5 months ago to Cancer. Both of them.

  • @BUBBAGRUMPSMOM
    @BUBBAGRUMPSMOM 9 ชั่วโมงที่ผ่านมา +25

    That’s sad your doctor said that you were eating too much. 😠 Prayers for you sweetie 🙏🏼

  • @Bookreviewer-n5e
    @Bookreviewer-n5e 9 ชั่วโมงที่ผ่านมา +13

    SHocking. I am speechless with shock. All the best little kid Luna. I hope her mother recovers. I lost my mother in 2020 due to Covid and I am middle aged. It is so difficult. So traumatic it does not matter whether it is Luna or I. Losing parents is horrible. Ask me.

  • @kayeszymanski6945
    @kayeszymanski6945 9 ชั่วโมงที่ผ่านมา +15

    Mariana, thank you for sharing your story! I’m sorry that the doctor gaslighted you. This is such a terrible situation where the doctors grabbed the quickest diagnosis. You’re overweight so you must be eating too much 😡 God Bless you and your family!! ❤❤❤

  • @MH-hw4uh
    @MH-hw4uh ชั่วโมงที่ผ่านมา

    My prayers are with you 🙏🏾💕

  • @brooks6348
    @brooks6348 9 ชั่วโมงที่ผ่านมา +7

    My friend was diagnosed even after she developed cardiomyopathy. Her blood pressure was off the chart. She was finally diagnosed after developing a severe intestinal infection and finally had a ct scan.

  • @RisingPhoenixBeautyByLena
    @RisingPhoenixBeautyByLena 9 ชั่วโมงที่ผ่านมา +6

    Thank you for sharing your cancer journey. I think im going to look into this more because i have similar symptoms. Prayers sent your way.

  • @girlinterrupted9145
    @girlinterrupted9145 6 ชั่วโมงที่ผ่านมา +3

    Prayers for you and for healing. Make sure all your vitamins are up and decrease stress as much as possible. Eat lots of fruits and everything natural . I know I don’t have all the answers but one thing I do know, God can heal, and I pray he finds the right doctor for you too.🙏🏻❤️

  • @Dublin1008
    @Dublin1008 8 ชั่วโมงที่ผ่านมา +5

    What a journey 😢 I wish you the very best❤

  • @drinabooboo
    @drinabooboo 8 ชั่วโมงที่ผ่านมา +6

    I had a
    Pituitary transphenoidal surgery Jan of 22, and I have a 2 cm lesion there now, giving me Cushing symptoms again. For the last 10 years I just been constantly suffering, I hope for rest soon and I hold on for my daughter too.

    • @LifeBetweenTheDash
      @LifeBetweenTheDash 4 ชั่วโมงที่ผ่านมา +2

      I'm sorry ❤🙏🏾 All the best to you.

  • @beverlyhoward3512
    @beverlyhoward3512 7 ชั่วโมงที่ผ่านมา +4

    God is with you🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽

  • @ColleenC-n5v
    @ColleenC-n5v 5 ชั่วโมงที่ผ่านมา +8

    Stay strong, beautiful mother. I’m so sorry for all the pain and suffering you are experiencing. I hope and pray that you will be healed in Gods mysterious time. Love is truly the best medicine. Your husband and children clearly adore you and that radiant smile.
    ✝💜☮💜✝💜☮💜✝💜☮💜✝💜☮💜✝💜☮💜✝

  • @susansmith8974
    @susansmith8974 5 ชั่วโมงที่ผ่านมา +4

    God bless you.

  • @breezeh1127
    @breezeh1127 6 ชั่วโมงที่ผ่านมา +6

    Oh the doctor gaslighting over the weight gain triggered me bad.😢 I was eating 900 calories a day, keeping a food journal on my phone (for over a year) and had seen a nutrition center and found out I burn 1900 calories a day just sitting still and was walking 4 miles a day and gaining weight. Turns out my thyroid is a mess(among other things). They sure made me feel terrible and like a liar tho. Like I was some weird closet eater. I was so thankful for my husband who knew I barely ate and my son who is in the medical field, speaking up for me when they pulled this with me. I'm so sorry they didn't take your symptoms seriously.

    • @zye....
      @zye.... 2 ชั่วโมงที่ผ่านมา +1

      How did you find out what the problem is?

    • @breezeh1127
      @breezeh1127 38 นาทีที่ผ่านมา

      @zye.... I went to my PCM and asked for them to do an ultrasound of my neck. I was having issues swallowing, and my neck and face looked swollen and big(along with my hair falling out, cystic acne and weight gain). She agreed even tho she had previously insulted me and made it seem like i must be going home and eating a mountain of food. But she only agreed once she felt around on my neck herself and realized something wasn't right(blood work was normal). The ultrasound showed a goiter, and when they went inside, 3 of my parathyroids had to be removed as well. ..even tho the labs were normal. Ppl don't follow text books exactly with how they present and doctors need to remember that.

  • @janwillard6708
    @janwillard6708 8 ชั่วโมงที่ผ่านมา +8

    I’m not making excuses. But rare cancers like this are difficult to diagnose. Sometimes we need a Dr House!!

  • @TheRealdal
    @TheRealdal 8 ชั่วโมงที่ผ่านมา +5

    I’m surprised after all those kidney stones they never did an U/S or CT sooner. Especially with your other symptoms. Or did a Cortisol level. It had to do with the insurance which is really sad in this country.

  • @st3942
    @st3942 6 ชั่วโมงที่ผ่านมา +2

    May God gives you strength 🙏

  • @HLJlovejoy
    @HLJlovejoy 2 ชั่วโมงที่ผ่านมา

    God bless you, Beautiful Mariana & your family ❤. Your testimony is so touching and inspiring. You all are in my prayers in Jesus name 🙏🏾.

  • @ertiebassy3612
    @ertiebassy3612 8 ชั่วโมงที่ผ่านมา

    Thank you for sharing your Story! Your children are beautiful and look happy. A blessing.

  • @vdeniceeckert3494
    @vdeniceeckert3494 4 ชั่วโมงที่ผ่านมา +2

    I live in Michigan, i have bladder cancer, my situation was the opposite they found my cancer by accident, looking to see why i kept vomiting and diarrhea till i dehydrated, my urologist in Grand Rapids is great, very lucky no stage superficial bladder cancer, i go tomy 3rd surgery in a week and chemo is being put in my bladder, to hopefully stop the surgeries..... The CANCER centerin Grand Rapids is top knotch too

  • @CountyLeaks
    @CountyLeaks 7 ชั่วโมงที่ผ่านมา +10

    Why, why, why can't everyone in this country have access to the best healthcare? When you're battling for your life with a young family, the last thing you should worry about is paying for it all. I have the very best health care available and at this time can pay for it, and yet my doctors and nurses always tell me that they must clear a procedure or medication or therapy with insurance first. So frustrating.

    • @henrythegreatamerican8136
      @henrythegreatamerican8136 6 ชั่วโมงที่ผ่านมา +3

      That's what happens when you financialize healthcare and mega investment firms have a huge stake in the system. I'd say a lot more but youtube censorship is absurd.

  • @BerniceTaylor-q7s
    @BerniceTaylor-q7s 53 นาทีที่ผ่านมา

    Honestly, its such a sad story and heartbreaking that your doctors dismissed you. Unfortunately its common, and a person need to diagnose their disease or hound their Doctors to listen to them. Healthcare is a joke. Happy that you finally got a treatment that work. What a horrific experience. I believe you and will pray for your full recovery.

  • @yveeriksson7437
    @yveeriksson7437 8 ชั่วโมงที่ผ่านมา +5

    Sad that you had to meet so many incompetent doctors. If a patient has an unusual dx doctors should refer to another doctor with that actual speciality. Good thing you trusted yourself!

  • @anglophils645
    @anglophils645 5 ชั่วโมงที่ผ่านมา

    Mariana, thank you for sharing your story. I have many of the symptoms that you are describing. A doctor who has responded to your story in your Comments, says that I should request a cortisol-suppression test, so I'm going to do that right away. I hope that you continue to feel better and stronger, every day.

  • @SuperHope58
    @SuperHope58 4 ชั่วโมงที่ผ่านมา +1

    Cuídese mucho tenga mucha fe!!!!milagros suceden

  • @nettie4408
    @nettie4408 2 ชั่วโมงที่ผ่านมา

    Same. Mine Carcinoid Syndrome 😢😢 missed now 6 tumours too advanced to treat just palliative for me. 3 kids too 😢😢😢😢

  • @carlalane699
    @carlalane699 9 ชั่วโมงที่ผ่านมา +2

    I'm so sorry. I will pray for you. Your story sounds like me ,except my symptoms are a lot less severe. I'm going to have my doctor to scan m me. God bless

    • @bradmyers7109
      @bradmyers7109 5 ชั่วโมงที่ผ่านมา

      Pituitary tumors that produce adrenocorticotropic hormone (ACTH) can cause both acne and weight gain:
      Weight gain: ACTH tumors cause the adrenal glands to produce too much cortisol, which can lead to weight gain and fatty tissue deposits around the midsection and upper back.
      Acne: ACTH tumors can cause acne

  • @deanawells4395
    @deanawells4395 ชั่วโมงที่ผ่านมา

    No one tells you how radiation affects can be so bad. I had so many problems during my radiation that no one told me would or could happen.

  • @sabine8419
    @sabine8419 6 ชั่วโมงที่ผ่านมา +2

    Prejudiced healthcare providers need to be re-educated or even disciplined. It is terrible what this woman had to endure, and then got blame and no compassion.

  • @2lightfoundation721
    @2lightfoundation721 6 ชั่วโมงที่ผ่านมา +2

    I’m noticing a theme in a lot of these videos which implies some sort of negligence on behalf of our doctors. Glands are like the directors of an orchestra as they tell the target organ(s) how to behave. If the maestro is “firing on all cylinders”, then the pathology should also show up in the behavior of the target organ(s). In this case, the gland is sitting right on top of one of the target organs. To a well trained eye, this would probably raise a red flag in basic bloodwork. I’m starting to wonder if we are reaching a point to where things like blood screenings, X-rays, CT scans etc. will be double checked by well trained A.I. in the future. Too many finite details are being missed or neglected by doctors these days. It’s patient in $$$, patient out $$$ nowadays and if they can’t determine a diagnosis, it’s either your making things up, trying to get pills or psychosomatic. There are some physicians out here not willing to invest the time to “connect the dots” between seemingly disparate data to give us patients more reliable, accurate diagnoses. This is why I feel A.I. will play a significant role in medicine in the future. God Bless this poor woman and her family.

  • @lourdesirizarry552
    @lourdesirizarry552 8 ชั่วโมงที่ผ่านมา +3

    Sometimes we talk about the denials in a patient but doctors sometimes are in denials too and because of that they jeopardize the life of the patient with misdiagnosis. That’s not fair. I think they should suspect the worst case scenario.first.

  • @gingin1050
    @gingin1050 8 ชั่วโมงที่ผ่านมา +1

    Sweet soil❤

  • @candyvigil550
    @candyvigil550 8 ชั่วโมงที่ผ่านมา +4

    I'm so sorry that so many doctors let you down. You really should have been sent to an endocrinologist with all the endocrin symptoms you were having. You must have been so miserable.

  • @nicolacrickmar8829
    @nicolacrickmar8829 3 ชั่วโมงที่ผ่านมา +2

    The problem with cancer is that it is sneaky as well as dangerous! It hides between other symptoms for other illnesses. Doctors miss cancer because it is not expected, and there are so many tests for different cancers that they couldn't possibly go through for every patient they see, if there was a simple once a year test we could all have it would save so many people that could have survived if their cancer was caught earlier. Also a cure for all cancers would be the best result EVER! You have a lovely family support system, and such a beautiful smile that is infectious! I wish you all the best in your future.

  • @friendlhi
    @friendlhi 9 ชั่วโมงที่ผ่านมา +1

    ❤🙏👍best wishes

  • @Dmcsw-xg9cq
    @Dmcsw-xg9cq 6 ชั่วโมงที่ผ่านมา

  • @suzysmith4254
    @suzysmith4254 3 ชั่วโมงที่ผ่านมา +1

    It could also be part of multiple endocrine neoplaysia men MEN1 its genetic

  • @vdeniceeckert3494
    @vdeniceeckert3494 4 ชั่วโมงที่ผ่านมา +2

    Im sorry you didnt have insurance , but i wonder if thats why the doctors didnt do more scans. I think that they failed you

  • @henrythegreatamerican8136
    @henrythegreatamerican8136 6 ชั่วโมงที่ผ่านมา +3

    "I had to wait longer until I got insurance"
    Welcome to America. Where financial middlemen between you and your doctor decide whether or not you get healthcare.

    • @anglophils645
      @anglophils645 5 ชั่วโมงที่ผ่านมา +1

      Obamacare has made insurance affordable for everyone, it's very inexpensive. Anyone who chooses to walk around with no health insurance, is making a stupid, irresponsible choice.

  • @NoodlesEaton
    @NoodlesEaton 3 ชั่วโมงที่ผ่านมา +2

    Your story makes me furious. I hope you are doing better now.

  • @PH-tv2sw
    @PH-tv2sw 6 ชั่วโมงที่ผ่านมา +1

    That’s so sad America has come to this, no insurance no help until you have insurance

    • @BraceYourselfforBeauty-zu1ty
      @BraceYourselfforBeauty-zu1ty 5 ชั่วโมงที่ผ่านมา +1

      get a job that has insurance.

    • @anglophils645
      @anglophils645 5 ชั่วโมงที่ผ่านมา +1

      Obamacare has made insurance affordable for everyone. Having no insurance is the individual's choice, and it's a stupid one.

    • @hyperjen1
      @hyperjen1 3 ชั่วโมงที่ผ่านมา

      ​@anglophils645 "affordable" is different for everyone, what bills do you choose to pay, do you choose fresh fruits and vegetables or health Insurance. People who say stuff like this have never been poor, you have never had to chose between basic survival priorities.

  • @RedWolf17
    @RedWolf17 3 ชั่วโมงที่ผ่านมา +2

    The Jab 💉😞

    • @jovanimorales3411
      @jovanimorales3411 51 นาทีที่ผ่านมา

      Vaccines do NOT cause cancer 🙄
      Some vaccines prevent certain cancers.
      Cancer patients are immunocompromised and therefore recommended to update their vaccines to reduce the risk of dying from certain infectious diseases (including Covid).

  • @johnjarvis2168
    @johnjarvis2168 9 ชั่วโมงที่ผ่านมา

    1 gram of cannabis oil a day for 60 days is the answer to cancer. Only the lucky ones listen to me,please be one of the lucky ones. Best wishes to everyone who is fighting for their lives!

    • @drinabooboo
      @drinabooboo 8 ชั่วโมงที่ผ่านมา +2

      Did it get rid of your cancer?

    • @johnjarvis2168
      @johnjarvis2168 7 ชั่วโมงที่ผ่านมา +1

      @drinabooboo It has cured 52 people that my team has treated personally. I swear on everything that is holy

    • @drinabooboo
      @drinabooboo 6 ชั่วโมงที่ผ่านมา +1

      @johnjarvis2168 Wow! Do you know by which mechanism it is successful?

    • @cpg8000
      @cpg8000 5 ชั่วโมงที่ผ่านมา +1

      Is cannabis oil the the same thing as CBD oil?
      Thank you!

    • @johnjarvis2168
      @johnjarvis2168 5 ชั่วโมงที่ผ่านมา

      @@drinabooboo we make the oil ourselves. It is taken in a double zero capsule. Please try it, you won't be sorry. Research " Rick Simpson oil"