This was so VALIDATING for me. I have such a distrust for doctors because I’ve been gaslit so many times. Then when I advocate for myself I’m “over reacting “
Same here! I went through cancer treatments and surgery last year. If I questioned anything and didn’t just follow orders like a good little soldier, I was labeled as combative. 😡
We all have some tales about doctors and nurses and surgeons and anesthesiologists. As an adult these episodes have been few but growing up in the 50s and 60s, my parents selected bottom of the class. Their attitude was basically, if I can't figure it out and x-rays do t show a break then the patient is a hypochondriac. I'm paying for it now. But because I not only self-advocate but also take one of my daughters or my 25 year old granddaughter goes with me. But I never thought about anesthesia and recovery being affected by those. Thanks.
I get you, I suffers from neglect badly. I got sick when I was seven I cried out of pain daily, but my family told me to walk I off, because it was probably because I was a litlle too fat into their eyes I way 7 kg. Too heavy. So I listened and started finding sport wheir I could manage my pain, like waterpolo, and horse riding and then I biked about 25 kg. A day. And I hurtled all over but I learned that I was maybe just muscle ache and maybe that level of pain was normal, I then had constantly urinal disease's, pain In my back, neck, knees, feet, hands, arms, everything hurt, and I blamed it on my training because the doctors told me I wasn't sick, I was too young to be in pain. But when I then moved, and stopped training, the pain continued and even started slowly getting worse over the years. I wouldn't sleep due to pain I would be 23 when they told me I had ehlers danlos it's like the big sister to hypermobilitetsyndrom and that my knees was wrongly placed naturally which was the reason they went out of place very often. And that I had muscle arthritis which is rare in adults, but my primarily doctor said. It had to be a mistake and stop my treatment after 4 months. I went from finaly walking in sand again to, loosing my ability again due to pain. At 26 I got a MRI scan of my legs, hands, arms, bag and brain by a rheumatologist and neurologist, and suddenly my entire life was explained I had real arthritis, and progressive multiple sclerosis. I was sent to treatment 3 different places. 1 of them was a chronicle pain management center and they diagnosed me with one more thing "chronicle pain syndrom/Fibromyalgia" due to 20 years of untreated pain at that time, I got a good pain management plan, but was told that I would never be pain free and they asked me what I expected from my treatment realistically, and I told them I would be happy to just come under a 7 on a good day, and they told me that, it was very realistic. We went through all legal treatments in Denmark, and we found a mixture to help me. But I will never be completely pain-free, I never have a break and it's awful. Then last year at 33 I was diagnosed with trigeminal neuralgia in both sides of my face on of the worst migraines on planet earth. I got it from my sclerosis. 😣
Such a valuable and nuanced explanation of how being neglected, gaslit, shamed, disrespected, labeled by a doctor can cause a person to fight, take flight or freeze and endure terrible health consequences as a result. Dr. Kaveh, you are such a deeply caring human and doctor. Thank you for all you are doing for us.
Fantastic to be validated as so many woman in Ireland , UK & Europe are treated this way, I hope its not to late for my loved ones, but perhaps it is, as Woman are treated as neurotic or hysterical. Notes with derogatory comments from hospital 😢
I was my family's caregiver. I looked after my parents and my brother dueimg their illnesses and deaths. I had to advocate for them bc of the level of neglect they received from their doctors. One of my father's doctors after his visit said if we had any questions, to let her know. I asked a question about my dad's medication and was told in an irritated voice by the doctor to not worry about that. I responded saying that I'm carrying for my father and my question is legitimate. She did not like being questioned. I switched doctors. The sad part is that I switched his doctors 3 times over 3 years until I found one who actually cared. I have way too many stories like this regarding care for my family and for my self. It's hard for me to trust doctors. These videos let me know there's at least one great doctor out there. Thank you!
So sad you had such awful experiences when trying to care for and advocate for your family members. .praying that you'll have smoother time in the future❤❤❤
As another carer I recognise your experiences. It is incredibly difficult being the patient with these medicos let alone one step removed as the carer. I am so traumatised and hypervigilant now and exhausted from the constant watching that they're doing the right thing and then stepping in to fight his corner.
I got infected with Lyme in 2014, I was 40 years old, after 5 years of terrible pain in my joints and being told "you look good", I found a holistic doctor. I am 80% better with almost no pain.
Glad you're feeling better, that one gets misdiagnosed a lot. I've been bit by ticks and had a bullseye. I went to an urgent care doctor who didn't want to give me doxy but my ENT did, wasn't even his job or what I was there for.
Me too back in 1992 and again 2009 left and neglected after I got private treatment from fundraising I was then gaslit and neglected by doctors when other problems got worse.. x
I’m going through that as well, after 21 years of being chronically ill and having to retire early from my teaching career! I can’t drive because I have a broken shoulder that isn’t healing right because of Babesia. I’m alone, and even have a hard time going outside because of CPTSD!! You can tell how your friends and your fiancé really is when you get sick! 🥲 I know I need to release trauma and go to therapy, but I have lost all my money, and I’m scared to drive, all if a sudden!! What happened to me????? 🥲🥲🥲🥲☀️
My doctor spent more time looking at his computer screen than listening to me, then, after "supporting" me through 20 years of FMS & Depression (I am disabled and cannot walk more than 20 feet without aid), he took his life. The next doctor I saw was more interested in "mindfulness", which is good, but doesn't solve chronic pain and fatigue. End of the story is that I don't go to the doctor anymore. Every time I do have to go, they are dismissive, or you have to fit everything in to a 5 minute appointment, after which they start looking at you like, "time for you to go now.". Cue Covid-19, and you couldn't get to see one anyway. More non-personal "care" or lack of it. Now it's so hard to get to see a doctor locally, I just don't bother. I honestly feel that if I had a stroke or heart attack, I'd have it quietly in my own home without anyone knowing. When Covid-19 came, I asked my GP what I should do if I catch it - he asked me to sign a DNR. Thanks, doc.
I agree, medical care is getting hard to find. It takes weeks if not months to get an appointment. No one answers phones you get a recording and maybe a call back. After being in the ER with my husband multiple times since Jan. (where the medical workers were exceptional but not enough of them) I told my husband if I collapse at home, step over me and go grocery shopping and hope I have expired before he comes back. I don't want to suffer for hours in an ER with overworked employees who's hands are tied because there is not enough staff or too much red tape.
Wow I’m astounded that he told you to sign a DNR especially without counselling you before hand?! The doctor just gave up and assumed you should as well? I truly hope you reported them to the hospital and medical board because that’s not right! This doctor needs some type of punishment. It’s a patients choice & right to make this choice themselves. This sounds eerily like the MAID program in Canada where the last few years too many people who are on disability but can’t get enough support. Choosing between meds or food or housing so they decide it’s better to have a medically assisted death rather than continuing to struggle to get basic life support to survive and thrive😢 I’m truly sorry this has happened to you❤
Your story breaks my heart and I think that most anyone, given enough neglect, having your Dr. commit suicide, being counseled by your PCP to sign a DNR when you asked them what to do if you get Covid, would feel like giving up on doctors and getting medical help. You know, in the US, gyn preventive care for women (your “well woman exam) is a no charge appointment because of the Patient Protection and Affordable Care Act (Obamacare.) Maybe if you have a friend or family member who can go with you and advocate for you, you would at least have that healthcare.
I was told I was a hysterical female (back in the 90s) when it was a meningioma tumor on my spine. There’s more to this story, but yep…..hysterical female syndrome explained my loss of leg function
Sorry to hear you went through that. My very dear friend went years being blown off. She would sporadically collapse when she walked & kept saying she had back pain. She begged for an MRI for years Drs refused, insurance refused. Finally, over a decade later, a new Dr ordered the MRI and guess what? All this time she had a cyst on her spinal cord. Thankfully post op we learned the cyst was benign. Years after this another cancer scare that turned out benign. The last issue turned out to be oral cancer that aggressively spread & ultimately took her life. She put off seeing a Dr, ignored her symptoms. I am inclined to believe at some levels she put off treatment after being blow-off, told her symptoms were in her head, told to lose weight (even after losing 100+lbs), etc., I have to wonder if the lack of medical support and follow through from earlier issues she had played a hand in putting off earlier interventions. ***Forgot to mention this started for her in the 90s as well.
@@cherilevy wow. Ya I’d have to say the poor treatment she got earlier prob kept her from trusting drs again & putting off seeing anybody about her newer symptoms. It’s very sad, I’m sorry to hear. I do the same thing too. As it’s just so hard to trust anybody again in the medical profession
@@jilligain3409I am battling feelings too about avoiding follow up appointments. I don't want to see my gynecologist, nor *any* gynecologist anymore, after the way I was treated by my doc, both physically and verbally/psychologically. I lost trust in her after being hurt during a relatively minor surgery and was gaslit afterward and made to feel that *I* caused *them* trauma by complaining about how painful it was and how I was left damaged down below from rough handling while I was unconscious. I have always gotten a lady gynecologist so I can feel safe but I felt I was mistreated while in a most vulnerable situation, unconscious & exposed. I struggle to feel that I can ever find a compassionate, trustworthy doctor. I'm left with PTSD.
I am so sorry that you suffered that terrible treatment...l worked for a very caring obgyn whire in nursing school and all these years later l.have found a gentle and caring gyn who helped me get a very necessary gp and orthopedic surgeon who saved my ability to walk again at 76 ! I was blessed and l.hope you will be also. It is possible.... ❤❤❤
@@MacchiatoSwirlGirl tell him it was on T-7. I was paralyzed before they found it. I’m walking now, but not too well these days. That Dr who blew you off ….can pucker up & kiss my ass
👍And thanks for addressing this issue head on, Dr. K! As hubby learned in medical school: " They don't care what you know, until they know that you care!"
I’ve had to learn how to google all of my medical situations before I go to the Dr. For years because no one new how to help me. I got sick 13 years ago and was left with SBS, malnutrition, malabsorption, chronic pain, chronic diarrhea, incontinent diarrhea to a illeostomy, Life long TPN and hydration. They gave me five years to live. Sent me home from hospital with picc line, for nourishment, NPO. I lost my family and my life! It’s now 13years and I barely no my grandkids because of my decreased quality of life and my three sons all except one basically removed me from their lives. I finally have no more tears to cry about wat has happened and continue to wonder how the last 13 years would of been. There’s more so much more but I’m exhausted from taking a shower and I need to hookup and change my pouch. You have great advice. I will continue my story another time.😂😂😂❤❤❤
Exactly right. We are actually paying them for a service. They work for us. Not the other way around! The medical community invented the term "doctor shopping", so we have every right to label it as we see it from our perspective. Being a patient does not mean you are mindless and can't make right decisions. The doctors that are defensive reveal that they are intimidated by our sharp minds. And reveal their fear of being wrong or that they didn't get the education they paid for.
Yes they do!. I had one recently tell me to quit going to Dr. Google!! I get my information from reliable sources. I'm not highly educated but I am educated and I'm not stupid..it's almost like they're insulted if you ask an intelligent question...they want to patronize you and pat you on the head like you're a child...and you're supposed to be a 'good little girl'...I lost my respect generally spTheaking for doctors when I was misdiagnosed when I in fact had breast cancer. The doctor gaslit me and it almost cost me my life. The only reason I now know it didn't is b/c that was 33 years ago...The thing that really burns me the most is they say they want us to be proactive, and push preventative care, but then when you do that, they don't like you, characterize you as anxious b/c you're concerned about your symptoms and feeling unwell and not getting better. You can't win. I've had a few, very few, great docs...but the rest? a waste of time seeing them.
I'm in tears. I moved from North Carolina to New York on October 2021 and have had nothing but horrendous care from the medical professionals associated with the university here. I FINALLY have had my "back" problem diagnosed....my SI joints are very bad so I tried the injections. My body can't handle steroids of any kind so I wasn't sure how long this "relief" would last. Well it lasted 7 weeks and I'm thrust right back to 2021 and absolutely NO pain medication. I forgot to mention that I'm a bilateral amputee who is wheelchair bound with very bad shoulders to add to the quagmire I have found myself, as if losing my legs 27 years ago wasn't bad enough.
Oh sweetie I’m so sorry. I’m also a bilateral amputee, after being paralyzed by cauda equina syndrome. I lived in Iowa at the time I became ill. The doctors missed the infection for 2 months and nearly killed me. I sued the Hell out of them and won easily. So, in a way, I’m “lucky”, among many disabled folks. I moved to Portland, Or, 3 years ago and the healthcare here is miles above anything I’d ever experienced. They care about trauma informed care(and it sounds like you’ve been through medical trauma). I would strongly encourage you(if you can) to think about moving out here. Washington and California also good. Your life and health and peace of mind is worth everything. Pls hang in there. U deserve to feel better
After two failed foot reconstructions (preceded by decades of musculoskeletal, neurological, foot and back issues), I found myself in such severe pain, I had a surgeon waiting in the wings to amputate my Left leg below the knee. This was January of 2016. When I informed my Primary Care doctor I was headed for amputation, he stepped in and convinced me to opiate, not amputate. He assured me I would have essentially a lifetime prescription for 45 mg of Vicodin per day. For various reasons, I had already been on 30 mg Vicodin for about twelve years by that point, so I cancelled with the surgeon and settled in for the duration. Well, seven years after that, Old Father Time stepped in, my eighty year-old Primary Care doctor retired, and my Vicodin prescription ended abruptly. Three choices came to mind: (1) Go to a Pain Management doctor and probably get yelled at, belittled, and threatened as I have experienced at their hands before, (2) Hit the streets of my city of one million residents and find street opioids which would most likely kill or incarcerate me after a couple of years, or (3) Quit taking opioids and my two blood pressure medications altogether, climb into my bed and/or my Lazy Boy recliner for about 23 hours a day, and delegate what few house chores I used to do while opiated to my adult children. I decided on Option #3. So... it looks like I've taken flight and am in danger because I am sick to death of doctors. "Woof!" Also, "Ruff!"
@@yourgodismean4526 🫠 I wish I could but we inherited my husband's childhood home and the move from NC to NY broke us. Not mentioning the fact that my husband was diagnosed with MS in 2002 then he needed hernia surgery in 2021 which he received BUT the pre-surgery blood work the grossly elevated white count... he has leukemia. So, we've been through the mill and I'm not done fighting yet. I wish the best for you, what a horrific way to find peace. Hugs and a safe life for you ❤️
This is exactly why private patient advocates like myself are needed. Having an advocate ensures you are heard and you are properly diagnosed and treated.
Where can one go about funding patient advocates? We used to have an organization locally who had advocates. I'm helping a friend whose mother was put under a conservatorship - not because she couldn't take care of her affairs with a driver to the doctor's, but because she changed a trust, as she was sick of bickering in her family. The conservatorship was purely for the financial greed of a particular family member, IMHO. I wasn't aware a contested trust could have attorneys' fees for everyone taken out of a trust estate. It shouldn't be legal for an assigned trustee to sell off rental properties an adult child is living on, but that's what has happened. The trustee and attorneys have drained over half a million dollars off the estate. That should be criminal. The trustee has been doing this for many years and seems to provoke siblings to take issues to court, as this person walks with a lot of people's money. It's quite the scam, IMHO. It's seemingly illegal, yet that doesn't stop this person and their spouse, who is also this person's attorney. This person sold property "as is," even though it was contested, without the court's approval, and didn't do anything to maintain the properties involved. She got court approval AFTER she had already found a buyer! She hadn't even accounted for her billing. There's an inquiry going on for criminal prosecution, but that property is gone, and another is going to be sold. I'm doing what I can to help, but it's difficult for this person. If you have a referral, that would be helpful. You can DM me on "X," formally Twitter @SoCalBohoGal. I hope to hear from you, as there's a serious need for advocates in my area! Perhaps if we all work together to make healthy changes to the system, we can change it for the better!?! This case certainly had me re-think my future plans to set up a trust! I think I'll simply put any property in the name(s) of those who I want to have them, so it will go to who I want it to. If someone did that to me, I would be the biggest PITA ever. I'd probably leave the country. I'm looking into putting money away should that ever happen. This woman passed away with property in a trust, and her child who wanted the property pushing for her to have the conservatorship over her. It was abuse. There's no other way to describe it. Her wishes weren't followed. It's quite disgusting that those things go on, yet the trustee has been doing it for many years and is quite wealthy on the backs of other people's estates. This is the second person I've known who has dealt with the same trustee and the same court. That a person can be forced into a conservatorship against their will when it isn't necessary because they have a sizeable estate is nothing short of horrific. Her doctors (2 of them) even wrote letters for her, stating that although she had a mobility impairment and some mild memory issues, that she was able to make her own financial decisions. She was totally disrespected, it likely adversely affected her health, and although this child who contested the trust, along with her brother, received other properties from the parents, they'll be receiving some money from the properties in the trust, taking it from a younger sibling. This case certainly has me re-thinking the set-up of my estate. It's unbelievable. I hope I hear from you! Even an advocacy class would be helpful! We certainly need more people like you in the world! Again, DM me at @SoCalBohoGal on Twitter, now "X". Thanks!
Where are you? I asked for a PT Advocate and only get a phone # in emergency mode. Not for in person/ Palliative Care. No Dr ordered Palliative Care here in Pueblo Colorado.
I dealt with this too, as did family members. After my sister self-harmed and removed herself from the planet due to this, my new drs did fully take me seriously and have finally diagnosed and are now treating conditions that were actually killing me and previous drs ignored. Life is so much better having drs that believe me, care, and properly treat.
What a blessing you are finally getting the care you need and deserve but it is so very sad your sister wasn't sa blessed....l.pray she is home with Our Lord Now and finally has the peace she deserved here❤
I had the same happen to a supposedly best neurosurgeon in my area. When I asked a question, he told me to shut up and wait. I then went off on how disrespectful that is and if he wants respect, don't treat people dismissively. They are his bread and butter. Then I dropped the bomb....I was also a neurosurgical and medical ICU nurse so I know way more than the average person. He then ran out and let his nurse handle me. I let her have it nicely about enabling his bad behavior. The next visit...yes, I gave him a chance...he was apologetic, spoke more slowly, and made sure I had time to get any questions answered. I told him that was how all patients should be approached, as well as staff.
Even being in the conventional healthcare setting where everything is mostly about profits, not patient benefits, you still have so much compassion! You truly are at your place in life, doc!
You are restoring my faith in the system...l am so sorry that you had to personally experience this kind of treatment to someone you care about to give you the impetus to empower us though😢
My husband , a college professor at Harvard, was told his twitches in his face and arms were depression because his affect was flat. His PCP gave him a prescription for lexapro. My husband came home and said I have never been depressed a day in my life, so he didn't take the prescription. Three months later, he forgot his way home from work, so I took him to the ER and insisted on brain scan. He had a glioblastoma( brain tumor) on the right side of his brain covering the frontal parietal temporal lobe the size of a small grapefruit. Always, listen to your intuition and if you don't like what MD tells you get a second, third, and or fourth opinion. Thank you Dr. Kaveh for this powerful information.
@@MedicalSecrets well done doctor kaveh; as a former nurse turned holistic therapist and coach i am so grateful for your informative trauma informed care which comes across very well
I was neglected. By the hospital and a dr about chest pain. The hospital kept telling me I had anxiety. The dr literally just blew me off and it was blatant mal practice by waving his hand and telling me it was just a misplaced ekg lead. I will never trust another physician completely. All of the gaslighting caused me to have cardiac arrest that my husband was able to bring me back to life and then I had a double bypass all within the 3 weeks of the dr literally waving me out of the exam room. I have severe trauma from all of this. I was 54 years old.
Wow so many people are told their chest pain is anxiety or visa versa! It’s a simple few tests to see if you had a heart attack which would give people peace of mind rather than more anxiety to add on to a persons stress load. I’ve heard stories like this where the person leaves and collapses in the hallway or parking lot!😢Sorry you weren’t believed ❤
@@natalievancouver8188 thank you for your reply. This was less than a year ago that I had my bypass. I was told it was most likely due to famial history but I m sure I could have done something different for heart health but I’m doing it now ❤️ and the beat goes on
It took me from 2002 to 2023 to get a doctor to listen to me. I shopped for doctors. I paid for test after test. And was gaslight by all. The last one who finally listened to me and validated me and gave me the accurate diagnosis is my hero! Why does it have to be this way!?
Everytime I was having severe pain that radiated to my lower back and would sometimes cause my legs to give out (I had a gut feeling as to what was wrong and mentioned it but...) I kept being told "You just need to poop" and would be sent home with samples of laxatives. Fast forward to a couple of years later and I have a medical intern doctor AND his supervising physician tell me the same thing and I looked right at them and told them they were wrong and I would see them in the ER later. Sure enough, around midnight my pain was so bad that I drove myself to the ER. When they walked into my room the look on their faces was priceless. Again, insisting this time I was having very bad heartburn ( I just shook my head and gave up, even though I was in so much pain that my blood pressure was even high) and drank their "heartburn cocktail" and waited in the room alone, in pain, but they assured me that when they came back in 20 minutes I would be feeling a thousand times better. Needless to say they came back and I was in so much pain I was doubled over. They gave me a strong pain medication and I had to call my son, wake him up, to come get me because I was not able to drive myself home. Of course, they sent me home with stronger laxatives because they still insisted that all I needed was a good poop. When the pain medication wore off and I was doubled over again, my son came and took me back to the hospital, I finally got sent for an ultrasound and the technician literally gasped when she saw what it was. She asked me if I was to go back to my doctor after this and I gave her a short run down of my story. She told me I had so many gallstones that my gallbladder was severely impacted and would not let me go back to the doctor that made me go through this pain for 3 days. I ended up being admitted for emergency gallbladder removal surgery. The surgeon that did my surgery told me that my gallbladder was so large that he had to make the incision bigger than usual to get it out of me. I had mentioned almost every time I had my attacks that I thought it was my gallbladder only to be ignored because I was "just a woman with Fibro that always had a pain somewhere and couldn't possibly know what I was talking about". *Sigh* ... and we wonder why the healthcare system is a disaster.
Afraid is right, I am going on vacation from my home state to a metropolitan city. Hoping I can pull a 'Dr. House', approach to exacerbate an attack (which could cost me my life) so I can see a Dr., who might help me. I have to risk my life, to save my life. I may look, "hysterical", but I am a mother, a daughter, a sister, aunt. But my labs are saying something is very wrong. Yet, all I get is basic, baseline care. My Doctor's hands are tied and they are put in a fight, by insurance regulators. My Doctor's tried, I have tried, no help is found here. So, I am still fighting to live, bcs of my child, my mother, bcs of Love. I remain grateful for family, grateful I can function today, grateful for the Good Doctor's who care, like you Dr. Kaveh! Grateful for family and mad at the Love of Money over lives!! I still stand, I still fight, I still Hope. Praying, and believing in the good.
I have CFS. Started in !985. 14 doctors told me I was a mental patient. I lost everything. I am having revision hip surgery in August. This talk has given me renewed courage. Surgery is at MassGen. Thank you.
I have noticed that as I get older I get ignored more...especially since I have a couple of issues that are chronic and it feels as if doctors get bored with me since they can't solve the problems.
Getting older does affect the care you receive I saw it with my parents treatment and now at 62 it is happening to me. I’m not sure how to navigate this situation.
You deserve a gold medal for that one. Both the general public and medical "experts" are really good at reciting, "You look fine to me!" End of 2021, the radiation oncologist and every other expert at the hospital instantly attributed my drooping head to radiation. 1.5 years later, same dr, instead of offering help for the serious accompanying pain, said, "Well, you are getting older." I'm honestly totally disgusted with them.
Thanks for sharing the truth with the public. I can’t tell you how many times my symptoms have been dismissed, downplayed or outright ignored, that I was exasperated by it. I am also a nurse and see my patients tell same stories through their experiences. Literally, in the medical community for 30 yrs….sadly it has just become so sketchy in the game of insurance that tells Dr. what and when they prescribe meds, so many hoops that the pt. and physicians have to jump through. It is disgusting and scary. Hits home for me and many others. Late dx, no medication for delays in insurance…the ultimate is people suffering with no treatment or advocate to help. I shake my damn head.
I have medical CPTSD from years of medical neglect and gaslighting in the past it’s awful, I’m a lot better now it just took 1 doctor to listen to me and take me seriously I’m in the UK. I have Pots, suspected EDS, Gastroparesis, autonomic neuropathy and a whole host of other things 🙈
I have several diagnosis. One being chronic pain left over from repeated porphyria attacks, severe neuropathy, fibromyalgia, PTSD, diabetes,...the list goes on. Moved from one state to another. I tried to find a pain doctor or a pain clinic. I was turned down by 5 different practices because I am on opioid medications. Even when I asked them if they could help me wean off of them. They still said no. I was so discouraged and scared. I had already weaned to less than half and had days or nights where I spent moaning and trying everything to get comfortable. It was horrible. I finally found a primary caregiver who is fantastic.
I've run into being blown off by my doctor before. I suffer from chronic fatigue to the point that I experience "sleep drunkenness" on occasion. My doctor seemed to think it's due to depression and put me on depression meds. The depression meds haven't helped at all. I'm having to push for a sleep study to see what else can be wrong. Feeling unheard, blaming mental illness, etc is very frustrating.
with insomnia and crippling adhd, im with you. I have felt I can't tell anyone about that because usually I get laughed out or at best brushed off as overthinking
I'm crying here, thank you! I went through a sexual assault court case from a doc years ago. I have worked really hard at trusting doctors again enough so they can touch me without me having extreme panic. I thank you for the motivation to advocate for myself and get tests for chronic fatigue, it's been two months and is really seems like they're just following procedures, in the meantime I feel crazy and lazy.
I had weird symptoms for years from 20-32. I was always brushed off like I was full of crap. When i was 32 I had a particularly bad episode, and saw a really good doctor who spent 2 hours talking to me and doing different tests, and then she sent me for an MRI because she suspected Multiple Sclerosis. She nailed it. I'm 50 and haven't had any health care in 8 years, so I've been dealing with it on my own. Invisible autoimmune diseases are awful, because everyone -even family members - treat me like I should be just fine and like there's nothing wrong. Its so frustrating, I've chosen to live several states away and not relocate closer to them.
I understand. I have Mast Cell and am allergic to almost everything, I have CVID, Lymes and vulvar neoplasia. I have found a lot of support on private Facebook support groups, you are not alone.
Some doctors would rather blame us or accuse us of lying when they are unable to diagnose the cause of our suffering. They don't or simply can't admit that they don't know, instead of referring you to someone else.
@denasharpe2393 I doubt the person who was the doctor who was so cold and heartless still works as a healthcare provider at any capacity simply because this happened in the 80"s. I was diagnosed around 1991 - 1992. It still took some time as my symptoms were on and off. Double vision, unable to hold my eyes open after going to see a movie in a theater. Variable generalized weakness, confusion. I was unable to turn my head. It seemed to have been triggered from head neck trauma. I worked for a telecommunications company and had been working on repeaters in an underground manhole. As I climbed the ladder 🪜 to exit, I hit the top of my head as I was looking upward, ascending the ladder, and hit my head against the cement ceiling. As I did. I heard what sounded like a walnut being crushed. My head was pushed back and compressed downwards at the same time. There were no MRIs or CTs back in 1979 when this happened. I was told years later by some that it was because of that. My C4-C5 disk was literally shattered. I guess my brain slammed against the inside of my skull, then bounced down, compressing my brain stem. Almost two years later, I had an ACDF. I still have pain. It wasn't until I had a job singing that I noticed my right eye stopped moving. A friend of mine, an ER Doctor came in and I sat in front of him and said "hey Mike, check this out" and I moved my head left then right and my eye didn't move. It was paralyzed. He got me into Loma Linda University the following day, where I was diagnosed with Myasthenia Gravis. I was put on huge doses of Prednisone and then had a Thymectomy via my sternum. Just like they do for heart surgery. I'm 71 now. Just had C6-C7 ACDF where my laryngeal nerve was damaged and left my right vocal fold paralysis. I can't sing anymore. Barely able to talk. Now, I have two full depth partial width tears in two tendons of my left rotator cuff. One thing after another. I've lost count of my surgical expenses. Oh, I'm ADHD. I doubt he still works, probably retired. He worked for the county. Sorry, I got carried away. I have some videos from when I could still sing a bit on TH-cam if you are interested. ❤️. Like I said, I can't sing anymore. They found my spinal cord was being compressed at C6-C7, so they needed to release the pressure. I had been having trouble walking a straight line. My gait was like I was drunk. I was never told I could lose my ability to sing. That my friend has been the most difficult thing to accept. I lived to sing. I'm lost.
Dismissed & gas lit all the time. I have MS & fibromyalgia. Drs make me feel crazy. I’m terrified of telling them anything Becuz they call me “too complicated”.
Whatever you do PLEASE do not let anything change the way you think regarding patients complaints. You are one of the few actually born to be a doctor, and are on your way to improving and saving many lives.
Thanks for the topic. It happens ALL THE TIME! My X used to get heart pain that presented in his upper back. Even though he had been a patient at this world-class hospital many times and their records should have reflected that. We went to the ER with X complaining of upper back pain, which is how it normally presented with his heart pain - and the ER doc wanted to call for ortho consult instead of looking at heart attack. Had to threaten legal action if they didn't treat as heart prob instead of ortho.
I have psoriatic arthritis and fibromyalgia, two conditions that can be difficult to diagnose, so I had been through some medical gaslighting in the past. One day I said to a new doctor that I was sorry and that I know I’m a difficult patient. Without missing a beat, she replied that difficult patients are rude and I was the opposite of that. She said to remember that complex does not equal difficult. She gave me a powerful message that day. In turn it helped me advocate for myself and also for my elderly parents years later.
@@Ilse-qp3mbpsoriatic arthritis is an autoimmune type of arthritis meaning that your immune system goes into overdrive and attacks your joints, tissues and skin. I had bad psoriasis on the soles of my feet. My rheumatologist put me on a tnf blocker to suppress my immune system. It also helps joint inflammation. Some examples of tnf blockers are Enbrel, Humira etc.
"Disabled self-identity." Absolutely true of the medically neglected and abused. This is what I need to heal from. Thank you for your insights and kind words.
I am so thankful that my GP advocates for his patients. I remember having bowel problems over the course of 2 months. My GP sent me to a GI and I had a scope. The GI couldn't find anything wrong and said it was all physiological. After having lost 10kg in a short time my GP sent me to another GI for a 2nd opinion. They did a scope and it turned out to be chrons disease.
I came here from the Gen-Z being lonely video and I am just so grateful to have this experience of watching these videos that are validating everything i’ve been feeling, seeing, experiencing. From dentists, parents, school, counselors, psychiatrists, mental hospital, etc. I have been feeling so crazy for being affected by all of these things, and the way you are expressing your points so openly and personally and plainly is so helpful. It has literally been from all angles in my life that I have been seeing and experiencing this, (for context I am part of Gen Z, 23, just graduated college studying neurobiology and math)
Hang in there! You are most likely NOT crazy. I’m in my early 60’s now and many of the worst and most long lasting of my medical issues started in my 20-30’s. And I was lucky, in my mind, to be diagnosed. Family members have been some of the worst. My immediate family (my children and ex) living with me day in and out understood, but only one of my parents got it, and neither of my siblings…until they had major health issues. 🙄I have had to learn more about every condition. I take notes and keep journals. Many doctors are dismissive of tracking, but it has allowed the caring specialists the info they needed to diagnose. Good luck to you and blessings.
My sister got diagnosed with cystic fibrosis at 5 years of age after being very sick her whole life. This caused my mother to have a distrust in doctors which made her quite angry. I waited 4 years for a umbilical hernia surgery on a long waiting list. It was popping out regularly and my distrust in the system through my mother grew. I doctor shopped got on a waitlist for a smaller hospital and was seen immediately. In the past 2 years since my surgery ive lost 30 kg's and gained alot of muscle mass. It would have been great to have the surgery sooner. In Australia at the present we have a shortage of doctors and the ones overworked seem burned out.
I had a mesh surgery and soon as I woke up I was in chronic pain. It was done by a new doctor under supervision. Since 2009 I suffered acute pain and bed ridden. Had 14th surgery and on tomorrow going for next surgery. Cutting the mesh out. And other 4 repair. By my face many doctor don't get it and say its in my head until they see my MRI and other report. I had epidurals more then 8 times last 2 years for pain. NHS very well hidden the surgery note. Now I'm having the surgery in Dubai robotic surgery. Taking my uterus out, and 4 other things. Your last video really helped Thank you
This really hit home. My mom died of colon cancer in 1985. She was considered a hypochondriac. Now I have a myriad of issues. So much of what you’re saying is so true for me!! I have an issue with Drs just not giving me info. Then I read it in my chart. I’ve sent supplemental oxygen back before because k didn’t think I needed it anymore. I had no idea that my lungs were permanently damaged. The latest thing is coughing up blood. Not blood tinged sputum, pure blood. My Dr saw it, believed me, and even what is this did a bronchoscopy. He only told my husband that I was inflamed and gave me extra steroids, IV. My chart, however, states a whole lot more. Now the extra steroids have worn off, and I’m coughing up blood again. I have no idea what to do. That’s just one example. 🤷🏻♀️
I wish everyone was around doctors and health staff having your level of understanding and empathy. I have a very good general doctor but the staff in the hospital where I live if less than good really. I just got out of surgery, and was crying, almost screaming in pain, called them and asked for a painkiller (dilaudid) and they made me wake for the next medication run for the floor I was resting. Was in the las room of the corridor and the nurse just told me: unfortunately you're in the last room, we're running everywhere so ewe can't give you anything on demand. I had to wait over an hour for the next medication round on the floor I was. I almost filled a report against this nurse who responded me like I could just endure this pain until the next med round. This is not normal in a post surgery environment. I could have painkillers every 3 hours dilaudid IM and they made me wait 6+ hours until the nest medication round... We're not in an old people place that have scheduled rounds of meds distribution... we're post operation pain talking here. Worst post operation experience ever. That whole department was working so bad, not responding ( or almost one hours later) from your bed bell urgency calls.
Honestly though, doc isn't just being informative but is also being very helpful. I kinda wanna be in the medical field now ( 1 yr till college😎 ). Hope y'all have a great day🤗😁
@@animetedff229 the money is good too! Of course it doesn’t work unless there’s some interest and dedication. There are usually some volunteer programs in hospitals so you can kind of get your feet wet and know whether it’s something you want to do. There’s also a lot of scholarships available for medical, even some hospitals have programs for students where they will pay as you go. Lots of options and opportunities! Go for it!
@@nurseadrianern FND is Functional Neurological Disorder. Most doctors or nurses have never heard of it. My daughter suffers so much from it! It has a lot of bizarre symptoms. Unfortunately, science has not caught up with it. Talk therapy is the only thing she has. Although, she decided to learn Chinese & that has helped her the most so far.
Interesting! I was actually told that last year. I was in the ER a couple months later! With a kidney that is now less that 20 % you truly have to advocate for yourself at times! Thank you so much for this information! Love you Dr. Kaveh! God Bless you!
I had a gaslighting situation in May of last year. I passed out and was admitted to the hospital. The neurologist swore that I had a seizure but I know that I didn't. Its been 36 years since I had a seizure and I know what it feels like. He got mad at me and stormed out of my room.
Sorry you went through that. Did it feel more like your blood pressure crashed? I've experienced blood pressure related passing out, as well as seizures, and know what you mean about being able to tell the difference between seizures and something else. We, the patient, are the ones personally experiencing the medical symptoms. Why don't they listen?
@@carolthompson2727 Does that happen very often? My doctor recommended I get a blood glucose monitor to check when that happens. I used to throw 45-65 at times, and my doctor wondered how I managed to stay conscious.
I love what Dr Kaveh is doing here. As bad as YT has gotten, I'm so glad there's still great resources like this channel. My mother died at 57 from medical neglect and it absolutely voided my sense of trust for decades. I still experience dysphoria (panic, winded, lightheaded) self doubt, and fear of going through yet another version of medical neglect, as I've had many now. It makes going for help a huge hurdle.
After 8 surgeries on my right eye I had a substitute doctor examined my eye when my regular doctor was out. He said I needed another surgery. I told him unless it was a matter of life and death or extreme pain I didn’t want anymore. A month later I got a letter telling me that this doctor was no longer available to see me. My trust in doctors is, you might say, challenged.
Hi Doctor Kaveh, Yes, I am searching for a new Internist after my current one had a meltdown. My current MD did not understand my ocular migraines. I explained I have had this occasional condition for over 40 years. She had a mental meltdown right before me! She did not understand when I explained the “migraine with aura”. She wanted an MRI of my head ASAP! I said no, I am ok, these are more annoying than anything else. She also scolded me for “self diagnosis”. I said “My Doctors in another state gave the name that I repeat to you. They were called ocular migraines; now I guess the preference is migraines with aura. She is from Romania and I guess I exceeded her knowledge. Anyway, I could not get a quick MRI because of my pacemaker. While I was waiting, I analyzed my diet. I had added Ricola sugar-free lozenges! Those have aspartame! That was the trigger this time. I stopped Ricola>>migraines stopped and not returned. I called the Doctor to report my success. Her medical assistant slammed the phone down when I said what I had learned and did not need MRI. Wow! So unprofessional.
Thank you doctor soooo much for this message. I was gaslighted when I was 15 year old. I started having chronic fatigue, a lot of joint pain, and I would drop things from my right hand (I’m very right handed), I finally lost the use of my right hand. Also, my right collar bone would swell outward and was really painful. I had x-rays, blood tests, and an Electromyography (EMG) test done 24 hours after the orthopedic surgeon shaved off part of my collar bone supposedly to help ease the pain from the swelling and they did a bone biopsy. Needless to say, that EMG was extremely painful after just having my collar shaved and drilled. I was in the hospital for about two weeks. During that time I saw a lot of doctors and such from the local med school. One of the neurology professors from the med school examined me and told my parents that what I was experiencing was due to me just wanting attention. That being a 15 year old female and a teenager it’s common for us to do things like that. Thankfully, my parents didn’t believe him. In spite of everything, my symptoms improved a bit, but I was still in pain and my collar would still swell and be painful. About 5 years later, I had to see another orthopedist for lower back pain. I also told him about my other symptoms. He took x-rays of my back which showed a narrowing of the spine. The doctor then sent me to a rheumatologist that had just move to my city. He ran a ton of blood test including one that was so new only two places in the US could do the test. The tests came back indicating that I had a genetic form of arthritis that originates in the spine. I was very happy that I finally have a diagnosis and that I finally felt like I was being heard. Some doctors automatically think that if you’re a female, particularly a teenager, and they can’t figure out what’s wrong with you that it’s all in your head. I have stopped seeing a few doctors over this kind of attitude. I think doctors need to be trained to not automatically assume that a female patient is looking for attention, sympathy, etc when medicine can not immediately lead them to a diagnosis. Thank you Dr. Kaveh for these videos.
I started noticing changes in my treatment during covid and quarantine. Now I'm encountering more obstacles, and I'm losing what little faith was left. Thank you for taking the oath seriously and for producing these videos. C-PTSD and 4 TBI here, with other complication after covid last December and organ failure.
Wow this is so validating! Thank you, Dr Kaveh! After 8 years w cauda equina, I’ve dealt w so many drs. So much gaslighting, so much manipulation and indifference. I’m cis female, btw. Means everything to me to hear a DR acknowledge that this behavior happens, and that it’s extremely harmful
Do you mind if I ask you if you had surgery. How did you you know it was time to take that step? I have stenosis. The doctor says I shouldn't worry about it....😞
@@user-ov4wr5yu4r Well, I had a massive spinal infection that nearly killed me, so surgery was a must. Stenosis is something drs have a tendency to think is just something u should live with, n I strongly disagree. If you’re in a lot of pain, or your mobility is being threatened, go to another Dr! You deserve a 2nd(or even 3rd, or 4th) opinion. You deserve to have a Dr who rly listens. Don’t give up, keep advocating for yourself. Good luck to you
I felt that way by different DRs. Even one who was supposed to be a specialist in the issue I ended up being diagnosed with. The DR who finally did a diagnostic surgery said he was very surprised by the amount of scar tissue I have internally from this disease. I am now being told this should have been taken care of 10 to 15 years ago. I am now extremely thankful for the DR I have. He is nothing like the specialist I saw. He doesn't ignore what I say like that DR does and gives thorough information. I have had very bad DRs, and now a good one. There is no comparison on how a PT feels going to a caring DR over one that allows your body to be harmed because of negligence.
I am 57F and Mom tried to raise us to never question the Doctor. I always did, while she tried to shush me. That Pediatrician was awesome, he always answered me and encouraged my questions! He taught me young about self advocacy. Thanks for this video, I think it will help a lot of people ❤
Thankfully I have never experienced the devastating stories that people are sharing, but I'm so thankful to you for doing this video. I needed to be enlightened! 🙏
This almost made me cry. I've had so many bad experiences with some doctors and too many nurses, that I find I do research galore because I trust myself more than I trust medical people. I'm now with a doctor group I trust and that is making SUCH a difference! I share these videos with my husband and I'm hoping that he will leave his gaslighting, manipulative doctor as I did.
My last surgery has left me with ptsd. The surgeon sent me home from critical care because she said the extra day wouldn’t be covered by insurance! I had not eaten or drank anything, no urine no bm. I live alone. I felt like I was to die. I had a huge open abdominal surgery. My blood pressure crashed and was 60 over 40 and I passed out. This was the first night I was there. I had every doctor and nurse rush in, I was scared I was dying. So they put me in critical care, then sent me home!! After getting home I couldn’t lay down at all. I only had regular chair. No recliner. Then 3 days later my incision opened! It was horrendous. I had to wear a wound vacuum for 4 months and have a nurse come in 3 times a week and go back to their office to have necrotic tissue removed and the stitches kept poking through my skin. They gave me nothing for the pain of doing this. It was excruciating. Worst experience of my life. I don’t think I will ever get over it.
I had gone in for a hysterectomy and bladder lift. Supposedly fairly routine. I had the procedure, and when I awoke there was no pain killer in my self medication. I needed fentanyl-it was stolen. Then, I caught MRSA because the nurse wasn’t gloved and did not wash hands between patients on the ward. Ok. Shitty. Then two weeks later, my bladder protested and I became incontinent, much to my surprise. The ureter had be randomly sewn onto my bladder, leaving a fistula (open hole). So I had to see a urologist and have abdominal surgery only a month after the original surgery. At the time I had two young kids, so they didn’t get the attention they should have had due to my issues. I haven’t trusted doctors since.
My celiac disease was attributed to anxiety for years. One doctor prayed with me and told me to read the book of Psalms every day. I thought I was advocating for myself, but I guess I'm not very effective at that. I'm so grateful to the primary care doctor and the rheumatologist who finally figured it out.
My Grandma was told she was hysterical for decades by doctor after doctor. They even committed her for shock therapy at one point (Grandfather was a horrible, horrible man). It was her body being slowly destroyed by celiac.
My sister lost 50lbs,she was miserable, even had nutritional deficiencies so bad she had to use a walker. After years she was finally diagnosed with celiac.
Thank you for this informative, thoughtful piece. I was labeled “contrary” by my doctor for insisting to be a partner in my healthcare instead of just rubber stamping what he thought was appropriate for me. Also, after telling him I was a sexual assault and rape survivor, he still became cross with me when I reacted to him pushing me to let him do things I was uncomfortable with. He is no longer my doctor.
This has been so helpful to hear. I have had a hard time trusting most doctors. When I went to a doc due to a cough and loss of ability to breath the doctor told me it was pneumonia, then bronchitis, then asthma even when I said no no no no no. It turned out to be cancer by an ER, then was told oh its not cancer you're too young and healthy by a different doctor. By the time it officially found as cancer after it is, it's not, it is and is not... they didn't think I'd live to get from one hospital to another to get chemotherapy. I was in stage 4 by the time I was being truly treated. It effects me today. And here I am 9 yrs later beating 3 cancers and a stem cell transplant. I now always have my mother with me because I flight and freeze when I see and talk to doctors. I'm dealing with this right now with the pain clinic where they want to pass me off on someone else because I've been living in so much pain for so long they want someone else to "deal" with me! I'm so tired of this and finding this video was so very helpful!
Great work Doc❤. I have gotten sick and tired of telling drs that I'm sick and tired of being sick and tired. So many drs ignore what they don't want to hear.
Goodness, I've experienced as much medical neglect as I should for a lifetime im 25. Still having nothing being done for my pain and alot more of my time is spent sitting and laying down if I'm not working or cleaning or cooking. It's disheartening and being gaslit by doctors also can hurt your soul and trust
Paralysis on one side: Hemiplegic migraines, periodic paralysis from potassium imbalance is another. Just want to point out things that aren't conversion disorder or FND. After being gaslit for over a year, we finally are getting to the root of my daughter's illness. Hint, it never was psych like they tried to say. Appreciate you raising awareness but there isn't a good way to protect yourself. The more you insist something is really wrong, the more doctors declare you crazy. I had to start bringing a male to appointments to get help.
I had similar experience. Even with female doctors. I’ve had to be very careful of my doctors, but I used to have to bring my husband into appointments to get taken seriously. (Lol the irony is that he is a narcissist, and would gaslight me himself. Lol)
I needed this . For years I told drs saying I had bad headaches, bad neck pain seeing black dots in my eyes . I was told I was after pain pills, etc. 5 years later I ended up in the icu with IIH I lost sight in my left eye and some other problems. Same Dr told me malignant hyperthermia wasn't a allergy I needed to worry about. I can't trust any drs anymore.
I'm so sorry you had that experience, but I greatly admire your vulnerability in sharing that. I hope you learned something new and feel empowered to advocate for your health 🙏
I'm so sorry you had that experience, but I greatly admire your vulnerability in sharing that. I hope you learned something new and feel empowered to advocate for your health 🙏
I had a knee replacement surgery My first surgery ever When I woke up, they said I was throwing up everywhere and hollering and fighting those around me. I vaguely remember this... When I asked about it, they casually said, "I had too much anesthesia 😮.. the Dr was so unconcerned 😮 I did everything that was instructed prior to the surgery...no food water etc etc. Now I need the other knee done soon I'm not sure if I want the same Dr. Or hospital....the recovery was 😢treacherous for almost 4 months What's your sincere advice Thank you so much for your response
I'm so sorry that happened. I went through a horrible experience after my knee replacement at sge 44. They severely undertreated my pain in the hospital bc I was a tolerant chronic pain patient. I was crying for two days, unable to see my family, my kids bc of the pain. I begged for a pain specialist to come into the orthopedic hospital. Also they had a policy where they take all your prescription medication prior to surgery. That should have been the first clue that they were not going to treat my pain properly as a tolerant patient. I even asked them prior to the surgery if they would capable of handling me as a patient, and they said of course. The thing is they were giving me the standard dose for all patients but not the proper dosing for someone taking narcotics daily. Finally they sent in a pain specialist and after the meeting with her she dosed me properly. I suspect I don't tolerate morphine or it doesn't work on me, possibly a genetic thing, so the morphine wasn't working. She put me on OxyContin, pill form and 2 hrs later I was finally able to sit in a chair & read my book. The surgeon came in snd was surprised I was finally out of bed. Je said he thought I would be sleeping due to the dose that was given by the pain specialist. I said no, my pain is finally less so I am able to be coherent. The fact they let me suffer for days like that in the hospital, and refused to give me my sleeping medicine even, well it was torture and I said never again. Two months later that new knee started locking up. The same doctor didn't believe me until a month later I came back, I went out to my car and showed him that it locked up at a certain angle. Well he diagnosed me with Patellar Clunk Syndrome. I had to have another surgery using a scope. Had to get rid of scar tissue. Well it helped the problem, but that new knee was never good. Four SHORT yrs later it had loosened at the tibia. I wanted to sue that doctor, and my husband was furious when after I searched the device serial number found out that one of the parts was recalled and I was never told. So yeah called an attorney who told me too late to sue, sorry! That entire thing has scarred me to the point I don't trust or have faith in the medical system. That same doctor eventually retired snd no other doctor wants to do my revision. I've had to suffer from the pain of a loose knee, and a bone on bone right knee after babying the loose one since 2014. Nine yrs I've waited and I still don't want to have it done due to fear. I definitely have PTSD from the entire experience. However I have prepared by lowering my dose of medication bc at any time my loose knee can break my tibia. I've lost a lot of weight and I realize that the surgeon took advantage of me all those yrs ago. He should have never EVER agreed to operate on me at that age. He could have done steroid shots and recommended I lose weight etc. He didn't. I also have extreme painful conditions on top of my bad joints, due to chronic lyme, so I refuse to do surgery until I am not as tolerant of pain meds. I'm doing what I can in the meantime time, but I have lost trust in the medical system for sure based on that experience and others along the way. I had one doctor in 2015 tell me all I had to do was lose 50 pounds and my pain would be gone. I left that appt sobbing from the shame of how he spoke to me. Yeah Many doctors shouldn't be doctors. Some are egotistical jerks snd get some sort of kick out of treating patients like crap. Women patients get the worst of it. I just want to say, I UNDERSTAND YOU!! I know how devastating it is to deal with pain of surgery esp. knee replacements bc of the long recovery process. If I had it to do again I would have waited ten yrs. That experience caused me harm long term. And I do wait to see a doctor when I have symptoms. It may make diagnosis delayed for that reason. Maybe cancer one day. But my quality of life is so poor one almost chooses to go out to stop the daily pain.
Where are you??? Please respond as l have had bilateral knee replacements and a revision nearly yrs later and l am recovering comfortably at 76...there is hope...l promise..don't lose hope...
I was told that Medicare will not cover me if I don’t get the shot. When that didn’t work he changed his tune and said I want all my patients to have the shit. If you don’t get it I won’t take care of you. 31 years with him 8:48
You make very valid points that I never ever thought of I've been treated like that and if I don't like the doctor I don't like the way I'm being treated I usually go somewhere else until I found the doctor and are usually research my doctor's pretty well but I didn't realize that deep down I do those things I don't tell how badly I hurt because I'm tired of people telling me it's all in my head or there's nothing we can do or just everything so you made me realize that yes I do shy away and I didn't even realize it there's a lot of things I didn't realize until you mentioned that I do I think you very much for all that you do on here for us and all that you bring us aware of an all that you teach us and I thank you for the time that you spend with us that's your time that you're giving freely and I think he's doing a great thing❤
I heart is pounding after hearing "it's pressure, not pain" I was forced to have a c-section (I didn't refuse but the doctor got aggressive because was scared and asking questions. He threatened to have my baby taken from me if I didn't agree to it that very second) Then came be spinal block, I felt a strong electrical shock but no numbness. When I was on the table I kept saying I wasn't numb and the doctor brushed me off by telling me that Im not feeling pain but pressure. I felt the first cut and screamed. The anesthesiologist began to put me under as I begged to not miss my baby being born. I came too and was out for blood. That's not where the story ends but it's the worst I've experienced. It's been 13 years and still get nightmares. I also have had migraines since I was 6 and have met doctors that don't listen or believe patients and it is soul crushing.
I have hEDS, Chiari Malformation (although some Drs disagree), MCAS and am on a list to be tested for Dysautonomia, crazy gastro issues and that list of craziness. So this past December I was exhausted, had an increase in symptoms, my abdominal pain was horrible and my smile was lopsided. I went to the hospital because the abdominal pain was so bad. I told them all the other symptoms that had increased at that time, about the lopsided mouth and the abdominal pain. I also told them I had called my neurosurgeon about the increased and new symptoms and they were trying to get me set up for an MRI. Sometime in January (close to the end I think) There was a change in the PONS area which they thought to be a demyelinating disease so they had some blood test and lumbar puncture done. There was nothing that said, "this is what it is!" So my new neurologist said, we're going to repeat the MRI. When it was repeated it shows more changes that are more consistent with a stroke. I personally know it's not super uncommon for someone with vEDS or hEDS to have a stroke but my neurologist says it's not. All my other test came back with no cause as to why. She's having me see a hematologist. I have wondered if I had emphasized my symptoms differently in December if they would have taken symptoms aside from the abdominal pain seriously. I have become so used to no answers, being pushed off and everything else that I actually felt guilty as if I had done something wrong being at the hospital and I was scared of being in the way and wasn't sure they would hear me anyway. My concern is that for there to have been another change that I had to have had another stroke. Now I am concerned it's happening and I don't know it. I deal with many mental health issues and all of this makes it hard not to think it's in my head or that I am making it up. When I have asked questions or explained my stance the neurologist didn't seem to have any clue about these things. Neurologist have been horrible although I appreciate the new neurologist determination to rule out causes I also feel lost in it all. There's a lot of medical issues I am battling and mental health that I just keep my mouth mostly silent about.
I love this thank you. I have had many different Doctors, my Father and Daughter are Doctors. Still they have discounted my health and issues. Thank God I also found some great Doctors too.Early hysterectomy Four lumbar surgeries with fusion, two cervical with fusion and plate, Two Heart attacks.five angio plasties, six stents. I look great, my back and neck are doing great too. I was on hospice heart, and COPD for a year and a half. Now still trucking at 71 two years from being on The death row. Tee hee. Still going! thanks to the marvelous anesthesiologists and doctors that did care. You are 100% right they have also got to take responsibility for our own healthcare. Thank you for helping us understand that we could have multiple things also going on when we've had so many surgeries and with different medications I so appreciate your information I am just a little thing so I've hardly ever needed much anesthesia at. Thank you doc really appreciate you giving us your time.
Thank you so much for making the time to share this important information! It is so needed and I hope that you continue to talk about healing from these types of medical traumas. I have long been in freeze mode around this and just not sought care due to past gaslighting and worse from doctors and nurses. I've felt at a loss as to how to heal, since I also have had traumatic experiences with therapists, making it challenging to seek help from them. It's exhausting and discouraging. So this is immensely helpful and making me feel more hopeful. You sir are not just a doctor, but a true healer.
I have been gaslit for so many years! Where I grew up, All the hospitals were what you call "teaching" hospitals. I have been battling severe asthma since birth. It didn't help that they called my mom Hysterical when she called in about my asthma, so she wouldn't call until I was blue and flopping around gasping for air. Then they scolded her for waiting too long! Many times I wouldn't even see a doctor, just a student. Back in the 50's doctors were considered 'gods'. I stopped going when I was molested by one. I would suffer for days, unable to walk to the bathroom by myself. Then, in 1976, I confronted a Dr who was treating me cruely. He was an OB/GYN and I was pregnant. He had me sitting in the exam room, naked with only a hand towel for cover, with the door open! People were walking by on their way to the office. I closed the door. The nurse came in and said the Dr would not come in if the door was closed. This happened 3x. Finally he did come in and I confronted him on this policy. He brushed me off and began the exam. I was 4.5 months along and I had felt life. The exam was Very painful and I started bleeding. I went home and continued bleeding with large clots. I never had clots during a period, this was terrifying. When I told my mom she said I must be wrong. We had to go to Cleveland for hemophilia testing. While in Cleveland, I had painful cramps and passed an enormous clot with something pink in it. Mom saved it in a jar then took me to the hospital and they said I had miscarried. I was So upset! So scared! Where would I go now? I no longer trusted any doctors. I called a friend who I knew to be extremely fussy and very self-confident. I went to her doctor. He confirmed that the other Dr probably caused the miscarriage, but we had no way to prove it. It was so heartbreaking! I had felt the baby kick! Other than that new OB/GYN, you are the first Dr I have known to expose the truth! I can't thank you enough! 👏👏🤗‼️
Great info as usual doc… you know, neglect can range from the pharmacy to the most complicated illness and everything in between… it is SO HARD TO NOT ONLY NAVIGATE THROUGH BUT HANDLE AND RUINS LIVES…
Wow! This absolutely hit home for me. My wonderful family doctor of 26 years has retired and a young female doctor has taken over his practice. I had my first appointment and it was an utter disaster. I'm 61 and feel that my age was at least partially why she was so incredibly dismissive of me. I was 8 minutes late for the appointment and she spent the first five minutes of my appointment chastising me for being late. It was a result of traffic as we had given ourselves an hour to get there. She barely allowed me to get a word in edgewise, would only discuss one issue and didn't even refill my prescriptions. Told me flat out that her turn around for renewal of prescriptions from the pharmacy was one week. WTH? I'm on morphine for disc issues and a crumbling sacrum and I have chronic depression. So being out of medication wreaks havoc on my body. Worst of all, there is no other choice because there is a HUGE shortage of family physicians in my city. I feel unheard and ignored and I have to go see her in August and I'm absolutely dreading it. 😦
I know a retired heart surgeon who is world renowned. He said that not all doctors are competent. I do appreciate that you recognize and say that there has to be patient responsibility. Society doesn't want to accept responsibility for much these days. They can go to the black market and still take no responsibility.
I'm enduring this currently. I get tired of not getting proper care. Im tired of feeling like I'm fighting for someone to listen. If doctors would stop and listen to the patient as they know how their body feels. Not all patients symptoms fit the mold for a disease. Were all different.
I had an inflammed femoral nerve from what was diagnosed as nerve damage. There were times when my leg would not support my weight . Thank heavens, I had wonderful doctors because- I had family members telling me I was crazy and making it up. My own father said years later- oh I didn't know you were in the hospital.
Like you said our broken healthcare system, at it's best. Our primary medical clinics operate like a busy chain restaurant on a Saturday night! I wish it weren't this way!
22.5 years, that’s how long I was subjected to medical neglect before I pushed for the test that identified my dysautonomia and during that test the experienced cardiac team running the test called a code on me during that test. Wasn’t the first time my heart stopped pumping blood ( or the last), but it was the first time they had me hooked to all the machines when it happened. I was denied medical care during the pandemic because it was unsafe for me to wear a mask and now there are indications I’m starting into CHF due to not receiving the medical treatments that were deemed medically necessary just a couple weeks earlier by the same facility that was now saying I couldn’t get my treatments if I didn’t put my life in immediate danger to put on a mask for the extremely low chance anyone else would be endangered by my not using one. I know I’m dying as a result of my service as a firefighter and even if I find a new PCP that doesn’t engage in medical neglect ( like my most recent one definitely did) the damage is irreparable. I’m 53 years old. Most of my family lives into their 90’s. It’s unlikely I’ll see 60.
Someone should write a book with all these situations and their outcomes and make it mandatory for medical students to read and learn from it. I know the saying if you hear hooves think horses not zebras but us zebras mostly get diagnosed too late and die much younger than we have to. There are some great doctors who are willing to solve these puzzles but they seem few and far away. I know doctors have a lot of responsibility & enormous amounts of papers, tests and form to fill out and they’re not fairly compensated for this work. Change needs to happen now!
I would just like to send a heart felt apology for your recent prognosis. I pray for you and your family. As a wife of a fire fighter and an ABHC of the R-USN. Thank you for your service and you will not be forgotten, my friend. I hope u find some peace in your life, Lord knows you need it, deserve it, and earned it. 😢❤ stay positive!
Most of the disabled pain population is now living with iatrogenic PTSD as a result of med abuse & neglect. We're judged, doubted, shamed, mocked, gaslit, dismissed, and left to live with horrific untreated pain & suffering, to "save us from addiction". Instead we live housebound & bedridden, turn to illicits in desperation, or straight out suicide. And now, Canada, rather than managing pain, will kindly euthanize you when you can no longer bare the pain, isolation, sleep deprivation, cognitive decline, depression, anxiety, and slow death. Good job, health care system.
I had to have steroid shots in my back. When I went back for the check up, I told the dr that the drugs were too light and I felt it when he gave me the shots. He flat out called me a liar 😤😤
I go in for specific complaints, the doc does labs or whatever, the labs often come back 'borderline' something or other and at my next appt, doc says my labs look "Okay". So I take that to mean borderline labs need no attention. I think my docs think I'm either a drug seeker or hypochondriac or both but I suspect---since I know I'm neither--that borderline labs can be felt by some people who are really in tune with their bodies but docs see us differently. How do we get past that. I've been being dx'd with Lupus for years and another doc would disagree, saying he sees no lupus dx. This has been happening for over 20 years. I was at urgent care recently and the print out they gave me upon discharge showed all dx's and one was SLE. Why doesn't that ever become the blame for ER/Urgent Care visits? Why do they dismiss SLE and in the ER, we can find nothing to cause your symptoms? I quit seeing my doc for a year and a half due to this repeated behavior. Idk what to do anymore.
This was so VALIDATING for me. I have such a distrust for doctors because I’ve been gaslit so many times. Then when I advocate for myself I’m “over reacting “
Same here! I went through cancer treatments and surgery last year. If I questioned anything and didn’t just follow orders like a good little soldier, I was labeled as combative. 😡
We all have some tales about doctors and nurses and surgeons and anesthesiologists. As an adult these episodes have been few but growing up in the 50s and 60s, my parents selected bottom of the class. Their attitude was basically, if I can't figure it out and x-rays do t show a break then the patient is a hypochondriac. I'm paying for it now. But because I not only self-advocate but also take one of my daughters or my 25 year old granddaughter goes with me. But I never thought about anesthesia and recovery being affected by those. Thanks.
@@carolgibson-wilson4354Oh yeah! Absolutely! 🧐🤗
Omg this really hit home for me! I’m neglecting things because of past trauma with drs. Sometimes I feel like I’m the only one, glad to hear I’m not.
I get you, I suffers from neglect badly. I got sick when I was seven I cried out of pain daily, but my family told me to walk I off, because it was probably because I was a litlle too fat into their eyes I way 7 kg. Too heavy. So I listened and started finding sport wheir I could manage my pain, like waterpolo, and horse riding and then I biked about 25 kg. A day.
And I hurtled all over but I learned that I was maybe just muscle ache and maybe that level of pain was normal, I then had constantly urinal disease's, pain In my back, neck, knees, feet, hands, arms, everything hurt, and I blamed it on my training because the doctors told me I wasn't sick, I was too young to be in pain.
But when I then moved, and stopped training, the pain continued and even started slowly getting worse over the years.
I wouldn't sleep due to pain I would be 23 when they told me I had ehlers danlos it's like the big sister to hypermobilitetsyndrom and that my knees was wrongly placed naturally which was the reason they went out of place very often.
And that I had muscle arthritis which is rare in adults, but my primarily doctor said. It had to be a mistake and stop my treatment after 4 months. I went from finaly walking in sand again to, loosing my ability again due to pain.
At 26 I got a MRI scan of my legs, hands, arms, bag and brain by a rheumatologist and neurologist, and suddenly my entire life was explained I had real arthritis, and progressive multiple sclerosis.
I was sent to treatment 3 different places.
1 of them was a chronicle pain management center and they diagnosed me with one more thing "chronicle pain syndrom/Fibromyalgia" due to 20 years of untreated pain at that time, I got a good pain management plan, but was told that I would never be pain free and they asked me what I expected from my treatment realistically, and I told them I would be happy to just come under a 7 on a good day, and they told me that, it was very realistic.
We went through all legal treatments in Denmark, and we found a mixture to help me.
But I will never be completely pain-free, I never have a break and it's awful.
Then last year at 33 I was diagnosed with trigeminal neuralgia in both sides of my face on of the worst migraines on planet earth.
I got it from my sclerosis. 😣
Such a valuable and nuanced explanation of how being neglected, gaslit, shamed, disrespected, labeled by a doctor can cause a person to fight, take flight or freeze and endure terrible health consequences as a result. Dr. Kaveh, you are such a deeply caring human and doctor. Thank you for all you are doing for us.
Fantastic to be validated as so many woman in Ireland , UK & Europe are treated this way, I hope its not to late for my loved ones, but perhaps it is, as Woman are treated as neurotic or hysterical. Notes with derogatory comments from hospital 😢
@@tiffanyhowells2135It’s just as bad in Canada and New Zealand.
I was my family's caregiver. I looked after my parents and my brother dueimg their illnesses and deaths. I had to advocate for them bc of the level of neglect they received from their doctors. One of my father's doctors after his visit said if we had any questions, to let her know. I asked a question about my dad's medication and was told in an irritated voice by the doctor to not worry about that. I responded saying that I'm carrying for my father and my question is legitimate. She did not like being questioned. I switched doctors. The sad part is that I switched his doctors 3 times over 3 years until I found one who actually cared. I have way too many stories like this regarding care for my family and for my self. It's hard for me to trust doctors. These videos let me know there's at least one great doctor out there. Thank you!
So sad you had such awful experiences when trying to care for and advocate for your family members.
.praying that you'll have smoother time in the future❤❤❤
As another carer I recognise your experiences. It is incredibly difficult being the patient with these medicos let alone one step removed as the carer. I am so traumatised and hypervigilant now and exhausted from the constant watching that they're doing the right thing and then stepping in to fight his corner.
Yep doctors are worthless cowards
Very well said.
I got infected with Lyme in 2014, I was 40 years old, after 5 years of terrible pain in my joints and being told "you look good", I found a holistic doctor. I am 80% better with almost no pain.
Glad you're feeling better, that one gets misdiagnosed a lot. I've been bit by ticks and had a bullseye. I went to an urgent care doctor who didn't want to give me doxy but my ENT did, wasn't even his job or what I was there for.
Me too back in 1992 and again 2009 left and neglected after I got private treatment from fundraising I was then gaslit and neglected by doctors when other problems got worse.. x
I'm very lucky I have excellent Dr's. But in the beginning, I went through a lot of Dr's before I found the rights ones
I’m going through that as well, after 21 years of being chronically ill and having to retire early from my teaching career! I can’t drive because I have a broken shoulder that isn’t healing right because of Babesia.
I’m alone, and even have a hard time going outside because of CPTSD!!
You can tell how your friends and your fiancé really is when you get sick! 🥲
I know I need to release trauma and go to therapy, but I have lost all my money, and I’m scared to drive, all if a sudden!! What happened to me????? 🥲🥲🥲🥲☀️
@@badxradxandywhat's doxy
Listening to you heals all of us who’ve ever been mistreated in healthcare.
Speak for yourself, I find these videos VERY creepy, and unprofessional.
@@justrelaxing2721 take your toxic self elsewhere then.
@@justrelaxing2721 how though?
@@coreyfaehrmann1580 🙄… your ALL being brainwashed by this guy,,, this is VERY bizarre
@@justrelaxing2721I was a nurse and i don't see anything unprofessional about this doctor admitting mistakes can be made
My doctor spent more time looking at his computer screen than listening to me, then, after "supporting" me through 20 years of FMS & Depression (I am disabled and cannot walk more than 20 feet without aid), he took his life. The next doctor I saw was more interested in "mindfulness", which is good, but doesn't solve chronic pain and fatigue. End of the story is that I don't go to the doctor anymore. Every time I do have to go, they are dismissive, or you have to fit everything in to a 5 minute appointment, after which they start looking at you like, "time for you to go now.". Cue Covid-19, and you couldn't get to see one anyway. More non-personal "care" or lack of it. Now it's so hard to get to see a doctor locally, I just don't bother. I honestly feel that if I had a stroke or heart attack, I'd have it quietly in my own home without anyone knowing. When Covid-19 came, I asked my GP what I should do if I catch it - he asked me to sign a DNR. Thanks, doc.
So sorry you had to endure this! 😢
I agree, medical care is getting hard to find. It takes weeks if not months to get an appointment. No one answers phones you get a recording and maybe a call back. After being in the ER with my husband multiple times since Jan. (where the medical workers were exceptional but not enough of them) I told my husband if I collapse at home, step over me and go grocery shopping and hope I have expired before he comes back. I don't want to suffer for hours in an ER with overworked employees who's hands are tied because there is not enough staff or too much red tape.
I agree, same experience
Wow I’m astounded that he told you to sign a DNR especially without counselling you before hand?! The doctor just gave up and assumed you should as well? I truly hope you reported them to the hospital and medical board because that’s not right! This doctor needs some type of punishment. It’s a patients choice & right to make this choice themselves. This sounds eerily like the MAID program in Canada where the last few years too many people who are on disability but can’t get enough support. Choosing between meds or food or housing so they decide it’s better to have a medically assisted death rather than continuing to struggle to get basic life support to survive and thrive😢 I’m truly sorry this has happened to you❤
Your story breaks my heart and I think that most anyone, given enough neglect, having your Dr. commit suicide, being counseled by your PCP to sign a DNR when you asked them what to do if you get Covid, would feel like giving up on doctors and getting medical help. You know, in the US, gyn preventive care for women (your “well woman exam) is a no charge appointment because of the Patient Protection and Affordable Care Act (Obamacare.) Maybe if you have a friend or family member who can go with you and advocate for you, you would at least have that healthcare.
I was told I was a hysterical female (back in the 90s) when it was a meningioma tumor on my spine. There’s more to this story, but yep…..hysterical female syndrome explained my loss of leg function
Sorry to hear you went through that.
My very dear friend went years being blown off. She would sporadically collapse when she walked & kept saying she had back pain.
She begged for an MRI for years Drs refused, insurance refused. Finally, over a decade later, a new Dr ordered the MRI and guess what? All this time she had a cyst on her spinal cord. Thankfully post op we learned the cyst was benign.
Years after this another cancer scare that turned out benign.
The last issue turned out to be oral cancer that aggressively spread & ultimately took her life. She put off seeing a Dr, ignored her symptoms.
I am inclined to believe at some levels she put off treatment after being blow-off, told her symptoms were in her head, told to lose weight (even after losing 100+lbs), etc.,
I have to wonder if the lack of medical support and follow through from earlier issues she had played a hand in putting off earlier interventions.
***Forgot to mention this started for her in the 90s as well.
@@cherilevy wow. Ya I’d have to say the poor treatment she got earlier prob kept her from trusting drs again & putting off seeing anybody about her newer symptoms. It’s very sad, I’m sorry to hear. I do the same thing too. As it’s just so hard to trust anybody again in the medical profession
@@jilligain3409I am battling feelings too about avoiding follow up appointments. I don't want to see my gynecologist, nor *any* gynecologist anymore, after the way I was treated by my doc, both physically and verbally/psychologically. I lost trust in her after being hurt during a relatively minor surgery and was gaslit afterward and made to feel that *I* caused *them* trauma by complaining about how painful it was and how I was left damaged down below from rough handling while I was unconscious. I have always gotten a lady gynecologist so I can feel safe but I felt I was mistreated while in a most vulnerable situation, unconscious & exposed. I struggle to feel that I can ever find a compassionate, trustworthy doctor. I'm left with PTSD.
I am so sorry that you suffered that terrible treatment...l worked for a very caring obgyn whire in nursing school and all these years later l.have found a gentle and caring gyn who helped me get a very necessary gp and orthopedic surgeon who saved my ability to walk again at 76 ! I was blessed and l.hope you will be also.
It is possible....
❤❤❤
@@MacchiatoSwirlGirl tell him it was on T-7. I was paralyzed before they found it. I’m walking now, but not too well these days. That Dr who blew you off ….can pucker up & kiss my ass
A doctor said to me once "you don't look sick" I said right back to him "you don't look like a doctor, when are you retiring?"...shut him right up
👍And thanks for addressing this issue head on, Dr. K! As hubby learned in medical school: " They don't care what you know, until they know that you care!"
I’ve had to learn how to google all of my medical situations before I go to the Dr. For years because no one new how to help me. I got sick 13 years ago and was left with SBS, malnutrition, malabsorption, chronic pain, chronic diarrhea, incontinent diarrhea to a illeostomy, Life long TPN and hydration. They gave me five years to live. Sent me home from hospital with picc line, for nourishment, NPO. I lost my family and my life! It’s now 13years and I barely no my grandkids because of my decreased quality of life and my three sons all except one basically removed me from their lives. I finally have no more tears to cry about wat has happened and continue to wonder how the last 13 years would of been. There’s more so much more but I’m exhausted from taking a shower and I need to hookup and change my pouch. You have great advice. I will continue my story another time.😂😂😂❤❤❤
I don't call it "doctor shopping". I call it "interviewing doctors"
So I know the medical professional are qualified to treat my issues.
Exactly right. We are actually paying them for a service.
They work for us. Not the other way around!
The medical community invented the term "doctor shopping", so we have every right to label it as we see it from our perspective. Being a patient does not mean you are mindless and can't make right decisions. The doctors that are defensive reveal that they are intimidated by our sharp minds. And reveal their fear of being wrong or that they didn't get the education they paid for.
Most doctors don't like me because I am very educated, read medical journals, and truly discuss my health and decisions. They hate it.
Amen! Same here!
Even my friend who is a doctor gets the same treatment.
Hard SAME!
Yes they do!. I had one recently tell me to quit going to Dr. Google!! I get my information from reliable sources. I'm not highly educated but I am educated and I'm not stupid..it's almost like they're insulted if you ask an intelligent question...they want to patronize you and pat you on the head like you're a child...and you're supposed to be a 'good little girl'...I lost my respect generally spTheaking for doctors when I was misdiagnosed when I in fact had breast cancer. The doctor gaslit me and it almost cost me my life. The only reason I now know it didn't is b/c that was 33 years ago...The thing that really burns me the most is they say they want us to be proactive, and push preventative care, but then when you do that, they don't like you, characterize you as anxious b/c you're concerned about your symptoms and feeling unwell and not getting better. You can't win. I've had a few, very few, great docs...but the rest? a waste of time seeing them.
Yep, I hear ya!
I'm in tears. I moved from North Carolina to New York on October 2021 and have had nothing but horrendous care from the medical professionals associated with the university here. I FINALLY have had my "back" problem diagnosed....my SI joints are very bad so I tried the injections. My body can't handle steroids of any kind so I wasn't sure how long this "relief" would last. Well it lasted 7 weeks and I'm thrust right back to 2021 and absolutely NO pain medication. I forgot to mention that I'm a bilateral amputee who is wheelchair bound with very bad shoulders to add to the quagmire I have found myself, as if losing my legs 27 years ago wasn't bad enough.
Oh sweetie I’m so sorry. I’m also a bilateral amputee, after being paralyzed by cauda equina syndrome. I lived in Iowa at the time I became ill. The doctors missed the infection for 2 months and nearly killed me. I sued the Hell out of them and won easily. So, in a way, I’m “lucky”, among many disabled folks.
I moved to Portland, Or, 3 years ago and the healthcare here is miles above anything I’d ever experienced. They care about trauma informed care(and it sounds like you’ve been through medical trauma). I would strongly encourage you(if you can) to think about moving out here. Washington and California also good. Your life and health and peace of mind is worth everything. Pls hang in there. U deserve to feel better
Can you find a hoistc dr. Online.? May help you in the short term and may direct you to better people?
After two failed foot reconstructions (preceded by decades of musculoskeletal, neurological, foot and back issues), I found myself in such severe pain, I had a surgeon waiting in the wings to amputate my Left leg below the knee. This was January of 2016. When I informed my Primary Care doctor I was headed for amputation, he stepped in and convinced me to opiate, not amputate. He assured me I would have essentially a lifetime prescription for 45 mg of Vicodin per day. For various reasons, I had already been on 30 mg Vicodin for about twelve years by that point, so I cancelled with the surgeon and settled in for the duration. Well, seven years after that, Old Father Time stepped in, my eighty year-old Primary Care doctor retired, and my Vicodin prescription ended abruptly. Three choices came to mind: (1) Go to a Pain Management doctor and probably get yelled at, belittled, and threatened as I have experienced at their hands before, (2) Hit the streets of my city of one million residents and find street opioids which would most likely kill or incarcerate me after a couple of years, or (3) Quit taking opioids and my two blood pressure medications altogether, climb into my bed and/or my Lazy Boy recliner for about 23 hours a day, and delegate what few house chores I used to do while opiated to my adult children. I decided on Option #3. So... it looks like I've taken flight and am in danger because I am sick to death of doctors. "Woof!" Also, "Ruff!"
@@yourgodismean4526 🫠 I wish I could but we inherited my husband's childhood home and the move from NC to NY broke us. Not mentioning the fact that my husband was diagnosed with MS in 2002 then he needed hernia surgery in 2021 which he received BUT the pre-surgery blood work the grossly elevated white count... he has leukemia. So, we've been through the mill and I'm not done fighting yet. I wish the best for you, what a horrific way to find peace. Hugs and a safe life for you ❤️
❤🙏
This is exactly why private patient advocates like myself are needed. Having an advocate ensures you are heard and you are properly diagnosed and treated.
Where can one go about funding patient advocates? We used to have an organization locally who had advocates. I'm helping a friend whose mother was put under a conservatorship - not because she couldn't take care of her affairs with a driver to the doctor's, but because she changed a trust, as she was sick of bickering in her family. The conservatorship was purely for the financial greed of a particular family member, IMHO.
I wasn't aware a contested trust could have attorneys' fees for everyone taken out of a trust estate. It shouldn't be legal for an assigned trustee to sell off rental properties an adult child is living on, but that's what has happened.
The trustee and attorneys have drained over half a million dollars off the estate. That should be criminal.
The trustee has been doing this for many years and seems to provoke siblings to take issues to court, as this person walks with a lot of people's money. It's quite the scam, IMHO.
It's seemingly illegal, yet that doesn't stop this person and their spouse, who is also this person's attorney.
This person sold property "as is," even though it was contested, without the court's approval, and didn't do anything to maintain the properties involved. She got court approval AFTER she had already found a buyer! She hadn't even accounted for her billing.
There's an inquiry going on for criminal prosecution, but that property is gone, and another is going to be sold.
I'm doing what I can to help, but it's difficult for this person.
If you have a referral, that would be helpful. You can DM me on "X," formally Twitter @SoCalBohoGal. I hope to hear from you, as there's a serious need for advocates in my area!
Perhaps if we all work together to make healthy changes to the system, we can change it for the better!?!
This case certainly had me re-think my future plans to set up a trust! I think I'll simply put any property in the name(s) of those who I want to have them, so it will go to who I want it to.
If someone did that to me, I would be the biggest PITA ever. I'd probably leave the country. I'm looking into putting money away should that ever happen.
This woman passed away with property in a trust, and her child who wanted the property pushing for her to have the conservatorship over her.
It was abuse. There's no other way to describe it. Her wishes weren't followed. It's quite disgusting that those things go on, yet the trustee has been doing it for many years and is quite wealthy on the backs of other people's estates.
This is the second person I've known who has dealt with the same trustee and the same court.
That a person can be forced into a conservatorship against their will when it isn't necessary because they have a sizeable estate is nothing short of horrific.
Her doctors (2 of them) even wrote letters for her, stating that although she had a mobility impairment and some mild memory issues, that she was able to make her own financial decisions.
She was totally disrespected, it likely adversely affected her health, and although this child who contested the trust, along with her brother, received other properties from the parents, they'll be receiving some money from the properties in the trust, taking it from a younger sibling.
This case certainly has me re-thinking the set-up of my estate.
It's unbelievable.
I hope I hear from you! Even an advocacy class would be helpful! We certainly need more people like you in the world!
Again, DM me at @SoCalBohoGal on Twitter, now "X".
Thanks!
Where are you? I asked for a PT Advocate and only get a phone # in emergency mode. Not for in person/ Palliative Care. No Dr ordered Palliative Care here in Pueblo Colorado.
I agree. I requested a patient advocate twice. No response. Why is this happening in the U.S. So scary.
@@savanahasargent4856 I’m a Board Certified patient advocate- we all work cash pay only and for ourselves.
The hospital I was in said they didn’t have them
I dealt with this too, as did family members. After my sister self-harmed and removed herself from the planet due to this, my new drs did fully take me seriously and have finally diagnosed and are now treating conditions that were actually killing me and previous drs ignored. Life is so much better having drs that believe me, care, and properly treat.
What a blessing you are finally getting the care you need and deserve but it is so very sad your sister wasn't sa blessed....l.pray she is home with Our Lord Now and finally has the peace she deserved here❤
I’m so very sorry for your loss… my heart goes out to you. I think we women go through this too often… too often 😢💔
I had the same happen to a supposedly best neurosurgeon in my area. When I asked a question, he told me to shut up and wait. I then went off on how disrespectful that is and if he wants respect, don't treat people dismissively. They are his bread and butter. Then I dropped the bomb....I was also a neurosurgical and medical ICU nurse so I know way more than the average person. He then ran out and let his nurse handle me. I let her have it nicely about enabling his bad behavior. The next visit...yes, I gave him a chance...he was apologetic, spoke more slowly, and made sure I had time to get any questions answered. I told him that was how all patients should be approached, as well as staff.
Even being in the conventional healthcare setting where everything is mostly about profits, not patient benefits, you still have so much compassion! You truly are at your place in life, doc!
I don't think so. He belongs with the walktie-talkies.
You are restoring my faith in the system...l am so sorry that you had to personally experience this kind of treatment to someone you care about to give you the impetus to empower us though😢
He is THE BEST 😊
My husband , a college professor at Harvard, was told his twitches in his face and arms were depression because his affect was flat. His PCP gave him a prescription for lexapro. My husband came home and said I have never been depressed a day in my life, so he didn't take the prescription. Three months later, he forgot his way home from work, so I took him to the ER and insisted on brain scan. He had a glioblastoma( brain tumor) on the right side of his brain covering the frontal parietal temporal lobe the size of a small grapefruit. Always, listen to your intuition and if you don't like what MD tells you get a second, third, and or fourth opinion. Thank you Dr. Kaveh for this powerful information.
Thank you so much for your thoughtful help and concern for people who fall through the cracks.
AMEN! 🙏
I’m so glad that you are addressing this issue
My pleasure, it is such an important topic for us to all raise awareness about
@@MedicalSecrets well done doctor kaveh; as a former nurse turned holistic therapist and coach i am so grateful for your informative trauma informed care which comes across very well
I was neglected. By the hospital and a dr about chest pain. The hospital kept telling me I had anxiety. The dr literally just blew me off and it was blatant mal practice by waving his hand and telling me it was just a misplaced ekg lead. I will never trust another physician completely. All of the gaslighting caused me to have cardiac arrest that my husband was able to bring me back to life and then I had a double bypass all within the 3 weeks of the dr literally waving me out of the exam room. I have severe trauma from all of this. I was 54 years old.
Wow so many people are told their chest pain is anxiety or visa versa! It’s a simple few tests to see if you had a heart attack which would give people peace of mind rather than more anxiety to add on to a persons stress load. I’ve heard stories like this where the person leaves and collapses in the hallway or parking lot!😢Sorry you weren’t believed ❤
@@natalievancouver8188 thank you for your reply. This was less than a year ago that I had my bypass. I was told it was most likely due to famial history but I m sure I could have done something different for heart health but I’m doing it now ❤️ and the beat goes on
I’ve seen and heard experiences such as yours for years as a nurse. Hiring a private patient advocate is the best option.
@@nurseadrianern I’m curious how you go about getting a private patient advocate.
@@JeanBuntin same
It took me from 2002 to 2023 to get a doctor to listen to me. I shopped for doctors. I paid for test after test. And was gaslight by all. The last one who finally listened to me and validated me and gave me the accurate diagnosis is my hero! Why does it have to be this way!?
Everytime I was having severe pain that radiated to my lower back and would sometimes cause my legs to give out (I had a gut feeling as to what was wrong and mentioned it but...) I kept being told "You just need to poop" and would be sent home with samples of laxatives. Fast forward to a couple of years later and I have a medical intern doctor AND his supervising physician tell me the same thing and I looked right at them and told them they were wrong and I would see them in the ER later. Sure enough, around midnight my pain was so bad that I drove myself to the ER. When they walked into my room the look on their faces was priceless. Again, insisting this time I was having very bad heartburn ( I just shook my head and gave up, even though I was in so much pain that my blood pressure was even high) and drank their "heartburn cocktail" and waited in the room alone, in pain, but they assured me that when they came back in 20 minutes I would be feeling a thousand times better. Needless to say they came back and I was in so much pain I was doubled over. They gave me a strong pain medication and I had to call my son, wake him up, to come get me because I was not able to drive myself home. Of course, they sent me home with stronger laxatives because they still insisted that all I needed was a good poop. When the pain medication wore off and I was doubled over again, my son came and took me back to the hospital, I finally got sent for an ultrasound and the technician literally gasped when she saw what it was. She asked me if I was to go back to my doctor after this and I gave her a short run down of my story. She told me I had so many gallstones that my gallbladder was severely impacted and would not let me go back to the doctor that made me go through this pain for 3 days. I ended up being admitted for emergency gallbladder removal surgery. The surgeon that did my surgery told me that my gallbladder was so large that he had to make the incision bigger than usual to get it out of me. I had mentioned almost every time I had my attacks that I thought it was my gallbladder only to be ignored because I was "just a woman with Fibro that always had a pain somewhere and couldn't possibly know what I was talking about". *Sigh* ... and we wonder why the healthcare system is a disaster.
It’s utter neglect!
Afraid is right, I am going on vacation from my home state to a metropolitan city. Hoping I can pull a 'Dr. House', approach to exacerbate an attack (which could cost me my life) so I can see a Dr., who might help me. I have to risk my life, to save my life. I may look, "hysterical", but I am a mother, a daughter, a sister, aunt. But my labs are saying something is very wrong. Yet, all I get is basic, baseline care. My Doctor's hands are tied and they are put in a fight, by insurance regulators. My Doctor's tried, I have tried, no help is found here. So, I am still fighting to live, bcs of my child, my mother, bcs of Love. I remain grateful for family, grateful I can function today, grateful for the Good Doctor's who care, like you Dr. Kaveh! Grateful for family and mad at the Love of Money over lives!! I still stand, I still fight, I still Hope. Praying, and believing in the good.
I have CFS. Started in !985. 14 doctors told me I was a mental patient. I lost everything. I am having revision hip surgery in August. This talk has given me renewed courage. Surgery is at MassGen. Thank you.
Praying your surgery is fully successful and your recovery complete❤
Best wishes! Love and light to you!❤❤❤❤❤
I appreciate your insight. So many suffer from this. And especially women.
I have noticed that as I get older I get ignored more...especially since I have a couple of issues that are chronic and it feels as if doctors get bored with me since they can't solve the problems.
Getting older does affect the care you receive I saw it with my parents treatment and now at 62 it is happening to me.
I’m not sure how to navigate this situation.
You deserve a gold medal for that one. Both the general public and medical "experts" are really good at reciting, "You look fine to me!"
End of 2021, the radiation oncologist and every other expert at the hospital instantly attributed my drooping head to radiation. 1.5 years later, same dr, instead of offering help for the serious accompanying pain, said, "Well, you are getting older." I'm honestly totally disgusted with them.
Thanks for sharing the truth with the public. I can’t tell you how many times my symptoms have been dismissed, downplayed or outright ignored, that I was exasperated by it. I am also a nurse and see my patients tell same stories through their experiences. Literally, in the medical community for 30 yrs….sadly it has just become so sketchy in the game of insurance that tells Dr. what and when they prescribe meds, so many hoops that the pt. and physicians have to jump through. It is disgusting and scary. Hits home for me and many others. Late dx, no medication for delays in insurance…the ultimate is people suffering with no treatment or advocate to help. I shake my damn head.
I have medical CPTSD from years of medical neglect and gaslighting in the past it’s awful, I’m a lot better now it just took 1 doctor to listen to me and take me seriously I’m in the UK. I have Pots, suspected EDS, Gastroparesis, autonomic neuropathy and a whole host of other things 🙈
It’s truly unfortunate how patients are treated.
Uk too. Every day is a struggle with fibromyalgia and related symptoms but will I be humiliated and depressed by a Gp, no thank you.
I have several diagnosis. One being chronic pain left over from repeated porphyria attacks, severe neuropathy, fibromyalgia, PTSD, diabetes,...the list goes on. Moved from one state to another. I tried to find a pain doctor or a pain clinic. I was turned down by 5 different practices because I am on opioid medications. Even when I asked them if they could help me wean off of them. They still said no. I was so discouraged and scared. I had already weaned to less than half and had days or nights where I spent moaning and trying everything to get comfortable. It was horrible. I finally found a primary caregiver who is fantastic.
I've run into being blown off by my doctor before. I suffer from chronic fatigue to the point that I experience "sleep drunkenness" on occasion. My doctor seemed to think it's due to depression and put me on depression meds. The depression meds haven't helped at all. I'm having to push for a sleep study to see what else can be wrong. Feeling unheard, blaming mental illness, etc is very frustrating.
Me too!
with insomnia and crippling adhd, im with you. I have felt I can't tell anyone about that because usually I get laughed out or at best brushed off as overthinking
I’m glad to see this being addressed. I wish more Doctors would have this understanding. This is horrible to endure with little hope of help.
I'm crying here, thank you! I went through a sexual assault court case from a doc years ago. I have worked really hard at trusting doctors again enough so they can touch me without me having extreme panic. I thank you for the motivation to advocate for myself and get tests for chronic fatigue, it's been two months and is really seems like they're just following procedures, in the meantime I feel crazy and lazy.
Prayers for your recovery and peace...❤
I had weird symptoms for years from 20-32. I was always brushed off like I was full of crap. When i was 32 I had a particularly bad episode, and saw a really good doctor who spent 2 hours talking to me and doing different tests, and then she sent me for an MRI because she suspected Multiple Sclerosis. She nailed it. I'm 50 and haven't had any health care in 8 years, so I've been dealing with it on my own. Invisible autoimmune diseases are awful, because everyone -even family members - treat me like I should be just fine and like there's nothing wrong. Its so frustrating, I've chosen to live several states away and not relocate closer to them.
🫂 Hugs.
Understand ....you aren't alone...reach out to a group of others with your diagnosis for support...it really is a great help....❤
From 2002 to 2023 same thing! I got dx this yr with MS and Addison’s caused by Lyme disease
I understand. I have Mast Cell and am allergic to almost everything, I have CVID, Lymes and vulvar neoplasia.
I have found a lot of support on private Facebook support groups, you are not alone.
These guy’s know how vulnerable sick ppl are and will take advantage of the situation. It’s so sad.
I was told by a doctor, "There is nothing wrong with you. Stop wasting my time." Later, I was dx with Myasthenia gravis.
That doctor was from the bottom of the graduating class.
Omg
Some doctors would rather blame us or accuse us of lying when they are unable to diagnose the cause of our suffering. They don't or simply can't admit that they don't know, instead of referring you to someone else.
Does that practice still.have license???😮
@denasharpe2393 I doubt the person who was the doctor who was so cold and heartless still works as a healthcare provider at any capacity simply because this happened in the 80"s. I was diagnosed around 1991 - 1992. It still took some time as my symptoms were on and off. Double vision, unable to hold my eyes open after going to see a movie in a theater. Variable generalized weakness, confusion. I was unable to turn my head. It seemed to have been triggered from head neck trauma. I worked for a telecommunications company and had been working on repeaters in an underground manhole. As I climbed the ladder 🪜 to exit, I hit the top of my head as I was looking upward, ascending the ladder, and hit my head against the cement ceiling. As I did. I heard what sounded like a walnut being crushed. My head was pushed back and compressed downwards at the same time. There were no MRIs or CTs back in 1979 when this happened. I was told years later by some that it was because of that. My C4-C5 disk was literally shattered. I guess my brain slammed against the inside of my skull, then bounced down, compressing my brain stem. Almost two years later, I had an ACDF. I still have pain. It wasn't until I had a job singing that I noticed my right eye stopped moving. A friend of mine, an ER Doctor came in and I sat in front of him and said "hey Mike, check this out" and I moved my head left then right and my eye didn't move. It was paralyzed. He got me into Loma Linda University the following day, where I was diagnosed with Myasthenia Gravis. I was put on huge doses of Prednisone and then had a Thymectomy via my sternum. Just like they do for heart surgery.
I'm 71 now. Just had C6-C7 ACDF where my laryngeal nerve was damaged and left my right vocal fold paralysis. I can't sing anymore. Barely able to talk. Now, I have two full depth partial width tears in two tendons of my left rotator cuff. One thing after another. I've lost count of my surgical expenses. Oh, I'm ADHD. I doubt he still works, probably retired. He worked for the county.
Sorry, I got carried away.
I have some videos from when I could still sing a bit on TH-cam if you are interested. ❤️. Like I said, I can't sing anymore. They found my spinal cord was being compressed at C6-C7, so they needed to release the pressure. I had been having trouble walking a straight line. My gait was like I was drunk. I was never told I could lose my ability to sing. That my friend has been the most difficult thing to accept. I lived to sing. I'm lost.
Dismissed & gas lit all the time. I have MS & fibromyalgia. Drs make me feel crazy. I’m terrified of telling them anything Becuz they call me “too complicated”.
Whatever you do PLEASE do not let anything change the way you think regarding patients complaints. You are one of the few actually born to be a doctor, and are on your way to improving and saving many lives.
Thanks for the topic. It happens ALL THE TIME! My X used to get heart pain that presented in his upper back. Even though he had been a patient at this world-class hospital many times and their records should have reflected that. We went to the ER with X complaining of upper back pain, which is how it normally presented with his heart pain - and the ER doc wanted to call for ortho consult instead of looking at heart attack. Had to threaten legal action if they didn't treat as heart prob instead of ortho.
So proud you stood your ground and saved his life...we should not have to fight so hard for decent care....
I have psoriatic arthritis and fibromyalgia, two conditions that can be difficult to diagnose, so I had been through some medical gaslighting in the past. One day I said to a new doctor that I was sorry and that I know I’m a difficult patient. Without missing a beat, she replied that difficult patients are rude and I was the opposite of that. She said to remember that complex does not equal difficult. She gave me a powerful message that day. In turn it helped me advocate for myself and also for my elderly parents years later.
Can you help me understand psoriatic arthritis please
@@Ilse-qp3mbpsoriatic arthritis is an autoimmune type of arthritis meaning that your immune system goes into overdrive and attacks your joints, tissues and skin. I had bad psoriasis on the soles of my feet. My rheumatologist put me on a tnf blocker to suppress my immune system. It also helps joint inflammation. Some examples of tnf blockers are Enbrel, Humira etc.
You're such a wonderful teacher Dr. K. Thank you for sharing this invaluable information. What a blessing. This is why i love TH-cam.
And you...thank you for posting to us so much ❤
Thanks, I needed to hear your words. Really! It undoes the recent gaslighting.
Its tough when insurance says we can only talk about one thing at a time.
You are a gift. I've had real life changes for the good from your advice!
"Disabled self-identity." Absolutely true of the medically neglected and abused. This is what I need to heal from. Thank you for your insights and kind words.
I am so thankful that my GP advocates for his patients. I remember having bowel problems over the course of 2 months. My GP sent me to a GI and I had a scope. The GI couldn't find anything wrong and said it was all physiological.
After having lost 10kg in a short time my GP sent me to another GI for a 2nd opinion. They did a scope and it turned out to be chrons disease.
I have been in "horrible pain" for a year. I've fired 3 doctors in a year too. The neglect and bullying is real . Thank you, Dr. Cave ..
I came here from the Gen-Z being lonely video and I am just so grateful to have this experience of watching these videos that are validating everything i’ve been feeling, seeing, experiencing. From dentists, parents, school, counselors, psychiatrists, mental hospital, etc.
I have been feeling so crazy for being affected by all of these things, and the way you are expressing your points so openly and personally and plainly is so helpful.
It has literally been from all angles in my life that I have been seeing and experiencing this, (for context I am part of Gen Z, 23, just graduated college studying neurobiology and math)
Hang in there! You are most likely NOT crazy. I’m in my early 60’s now and many of the worst and most long lasting of my medical issues started in my 20-30’s. And I was lucky, in my mind, to be diagnosed. Family members have been some of the worst. My immediate family (my children and ex) living with me day in and out understood, but only one of my parents got it, and neither of my siblings…until they had major health issues. 🙄I have had to learn more about every condition. I take notes and keep journals. Many doctors are dismissive of tracking, but it has allowed the caring specialists the info they needed to diagnose. Good luck to you and blessings.
My sister got diagnosed with cystic fibrosis at 5 years of age after being very sick her whole life. This caused my mother to have a distrust in doctors which made her quite angry. I waited 4 years for a umbilical hernia surgery on a long waiting list. It was popping out regularly and my distrust in the system through my mother grew. I doctor shopped got on a waitlist for a smaller hospital and was seen immediately. In the past 2 years since my surgery ive lost 30 kg's and gained alot of muscle mass. It would have been great to have the surgery sooner. In Australia at the present we have a shortage of doctors and the ones overworked seem burned out.
Sad you had that experience but thank God you have finally been blessed with care you required and have reclaimed your life ❤
I had a mesh surgery and soon as I woke up I was in chronic pain. It was done by a new doctor under supervision. Since 2009 I suffered acute pain and bed ridden. Had 14th surgery and on tomorrow going for next surgery. Cutting the mesh out. And other 4 repair. By my face many doctor don't get it and say its in my head until they see my MRI and other report. I had epidurals more then 8 times last 2 years for pain. NHS very well hidden the surgery note. Now I'm having the surgery in Dubai robotic surgery. Taking my uterus out, and 4 other things. Your last video really helped
Thank you
This really hit home. My mom died of colon cancer in 1985. She was considered a hypochondriac. Now I have a myriad of issues. So much of what you’re saying is so true for me!! I have an issue with Drs just not giving me info. Then I read it in my chart. I’ve sent supplemental oxygen back before because k didn’t think I needed it anymore. I had no idea that my lungs were permanently damaged. The latest thing is coughing up blood. Not blood tinged sputum, pure blood. My Dr saw it, believed me, and even what is this did a bronchoscopy. He only told my husband that I was inflamed and gave me extra steroids, IV. My chart, however, states a whole lot more. Now the extra steroids have worn off, and I’m coughing up blood again. I have no idea what to do. That’s just one example. 🤷🏻♀️
Go to another facility entirely...maybe a medical school asap
I wish everyone was around doctors and health staff having your level of understanding and empathy. I have a very good general doctor but the staff in the hospital where I live if less than good really. I just got out of surgery, and was crying, almost screaming in pain, called them and asked for a painkiller (dilaudid) and they made me wake for the next medication run for the floor I was resting. Was in the las room of the corridor and the nurse just told me: unfortunately you're in the last room, we're running everywhere so ewe can't give you anything on demand. I had to wait over an hour for the next medication round on the floor I was. I almost filled a report against this nurse who responded me like I could just endure this pain until the next med round. This is not normal in a post surgery environment. I could have painkillers every 3 hours dilaudid IM and they made me wait 6+ hours until the nest medication round... We're not in an old people place that have scheduled rounds of meds distribution... we're post operation pain talking here. Worst post operation experience ever. That whole department was working so bad, not responding ( or almost one hours later) from your bed bell urgency calls.
Honestly though, doc isn't just being informative but is also being very helpful. I kinda wanna be in the medical field now ( 1 yr till college😎 ). Hope y'all have a great day🤗😁
It’s a great field in so many ways. Good luck!
@@Dbb27Thanks!😊
@@animetedff229 the money is good too! Of course it doesn’t work unless there’s some interest and dedication. There are usually some volunteer programs in hospitals so you can kind of get your feet wet and know whether it’s something you want to do. There’s also a lot of scholarships available for medical, even some hospitals have programs for students where they will pay as you go. Lots of options and opportunities! Go for it!
@@Dbb27Thanks for the advices☺️. That actually helps alot in the near future❤❤
@@ritadyer9295 Thanksss!!🤗 I do wanna ask though, wassup with older patients?😅😆 Haha
Oh, if only we could all find a doctor like you.😢
My daughter has FND. She recently wrote a book called “The Invisible Warrior” she’s only 36 & is disabled. I’m just grateful we can take care of her.
What is FND?
@@nurseadrianern FND is Functional Neurological Disorder. Most doctors or nurses have never heard of it. My daughter suffers so much from it! It has a lot of bizarre symptoms. Unfortunately, science has not caught up with it. Talk therapy is the only thing she has. Although, she decided to learn Chinese & that has helped her the most so far.
Interesting! I was actually told that last year. I was in the ER a couple months later! With a kidney that is now less that 20 % you truly have to advocate for yourself at times! Thank you so much for this information! Love you Dr. Kaveh! God Bless you!
I had a gaslighting situation in May of last year. I passed out and was admitted to the hospital. The neurologist swore that I had a seizure but I know that I didn't. Its been 36 years since I had a seizure and I know what it feels like. He got mad at me and stormed out of my room.
Absolutely terrible and unprofessional
They have very fragile egos though.
Sorry you went through that. Did it feel more like your blood pressure crashed? I've experienced blood pressure related passing out, as well as seizures, and know what you mean about being able to tell the difference between seizures and something else.
We, the patient, are the ones personally experiencing the medical symptoms. Why don't they listen?
@@Dulcimerist It felt more like my sugar dropped down too low.
@@carolthompson2727 Does that happen very often? My doctor recommended I get a blood glucose monitor to check when that happens. I used to throw 45-65 at times, and my doctor wondered how I managed to stay conscious.
I love what Dr Kaveh is doing here. As bad as YT has gotten, I'm so glad there's still great resources like this channel. My mother died at 57 from medical neglect and it absolutely voided my sense of trust for decades. I still experience dysphoria (panic, winded, lightheaded) self doubt, and fear of going through yet another version of medical neglect, as I've had many now. It makes going for help a huge hurdle.
After 8 surgeries on my right eye I had a substitute doctor examined my eye when my regular doctor was out. He said I needed another surgery. I told him unless it was a matter of life and death or extreme pain I didn’t want anymore. A month later I got a letter telling me that this doctor was no longer available to see me. My trust in doctors is, you might say, challenged.
Hi Doctor Kaveh, Yes, I am searching for a new Internist after my current one had a meltdown. My current MD did not understand my ocular migraines. I explained I have had this occasional condition for over 40 years. She had a mental meltdown right before me! She did not understand when I explained the “migraine with aura”. She wanted an MRI of my head ASAP! I said no, I am ok, these are more annoying than anything else. She also scolded me for “self diagnosis”. I said “My Doctors in another state gave the name that I repeat to you. They were called ocular migraines; now I guess the preference is migraines with aura. She is from Romania and I guess I exceeded her knowledge. Anyway, I could not get a quick MRI because of my pacemaker. While I was waiting, I analyzed my diet. I had added Ricola sugar-free lozenges! Those have aspartame! That was the trigger this time. I stopped Ricola>>migraines stopped and not returned. I called the Doctor to report my success. Her medical assistant slammed the phone down when I said what I had learned and did not need MRI. Wow! So unprofessional.
Thank you doctor soooo much for this message. I was gaslighted when I was 15 year old. I started having chronic fatigue, a lot of joint pain, and I would drop things from my right hand (I’m very right handed), I finally lost the use of my right hand. Also, my right collar bone would swell outward and was really painful. I had x-rays, blood tests, and an Electromyography (EMG) test done 24 hours after the orthopedic surgeon shaved off part of my collar bone supposedly to help ease the pain from the swelling and they did a bone biopsy. Needless to say, that EMG was extremely painful after just having my collar shaved and drilled. I was in the hospital for about two weeks. During that time I saw a lot of doctors and such from the local med school. One of the neurology professors from the med school examined me and told my parents that what I was experiencing was due to me just wanting attention. That being a 15 year old female and a teenager it’s common for us to do things like that. Thankfully, my parents didn’t believe him. In spite of everything, my symptoms improved a bit, but I was still in pain and my collar would still swell and be painful. About 5 years later, I had to see another orthopedist for lower back pain. I also told him about my other symptoms. He took x-rays of my back which showed a narrowing of the spine. The doctor then sent me to a rheumatologist that had just move to my city. He ran a ton of blood test including one that was so new only two places in the US could do the test. The tests came back indicating that I had a genetic form of arthritis that originates in the spine. I was very happy that I finally have a diagnosis and that I finally felt like I was being heard. Some doctors automatically think that if you’re a female, particularly a teenager, and they can’t figure out what’s wrong with you that it’s all in your head. I have stopped seeing a few doctors over this kind of attitude. I think doctors need to be trained to not automatically assume that a female patient is looking for attention, sympathy, etc when medicine can not immediately lead them to a diagnosis.
Thank you Dr. Kaveh for these videos.
Thank God for that newly arrived doctor who finally looked Clearly at your symptoms....
I started noticing changes in my treatment during covid and quarantine. Now I'm encountering more obstacles, and I'm losing what little faith was left. Thank you for taking the oath seriously and for producing these videos. C-PTSD and 4 TBI here, with other complication after covid last December and organ failure.
Wow this is so validating! Thank you, Dr Kaveh! After 8 years w cauda equina, I’ve dealt w so many drs. So much gaslighting, so much manipulation and indifference. I’m cis female, btw. Means everything to me to hear a DR acknowledge that this behavior happens, and that it’s extremely harmful
Do you mind if I ask you if you had surgery. How did you you know it was time to take that step? I have stenosis. The doctor says I shouldn't worry about it....😞
@@user-ov4wr5yu4r Well, I had a massive spinal infection that nearly killed me, so surgery was a must. Stenosis is something drs have a tendency to think is just something u should live with, n I strongly disagree. If you’re in a lot of pain, or your mobility is being threatened, go to another Dr! You deserve a 2nd(or even 3rd, or 4th) opinion. You deserve to have a Dr who rly listens. Don’t give up, keep advocating for yourself. Good luck to you
I felt that way by different DRs. Even one who was supposed to be a specialist in the issue I ended up being diagnosed with. The DR who finally did a diagnostic surgery said he was very surprised by the amount of scar tissue I have internally from this disease. I am now being told this should have been taken care of 10 to 15 years ago. I am now extremely thankful for the DR I have. He is nothing like the specialist I saw. He doesn't ignore what I say like that DR does and gives thorough information. I have had very bad DRs, and now a good one. There is no comparison on how a PT feels going to a caring DR over one that allows your body to be harmed because of negligence.
I am 57F and Mom tried to raise us to never question the Doctor. I always did, while she tried to shush me. That Pediatrician was awesome, he always answered me and encouraged my questions! He taught me young about self advocacy. Thanks for this video, I think it will help a lot of people ❤
I am so happy to hear that you were able to find a trusted doctor at a young age!
Might as well be a psychiatrist or PhD psychology... Dear Lord this a very beautiful human being. God Bless You!!
Thankfully I have never experienced the devastating stories that people are sharing, but I'm so thankful to you for doing this video. I needed to be enlightened! 🙏
This almost made me cry. I've had so many bad experiences with some doctors and too many nurses, that I find I do research galore because I trust myself more than I trust medical people. I'm now with a doctor group I trust and that is making SUCH a difference! I share these videos with my husband and I'm hoping that he will leave his gaslighting, manipulative doctor as I did.
My last surgery has left me with ptsd. The surgeon sent me home from critical care because she said the extra day wouldn’t be covered by insurance! I had not eaten or drank anything, no urine no bm. I live alone. I felt like I was to die. I had a huge open abdominal surgery. My blood pressure crashed and was 60 over 40 and I passed out. This was the first night I was there. I had every doctor and nurse rush in, I was scared I was dying. So they put me in critical care, then sent me home!! After getting home I couldn’t lay down at all. I only had regular chair. No recliner. Then 3 days later my incision opened! It was horrendous. I had to wear a wound vacuum for 4 months and have a nurse come in 3 times a week and go back to their office to have necrotic tissue removed and the stitches kept poking through my skin. They gave me nothing for the pain of doing this. It was excruciating. Worst experience of my life. I don’t think I will ever get over it.
sorry to hear that. thank you for sharing. I wish you well!
So sorry. You are in my prayers.
All of this is still happening to me. Thank you for telling the truth.
I had gone in for a hysterectomy and bladder lift. Supposedly fairly routine. I had the procedure, and when I awoke there was no pain killer in my self medication. I needed fentanyl-it was stolen.
Then, I caught MRSA because the nurse wasn’t gloved and did not wash hands between patients on the ward. Ok. Shitty. Then two weeks later, my bladder protested and I became incontinent, much to my surprise. The ureter had be randomly sewn onto my bladder, leaving a fistula (open hole). So I had to see a urologist and have abdominal surgery only a month after the original surgery. At the time I had two young kids, so they didn’t get the attention they should have had due to my issues. I haven’t trusted doctors since.
Hello may I ask how you're doing now with your hysterectomy? And did you gain weight from having one?
What a complete nightmare. Did you sue?
My celiac disease was attributed to anxiety for years. One doctor prayed with me and told me to read the book of Psalms every day. I thought I was advocating for myself, but I guess I'm not very effective at that. I'm so grateful to the primary care doctor and the rheumatologist who finally figured it out.
My Grandma was told she was hysterical for decades by doctor after doctor. They even committed her for shock therapy at one point (Grandfather was a horrible, horrible man). It was her body being slowly destroyed by celiac.
@@jblyon2 it is horrible. I was barely existing by the time I was diagnosed accurately.
My sister lost 50lbs,she was miserable, even had nutritional deficiencies so bad she had to use a walker. After years she was finally diagnosed with celiac.
@@SilverSeaOT7 I also had nutritional deficiencies and was sometimes using a cane in my thirties.
Thank you for this informative, thoughtful piece. I was labeled “contrary” by my doctor for insisting to be a partner in my healthcare instead of just rubber stamping what he thought was appropriate for me. Also, after telling him I was a sexual assault and rape survivor, he still became cross with me when I reacted to him pushing me to let him do things I was uncomfortable with. He is no longer my doctor.
This has been so helpful to hear. I have had a hard time trusting most doctors. When I went to a doc due to a cough and loss of ability to breath the doctor told me it was pneumonia, then bronchitis, then asthma even when I said no no no no no. It turned out to be cancer by an ER, then was told oh its not cancer you're too young and healthy by a different doctor. By the time it officially found as cancer after it is, it's not, it is and is not... they didn't think I'd live to get from one hospital to another to get chemotherapy. I was in stage 4 by the time I was being truly treated. It effects me today. And here I am 9 yrs later beating 3 cancers and a stem cell transplant. I now always have my mother with me because I flight and freeze when I see and talk to doctors. I'm dealing with this right now with the pain clinic where they want to pass me off on someone else because I've been living in so much pain for so long they want someone else to "deal" with me! I'm so tired of this and finding this video was so very helpful!
So very sad you had these horrible experiences ....your mother being with now...may that be the saving grace you need❤
Thank you so much
You have such a compassionate ❤️
Great work Doc❤. I have gotten sick and tired of telling drs that I'm sick and tired of being sick and tired. So many drs ignore what they don't want to hear.
Goodness, I've experienced as much medical neglect as I should for a lifetime im 25. Still having nothing being done for my pain and alot more of my time is spent sitting and laying down if I'm not working or cleaning or cooking. It's disheartening and being gaslit by doctors also can hurt your soul and trust
Paralysis on one side:
Hemiplegic migraines, periodic paralysis from potassium imbalance is another.
Just want to point out things that aren't conversion disorder or FND.
After being gaslit for over a year, we finally are getting to the root of my daughter's illness. Hint, it never was psych like they tried to say.
Appreciate you raising awareness but there isn't a good way to protect yourself. The more you insist something is really wrong, the more doctors declare you crazy. I had to start bringing a male to appointments to get help.
This is truly horrible....
I had similar experience. Even with female doctors. I’ve had to be very careful of my doctors, but I used to have to bring my husband into appointments to get taken seriously. (Lol the irony is that he is a narcissist, and would gaslight me himself. Lol)
I needed this . For years I told drs saying I had bad headaches, bad neck pain seeing black dots in my eyes . I was told I was after pain pills, etc. 5 years later I ended up in the icu with IIH I lost sight in my left eye and some other problems. Same Dr told me malignant hyperthermia wasn't a allergy I needed to worry about. I can't trust any drs anymore.
I'm so sorry you had that experience, but I greatly admire your vulnerability in sharing that. I hope you learned something new and feel empowered to advocate for your health 🙏
You are truly a kind and generous person who is doing a great service to those of us who may be afraid to speak up for ourselves.
OMG, I needed to hear this. I'm at the point where I don't trust the medical professionals.
I'm so sorry you had that experience, but I greatly admire your vulnerability in sharing that. I hope you learned something new and feel empowered to advocate for your health 🙏
I had a knee replacement surgery
My first surgery ever
When I woke up, they said I was throwing up everywhere and hollering and fighting those around me.
I vaguely remember this... When I asked about it, they casually said, "I had too much anesthesia 😮.. the Dr was so unconcerned 😮
I did everything that was instructed prior to the surgery...no food water etc etc.
Now I need the other knee done soon
I'm not sure if I want the same Dr. Or hospital....the recovery was 😢treacherous for almost 4 months
What's your sincere advice
Thank you so much for your response
I'm so sorry that happened. I went through a horrible experience after my knee replacement at sge 44. They severely undertreated my pain in the hospital bc I was a tolerant chronic pain patient. I was crying for two days, unable to see my family, my kids bc of the pain. I begged for a pain specialist to come into the orthopedic hospital. Also they had a policy where they take all your prescription medication prior to surgery. That should have been the first clue that they were not going to treat my pain properly as a tolerant patient. I even asked them prior to the surgery if they would capable of handling me as a patient, and they said of course. The thing is they were giving me the standard dose for all patients but not the proper dosing for someone taking narcotics daily. Finally they sent in a pain specialist and after the meeting with her she dosed me properly. I suspect I don't tolerate morphine or it doesn't work on me, possibly a genetic thing, so the morphine wasn't working. She put me on OxyContin, pill form and 2 hrs later I was finally able to sit in a chair & read my book. The surgeon came in snd was surprised I was finally out of bed. Je said he thought I would be sleeping due to the dose that was given by the pain specialist. I said no, my pain is finally less so I am able to be coherent. The fact they let me suffer for days like that in the hospital, and refused to give me my sleeping medicine even, well it was torture and I said never again. Two months later that new knee started locking up. The same doctor didn't believe me until a month later I came back, I went out to my car and showed him that it locked up at a certain angle. Well he diagnosed me with Patellar Clunk Syndrome. I had to have another surgery using a scope. Had to get rid of scar tissue. Well it helped the problem, but that new knee was never good. Four SHORT yrs later it had loosened at the tibia. I wanted to sue that doctor, and my husband was furious when after I searched the device serial number found out that one of the parts was recalled and I was never told. So yeah called an attorney who told me too late to sue, sorry! That entire thing has scarred me to the point I don't trust or have faith in the medical system. That same doctor eventually retired snd no other doctor wants to do my revision. I've had to suffer from the pain of a loose knee, and a bone on bone right knee after babying the loose one since 2014. Nine yrs I've waited and I still don't want to have it done due to fear. I definitely have PTSD from the entire experience. However I have prepared by lowering my dose of medication bc at any time my loose knee can break my tibia. I've lost a lot of weight and I realize that the surgeon took advantage of me all those yrs ago. He should have never EVER agreed to operate on me at that age. He could have done steroid shots and recommended I lose weight etc. He didn't. I also have extreme painful conditions on top of my bad joints, due to chronic lyme, so I refuse to do surgery until I am not as tolerant of pain meds. I'm doing what I can in the meantime time, but I have lost trust in the medical system for sure based on that experience and others along the way. I had one doctor in 2015 tell me all I had to do was lose 50 pounds and my pain would be gone. I left that appt sobbing from the shame of how he spoke to me. Yeah Many doctors shouldn't be doctors. Some are egotistical jerks snd get some sort of kick out of treating patients like crap. Women patients get the worst of it.
I just want to say, I UNDERSTAND YOU!! I know how devastating it is to deal with pain of surgery esp. knee replacements bc of the long recovery process. If I had it to do again I would have waited ten yrs.
That experience caused me harm long term. And I do wait to see a doctor when I have symptoms. It may make diagnosis delayed for that reason. Maybe cancer one day. But my quality of life is so poor one almost chooses to go out to stop the daily pain.
Where are you??? Please respond as l have had bilateral knee replacements and a revision nearly yrs later and l am recovering comfortably at 76...there is hope...l promise..don't lose hope...
I was told that Medicare will not cover me if I don’t get the shot. When that didn’t work he changed his tune and said I want all my patients to have the shit. If you don’t get it I won’t take care of you. 31 years with him 8:48
You make very valid points that I never ever thought of I've been treated like that and if I don't like the doctor I don't like the way I'm being treated I usually go somewhere else until I found the doctor and are usually research my doctor's pretty well but I didn't realize that deep down I do those things I don't tell how badly I hurt because I'm tired of people telling me it's all in my head or there's nothing we can do or just everything so you made me realize that yes I do shy away and I didn't even realize it there's a lot of things I didn't realize until you mentioned that I do I think you very much for all that you do on here for us and all that you bring us aware of an all that you teach us and I thank you for the time that you spend with us that's your time that you're giving freely and I think he's doing a great thing❤
Amen to that❤
I heart is pounding after hearing "it's pressure, not pain" I was forced to have a c-section (I didn't refuse but the doctor got aggressive because was scared and asking questions. He threatened to have my baby taken from me if I didn't agree to it that very second) Then came be spinal block, I felt a strong electrical shock but no numbness. When I was on the table I kept saying I wasn't numb and the doctor brushed me off by telling me that Im not feeling pain but pressure. I felt the first cut and screamed. The anesthesiologist began to put me under as I begged to not miss my baby being born. I came too and was out for blood. That's not where the story ends but it's the worst I've experienced. It's been 13 years and still get nightmares. I also have had migraines since I was 6 and have met doctors that don't listen or believe patients and it is soul crushing.
I have hEDS, Chiari Malformation (although some Drs disagree), MCAS and am on a list to be tested for Dysautonomia, crazy gastro issues and that list of craziness. So this past December I was exhausted, had an increase in symptoms, my abdominal pain was horrible and my smile was lopsided. I went to the hospital because the abdominal pain was so bad. I told them all the other symptoms that had increased at that time, about the lopsided mouth and the abdominal pain. I also told them I had called my neurosurgeon about the increased and new symptoms and they were trying to get me set up for an MRI. Sometime in January (close to the end I think) There was a change in the PONS area which they thought to be a demyelinating disease so they had some blood test and lumbar puncture done. There was nothing that said, "this is what it is!" So my new neurologist said, we're going to repeat the MRI. When it was repeated it shows more changes that are more consistent with a stroke. I personally know it's not super uncommon for someone with vEDS or hEDS to have a stroke but my neurologist says it's not. All my other test came back with no cause as to why. She's having me see a hematologist.
I have wondered if I had emphasized my symptoms differently in December if they would have taken symptoms aside from the abdominal pain seriously. I have become so used to no answers, being pushed off and everything else that I actually felt guilty as if I had done something wrong being at the hospital and I was scared of being in the way and wasn't sure they would hear me anyway.
My concern is that for there to have been another change that I had to have had another stroke. Now I am concerned it's happening and I don't know it. I deal with many mental health issues and all of this makes it hard not to think it's in my head or that I am making it up. When I have asked questions or explained my stance the neurologist didn't seem to have any clue about these things. Neurologist have been horrible although I appreciate the new neurologist determination to rule out causes I also feel lost in it all. There's a lot of medical issues I am battling and mental health that I just keep my mouth mostly silent about.
I love this thank you. I have had many different Doctors, my Father and Daughter are Doctors. Still they have discounted my health and issues. Thank God I also found some great Doctors too.Early hysterectomy
Four lumbar surgeries with fusion, two cervical with fusion and plate, Two Heart attacks.five angio plasties, six stents. I look great, my back and neck are doing great too. I was on hospice heart, and COPD for a year and a half. Now still trucking at 71 two years from being on The death row. Tee hee. Still going! thanks to the marvelous anesthesiologists and doctors that did care. You are 100% right they have also got to take responsibility for our own healthcare. Thank you for helping us understand that we could have multiple things also going on when we've had so many surgeries and with different medications I so appreciate your information I am just a little thing so I've hardly ever needed much anesthesia at. Thank you doc really appreciate you giving us your time.
Thank you so much for making the time to share this important information! It is so needed and I hope that you continue to talk about healing from these types of medical traumas. I have long been in freeze mode around this and just not sought care due to past gaslighting and worse from doctors and nurses. I've felt at a loss as to how to heal, since I also have had traumatic experiences with therapists, making it challenging to seek help from them. It's exhausting and discouraging. So this is immensely helpful and making me feel more hopeful. You sir are not just a doctor, but a true healer.
I have been gaslit for so many years! Where I grew up, All the hospitals were what you call "teaching" hospitals. I have been battling severe asthma since birth. It didn't help that they called my mom Hysterical when she called in about my asthma, so she wouldn't call until I was blue and flopping around gasping for air. Then they scolded her for waiting too long! Many times I wouldn't even see a doctor, just a student. Back in the 50's doctors were considered 'gods'. I stopped going when I was molested by one. I would suffer for days, unable to walk to the bathroom by myself. Then, in 1976, I confronted a Dr who was treating me cruely. He was an OB/GYN and I was pregnant. He had me sitting in the exam room, naked with only a hand towel for cover, with the door open! People were walking by on their way to the office. I closed the door. The nurse came in and said the Dr would not come in if the door was closed. This happened 3x. Finally he did come in and I confronted him on this policy. He brushed me off and began the exam. I was 4.5 months along and I had felt life. The exam was Very painful and I started bleeding. I went home and continued bleeding with large clots. I never had clots during a period, this was terrifying. When I told my mom she said I must be wrong. We had to go to Cleveland for hemophilia testing. While in Cleveland, I had painful cramps and passed an enormous clot with something pink in it. Mom saved it in a jar then took me to the hospital and they said I had miscarried. I was So upset! So scared! Where would I go now? I no longer trusted any doctors. I called a friend who I knew to be extremely fussy and very self-confident. I went to her doctor. He confirmed that the other Dr probably caused the miscarriage, but we had no way to prove it. It was so heartbreaking! I had felt the baby kick! Other than that new OB/GYN, you are the first Dr I have known to expose the truth! I can't thank you enough! 👏👏🤗‼️
Great info as usual doc… you know, neglect can range from the pharmacy to the most complicated illness and everything in between… it is SO HARD TO NOT ONLY NAVIGATE THROUGH BUT HANDLE AND RUINS LIVES…
Wow! This absolutely hit home for me. My wonderful family doctor of 26 years has retired and a young female doctor has taken over his practice. I had my first appointment and it was an utter disaster. I'm 61 and feel that my age was at least partially why she was so incredibly dismissive of me. I was 8 minutes late for the appointment and she spent the first five minutes of my appointment chastising me for being late. It was a result of traffic as we had given ourselves an hour to get there. She barely allowed me to get a word in edgewise, would only discuss one issue and didn't even refill my prescriptions. Told me flat out that her turn around for renewal of prescriptions from the pharmacy was one week. WTH? I'm on morphine for disc issues and a crumbling sacrum and I have chronic depression. So being out of medication wreaks havoc on my body. Worst of all, there is no other choice because there is a HUGE shortage of family physicians in my city. I feel unheard and ignored and I have to go see her in August and I'm absolutely dreading it. 😦
I know a retired heart surgeon who is world renowned. He said that not all doctors are competent. I do appreciate that you recognize and say that there has to be patient responsibility. Society doesn't want to accept responsibility for much these days. They can go to the black market and still take no responsibility.
I'm enduring this currently. I get tired of not getting proper care. Im tired of feeling like I'm fighting for someone to listen. If doctors would stop and listen to the patient as they know how their body feels. Not all patients symptoms fit the mold for a disease. Were all different.
I had an inflammed femoral nerve from what was diagnosed as nerve damage. There were times when my leg would not support my weight . Thank heavens, I had wonderful doctors because- I had family members telling me I was crazy and making it up. My own father said years later- oh I didn't know you were in the hospital.
Never ever had a Dr be soooo honest... Very reshreshing in fact this has happened to me an now have no Dr
Like you said our broken healthcare system, at it's best. Our primary medical clinics operate like a busy chain restaurant on a Saturday night! I wish it weren't this way!
You nailed it!
22.5 years, that’s how long I was subjected to medical neglect before I pushed for the test that identified my dysautonomia and during that test the experienced cardiac team running the test called a code on me during that test. Wasn’t the first time my heart stopped pumping blood ( or the last), but it was the first time they had me hooked to all the machines when it happened. I was denied medical care during the pandemic because it was unsafe for me to wear a mask and now there are indications I’m starting into CHF due to not receiving the medical treatments that were deemed medically necessary just a couple weeks earlier by the same facility that was now saying I couldn’t get my treatments if I didn’t put my life in immediate danger to put on a mask for the extremely low chance anyone else would be endangered by my not using one. I know I’m dying as a result of my service as a firefighter and even if I find a new PCP that doesn’t engage in medical neglect ( like my most recent one definitely did) the damage is irreparable. I’m 53 years old. Most of my family lives into their 90’s. It’s unlikely I’ll see 60.
Someone should write a book with all these situations and their outcomes and make it mandatory for medical students to read and learn from it. I know the saying if you hear hooves think horses not zebras but us zebras mostly get diagnosed too late and die much younger than we have to. There are some great doctors who are willing to solve these puzzles but they seem few and far away. I know doctors have a lot of responsibility & enormous amounts of papers, tests and form to fill out and they’re not fairly compensated for this work. Change needs to happen now!
I would just like to send a heart felt apology for your recent prognosis. I pray for you and your family. As a wife of a fire fighter and an ABHC of the R-USN. Thank you for your service and you will not be forgotten, my friend. I hope u find some peace in your life, Lord knows you need it, deserve it, and earned it. 😢❤ stay positive!
@@natalievancouver8188Read "How Doctors Think." by Jerome Groopman (Author). It addresses some of these issue. Very good read.
@@samjane6267 thanks
Most of the disabled pain population is now living with iatrogenic PTSD as a result of med abuse & neglect.
We're judged, doubted, shamed, mocked, gaslit, dismissed, and left to live with horrific untreated pain & suffering, to "save us from addiction".
Instead we live housebound & bedridden, turn to illicits in desperation, or straight out suicide.
And now, Canada, rather than managing pain, will kindly euthanize you when you can no longer bare the pain, isolation, sleep deprivation, cognitive decline, depression, anxiety, and slow death.
Good job, health care system.
I had to have steroid shots in my back. When I went back for the check up, I told the dr that the drugs were too light and I felt it when he gave me the shots. He flat out called me a liar 😤😤
This man is a saint! Thank you for doing this. Don’t ever stop. My sister in law died of cancer because her gynecologist told her she was overreacting
I go in for specific complaints, the doc does labs or whatever, the labs often come back 'borderline' something or other and at my next appt, doc says my labs look "Okay". So I take that to mean borderline labs need no attention. I think my docs think I'm either a drug seeker or hypochondriac or both but I suspect---since I know I'm neither--that borderline labs can be felt by some people who are really in tune with their bodies but docs see us differently. How do we get past that. I've been being dx'd with Lupus for years and another doc would disagree, saying he sees no lupus dx. This has been happening for over 20 years. I was at urgent care recently and the print out they gave me upon discharge showed all dx's and one was SLE. Why doesn't that ever become the blame for ER/Urgent Care visits? Why do they dismiss SLE and in the ER, we can find nothing to cause your symptoms? I quit seeing my doc for a year and a half due to this repeated behavior. Idk what to do anymore.