What an EXPLOSION of GOLD!!! Shrapnel was hitting me all over the place! I had trouble hearing at times because you were hitting so many nerves and every emotion wanted to shove the others to the side, leaving none able to have the satifaction of expression! I will need to listen to this post again - and perhaps again - to harvest the benefit of all that pus in me that needs to come out, to enable healing to begin. This is a profound time in my journey as well. We are experiencing FAR MORE than simply physical distress. Mental, emotional, relational and spiritual landmines are happening all over the place! Having been rather dramatic in this comment, I do need to admit that faith, hope, love, messiness, and great big gobs of humor are pulling me through as well. I absolutely ADORE you and Haley for being raw and transparent here. GOLD, I tell ya. And the motherload of life, Life, LIFE starts sprouting new shoots of Spring greenery when real people talk about real stuff. I am actively shoving great heaps of love at ya!!! Have a lovely day. You have enriched mine.❤❤❤😊❤❤❤
Hi Rose, your comment is so heartfelt and warm that it brought tears to my eyes. It is such a blessing to know that this video has made such a strong connection with you and others. So glad that we can take this journey together. Hoping you can find that balance of care and rest with your husband. Thank you for your love and kindness.😊😊😁😁😀😀
Hey David and Hayley 👋🤗👋 My grandma always said "time changes everything" I've always looked to those with gray hair 🩶🩶 as the Bible says it is a crown of beauty. For me I try to draw on the strength and weaknesses each deceased parent or grandparent left behind in their golden years 💛💛 I find it eases some anxiety because my maternal great grandma and grandma as well as my mom all had dementia slowly starting in their 60's They never talked about it as it was a generational thing but they "lived laughed and loved" in those final years. My husband of 30+yrs and I both don't expect more of him or myself and just do one day at a time He is now developing Alzheimer's type symptoms at 62 he is 80% deaf. It is time now to consider transferring to an assisted living complex where we can have more support which helps because we live in Tornado 🌪️ Alley Sorry guys I didn't mean to write a book lol but maybe my thoughts might help just one person who reads it and that makes me smile 😊
Good luck, I have my dad of 64 with Parkinson’s and I watch David to inform myself and learn more , good luck with what the future holds, I hope you guys live happy and as healthy as possible
Hi Tory, thank you so much for sharing, and yes I agree grey hair can be a crown of beauty. I have gained so much insight from the generations before me, and advice that has made my life easier. I hope you and your husband are able to get the help you need.😊😁😀
Thanks guys. Very enlightening and at the same time therapeutic for both of you and us too. I have the same concerns with my mental health. I live alone and have my 93 year old mother now with daily care issues. She knows well what PD is. Her mom lived with YOPD from her thirties to her late 70s. I worry about burdening my kids with my deteriorating health while having their own families to raise. Personally I feel talking about it helps. That way surprises are kept to a minimum. Thanks again.
Hi Tom, I understand your worry of being a burden to your children. That is something we are trying to avoid as well. Talking about these issues is important because they will eventually need to be dealt with. Thanks for your input and comment. 😊😁😀
Hi David and Hayley, thank you for sharing. I have Parkinson's...I'm pushing 80...and I never thought I would live to be 50. I had many family members that had died very young. We just don't know our future. All I can do is make the best of it. I hadn't realized or even thought about what may be causing some of my anxiety or depression. I feel guilty for not being able to do what I used to do around the house; however, if I'm not off or having a bad day I try to do what ever I can to help around the house. I feel bad that it's only small things like empty the dish washer, fold cloths or other simple chores. David, I have watched many of your videos and may I say it's a pleasure to meet your better half. My wife is my care giver when she needs to be.
Hi Tim, thank you for sharing your journey with us. I agree with you, we just don't know our future, I never thought to reach 50, but here I am. I know what you mean about the OFF time guilt. I try not to think about things when I am OFF, to easy to be negative. I understand the guilt about not being able to do what you used to around the house, but at least you want too! That is a big difference than not want too. Thanks for your comment. Yes, she is my better half💗😊😁😀
One of the big things about society these days is we do not live in community any more. There were no old age homes or care homes 75 years ago. The elderly and family members with diseases were looked after by the extended family. The whole family model is broken because everyone has to work and longer just to survive.
Hi Trevor. Your comment was something I was trying to fit into the video, I just couldn't find the right moment. I believe all of my grandparents died at home in their own beds. Such a blessing to be able to do that. I hope for the same opportunity. 😊😁😀
Hello Guys, stay strong and remain positive. I will be 70 the 11th of April. Its been. two years since ive been diagnosed. I know you guys are in Canada, I understand the healthcare in Canada is terrible, I know here in Pennsylvania the healthcare is very good. i cringed when you said there is 4 patients to a room is totally uncalled for . I''m so happy tht we dont have socialized medicine here in the US. God bless you
Hi Bobby, yes the health care in our province has been in a downward spiral since its pinnacle. Huge wait times, crowded facilities, and little help beyond prescription drugs, which has been part of the reason that I try to find at least partial remedies for viewers of this channel. Glad to hear Pennsylvania is better. 😊😁😀
Canada has lots of problems with its healthcare. There are times when we swear at its inadequacy - other times, grateful that it's there. True story -. I once met a real estate agent in Florida. She was selling her own home because her husband had cancer. He could not work, and every penny they had was going to his medical treatment. If the treatments stopped, he stopped, She still found time to sneer at Canada' as being "Communist" (really!) because of its Medicare. I guess someone with an unfortunately slightly insufficient wallet in the USA is pleased to have it carried to their or their loved-one's cremation.
Back again! Talking thru fears and anxieties as they arise works for me and my hun. I hold tight to the truth that, if you just hang in there and keep things as simple as possible, moments never stay the same. We do pass thru stuff. What we fear will happen often never does, so worry is wasted. When crap happens, we just have to deal. Even tho hub's pd is progressing much quicker now, our scariest times are still ahead. But those scary times will bring with them some real insights and decisions that will make plain what our next chess moves need to be. "Grace comes in the day." I love happy endings and I hate scary movies...but life will take me where it will and I plan to be a wuss, a wimp, and then spin into one big wallapalooza huckee-tuckie HaHa if I need to, just to show that, if I HAVE TO be courageous...I'm prepared to bring everything I've got with me on this adventure! Yeah. I'm a goof. It works for me sometimes. Other times? Not so much. Hug to you guys again❤❤
Hi Rose, always nice to see you around and to read your comments. I love happy endings too, but in life we don't always get them it seems. I wonder..... Thanks for your support!😁😊😀
Hi guys thank you very much for topic and information ❤❤❤ I don’t think too much of the future..because it most likely will not be too pleasant ..so I go day by day. Obviously we know we are going to need help..but at the end of the day..just try and be happy ❤ ❤❤
I'm 76 in 2024, PD diagnosed in 2019. You ill become that aged man sitting at the wall end of a group table at White Spot, Denny's, or whatever restaurant. The folks, who decided to be nice to this fellow, are busy conversing .about yesterday, today, and tomorrow, have lost sight of him. His life is defined by what he cannot do. One of the worst gifts from PD is the truth that you are powerless. There is no mental strength any more. You will slip into oblivion. A nasty thought - how will my life deprive that of others? Rant. You'd think that by now, there would be cure
Hi Alec, thank you for your picturesque and honest assessment of being powerless and forgotten. Being powerless against the final will of PD is true, but I hope to create some good friends and memories along the way. 😊😁😀
Hi! I just watched you for the first time. I am getting things together for applying for VA disability and ran into your video on the subject. I have been diagnosed with PD for 8 years and remember back 20 years when odd little things started to happen, which I now recognize as very early symptoms. Now I can still walk with a shuffle, but don't trust myself to not hurt anyone by driving. As far as fear of aging, to me (as you indicate) it is a matter is acceptance of the personal situation and taking charge of the future as much as you can. Familiarity with the future is not enough, real knowledge will help soothe the fears, because it increases the personal power over the disease. In my local PD group (now disbanded) we always ended with someone giving one piece f advice about dealing with PD. Here's one: If you have trouble using a regular computer mouse, try using a 'trackball' mouse, which is an upside-down mouse My dominant hand (right) has become basically useless, so I use my left hand with the trackball. It took a while to adapt to, but now I can scroll the mouse pointer normally again. Yay!
Hi Edward, welcome to our channel. There is a lot of information on it so if you have any questions please let me know. Thank you for sharing a bit about your journey, and sharing a tip at the end of every support group sounds like a great habit so thanks for the tip about the mouse.😊😁😀
For your beautiful wife, I have some encouraging words. I also had endometriosis. I say had because once I went through menopause (I am 65), the endometriosis dries up.😁🙌💪🏼. All it is s menstruation that is going inside the body, instead of leaving the body. So after about a year after stopping menstruation she will notice one day-no more pain. 😁. It was amazing to discover that. Now though I have Parkinson’s.🙄🫤. I just can’t catch a break. Haha. I loved this show. The two of you are a delightful couple. Many blessings to you and your family.❤️
Hi Julieanna, thank you for your kind and encouraging words. Hayley's doctors did a complete hysterectomy some years ago, to put her in pre-menopause with the hope that her symptoms would subside. Unfortunately it has had little effect. Sorry to hear you went from Endo to PD. You deserve a break😊😁😀
What an EXPLOSION of GOLD!!! Shrapnel was hitting me all over the place! I had trouble hearing at times because you were hitting so many nerves and every emotion wanted to shove the others to the side, leaving none able to have the satifaction of expression! I will need to listen to this post again - and perhaps again - to harvest the benefit of all that pus in me that needs to come out, to enable healing to begin. This is a profound time in my journey as well. We are experiencing FAR MORE than simply physical distress. Mental, emotional, relational and spiritual landmines are happening all over the place!
Having been rather dramatic in this comment, I do need to admit that faith, hope, love, messiness, and great big gobs of humor are pulling me through as well. I absolutely ADORE you and Haley for being raw and transparent here. GOLD, I tell ya. And the motherload of life, Life, LIFE starts sprouting new shoots of Spring greenery when real people talk about real stuff. I am actively shoving great heaps of love at ya!!! Have a lovely day. You have enriched mine.❤❤❤😊❤❤❤
Hi Rose, your comment is so heartfelt and warm that it brought tears to my eyes. It is such a blessing to know that this video has made such a strong connection with you and others. So glad that we can take this journey together. Hoping you can find that balance of care and rest with your husband. Thank you for your love and kindness.😊😊😁😁😀😀
Hey David and Hayley
👋🤗👋 My grandma always said "time changes everything" I've always looked to those with gray hair 🩶🩶 as the Bible says it is a crown of beauty. For me I try to draw on the strength and weaknesses each deceased parent or grandparent left behind in their golden years 💛💛
I find it eases some anxiety because my maternal great grandma and grandma as well as my mom all had dementia slowly starting in their 60's
They never talked about it as it was a generational thing but they "lived laughed and loved" in those final years. My husband of 30+yrs and I both don't expect more of him or myself and just do one day at a time
He is now developing Alzheimer's type symptoms at 62 he is 80% deaf. It is time now to consider transferring to an assisted living complex where we can have more support which helps because we live in Tornado 🌪️ Alley
Sorry guys I didn't mean to write a book lol but maybe my thoughts might help just one person who reads it and that makes me smile 😊
Good luck, I have my dad of 64 with Parkinson’s and I watch David to inform myself and learn more , good luck with what the future holds, I hope you guys live happy and as healthy as possible
@@IsraelChavezArmwrestling Thank you Israel for your kind words 😊 and absolutely we will try our best!! 😀
Hi Tory, thank you so much for sharing, and yes I agree grey hair can be a crown of beauty. I have gained so much insight from the generations before me, and advice that has made my life easier. I hope you and your husband are able to get the help you need.😊😁😀
Thanks guys. Very enlightening and at the same time therapeutic for both of you and us too. I have the same concerns with my mental health. I live alone and have my 93 year old mother now with daily care issues. She knows well what PD is. Her mom lived with YOPD from her thirties to her late 70s. I worry about burdening my kids with my deteriorating health while having their own families to raise. Personally I feel talking about it helps. That way surprises are kept to a minimum. Thanks again.
Hi Tom, I understand your worry of being a burden to your children. That is something we are trying to avoid as well. Talking about these issues is important because they will eventually need to be dealt with. Thanks for your input and comment. 😊😁😀
Hi David and Hayley, thank you for sharing. I have Parkinson's...I'm pushing 80...and I never thought I would live to be 50. I had many family members that had died very young. We just don't know our future. All I can do is make the best of it. I hadn't realized or even thought about what may be causing some of my anxiety or depression. I feel guilty for not being able to do what I used to do around the house; however, if I'm not off or having a bad day I try to do what ever I can to help around the house. I feel bad that it's only small things like empty the dish washer, fold cloths or other simple chores. David, I have watched many of your videos and may I say it's a pleasure to meet your better half. My wife is my care giver when she needs to be.
Hi Tim, thank you for sharing your journey with us. I agree with you, we just don't know our future, I never thought to reach 50, but here I am. I know what you mean about the OFF time guilt. I try not to think about things when I am OFF, to easy to be negative. I understand the guilt about not being able to do what you used to around the house, but at least you want too! That is a big difference than not want too. Thanks for your comment. Yes, she is my better half💗😊😁😀
One of the big things about society these days is we do not live in community any more. There were no old age homes or care homes 75 years ago. The elderly and family members with diseases were looked after by the extended family. The whole family model is broken because everyone has to work and longer just to survive.
Hi Trevor. Your comment was something I was trying to fit into the video, I just couldn't find the right moment. I believe all of my grandparents died at home in their own beds. Such a blessing to be able to do that. I hope for the same opportunity. 😊😁😀
Hello Guys, stay strong and remain positive. I will be 70 the 11th of April. Its been. two years since ive been diagnosed. I know you guys are in Canada, I understand the healthcare in Canada is terrible, I know here in Pennsylvania the healthcare is very good. i cringed when you said there is 4 patients to a room is totally uncalled for . I''m so happy tht we dont have socialized medicine here in the US. God bless you
Hi Bobby, yes the health care in our province has been in a downward spiral since its pinnacle. Huge wait times, crowded facilities, and little help beyond prescription drugs, which has been part of the reason that I try to find at least partial remedies for viewers of this channel. Glad to hear Pennsylvania is better. 😊😁😀
Canada has lots of problems with its healthcare. There are times when we swear at its inadequacy - other times, grateful that it's there. True story -. I once met a real estate agent in Florida. She was selling her own home because her husband had cancer. He could not work, and every penny they had was going to his medical treatment. If the treatments stopped, he stopped, She still found time to sneer at Canada' as being "Communist" (really!) because of its Medicare. I guess someone with an unfortunately slightly insufficient wallet in the USA is pleased to have it carried to their or their loved-one's cremation.
@@alecspeer yes sometimes I see the big holes in our healthcare and most times I am grateful it's there
A difficult subject indeed, but you handled it perfectly!
Thanks Jeremy we had a great time filming 😊😄😃
Back again! Talking thru fears and anxieties as they arise works for me and my hun. I hold tight to the truth that, if you just hang in there and keep things as simple as possible, moments never stay the same. We do pass thru stuff. What we fear will happen often never does, so worry is wasted. When crap happens, we just have to deal.
Even tho hub's pd is progressing much quicker now, our scariest times are still ahead. But those scary times will bring with them some real insights and decisions that will make plain what our next chess moves need to be. "Grace comes in the day."
I love happy endings and I hate scary movies...but life will take me where it will and I plan to be a wuss, a wimp, and then spin into one big wallapalooza huckee-tuckie HaHa if I need to, just to show that, if I HAVE TO be courageous...I'm prepared to bring everything I've got with me on this adventure!
Yeah. I'm a goof. It works for me sometimes. Other times? Not so much.
Hug to you guys again❤❤
Hi Rose, always nice to see you around and to read your comments. I love happy endings too, but in life we don't always get them it seems. I wonder.....
Thanks for your support!😁😊😀
Hi David and Hayley!
Hi Troy, hope you are doing well😊😁😀
Hi guys thank you very much for topic and information ❤❤❤ I don’t think too much of the future..because it most likely will not be too pleasant ..so I go day by day. Obviously we know we are going to need help..but at the end of the day..just try and be happy ❤ ❤❤
Thanks GoPro, I try not to think about the future when I am OFF, because that's when it seems the worst.😊😁😀
You 2 are great ❤
Thanks Ross❤️
I'm 76 in 2024, PD diagnosed in 2019. You ill become that aged man sitting at the wall end of a group table at White Spot, Denny's, or whatever restaurant. The folks, who decided to be nice to this fellow, are busy conversing .about yesterday, today, and tomorrow, have lost sight of him. His life is defined by what he cannot do. One of the worst gifts from PD is the truth that you are powerless. There is no mental strength any more. You will slip into oblivion. A nasty thought - how will my life deprive that of others? Rant. You'd think that by now, there would be cure
Hi Alec, thank you for your picturesque and honest assessment of being powerless and forgotten. Being powerless against the final will of PD is true, but I hope to create some good friends and memories along the way. 😊😁😀
Thanks for sharing! I don't even think that far ahead, but I am blessed to have a great family that will support me as I continue on with PD.
Thanks Michele, glad to hear your family is so supportive. I am blessed that way as well.😁😊😀
Hi! I just watched you for the first time. I am getting things together for applying for VA disability and ran into your video on the subject. I have been diagnosed with PD for 8 years and remember back 20 years when odd little things started to happen, which I now recognize as very early symptoms. Now I can still walk with a shuffle, but don't trust myself to not hurt anyone by driving.
As far as fear of aging, to me (as you indicate) it is a matter is acceptance of the personal situation and taking charge of the future as much as you can. Familiarity with the future is not enough, real knowledge will help soothe the fears, because it increases the personal power over the disease.
In my local PD group (now disbanded) we always ended with someone giving one piece f advice about dealing with PD. Here's one: If you have trouble using a regular computer mouse, try using a 'trackball' mouse, which is an upside-down mouse My dominant hand (right) has become basically useless, so I use my left hand with the trackball. It took a while to adapt to, but now I can scroll the mouse pointer normally again. Yay!
Hi Edward, welcome to our channel. There is a lot of information on it so if you have any questions please let me know. Thank you for sharing a bit about your journey, and sharing a tip at the end of every support group sounds like a great habit so thanks for the tip about the mouse.😊😁😀
thank you soooo much both of you for sharing
Hi Mike, you're welcome!😊😁😀
Always nice to see you!!
Thank you David. Always nice to see you too😊😁😀
Thanks!
Thank you, David, for supporting this channel😊😁😀
For your beautiful wife, I have some encouraging words. I also had endometriosis. I say had because once I went through menopause (I am 65), the endometriosis dries up.😁🙌💪🏼. All it is s menstruation that is going inside the body, instead of leaving the body. So after about a year after stopping menstruation she will notice one day-no more pain. 😁. It was amazing to discover that. Now though I have Parkinson’s.🙄🫤. I just can’t catch a break. Haha. I loved this show. The two of you are a delightful couple. Many blessings to you and your family.❤️
Hi Julieanna, thank you for your kind and encouraging words. Hayley's doctors did a complete hysterectomy some years ago, to put her in pre-menopause with the hope that her symptoms would subside. Unfortunately it has had little effect. Sorry to hear you went from Endo to PD. You deserve a break😊😁😀