28 Years of Living with Sickle Cell Disease | Pain, disappointment, cure

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  • เผยแพร่เมื่อ 16 ก.ย. 2024

ความคิดเห็น • 16

  • @kelliramirez8315
    @kelliramirez8315 10 หลายเดือนก่อน +2

    This was beautiful. Thank you for sharing. Keep going, that voice is needed.

    • @christellesalomon
      @christellesalomon  8 หลายเดือนก่อน

      Thank you for the encouragement, Kelli!!🙏🏾❤️

  • @christinahare4513
    @christinahare4513 10 หลายเดือนก่อน +1

    God bless you.

    • @christellesalomon
      @christellesalomon  8 หลายเดือนก่อน

      Amen! God bless you too 🙏🏾 ❤️

  • @miracleokoli1228
    @miracleokoli1228 2 ปีที่แล้ว +2

    It’s so unfortunate how uninformed people are about this disease. I knew someone with sickle cell and I remember how often we would have to have her daughter stay with us because of the frequent hospital visits. It’s a great blessing that you can share your story and I’m hoping people (particularly those in medical professions) are open to listening and taking it to heart!

    • @christellesalomon
      @christellesalomon  2 ปีที่แล้ว +1

      It really is unfortunate!! I am praying that this won't be the case forever 🙏🏾🙏🏾🙏🏾

  • @britneycharles9721
    @britneycharles9721 ปีที่แล้ว +1

    I am also an aspiring physician (second year med student) with SCD and I got so emotional when you started talking about being expected to be a normal functioning human when you and your body are going through so much. It's especially bad when you're fine in one second then sick the next, when you have to opt out of things because you're not exactly in pain yet but you feel like doing anything at all will trigger a crisis. Some of it isn't the easiest to explain. And in such a fast paced, tasking career path like medicine it sometimes feels like you can't take the time you need cause it'll leave you behind.
    I watched your "dropping out of med school" video and I'm glad you decided to put yourself and your values first. I wish you all the best throughout your recovery. God bless🤍

    • @christellesalomon
      @christellesalomon  ปีที่แล้ว

      Yes to everything you said! We should connect to encourage each other! I don't know many other med students with SCD, so it's always encouraging and exciting when I meet someone!!

  • @RachelVinn
    @RachelVinn 2 ปีที่แล้ว +2

    Thank you for sharing your journey with the world 💚

    • @christellesalomon
      @christellesalomon  2 ปีที่แล้ว

      Thank you so much for taking the time to listen, Rachel! It means a lot to me!

  • @haleycoffman9954
    @haleycoffman9954 2 ปีที่แล้ว +2

    Christelle. Wow. Thank you SO much for sharing this. Hearing you speak about this brought me to tears. You are an inspiring and impress human and I am so thankful to have someone like you in my life. Your stories are traumatic, and I see the pain they have caused you. I am beyond inspired by your ability to share these and provide advocacy and humanization. I love you! 💜

    • @christellesalomon
      @christellesalomon  2 ปีที่แล้ว

      Thank you so much for listening! I love you to the moon and back 💛 😚

  • @lawalmuhammad458
    @lawalmuhammad458 2 ปีที่แล้ว +1

    I like hearing you speak, your utterances gives me a better experience to a phase I'm also going through.
    I'm so sorry for your first time you felt invalidated. You tried to impress your school teacher, afterwards explaining to her, but, she still didn't care for you and you have to just finish that lap of race not to sound disrespectful and rather not rebel against her. Christelle you're a good person.
    You guy's have a more better physicians in the state where there's feasible access to all these pain control analgesia. Unlike, here when you request for a pentazocine they label as a drug seeker! I have only once been given pethidine since i started having these excruciating crisis.

    • @christellesalomon
      @christellesalomon  2 ปีที่แล้ว +1

      The disparity in access is incredibly sad!! Where people need sickle cell care the most, there is the least amount of care and resources available! I hope we can help this change one day!

  • @kerigurule2261
    @kerigurule2261 2 ปีที่แล้ว +1

    Thank you so much for sharing your story. My hope is that it will help others struggling with Sickle Cell Disease. Is that your “Counts Calendar” I see in the background of your video? You look amazing and I hope you are feeling well too!

    • @christellesalomon
      @christellesalomon  2 ปีที่แล้ว +1

      Yes!!! That is my calendar!! I am so glad you noticed it! I am going to keep it forever 🙏🏾🙏🏾🙏🏾❤️❤️❤️