22 & Suddenly Disabled: My Story | Functional Neurological Disorder

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  • เผยแพร่เมื่อ 20 พ.ย. 2024

ความคิดเห็น • 66

  • @trashman2256
    @trashman2256 6 วันที่ผ่านมา +1

    i’ve had fnd for over 3 years and it’s so refreshing to see people documenting their story and spreading awareness!

  • @hellyripphin8357
    @hellyripphin8357 7 หลายเดือนก่อน +17

    beautifully filmed. Thank you for the reminder that life can change in an instant and our concept of 'control' is just a construct we have invented. (I was hit by a car and the life that I had before just evaporated - so I write with empathy and kindness.) thank you - you are far from alone.

    • @clarityromero
      @clarityromero  7 หลายเดือนก่อน +4

      I’m so sorry to hear 🤍 its such a difficult process to navigate huge changes but knowing that we don’t have to go through this alone has been my guiding light. Thank you for the support ❤️

  • @tynsleycalistena9556
    @tynsleycalistena9556 22 วันที่ผ่านมา +4

    Officially diagnosed with FND about 6 months ago. I can't thank you enough for making this film! I cried tears of HOPE🙏

  • @q_q6162
    @q_q6162 7 หลายเดือนก่อน +16

    not only was this beautiful but also a jarring perspective of what it’s like to live with such a disorder. thank you for sharing this with the world, you are very strong ❤️❤️

    • @clarityromero
      @clarityromero  7 หลายเดือนก่อน +1

      Thank you so much for the kind words ❤️❤️❤️

  • @stuartburns8657
    @stuartburns8657 3 หลายเดือนก่อน +8

    My Daughter was diagnosed with FND October 22.
    Went to bed a bit run down with a cold, and next moring could barely walk with collapsing episodes.
    Battery of tests, and eventually we paid for a private diagnosis.
    This got worse with unconscious handgriping, arm movements, tics and tourettes outbursts etc.
    Only had a couple of what Id call seizures.
    Nearly 2 years later she's doing a lot better.
    She had to suspend college for a year while we all refocused, but she's walking, doesnt need the wheelchair any more etc.
    It's still with her, and heat and loud noises can be a problem, but considering how bad it got we're so proud of her progress abd recovery.
    Walking issues..weirdly she could dance flawlessly, and we found any type of distraction helped normalise her movement.
    Good luck to you and stay strong 🙏👍❤

    • @clarityromero
      @clarityromero  3 หลายเดือนก่อน +2

      Thank you so much for sharing this ❤️ This means a lot to me! I hope you and your family is doing well ☺️

    • @stuartburns8657
      @stuartburns8657 3 หลายเดือนก่อน +1

      @@clarityromero My pleasure. I've only got a sample size of one, my own daughter, but I've come to understand with research papers and others sharing, what an individualistic condition FND is.
      All I can say is don't give in and keep pushing yourself.
      I don't know what the future holds for our daughter, but early days I'd have never imagined she'd have recovered as well as she's been able to do.
      Stay strong, and thanks for having the courage to share your experiences 🙏

  • @Hannah7Banana
    @Hannah7Banana 7 หลายเดือนก่อน +8

    This video is so underrated, I don't have fnd but I am neurodivergent and I understand what it feels like to be dismissed, ignored, and misunderstood.
    You got this :)

    • @clarityromero
      @clarityromero  7 หลายเดือนก่อน +1

      Thank you for the support ❤️❤️❤️

  • @whimsyelf7832
    @whimsyelf7832 6 หลายเดือนก่อน +5

    Thank you for sharing your story. This was a beautiful film. I also suffer from FND and its so difficult. It's hard watching your peers move forward while you feel left behind. It's hard grieving your past self and all you were capable of. I'm glad you've found freedom in using mobility aids, I might have to consider getting one.

    • @clarityromero
      @clarityromero  6 หลายเดือนก่อน +2

      Thank you for the support 🤍 and yes, it’s so difficult watching the world move forward while you’re trying to manage each day but it slowly gets easier. It also took some time to accept mobility aids but it did help bring back my independence and reduce my symptom flare ups. I hope the mobility aids help you too ❤️❤️

  • @sannesmit7342
    @sannesmit7342 7 หลายเดือนก่อน +6

    Can I just say that this was beautifully filmed. I would love to follow your progress mentally as well as physically! I wish you all the best and keep in mind that grieving the body you once had as well as accepting and learning about the body you now have both have a place in the healing process.

    • @clarityromero
      @clarityromero  7 หลายเดือนก่อน

      Thank you 🥺❤️ And yes, you’re so right. I suppressed a lot at the beginning but now i’ve realised that its okay to grieve every aspect of this process❤ I do share a lot of my progress on insta (@claritymromero) as well but i’ll also continue to post more videos regarding my progress on YT. Thank you for the kind words 💕💕💕

  • @Star_Rattler
    @Star_Rattler 6 หลายเดือนก่อน +4

    I learned recently that I am not only ADHD but also autistic, and accepting the limitations that come with those disorders. For a long time, I just thought I... sucked. I was normal, but weird. And I was fussy, picky, particular, emotional, quirky, lazy... etc. Now I have a name for my problems. However, accepting that there's just certain things I can't do, and the fact that most people in my life don't understand that I can't do certain things, and get upset with me, and judge me badly, because they think I CAN do anything I put my mind to.... it's so ... heartbreaking.
    I've got a different life experience than you, and we have different struggles, but I am here with you, beside you. We are sisters and we can lift each other up when the world or our bodies/brains push us down. I love you and I hope you will continue to cope easier and easier and life flows a little more smoothly. 💙

    • @clarityromero
      @clarityromero  6 หลายเดือนก่อน +5

      Thank you so much ❤️🥺
      I choked up reading this because i relate in so many ways. It’s so challenging when people don’t understand what you’re going through, all the more when they don’t believe it. But i’m so glad to know that there are people out there who understand so thank you for taking time out of your day to leave such a heartfelt message. I love you too, sis🥺🫶

  • @EllenJung-eu5gs
    @EllenJung-eu5gs วันที่ผ่านมา

    Clarity. I hope you have resolved FND for good by now. And if you haven’t, I hope you know that you can rid of FND once you meet the right doctor who can teach you how to retrain your brain. My son had FND and he is 90 percent better now after 11 months of trials and struggles!!

  • @sarahtalbot4363
    @sarahtalbot4363 2 วันที่ผ่านมา

    I was diagnosed with FND 6 months after a Parkinsons disease diagnois. Now after 3.5 years, I am slowly getting worse but no one knows if its FND or PD or both? I have to work at remaining calm and positive for myself but also my family. It is hard but what can I do? I try to stay as healthy as I can and I dont think about it too much or it could get me down. I am still grateful for the love and joy I experience despite health problems. Look after yourself and stay in the moment xxx

  • @brentwarner5333
    @brentwarner5333 22 วันที่ผ่านมา

    I just came across your video and I resonate with your story. 7 months ago, I began to have a pulling sensation in my neck and face. This was late May but the next month my world came crashing down when I began to experience seizures, tremors, severe pain, and a mental disconnect from the world around me. October 11, 2024, was the day that changed my life. I had been seeing a neurologist since the beginning of the journey, but this was the day that I finally after months I got an official diagnosis. My doctor diagnosed me with Functional Neurological Disorder. Though my wife and I were happy to have a diagnosis we had so many questions. Many days I look back on my life before FND and it's hard to understand that 7 months ago I was normal working an excellent job, providing for my family, and had so many things I wanted to accomplish. Even though my life looks vastly different than before, this has led to other possibilities that I can only describe has a blessing from God. One thing I have learned from this disability is that I don't have to understand it, but I know God has ordained it. Thank you for sharing your story and journey through FND. God Bless.

  • @annemargaret3512
    @annemargaret3512 28 วันที่ผ่านมา +1

    Hi!
    I was also diagnosed with FND on Oct 10. I can’t walk forward but I can walk backwards. We got this 💪

    • @clarityromero
      @clarityromero  28 วันที่ผ่านมา

      Yess we’ve got this ❤️❤️❤️

  • @jess-rc5dp
    @jess-rc5dp หลายเดือนก่อน +1

    Woou increíble videos, gracias por mostrarnos las luchas diarias del FND, a mi también me diagnósticaron, gracias, haces que no me sienta sola en esta lucha, te envío un gran abrazo guerrera❤❤❤❤

    • @clarityromero
      @clarityromero  หลายเดือนก่อน

      @@jess-rc5dp thank you so much for the support ❤️❤️❤️

  • @bbl8101
    @bbl8101 2 หลายเดือนก่อน +1

    I developed FND from a covid reinfection in May 2022 as well as ME/CFS. It's completely changed my life - housebound over two years now

  • @wowwowzz115
    @wowwowzz115 7 หลายเดือนก่อน +2

    Commenting to help the algo and spread your story! Keep fighting and be kind to yourself!

    • @clarityromero
      @clarityromero  7 หลายเดือนก่อน

      Thank you so much 💕💕

  • @markyromero1398
    @markyromero1398 7 หลายเดือนก่อน +3

    Send prayers and virtual huggsss my cousin. Fight fight fight...🙏🙏🙏😘😘😘

    • @clarityromero
      @clarityromero  7 หลายเดือนก่อน

      Thank you! ❤❤

  • @elop4549
    @elop4549 หลายเดือนก่อน +1

    this is such a bueatiful work of art. thank you for filming this. i wish you all the best for the future.

    • @clarityromero
      @clarityromero  หลายเดือนก่อน +1

      @@elop4549 thank you so much for the support ❤️❤️❤️

  • @Carmen-kindness
    @Carmen-kindness 12 วันที่ผ่านมา

    Hello you are string, brave, and inspirational. Well, my therapist diagnosed me with FND as a part of or related to my complex PTSD and Dissociative Identity Disorder, but I don't have as much mobility loss as you. Have you been to see a chiropractor? I go every three weeks to get adjusted and it very much helps me with my mobility even though I have seizures every day. When I don't go to the chiropractor because I can't afford it, I can barely walk at all. So the chiropractor helps me walk pretty great without any mobility aids. Often my hips, legs, feet and sacrum are out of alignment along with some other bones in my spine. I use Activator doctors as they are gentle enough to cause the least amount of seizures during each adjustment. Low force causes less seizures than high force. Activator doctors use a low force tool that is a spring inside a tube that they push a button to release on the bone to move it slightly so it goes back in its proper place. Then you should try to let the seizures come as you adjust to the adjustment and walk around without carrying anything for awhile to get used to it. And stretch gently with hip circles and arm circles. Go on the Activator website to FindADoc. I usually have around 7 bones out of alignment each time I go. Also please see a therapist to find out if you have Dissociative Identity Disorder and/or autism as the functional neurological disorder is often co-occurring with these and that means treatment for them can help the seizures go away. My therapist expects my seizures to go away after 2 years or so of EMDR therapy and parts work to integrate my DID parts. EMDR stands for Eye Movement Desensitization and Reprocessing.

  • @scottbennett3423
    @scottbennett3423 17 วันที่ผ่านมา

    I got this a few years ago it gets better and then worse all the time

  • @poogie_bear
    @poogie_bear หลายเดือนก่อน

    8:12 Exactly my story up to this moment in your video. I have no faith.

    • @clarityromero
      @clarityromero  หลายเดือนก่อน +1

      @@poogie_bear I’m really sorry that this has been your experience too. losing faith is such a painful place to be. please know you’re not alone and your strength in getting this far speaks volumes. I believe in you. sending so much love your way ❤️❤️❤️

    • @poogie_bear
      @poogie_bear 15 วันที่ผ่านมา

      @@clarityromero Thank you for your encouraging words. For the last 5 Years I felt everything getting worse day by day. Just last week I took a trip to Spain & France by myself. I asked mobility assistance at the airports. Now I feel I'm healing little by little. Your story really encouraged me, I had not heard of FND until a few months ago.

  • @yolo-ni5bl
    @yolo-ni5bl 23 วันที่ผ่านมา

    I've been fainting regularly, couldn't move for hours, tired all the time etc. The doctors don't know what's wrong with me, but they've only done ekgs and blood tests and nothing else because my parents waited 6 months to take me to a doctor. I'm debilitated and unable to do my schoolwork. We still don't know whats wrong with me, though my heart rate is always high (resting around 110, it's jumped up to 195 resting before). I want the doctors to take me seriously and have answers.

  • @rohinihyde4766
    @rohinihyde4766 2 หลายเดือนก่อน

    Inspirational video. Thank you for sharing your story. May I ask if your symptoms began after the covid jabs. I was 68years old when I had my 1st jab 3 years ago. Symptoms started soon after and after several tests that all came back normal, I now need a walker even to get around my home. I'd rather risk dying of covid than risk any more vaxes. Recently diagnosed with FND. Hope you find ways of getting better Clarity. You are a very brave young lady and thanks again for sharing your story.

    • @clarityromero
      @clarityromero  2 หลายเดือนก่อน +1

      Hi, thank you so much for your kind comment 😊. I got my COVID vaccine in November 2021 but didn’t start experiencing FND symptoms until December 2023. I felt fine after my vaccines, but interestingly, the muscle aches from FND feel identical to how they did when I caught COVID twice. I really hope you find ways to manage and feel better soon too. Sending you lots of love ❤️

  • @profa6479
    @profa6479 7 หลายเดือนก่อน +1

    nice video give me a heart

    • @clarityromero
      @clarityromero  7 หลายเดือนก่อน +1

      Here you go 🫶

  • @sonyaparkin7841
    @sonyaparkin7841 หลายเดือนก่อน +1

    💚

  • @dazzlingdisaster89
    @dazzlingdisaster89 2 หลายเดือนก่อน

    My symptoms started in 2021 but were mild Dr told me it was anxiety more I have tics,faint attack,limb weakness, problems with speech I know it's fnd its getting a Dr to believe me

    • @clarityromero
      @clarityromero  2 หลายเดือนก่อน +1

      @@dazzlingdisaster89 I’m really sorry you're going through this. I know how hard it can be to feel unheard. Stay strong and keep advocating for yourself-you deserve to be taken seriously. i’m also here if you need someone to talk to. Sending so much love your way ❤️

  • @muslimminds681
    @muslimminds681 3 วันที่ผ่านมา

    Listen Surah Fatiha every day , it's the cure.

  • @DeborahGammon
    @DeborahGammon 2 หลายเดือนก่อน

    I have been diagnosed with fnd

    • @clarityromero
      @clarityromero  2 หลายเดือนก่อน

      @@DeborahGammonI'm so sorry to hear. FND can be really tough, but you're not alone. Take things one step at a time and be kind to yourself. I'm here if you ever need to talk. Sending love ❤️

    • @DeborahGammon
      @DeborahGammon 2 หลายเดือนก่อน

      Thank you

  • @honeybeebusywhatsallthebuz1922
    @honeybeebusywhatsallthebuz1922 7 หลายเดือนก่อน +2

    Were you ever tested properly by a holistic practitioner for Lyme disease Bara Bartonella? the lab that’s trustworthy is vibrant. Please look into. I hope you’re feeling better soon soon.

    • @clarityromero
      @clarityromero  7 หลายเดือนก่อน

      I havent! I’ve actually never worked with a holistic practitioner before but i’m interested to try. Thank you for the support ❤

  • @randomperson22789
    @randomperson22789 หลายเดือนก่อน

    Have you ruled out pandas/pans? Many people are being misdiagnosed and get FND diagnosis when they actually have pandas/pans.

    • @clarityromero
      @clarityromero  หลายเดือนก่อน +1

      @@randomperson22789 I actually haven’t. we’ve tried ruling out other things but will look into it now. Thanks for that!

  • @drkatechastain
    @drkatechastain หลายเดือนก่อน

    Do you drive?

    • @clarityromero
      @clarityromero  หลายเดือนก่อน

      @@drkatechastain I used to but no longer drive. I have to be seizure free for a few months and will have to be reexamined again till I can drive again

  • @Ginjuu
    @Ginjuu 7 หลายเดือนก่อน +5

    No matter what illness you have, I would like to motivate you to cleanse your whole body. The body has self-healing powers, but these can be limited by toxins. This may also have been one of the reasons why you developed this illness. Detoxify through daily alkaline baths, vegan raw food, physical activity as much as possible, daily enemas and regular colon hydrotherapy to keep the intestines clean and prevent re-intoxication. No use of synthetic perfumes, fabric softeners, aggressive detergents and washing-up liquids, too chemical shampoo, no conditioner. Only eat when you are hungry and only enough to make the hunger disappear (don't feel full). Hypnosis to eliminate mental toxins. No new vaccinations that cause new deposits in your system or cross your brain-blood barrier and cause problems in the brain. Only drink fresh spring water, or better still distilled water and mainly water from freshly squeezed vegetable juices. Depending on your condition, take as little medication as possible (preferably none at all, of course). Of course, it will restrict your life even more and it will be exhausting. But the main reason for illness is our way of life, which is not suitable for humans. And depending on where "toxins" are located or which detoxification organs are overloaded, different diseases/symptoms appear. Incidentally, I am now also on this path. When you do it, you realise how poisoned you were. Do the test and eat nothing but water for 1 day. Your tongue will be coated, your mouth will stink, it will feel funny. These are some of the detox symptoms. Do a lot of research on the internet about the things I wrote. This is important. Doctors don't learn that. But ask your doctor if you can fast for a day to try it out. It's not a walk in the park and will take a long time, but look forward to the quality of life afterwards. I wish you all the best! And more viewers, which you definitely deserve!

    • @juliannazajda8883
      @juliannazajda8883 7 หลายเดือนก่อน +2

      what are you on 💀

    • @Ginjuu
      @Ginjuu 7 หลายเดือนก่อน

      @@juliannazajda8883 Much love to you ✨🍇

    • @Elliott1314
      @Elliott1314 7 หลายเดือนก่อน +1

      Please don't preach this pseudoscience online, especially under a video of someone struggling with medical issues that need to be addressed by doctors.

    • @clarityromero
      @clarityromero  7 หลายเดือนก่อน +2

      I’ve heard about a full body cleanse but i’ve never tried it nor researched much about it. I think it’ll be interesting to give it a try and document the process! It definitely sounds challenging though haha but i’m always open to learn new things. Thank you for the support 😊💕💕

    • @Ginjuu
      @Ginjuu 7 หลายเดือนก่อน

      @@clarityromero With pleasure! And if you have any questions during the process, feel free to write to me. The most important thing with water is the conductivity, it should be at least below 90 microsiemens (uS/cm), preferably below 10. Water above 130 has a dehydrating effect and below 130 has a hydrating effect. The lower the value, the better the cell supply and removal of unnecessary substances. Minerals in water cannot be utilised by humans (only 10%) as they are inorganic. The rest accumulates as waste in the body. Humans need organic minerals from vegetables, fruit and nuts. Lots of new information, but you can do it! 💪

  • @jjpaix
    @jjpaix 14 วันที่ผ่านมา

    Thank you for sharing your story, you are truly making a difference. I am so moved and inspired by your optimism, tenacity and the beautiful way you express yourself and communicate to the world. I pray you thrive in life and hope you continue to share your life as this video alone really made an impact in mine. 🤍.

  • @tracybeeeee
    @tracybeeeee 7 หลายเดือนก่อน +3

    Well, if nothing else, the algorithm brought me here, front page.
    As someone with disassociative episodes, I can only sympathise deeply, but never truly understand. I just hope. For you. For everyone who experiences anything adjacent to this.
    Despite the all-encompassing loneliness... that's one thing you aren't alone in 🫂 alone together

    • @clarityromero
      @clarityromero  7 หลายเดือนก่อน +1

      I got all teary haha 😢 thank you for the kind words❤️ having an illness is difficult but knowing that you’re not alone makes a world of a difference. Thank you so much 💕💕💕