Very helpful explanation. My husband started having unusual episodes a few years ago and fnd has been suggested as a possibility. His biggest symptoms are overwhelming fatigue, extreme sensitivity to light, brain fog, numbness and whole body nausea. The symptoms are significantly worse in the summer. He was found to have a Chiari malformation with restricted CSF flow and cerebellum compression. The neurosurgeon surgeon wants him to work with a psychologist before considering surgery and my husband feels very frustrated about this. He just wants the surgery and isn't really buying into this FND idea. He did have quite a violent childhood and he's had an unstable mood for our entire 35 years of marriage.
That is a tough one Jenny. Older men do not get FND as much, but are the most "entrenched" cases when they do. I totally understand his frustration about a psychologist. A multimodal approach is good here, but a neurological approach could help, and the chiari malformation (structural issue) may well need to be addressed more. Matt.
Everything I've come to believe my CFS/ME (since the 1980s) is, in one lecture. Extraordinary! Fasting/keto seems to lower inflammation and brain fog which is always a good thing. Now...to recalibrate the brain.... :)
Hello Anne, thanks. 40 or so years is a very long time, which makes any attempts at recalibration much more difficult. If you want to explain a bit more about the symptoms to me at email (matthewclphillips@metabolicneurologist.com) I might be able to help guide you better that way. Kind regards, Matt.
I've been trying to get my husband diagnosed for the past 3 years. He has all of the symptoms of this disorder and it surprised me. The only thing our doctors could come up with was Dementia and Parkinsons. He has neither however, they will only consider those. My husband was hospitalized 3 times and had a ton of tests, they all came back normal. This disorder was NEVER brought up although I felt that this could have been psychosomatic. It all started after my husband had bowel surgery 3 years ago..prior to that he could think normally (his cognitive has been affected), drive a car, walk, run, play tennis and play golf. He cannot do any of these any longer. His walking is getting worse and worse over time. My husband is currently getting ECT treatments for severe depression as no medications work for him. I am so upset that I cannot get any help for my husband.
Thabk you for this. Coincidentally i grew up in hamilton NZ. My father was a lecturer at waikato university. Whate the difference between dysautonomia and fnd? Symptons such as dizziness, brain fog, bladder control and fatigue overlap.
Hi! Yes, sometimes, but not as the primary therapy. In my experience the best way to treat is to identify the subconscious processing problem and recalibrate the brain. Kind regards, Matt.
@ Ok, thank you! I think Dr. Palmer’s Brain Energy approach is such an effective treatment for mood disorders, I wondered if it would help people experiencing that + FND.
@@julieoneofonebillion All good. The brain can, through interoceptive predictions, most likely modulate/control the autonomic nervous system, metabolism/mitochondria, and immune systems at a basic level, which means that abnormal brain processing could lead to these metabolic and other changes. So metabolic therapies could certainly help in theory. However, the primary treatment would still be to recalibrate the brain. Matt.
Thank you so much. I’ve been recently diagnosed with FND by Mayo Clinic. Most of the stuff I’ve seen on line and TH-cam are years old. This is very recent and you’ve provided a good description and explanation as I am now trying to navigate this new psychological and neurological world as I understand and can apply it to my life. I will check out those resources to get more information and understanding on the subject. I am not a medical professional and a lot of this is over my head…but I am able to glean a few kernels of knowledge to aid in my diagnosis
Thank you for raising awareness of FND. Having struggled with it for two years, I realize the huge need to elevate the discussion within the medical community. We need support! Stronger Together ⭐🫶
Very helpful explanation. My husband started having unusual episodes a few years ago and fnd has been suggested as a possibility. His biggest symptoms are overwhelming fatigue, extreme sensitivity to light, brain fog, numbness and whole body nausea. The symptoms are significantly worse in the summer. He was found to have a Chiari malformation with restricted CSF flow and cerebellum compression. The neurosurgeon surgeon wants him to work with a psychologist before considering surgery and my husband feels very frustrated about this. He just wants the surgery and isn't really buying into this FND idea. He did have quite a violent childhood and he's had an unstable mood for our entire 35 years of marriage.
That is a tough one Jenny. Older men do not get FND as much, but are the most "entrenched" cases when they do. I totally understand his frustration about a psychologist. A multimodal approach is good here, but a neurological approach could help, and the chiari malformation (structural issue) may well need to be addressed more. Matt.
Everything I've come to believe my CFS/ME (since the 1980s) is, in one lecture. Extraordinary! Fasting/keto seems to lower inflammation and brain fog which is always a good thing. Now...to recalibrate the brain.... :)
Hello Anne, thanks. 40 or so years is a very long time, which makes any attempts at recalibration much more difficult. If you want to explain a bit more about the symptoms to me at email (matthewclphillips@metabolicneurologist.com) I might be able to help guide you better that way. Kind regards, Matt.
I've been trying to get my husband diagnosed for the past 3 years. He has all of the symptoms of this disorder and it surprised me. The only thing our doctors could come up with was Dementia and Parkinsons. He has neither however, they will only consider those. My husband was hospitalized 3 times and had a ton of tests, they all came back normal. This disorder was NEVER brought up although I felt that this could have been psychosomatic. It all started after my husband had bowel surgery 3 years ago..prior to that he could think normally (his cognitive has been affected), drive a car, walk, run, play tennis and play golf. He cannot do any of these any longer. His walking is getting worse and worse over time. My husband is currently getting ECT treatments for severe depression as no medications work for him. I am so upset that I cannot get any help for my husband.
Thank you, Dr. Matt!
Thabk you for this. Coincidentally i grew up in hamilton NZ. My father was a lecturer at waikato university.
Whate the difference between dysautonomia and fnd?
Symptons such as dizziness, brain fog, bladder control and fatigue overlap.
Watching from Fiji 🇫🇯
I had to diagnose myself & tell my neurologist what I had.
I did the same
Curious to know if you've seen intermittent fasting and a ketogenic diet help FND?
Hi! Yes, sometimes, but not as the primary therapy. In my experience the best way to treat is to identify the subconscious processing problem and recalibrate the brain. Kind regards, Matt.
@ Ok, thank you! I think Dr. Palmer’s Brain Energy approach is such an effective treatment for mood disorders, I wondered if it would help people experiencing that + FND.
@@julieoneofonebillion All good. The brain can, through interoceptive predictions, most likely modulate/control the autonomic nervous system, metabolism/mitochondria, and immune systems at a basic level, which means that abnormal brain processing could lead to these metabolic and other changes. So metabolic therapies could certainly help in theory. However, the primary treatment would still be to recalibrate the brain. Matt.
@ Thank you so much for explaining!
Thank you so much. I’ve been recently diagnosed with FND by Mayo Clinic. Most of the stuff I’ve seen on line and TH-cam are years old. This is very recent and you’ve provided a good description and explanation as I am now trying to navigate this new psychological and neurological world as I understand and can apply it to my life. I will check out those resources to get more information and understanding on the subject. I am not a medical professional and a lot of this is over my head…but I am able to glean a few kernels of knowledge to aid in my diagnosis
Thank you for raising awareness of FND. Having struggled with it for two years, I realize the huge need to elevate the discussion within the medical community. We need support! Stronger Together ⭐🫶