I am a (child) neurologist and I just want to say thank you to you for the exposure you're giving to FND. I know as a field neurologists often drop the ball especially with functional concerns but I just want you to know that I recognize your struggles are valid and the fact that you persist is a sign of your strength. You're doing an amazing thing, helping so many people and I am just impressed. Thank you.
@@Nagaash Is FND more of a psychiatric disorder? I work in healthcare, but have only recently heard of FND. Is this more common in children or young adults?
I am a student, and I have a brain disorder that causes me to have seizures in class almost every other day, my dad had the same problem but his seizures are a bit different from mine, and he got his due to a brain surgery. I stumbled upon this video and I had one a few hours ago in the middle of a room full of kids. I haven’t seen or heard of any one who has the seizures like I do, that’s not my dad. Your video has made me feel connected, and valid. Thank you so much.
I was just wondering if you'd be able to make a full video just giving information on FND and what kind of feelings you get when you have your seizures? If that's an uncomfortable topic for you and you don't want to, that's completely understandable. Thank you so much for everything that you already have done and for your service to this world. You make it easier for people to understand and you don't get enough credit for your work
Congrats on the award. I was diagnosed with FND in my early twenties. (I’m now late 30s). I also have circulation issues/conditions, nerve conduction issues, absence seizures, occasional tics, a sleep disorder they can only describe as ‘like narcolepsy’, cataplexy and several other orthopaedic and immunology issues. It DOES get better. Because every day that we wake up and manage some kind of normal function, is a win. Thanks for openly sharing your journey to educate the younger generations. Literally nobody barely knew about anything when I was diagnosed. It was quite terrifying. But it’s only now that I know that I didn’t need to be scared. You’re doing wonderful. Happy to have come across your videos. ❤
Im a Disabled Veteran in a wheelchair. I feel honored to have found your channel. You brighten my day as you share your life struggles. Blessings to you and may you find joy in your journey 💗
Wow. I was diagnosed by a neurologist with tourette syndrome but i feel like those seizures are extrememy familiar to me. The way you breath like you're lifting the whole word, the sudden but predictable seizures that for me people associate with lack of sleep...Thank you so much, hope one day i'll have words to put on all of that ❤
I really hope you win the award!! You have made such a difference in my life dealing with a couple unexplained (to this day) illnesses. Hope you're having an alright day! And my god your school has good music tech facilities. Mine were awful 😂
This was super interesting to watch. You obviously know a lot about how you deal with it and it was super informative! I have an out-of-school friend who has absence seizures so it was helpful to see what they might go through. Keep going and being amazing lovely!
I've been struggling with complications from a TBI I got in a car accident a few years ago and just found your channel tonight after feeling like crap for not getting everything done that I wanted to. I'm very type A personality and a perfectionist so the issues from my TBI making my old standards just not something I can realistically manage anymore is something I beat myself up about a lot and having you say it's OK to rest just did something for me so thank you. I'm also an animal science major so not a lot of ppl in my area of study really seem to get why I struggle as much as if I was like in engineering or something idk... or like why there are days I'm comfortable working with larger animals and days I'm not as comfortable (my emotional regulation was heavily impacted so if I'm already stressed I'm more prone to explosive episodes which the animals pick up on and it can make things dangerous for everyone involved, ie if the cows I work with get spooked, they can trample eachother or anyone near them because they're scared of my strong emotions and when I impact them like that I feel even worse and it's a whole cycle) I just gotta remember to take it a day at a time and continue to work on improving myself through therapy and coping methods so that I can be able to rationalize my emotions in the moment instead of breaking down and screaming and crying all at the same time 😅
My best friend fainted in music of dehydration, and everyone saw her and assumed she had a seizure. The next day everyone spread rumors abt her having a seizure, this obviously upset me because she texted me the same day of her fainting that it was just dehydration, and I even told people but they kept assuming. So this video reminded me of that situation. (My best friend is OKAY! It’s was a month ago.) but thank you for making this video! 😊❤
Awh,that’s so upsetting,I hate how people just jump to conclusions without looking more into things,I’m glad you were there for her and she told you that she just fainted and it wasn’t a seizure.❤
It’s amazing that you share your story, I started having seizures, mostly tonic chronic seizures in September 2021. It came out of nowhere and massively effected me because I would get up to 7 big seizures every single day. I am so glad that you are showing how it affects you so I can have someone to relate to! I hope you are okay ❤
Thank you for this I have FND and this has been happening to me a lot lately and when I’m out with my children and I didn’t know what was going on. I hope your having a great weekend 🤗💕
I have FND as well. Your channel has brung me so much comfort since I got diagnosed and is making me think of making my own channel. Thank you for spreading awareness 🫶🏻
I appreciate you sharing this video! I also struggle with FND seizures and haven’t met anyone with them! I have experienced exactly what has happened in your video so many times I can’t count. Thank you for being brave enough to share. It makes me feel less alone! You are so brave!
Please try to do "hyperventilating" breathing when it's going like this ❤❤❤❤❤❤❤❤ I wrote it several times!!! Please! This "hypertension" helps me and another one person!
Tysm for all of your videos! You not only help make people aware but truly teach others throughout your videos. I am extremely sorry about you having to deal with these conditions
I just voted for you. You are so strong to be able to stay calm in those situations! I am so proud of you! I also have POTS... It really is a struggle. But just seeing how strong your mental stability is during hard days makes me feel like I can also do hard things! Thank you for being in this world and sharing your experiences with the world! I hope you can live a long and happy life! Keep being a beam of light on this seemingly dark world! With love❤, A Fellow Nero-Divergent Person
Thank you so much for sharing this video! I have been battling FND for 17 years. A typical day for me can look exactly like what you just showed in this video. It has been a very isolating diagnosis because most people have never heard of FND. I constantly have to explain my disorder to friends, family, coworkers, or anyone who sees me having a seizure. I have felt so much shame for being “different,” and I spent many years trying to keep my FND a secret. THANK YOU for being willing to share this with the world. You are helping me reframe my beliefs… if you can confidently share your FND with the world, maybe I don’t need to be so ashamed of my FND. Thank you.
I’m really glad you make these videos, they help me better understand why and how seizures and things happen. I never really understood it when I was younger but ever since I found your channel I’ve been way more understanding when it comes to that kind of stuff. ❤
You are a great inspiration to many people and I am very glad people are realizing it. Congratulation and I send my prayers as I hope more and more for you. You deserve it. I smiled and teared up and smiled again all in under a minute. Hope all is well rgrds
Your amazing Zara I know on these days it can get hard but like you said tomorrow is a new day and with all your fans you can get through it but I know it's really hard and I hope tomorrow is easier then today was
Damn, you go through so much! You are such a strong person. And you are absolutely GORGEOUS! Also, congratulations for the nomination! I already voted for you
this was actually really helpful for me omg. i have fnd too but i’ve only been diagnosed for about 6 months and i’m still very much learning how to deal with it all. i have drop attacks and seizures pretty often but i always feel so anxious about it, as if it’s wrong to do or that i’m faking (lots of ocd too lmao). but seeing you have the same symptoms and the same reaction makes me feel so much better. thank you xoxoxox
Hi Zara, Thank you for sharing your experiences. It really helps others to understand your particular neurodivergency. I have severe sleep apnea, and when my cpap/bipap therapy is not working correctly, I can get very sleep deprived. That's when the weird stuff can happen for me. I am an artist, and I have often found myself falling asleep mid-drawing, whether I am pencilling or inking. It is much easier to fix the resulting snafoos when I am working on my iPad rather than using traditional materials. Your determination to continue onward and take time for self-care when needed is inspiring and comforting to me.
Zara you're so pretty! You have my full support. I recently found out that I have a few tics of my own. I never really noticed them until I started having vocal tics. It's definately worse than it use to be. Apparently I've had motorized tics when I was little. I happen to have tourettes in my family. My 9 yo brother has tourettes himself.
Hey Zara thank you so much for sharing this. I have a lot of absent and grand mal seizures as well as tourettes. I’m still in the phase where they seem like a big deal. So watching you handle it so gracefully is really helpful to me and I greatly appreciate it. I’ll try not to be so scared now.
as someone with adhd, you are very inspiring to me. i often find my self feeling like I physically CANT do my work, but you still do with so much more going on. thank you for sharing all you do!
I’m also a university student and have recently been diagnosed with FND, but I don’t experience the blackout / seizure symptoms. However I just wanted to say thank you for showing us this! Makes me feel a little less alone ❤. I’m always worried that with such a variable condition, it can get worse or better so seeing you gives me a lot of confidence for the future and that I’ll be able to continue my studies and learn how to best manage this❤️❤️
Hi, I just wanted to say thank you i saw one of your video a while ago but it stayed with me for some reason and about a week ago had a seizure in class and was hospitalized and diagnosed with FND so thank you for being so openen about and spreading awareness.
what an incredibly sweet young lady, sharing an insight into how her condition affects her daily life, no doubt an inspiration to those who suffer the same or similar symptoms. thank you for sharing, and very interesting to watch, I will be following :)
I am a 13 year old with POTS and FND aswell, I watch you videos to make myself know that I am not alone. I wear compression socks for my POTS and they seem to help. I came across your channel a few weeks ago and I watch it whenever I feel hopeless and upset I watch you and you make me feel better. Thank you ❤
Thank you for documenting these conditions and bringing more awareness to them. Often times, it is difficult to explain what is happening because it is so stigmatized. You are wonderful! (P.S. That is such an amazing mixing console right there, I love nerding out with cool tech!)
it's always hard for me to watch you struggling with your condition Zara but i always learn something new from your videos, your job of awareness is awesome ❤🙏🏻 you are probably helping so many people out there that are struggling with their conditions as well, and i bet this is so important for every single one of them, either to understand better their conditions or just to feel that they have someone who represents them 🙏🏻❤i hope you are feeling better already and had/are having a good weekend, have a good week as well Zara, take care ❤🙏🏻
@@DoeDoKu in short, with an eeg- but someone who is spacing out will respond to their name being called/clapping/waving a hand in front of their face/etc. An absence seizure is lights off nobody home- it's like a 10 sec time jump. Oftentimes they're not noticed- hence the colloquialism "staring spells." Though there may be automatisms like lip smacking and eye fluttering, but those features are not requirements. If talking, the person may stop speaking during the middle of a word without any stuttering and pick up seconds later as if nothing happened, without any awareness a pause had taken place. And because they're generalized, you have no consciousness/awareness/recollection of the event unless someone notices, you're watching a clock face, or you have a sudden (snap-second) awareness that time has passed (suddenly crashed car, dropped something, 5 paces behind/lost a group, etc). Atypical onset absence seizures can be associated with impaired awareness rather than loss of consciousness and have a slightly longer course. The experience can also differ depending on where in the brain the seizure is originating from. Also, absence seizures can be so innocuously appearing/difficult to notice due to their length and lack of outward signs that people can go years without diagnosis. I am not a specialist so I recommend reading the Epilepsy Foundation's website if you are interested in learning more.
@@SageLlamassince this is FND, not epilepsy, I don't think anything would show up on an EEG. I have FND and have had episodes while hooked up to a V-EEG with no abnormalities found. FND is a generic term for something presenting as a neurological disorder but it isn't evidenced by any testing.
Be well, Zara. I pray your health improves. Thank you for sharing your health struggles so that people can better understand. We need more understanding of disability in our world.
Thank you for this video, this helps me understand a lot of what my friend is going through, she has tics too, she says they can be painful at times because she has a lot of the head movements and clucking ones, i dont really know how to help her feel better so usually i just talk with her to try and help distract her from them but it dosent seem to help much. Thank you for this video :)
i totally simpythis with you zara i have funtional tic and functional neurological disorder aswell where i get non epileptic sizures aswell and sometimes with get weak sore legs im here for you girl you can do this you got this girl i started watching you recently seeing the tics but just today i saw that you also had fnd and i almost cried for you in knowing how and what you have to go through cause i go through it myself keep moving forward girlly you got this
Hi Zara! I have just found your channel! I have recently been diagnosed with FND! I am a woman in my sixties! No one seems to know much about it! I sometimes go space and then shake and sometimes feel like I’m going to faint , however someone always catches me! I’ve had a couple of non epileptic seizures! I’m trying to see a specialist! There is not many people who specialise in this! You are truly an inspiration! Take care! Peace and Blessings to you and yours from Australia.
I've been trying to explain this to others for a while. And Friday I received my diagnosis, but I'm just seeing this today. I wouldn't have known what to look or video on my own since I didn't know what it was. Thank you for your strength and willingness to share your journey.
You are such an inspiration to me as I have my own things that I have to deal with but for a long time I felt like I was alone but when I discovered your chanel I could actually relate to you and see that I wasn't alone. ❤❤❤
This made me cry... I just recently got told i might have FND by my new doctor after 8 years of unexplainable seizures and fainting spells. Everything you showed was literally everything I've been experiencing but had no way to express to others since a young age. Thank you so much for sharing, now i can use this to explain to my loved ones (i have difficulty explaining it and it makes me anxious). Thank you so much ❤
I have voted for the award you really help spread awareness and I did in the message I wrote for the vote. I have hardships too it may not be tics or NPD or Tourette’s but it is visual impairment and I have so many hardships too but not just that I have a high chance of ADHD, OCD , and Autism. Thank you Zara and keep making videos.
Thank you for this, my middle son is under investigation for FND and with you showing your bad days helps for me to show the drs the things that happen with him, to me his mother these are almost normal things that we have strategies for that we don't even notice the small seizures any more. Thank you
I have severe anxiety & panic disorder. An I feel like I can't deal sometimes. But you have way more things going on. & are still very active & handle it super well. You also remain calm. You do such a great job with the issues you have. I like to think I'm a fairly strong person, but I couldn't handle anything near what you do! Awesome job .
I don't have FND but I do have a re-occurring condition that causes non-epileptic seizures. I'm quite young and seeing other people similar to me helps to let me know that I'm not alone. its especially hard when people who don't have what you have think you are lying or just attention seeking. thank you for spreading awareness, you're an inspiration
I really relate with that. I have FND at 17 and also have episodes in class, and often I look and feel insane because of my sudden erratic movements, and this dopey smile plastered onto my face, with my eyes rolling all around. even though im conscious, people will not talk to me, only the people around me, and think I must be crazy or I'm faking it for pity. I also tell myself I'm faking it because I don't quite understand why I act the way I do, so it's hard to find validation. I hate the way our brains fuck with us.
@@laser6170 Yes! And they always happen at the worst possible times. Sometimes i think “why can’t i just be normal” just because all the other kids in my grade aren’t like me. I try to do my best to avoid having seizures in class because it would be mad embarrassing and all that. Glad someone relates to this :)
Aw its so sad to see you struggling so much here sending much love to you you cope so well with your conditions 💖💖♥️♥️❤️❤️♥️❤️♥️❤️♥️♥️❤️❤️♥️❤️♥️♥️💖❤️♥️❤️💖❤️❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️♥️❤️💖❤️❤️💖❤️💖❤️💖❤️♥️❤️💖❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️💖❤️💖❤️💖💖❤️❤️💖❤️💖💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖💖❤️❤️💖
Thank you for posting these kinds of videos it gives me something I can show the people around me I have had epilepsy since I was 5 I’m naw 30 and I still have them but those around me to notice my episodes not to mention how often a fainting spell looks like one is sleeping so agin thank you for making something I can show and explain to them so thay notes when it’s happening more
Omg first time I’ve seen someone else with FND other than myself - obviously I know there are other people with the condition but still felt like lonely not seeing others irl and then this video pops up in recommended! Haha definitely feeling less alone :)
I think it's really cool that your in a music tech class!!! I myself am really into music and I find it absolutely amazing. I just found your channel and I love all your videos 😊I heard that you had a new song coming out and I thought that was WAY TOO COOL 🤘 I always wanted to have some kind of career in music but I always thought that I would never get far in life. But I just wanted to know what inspired you to take a music tech class and compose songs? Again, love your channel and your videos😊😊
hey! thank you for your comment :) I've always loved music and have written little songs ever since I can remember (though they weren't quite as good when I was little🤣) so when I saw the studios in my college I knew that studying music tech felt right for me!
Wow, you are so strong Zara, I could not see me faring well with the loss of control, in fact I would be a total disaster. You're a real live inspiration, you go girl! 💙💙
Thank you so much for sharing this, it is not easy sharing vulnerable moments like this. I hope it's okay to ask, and you absolutely don't have to answer at all, do your oxygen levels ever drop before/during/after any of this? I just thought I'd mention it as you struggle with your breathing/catching your breath, they might drop and maybe it could be useful to carry a small oxygen container with you? I'm not a medical professional at all, so please ask yours first! I hope you and anyone reading this has a wonderful day
I'm really glad you talk about fnd, i feel like there is so little information aside from like medical information intended for medical practitioners (ie very clinical and boring). i feel like there's such a stigma that its hard for those of us who actually have it to talk about it, esp publicly
I’m sorry that happens to you it must suck because it looks like it’s really hard ti do things with your ticks and the FND thing but it seems like you do a good job maintaining everything ❤❤❤ you’re amazing Zara
Watching this video makes me feel seen. I have FND after a car accident. My seizures look exactly like yours. I am not dealing with ticks though. Your effort to show your world is so important!
I found your channel by accident, but I'm glad I did, my younger sister also has seizures, mostly the absence one, she has them since she was a baby, she also has sleep apnea, hypotonia, scoliosis, shorter legs tendons and might be on the autism spectrum. I might show her, because sometimes she gets self-conscious, that she is not alone, she is now 11-years-old and she knows that she is not like her friends. Since she started taking her medication, they are not as frequent as they were before, thank God that we live in Brazil and here we have free health care and medication for her, she even have free transportation, because her specific treatment is in a city 2 hours away from our house. Seizures run in our family, but the only person in our family like her lives in another state.
I dont have any conditions of the sort but my sister does. She used to have really bad tic attacks but doesn't anymore. This is supposed to help people and tell them that they are not alone in this. I'm not a professional but if anyone needs someone to talk to,don't be afraid!
When I come out of my absent seizures I'm always disoriented and confused, I generally forget where I am and dont know what im doing. Its kinda comforting seeing someone have similar episodes tbh
As a person with OCD, severe, I can relate to the tingly arms thing. I have to wear a cast on my wrist to school, I don’t know what it is and why it’s there but I’m very sorry for everyone who has OCD, Tourette’s, or anything such.
I love how she makes videos on this when for a lot of people it ccan be an uncomfortable topic. It makes you realize how hard it can be for people with these types of ddisorders/illnesses. And i bet a lot of people who have these but dont know what they are and stumbled across her youtube are grateful to now know what they are.
Hi Zara. I’ve just watched this video (2024) and I want to say that I think you are a wonderful girl and so deserving of the award. I’m retired now, but during my long teaching career I have worked with many students 5yrs up to 21yrs old that suffered regular seizures in their daily life. I learned very quickly how to support these students and not panic. Your videos can only do good things for many people. My best wishes go out to you Zara and I’m wishing you well in your music. Stay strong young lady. 👍
Hello I have had seizure since I was 2 I am now 63 I don't drive anymore but I still work full time I have been at the same place now for 34 years ...when I was in school I would have seizures and need a bathroom to pee my teachers wouldn't let me go so I just got up and went anyway to save getting wet...this is nothing easy to live with I have a wife and 2 kids who help me when I need it just keep up your good work you are doing and never give up that is what I told myself
zara, you are truly a light in this world and i’m so grateful you’re here
I agree a bunch with you
I agree u go girl! Never give up God loves u!
I am a (child) neurologist and I just want to say thank you to you for the exposure you're giving to FND. I know as a field neurologists often drop the ball especially with functional concerns but I just want you to know that I recognize your struggles are valid and the fact that you persist is a sign of your strength. You're doing an amazing thing, helping so many people and I am just impressed.
Thank you.
What do you think about her calling her FND spells as "seizure" - when they are actually PNEE.
@@Nagaash Is FND more of a psychiatric disorder? I work in healthcare, but have only recently heard of FND. Is this more common in children or young adults?
@@mcqueenXOFND is not psychiatric. It’s a problem with the functioning of the brain.
i’m so sorry you have to go through days like this, you are a massive inspiration to so many people ❤
I am a student, and I have a brain disorder that causes me to have seizures in class almost every other day, my dad had the same problem but his seizures are a bit different from mine, and he got his due to a brain surgery. I stumbled upon this video and I had one a few hours ago in the middle of a room full of kids. I haven’t seen or heard of any one who has the seizures like I do, that’s not my dad. Your video has made me feel connected, and valid. Thank you so much.
Sorry to hear that my grandma had convulsions alot
I'm so sorry for that. Hope your doing well :)
I was just wondering if you'd be able to make a full video just giving information on FND and what kind of feelings you get when you have your seizures? If that's an uncomfortable topic for you and you don't want to, that's completely understandable. Thank you so much for everything that you already have done and for your service to this world. You make it easier for people to understand and you don't get enough credit for your work
i’d love to! ❤
I one long time ago i know it feels dont Worry
@@Zara_Beth hi Zara! I have Tourrets too and I love ur channel! Also could you please tell me what FND means?
Congrats on the award. I was diagnosed with FND in my early twenties. (I’m now late 30s). I also have circulation issues/conditions, nerve conduction issues, absence seizures, occasional tics, a sleep disorder they can only describe as ‘like narcolepsy’, cataplexy and several other orthopaedic and immunology issues.
It DOES get better. Because every day that we wake up and manage some kind of normal function, is a win.
Thanks for openly sharing your journey to educate the younger generations. Literally nobody barely knew about anything when I was diagnosed. It was quite terrifying. But it’s only now that I know that I didn’t need to be scared. You’re doing wonderful. Happy to have come across your videos. ❤
Im a Disabled Veteran in a wheelchair. I feel honored to have found your channel. You brighten my day as you share your life struggles. Blessings to you and may you find joy in your journey 💗
thank you for your service ❤
I’m so sorry you have to deal with this and you deserve this nomination. Much love ❤️❤️❤️❤️
Wow. I was diagnosed by a neurologist with tourette syndrome but i feel like those seizures are extrememy familiar to me. The way you breath like you're lifting the whole word, the sudden but predictable seizures that for me people associate with lack of sleep...Thank you so much, hope one day i'll have words to put on all of that ❤
I really hope you win the award!! You have made such a difference in my life dealing with a couple unexplained (to this day) illnesses. Hope you're having an alright day! And my god your school has good music tech facilities. Mine were awful 😂
I googled information about this diease it is horrible
This was super interesting to watch. You obviously know a lot about how you deal with it and it was super informative! I have an out-of-school friend who has absence seizures so it was helpful to see what they might go through. Keep going and being amazing lovely!
love you bestie, we are gonna have amazing lives despite FND, you’re so strong 🩷
I've been struggling with complications from a TBI I got in a car accident a few years ago and just found your channel tonight after feeling like crap for not getting everything done that I wanted to. I'm very type A personality and a perfectionist so the issues from my TBI making my old standards just not something I can realistically manage anymore is something I beat myself up about a lot and having you say it's OK to rest just did something for me so thank you. I'm also an animal science major so not a lot of ppl in my area of study really seem to get why I struggle as much as if I was like in engineering or something idk... or like why there are days I'm comfortable working with larger animals and days I'm not as comfortable (my emotional regulation was heavily impacted so if I'm already stressed I'm more prone to explosive episodes which the animals pick up on and it can make things dangerous for everyone involved, ie if the cows I work with get spooked, they can trample eachother or anyone near them because they're scared of my strong emotions and when I impact them like that I feel even worse and it's a whole cycle) I just gotta remember to take it a day at a time and continue to work on improving myself through therapy and coping methods so that I can be able to rationalize my emotions in the moment instead of breaking down and screaming and crying all at the same time 😅
Congratulations on your nomination! That's gotta be pretty crazy. Thank you for making videos.
My best friend fainted in music of dehydration, and everyone saw her and assumed she had a seizure. The next day everyone spread rumors abt her having a seizure, this obviously upset me because she texted me the same day of her fainting that it was just dehydration, and I even told people but they kept assuming. So this video reminded me of that situation. (My best friend is OKAY! It’s was a month ago.) but thank you for making this video! 😊❤
Awh,that’s so upsetting,I hate how people just jump to conclusions without looking more into things,I’m glad you were there for her and she told you that she just fainted and it wasn’t a seizure.❤
It’s amazing that you share your story, I started having seizures, mostly tonic chronic seizures in September 2021. It came out of nowhere and massively effected me because I would get up to 7 big seizures every single day. I am so glad that you are showing how it affects you so I can have someone to relate to! I hope you are okay ❤
Thank you for this I have FND and this has been happening to me a lot lately and when I’m out with my children and I didn’t know what was going on. I hope your having a great weekend 🤗💕
I'm so sorry you have to go through this but your so strong and brave. Stay safe and have a wonderful week
I hope your doing alright even with everything you go through 💜
I have FND as well. Your channel has brung me so much comfort since I got diagnosed and is making me think of making my own channel. Thank you for spreading awareness 🫶🏻
Your so pretty and I’m so sorry that this happens to you, I experienced it sometimes but I’m ok ❤
I’m so sorry you have to go through this, lovely. Hope you’re okay now. ☺️💛
I love your videos And I wish one day we can meet up and be best friends
I appreciate you sharing this video! I also struggle with FND seizures and haven’t met anyone with them! I have experienced exactly what has happened in your video so many times I can’t count. Thank you for being brave enough to share. It makes me feel less alone! You are so brave!
zara, i’m so sorry that you go through this but you are so strong and i would never think i would go as far as you. thank you for your content
Please try to do "hyperventilating" breathing when it's going like this ❤❤❤❤❤❤❤❤ I wrote it several times!!! Please!
This "hypertension" helps me and another one person!
Tysm for all of your videos! You not only help make people aware but truly teach others throughout your videos. I am extremely sorry about you having to deal with these conditions
I'm so sorry you have to go through this everyday man. If you need any support, just know we're here for you, ok?:)
I just voted for you. You are so strong to be able to stay calm in those situations! I am so proud of you! I also have POTS... It really is a struggle. But just seeing how strong your mental stability is during hard days makes me feel like I can also do hard things! Thank you for being in this world and sharing your experiences with the world! I hope you can live a long and happy life! Keep being a beam of light on this seemingly dark world!
With love❤,
A Fellow Nero-Divergent Person
Thank you so much for posting these.
You absolutely deserved that award. Your ability to deal with your conditions is a light to a lot of us.
I love how bright and sunny you make people feel! I hope your conditions get better, have a lovely day!
Thank you so much for sharing this video! I have been battling FND for 17 years. A typical day for me can look exactly like what you just showed in this video.
It has been a very isolating diagnosis because most people have never heard of FND. I constantly have to explain my disorder to friends, family, coworkers, or anyone who sees me having a seizure. I have felt so much shame for being “different,” and I spent many years trying to keep my FND a secret. THANK YOU for being willing to share this with the world. You are helping me reframe my beliefs… if you can confidently share your FND with the world, maybe I don’t need to be so ashamed of my FND. Thank you.
I’m really glad you make these videos, they help me better understand why and how seizures and things happen. I never really understood it when I was younger but ever since I found your channel I’ve been way more understanding when it comes to that kind of stuff. ❤
Hi, another great video. Wish you all the best and I have voted for you too. Take it easy ! x
You are a great inspiration to many people and I am very glad people are realizing it. Congratulation and I send my prayers as I hope more and more for you. You deserve it. I smiled and teared up and smiled again all in under a minute. Hope all is well rgrds
Your amazing Zara I know on these days it can get hard but like you said tomorrow is a new day and with all your fans you can get through it but I know it's really hard and I hope tomorrow is easier then today was
Damn, you go through so much! You are such a strong person. And you are absolutely GORGEOUS! Also, congratulations for the nomination! I already voted for you
this was actually really helpful for me omg. i have fnd too but i’ve only been diagnosed for about 6 months and i’m still very much learning how to deal with it all. i have drop attacks and seizures pretty often but i always feel so anxious about it, as if it’s wrong to do or that i’m faking (lots of ocd too lmao). but seeing you have the same symptoms and the same reaction makes me feel so much better. thank you xoxoxox
you’re not alone ❤
Watching this during my 6 hour EEG test.
2 hours in and 4 to go.
Thank you for doing all you do ♥️
Hi Zara,
Thank you for sharing your experiences. It really helps others to understand your particular neurodivergency.
I have severe sleep apnea, and when my cpap/bipap therapy is not working correctly, I can get very sleep deprived. That's when the weird stuff can happen for me.
I am an artist, and I have often found myself falling asleep mid-drawing, whether I am pencilling or inking. It is much easier to fix the resulting snafoos when I am working on my iPad rather than using traditional materials.
Your determination to continue onward and take time for self-care when needed is inspiring and comforting to me.
Zara you're so pretty! You have my full support. I recently found out that I have a few tics of my own. I never really noticed them until I started having vocal tics. It's definately worse than it use to be. Apparently I've had motorized tics when I was little. I happen to have tourettes in my family. My 9 yo brother has tourettes himself.
Good on you girl. Seem like your parents have done an amazing job, great character great human. I hope you live a happy life genuinely
Hey Zara thank you so much for sharing this. I have a lot of absent and grand mal seizures as well as tourettes. I’m still in the phase where they seem like a big deal. So watching you handle it so gracefully is really helpful to me and I greatly appreciate it. I’ll try not to be so scared now.
as someone with adhd, you are very inspiring to me. i often find my self feeling like I physically CANT do my work, but you still do with so much more going on. thank you for sharing all you do!
I’m also a university student and have recently been diagnosed with FND, but I don’t experience the blackout / seizure symptoms. However I just wanted to say thank you for showing us this! Makes me feel a little less alone ❤. I’m always worried that with such a variable condition, it can get worse or better so seeing you gives me a lot of confidence for the future and that I’ll be able to continue my studies and learn how to best manage this❤️❤️
Hi, I just wanted to say thank you i saw one of your video a while ago but it stayed with me for some reason and about a week ago had a seizure in class and was hospitalized and diagnosed with FND so thank you for being so openen about and spreading awareness.
I know tics aren’t supposed to be funny but when she randomly said “cheese” at 0:15 it caught me off guard
Didnt know seizures can be like this. Looks like a lot of work to go through the day with this
what an incredibly sweet young lady, sharing an insight into how her condition affects her daily life, no doubt an inspiration to those who suffer the same or similar symptoms. thank you for sharing, and very interesting to watch, I will be following :)
I am a 13 year old with POTS and FND aswell, I watch you videos to make myself know that I am not alone. I wear compression socks for my POTS and they seem to help. I came across your channel a few weeks ago and I watch it whenever I feel hopeless and upset I watch you and you make me feel better. Thank you ❤
Thank you for documenting these conditions and bringing more awareness to them. Often times, it is difficult to explain what is happening because it is so stigmatized. You are wonderful! (P.S. That is such an amazing mixing console right there, I love nerding out with cool tech!)
it's always hard for me to watch you struggling with your condition Zara but i always learn something new from your videos, your job of awareness is awesome ❤🙏🏻 you are probably helping so many people out there that are struggling with their conditions as well, and i bet this is so important for every single one of them, either to understand better their conditions or just to feel that they have someone who represents them 🙏🏻❤i hope you are feeling better already and had/are having a good weekend, have a good week as well Zara, take care ❤🙏🏻
I never knew there was such a thing as absence seizures i always thought siezures were just shaking very rapidly
My thoughts exactly! I'm really curious how you can tell spacing out from absence seizures
@@DoeDoKu in short, with an eeg- but someone who is spacing out will respond to their name being called/clapping/waving a hand in front of their face/etc. An absence seizure is lights off nobody home- it's like a 10 sec time jump. Oftentimes they're not noticed- hence the colloquialism "staring spells." Though there may be automatisms like lip smacking and eye fluttering, but those features are not requirements. If talking, the person may stop speaking during the middle of a word without any stuttering and pick up seconds later as if nothing happened, without any awareness a pause had taken place. And because they're generalized, you have no consciousness/awareness/recollection of the event unless someone notices, you're watching a clock face, or you have a sudden (snap-second) awareness that time has passed (suddenly crashed car, dropped something, 5 paces behind/lost a group, etc). Atypical onset absence seizures can be associated with impaired awareness rather than loss of consciousness and have a slightly longer course. The experience can also differ depending on where in the brain the seizure is originating from. Also, absence seizures can be so innocuously appearing/difficult to notice due to their length and lack of outward signs that people can go years without diagnosis. I am not a specialist so I recommend reading the Epilepsy Foundation's website if you are interested in learning more.
@@SageLlamassince this is FND, not epilepsy, I don't think anything would show up on an EEG. I have FND and have had episodes while hooked up to a V-EEG with no abnormalities found. FND is a generic term for something presenting as a neurological disorder but it isn't evidenced by any testing.
@@DoeDoKuThis might not be for everyone, but if you look at them you can kind of tell if part of their body is shaking and they’re just not moving.
Be well, Zara. I pray your health improves. Thank you for sharing your health struggles so that people can better understand. We need more understanding of disability in our world.
Thank you for this video, this helps me understand a lot of what my friend is going through, she has tics too, she says they can be painful at times because she has a lot of the head movements and clucking ones, i dont really know how to help her feel better so usually i just talk with her to try and help distract her from them but it dosent seem to help much. Thank you for this video :)
I am so sorry for what you have to go through. God bless ❤🙏🏻❤
i totally simpythis with you zara i have funtional tic and functional neurological disorder aswell where i get non epileptic sizures aswell and sometimes with get weak sore legs im here for you girl you can do this you got this girl i started watching you recently seeing the tics but just today i saw that you also had fnd and i almost cried for you in knowing how and what you have to go through cause i go through it myself keep moving forward girlly you got this
I always find these things interesting. Even tho you cannot control what goes on your brave. Thank you for always sharing these moments ❤️
I can’t begin to imagine life like that and I thought my autism was bad 😢
Hi Zara! I have just found your channel! I have recently been diagnosed with FND! I am a woman in my sixties! No one seems to know much about it! I sometimes go space and then shake and sometimes feel like I’m going to faint , however someone always catches me! I’ve had a couple of non epileptic seizures! I’m trying to see a specialist! There is not many people who specialise in this! You are truly an inspiration! Take care! Peace and Blessings to you and yours from Australia.
I’m so supportive of you I’ve been watching you for almost 1 years
I've been trying to explain this to others for a while. And Friday I received my diagnosis, but I'm just seeing this today. I wouldn't have known what to look or video on my own since I didn't know what it was. Thank you for your strength and willingness to share your journey.
You are such an inspiration to me as I have my own things that I have to deal with but for a long time I felt like I was alone but when I discovered your chanel I could actually relate to you and see that I wasn't alone. ❤❤❤
Girl you are a star 🌟 I love you so much and I know you can get through this and remember we r all here with you❤
This made me cry... I just recently got told i might have FND by my new doctor after 8 years of unexplainable seizures and fainting spells. Everything you showed was literally everything I've been experiencing but had no way to express to others since a young age. Thank you so much for sharing, now i can use this to explain to my loved ones (i have difficulty explaining it and it makes me anxious). Thank you so much ❤
I have voted for the award you really help spread awareness and I did in the message I wrote for the vote. I have hardships too it may not be tics or NPD or Tourette’s but it is visual impairment and I have so many hardships too but not just that I have a high chance of ADHD, OCD , and Autism. Thank you Zara and keep making videos.
I love your videos, I have anxiety and dyslexia. I feel really really bad that you have tics.
I hope you are resting ❤❤❤❤ hugs your way
Thank you for this, my middle son is under investigation for FND and with you showing your bad days helps for me to show the drs the things that happen with him, to me his mother these are almost normal things that we have strategies for that we don't even notice the small seizures any more. Thank you
I have severe anxiety & panic disorder. An I feel like I can't deal sometimes. But you have way more things going on. & are still very active & handle it super well. You also remain calm. You do such a great job with the issues you have. I like to think I'm a fairly strong person, but I couldn't handle anything near what you do! Awesome job .
I don't have FND but I do have a re-occurring condition that causes non-epileptic seizures. I'm quite young and seeing other people similar to me helps to let me know that I'm not alone. its especially hard when people who don't have what you have think you are lying or just attention seeking. thank you for spreading awareness, you're an inspiration
I really relate with that. I have FND at 17 and also have episodes in class, and often I look and feel insane because of my sudden erratic movements, and this dopey smile plastered onto my face, with my eyes rolling all around. even though im conscious, people will not talk to me, only the people around me, and think I must be crazy or I'm faking it for pity. I also tell myself I'm faking it because I don't quite understand why I act the way I do, so it's hard to find validation. I hate the way our brains fuck with us.
@@laser6170 Yes! And they always happen at the worst possible times. Sometimes i think “why can’t i just be normal” just because all the other kids in my grade aren’t like me. I try to do my best to avoid having seizures in class because it would be mad embarrassing and all that. Glad someone relates to this :)
This has opened my eyes so much! Thank you!
P.s. Voted!!🏆🙏🏻
0:16 “Cheese🧀” I love when you said that. It made me laugh.
As someone who has never fainted before in my 21 years of life, I cannot imagine going through this every single day.
Aw its so sad to see you struggling so much here sending much love to you you cope so well with your conditions 💖💖♥️♥️❤️❤️♥️❤️♥️❤️♥️♥️❤️❤️♥️❤️♥️♥️💖❤️♥️❤️💖❤️❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️♥️❤️💖❤️❤️💖❤️💖❤️💖❤️♥️❤️💖❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️♥️❤️💖❤️💖❤️💖💖❤️❤️💖❤️💖💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖❤️💖💖❤️❤️💖
Thank you for posting these kinds of videos it gives me something I can show the people around me I have had epilepsy since I was 5 I’m naw 30 and I still have them but those around me to notice my episodes not to mention how often a fainting spell looks like one is sleeping so agin thank you for making something I can show and explain to them so thay notes when it’s happening more
Omg first time I’ve seen someone else with FND other than myself - obviously I know there are other people with the condition but still felt like lonely not seeing others irl and then this video pops up in recommended! Haha definitely feeling less alone :)
u are so strong girl, keep it going
I think it's really cool that your in a music tech class!!! I myself am really into music and I find it absolutely amazing. I just found your channel and I love all your videos 😊I heard that you had a new song coming out and I thought that was WAY TOO COOL 🤘 I always wanted to have some kind of career in music but I always thought that I would never get far in life. But I just wanted to know what inspired you to take a music tech class and compose songs? Again, love your channel and your videos😊😊
hey! thank you for your comment :) I've always loved music and have written little songs ever since I can remember (though they weren't quite as good when I was little🤣) so when I saw the studios in my college I knew that studying music tech felt right for me!
And I love you!
Zara, your awesome and im so happy you are in this world i feel so sad that you have to go through that
Wow, you are so strong Zara, I could not see me faring well with the loss of control, in fact I would be a total disaster. You're a real live inspiration, you go girl! 💙💙
Thank you so much for sharing this, it is not easy sharing vulnerable moments like this. I hope it's okay to ask, and you absolutely don't have to answer at all, do your oxygen levels ever drop before/during/after any of this? I just thought I'd mention it as you struggle with your breathing/catching your breath, they might drop and maybe it could be useful to carry a small oxygen container with you? I'm not a medical professional at all, so please ask yours first!
I hope you and anyone reading this has a wonderful day
I'm really glad you talk about fnd, i feel like there is so little information aside from like medical information intended for medical practitioners (ie very clinical and boring). i feel like there's such a stigma that its hard for those of us who actually have it to talk about it, esp publicly
I love how you push through it in your life and work through stay strong❤
"I wish you all the happiness. You are strong and beautiful despite your circumstances."
This reminded me of my husband because he has epilepsy. This is sad what you're going through but we're all in this together ❤
I’m sorry that happens to you it must suck because it looks like it’s really hard ti do things with your ticks and the FND thing but it seems like you do a good job maintaining everything ❤❤❤ you’re amazing Zara
Watching this video makes me feel seen. I have FND after a car accident. My seizures look exactly like yours. I am not dealing with ticks though. Your effort to show your world is so important!
I found your channel by accident, but I'm glad I did, my younger sister also has seizures, mostly the absence one, she has them since she was a baby, she also has sleep apnea, hypotonia, scoliosis, shorter legs tendons and might be on the autism spectrum. I might show her, because sometimes she gets self-conscious, that she is not alone, she is now 11-years-old and she knows that she is not like her friends.
Since she started taking her medication, they are not as frequent as they were before, thank God that we live in Brazil and here we have free health care and medication for her, she even have free transportation, because her specific treatment is in a city 2 hours away from our house.
Seizures run in our family, but the only person in our family like her lives in another state.
I dont have any conditions of the sort but my sister does.
She used to have really bad tic attacks but doesn't anymore.
This is supposed to help people and tell them that they are not alone in this.
I'm not a professional but if anyone needs someone to talk to,don't be afraid!
this is so relatable?? omg, it feels so validating to see that my experiences with FND/PNES are so incredibly similar to other people's
I’m so sorry you go through this. My son has been having seizures. He’s about to get tests done to see if he has epilepsy.
When I come out of my absent seizures I'm always disoriented and confused, I generally forget where I am and dont know what im doing. Its kinda comforting seeing someone have similar episodes tbh
As a person with OCD, severe, I can relate to the tingly arms thing. I have to wear a cast on my wrist to school, I don’t know what it is and why it’s there but I’m very sorry for everyone who has OCD, Tourette’s, or anything such.
I love you Zara!!! I’m so proud of you and you are very beautiful ❤❤❤ KEEP GOING! ❤❤❤
I love how she makes videos on this when for a lot of people it ccan be an uncomfortable topic. It makes you realize how hard it can be for people with these types of ddisorders/illnesses. And i bet a lot of people who have these but dont know what they are and stumbled across her youtube are grateful to now know what they are.
I’m so sorry you have to go trough this EVERY DAY.
Hi Zara. I’ve just watched this video (2024) and I want to say that I think you are a wonderful girl and so deserving of the award. I’m retired now, but during my long teaching career I have worked with many students 5yrs up to 21yrs old that suffered regular seizures in their daily life. I learned very quickly how to support these students and not panic. Your videos can only do good things for many people.
My best wishes go out to you Zara and I’m wishing you well in your music. Stay strong young lady. 👍
Hello I have had seizure since I was 2 I am now 63 I don't drive anymore but I still work full time I have been at the same place now for 34 years ...when I was in school I would have seizures and need a bathroom to pee my teachers wouldn't let me go so I just got up and went anyway to save getting wet...this is nothing easy to live with I have a wife and 2 kids who help me when I need it just keep up your good work you are doing and never give up that is what I told myself
I love how you don’t stress having these fainting things and having tics or seizures 😮you’re a true delight on how you don’t struggle or anything else
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