I was diagnosed with fibromyalgia / CFS in 2015, then FND in 2020 after moving to Scotland. What I would say since moving to Scotland from England the treatment, information and encouragement was second to non leaving me with greater knowledge and insightful managing strategies, where I'm now able to have a life again and be more proactive.
This was a really informative lecture about how FND can be treated, hopefully Australian professionals will listen to your research. I also found it sad and confronting in regards to how early death can occur however I understand this as my lifestyle has completely changed in 4 years, going from a completely busy on the go person to an extremely idle, exhausted person
My FND symptoms started a few weeks after my first and only Astrazeneca jab which was mandated for over 60s in Australia. I was walking 7000 steps a day until then that was 2 years ago. Still looking for answers which I may never get. Thank you for this very interesting and informative video.
I'm 69, became disabled from FND at age 62 but it took years to figure out this diagnosis. My symptoms are textbook FND. The more I've learned, the more I've been able to improve my quality of life. I'm a veteran so I've had access to lots of programs and services, mostly focused on PTSD. I wish we had FND informed providers near me like you do in UK. Throughout my ordeal I refused opiates and benzo medications, thankfully. My best results have been from Biofeedback and gentle yoga. Especially the yoga. It was a big leap forward when I realized my body can operate well when controlled by habit thinking, just not with conscious focus of thoughts. Frankly, i thought I was nuts untill I saw some wonderful videos like this one to enlighten my point of view. The more I've learned and thus acquired more of a sense of control, my anxiety levels decreased which lessen the conscious focus. When I can stay calm, my habit thinking controls my movements, at times surprising me. :) It may be controversial but I think cannabis helps because it calms me and distracts my conscious focus. Thank you for this video and reading my comments.
hello, have you already come across with ''the body keeps the score'' bestselling ptsd-book of Bessel Van Der Kolk. A shrink who started of working with veterans. I thought I must mention it to you, he says some people are massively helped with yoga, acting/singing and some with certain drugs. cannabis is controversial. I believe it can really help some people. but other people might get serious issues when trying cannabis even once, myself included./ I wish you best of luck.
Thank you for this video and to Dr Glenn Nielsen particularly. I have diagnosed FND for 14 years and as with most with FND my symptoms have progressed and evolved. I started with paralysis (waist down), and gait issues. This has evolved to less of these symptoms but, more to speech, tremor and facial paralysis. Both before and current problems also affect excretory systems too. Given that I know is that flickering lights and bright white car headlights (or bright white lights in general), trigger my facial paralysis, cognitive reasoning and the closing of my left eye; I have often wondered if a clinically introducing a flickering or white light whilst undergoing a fMRI may help to distinguish what is going on neurologically in greater detail. I also know that heat, inability to take breaks when needed and high stress affects my gait and speech and cognition. I am sure these have already been extensively studied explored but, I am very interested in helping others with FND and helping the advancement of treatment and education. Best wishes and once again, thank you. Dan
My diagnosis came after failed spinal fusion and the shock that came with increased chronic pain and disability leading top drop foot twitcing sensory pain and overload. My treatment was a website and cbt I try everything medication for pain and depression got me out of bed with some ability to face being like this but nothing to really help me and its cost me everything I have a 7 year old son so i continue to fight for him. i cant imagine this going on much longer its been 5 years now and im giving up.
This video was quite helpful and informative however functional symptoms don't always require attention. Especially considering the fact functional symptoms can impact a person 24/7. A functional symptom has no known physical cause and refers to abnormal functioning of the body. Functional symptoms also aren't caused by physical and/or psychological risk factors, those risk factors simply increase the chances of you developing a functional disorder. If those physical and psychological risk factors were truly the "cause" everyone would have functional symptoms. "Psychological trauma is to FND what smoking is to stroke, a risk factor but not the cause." - Professor Jon Stone, Consultant Neurologist and Honorary Senior Lecturer at the dept. of Clinical Neurosciences, University of Edinburgh
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I was diagnosed with fibromyalgia / CFS in 2015, then FND in 2020 after moving to Scotland. What I would say since moving to Scotland from England the treatment, information and encouragement was second to non leaving me with greater knowledge and insightful managing strategies, where I'm now able to have a life again and be more proactive.
I wish all doctors had his pleasant manner
This was a really informative lecture about how FND can be treated, hopefully Australian professionals will listen to your research. I also found it sad and confronting in regards to how early death can occur however I understand this as my lifestyle has completely changed in 4 years, going from a completely busy on the go person to an extremely idle, exhausted person
My FND symptoms started a few weeks after my first and only Astrazeneca jab which was mandated for over 60s in Australia. I was walking 7000 steps a day until then that was 2 years ago. Still looking for answers which I may never get. Thank you for this very interesting and informative video.
I'm 69, became disabled from FND at age 62 but it took years to figure out this diagnosis. My symptoms are textbook FND. The more I've learned, the more I've been able to improve my quality of life. I'm a veteran so I've had access to lots of programs and services, mostly focused on PTSD. I wish we had FND informed providers near me like you do in UK. Throughout my ordeal I refused opiates and benzo medications, thankfully. My best results have been from Biofeedback and gentle yoga. Especially the yoga. It was a big leap forward when I realized my body can operate well when controlled by habit thinking, just not with conscious focus of thoughts. Frankly, i thought I was nuts untill I saw some wonderful videos like this one to enlighten my point of view. The more I've learned and thus acquired more of a sense of control, my anxiety levels decreased which lessen the conscious focus. When I can stay calm, my habit thinking controls my movements, at times surprising me. :) It may be controversial but I think cannabis helps because it calms me and distracts my conscious focus. Thank you for this video and reading my comments.
hello, have you already come across with ''the body keeps the score'' bestselling ptsd-book of Bessel Van Der Kolk. A shrink who started of working with veterans. I thought I must mention it to you, he says some people are massively helped with yoga, acting/singing and some with certain drugs. cannabis is controversial. I believe it can really help some people. but other people might get serious issues when trying cannabis even once, myself included./ I wish you best of luck.
Thank you for this video and to Dr Glenn Nielsen particularly. I have diagnosed FND for 14 years and as with most with FND my symptoms have progressed and evolved. I started with paralysis (waist down), and gait issues. This has evolved to less of these symptoms but, more to speech, tremor and facial paralysis. Both before and current problems also affect excretory systems too. Given that I know is that flickering lights and bright white car headlights (or bright white lights in general), trigger my facial paralysis, cognitive reasoning and the closing of my left eye; I have often wondered if a clinically introducing a flickering or white light whilst undergoing a fMRI may help to distinguish what is going on neurologically in greater detail. I also know that heat, inability to take breaks when needed and high stress affects my gait and speech and cognition. I am sure these have already been extensively studied explored but, I am very interested in helping others with FND and helping the advancement of treatment and education. Best wishes and once again, thank you. Dan
hello, I have similar symtoms and questions as you too./ untilli now I heard it's just my autism getting worse. which doesnt make much sense
Excellent , as an FND patient / most helpful . Thankyou .
My diagnosis came after failed spinal fusion and the shock that came with increased chronic pain and disability leading top drop foot twitcing sensory pain and overload. My treatment was a website and cbt I try everything medication for pain and depression got me out of bed with some ability to face being like this but nothing to really help me and its cost me everything I have a 7 year old son so i continue to fight for him. i cant imagine this going on much longer its been 5 years now and im giving up.
This is great!.. Thanks for posting.
This video was quite helpful and informative however functional symptoms don't always require attention. Especially considering the fact functional symptoms can impact a person 24/7. A functional symptom has no known physical cause and refers to abnormal functioning of the body. Functional symptoms also aren't caused by physical and/or psychological risk factors, those risk factors simply increase the chances of you developing a functional disorder. If those physical and psychological risk factors were truly the "cause" everyone would have functional symptoms.
"Psychological trauma is to FND what smoking is to stroke, a risk factor but not the cause." - Professor Jon
Stone, Consultant Neurologist and Honorary Senior Lecturer at the dept. of Clinical Neurosciences, University of
Edinburgh
Everyone Lied, Organisations let me down, I panicked and got FMD, I was, and still am fighting dental fraud
I have neglogical movements disorder i need helo understanding dont know enough