I had a few jobs over the summer directing shows and teaching dance that I really loved, but I had to quit both of them when I had a really bad flare up. Idk how people are able to work normal jobs when living with a chronic illness, because it is impossible to predict when symptoms will get worse.
I used to be very dependable and that was one of my selling points to an employer. It’s one of the things they need. Now, that I don’t have that- it has been a big hit to my sense of self- esteem. I am still trying to figure it out. Please pray for me to find the right fit.
@@Raminakai I’m honestly really feeling this right now. I hope you’re okay because I’m honestly not and it hurts me to know anyone else is going through this. You are in my prayers
I'm in a convalescent and I haven't worked in almost 4 years. before that I was living on my own buying and selling things online through Amazon and that helped me a lot because I knew what sold and what didn't. I was getting Social Security and Social Security Disability which barely paid my rent but the online sells would make me about $2,500 plus a month. I live in Los Angeles were a basic one bedroom starts at $1,100 plus. Not including utilities. I had a botched spinal tap, plus I already had torn rotator cuff, with fibromyalgia, and a long list of mess before lupus. So taking on a job isn't in the cards right now.
I have been diagnosed with two chronic illnesses, and while I am currently employed, I find it challenging to perform my job effectively on a daily basis due to difficulty focusing and the toll stress takes on my body. At this point, I feel the need to take a few months of rest before embarking on another journey. Although I am passionate about music, I am still exploring ways to monetize it. I reside in the Philippines. I don't want to resign because, like everyone else, I need income, but my ability to continue working has reached its limit, and it's disheartening. Just wanted to share my situation. The beginning of 2024 doesn't mark a favorable situation, but I remain optimistic that I am moving towards a more positive and improved circumstance.
Having a college degree helps. I work in retail, and I'm 35 with Lyme disease, but my joints are destroyed and I have bone spurs in my knees and feet. But Lyme disease "isn't real". I had to quit because I caught Covid-19 from work, and of course they wanted me to come into work sick, but after 6 weeks of it, I could literally feel my body giving out on me. A desk job sounds like a dream, anything not on my feet or constantly lifting and having to move so fast with no breaks.
I was diagnosed with fibromyalgia when I was 19. I was in the middle of my law degree, had no work experience or a clear life plan, since I was so young. The illness completed derailed my life, and basicslly stole my youth. I am 28 now and have no clue what to do with my life. I had to quit law after trying to finish my masters sent me to the hospital two times. So I work at a stupid desk job I am not really qualified for, constantly fearing that I am going to lose it for not being productive or good enough. I am so tired all the time sometimes I fantasize comitting a crime just so I could go to jail and not have to work everyday. I don't have the option of not working since social security has denied my application for disability. Apparently I am not sick enough.
Thank you for this video, I was fired from my job because of my illnesses. I have been really hard on myself because as much as I would love to have desk job again, I know I can't don't it. It would be nice if I could find something online but I just don't know where to look anymore. But you did give great advice you shouldn't sacrifice your health for a job, it is never worth it.
I work teaching English here in Brazil and sometimes I feel so so so tired that I want to quit. I taught before I was diagnosed with lupus and I teach now. Before the diagnose I could teach at 3 schools, now I can’t stand 3 hours a day... I think about quitting all the time, but I need to do something because it is already too difficult to stand my life being “useful” imagine if I thought I was useless... I’m having good days these last couple of weeks, I was able to do everything I had to. Better days are coming for us!
Hi my name is chloe, I used to work full time desk phone job but as my rheumatoid arthritis got worse over the years and no treatment or diagnosis was given I got to a point where I had to cut down my hours and days and eventually got to point where I had to resign due to medical reasons not long after I resigned I finally got a diagnosis and treatment ( but a lot of damage was already done) I was diagnosed with Rheumatoid arthritis and fibromyalgia I am still housebound and unable to work I live in Australia and would love to be able to do something and feel worth something again thank you for sharing your experiences I’ve been along supporter of yours and think you are very inspirational to others with chronic illnesses so thank you
Chloe Mahr you are worth something already. What kind of things do you enjoy doing? Are your hands ok for computer work still or do you need a different type of work completely? Brainstorming is good. I’m in the US so I might not be to helpful but I can try to brainstorm with you. I have RA too. I got a lucky early diagnosis only because my fingers swelled to the point I couldn’t bend them at the same time my shoulder was injured and a dislocated toe. I went to PT for the shoulder injury and was seeing a specialist for my foot every time I went the therapist noticed the swelling in my hands and told me I need to have my primary do blood work. If I wasn’t a hot mess and injured, I probably wouldn’t have found out.
I have Fibromyalgia too. You are worth something. Don’t let others bring you down. I had to stop working for now due to this chronic illness. I sell online though. It’s the only thing that I can do that will allow me the flexibility I need. You are so lucky to live in Australia, obsessed with traveling there when I can someday. I live in the U.S. our medical care and help for those with invisible illness is very limited and not that great.
I struggle day to day with working. I am no where near where I want to be with my career but already slowing down. So I am starting my own business! Actually to do with invisible illnesses so stay posted on my channel! Thank you so much for opening up, I look forward to seeing more videos!
I have non-specific autoimmune disease, but it's systemic and affects various parts of my body and my capacity to think. I've found that I can be good at jobs that allow me to pace myself and work independently. I write everything down, so when flaring I can check and recheck instructions because my short term memory and capacity to organize info is affected. Anything that I can develop a system and routine for, that I can pace myself. I take care of pets sometimes, and find I'm really good at that because animals don't freak out if I've slowed down or am having symptoms. When I pace myself I can _usually_ do really great pet care, and I tend to be calming and balancing to pets because I've learned how to deal with so much, and am consistent even if slow. I also clean, and if I'm given a general cleaning task and allowed to adjust the type of cleaning as I go, and given a few hours to complete what is normally a 1 to 2 hour task for someone healthy, I can actually do a really great job at that because I'm meticulous and thorough. I do great until I don't. No warning. No predictor of what symptoms I'll have to deal with. No idea of how long they'll last. Worried about the times I get brain fog. I've literally forgotten my name and DOB at times. So embarrassing because other times I can multitask information and keep track of 3 areas of information in my mind at once. I've failed A LOT. It's incredibly painful to be physically helpless to keep everything from falling apart. Looking into entrepreneurship, but I don't know if I can put forth the energy it takes to learn to run a business and all it involves and simultaneously adapt it for parttime.
I have a front desk reception position and I even had to cut that down to part time. I tried to get a job as a behavioral health tech which is in the field I want to go into, but even that was too much. I had to quit after my first day, which was yesterday and I’m sitting with ice packs on my knees today. It’s really discouraging and makes me worry I’ll never have a fulfilling career. This is a great topic to discuss and I think what we need is less judgement of ourselves and fewer expectations.
Great topic... money not everything I learned that the hard way. I think customers service job at home are flexible schedules. Unfortunately I’m disabled and I miss my career in the medical field; but I try to volunteer with our nonprofit when I can but only if I can
When you mentioned that you went to school for kinesiology it really hit home for me. A few years back, when I was in a program to obtain my massage therapy license, kinesiology was my favorite course! I didn't find out that I had Ehlers-Danlos Syndrome & Postural Orthostatic Tachycardia Syndrome until after the program. It was devistating. All the dreams I had of furthering my career were crushed, mostly because I wasn't aware of any other ways to put my experience to use without harming my self further. I had to settle for less physically demanding work, and eventually desk jobs. However, my conditions have progressed to the point where I am now on long-term disability & having to apply for social security disability. I'm trying to use the time I have available to learn skills that will ideally allow me to eventually attempt to work from home in the future. It is infuriating when you want to work and give back to the community, but your body can't keep up. At somepoint I hope to share the knowledge I've gained and experiences I have had to help others learn how to advocate for themselves within the healthcare system. I really appreciate you sharing your content, because it reminded me that I can still find a way to help others - As long as I continue to search for creative solutions within my limitations. Thank you!
Wow you just gave me insight into postural orthostatic tachycardia syndrome…I’ve never heard of this but my symptoms match the description 😓 I had to cancel my job interview today due to those symptoms of extreme fatigue, dizziness, etc. I felt so crushed bc I was so looking forward to getting back into working after months and months of trying to get better. I pray you have found some relief and fulfillment in your work/provision.
I'm a single mother of 2 , I'm 47 with chronic Rheumatoid Arthritis which is an auto immune disease. I have it in both wrists, shoulders, feet, knees and back. After 4 years I was finally prescribed a medication that helps with pain management but it really impacts my daily cognitive ability so that my thinking ability is compromised, I don't qualify for any disability benefits, so I try to look for work and study but had to go off my medicine as I just cant function mentally to study or be a productive employee, but because I'm not on medicine the pain is coming back with ferocity, most jobs I apply for are online but ask for medical conditions I might have,needless to say, I never hear back, I'm getting really down .
I struggled through school to become a Nurse and even had to drop out for a few months due to a pretty serious lupus nephritis flare. I've been working full time for the last 9 years as a Nurse. Before that I was a waitress for almost 20 years! I have been struggling somewhat for the last 5 years, really forcing myself to keep up. I had to go on medical leave for a a few months back in 2016. I usually don't have a lot of sick time collected because I do need to use it more often than not. Most days I work and then come home and that's it. I struggle with mornings now and I used to be such a morning girl, but not anymore. I don't know how much longer I can do this. I need a job where I can start a bit later in the morning. I don't know what else I would do. Then I worry about our finances. I have a mortgage etc..... so stressful just thinking about it all.
I'm Tshego from Johannesburg in S.A. I just lost my job thanks to the 2 strokes that hit me 🙁 I'm a Network Geek lol hopefully something will come up so far I'm okay 😄thank you for doing these videos
I luckily have the best job in the world. I am a certified medical coder and have the luxury to work from home for an insurance company. I absolutely love my job. I can wear whatever I want to and I have full benefits also. When I was diagnosed with Lupus, I did file for intermittent FMLA in case something happens and for my appointments and such.
This is exactly what's on my mind right now! I struggled with a serious bout of depression 2 years ago, to the degree where I had to take time off working and move back in with my parents. From there I decided that I needed a job that was low stress to maintain my mental health, which now thank god is much better. However, the past year I have struggled with chronic fatigue and nausea (no diagnosis as of yet), which has made it hard to work and contributed to me getting fired from my last job. So now I'm in a dilemma of needing a low-stress, less physical job, maybe with fewer than 40 hours, but that still pays me enough to live on - aka a job that DOESN'T EXIST haha. I've thought about going to nursing school because eventually nursing would give me a lot of options for both work environment and hours, but in order to get there I'd have to "do my time" in the more physical entry-level positions, not to mention stressful schooling, before I could move up to having those kind of options. Sigh, so I'm really at a crossroads at the moment! I'm going to try and really apply myself in whatever job I take next because the reality is that none will be perfect for my mental and physical health, but honestly I am worried about the future
I actually quit my job right before I found out I had sle. I could barely bring myself to get up and go to work anymore. I’ve been a stay at home mom for a year now. It’s been a blessing to be able to stay home. I still have lots and lots of days where I just relax and sleep.
Tiffani Steele HOW!?? I’ve been trying to work online but they all want experience. I’m only 19 and I’ve only worked at food places. Really would love your advice and where u work.
I’m literally just a stay at home mom now. My husband is in the military so we depend on his paychecks. As far as advice goes apply for jobs that you know are going to be easier on your body.
Hi there greetings from. Germany. I got diagnosed with lupus a year ago.... But problems were there all the time longtime ago. I'm still a student of social work.... With 33 years... But here's my advice I. Hope. This work out also in the US. Here I do already work in the field of social work. I work with youth, children and young people with disabilities and psychological problems. I do have problems with fatigue and my bone pain. As well I have angioodema (csu)... I got along by my interview to tell my boss(later my colleagues) about my illness so I got a schedule that fits to my problems.... Even I need do go to hospital every 2month for check up.... Besides that in Germany you get by law protection to get fired because of your disability ... Stay strong. And rest
This is a brilliant topic to discuss and I can relate to you so much. I really want to pursue my law career further, but after working for my current employer which is a law firm I don't think my body can handle even an easy office job for long. I take lots of sick days, because of that I miss out on socialising and I feel pretty isolated. When I get back to work my symptoms get much worse and I get ill often. I wish I could simply work from home, that would be ideal so I don't catch every bug in the office. But I doubt it's possible so I keep going until eventually I crash again.
I think you are absolutely so much further in your journey to financial stability than you realize with the simple fact that you realize that entrepreneurship is the best route & should be pursued regardless of how the bills get paid! That being said, at the end of the day, the bills must be paid! I have been thinking about becoming an insurance adjuster. The certification doesn't cost but a few hundred depending on your state & it can be done in 30-60 days depending on your pace & schedule. I have a friend who does it & loves it! You can do office jobs or you can work out "on the field" assessing property, if you're into travel. She works 6 months & then takes 6 months off in Florida to run her seasonal beach bar! I think the key is being creative, positive, & to remain in a state of gratitude no matter what! It's hard but I think we each have gifts that can make us money. We just have to think about things from a state of possibility in order to have that abundant epiphany!
I haven't worked since 2019, I was in Kansas working at footlocker, only warehouse. I manly did packaging it was 40 + hrs a week. Unfortunately, I had no plan but was falling asleep all the time and was in severe pain. The plan was always to work only while my husband was deployed. At the time we didn't know it was POTS since than I have been learning how to crochet. I'm still not 100% and had many surgery since than so I've spent year recovering from each one on my arms and have not been able to look for work.
i am grateful for food sleep showers, clean clothes, I receive TONS of hate for not working, I am also in CONSTANT pain, ive been searching for a way to get the haters off my back but I cant walk well and cant even stand for more than 5 minutes
I recently quit my full time job for the same reasons you did. I was so happy I was gonna be able to provide for myself and have my own insurance. I immediately started to get sicker because of how demanding it was on my body. Still I stuck it out for several more months until I just couldn’t do it anymore. Unfortunately I didn’t have a plan. So that’s what I’m trying to figure out rn.
I’ve been a paralegal for 16 years but the last four years I have not worked because I’ve been on disability for my lupus and fibromyalgia. I also have serious arthritic issues with my spine. I’m getting a nerve ablation in my spine in a couple of months and I’m hoping after that I can try to at least get a part-time job I really don’t care if it’s just receptionist work as long as I can do something. Are used to be a workaholic and now I can’t even read a book because of brain fog. So I have a lot of work to do.
Why are we all getting diagnosed with these things? Is like every other women I meet have Jorgens or Lupus..them or someone in their families...something is very wrong with this picture... I thought I had Lupus..but now instead they said its Jorgens .... i cant really work i cant funtion like I used to... like everything..my body..my brain..... 😫😭😭😭
Totally agree. I was diagnosed with Fibromyalgia and it seems so many people are being diagnosed. I was first dismissed by drs and told I had allergies or depression. I wonder how many more people are dismissed with invisible chronic illness
@@sandi6818 i have mgd which means that my eyes burn like if i had lemon juice in eyes everytime my eyes are open.... Every job needs your eyes so im just suicidal now
@@sandi6818 i was, i have the same thing you do and was turned away so often because of how young i am. i am only in my early 20s but have had this type of pain almost my entire life. it was mild when i was little, my other senses were heightened but as i have grown, the pain has gotten increasingly worse. i don't know how to live anymore, i don't even know if i have a purpose, i seem too sick for anything these days
Excellent advice, particularly since you know exactly what you are talking about from personal experience! I admire you for taking that step to help not only your health today, but in your future. You certainly can make yourself worse without realising, pushing yourself because your told there's nothing wrong! Thinking, I must be ok, the Dr said so, when in fact you are ill, or becoming ill, making yourself worse by convincing yourself you must be imagining everything, pushing yourself to the brink until you get so bad the Dr listens, or you end up pretty ill then eventually get a diagnosis! This happens to so many! Myself. Two much younger cousins who live in Australia. One has no diagnosis, they didn't know what was wrong. I suggested she asked for the test. She did, it was SLE. Gastrointestinal problems caused her to almost lose her bowel, which was being attacked. She is so much better now, but unable to work. Your explanation of your work life is so important to all these young people. I was a self employed Insurance Broker, my personal situation, divorce, etc meant my finances were nil. I was medically retired, without pensions! Thankfully, I live in Northern Ireland, UK, get retirement pension. Yes, I paid into the fund since starting to work. I am fortunate to be given disability benefit, not a fortune but more than enough to allow me to pay bills without worrying, otherwise I would be in a sorry state. I'm so very grateful people like me can get help. I paid a highTax Rate during my business life, but I don't think I have a divine right to benefit. I do consider myself very fortunate to live in a Country where I do get help. I'm very grateful my 4 sons work and pay tax, to all the people I don't know, who pay Taxes too! There are those who abuse the system. Increasing Taxes payable by workers by claiming fraudulently, leaving less money for so many very much worse than I. Money that would provide better care in the Community, helping stop any further decline in our brilliant Health Service. I know 4 people who claim sickness, who work, paying no Tax or Insurance, abusing a Aust to help elderly, I'll or in need. Sadly, they're hard to catch, not enough people can be employed to catch them! If you can work for less money as you are doing and discussed, do that, as your health and welfare are priceless!
I currently work part-time as an infant toddler teacher (100% not the best job for someone with a chronic illness but I love it!) and I’m hoping my blog will grow into a side hustle. I’m finishing up school and still living at home and most definitely still figuring things out!
I recently got diagnosed with fibromyalgia and I don't even have a job yet. I'm scared because I don't wanna live with my family forever but I'm forced to rely on them at the moment. I'm usually at home and I have no social life at all. It sucks so much and I'm really scared of the future.
Im 18 & was recently diagnosed in April of this year I had to quit my job at fast food & currently stuck on what I want to study & major in now that I can’t do what I intricately wanted & love. I’m also having trouble finding a good job where I can work with my lupus
I’m very confused because I’m in constant flare. If I go out for 2 hrs I always come back with fever. I am so useless. Is me that I have an extreme case? I was officially diagnosed last June. I don’t see a light atm
No...not only one... i quit my job..was depressed ..fevers and pains like the flu... i have Joergens... I just cant work anymore... i feel you...I will pray for you
I've been at my job for 10 years and I'm on fmla. I've been working less than 40 hours a week and I don't have leave. So, I'm taking a pay cut and pushing my retirement out each time, but I might get on disability before I retire anyways. Where I live, it's too expensive to go on disability, so I'm stuck working. Also, I'm paying for short term and long term disability privately through my job. So, if I leave my job, I lose that benefit. I like what I do it's what I studied, but management is horrible and the stress is terrible. But I'm stuck.
I am a 34 F welder and recently diagnosed with fibromyalgia. Not even 2 years ago I was the kind of employee who never called out. That was me my entire career. Flash forward to this year, I'm constantly calling out or leaving early because I feel too weak, fatigued, or I'm in too much pain. This is my only skill. I never went to college. Working with my hands and body is all I know, and I feel so lost and confused and what to do next. Where do I go from here? I can't keep welding like this but I don't even know where to begin choosing another career that would be easy to manage with fibromyalgia. And this is the end of my vent/rant sob story😅
Thank you for sharing your experience. This my last year at university, as my study need a lot of physical work I am worried about how to manage it after I graduate. I'll try put another plans to develop my skills in different things that can help.
I was working 3 jobs and during that time I was waking up with stiff arms but it would go away. At the time I didnt get tested so I thought it was carpal tunnel. When I got pregnant I went into remission however after I had my child the Arthritis hit me full force. I couldnt work. Couldnt move. Got tested and came back as Lupus.
Having a business is a goal as an entrepreneur, I've sold plants like pond plants mostly & they were popular, privately It may be fibromyalgia i experienced I'm considering having a holding company (like an LLC) that I can do work under & the holding company owning my business, a multi industry Business - like a conglomerate From garden to mining Best of luck with your goals, set them higher
I currently have a mixed connective tissue disorder diagnosis. That means, for me, it’s either lupus or arthritis or will always be a combo of both. We’re still working it out. I work as a hairstylist now but have very short hours because my body can’t handle it. It’s been so exhausting and I’m finally stepping in a different direction and going to school for accounting! I’m sad to leave behind a job I enjoy, but I know my health is much more important in the long run. Having an “invisible illness” makes it hard for people to understand just how painful daily tasks can be. Luckily my family is completely supportive and understand how much stress my job is causing my body. It’s a tough choice to put your health first, but it shouldn’t be. Thank you for sharing this video with us!
I have Chiari malformation and POTS. I work a small job about 9 hours a week and it kills me just working 3 hours a day but I have to do it. I wish I didn't have to work...
I’m a teacher. I have FMLA. My rheumatologist fills it out once a year based on my current health. I know I won’t be able to teach forever because I do teach preschool. It is very physically demanding. I’m getting a higher degree so I can be an online homeschool teacher 👩🏫 eventually. My RA seems pretty resilient to medication thus far. But I’m getting by.
I’m an infant/toddler teacher! I can only do it part-time, and luckily my boss understands when I need to take sick days. The hardest part for me is that working with kids, you are around a lot of germs, and I get sick so easily. But I love my job and hope I can continue at it!
I don't have a diagnosis and I don't know if I ever will (hopefully maybe some day I can get answers) but I do have pain in my entire body. Most days it's just uncomfortable and aching, other days I wake up unable to move or move wrong and end up limping the rest of the day from the pain. Sting down, standing up, laying down, none of that seems to matter although laying down is the better one. Rn I'm trying to become a cook but even after the first day I could tell that I was going to be in a world of hurt afterwards and sure enough I was right. I'm just scared of what will happen if I don't have anything on paper. Fortunately I live in a country that has safety nets and all that and health care isn't expensive like in the US so I can do that whole retirement bc of my difficulties if I have it on paper and I'm fine with that even if I won't have much money. The worst thing of all is how my family isn't understanding at all, they seem to think I'm lazy or that I'm just not trying and that "if I just went for a walk I'll be fine" even though I can't walk too far or too fast before my hips and knees stop working. I really want to move out so I don't have to feel like I'm going insane (don't get me wrong, they're not bad people. They're just a little thick headed and disappointed bc I can't get or keep a job and bc I'm a highschool dropout bc of my severe depression). I don't know how I'll get the money to move out but I think I can figure something out. If I do retire or whatever it's called in English I'd like to be a foster home for cats tho, that much I know. Edit: I'd also like to say that I've always had these problems, they've just gotten way worse as I get older, and I am getting help from a professional but the exercises they've giver me haven't really worked at all.
I’m use to physical labor jobs and warehouse jobs. Right now I have a job but I’m at that point that I might quit. This job is too demanding on my body. My body physically cannot handle it no more. People tell me to get on disability but I just don’t see me making it with that income. I have Lupus Nephritis and Fibromyalgia.
My chronic Lyme is really bad rn, but I’m working full time on farm, it’s hard to keep going, I think I might need a laptop job, lmk if you guys have any pointers.
Hello. Hope you all are doing great. I'm Eduardo from Brazil, I have genetic injures in my back. Since I am only 21 I don't have that much work experience but I had to drop my desk job last year (which I was liking) due not being able to cope with several back pain and long fixed working hours. I am currently trying to find a career as a freelancer programmer and this year has been tough. I would like to ask you people to share any tips in how to play long term when you have health issues, because I feel really lost in my path.
I'm 17 and I want to be a pediatric psychiatric nurse. I've been dealing with undiagnosed adrenal insufficiency since 14 and pseudotumor cerebri(iih) since 17 which is this january. By the time I found out I had this, I already lost most of my vision and peripheral vision. It's very overwhelming and my mom is telling me that I need to find a job that I can do at home. Since i like to my hardest even though I never have any energy for it, its very hard for me to give up my dream. I also want to be a counselor or behavior analyst. Am I able to be a counselor at home?
I am an exercise science major-had to leave my job last year teaching fitness classes because of my chronic back pain. It hasn’t improved much, I’m not really sure where to turn so many dead ends
My mission is to help people with auto-immune disease use web design as a way to gain flexibility and confidence in themselves. I would love to talk more with you about this if you'd like?
I had a few jobs over the summer directing shows and teaching dance that I really loved, but I had to quit both of them when I had a really bad flare up. Idk how people are able to work normal jobs when living with a chronic illness, because it is impossible to predict when symptoms will get worse.
I used to be very dependable and that was one of my selling points to an employer. It’s one of the things they need.
Now, that I don’t have that- it has been a big hit to my sense of self- esteem.
I am still trying to figure it out. Please pray for me to find the right fit.
@@Raminakai I’m honestly really feeling this right now. I hope you’re okay because I’m honestly not and it hurts me to know anyone else is going through this. You are in my prayers
I'm in a convalescent and I haven't worked in almost 4 years. before that I was living on my own buying and selling things online through Amazon and that helped me a lot because I knew what sold and what didn't. I was getting Social Security and Social Security Disability which barely paid my rent but the online sells would make me about $2,500 plus a month. I live in Los Angeles were a basic one bedroom starts at $1,100 plus. Not including utilities. I had a botched spinal tap, plus I already had torn rotator cuff, with fibromyalgia, and a long list of mess before lupus. So taking on a job isn't in the cards right now.
I have been diagnosed with two chronic illnesses, and while I am currently employed, I find it challenging to perform my job effectively on a daily basis due to difficulty focusing and the toll stress takes on my body.
At this point, I feel the need to take a few months of rest before embarking on another journey. Although I am passionate about music, I am still exploring ways to monetize it. I reside in the Philippines.
I don't want to resign because, like everyone else, I need income, but my ability to continue working has reached its limit, and it's disheartening. Just wanted to share my situation.
The beginning of 2024 doesn't mark a favorable situation, but I remain optimistic that I am moving towards a more positive and improved circumstance.
Having a college degree helps. I work in retail, and I'm 35 with Lyme disease, but my joints are destroyed and I have bone spurs in my knees and feet. But Lyme disease "isn't real". I had to quit because I caught Covid-19 from work, and of course they wanted me to come into work sick, but after 6 weeks of it, I could literally feel my body giving out on me. A desk job sounds like a dream, anything not on my feet or constantly lifting and having to move so fast with no breaks.
I was diagnosed with fibromyalgia when I was 19. I was in the middle of my law degree, had no work experience or a clear life plan, since I was so young. The illness completed derailed my life, and basicslly stole my youth. I am 28 now and have no clue what to do with my life. I had to quit law after trying to finish my masters sent me to the hospital two times. So I work at a stupid desk job I am not really qualified for, constantly fearing that I am going to lose it for not being productive or good enough. I am so tired all the time sometimes I fantasize comitting a crime just so I could go to jail and not have to work everyday. I don't have the option of not working since social security has denied my application for disability. Apparently I am not sick enough.
I want to help employers support and accommodate employees with chronic illnesses, so it's beautiful hearing your journey.
Thank you for this video, I was fired from my job because of my illnesses. I have been really hard on myself because as much as I would love to have desk job again, I know I can't don't it. It would be nice if I could find something online but I just don't know where to look anymore. But you did give great advice you shouldn't sacrifice your health for a job, it is never worth it.
I agree
I work teaching English here in Brazil and sometimes I feel so so so tired that I want to quit. I taught before I was diagnosed with lupus and I teach now. Before the diagnose I could teach at 3 schools, now I can’t stand 3 hours a day... I think about quitting all the time, but I need to do something because it is already too difficult to stand my life being “useful” imagine if I thought I was useless... I’m having good days these last couple of weeks, I was able to do everything I had to. Better days are coming for us!
Hi my name is chloe, I used to work full time desk phone job but as my rheumatoid arthritis got worse over the years and no treatment or diagnosis was given I got to a point where I had to cut down my hours and days and eventually got to point where I had to resign due to medical reasons not long after I resigned I finally got a diagnosis and treatment ( but a lot of damage was already done) I was diagnosed with Rheumatoid arthritis and fibromyalgia I am still housebound and unable to work I live in Australia and would love to be able to do something and feel worth something again thank you for sharing your experiences I’ve been along supporter of yours and think you are very inspirational to others with chronic illnesses so thank you
Chloe Mahr you are worth something already. What kind of things do you enjoy doing? Are your hands ok for computer work still or do you need a different type of work completely? Brainstorming is good. I’m in the US so I might not be to helpful but I can try to brainstorm with you. I have RA too. I got a lucky early diagnosis only because my fingers swelled to the point I couldn’t bend them at the same time my shoulder was injured and a dislocated toe. I went to PT for the shoulder injury and was seeing a specialist for my foot every time I went the therapist noticed the swelling in my hands and told me I need to have my primary do blood work. If I wasn’t a hot mess and injured, I probably wouldn’t have found out.
@@KittyBeeViolinT Hey Kitty, how are you doin? I have also RA +AS. I am a software engineer and going to quit my desk job due to long working hours.
Subhash Kapil there are ups and downs. The fatigue is the worst part. I’m a preschool teacher, it requires a lot of energy
I have Fibromyalgia too. You are worth something. Don’t let others bring you down. I had to stop working for now due to this chronic illness. I sell online though. It’s the only thing that I can do that will allow me the flexibility I need. You are so lucky to live in Australia, obsessed with traveling there when I can someday. I live in the U.S. our medical care and help for those with invisible illness is very limited and not that great.
I struggle day to day with working. I am no where near where I want to be with my career but already slowing down. So I am starting my own business! Actually to do with invisible illnesses so stay posted on my channel! Thank you so much for opening up, I look forward to seeing more videos!
I have non-specific autoimmune disease, but it's systemic and affects various parts of my body and my capacity to think.
I've found that I can be good at jobs that allow me to pace myself and work independently. I write everything down, so when flaring I can check and recheck instructions because my short term memory and capacity to organize info is affected. Anything that I can develop a system and routine for, that I can pace myself. I take care of pets sometimes, and find I'm really good at that because animals don't freak out if I've slowed down or am having symptoms. When I pace myself I can _usually_ do really great pet care, and I tend to be calming and balancing to pets because I've learned how to deal with so much, and am consistent even if slow.
I also clean, and if I'm given a general cleaning task and allowed to adjust the type of cleaning as I go, and given a few hours to complete what is normally a 1 to 2 hour task for someone healthy, I can actually do a really great job at that because I'm meticulous and thorough.
I do great until I don't. No warning. No predictor of what symptoms I'll have to deal with. No idea of how long they'll last.
Worried about the times I get brain fog. I've literally forgotten my name and DOB at times. So embarrassing because other times I can multitask information and keep track of 3 areas of information in my mind at once.
I've failed A LOT.
It's incredibly painful to be physically helpless to keep everything from falling apart.
Looking into entrepreneurship, but I don't know if I can put forth the energy it takes to learn to run a business and all it involves and simultaneously adapt it for parttime.
Wow
I have a front desk reception position and I even had to cut that down to part time. I tried to get a job as a behavioral health tech which is in the field I want to go into, but even that was too much. I had to quit after my first day, which was yesterday and I’m sitting with ice packs on my knees today. It’s really discouraging and makes me worry I’ll never have a fulfilling career.
This is a great topic to discuss and I think what we need is less judgement of ourselves and fewer expectations.
I feel you, it's really hard to fit into a specific job routine and stick to it when you have pain.
Great topic... money not everything I learned that the hard way. I think customers service job at home are flexible schedules. Unfortunately I’m disabled and I miss my career in the medical field; but I try to volunteer with our nonprofit when I can but only if I can
When you mentioned that you went to school for kinesiology it really hit home for me. A few years back, when I was in a program to obtain my massage therapy license, kinesiology was my favorite course! I didn't find out that I had Ehlers-Danlos Syndrome & Postural Orthostatic Tachycardia Syndrome until after the program. It was devistating. All the dreams I had of furthering my career were crushed, mostly because I wasn't aware of any other ways to put my experience to use without harming my self further. I had to settle for less physically demanding work, and eventually desk jobs. However, my conditions have progressed to the point where I am now on long-term disability & having to apply for social security disability. I'm trying to use the time I have available to learn skills that will ideally allow me to eventually attempt to work from home in the future. It is infuriating when you want to work and give back to the community, but your body can't keep up. At somepoint I hope to share the knowledge I've gained and experiences I have had to help others learn how to advocate for themselves within the healthcare system. I really appreciate you sharing your content, because it reminded me that I can still find a way to help others - As long as I continue to search for creative solutions within my limitations. Thank you!
Wow you just gave me insight into postural orthostatic tachycardia syndrome…I’ve never heard of this but my symptoms match the description 😓 I had to cancel my job interview today due to those symptoms of extreme fatigue, dizziness, etc. I felt so crushed bc I was so looking forward to getting back into working after months and months of trying to get better. I pray you have found some relief and fulfillment in your work/provision.
I'm a single mother of 2 , I'm 47 with chronic Rheumatoid Arthritis which is an auto immune disease.
I have it in both wrists, shoulders, feet, knees and back.
After 4 years I was finally prescribed a medication that helps with pain management but it really impacts my daily cognitive ability so that my thinking ability is compromised, I don't qualify for any disability benefits, so I try to look for work and study but had to go off my medicine as I just cant function mentally to study or be a productive employee, but because I'm not on medicine the pain is coming back with ferocity, most jobs I apply for are online but ask for medical conditions I might have,needless to say, I never hear back, I'm getting really down .
I struggled through school to become a Nurse and even had to drop out for a few months due to a pretty serious lupus nephritis flare. I've been working full time for the last 9 years as a Nurse. Before that I was a waitress for almost 20 years! I have been struggling somewhat for the last 5 years, really forcing myself to keep up. I had to go on medical leave for a a few months back in 2016. I usually don't have a lot of sick time collected because I do need to use it more often than not. Most days I work and then come home and that's it. I struggle with mornings now and I used to be such a morning girl, but not anymore. I don't know how much longer I can do this. I need a job where I can start a bit later in the morning. I don't know what else I would do. Then I worry about our finances. I have a mortgage etc..... so stressful just thinking about it all.
Hi, how are you doing now?
Maybe consider a work from home job or something like a desk job
I'm Tshego from Johannesburg in S.A. I just lost my job thanks to the 2 strokes that hit me 🙁 I'm a Network Geek lol hopefully something will come up so far I'm okay 😄thank you for doing these videos
I luckily have the best job in the world. I am a certified medical coder and have the luxury to work from home for an insurance company. I absolutely love my job. I can wear whatever I want to and I have full benefits also. When I was diagnosed with Lupus, I did file for intermittent FMLA in case something happens and for my appointments and such.
Today was my last day at work... I just got diagnosed Sjögrens and SLE. I don’t know what I’m doing but I’ll figure it out.
Audumn Jackson Stay strong u got this Diagnosed with Lupus 3yrs ago recently cut back my hours (nurse) Things are working out you make it work 🙏🏽💪🏾
😮
I have Sjogrens and RA. Fairly well managed but I have needed to adjust and listen to my body and what is needed to rest as needed
You’re stronger than you know!!! Stay positive!!
TheJaneDiaries thank you...we all need encouragement
This is exactly what's on my mind right now! I struggled with a serious bout of depression 2 years ago, to the degree where I had to take time off working and move back in with my parents. From there I decided that I needed a job that was low stress to maintain my mental health, which now thank god is much better. However, the past year I have struggled with chronic fatigue and nausea (no diagnosis as of yet), which has made it hard to work and contributed to me getting fired from my last job. So now I'm in a dilemma of needing a low-stress, less physical job, maybe with fewer than 40 hours, but that still pays me enough to live on - aka a job that DOESN'T EXIST haha. I've thought about going to nursing school because eventually nursing would give me a lot of options for both work environment and hours, but in order to get there I'd have to "do my time" in the more physical entry-level positions, not to mention stressful schooling, before I could move up to having those kind of options. Sigh, so I'm really at a crossroads at the moment! I'm going to try and really apply myself in whatever job I take next because the reality is that none will be perfect for my mental and physical health, but honestly I am worried about the future
magsshaw The future is scary, especially when we have an illness. Always here if you need a chat. Take care
@@ukuleleme6055 This is so sweet, thank you
@@magsshaw take care! you are strong.
I actually quit my job right before I found out I had sle. I could barely bring myself to get up and go to work anymore. I’ve been a stay at home mom for a year now. It’s been a blessing to be able to stay home. I still have lots and lots of days where I just relax and sleep.
Tiffani Steele HOW!?? I’ve been trying to work online but they all want experience. I’m only 19 and I’ve only worked at food places. Really would love your advice and where u work.
I’m literally just a stay at home mom now. My husband is in the military so we depend on his paychecks.
As far as advice goes apply for jobs that you know are going to be easier on your body.
Hi there greetings from. Germany. I got diagnosed with lupus a year ago.... But problems were there all the time longtime ago. I'm still a student of social work.... With 33 years... But here's my advice I. Hope. This work out also in the US. Here I do already work in the field of social work. I work with youth, children and young people with disabilities and psychological problems. I do have problems with fatigue and my bone pain. As well I have angioodema (csu)... I got along by my interview to tell my boss(later my colleagues) about my illness so I got a schedule that fits to my problems.... Even I need do go to hospital every 2month for check up.... Besides that in Germany you get by law protection to get fired because of your disability
... Stay strong. And rest
This is a brilliant topic to discuss and I can relate to you so much. I really want to pursue my law career further, but after working for my current employer which is a law firm I don't think my body can handle even an easy office job for long. I take lots of sick days, because of that I miss out on socialising and I feel pretty isolated. When I get back to work my symptoms get much worse and I get ill often. I wish I could simply work from home, that would be ideal so I don't catch every bug in the office. But I doubt it's possible so I keep going until eventually I crash again.
I think you are absolutely so much further in your journey to financial stability than you realize with the simple fact that you realize that entrepreneurship is the best route & should be pursued regardless of how the bills get paid! That being said, at the end of the day, the bills must be paid! I have been thinking about becoming an insurance adjuster. The certification doesn't cost but a few hundred depending on your state & it can be done in 30-60 days depending on your pace & schedule. I have a friend who does it & loves it! You can do office jobs or you can work out "on the field" assessing property, if you're into travel. She works 6 months & then takes 6 months off in Florida to run her seasonal beach bar! I think the key is being creative, positive, & to remain in a state of gratitude no matter what! It's hard but I think we each have gifts that can make us money. We just have to think about things from a state of possibility in order to have that abundant epiphany!
Thank you so much for making my question into a video!! Really shows how much you care about your subscribers! All love🥰
I haven't worked since 2019, I was in Kansas working at footlocker, only warehouse. I manly did packaging it was 40 + hrs a week. Unfortunately, I had no plan but was falling asleep all the time and was in severe pain. The plan was always to work only while my husband was deployed.
At the time we didn't know it was POTS since than I have been learning how to crochet. I'm still not 100% and had many surgery since than so I've spent year recovering from each one on my arms and have not been able to look for work.
i am grateful for food sleep showers, clean clothes, I receive TONS of hate for not working, I am also in CONSTANT pain, ive been searching for a way to get the haters off my back but I cant walk well and cant even stand for more than 5 minutes
I understand you 100 percent.
I recently quit my full time job for the same reasons you did. I was so happy I was gonna be able to provide for myself and have my own insurance. I immediately started to get sicker because of how demanding it was on my body. Still I stuck it out for several more months until I just couldn’t do it anymore. Unfortunately I didn’t have a plan. So that’s what I’m trying to figure out rn.
I’ve been a paralegal for 16 years but the last four years I have not worked because I’ve been on disability for my lupus and fibromyalgia. I also have serious arthritic issues with my spine. I’m getting a nerve ablation in my spine in a couple of months and I’m hoping after that I can try to at least get a part-time job I really don’t care if it’s just receptionist work as long as I can do something. Are used to be a workaholic and now I can’t even read a book because of brain fog. So I have a lot of work to do.
Why are we all getting diagnosed with these things? Is like every other women I meet have Jorgens or Lupus..them or someone in their families...something is very wrong with this picture... I thought I had Lupus..but now instead they said its Jorgens .... i cant really work i cant funtion like I used to... like everything..my body..my brain..... 😫😭😭😭
Totally agree. I was diagnosed with Fibromyalgia and it seems so many people are being diagnosed. I was first dismissed by drs and told I had allergies or depression. I wonder how many more people are dismissed with invisible chronic illness
@@sandi6818 i have mgd which means that my eyes burn like if i had lemon juice in eyes everytime my eyes are open.... Every job needs your eyes so im just suicidal now
@@sandi6818 i was, i have the same thing you do and was turned away so often because of how young i am. i am only in my early 20s but have had this type of pain almost my entire life. it was mild when i was little, my other senses were heightened but as i have grown, the pain has gotten increasingly worse. i don't know how to live anymore, i don't even know if i have a purpose, i seem too sick for anything these days
I think in the past many people had things like this but never got diagnosed.
They died early, poor and no one heard their stories.
hi I have Lupus too and i know how hard it is. so keep up the good work and keep on inspiring others
That’s basically my whole life right now. I’m an AEMT FIREFIGHTER, and it’s very hard on my body. One day I will have to move on and give it up.
My in high-school thinking about careers this was pretty helpful
Excellent advice, particularly since you know exactly what you are talking about from personal experience! I admire you for taking that step to help not only your health today, but in your future. You certainly can make yourself worse without realising, pushing yourself because your told there's nothing wrong! Thinking, I must be ok, the Dr said so, when in fact you are ill, or becoming ill, making yourself worse by convincing yourself you must be imagining everything, pushing yourself to the brink until you get so bad the Dr listens, or you end up pretty ill then eventually get a diagnosis! This happens to so many! Myself. Two much younger cousins who live in Australia. One has no diagnosis, they didn't know what was wrong. I suggested she asked for the test. She did, it was SLE. Gastrointestinal problems caused her to almost lose her bowel, which was being attacked. She is so much better now, but unable to work.
Your explanation of your work life is so important to all these young people. I was a self employed Insurance Broker, my personal situation, divorce, etc meant my finances were nil. I was medically retired, without pensions! Thankfully, I live in Northern Ireland, UK, get retirement pension. Yes, I paid into the fund since starting to work. I am fortunate to be given disability benefit, not a fortune but more than enough to allow me to pay bills without worrying, otherwise I would be in a sorry state. I'm so very grateful people like me can get help. I paid a highTax Rate during my business life, but I don't think I have a divine right to benefit. I do consider myself very fortunate to live in a Country where I do get help. I'm very grateful my 4 sons work and pay tax, to all the people I don't know, who pay Taxes too! There are those who abuse the system. Increasing Taxes payable by workers by claiming fraudulently, leaving less money for so many very much worse than I. Money that would provide better care in the Community, helping stop any further decline in our brilliant Health Service. I know 4 people who claim sickness, who work, paying no Tax or Insurance, abusing a Aust to help elderly, I'll or in need.
Sadly, they're hard to catch, not enough people can be employed to catch them!
If you can work for less money as you are doing and discussed, do that, as your health and welfare are priceless!
I'm working and I have LES
I don't have a problem with my work.
Keep going girl.
Greetings from Tlaxcala Mexico.
I have rheumatoid arthritis and it’s honestly hard to keep a job for more than 3+ months. I can’t even stand on my feet for 10 or more minutes. :(
Thanks so much for addressing this 💜💜
I currently work part-time as an infant toddler teacher (100% not the best job for someone with a chronic illness but I love it!) and I’m hoping my blog will grow into a side hustle. I’m finishing up school and still living at home and most definitely still figuring things out!
I recently got diagnosed with fibromyalgia and I don't even have a job yet. I'm scared because I don't wanna live with my family forever but I'm forced to rely on them at the moment. I'm usually at home and I have no social life at all. It sucks so much and I'm really scared of the future.
Im 18 & was recently diagnosed in April of this year I had to quit my job at fast food & currently stuck on what I want to study & major in now that I can’t do what I intricately wanted & love. I’m also having trouble finding a good job where I can work with my lupus
You are doing great at planning around your lupus
I’m very confused because I’m in constant flare. If I go out for 2 hrs I always come back with fever. I am so useless. Is me that I have an extreme case? I was officially diagnosed last June. I don’t see a light atm
No...not only one... i quit my job..was depressed ..fevers and pains like the flu... i have Joergens... I just cant work anymore... i feel you...I will pray for you
Yay Ty for this cuz i have up my career as a 5 year hair stylist n no longer can okay piano.i have sensory overload but man i need easier jobs.
I've been at my job for 10 years and I'm on fmla. I've been working less than 40 hours a week and I don't have leave. So, I'm taking a pay cut and pushing my retirement out each time, but I might get on disability before I retire anyways. Where I live, it's too expensive to go on disability, so I'm stuck working. Also, I'm paying for short term and long term disability privately through my job. So, if I leave my job, I lose that benefit. I like what I do it's what I studied, but management is horrible and the stress is terrible. But I'm stuck.
I am a 34 F welder and recently diagnosed with fibromyalgia. Not even 2 years ago I was the kind of employee who never called out. That was me my entire career. Flash forward to this year, I'm constantly calling out or leaving early because I feel too weak, fatigued, or I'm in too much pain. This is my only skill. I never went to college. Working with my hands and body is all I know, and I feel so lost and confused and what to do next. Where do I go from here? I can't keep welding like this but I don't even know where to begin choosing another career that would be easy to manage with fibromyalgia. And this is the end of my vent/rant sob story😅
Lets discuss how dope your eyebrows are right now.
Thank you for sharing your experience. This my last year at university, as my study need a lot of physical work I am worried about how to manage it after I graduate. I'll try put another plans to develop my skills in different things that can help.
I was working 3 jobs and during that time I was waking up with stiff arms but it would go away. At the time I didnt get tested so I thought it was carpal tunnel. When I got pregnant I went into remission however after I had my child the Arthritis hit me full force. I couldnt work. Couldnt move. Got tested and came back as Lupus.
Having a business is a goal as an entrepreneur, I've sold plants like pond plants mostly & they were popular, privately
It may be fibromyalgia i experienced
I'm considering having a holding company (like an LLC) that I can do work under & the holding company owning my business, a multi industry Business - like a conglomerate
From garden to mining
Best of luck with your goals, set them higher
Love this video! Thanks for sharing! You are beautiful btw!!❤️❤️
I currently have a mixed connective tissue disorder diagnosis. That means, for me, it’s either lupus or arthritis or will always be a combo of both. We’re still working it out. I work as a hairstylist now but have very short hours because my body can’t handle it. It’s been so exhausting and I’m finally stepping in a different direction and going to school for accounting! I’m sad to leave behind a job I enjoy, but I know my health is much more important in the long run. Having an “invisible illness” makes it hard for people to understand just how painful daily tasks can be. Luckily my family is completely supportive and understand how much stress my job is causing my body. It’s a tough choice to put your health first, but it shouldn’t be. Thank you for sharing this video with us!
I have Chiari malformation and POTS. I work a small job about 9 hours a week and it kills me just working 3 hours a day but I have to do it. I wish I didn't have to work...
I have mcas, mcs , mold toxicity and a bunch of other ailments and these opportunities are not available in Jamaica unfortunately.
I’m a teacher. I have FMLA. My rheumatologist fills it out once a year based on my current health. I know I won’t be able to teach forever because I do teach preschool. It is very physically demanding. I’m getting a higher degree so I can be an online homeschool teacher 👩🏫 eventually. My RA seems pretty resilient to medication thus far. But I’m getting by.
Kitty Bee you can teach. Look for this is called VIP Kids
I’m an infant/toddler teacher! I can only do it part-time, and luckily my boss understands when I need to take sick days. The hardest part for me is that working with kids, you are around a lot of germs, and I get sick so easily. But I love my job and hope I can continue at it!
I don't have a diagnosis and I don't know if I ever will (hopefully maybe some day I can get answers) but I do have pain in my entire body. Most days it's just uncomfortable and aching, other days I wake up unable to move or move wrong and end up limping the rest of the day from the pain. Sting down, standing up, laying down, none of that seems to matter although laying down is the better one. Rn I'm trying to become a cook but even after the first day I could tell that I was going to be in a world of hurt afterwards and sure enough I was right. I'm just scared of what will happen if I don't have anything on paper. Fortunately I live in a country that has safety nets and all that and health care isn't expensive like in the US so I can do that whole retirement bc of my difficulties if I have it on paper and I'm fine with that even if I won't have much money. The worst thing of all is how my family isn't understanding at all, they seem to think I'm lazy or that I'm just not trying and that "if I just went for a walk I'll be fine" even though I can't walk too far or too fast before my hips and knees stop working. I really want to move out so I don't have to feel like I'm going insane (don't get me wrong, they're not bad people. They're just a little thick headed and disappointed bc I can't get or keep a job and bc I'm a highschool dropout bc of my severe depression). I don't know how I'll get the money to move out but I think I can figure something out. If I do retire or whatever it's called in English I'd like to be a foster home for cats tho, that much I know.
Edit: I'd also like to say that I've always had these problems, they've just gotten way worse as I get older, and I am getting help from a professional but the exercises they've giver me haven't really worked at all.
I’m use to physical labor jobs and warehouse jobs. Right now I have a job but I’m at that point that I might quit. This job is too demanding on my body. My body physically cannot handle it no more. People tell me to get on disability but I just don’t see me making it with that income. I have Lupus Nephritis and Fibromyalgia.
My chronic Lyme is really bad rn, but I’m working full time on farm, it’s hard to keep going, I think I might need a laptop job, lmk if you guys have any pointers.
i am still a student, im 17, and i had to quit going to my highschool and start cyber school bc i was too sick to attend my high school...
Hello. Hope you all are doing great. I'm Eduardo from Brazil, I have genetic injures in my back. Since I am only 21 I don't have that much work experience but I had to drop my desk job last year (which I was liking) due not being able to cope with several back pain and long fixed working hours. I am currently trying to find a career as a freelancer programmer and this year has been tough.
I would like to ask you people to share any tips in how to play long term when you have health issues, because I feel really lost in my path.
Hiiii great sister watching your video after long time I hope you’ll be fine 🥰🙌🏻
I'm 17 and I want to be a pediatric psychiatric nurse. I've been dealing with undiagnosed adrenal insufficiency since 14 and pseudotumor cerebri(iih) since 17 which is this january. By the time I found out I had this, I already lost most of my vision and peripheral vision. It's very overwhelming and my mom is telling me that I need to find a job that I can do at home. Since i like to my hardest even though I never have any energy for it, its very hard for me to give up my dream. I also want to be a counselor or behavior analyst. Am I able to be a counselor at home?
With a diploma I work as cust service day and night. My body cannot take it and 12hr per shift 5.5 days
I am an exercise science major-had to leave my job last year teaching fitness classes because of my chronic back pain. It hasn’t improved much, I’m not really sure where to turn so many dead ends
My mission is to help people with auto-immune disease use web design as a way to gain flexibility and confidence in themselves. I would love to talk more with you about this if you'd like?
I’d like to learn more
Anyone here collecting state disability or social security disability? If so did you need just a medical certificate or did you have to lawyer up?
I'm praying and hoping my lupus doesn't interfere with my career as a Patient Care Tech, I'm afraid I may not be able to continue it.
Samantha Dallas Praying for you too! Take care of yourself
@@ukuleleme6055 thank you so much I never imagined this would have ever happened to me
Take care Samantha.