M.E. and me | Newsbeat Documentaries
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- เผยแพร่เมื่อ 7 พ.ค. 2018
- ME sufferer Emma Donohoe investigates how young people cope with the debilitating illness, of which symptoms can include devastating fatigue, digestion issues and brain fog. It comes as current treatments for the condition are being reviewed, after years of controversy.
Emma meets the mother of a 21 year old who died after suffering for years from ME and says her daughter’s condition is so stigmatised and misunderstood she was embarrassed to tell people what she was suffering from.
We discover it’s an illness which many doctors don’t understand and people still talk about “yuppy flu” - thinking sufferers are being lazy or too depressed to get out of bed.
My heart goes out to all ME sufferers, but especially to those who don't have a supporting circle of loved ones and professionals.
I have had ME/CFS for about 20 years now. It has robbed me of the possibility of having a career, a relationship, family, traveling... all kinds of things. I work a little, exercise a little, but everything wears me out. Thank heaven for my dog-- she loves me anyway! <3
I have M.E. I am a single mum so when I was bedbound, with eyemask and ear plugs etc, all the severe symptoms, my two daughters could not live with me for four years and I had to have full care. It was purgatory. My parents still do not believe I have M.E. The disbelief within the medical profession is unacceptable, and adds to families not believing.
I'm severely affected by M.E. Please believe us. I'm 49 and diagnosed 15 years. Had first collapse about 18 years ago. I fight every day of my life. Thanks for this documentary.
I have ME and have found absolutely NO support from any doctor, family members or friends. It's horrible.
Its 2020 my neighbor has cfs/me and can no longer work. Her disability has been denied. This is unacceptable and disgusting that people are being treated like this. The world needs to change and fix all these awfull diseases that people suffer from.
The husband of Sophie is so caring. The way he’s so gentle and tries his best to understand her needs and asks her what’s okay. He advocates for his wife and explains to people coming in. Get yourself a husband like Phil!
I'm also an ME sufferer although not as severe as many in this video. Thank you so much for this documentary. The hardest part of my disease has been dealing, not just with medical professionals who don't believe me, but coworkers and friends who think it's all in my head. It's so hard to deal with the illness, and this is only made worse when you feel there is no support around you.
I am 22 years young. Last year my body started giving up on me... constantly tired, my muscles in my legs where weak and constantly cramping, I could barely remember anything from the day before and my mind has been foggy, had zero appetite, stomach cramps, my eyes started feeling overly sensitive, HORRIBLE chest pains, struggle breathing. The list is LOOONG.
There should be a public inquiry into those unethical psychologists that took decades worth of funding, and the medical insurance industry who also benefited by not having to pay out patients, as they claimed ME/CFS was psychosomatic. Together these charlatans intentionally kept biological/medical research to a minimum via misappropriated funding by producing statistically questionable research results. Those results scared off biomedical researchers into avoiding looking at ME/CFS, leaving patients to suffer years longer than necessary. The whole thing is utterly appalling and ultimately greed driven.
It KILLS ME that most people around you STILL just think that everything is caused by depression and laziness! Or they just think you are bat shit crazy.
I am one of the lucky ones
I was diagnosed last year when I was 14. I’ve had to leave school, I’ve recently lost everyone, all my friends and my boyfriend never bothered to support me, so I’ve had to cut them off, I couldn’t deal with that treatment. I don’t have anyone else except my mum who I live with. I go out about once a week maybe, if I’m lucky. I don’t talk to anyone, I don’t have siblings and my dad hasn’t lived with me since I was seven. I already had depression and was suicidal, but now it’s so much worse. I’m getting help after a long time, but it’s not much. To everyone with this illness, I think about you all everyday and I don’t feel as lonely :)
This is literally the only time anyone has mentioned muscle spasms as a symptom of CFS. I thought it was just me, even my doctors didn't know what the spasms were caused by. This was helpful to see other people's experiences.
Ive been diagnosed for 21 yrs now. It's worse with each day.
my mom has M.E, she is the most wonderful and strongest woman I have ever known. I grew up with not too good conditions, but mom always made sure to keep them away from me. She used to be able to stand back then, she used to be able to look at a screen without getting dizy, she sued to be able to sit by the table while eating, she used to be able to talk in the phone for more than 30 seconds before getting exausted and fever-y.
I had no idea what ME/CFS was until I found this video. It’s heartbreaking and interesting. To be heard and not believed is something I understand completely, but to not believe physical symptoms and signs is insane-and then referring people to psychiatrists and them saying what they said?! It’s insane and I pray for anyone who suffers from this and hope there’s some way to manage and cure this. God bless you all. Thank you for educating those of us who have never heard of illnesses like this. ♥️
I'm 25 and have very recently finally been diagnosed with M.E after believing I had M.S. I've found it very difficult to cope with a 5 year old hyperactive little boy, and an 8 month old boy too. I sometimes have suicidal thoughts when things are very bad. But hearing you improved after a few years makes me feel hopeful.
I have ME and fibromyalgia and the last year has been tough. I feel so sorry for anyone with ME with children. It has to be so hard emotionally knowing you can't be the parent you probably hoped to be.
My wife had 4 children, also has ME/CFS , I did the child raising, but these events took her to near death relapses which lasted for many months to years, she still has ME/CFS.. the children have grown and left home, I am still her carer. but I see some improvements she has been ill these past 4 decades..(Australia)