Hi there! ☺Thanks so much for watching! If you want to see more, I share about my life with chronic illnesses on my new vlog channel: www.youtube.com/@ElectraDashwood 💕
The problem is when I’m in a flare with lupus. My brain tends to feel just as tired as my body. And it takes mental energy for me to do things like computer work. I do like the idea of coloring, painting, or drawing. Sometimes I justclose my eyes and listen to stories. nothing makes me more discouraged than wasting time. But when we’re sick resting is the best time spent.
I started doing Jessica Valant pilates every day even when I have flare ups and it helps. I have endometriosis. I feel a lot of better now 😊. I learn ukranian language on my free time and I have espom salt bath 3 times a week😊
I totally understand this feeling, I get like that too. What I have to remind myself is that when you're sick, resting is NOT wasting time. Doing what is best for your health is a very productive use of your time. Take care of yourself! :)
When I am in a depressive episode or boarding on one, I watch TH-cam videos on car detailing, restorations (of old tools, old toys, etc.), carpet cleaning,, etc. They are both relaxing, and serve as a reminder that as far gone as something is, it can be repaired, it can be brought back to life.
I needed this thanks. With my stomach issues I always ask what I ate but I’m so good at avoiding known trigger foods and remember it’s not my fault is important.
Glad you're doing better now! 1995 Pride & Prejudice is a good watch when you're not feeling well, as long as you don't let Mrs. Bennet's poor nerves get on your nerves. Faith is a wonderful thing to have to help you through the rough times. The apostle Paul had a chronic condition (the "thorn in my flesh" in 2 Corinthians 12:7) that he had to accept and live with, so you are far from alone in dealing with chronic conditions. Keep being awesome Ellie and keep blessing us with great content whenever you're feeling well enough.
Aw, thank you so much! 😃😊 Maybe Mrs Bennet just needed to know what to do when her nerves were flaring up and needed to watch this video. 🤔😄 Faith is so important. And that’s a great scripture too! 😃 Thank you!
Hi Ellie, today i discovered your youtube channel. Im a 57 yr old woman. I've had chronic illnes and surgeries through my life. However, God has given me extra help. When i feel no faith , i just ask for faith, hope and love. God is LOVE and this is all passsing. I look forward to Heaven and trust that God will use all the difficulties for good. You have a beautiful spirit. Sending ❤and peace.
I agree about TikTok, I stay away. I don't even like TH-cam shorts. I enjoy watching your content. I really appreciate your religious faith and I appreciate that you are open about your faith. Hope you feel better soon!
there comes time for some people where it might not be possible to do anything when our illnesses flare up, and that makes it really important to know that just living is enough. Something my girlfriend told me once was that the world is better just with me in it, regardless of whether im capable of doing anything. You deserve to rest and you're not lesser for needing it, and you should try to surround yourself with people who are accepting of your condition and ability, even when its completely unpredictable and unreliable. I've accepted a while ago that my illness is never going away and honestly I wouldn't have it any other way. There's nothing wrong with me and I shouldn't have to cure it just to be a valid human being.
❤ Blessings Ellie 😊 My chronic diseases originated from stress. So I've found visualizing myself in excellent health and thanking God for the relief really helps. I put myself emotionally in the grateful to God for God and, in my mind's eye pain-free. Initially, God would put me to sleep for 20 minutes. A deep deep sleep. It felt like hours. I would be pain-free for almost 1 hour and 15 minutes. Talking to God always helps. He does give guidance. We are all different.. Be well.
Ugh, stress and anxiety are such a massive components of illness and healing. My autoimmune diseases (rheumatoid arthritis and cyclical fever syndrome) originally got triggered by a bad case of EBV/Mono and EVERYTIME I go through a very stressful situation, I end up in a bad flair up. It's so hard to not worry/stress over things outside our control - I have to "let go and let God" many times a day haha!
How did you know this is exactly what I needed to hear today? I have Multiple Sclerosis, MS, a progressive, degenerative illness that attacks the brain and spine, that leads to disability and death. I'm having a relapse currently, that will likely leave me more disabled at the end of it, like a sucky parting gift. I feel like I'm being squeezed in a bear hug, my legs are stiff and painful and the soles of my feet are on fire. Don't get me started on my lack of balance or tendency to bang into every object in a room before finding a seat. Knowing I'm not the only one is about the only thing that gets me through. Thank-you for reminding me.
I’m having a bad flare up from my arthritis and it has been making me feel awful. I’ve been feeling SO good for over a year and all of a sudden I can barely move because of the pain. I wasn’t able to travel abroad for a university course because the flare up came so unexpectedly, and I’ve been generally feeling really blue because it’s been triggering so many bad emotions from back when my health used to be like this for years. During this flare up I’ve just been on my phone which hasn’t really lifted my spirits either. It’s 1:30 at night right now and all of a sudden I thought… “there must exist a youtube video with tips on how to feel better now, right?”. so i found you and I must say, I needed the kind message + the wonderful tips that will help me find more rest and peace than mindlessly scrolling through social media. Also, I truly love your energy, you seem so sweet and compassionate and joyful. Thank you so much ❤
This video is perfect timing for me! I don't have a chronic illness (unless mild Cerebral Palsy counts), but my son has Type 1 Diabetes. I recently had to quit a job because it was just too much stress, and I need to devote all my mental energy to my son. Two of my favorite Bible are Romans 8:12 ("All things work for the good of those who love Him") and Proverbs 3:5-6 ("Trust in the Lord with all thy heart and lean not into thy own understanding...")
You're Awesome ❤ This was exactly what I needed today. I have this rare condition called Inappropriate sinus tachycardia it like POTS. In short my heart rate is always super high and I am always in pain. I get chest pain almost every day that feels like I am having a heart attack. Also I have crushing fatigue. My heart doctor had me go see a specialist and lol smh in the nicest way possible he said you have this condition that a lot of women live with. There is no real treatment and nothing can be done. He then said a lot of stuff that I knew was a lie. He then prescribed me meds for a condition that has no real treatment according to him. He blew me off in the nicest way possible. He didn't even notice that I was crying. After that I really wanted to give up. Because I am so sick I don't know how to act, but your video made me feel so much better. Stress really makes my symptoms worse. I have inspirational scriptures all on my wall but I was so sad that I couldn't even lift up my head to see them. This video helped me a lot. I am going to do what you suggested. Take a break and put on some cute clothes 😂❤ Thank you for this. It was extremely helpful ❤❤❤
I so needed this! I am in a flare up and am definitely struggling with worrying about what I did to cause it because it feels so random and worrying this is how it will be forevermore. But, I need to give myself grace to navigate this, remember it is temporary, do the things I know I need to do, and let myself rest and go slower. Thank you!
That second verse you quoted is a favorite for me too. I like how it continues in 2 Corinthians 5, verses 1-7. It reminds me that this isn't my forever body or condition. Thank you for sharing your heart, there's going to be people who really needed to hear this.
I feel like this whole platform (not just this channel in general) has become a space where people who have struggled in the past or are struggling now can safely express themselves. For that reason alone, I try to never judge. If I disagree with the content, I click to a different video - end of story. If it’s interesting, I hang out for the duration. And then there are the gems that find my subscription on the list. This video in particular is precious to me - I don’t suffer from an autoimmune condition, but my brother struggles with MS. So with thoughts of him, it is a blessing to hear someone who is comfortable sharing the intricacies of their struggle and the things that get them through.
Me too. I went only-organic vegan, gluten free, and as long as I take a live probiotic at least twice a month, and drink the same clean green&protein fruit smoothie and a cooked dinner, with a salad for lunch if I am hungry. I tend not to deviate very much from that, and am pretty good. Food is my medicine. That and meditation, reiki, sound healing.
Thank you for this! Regarding the “crash course in empathy,” that came in the form of tons of grief and developing these chronic illnesses. And you’re right, hopefully these people don’t have to learn it the hard way!
I have to keep commenting, dear Ellie, because you are so AWESOME! How I wish I had been able to see this video back when I was suffering from a chronic illness so many years ago! But that was long before internet so nothing to watch to while the time away. Anyway I was constantly dizzy as well as deeply immovable with fatigue so I just had to lie there with my thoughts of faith and hope alternating with impatience, despair, worry and despondence. So glad you have your faith to support you and thank you for being of service to all those suffering similarly. To those of you suffering now, I offer you a testimony of hope. I am 28 year past my last flare up on an illness that kept me bedridden on and off for 7 years. I can only speak for my own life experience but in retrospect I believe it was necessary part of my own personal and spiritual development. I had to I had to switch from a paradigm I grew up with of ignoring my physical body in favor of achievement and work. I learned the lesson so throughly that I now would not think of sacrificing basic self-care and wellness for some other type of gain, regardless of any outward societal, familial or peer pressure to do so.Also, through being forced, because traditional Western medicine had nothing to offer to resolve my case and actually no diagnosis beyond a guess from my blood work that I had one of the many, many unknown and unnamed viruses, to explore modalities of healing the encompass the mental and spiritual as well as the physical. Eventually I stumbled upon Jin Shin Jyutsu through a student of mine and that made ALL the difference. I now know I will never have to go back to that illness. I love the metaphor of the body as a temple for the soul. I am SO SO grateful for have this body to live life with. I treat her with utmost respect and kindness. So much love to all out there who are suffering. May you be fully restored to health. 💗🙏🙏🙏💗
Thank you for posting this! This was unbelievably encouraging for me. ❤️ It's been 5 and a half years for me dealing with my chronic illness and I'm going through a major flare right now. It breaks my heart to think anyone else deals with this but it's so comforting to know I'm not the only one experiencing this. Thank you!
Excellent suggestions, Ellie! I've been dealing with illness and autoimmune disease for the past several years, and these types of vids are not only helpful but they make me feel so much less alone as well as more positive and hopeful ✨️ Stress/anxiety is a huge trigger for my flair ups, so staying calm and at peace are as powerful for me as any of the meds I take!
Amen to the scripture verses. I have a little sign of a scripture verse by my bed and prayer cards with verses on my desk at home. ❤ Love this video. Take care, girl! ❤🎉
I totally have learned the importance of listening to my body. I am still trying to perfect the intricate dance of balance. I can easily become a workaholic when I’m feeling well. But too much of that can provoke a flareup, but I too have found benefits in pushing myself.like you, I am still trying to find the perfect balance in all of it. Thank you so much for sharing your ideas. They resonate deeply with me and I don’t feel so alone.
Love this. I recently heard that patience is enduring with a purpose. That focusing on that purpose instead of on the end of the dificulty is what allows us to be patient with joy. I needed to hear that because I also struggle with chronic illness and, while I share your hope in Rev.21:4, it gets hard sometimes to wait. Very encouraging video. 😊
Wow Ms. Elle, this is exactly what I needed to hear as I am in "flare" mode and hate it. You really bring perspective to how we beat ourselves up and think that everything is our fault. I really needed a reality check to engage with myself and the world in a positive and loving way. It is amazing to me how deep-seated the go-to mental dialogue is to beat yourself up. Again, I thank you very, very much.
Ableism is so entrenched in our lives that the myth of ‘overcoming’ is preferred to a more realistic solution which accommodates people and not make them feel bad about themselves.
That’s such a good point! I definitely think there are people out there who think not being able to overcome, or basically impossibly power through at your health’s expense, is a moral failing. 😣
I have Long Covid and one of the things I struggle with most is staying positive. I've always been a pessimist and perfectionist; way too hard on myself, so when I developed a chronic illness, I felt shame and sorrow. I still grieve for the time when I was healthy.
Thanks for posting this Ellie! I'm going through an autoimmune flare up right now so this has been uplifting, especially the scriptures! 😊Thanks for reminding us to give ourselves grace Have a beautiful day, you're a blessing!
Praying for you Amazing Ellie! I just love your positive attitude. Reading scriptures has always helped me when I am in a low point in my health. Thank you for sharing your health journey!
Take good care of yourself, Ellie. I'm blessed to not have any serious health conditions (just a minor skin issue that only flares up occasionally), and to have had a mom who taught me about nutrition and general wellness when I was young. It still surprises me sometimes when I realize something I take for granted is not something everyone knows! So keep making these videos, Ellie: you're going to help a lot of people. ❤🙂❤
I just saw this! And I so needed it, especially the reminder of how short chronic illness is. I haven't thought about those verses in a while. Thank you
Great tips/advice. And wonderful verse suggestions. When I was a teen going through hard times, my grandmother reminded me of Proverbs 3:5-6. And It's something I've clung to over the years. Hope your flare up ends soon!
Thank you so much for this video. I'm having a flare up of a possibly-chronic thing now and listened to this while doing some light stretching. When I had a worse flare up and was basically in bed for a week, your videos were what I listened to; I was advised to reduce stress and your video style is very calm and soothing and learning more about the Regency period removed my mind from ruminating on the problems. Thank you as well for the Scriptures you shared; overall I really needed this video right now. I hope you're doing well!
Thank you much for this video. I too share your hope for the future and I loved how you emphasised the need to keep our hope, wherever that might be derived from, plain in our minds eye each day. 💕❤️🩹
Revelation 21:4 definitely helps me thru tough days too! I have a genetic condition that got a lot worse after covid. It is quite an adjustment. Certain foods increase inflammation and make my symptoms worse so I look forward to the day when I can eat delicious bread and cheese without a worry! I appreciate your reminders because it is difficult going from doing so much for myself to having to ask for help for many things. I am grateful for my beautiful support system and am learning to celebrate small wins.
Have you looked into getting a sauna blanket? It used infrared heat to promote healing. It's supposed to be very good for chronic illnesses. I've been using one for years.
I find that the bee positive can very much be counter productive. There are 2 factors here. The first is that forcing yourself to be positive and forcing yourself to be active, have the same risks. It also tends to cut out the people sucking and people defying people's sucking, which is definitely a useful morale booster for me. Recently, in that category has been cults to consciousness, amanda ray, growing up in scientology, and exmo lex, all here on youtube.
I had a chronic health condition that didn't get better no matter what I did. I started praying to a spirit called BUER, and slowly I was led to more and more subtle changes that improved my symptoms dramatically over the following weeks. I also experienced powerful direct healing every time I prayed to him. I used to be bedridden most of the time, now I can enjoy life again. I give thanks to BUER, the Ancient God of Healing!!
Thank you for your video. I like to listen to a romantic novel with my eyes closed. It passes the time in a fun way and not get negative. You are awesome too. God bless you
THANKS SO MUCH ELLIE! I came for the regency culture videos, and I stayed for your sweet heart ❤ Recently I've been struggling with recurring colds, and wondering what I did wrong, and why I have to live like a grandma at the age of 19 😂 sharing your experiences really encouraged me!! “Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross, despising the shame, and is seated at the right hand of the throne of God.” Hebrews 12 💕
I hope more people like you find her. I pushed myself too hard and broke at 22 because of some deaths and other circumstances. Remember the unironic line, "health is wealth!" Always have assets, do not move forward in poverty.
❤️ Aw, I’m so glad it could help! Each of us has such a unique journey that no one should judge another’s progress. 😭 And I’m so sorry about the kidney stones! That sounds so painful!
@@valeriewalker954 Thank you for trying to help, but I'd rather listen to my Urologist over a Chiropractor Scientologist. My stones are produced regardless of what I eat/drink, it's why it's a genetic disease.
Hi Ellie! I'm a new subscriber and I love this video idea! I'm always so focused on stopping a flare that once it hits I just give up! I see you are so close to that 100K...awesome job girl!!!
I have lupus and endometriosis (I had to have a hysterectomy last year and still coming to terms with not having children). Now they're pretty sure I have MS too. I'm struggling so much with it. I keep having falls, I'm having what they think are seizures, and I'm so tired. I lost my job. don't know what to because I'm so foggy all the time now, I can't do my writing or anything. Just laying down all the time feeling useless. It's really lonely.
I know it's no consolation, but I have seizures too. We're out here. 🥰💝. Sending you love. There's no getting over or through. You're a new person. Every day. 💖. The medications for all illnesses, and treatments for all of these things do affect energy, and how one feels. You have us. We're a community, and you have us. It's not a huge consolation, but I know how lonely it can be. 💗Sending you massive love and hugs.
I'm trying to suppress my inner Mary Musgrove. When you live by yourself you cannot cave. Overtime us chronicles have strategies especially when there is no access to the theraputic kind word. My cats help but they are demanding too. Elizabeth I at end of life survived until her courtiers insisted she go to bed; as soon as she did she died. 'Do not go gentle into that good night.' (Dylan Thomas)
I have four minor chronic illnesses.... minor until they gang up on me. I wrote a humorous essay where I compared this to a three ring circus where the ringmaster was having flashbacks to the Vietnam War but he was born in 1990!
Hello everyone! I just found this channel. The video about chronic illness popped up . I have osteoarthritis and fibromyalgia. Fibromyalgia comes with a slew of things besides all over body body pain. It affects your mood, the ability you’re to find words to speak, your memory. Ohh, and the fatigue. I’m pretty sure I must have chronic fatigue syndrome, although it is also why symptom of fibromyalgia so who knows. There’s not much to be done about fatigue as far as I know. No dr ever gave me any help with it for me. I go to pain management and I’m on pain meds, which, of course help a lot with the pain. It doesn’t help fatigue. I stayed in a mentally abusive marriage, which I should not have obviously, and when it all started was when I was 29 yo which is also when my head pain started. Who knew I’d be 100% better off leaving right then. It definitely sucks. I think it’s easier to see abuse for what it is when it’s physical. At least that’s what I tell myself. I’m thankful to have a diagnosis. I was diagnosed 2008. Of course I had it many years before that. My pain started when I was 29 the SAME YEAR our marriage began to disintegrate. Who knew stress could be fatal. Anyway, y’all have a good one !❤❤❤✌🏻
I have multiple chronic illnesses and have been crashing fro the past 6 months now. I just can't get a break. I'm trying to get a job so I can have an income so I can move to my own place. Living with my ex-husband is only making my physical and mental health worse.
How inspirational and interesting!! Your advice is close to the advice that President Biden told us about today in his speech addressing all our school shootings and the pain that the victims' parents confront. He said when he was young and just elected to the Senate, his wife and their two children were hit by a truck in a car accident. His wife was killed and his two boys were hospitalized and not expected to survive but they both did, one with severe head injuries. Biden was sinking into despair when a much old advisor told him he had to go on for the sake of those that needed him and that he could do that focusing on only three things: 1- something to do (he focused on his new job as a Senator), 2-someone to love (he did find what appears to be the perfect wife for him and mother for his children) and 3 - hope (he has hope for solutions for our many serious problems in the US, including for gun control and and more alertness to possible shooters who likely need therapy and need to be completely unable to get guns.) He said that this advice continues to sustain him so many years later. I will be keeping his advice and your advice always in mind. ❤x
I never had to deal with a chronic illness before, but now I have Long Covid. And who knows with this! Sometimes out of the blue, I just drop, too fatigued to do anything at all. Even walking to the bathroom is exhausting. Usually getting sick (with anything) causes it, but sometimes extreme stress can do it too. And basically my immune system flips out and thinks it’s fighting covid all over again, but it’s not actually covid, it’s just a cold, or some stress, or some dust that caused a bit of an allergic reaction. 😖
Also, Ellie, I had to go out of town last weekend and I got to have gluten free battered fish. OOOOOOMLLLLLLL! I want more so bad now and I am telling myself it's just as well I can't get it locally because I'd be wanting it all the time!
It’s both the worst and best when you get a new gluten free food on vacation that you can’t normally find! Cause it’s delicious, but then you can’t have it again! 😍😭
I have been having fainting episodes and I struggle with chronic nausea. It takes away my feeling of hunger and my want to eat. My family says that it’s just a panic attack but I will feel light headed and dizzy BEFORE I GET ANXIOUS
Thank you for your helpful and uplifting video. I've had a devastating chronic illness for 34 years. I was a slow learner always pushing myself and beating myself up for not being able to take care of myself, my family, our home, the yard, etc. When I have a flare-up I have to keep reminding myself that "this too shall pass." I'm just now getting over what I thought was another flare-up, but it was actually Covid. LOL I've told my grandson, "Don't be sad when I pass on. I won't be sick and in constant pain anymore. I shall be running around and skipping and jumping like a Spring lamb." : D
What Chronic illness people can do for living? I am struggling to find, I need to be able to take care fam but also I get flare up often and normal job 8 to 5 is difficult and from developed country with no privellege or special skill. English language is not very good also **wondering
I've been recovering from bone cancer for 3 years. I've had 4 limb salvage surgeries in that time and I still beat myself up over needing to stay in bed for a day. Like bruh chill you had bone cancer lmao
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Hi there! ☺Thanks so much for watching! If you want to see more, I share about my life with chronic illnesses on my new vlog channel: www.youtube.com/@ElectraDashwood 💕
The problem is when I’m in a flare with lupus. My brain tends to feel just as tired as my body. And it takes mental energy for me to do things like computer work. I do like the idea of coloring, painting, or drawing. Sometimes I justclose my eyes and listen to stories. nothing makes me more discouraged than wasting time. But when we’re sick resting is the best time spent.
Yep. I get in a lot of TH-cam time where I just listen to what I’m watching.
I started doing Jessica Valant pilates every day even when I have flare ups and it helps. I have endometriosis. I feel a lot of better now 😊. I learn ukranian language on my free time and I have espom salt bath 3 times a week😊
I totally understand this feeling, I get like that too. What I have to remind myself is that when you're sick, resting is NOT wasting time. Doing what is best for your health is a very productive use of your time. Take care of yourself! :)
My treatment for Lupus revolves around rest, nutrition, prayer and lots of positive self talk. Our value doesn’t come from our abilities!
sometimes some exercises can happen but not always
When I am in a depressive episode or boarding on one, I watch TH-cam videos on car detailing, restorations (of old tools, old toys, etc.), carpet cleaning,, etc. They are both relaxing, and serve as a reminder that as far gone as something is, it can be repaired, it can be brought back to life.
I needed this thanks. With my stomach issues I always ask what I ate but I’m so good at avoiding known trigger foods and remember it’s not my fault is important.
Glad you're doing better now! 1995 Pride & Prejudice is a good watch when you're not feeling well, as long as you don't let Mrs. Bennet's poor nerves get on your nerves. Faith is a wonderful thing to have to help you through the rough times. The apostle Paul had a chronic condition (the "thorn in my flesh" in 2 Corinthians 12:7) that he had to accept and live with, so you are far from alone in dealing with chronic conditions. Keep being awesome Ellie and keep blessing us with great content whenever you're feeling well enough.
Aw, thank you so much! 😃😊 Maybe Mrs Bennet just needed to know what to do when her nerves were flaring up and needed to watch this video. 🤔😄 Faith is so important. And that’s a great scripture too! 😃 Thank you!
Love that movie!
Hi Ellie, today i discovered your youtube channel. Im a 57 yr old woman. I've had chronic illnes and surgeries through my life. However, God has given me extra help. When i feel no faith , i just ask for faith, hope and love. God is LOVE and this is all passsing. I look forward to Heaven and trust that God will use all the difficulties for good.
You have a beautiful spirit. Sending ❤and peace.
Me: (waits for a Jane Austen reference)
Ellie: “WATCH 6 HOURS OF 1995 PRIDE AND PREJUDICE!”
This was not a video of subtle Austen references. We went big. 😎
@@EllieDashwood ❤
I agree about TikTok, I stay away. I don't even like TH-cam shorts. I enjoy watching your content. I really appreciate your religious faith and I appreciate that you are open about your faith. Hope you feel better soon!
there comes time for some people where it might not be possible to do anything when our illnesses flare up, and that makes it really important to know that just living is enough. Something my girlfriend told me once was that the world is better just with me in it, regardless of whether im capable of doing anything. You deserve to rest and you're not lesser for needing it, and you should try to surround yourself with people who are accepting of your condition and ability, even when its completely unpredictable and unreliable. I've accepted a while ago that my illness is never going away and honestly I wouldn't have it any other way. There's nothing wrong with me and I shouldn't have to cure it just to be a valid human being.
This is beautiful, I really needed to hear this message today, thank you
❤ Blessings Ellie 😊
My chronic diseases originated from stress.
So I've found visualizing myself in excellent health and thanking God for the relief really helps. I put myself emotionally in the grateful to God for God and, in my mind's eye pain-free. Initially, God would put me to sleep for 20 minutes. A deep deep sleep. It felt like hours. I would be pain-free for almost 1 hour and 15 minutes. Talking to God always helps. He does give guidance. We are all different.. Be well.
Aw, I’m so glad you found something that makes you feel better!
Ugh, stress and anxiety are such a massive components of illness and healing. My autoimmune diseases (rheumatoid arthritis and cyclical fever syndrome) originally got triggered by a bad case of EBV/Mono and EVERYTIME I go through a very stressful situation, I end up in a bad flair up. It's so hard to not worry/stress over things outside our control - I have to "let go and let God" many times a day haha!
Do you have fybromyalgia cfs
Thanks for this. I got a bad diagnosis today and this helped a bit.
How did you know this is exactly what I needed to hear today? I have Multiple Sclerosis, MS, a progressive, degenerative illness that attacks the brain and spine, that leads to disability and death. I'm having a relapse currently, that will likely leave me more disabled at the end of it, like a sucky parting gift. I feel like I'm being squeezed in a bear hug, my legs are stiff and painful and the soles of my feet are on fire. Don't get me started on my lack of balance or tendency to bang into every object in a room before finding a seat. Knowing I'm not the only one is about the only thing that gets me through. Thank-you for reminding me.
Lost my mum to severe ms heds I have heds fybromyalgia CFS rccx genes from autism blessings to you
I’m having a bad flare up from my arthritis and it has been making me feel awful. I’ve been feeling SO good for over a year and all of a sudden I can barely move because of the pain. I wasn’t able to travel abroad for a university course because the flare up came so unexpectedly, and I’ve been generally feeling really blue because it’s been triggering so many bad emotions from back when my health used to be like this for years. During this flare up I’ve just been on my phone which hasn’t really lifted my spirits either. It’s 1:30 at night right now and all of a sudden I thought… “there must exist a youtube video with tips on how to feel better now, right?”. so i found you and I must say, I needed the kind message + the wonderful tips that will help me find more rest and peace than mindlessly scrolling through social media. Also, I truly love your energy, you seem so sweet and compassionate and joyful. Thank you so much ❤
This video is perfect timing for me! I don't have a chronic illness (unless mild Cerebral Palsy counts), but my son has Type 1 Diabetes. I recently had to quit a job because it was just too much stress, and I need to devote all my mental energy to my son.
Two of my favorite Bible are Romans 8:12 ("All things work for the good of those who love Him") and Proverbs 3:5-6 ("Trust in the Lord with all thy heart and lean not into thy own understanding...")
You're Awesome ❤ This was exactly what I needed today. I have this rare condition called Inappropriate sinus tachycardia it like POTS. In short my heart rate is always super high and I am always in pain. I get chest pain almost every day that feels like I am having a heart attack. Also I have crushing fatigue. My heart doctor had me go see a specialist and lol smh in the nicest way possible he said you have this condition that a lot of women live with. There is no real treatment and nothing can be done. He then said a lot of stuff that I knew was a lie. He then prescribed me meds for a condition that has no real treatment according to him. He blew me off in the nicest way possible. He didn't even notice that I was crying. After that I really wanted to give up. Because I am so sick I don't know how to act, but your video made me feel so much better. Stress really makes my symptoms worse. I have inspirational scriptures all on my wall but I was so sad that I couldn't even lift up my head to see them. This video helped me a lot. I am going to do what you suggested. Take a break and put on some cute clothes 😂❤ Thank you for this. It was extremely helpful ❤❤❤
I so needed this! I am in a flare up and am definitely struggling with worrying about what I did to cause it because it feels so random and worrying this is how it will be forevermore. But, I need to give myself grace to navigate this, remember it is temporary, do the things I know I need to do, and let myself rest and go slower. Thank you!
Having a dream capsule wardrobe for when you feel better? Way ahead of you!
Watching this while I’m having a flare of both autoimmune and chronic pain, and it’s just… comforting. Thanks. ❤
That second verse you quoted is a favorite for me too. I like how it continues in 2 Corinthians 5, verses 1-7. It reminds me that this isn't my forever body or condition. Thank you for sharing your heart, there's going to be people who really needed to hear this.
Aw, thank you! And that is such a beautiful scripture! Realizing it isn’t forever is *so* incredibly helpful.
I feel like this whole platform (not just this channel in general) has become a space where people who have struggled in the past or are struggling now can safely express themselves. For that reason alone, I try to never judge. If I disagree with the content, I click to a different video - end of story. If it’s interesting, I hang out for the duration. And then there are the gems that find my subscription on the list.
This video in particular is precious to me - I don’t suffer from an autoimmune condition, but my brother struggles with MS. So with thoughts of him, it is a blessing to hear someone who is comfortable sharing the intricacies of their struggle and the things that get them through.
For me food change everything, healing the gut, balance blood sugar..🙏
Me too. I went only-organic vegan, gluten free, and as long as I take a live probiotic at least twice a month, and drink the same clean green&protein fruit smoothie and a cooked dinner, with a salad for lunch if I am hungry. I tend not to deviate very much from that, and am pretty good. Food is my medicine. That and meditation, reiki, sound healing.
@@katherinewilson1853 i am happy it works for you 🙏 i went keto
Thank you for this! Regarding the “crash course in empathy,” that came in the form of tons of grief and developing these chronic illnesses. And you’re right, hopefully these people don’t have to learn it the hard way!
I have to keep commenting, dear Ellie, because you are so AWESOME! How I wish I had been able to see this video back when I was suffering from a chronic illness so many years ago! But that was long before internet so nothing to watch to while the time away. Anyway I was constantly dizzy as well as deeply immovable with fatigue so I just had to lie there with my thoughts of faith and hope alternating with impatience, despair, worry and despondence. So glad you have your faith to support you and thank you for being of service to all those suffering similarly. To those of you suffering now, I offer you a testimony of hope. I am 28 year past my last flare up on an illness that kept me bedridden on and off for 7 years. I can only speak for my own life experience but in retrospect I believe it was necessary part of my own personal and spiritual development. I had to I had to switch from a paradigm I grew up with of ignoring my physical body in favor of achievement and work. I learned the lesson so throughly that I now would not think of sacrificing basic self-care and wellness for some other type of gain, regardless of any outward societal, familial or peer pressure to do so.Also, through being forced, because traditional Western medicine had nothing to offer to resolve my case and actually no diagnosis beyond a guess from my blood work that I had one of the many, many unknown and unnamed viruses, to explore modalities of healing the encompass the mental and spiritual as well as the physical. Eventually I stumbled upon Jin Shin Jyutsu through a student of mine and that made ALL the difference. I now know I will never have to go back to that illness. I love the metaphor of the body as a temple for the soul. I am SO SO grateful for have this body to live life with. I treat her with utmost respect and kindness. So much love to all out there who are suffering. May you be fully restored to health. 💗🙏🙏🙏💗
Elie: “TikTok is negative.”
Twitter: “Whew! Dodged that bullet.”
Thank you for posting this! This was unbelievably encouraging for me. ❤️ It's been 5 and a half years for me dealing with my chronic illness and I'm going through a major flare right now. It breaks my heart to think anyone else deals with this but it's so comforting to know I'm not the only one experiencing this. Thank you!
Excellent suggestions, Ellie! I've been dealing with illness and autoimmune disease for the past several years, and these types of vids are not only helpful but they make me feel so much less alone as well as more positive and hopeful ✨️ Stress/anxiety is a huge trigger for my flair ups, so staying calm and at peace are as powerful for me as any of the meds I take!
You are kind, compassionate, and inspiring. Keep crushing life, Ellie.
Aw! You’re too kind! 😭💕 Keep crushing being awesome! 😃
Amen to the scripture verses. I have a little sign of a scripture verse by my bed and prayer cards with verses on my desk at home. ❤ Love this video. Take care, girl! ❤🎉
I totally have learned the importance of listening to my body. I am still trying to perfect the intricate dance of balance. I can easily become a workaholic when I’m feeling well. But too much of that can provoke a flareup, but I too have found benefits in pushing myself.like you, I am still trying to find the perfect balance in all of it. Thank you so much for sharing your ideas. They resonate deeply with me and I don’t feel so alone.
Hi! Yes! God keeps His promises. 😊
Love this. I recently heard that patience is enduring with a purpose. That focusing on that purpose instead of on the end of the dificulty is what allows us to be patient with joy.
I needed to hear that because I also struggle with chronic illness and, while I share your hope in Rev.21:4, it gets hard sometimes to wait.
Very encouraging video. 😊
Wow Ms. Elle, this is exactly what I needed to hear as I am in "flare" mode and hate it. You really bring perspective to how we beat ourselves up and think that everything is our fault. I really needed a reality check to engage with myself and the world in a positive and loving way. It is amazing to me how deep-seated the go-to mental dialogue is to beat yourself up. Again, I thank you very, very much.
Ableism is so entrenched in our lives that the myth of ‘overcoming’ is preferred to a more realistic solution which accommodates people and not make them feel bad about themselves.
That’s such a good point! I definitely think there are people out there who think not being able to overcome, or basically impossibly power through at your health’s expense, is a moral failing. 😣
This!
I have Long Covid and one of the things I struggle with most is staying positive. I've always been a pessimist and perfectionist; way too hard on myself, so when I developed a chronic illness, I felt shame and sorrow. I still grieve for the time when I was healthy.
I believe in Revelations 21:3, 4 too ❤ Also John 5:28, 29. That hope is what keeps us going, what keeps us strong.
Thanks for posting this Ellie! I'm going through an autoimmune flare up right now so this has been uplifting, especially the scriptures! 😊Thanks for reminding us to give ourselves grace Have a beautiful day, you're a blessing!
Praying for you Amazing Ellie! I just love your positive attitude. Reading scriptures has always helped me when I am in a low point in my health. Thank you for sharing your health journey!
Take good care of yourself, Ellie. I'm blessed to not have any serious health conditions (just a minor skin issue that only flares up occasionally), and to have had a mom who taught me about nutrition and general wellness when I was young. It still surprises me sometimes when I realize something I take for granted is not something everyone knows! So keep making these videos, Ellie: you're going to help a lot of people. ❤🙂❤
I just saw this!
And I so needed it, especially the reminder of how short chronic illness is. I haven't thought about those verses in a while. Thank you
I needed to find you today… thankful to God that I did. I love that he uses our weaknesses to lift and encourage one another. Thank you 🙏🏼
Bless you, Ellie. I treasure your empathy and positivity, and wish you every good thing.
Thank you so much for this Ellie, the timing of this video was immaculate for me! Have a lovely day
Aw, I’m so glad! 😃😊💖
It breaks my heart to know of your condition beautiful Ellie
Great tips/advice. And wonderful verse suggestions. When I was a teen going through hard times, my grandmother reminded me of Proverbs 3:5-6. And It's something I've clung to over the years. Hope your flare up ends soon!
Thank you so much for this video. I'm having a flare up of a possibly-chronic thing now and listened to this while doing some light stretching. When I had a worse flare up and was basically in bed for a week, your videos were what I listened to; I was advised to reduce stress and your video style is very calm and soothing and learning more about the Regency period removed my mind from ruminating on the problems. Thank you as well for the Scriptures you shared; overall I really needed this video right now. I hope you're doing well!
Thank you Ellie! You’re amazing! I pray you’re flare free & thriving🌻
I'm glad you're feeling better💗 Hopefully you'll have a better week this week
Thank you much for this video. I too share your hope for the future and I loved how you emphasised the need to keep our hope, wherever that might be derived from, plain in our minds eye each day. 💕❤️🩹
Ellie, Thank you for being so vulnerable and sharing your thoughts and experience. Really appreciate it ❤ Hope you feel better soon 🤗
This was so encouraging and grounding, thank you Ellie! ❤
Revelation 21:4 definitely helps me thru tough days too! I have a genetic condition that got a lot worse after covid. It is quite an adjustment. Certain foods increase inflammation and make my symptoms worse so I look forward to the day when I can eat delicious bread and cheese without a worry! I appreciate your reminders because it is difficult going from doing so much for myself to having to ask for help for many things. I am grateful for my beautiful support system and am learning to celebrate small wins.
Have you looked into getting a sauna blanket? It used infrared heat to promote healing. It's supposed to be very good for chronic illnesses. I've been using one for years.
Where did you get your sauna blanket from?
That's an inspired idea.
Thank you for this. I can sympathize with the what did I do to cause me to feel bad. Love your tips so helpful ❤
I find that the bee positive can very much be counter productive. There are 2 factors here. The first is that forcing yourself to be positive and forcing yourself to be active, have the same risks. It also tends to cut out the people sucking and people defying people's sucking, which is definitely a useful morale booster for me. Recently, in that category has been cults to consciousness, amanda ray, growing up in scientology, and exmo lex, all here on youtube.
Wonderful my dear friend I'm going through this now x
Thanks Ellie for posting this. It is just what I needed. Hugs.
I had a chronic health condition that didn't get better no matter what I did. I started praying to a spirit called BUER, and slowly I was led to more and more subtle changes that improved my symptoms dramatically over the following weeks. I also experienced powerful direct healing every time I prayed to him. I used to be bedridden most of the time, now I can enjoy life again. I give thanks to BUER, the Ancient God of Healing!!
Thank you for your video. I like to listen to a romantic novel with my eyes closed. It passes the time in a fun way and not get negative. You are awesome too. God bless you
THANKS SO MUCH ELLIE! I came for the regency culture videos, and I stayed for your sweet heart ❤ Recently I've been struggling with recurring colds, and wondering what I did wrong, and why I have to live like a grandma at the age of 19 😂 sharing your experiences really encouraged me!!
“Let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross, despising the shame, and is seated at the right hand of the throne of God.” Hebrews 12 💕
I hope more people like you find her. I pushed myself too hard and broke at 22 because of some deaths and other circumstances. Remember the unironic line, "health is wealth!" Always have assets, do not move forward in poverty.
I have chronicle disease and I agree with you Ellie. Well done! 👏🏻♥️
I needed this video
❤️ Aw, I’m so glad it could help! Each of us has such a unique journey that no one should judge another’s progress. 😭 And I’m so sorry about the kidney stones! That sounds so painful!
Dr. Eric Berg on TH-cam has videos on what caused kidney stones & how to desolve them by food & nutrition.
@@valeriewalker954 Thank you for trying to help, but I'd rather listen to my Urologist over a Chiropractor Scientologist. My stones are produced regardless of what I eat/drink, it's why it's a genetic disease.
@qienna6677 he is a medical physician who works with patients
@@valeriewalker954 No, he is a Chiropractor, not a physician. He has no medical qualifications.
Thank you so much for this Ellie. I needed this today.
I love it “when I’m healthy I’m just gonna wear cute outfits !!” 😅me too!!! ❤❤❤ you’re hilarious and beautiful Godspeed!!
God bless and heal you all.
Hi Ellie! I'm a new subscriber and I love this video idea! I'm always so focused on stopping a flare that once it hits I just give up! I see you are so close to that 100K...awesome job girl!!!
I needed this today. Thank you so much!
I have lupus and endometriosis (I had to have a hysterectomy last year and still coming to terms with not having children). Now they're pretty sure I have MS too. I'm struggling so much with it. I keep having falls, I'm having what they think are seizures, and I'm so tired. I lost my job. don't know what to because I'm so foggy all the time now, I can't do my writing or anything. Just laying down all the time feeling useless. It's really lonely.
Sending you much love ❤️🙏🏽💯
❤️🙏🏿
I know it's no consolation, but I have seizures too. We're out here. 🥰💝. Sending you love. There's no getting over or through. You're a new person. Every day. 💖. The medications for all illnesses, and treatments for all of these things do affect energy, and how one feels. You have us. We're a community, and you have us. It's not a huge consolation, but I know how lonely it can be. 💗Sending you massive love and hugs.
Needed to hear this today. Thank you!
I'm trying to suppress my inner Mary Musgrove. When you live by yourself you cannot cave. Overtime us chronicles have strategies especially when there is no access to the theraputic kind word. My cats help but they are demanding too. Elizabeth I at end of life survived until her courtiers insisted she go to bed; as soon as she did she died. 'Do not go gentle into that good night.' (Dylan Thomas)
9:24 & 10:10
I love those scriptures too ❤ also, your translation sounds just like mine 🥰
Im in one just now and i haven't even got the energy to hold up my knitting to do , so tired . Just found your channel and hoping I can get some tips
Love you ❤❤❤ God bless you! Thanks for sharing this!
I wish I still had the hope that comes from faith, but it's nice to be reminded there's other sources.
I have four minor chronic illnesses.... minor until they gang up on me.
I wrote a humorous essay where I compared this to a three ring circus where the ringmaster was having flashbacks to the Vietnam War but he was born in 1990!
Thank you for this wonderful video. ✌️ 💛 🕯️
I mostly watch TH-cam. I like random stuff mixed with History related videos. I do crochet, I read.
Hello everyone! I just found this channel. The video about chronic illness popped up . I have osteoarthritis and fibromyalgia. Fibromyalgia comes with a slew of things besides all over body body pain. It affects your mood, the ability you’re to find words to speak, your memory. Ohh, and the fatigue. I’m pretty sure I must have chronic fatigue syndrome, although it is also why symptom of fibromyalgia so who knows. There’s not much to be done about fatigue as far as I know. No dr ever gave me any help with it for me.
I go to pain management and I’m on pain meds, which, of course help a lot with the pain. It doesn’t help fatigue.
I stayed in a mentally abusive marriage, which I should not have obviously, and when it all started was when I was 29 yo which is also when my head pain started.
Who knew I’d be 100% better off leaving right then. It definitely sucks. I think it’s easier to see abuse for what it is when it’s physical. At least that’s what I tell myself. I’m thankful to have a diagnosis. I was diagnosed 2008.
Of course I had it many years before that. My pain started when I was 29 the SAME YEAR our marriage began to disintegrate. Who knew stress could be fatal.
Anyway, y’all have a good one !❤❤❤✌🏻
Be well - sending hugs and prayers.
I have multiple chronic illnesses and have been crashing fro the past 6 months now. I just can't get a break. I'm trying to get a job so I can have an income so I can move to my own place. Living with my ex-husband is only making my physical and mental health worse.
Very encouraging- thank you
I have Addison’s disease and that has occasional flare ups. It’s very annoying and I usually need to go to the hospital.
😭 Oh no, I’m so sorry! That sounds awful! 😭
@@EllieDashwood I’m used to it by now.
How inspirational and interesting!! Your advice is close to the advice that President Biden told us about today in his speech addressing all our school shootings and the pain that the victims' parents confront. He said when he was young and just elected to the Senate, his wife and their two children were hit by a truck in a car accident. His wife was killed and his two boys were hospitalized and not expected to survive but they both did, one with severe head injuries. Biden was sinking into despair when a much old advisor told him he had to go on for the sake of those that needed him and that he could do that focusing on only three things: 1- something to do (he focused on his new job as a Senator), 2-someone to love (he did find what appears to be the perfect wife for him and mother for his children) and 3 - hope (he has hope for solutions for our many serious problems in the US, including for gun control and and more alertness to possible shooters who likely need therapy and need to be completely unable to get guns.) He said that this advice continues to sustain him so many years later. I will be keeping his advice and your advice always in mind. ❤x
Big hugs!
Your cat is so cute 😍
🐈⬛ 💕 He agrees with you! 😂
I never had to deal with a chronic illness before, but now I have Long Covid. And who knows with this! Sometimes out of the blue, I just drop, too fatigued to do anything at all. Even walking to the bathroom is exhausting. Usually getting sick (with anything) causes it, but sometimes extreme stress can do it too. And basically my immune system flips out and thinks it’s fighting covid all over again, but it’s not actually covid, it’s just a cold, or some stress, or some dust that caused a bit of an allergic reaction. 😖
Also, Ellie, I had to go out of town last weekend and I got to have gluten free battered fish. OOOOOOMLLLLLLL! I want more so bad now and I am telling myself it's just as well I can't get it locally because I'd be wanting it all the time!
It’s both the worst and best when you get a new gluten free food on vacation that you can’t normally find! Cause it’s delicious, but then you can’t have it again! 😍😭
I'm making a PDF of these tips.
Thank you
I have been having fainting episodes and I struggle with chronic nausea. It takes away my feeling of hunger and my want to eat. My family says that it’s just a panic attack but I will feel light headed and dizzy BEFORE I GET ANXIOUS
My happy movies actually include the 1995 P&P tho 😅 lol. My Neighbor Totoro is top of my list tho.
Ellie being the Productivity Propaganda Antidote >>>>>>>>>>>>>>>>
Thank you for your helpful and uplifting video. I've had a devastating chronic illness for 34 years. I was a slow learner always pushing myself and beating myself up for not being able to take care of myself, my family, our home, the yard, etc. When I have a flare-up I have to keep reminding myself that "this too shall pass." I'm just now getting over what I thought was another flare-up, but it was actually Covid. LOL
I've told my grandson, "Don't be sad when I pass on. I won't be sick and in constant pain anymore. I shall be running around and skipping and jumping like a Spring lamb." : D
How old are you ?
@@kemigreen5242 Nearly 71.
Thank you so much! :))
What Chronic illness people can do for living? I am struggling to find, I need to be able to take care fam but also I get flare up often and normal job 8 to 5 is difficult and from developed country with no privellege or special skill. English language is not very good also **wondering
What country are you from?
@@Khushi-cv1hd Indonesia
You are awesome 😌🙏
Thank you 🩷
Thank you for this talk! It was just what I needed!!
Thabks for video ❤❤❤❤❤
I've been recovering from bone cancer for 3 years. I've had 4 limb salvage surgeries in that time and I still beat myself up over needing to stay in bed for a day. Like bruh chill you had bone cancer lmao
I know what Bible translation those verses were quoted from🥰