My partner has two Harrington rods in his spine. He fell years ago and often loses feeling in his leg now. The dr flat turned him away from treatment when they realized he had no insurance. Yet, the kicker is, he’s not considered disabled enough for disability and was turned down for that too. The system will make one go crazy. Just sitting in pain watching life go by
That's so often what happens to pain patients who are either not insured or have low-level insurance. Should be Criminal for medical professionals to refuse to help based on damn Money!! 😠 About being denied Disability,.. you guys Need to look up a law firm who handles disability claims. They are very good at what they do, and will NOT charge you unless you win your case. And then their pay comes out of your back-pay check. It is well worth it!! Btw...almost Everyone is denied with their first time applying for disability. The disability lawyer will file an Appeal for your partner and get the ball rolling!😉 Good luck!😊
I too have two Harrington rods in my back top to bottom! I was 14 when I had the spinal fusion and I’ve had really bad pain ever since then so for the last 23 years, I’ve been dealing with some pretty crazy pain but the last eight years it’s been on a daily basis constant getting worse new diagnosis’ can’t walk anymore. Can’t bathe myself. Can’t clean my home. Can’t do nothing! I fought for disability for six years And I had a disability representative. I finally won my disability case this year! Don’t give up. Pain sucks not being able to get the proper care and treatment is horrible.
I've had 2 failed back surgeries. Had pain implant put in. Didn't even get to turn it on. I got a staph infection. 6 days after surgery, after they wouldn't listen to me something is wrong. They wouldn't call me back until I had my son take pictures and it exploded. Went back to the office and made them listen. The waiting room is full of future patients. I knew I was going back to surgery next morning. I was in the hospital for a month getting 4 strong IVs a day. It felt so much better after I woke up. It was unclean when it went in. They actually asked me if I wanted to try again. No thank you, I'll pass. I got to go home after that mo to go back everyday for 2 IVs for the following 6 weeks. They put a pick line in. It was great for 2 days. They took it out. Why did they put it in. I got no answers. Back to pain Dr. I think he's great but afraid to ask him if I can bump up a little. My whole spine still hurts. Legs hips. I had a fusion done no help.
If he/she can prove they have permanent nerve damage, such as with imaging and possibly an EMG, and I know all of this takes money, but if It can be proved, I was told when I was applying for disability these words, pain will get you possibly 2 yrs., permanent nerve damage could possibly win your case, depending on which state you live in and their guidelines.
Yep! We get treated like we choose it. We get treated like we are weak. We get treated like we are burdens on society. We aren’t believed. We receive no compassion. It is sad
Very true. I had a failed back surgery, and since 2013 I’ve had a tough time. Yes, thoughts on different things come across in your head. Sad, but true
My chronic pain was completely under control until the world changed an overdoses became so prevalent. Now a lot of us are suffering again because of it. It’s sad that know matter the problem that we suffer we can’t get help…
I appreciate the nuanced and compassionate take you have on this. Not encouraging violence, but acknowledging how chronic pain can lead a person to become radicalized and that the medical system does not provide adequate support/treatment. I hope what happened spurs on a sweeping change in the health insurance and medical industrial complex for the better, but I dont expect that to happen because it will cut into profits and greedy people trying to make as much money as possible by exploiting people who need medical care is exactly how the system got to the state that led to this. (I feel it in my bones that my wording here is gonna make *someone* believe this was written with AI. It wasn't. I'm just autistic and can be overly particular about phrasing sometimes.)
Interesting that people would perceive this as AI written. Looks like something I would write. But then, I am also autistic. So I might be biased, but I thought it was very well written and spot on.
It's nice to know that other real people get that "AI comment" remark, even when the sentences aren't all grammatically correct. I'm not on the spectrum, but when commenting on specific issues I prefer to express myself with clarity.
Only someone going through this can truly understand what you are going through as they can help you through your worst days and it also helps to know that it’s not just you imagining it . I have found my skin hurts just by someone sitting in close proximity to me they don’t even have to touch me yet i hurt like someone has grated my skin . I live with chronic pain everyday yet i still try to keep a positive outlook on life so i don’t breakdown
I can't stand that people who are not in pain judge people like us because we are in pain management because we want to help ourselves. They have no idea how it feels to be in pain daily. I was rear ended twice and totally get you. God Bless!
I blame the war on drugs. They take needed meds from legit patients, too. Makes it so difficult to even fill a real prescription!! Here, pharmacies are limited on how many prescriptions they can fill of certain controlled substances. 🙄
@The_Albanian_Inquisition i know needed heartburn medicine..cheaper with prescription...looked at Doc who was hesitate & said I'm not a drug addict..I do have a prescription plan.geez
Chronic pain patients have been called everything from addicts to the kitchen sink. Marginalized, blamed ,no adequate care & absolutely no research into more comprehensive treatments.. yeah like mindful breathing is going to help with the broken titanium in the spine with misfiring, regenerating nerves..
I had to argue to get gabapentin for sciatica from sever stenosis, five herniated discs, scoliosis, and degenerative discs all pinching on nerves. Then I was rationed muscle relaxers. Prior to this I had not been on any meds for seven years. Seriously, at least make life less miserable while it takes forever to get health care approvals. It’s ridiculous that health care treats pain patients like addicts.
Chronic pain, in some situations, can dominate every moment. So I call it Pain Brain, in how it interrupts concentration. It's important for one to connect with a trusted doctor. I also suggest a person could seek a therapist, to share such a sense of helplessness. Keep seeking a doctor who will provide compassion and get straight to the matter of alleviating and lessoning pain. Never give up seeking a way to improve quality of life!
My nephew has been in chronic acute pain for years. He basically is a shell of a man. Can not do much at all. The depression and “not wanting to be here” is extremely concerning. It totally brings you to a stand still. Miss diagnosed and many tests and procedures. Losing hope and no relief can take a terrible tole on everything. Plus family members who have to hear and watch this. Emotionally and physically drawing for all. The fear of something tragic may happen.😞😩
Just a small correction in your post. In medical terms chronic is long lasting and acute is sudden onset. To use both terms in the description of his pain would not be accurate unless it was said that he had acute in chronic and then it would be a sudden onset of pain that worsened on the already chronic pain. This is not to say your family member does not have chronic pain I just wanted to be sure the description is accurate in medical terms.
I do have chronic pain from being rear ended twice. I am college educated and had to go out on permanent disability with my laundry list of diagnoses from permanent nerve damage to stenosis to sciatica to Fibromyalgia and more. I've had 5 back surgeries in L5-S1 including 3 fusions and a multi level fusion in C4-C6. Now C3-C4 is herniated and I have a bone spur at the bottom of C6. It never ends. Yes it definitely affected my brain and rained on my happy parade, but I try to help other people. It sucks being in pain all the time. People like us are constantly getting judged from others and they do not have the concept that as fast as it happened to me, it can happen to anyone.
This needs to be addressed! The chronicly ill, cancer patients, and post surgery patients have been abandoned over other people's addictions and are denied pain management unless it's tylenol or motrin
I've not seen a doctor since September 2021 Had Covid during August,Delta, was VERY SICK. When my PCP saw me he said that I looked like I had Cancer because I had lost weight. He sat Far away from me, REFUSED to assess me,didn't even touch me !! My doctor of 20 years left me hanging . Former RN of 19yrs 😢
I hear you. I wanted to like your comment just to show you that I Reddit and I hear you. I don't like that you're going through this much pain but I did want to tell you that I care about you. I know how you feel. I encourage you to keep trying and look for new medications. In particular I was given ketamine in an emergency room and it can really reduce pain
So true! Think Luigi's hardware prevented him with the ability to mate. PAIN also could cause him to be overcome with anger. Thx Dr Kaveh. I keep researching spine surgeons & procedures & couldnt believe being denied. 😬💔
I think that until the people making decisions that affect other peoples lives start to suffer the consequences of those people hurting unduly, nothing will change. Something truly remarkable happens when people with no appreciation of it learn how much pain can hurt.
Yes. Or Until those people are badly injured in an accident and in excruciating PAIN...and their doctor hands them a frigging Tylenol!!! Only THEN will they truly Understand.
@shivajireddy5959 sore, stiff, hazy from the pain meds, and miserable. I'm always depressed. I've had alot of issues with accepting the disability I now have as a result. Thanks for asking, mate. You're very kind. I hope you are well.
I’ve lived with chronic pain since surgery for cancer in 2005. After CA it seemed like everything just flooded me I’ve had so many health issues. I now suffer with a brain tumor. Living like this stinks. Some times you feel okay but most of the time well it’s tough
Exactly. I do not condone violence. However having chronic back pain even after surgery and now torn tendon in my foot, I can understand going over the edge. The chronic pain is making me cuckoo! No relief from doctors. They are afraid of prescribing pain meds. I need relief not to get high. 😢
I agree with the vulnerability. At my age I should be in pain but I never have been. I can however understand if a person feels like they're giving birth 24/7, they might just lose it and commit an act of violence. I don't believe it's premeditated. Rest in peace to the deceased.❤
It would be a delight if we all had the lifetime opportunity to learn about all different kinds of pain and their possible causes. Knowing whochbtypenof pain is acceptable and which one is not.
I agree! I live with chronic pain every single day. I have severe back problems and my neurosurgeon Dr. Sethi wanted to do surgery and the “conference” said no. I’m living with severe pain in my back!
I'm soooo sorry for you. But feel ya too! Just note, as IDK your situation, im.no neurologist, afer too long the surgeries no longer work. I have permanent nerve damage because of the delay by both doctors and insurance company. Feels like I never had the surgery! 😢 While a sports doctor told the "general" doctor i needed to be in surgery that night...(about 2 months before I was im surgery) I hadn't have another apt. With regular dr before he'd give a referral to surgeon. Oddly enough, I was in his freaking office seeing the sports med dr!!! He told him in front of me. He (sports med dr who used to treat players) apologized to me. Said had i been a player I'd be in surgery ASAP, and that he wasn't really with my insurance company and he couldn't do anything. He was the first to notice I had severe weakness in one foot and foot drop!! I felt lucky to even.had seen him because the "regular " dr was sending me back to work and pt!! So, at least I knew what I needed. It's been decades!
Being in so much pain at work and not able to do anything 😭 I feel that and having to work the full shift and we all have different bodies it gets to ya
You become a Snake Oil consumer, willing to try ANYTHING for relief, or at-minimum have a doctor comprehend how much pain and suffering you have been experiencing.
Being a CRPS patient has me very skeptical of any procedures since I hear " your pain is all in your head". The medical community does not respect patients complaining about chronic pain. The fact that members of the medical professional get reprimanded and possibly lose their medical license treating chronic pain patients will keep them from wanting to take on these patients. I only trust medical anesthesiologists and orthopedics that have been in the military.
Opioids work for many chronic pain patients but we all know how futile it is to work our way through the rage and fear of the medical-pharmaceutical-insurance-governmental industrial complex. How many chronic pain patients are among the people who OD???
I am being force tapered from ten mg of oxy 4x a day to 2.5mg 1x day for 10 days, after being on it for one year. I am in the midst of horrible withdrawal, the only explanation I get is no opioids don’t work for chronic pain. I am miserable, I have been gaslit more times than I can count, have been accused of drug seeking. I have lost all faith in our doctors, medical professionals, pain clinics and other practitioners. Tired of trying things that don’t work or only excesperate my pain. Take ibuprofen which I can’t due to GI bleeding, take Tylenol use heating pads and the list goes on. Right now I’m really hating my life, I’m scared of the repercussions this will have in my and my family’s life. I pray for other CPPs everyday. We have been kicked to the cutter by the medical profession and our own government.
I've had chronic pain for 15+yrs. I can't take the good stuff-my body doesn't like it. I can only take Naproxen or Ibuprofen... They ease the pain... Having Degenerative Disc Disease throughout my whole spine isn't fun....
It is mind blowing that he went down that rabbit hole. Even though he has lost everything he has worked for in his short life he seems to have no remorse for cold blooded murder
Chronic pain suffers are completely dismissed by almost everyone and every Doctor. Doctors automatically assume your drug seeking soon as I realize a doctor thinks I’m drug seeking I’m done with them. Insurance companies deny everything related to chronic diseases.
Why would a person with Chronic Pain be violent 😳? I’ve been living with Chronic Pain for almost 40 years. I only told a few friends, but they didn’t believe me. I didn’t tell my kids until they were grownups. If I was really bad off I just stayed home. I truly sucks, but why would I be violent? Could you, please, elaborate, Doctor? Thank you for your videos 😊‼️ They are great 👍🏼! Best regards from a woman who got injured at a young age…
Constant pain can make it hard to regulate your emotions. Also, not being believed and denied appropriate care for long enough can make people very angry, possibly violent. The sense of isolation that not being believed creates adds fuel to that fire. Pain is a signal that our body is being harmed and needs care. When that's ignored and denied long enough, I imagine it probably registers in the nervous system as a threat to survival. And people can get violent when they feel their survival is threatened. Obviously it doesn't justify violence, but those are some reasons I can think of. I'm sorry you are living with pain and aren't being believed. Friends should believe one another.
When I was in high school, my mom fell and dislocated a disk in her back. She would scream and cry all night long. I would get up in the middle of the night to help her. One night she was screaming and asked me to get the gun to basically take her out of her misery. I cried so hard and flat out refused and had to get my stepdad to take it away. She eventually ended up having surgery. That sure was a rough time.
Incompetence in the medical industry is rampant! As a small child, I learned this. My problem wasn't understood until I was 22. There isn't anything that can be done that won't ruin my life, so I just deal with it as life comes. I moved 1100 miles away, and now ive in a state where medical care is almost an embarrassing joke for being in America. Live, LAUGH, Love and Dance like it's your Last....
I have chronic pain I’m not violent and I’m not open to crazy suggestion either 😂 You learn to live with it, it’s my normal 🤷🏼♀️ always had pain and as a child I was told everyone was in pain, I believed that until I was a young adult. I suppose when it’s just normal and ordinary you’re not likely to become violent because of it…since it’s always been there
Can you explain what rsd is and how it affects the patient because those with it in writing are repeatedly treated as drug addicts and all we want is pain reduction considering nothing else can be done.
Few uears ago when my crohns disease started and all of different complications of pain (like fissure or fistul) plus when i relapsed i had to go for prednison and man steroid acne after that was horror, the pain of inflamated skin, the scars it left, just horrible and looking back at it, it was really dark time for my psyche so i understand one that gets corrupted by radicalization while experiencing chronic pain, sadly the pain is not all rainbows and lollypops, its actually scary what it can does to ones psyche
Being denied natural organic cannabis that contains enough THC for the entourage effect, coupled with lack of empathy from people in general due to not recognising the significance of not taking someone else's health disability seriously are a winning combination for rage attacks, especially if you have been abused and cheated a lot in your life. I actually learned recently that if I do have narcolepsy that rage attacks can be part of that, and that's without inclusion of 2 other disorders I have which cause pain. Anger specifically seems to stay if a psychologist has ever told you that your lack of anger led to other people cheating you. Eventually you "wake up" to this sense of having been gaslit, medically and psychologically, for the rest of your life.. unless you have access to cannabis, which is arguanly much better than being dependent on other psychotropics. Have you ever seen someone with Parkinson's using cannabis? 😮
I found a new doctor, and my insurance said no. I have Dandy Walker syndrome, so yeah, I understand why many people are feeling mad at the USA health care industry, and to be blunt, I myself at times feel like snapping, but that just isn't me. I sure hate the government for allowing these insurance companies untold power over our lives.
And my pain Dr told me Congress is going to vote on outlawing ALL paim meds. I said how can they do that?? Car accidents? Cancer patients? Spine injuries (one of the things I deal with daily)?? She said I know, I can't treat my patients without narcotics!, and don't know what were going to do. And that she's wondering if they are trying to clear out the population, because she's known of people die from heart stress due to pain. I'm furious at the thought.
I am living with severe chronic pain because of a laminectomy that went wrong. Unless you feel the pain, there’s no understanding. I would rather get medication from a doctor than find someone that I can get it illegally from. Personally I wouldn’t care if I died. I know it’s very risky, but sometimes it just doesn’t matter..
I would like to ask you if is the yeast infection is purple and red? This is where my fat folds over.itnitches it stinks it sweats? What causes it? Flu? Or what? Today I got Nystatin cream and 7 in a different pack 1 a day it's called Fluconazle Have a pleasant evening 😊
Finally. Why don't other doctors talk about the reality of chronic pain? I think it's because they know that insurance companies aren't going to pay for for comprehensive pain management so it's pointless.
Are you suggesting these patients are under-treated? When someone comes in with chronic pain as the presenting complaint, it is easy to overlook the other health issues you mentioned. Good providers will consider the cause of pain - the patient is focused on the pain and likely to under-report other problems. Thank you for again improving our clinical skills.
I live with chronic pain daily for most of my adult life. I have many different medical conditions and issues I deal with all the time and complications. Dealing with something right now that is pretty serious from a procedure I had done on Tuesday and now have to go back in on Monday because of a issue that happened during that procedure 😬🥺 Chronic pain is no fun for anyone and it’s a real thing that some doctors need to understand a lot more about. Where does this violence come in from though regarding chronic pain? I’m not understanding what you mean? 🤪
Those are big ass metal rods the ceo definitely deserves it United healthcare is the worse i don't remember how many times my mom or i had to pay out of pocket with money we didn't have because they didn't want to pay it
We not satisfied ‼️💯😡 It's our government who's making it horrible and you doctors haven't fought against them!! You guys just stopped treating us at all 🤬🤬 What happened to compassion care ⁉️
Well I have learned that when I am having a bout of chronic pain , I try to stay away from people , my patience’s short and I do not want to offend anyone . People look at you😂 like you don’t look sick .RA, Hashimottos ,sarcoidosis,pulmonary hypertension , Lupus can rear it’s ugly head at any time . I can see how people with chronic pain become hermits
I have become this way. It’s not easy for someone to be married or friends with someone who has to constantly think “Can I walk that far if I go ? Do I need my scooter or crutches ? I simply can’t today, ( not because I’m lazy ) I just hurt so bad “ The list goes on. My husband divorced me, and I’m not being a martyr, but I can somewhat understand , he found someone that can go drink and do fun things without always having to “plan” every step ahead. Her skin is clear without scars, etc. Taking pain meds is frowned upon by so many. They say why ? You take too much. (Even though I’ve only ever taken meds as prescribed ) I hear, “your just lazy, you can work with your mind just fine “ So…….. after many years, it’s me and my cat. Because a cat does not have to go outside to go potty, on days when I can’t walk well. I’m exhausted from “opinions, other people’s thoughts of me, not being able to keep up with everyone, Yes, yes you can become like a hermit. And it’s very frustrating. Best wishes to you ❤
Pain can drive you crazy but get some help before doing something radical like that. So many are in severe chronic pain and they're not offing ppl. It's no excuse.
It's hard to be nice when you are in chronic pain.
This is true. I snap easy. I wish I didn’t have it.
Don’t forget even with chronic pain, any act of random kindness is also heightened in meaning too! Be kind, rewind!
The STRESS is incredible. Of course it effects your brain.
My partner has two Harrington rods in his spine. He fell years ago and often loses feeling in his leg now. The dr flat turned him away from treatment when they realized he had no insurance. Yet, the kicker is, he’s not considered disabled enough for disability and was turned down for that too. The system will make one go crazy. Just sitting in pain watching life go by
That's so often what happens to pain patients who are either not insured or have low-level insurance. Should be Criminal for medical professionals to refuse to help based on damn Money!! 😠
About being denied Disability,.. you guys Need to look up a law firm who handles disability claims. They are very good at what they do, and will NOT charge you unless you win your case. And then their pay comes out of your back-pay check. It is well worth it!! Btw...almost Everyone is denied with their first time applying for disability. The disability lawyer will file an Appeal for your partner and get the ball rolling!😉 Good luck!😊
I too have two Harrington rods in my back top to bottom! I was 14 when I had the spinal fusion and I’ve had really bad pain ever since then so for the last 23 years, I’ve been dealing with some pretty crazy pain but the last eight years it’s been on a daily basis constant getting worse new diagnosis’ can’t walk anymore. Can’t bathe myself. Can’t clean my home. Can’t do nothing! I fought for disability for six years And I had a disability representative. I finally won my disability case this year! Don’t give up. Pain sucks not being able to get the proper care and treatment is horrible.
I've had 2 failed back surgeries. Had pain implant put in. Didn't even get to turn it on. I got a staph infection. 6 days after surgery, after they wouldn't listen to me something is wrong. They wouldn't call me back until I had my son take pictures and it exploded. Went back to the office and made them listen. The waiting room is full of future patients. I knew I was going back to surgery next morning. I was in the hospital for a month getting 4 strong IVs a day. It felt so much better after I woke up. It was unclean when it went in. They actually asked me if I wanted to try again. No thank you, I'll pass. I got to go home after that mo to go back everyday for 2 IVs for the following 6 weeks. They put a pick line in. It was great for 2 days. They took it out. Why did they put it in. I got no answers. Back to pain Dr. I think he's great but afraid to ask him if I can bump up a little. My whole spine still hurts. Legs hips. I had a fusion done no help.
If he/she can prove they have permanent nerve damage, such as with imaging and possibly an EMG, and I know all of this takes money, but if It can be proved, I was told when I was applying for disability these words, pain will get you possibly 2 yrs., permanent nerve damage could possibly win your case, depending on which state you live in and their guidelines.
Thank you so much for the compassion and the time you take to help us.
I'm in chronic pain and we're treated like crap, not believed, and under medicated.
Yep! We get treated like we choose it. We get treated like we are weak. We get treated like we are burdens on society. We aren’t believed. We receive no compassion.
It is sad
Very true. I had a failed back surgery, and since 2013 I’ve had a tough time. Yes, thoughts on different things come across in your head. Sad, but true
My chronic pain was completely under control until the world changed an overdoses became so prevalent. Now a lot of us are suffering again because of it. It’s sad that know matter the problem that we suffer we can’t get help…
I hear you crying for help, and I'm standing next to you. Hold my hand and know you are not alone in pain. Your in my prayers❤❤❤
@@HugsXOMe too!
I know of 5 patients who killed themselves as they couldnt deal with pain with low dose pain meds.💔😭💔
I totally agree. Dependent is diff than being addicted. Weed helps & for me epidurals. Luigi's hardware brings tears to my eyes. OUCH!😢💔😭💔
Need you my life😢
Amen, Dr. Kaveh. So true. You are so helpful in teaching so many. Much gratitude for your effort in educating so many. ❤
Thank you, Doctor. You bring a world of information we need. God bless your work. Thank you for the care you give.
I appreciate the nuanced and compassionate take you have on this. Not encouraging violence, but acknowledging how chronic pain can lead a person to become radicalized and that the medical system does not provide adequate support/treatment. I hope what happened spurs on a sweeping change in the health insurance and medical industrial complex for the better, but I dont expect that to happen because it will cut into profits and greedy people trying to make as much money as possible by exploiting people who need medical care is exactly how the system got to the state that led to this.
(I feel it in my bones that my wording here is gonna make *someone* believe this was written with AI. It wasn't. I'm just autistic and can be overly particular about phrasing sometimes.)
Interesting that people would perceive this as AI written. Looks like something I would write. But then, I am also autistic. So I might be biased, but I thought it was very well written and spot on.
It's nice to know that other real people get that "AI comment" remark, even when the sentences aren't all grammatically correct. I'm not on the spectrum, but when commenting on specific issues I prefer to express myself with clarity.
Only someone going through this can truly understand what you are going through as they can help you through your worst days and it also helps to know that it’s not just you imagining it . I have found my skin hurts just by someone sitting in close proximity to me they don’t even have to touch me yet i hurt like someone has grated my skin . I live with chronic pain everyday yet i still try to keep a positive outlook on life so i don’t breakdown
Three car wrecks left me with so much issues... I am not a addict but people look at me and treat me like I am 😢...
I can't stand that people who are not in pain judge people like us because we are in pain management because we want to help ourselves. They have no idea how it feels to be in pain daily. I was rear ended twice and totally get you. God Bless!
I currently have plantar fasciitis. It’s the most bloody painful condition I have ever had. Can barely walk. Prayers that it goes away. Thanks
Too bad doctors have stopped treating people for pain
I blame the war on drugs. They take needed meds from legit patients, too. Makes it so difficult to even fill a real prescription!! Here, pharmacies are limited on how many prescriptions they can fill of certain controlled substances. 🙄
@The_Albanian_Inquisition i know needed heartburn medicine..cheaper with prescription...looked at Doc who was hesitate & said I'm not a drug addict..I do have a prescription plan.geez
@@nailsofinterest💯%‼️ That's thanks to our government 😒🤬 They are playing doctor when they have a clue!!!!
Chronic pain patients have been called everything from addicts to the kitchen sink.
Marginalized, blamed ,no adequate care & absolutely no research into more comprehensive treatments.. yeah like mindful breathing is going to help with the broken titanium in the spine with misfiring, regenerating nerves..
lol exactly
My doctors think acupuncture is the cure all. It does literally nothing and I think they know it
I had to argue to get gabapentin for sciatica from sever stenosis, five herniated discs, scoliosis, and degenerative discs all pinching on nerves. Then I was rationed muscle relaxers. Prior to this I had not been on any meds for seven years. Seriously, at least make life less miserable while it takes forever to get health care approvals. It’s ridiculous that health care treats pain patients like addicts.
21 years of pain. My face hides nothing . People assume I'm angry and unfriendly. 😢
Chronic pain, in some situations, can dominate every moment. So I call it Pain Brain, in how it interrupts concentration.
It's important for one to connect with a trusted doctor. I also suggest a person could seek a therapist, to share such a sense of helplessness. Keep seeking a doctor who will provide compassion and get straight to the matter of alleviating and lessoning pain. Never give up seeking a way to improve quality of life!
My nephew has been in chronic acute pain for years. He basically is a shell of a man. Can not do much at all. The depression and “not wanting to be here” is extremely concerning. It totally brings you to a stand still. Miss diagnosed and many tests and procedures. Losing hope and no relief can take a terrible tole on everything. Plus family members who have to hear and watch this. Emotionally and physically drawing for all. The fear of something tragic may happen.😞😩
Just a small correction in your post. In medical terms chronic is long lasting and acute is sudden onset. To use both terms in the description of his pain would not be accurate unless it was said that he had acute in chronic and then it would be a sudden onset of pain that worsened on the already chronic pain. This is not to say your family member does not have chronic pain I just wanted to be sure the description is accurate in medical terms.
@ Thank you. Yes it would be chronic pain. 🫤
I do have chronic pain from being rear ended twice. I am college educated and had to go out on permanent disability with my laundry list of diagnoses from permanent nerve damage to stenosis to sciatica to Fibromyalgia and more. I've had 5 back surgeries in L5-S1 including 3 fusions and a multi level fusion in C4-C6. Now C3-C4 is herniated and I have a bone spur at the bottom of C6. It never ends. Yes it definitely affected my brain and rained on my happy parade, but I try to help other people. It sucks being in pain all the time. People like us are constantly getting judged from others and they do not have the concept that as fast as it happened to me, it can happen to anyone.
Thank you for understanding.
I, agree with what you expressed,Doctor.
This needs to be addressed! The chronicly ill, cancer patients, and post surgery patients have been abandoned over other people's addictions and are denied pain management unless it's tylenol or motrin
Yep. "Take Advil" I've heard that too many times. Well now i have a pre ulcer. No Ibuprofen allowed!
I'm 64. And have had juvenile rheumatoid arthritis. Chronic pain every day for years.
I'm so glad you posted and took the time to be heard. You deserve to be listened to.
I've not seen a doctor since September 2021
Had Covid during August,Delta, was VERY SICK.
When my PCP saw me he said that I looked like I had Cancer because I had lost weight.
He sat Far away from me, REFUSED to assess me,didn't even touch me !! My doctor of 20 years left me hanging .
Former RN of 19yrs 😢
Yes. It truly a wake up call for all doctors
Watching this in the wee hours of the night because the pain is way too strong- has robbed me of sleep for four years now and I can’t do this anymore.
I hear you. I wanted to like your comment just to show you that I Reddit and I hear you. I don't like that you're going through this much pain but I did want to tell you that I care about you. I know how you feel. I encourage you to keep trying and look for new medications. In particular I was given ketamine in an emergency room and it can really reduce pain
@@le87 thank you for reaching out. That’s very kind.
So true! Think Luigi's hardware prevented him with the ability to mate. PAIN also could cause him to be overcome with anger. Thx Dr Kaveh.
I keep researching spine surgeons & procedures & couldnt believe being denied. 😬💔
Thank you. Chronic pain can destroy your life 😢
I think that until the people making decisions that affect other peoples lives start to suffer the consequences of those people hurting unduly, nothing will change.
Something truly remarkable happens when people with no appreciation of it learn how much pain can hurt.
Yes. Or Until those people are badly injured in an accident and in excruciating PAIN...and their doctor hands them a frigging Tylenol!!!
Only THEN will they truly Understand.
Yup. I live with chronic pain, I live on opioids. It sucks. Any question, folks? Feel free to ask.
Same.
How are you doing. How do you feel
@shivajireddy5959 sore, stiff, hazy from the pain meds, and miserable. I'm always depressed. I've had alot of issues with accepting the disability I now have as a result. Thanks for asking, mate. You're very kind. I hope you are well.
@@punker8716 Thank Heavens you have access to that pain medication.
So many, many chronic pain patients do NOT.💔
@ I feel so tired with mine but I can’t sleep. I get withdrawals if I’m late taking a dose as well. Do you?
I’ve lived with chronic pain since surgery for cancer in 2005. After CA it seemed like everything just flooded me I’ve had so many health issues. I now suffer with a brain tumor. Living like this stinks. Some times you feel okay but most of the time well it’s tough
Exactly. I do not condone violence. However having chronic back pain even after surgery and now torn tendon in my foot, I can understand going over the edge. The chronic pain is making me cuckoo! No relief from doctors. They are afraid of prescribing pain meds. I need relief not to get high. 😢
India Pharmacy
Well said!❤
I agree with the vulnerability. At my age I should be in pain but I never have been. I can however understand if a person feels like they're giving birth 24/7, they might just lose it and commit an act of violence. I don't believe it's premeditated.
Rest in peace to the deceased.❤
All chronic pain individuals know these things but what is there to do when you vigilantly exhaust options?
It would be a delight if we all had the lifetime opportunity to learn about all different kinds of pain and their possible causes. Knowing whochbtypenof pain is acceptable and which one is not.
Lots of Love from an ayurvedic doctor from India
I agree! I live with chronic pain every single day. I have severe back problems and my neurosurgeon Dr. Sethi wanted to do surgery and the “conference” said no. I’m living with severe pain in my back!
I'm soooo sorry for you. But feel ya too! Just note, as IDK your situation, im.no neurologist,
afer too long the surgeries no longer work. I have permanent nerve damage because of the delay by both doctors and insurance company. Feels like I never had the surgery! 😢
While a sports doctor told the "general" doctor i needed to be in surgery that night...(about 2 months before I was im surgery) I hadn't have another apt. With regular dr before he'd give a referral to surgeon. Oddly enough, I was in his freaking office seeing the sports med dr!!! He told him in front of me. He (sports med dr who used to treat players) apologized to me. Said had i been a player I'd be in surgery ASAP, and that he wasn't really with my insurance company and he couldn't do anything.
He was the first to notice I had severe weakness in one foot and foot drop!! I felt lucky to even.had seen him because the "regular " dr was sending me back to work and pt!! So, at least I knew what I needed. It's been decades!
I know we're talking about physical pain. I wonder about the effects of mental pain.
Being in so much pain at work and not able to do anything 😭 I feel that and having to work the full shift and we all have different bodies it gets to ya
Your AMAZING ,THANK YOU FOR ALL YOU DO 🙏✝️MERRY CHRISTMAS🎄🎁YOUR A TRUE GIFT ,TO MANY WHO LISTEN😇💝
You become a Snake Oil consumer, willing to try ANYTHING for relief, or at-minimum have a doctor comprehend how much pain and suffering you have been experiencing.
Being a CRPS patient has me very skeptical of any procedures since I hear " your pain is all in your head". The medical community does not respect patients complaining about chronic pain. The fact that members of the medical professional get reprimanded and possibly lose their medical license treating chronic pain patients will keep them from wanting to take on these patients. I only trust medical anesthesiologists and orthopedics that have been in the military.
Opioids work for many chronic pain patients but we all know how futile it is to work our way through the rage and fear of the medical-pharmaceutical-insurance-governmental industrial complex. How many chronic pain patients are among the people who OD???
Few very few😢
@@anitaparks8945 Apparently opioids used for educated chronic pain patients aren't subject to abuse. They serve a different function - like walking.
I am being force tapered from ten mg of oxy 4x a day to 2.5mg 1x day for 10 days, after being on it for one year. I am in the midst of horrible withdrawal, the only explanation I get is no opioids don’t work for chronic pain. I am miserable, I have been gaslit more times than I can count, have been accused of drug seeking. I have lost all faith in our doctors, medical professionals, pain clinics and other practitioners. Tired of trying things that don’t work or only excesperate my pain. Take ibuprofen which I can’t due to GI bleeding, take Tylenol use heating pads and the list goes on.
Right now I’m really hating my life, I’m scared of the repercussions this will have in my and my family’s life. I pray for other CPPs everyday. We have been kicked to the cutter by the medical profession and our own government.
Try other Countries
India Pharmacy ?
Think the world of you Dr. K. ☮ Thank you for sharing your knowledge ... Hi Karma 🐾❤🐾
Well said, doctor!
I've had chronic pain for 15+yrs. I can't take the good stuff-my body doesn't like it. I can only take Naproxen or Ibuprofen... They ease the pain... Having Degenerative Disc Disease throughout my whole spine isn't fun....
I agree! I live with Chronic Pain
It is mind blowing that he went down that rabbit hole. Even though he has lost everything he has worked for in his short life he seems to have no remorse for cold blooded murder
Chronic pain suffers are completely dismissed by almost everyone and every Doctor. Doctors automatically assume your drug seeking soon as I realize a doctor thinks I’m drug seeking I’m done with them. Insurance companies deny everything related to chronic diseases.
Why would a person with Chronic Pain be violent 😳? I’ve been living with Chronic Pain for almost 40 years.
I only told a few friends, but they didn’t believe me.
I didn’t tell my kids until they were grownups. If I was really bad off I just stayed home.
I truly sucks, but why would I be violent?
Could you, please, elaborate, Doctor?
Thank you for your videos 😊‼️ They are great 👍🏼!
Best regards from a woman who got injured at a young age…
Constant pain can make it hard to regulate your emotions. Also, not being believed and denied appropriate care for long enough can make people very angry, possibly violent. The sense of isolation that not being believed creates adds fuel to that fire. Pain is a signal that our body is being harmed and needs care. When that's ignored and denied long enough, I imagine it probably registers in the nervous system as a threat to survival. And people can get violent when they feel their survival is threatened. Obviously it doesn't justify violence, but those are some reasons I can think of.
I'm sorry you are living with pain and aren't being believed. Friends should believe one another.
When I was in high school, my mom fell and dislocated a disk in her back. She would scream and cry all night long. I would get up in the middle of the night to help her. One night she was screaming and asked me to get the gun to basically take her out of her misery. I cried so hard and flat out refused and had to get my stepdad to take it away. She eventually ended up having surgery. That sure was a rough time.
Incompetence in the medical industry is rampant! As a small child, I learned this. My problem wasn't understood until I was 22. There isn't anything that can be done that won't ruin my life, so I just deal with it as life comes. I moved 1100 miles away, and now ive in a state where medical care is almost an embarrassing joke for being in America. Live, LAUGH, Love and Dance like it's your Last....
I have chronic pain I’m not violent and I’m not open to crazy suggestion either 😂
You learn to live with it, it’s my normal 🤷🏼♀️ always had pain and as a child I was told everyone was in pain, I believed that until I was a young adult. I suppose when it’s just normal and ordinary you’re not likely to become violent because of it…since it’s always been there
Can you explain what rsd is and how it affects the patient because those with it in writing are repeatedly treated as drug addicts and all we want is pain reduction considering nothing else can be done.
Few uears ago when my crohns disease started and all of different complications of pain (like fissure or fistul) plus when i relapsed i had to go for prednison and man steroid acne after that was horror, the pain of inflamated skin, the scars it left, just horrible and looking back at it, it was really dark time for my psyche so i understand one that gets corrupted by radicalization while experiencing chronic pain, sadly the pain is not all rainbows and lollypops, its actually scary what it can does to ones psyche
Being denied natural organic cannabis that contains enough THC for the entourage effect, coupled with lack of empathy from people in general due to not recognising the significance of not taking someone else's health disability seriously are a winning combination for rage attacks, especially if you have been abused and cheated a lot in your life. I actually learned recently that if I do have narcolepsy that rage attacks can be part of that, and that's without inclusion of 2 other disorders I have which cause pain. Anger specifically seems to stay if a psychologist has ever told you that your lack of anger led to other people cheating you. Eventually you "wake up" to this sense of having been gaslit, medically and psychologically, for the rest of your life.. unless you have access to cannabis, which is arguanly much better than being dependent on other psychotropics. Have you ever seen someone with Parkinson's using cannabis? 😮
I found a new doctor, and my insurance said no. I have Dandy Walker syndrome, so yeah, I understand why many people are feeling mad at the USA health care industry, and to be blunt, I myself at times feel like snapping, but that just isn't me. I sure hate the government for allowing these insurance companies untold power over our lives.
Lots of people kill someone because they are in chronic pain, it's just that the person they kill is themself.
And my pain Dr told me Congress is going to vote on outlawing ALL paim meds. I said how can they do that?? Car accidents? Cancer patients? Spine injuries (one of the things I deal with daily)?? She said I know, I can't treat my patients without narcotics!, and don't know what were going to do. And that she's wondering if they are trying to clear out the population, because she's known of people die from heart stress due to pain. I'm furious at the thought.
I am living with severe chronic pain because of a laminectomy that went wrong. Unless you feel the pain, there’s no understanding. I would rather get medication from a doctor than find someone that I can get it illegally from. Personally I wouldn’t care if I died. I know it’s very risky, but sometimes it just doesn’t matter..
I would like to ask you if is the yeast infection is purple and red? This is where my fat folds over.itnitches it stinks it sweats? What causes it? Flu? Or what? Today I got Nystatin cream and 7 in a different pack 1 a day it's called Fluconazle
Have a pleasant evening 😊
Finally. Why don't other doctors talk about the reality of chronic pain? I think it's because they know that insurance companies aren't going to pay for for comprehensive pain management so it's pointless.
I’ve been living in constant pain since I was 17. Only in the past year have I received some treatment that actually works.
Ketamine!
Are you suggesting these patients are under-treated? When someone comes in with chronic pain as the presenting complaint, it is easy to overlook the other health issues you mentioned. Good providers will consider the cause of pain - the patient is focused on the pain and likely to under-report other problems.
Thank you for again improving our clinical skills.
Its literally a terrible thing being in pain daily.
I hate being grumpy.
Because the addict did have made it difficult for the people who need pain relief as they're labeled if they ask as addicts.
Why would it take for you to come to Chicago Illinois?
Not even billions of $ would make anyone go from CA to Chicago, Ill
Living with chronic pain makes me grouchy.
Can I come see you? I’m in WA state! I have so much pain 😢! Please help me and tell me what I can do!
4 years of agony and inadequate treatment..
I live with chronic pain daily for most of my adult life. I have many different medical conditions and issues I deal with all the time and complications. Dealing with something right now that is pretty serious from a procedure I had done on Tuesday and now have to go back in on Monday because of a issue that happened during that procedure 😬🥺
Chronic pain is no fun for anyone and it’s a real thing that some doctors need to understand a lot more about.
Where does this violence come in from though regarding chronic pain? I’m not understanding what you mean? 🤪
Amen
Ts the docters that need to help people,and ludten theme😢
True.
Hoodie on and you look awful familiar …
Blink twice if they made you do it 😂
Those are big ass metal rods the ceo definitely deserves it United healthcare is the worse i don't remember how many times my mom or i had to pay out of pocket with money we didn't have because they didn't want to pay it
Wish i still had my vicodin.
We not satisfied ‼️💯😡
It's our government who's making it horrible and you doctors haven't fought against them!! You guys just stopped treating us at all 🤬🤬 What happened to compassion care ⁉️
Free Luigi ❤
Well I have learned that when I am having a bout of chronic pain , I try to stay away from people , my patience’s short and I do not want to offend anyone . People look at you😂 like you don’t look sick .RA, Hashimottos ,sarcoidosis,pulmonary hypertension , Lupus can rear it’s ugly head at any time . I can see how people with chronic pain become hermits
I have become this way.
It’s not easy for someone to be married or friends with someone who has to constantly think “Can I walk that far if I go ? Do I need my scooter or crutches ? I simply can’t today, ( not because I’m lazy ) I just hurt so bad “
The list goes on. My husband divorced me, and I’m not being a martyr, but I can somewhat understand , he found someone that can go drink and do fun things without always having to “plan” every step ahead. Her skin is clear without scars, etc. Taking pain meds is frowned upon by so many. They say why ? You take too much. (Even though I’ve only ever taken meds as prescribed )
I hear, “your just lazy, you can work with your mind just fine “
So…….. after many years, it’s me and my cat. Because a cat does not have to go outside to go potty, on days when I can’t walk well. I’m exhausted from “opinions, other people’s thoughts of me, not being able to keep up with everyone,
Yes, yes you can become like a hermit. And it’s very frustrating.
Best wishes to you ❤
@ oh we live the same life lol , I also am single now and have a cat .She doesn’t care if I hurt .
@@cbutler9540
🐈❤️
4AM gang
#med4all
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😢
Cognitive function huh? 47 must be excruciating.
Tell the video people not tu put lipstick on you, please.....
Are you dabbling in legalese crossing over into medicine, you sly 🦊
Pain can drive you crazy but get some help before doing something radical like that. So many are in severe chronic pain and they're not offing ppl. It's no excuse.
Take a Tylenol...
Not that simple.
@@olliecoke I am just saying what the medical field says... I have been in chronic pain for years...
@frankscruggs4749 ahh okay, it should be in quote marks to convey that 😅 same lol, chronic pain is a bugger
Well said🫶🏾👏🏾