My Current MS Treatment
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- เผยแพร่เมื่อ 6 ก.ย. 2024
- My Current MS Treatment
I'm currently free of any meds and it's working for me. Find out why in this video.
I've taken a bit of a break over Christmas and New Year but I am back. I'm trying a new upload day to see if this works any better. Let me know what you think.
If you are feeling generous please donate to my Patreon. It helps me to continue making these videos.
www.patreon.com/MyJourneyWithMS
For further information about Multiple Sclerosis please contact The MS Trust or the MS Society.
www.mstrust.or...
www.mssociety....
This video could not have been made without the help of Martyn Greswolde at Fresh Mint Films.
Thank you Martyn.
For all of your Corporate Video and Commercial needs.
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![เปิดใจ พี่ญา คนรุม หลังทัวร์ลง หนักสุดในชีวิต!! l [Nickynachat]](http://i.ytimg.com/vi/2-OJZRtclro/mqdefault.jpg)
Obviously it’s been many years since the last post , but I just wanted to say thank you.🙏
@My Journey with MS How are you doing, I've noticed you no longer make anymore clips?
How are you now ?
I wonder how are you doing? I hope you are doing fine. If not, please check Dr Terry Wahls books and articles that link MS with gut disbiosis. New ways to fight against this disease. Good luck, mate!
It's been just a few days over 4 years since your last video, any chance you could give us an update? I know it's hard to do things consistently, especially if you're not feeling well. MS is all about ups & downs, so people also need to see the downs, if that is the case. Hope all is well & maybe we'll get an update soon? :D
Let me recommend you to Dr Okolo herbal medicine formula which can cure you from MS. My Dad was once diagnosed with MS with the help of Dr Okolo herbal medicine formula which we use to cure my Dad completely from MS
Email
(drokolosolutioncenter@gmail.com)
I was watching this videos to learn more about MS. All of the sudden felt tearing up a little when he said "occasionally I still cheat and have a bit of chocolate" you can have all the chocolate in the world dude..
Hi Paul, how are you doing now? Hope you’re well
Would love to see another video from you soon. Take care!
I'm encouraged by your experience. I'm experiencing the MS Hug. Baclofen is helping the spasming for it, on the lowest dose. I was glad to know it can cause muscle weakness so I can watch for that. I was given all of the heart related tests and all came out fine, which is good to know at 58 years old.... I don't have a diagnosis. I quit pursuing one after 4 years because the copays for the MRIs nearly wiped us out financially. I just live with the RRMS symptoms as they happen. I don't want to take MS meds. I take enough meds for other health issues without adding to it so a diagnosis is not that important to me. My GP believes me when I tell him my MS symptoms, and that's enough.
I was looking forward to your next installment. I hope you are well.
Its been six years my friend...how are you?
I want to thank you for the information you provide in your videos. I'm 21 and i've been suffering from 'weakness' in my right arm and leg for about 3 weeks which i'm getting checked out in the next few day with my GP even though it's more or less disappeared now I understand that it could be any number of things ranging from stress, trapped nerve all the way to ALS as worst case so thought i'd do my own research and videos like this are really insightful. I don't think i have MS but the range of symptoms is useful at gauging what i could be experiencing. Thank you for the upload!
update soon. hope all is well
I hope you’re still alive and well.
🙏💜
Thank you for this great information. I am so happy to discover that I have been doing the same thing as you as far as getting off the Baclofin, no meds, excersizing (horseback riding, swimming, singing, and Kundalini yoga), taking vitamins and supplements, and eating healthy (90% vegetarian except for chicken and salmon on occasion). I appreciate this confirmation. I also want to share that I see an Auerveda doctor who suggested Tumeric for aches, Ashwaganda for stress, and Bacopa for memory several years ago, which I find are teriffic supplements. Reading, doing crossword puzzles, making art, are also beneficial, as well as being with positive people (get rid of those energy suckers).
Hey There,
Really great to hear you're med free, a real achievement! I too have been working on this, I'd been on Pregabalin (similar to Gabapentin) for five years and have since slowly weened myself off. I managed about 6 weeks, but over this last week I've had to start taking it again as the nerve pain/burning in my legs/feet/back has been relentless. I just need a break from the intense pain, when things have calmed down again I will once again give it up.
Interesting about the supplements your taking, I've also only recently started taking Calcium and Magnesium. I haven't noticed any changes yet though.
As for Diet, I'm not Vegan but I found what you were saying about red meat being pro-inflammatory very interesting and I've made a mental note to cut it out, it can only be a good thing. I've also got a bit of a weakness for some Chocolate now and again but I think its time to keep away 100%.
Enjoying your videos, very informative.. keep up the good work.
Regards - Neil.
I have a serious sugar craving. I love chocolate more than anything. I have recently switched to a vegan brand called Moo Free Chocolates. Very good. Sainsbury vegan cheese is great too.
I'm very happy to be med free but I understand the need for meds if symptoms are severe. It's just important to be aware of the downside to any meds.
It's worth trying to ween yourself off them when you can. Otherwise it's easy to just take them forever without really knowing whether you need them or not.
Hope you are doing okay Sir 🙏
You are correct with the supplements people dont realize how valuable those are
I’m on Tecfidera about 18 months ; keep reading about PML, liver problems etc getting very worried, if MS on its own is not enough worry about, like you I may knock all meds on the head
check my video about MS
How are doing now? I see it's the video posted on your channel and it was 2 years ago. I hope you're okay.
Just found your channel today and I hope all is well with you. I enjoyed your videos as they were quick and to the point! peggy in texas
I’m the opposite. I’m doing the carnivore diet. If I eat anything else my dizziness and unsettled feeling just amplifies.
I hope you update to us. how are you doing? it has been 5 years
I understand your reasons for not taking more meds but I don't agree. I can only tell by my experience. I was diagnosed this year and already for years before I was already having a very healthy diet and exercising. I did lemtrada as a dmt, I did in september my first round and I have been going great, no side effects. Ms is a tricky disease because you might have new lesions without symptoms. I think you can take the two worlds, having a dmt to stop the development of the disease together with a healthy and active lifestyle.
Thanks for sharing. How are you now.?
I was diagnosed in October and the MS doctor told me about the connection with Vitamin D, I did research on it and found the interview with Dr Coimbra about Vitamin D protocol have you seen the interview it is on TH-cam I am getting ready to start on the protocol I make my appointment after my dexa scan on Thursday please look into the Coimbra protocol there is also a Facebook group
check my video in ly channel about MS , maybe it will help
hi, Thank you for sharing your journey. My wife has recently been diagnosed with MS and has been B12 deficient for 6 years and has 3 monthly injections. I see you are also on B12 injections. I have read that B12 injections should be given every 2 months to people with neurological disorders instead of every 3 months. Can I ask how often you have yours.?
Sorry for the delay. I'm having them every 12 weeks at the moment and it is doing the trick. I do start to feel the fatigue a little more in the final week but it's not sever at all. I will increase the frequency if I need to but at the moment all is well.
B12 really helps me too.
It's Jan 2021...how are u doing now? I pray just fine...Godspeed
You should always consult your DOCTOR first before starting any vitamin regime. Have him/her send you for a blood test to see what you're low first then make the choice on which vitamins should be taken if at all any. My personal opinion buddy you're playing with fire not taking any MS meds you cannot beat MS through diet.
The disease still continues to progress unfortunately. I thought the same thing years ago as you are now and I've gotten worse. Now I need an aggressive treatment called LEMTRADA which is the closest thing to a cure MS have ever seen. yeah the side effects are scary however when you read the small print in the study less than .009% of people experiences any of them. Also the efficacy of the drug is INCREDIBLE 85-90% don't RELAPSE. First treatment 5 days 6 hours a day. then your done for the year. Year 2 3 days 6 hours then you're done. For life hopefully. The 10 year study/follow up is that 75% of the people who received the treatment didn't need a 3rd infusion. EXCELENT ODDS I wish you the best and remember to live laugh and enjoy life. #KEEPSMYELIN MZ
So if you take those treatement you will live a normal life ????
Phuk doctors. WE BEEN ALL HAD!
Please check out the LIPOSOMAL form of supplements.
I take Liposomal C, D w/k2, b-complex and glutathione.
All from QuickSilver Scientific.
Other companies make them as well. LivOn Labs is a good company too.
I love my desserts and chocolates too I had to change my life style and be a vegan too it's kind too hard for me too I have ulcerative colitis and I refused to take steriods and the autoimm suppressant, I'm taking loads of natural food hoping to be cured and pain free with the right diet, by the way have you looked for that manuka honey and turmic powder?
Have you tried LDN ? Also you might want to add vitamin C and probiotics in the form of fermented vegetables ?
Google manuka honey
and honey propolis benefits
I just don't know where can I get the honey propolis ;(
Noora Salti chain bridge honey farm Berwickshire
Are you willing to try other medication? I wouldn't dare going without medication. Diet and exercise are important, but even with Tec not working for me anymore, I am trying something else.
If I need it I will go back on meds. As I am at the moment I am better off without them. I am having yearly MRIs and regular blood tests. If anything starts to look abnormal I will do something about it immediately.
Congratulations on going vegan!! Praying you continue to feel great.
When you started feeling tingling and numbness at the beginning, did you have this feeling constantly or it was on and off? I have theses feelings in my foot in the past days, but it is not constant, for example when i lay down it is much better than standing up.
Is there an age group associated to MS. Recently I was sent info of MS. It says I requested it but I didn't. Though I have no fully search through it because it came to my step father's address. I'm a junior in high school during freshman year I had to get back surgery. Most of the symptoms of MS matched. Though my reading speed has gone down and last year I would forget assignments so I now keep a agenda. Though it has not gotten worse. The way he has describe the pain and how it got worse reminds me of when it was bad. it first started getting bad in July before school I got an appointment in October as I passed on in for a while and the neurologist saw a look at the MRIs if my lower back along with the x-rays and booked me in surgery a few day after in November. If anyone has any info on if you can get MS when your younger can you advised me. I should also mention that the pain is coming back although it's not as bad as before.
I've been looking into all types of illnesses including cancer. I believe medical doctors have been fooling people and what's been minor aches and pains that we've could have probably ate the right food and have proper exercise for circulation we wouldn't be so screwed... they work together and they keep themselves rich off telling stories from a body that was created perfect by the Creator we all know that they tell us that we self heal self heal self heal pray on it boy start praying these doctors ain't nothing but sharks making sure they're Masters stay paid so they can stay up most of these illnesses are done made it up and fooling the weak and unknowledgible.
caffeine? alcohol? thanks
Hello, what do you eat for protein?...Carolyn
Meds free, way to go!
Do you get very cold very easily?
Frankly, it sounds very dangerous to me. All you're doing is exercising and eating well? I'm all for healthy living but my doc definitely doesn't think I should go off the meds. Did the doctors agree with your decision to quit the medicine or is this something you pushed yourself into?
It was quite strange. I didn't think that the meds were doing me any good. I felt weirdly suicidal a lot of the time. When I started to research Gabbapentin I discovered that this was a fairly common reaction to the drug. I lost all muscle tone and felt weak all of the time. This is a common side effect of Baclofen. So I gradually stopped the meds. Big mistake! I was in pain all of the time anyway which is why I didn't think that the meds were working. When I cam off of the meds it all got so much worse. Then I remembered why I had been (semi seriously) considering a leg amputation. The pain was excruciating. I went back on the meds and everything was fine for several months. I was on high doses of both of these meds along with a high dose of Zoloft.
Eventually I started to wonder if I needed these meds at all. Pain had gone completely. No spasticity at all. I gradually reduced the meds and finally eliminated them. While all of this was going on I was looking into changing my Neurologist. I was sent to a new specialist about six weeks after I became med free. I went into his office ready to argue my point. When I sat down he said, "Why are you on all of these meds?" I told him that I had stopped them and he said that he was preparing to tell me to try going med free.
I'm not totally against meds but if I don't need them I'm not going to take them. If my next MRI shows no sign of improvement I am going to start looking into methods of remeylination. I have a friend in Alabama who is a bit of an expert on the subject and could probably point me in the right direction for test and studies. I see my specialist in about a month. Soon after that I'll have an MRI. Fingers crossed.
Whose your friend from Alabama? Asking because I'm from Alabama and I been developing signs of ms for over a year. Had my first visit with a neurologist this week and she set me up for MRI.
My Journey with MS Thank you for the reply, must have missed it. Stay strong. :)
He's a researcher with a University. He doesn't see patients at all. All lab work.
Try not to stress. Just wait for the MRI results. There are other things that it could be. My Wife has Graves disease and her symptoms are very similar to mine. I have a friend who had very similar symptoms too. Her MRI showed nothing and her blood tests were normal. After about a year of stressing it just went away. She had nothing physiologically wrong with her at all.
Does your doc know what caused your MS?
Dairy is terrible for ms! Check out the overcoming multiple sclerosis website on dairy!
Could you please give the link for MS diet?
With Dr Okolo herbal medicine formula you can get cure from MS
My Dad was once diagnosed with MS with the help of Dr Okolo herbal medicine my Dad completely free from MS
Email
(drokolosolutioncenter@gmail.com)
You shouldn't take vitamin D without vitamin K2 and I don't really see why you feel the need to take calcium. You should also be taking an omega 3 fatty acid supplement , such as from flax or Chia seeds. Great job on the vegan diet!
Can't wait for your next video... love the topic!
Your current MS treatment should be diet. I hope you are on a diet. I like overcomingMS.org.
Paul died
What???
Really!! That’s shocking, do you know how he passed? Was it a complication due to his MS.
She is lying, no one listen to her
Crapitalism So I wonder where he is then, he’s got a good channel here with lots of interested people.